People Attacking Ehlers-Danlos Online

How do you fake a condition that requires having hypermobile joints and soft, elastic skin as well as several other defining features? Please enlighten me, ableist bigots.
www.scarlitrose.org
*GoFundMe: www.gofundme.com/f/please-hel...
*Video showing the report of my most recent confirmation of my C spine instability:
• Recent MRI Results
*News article/video clip: bc.ctvnews.ca/after-years-wai...
*BC Disability Article here: www.bcdisability.com/post/sca...
*Autistic woman battles Ehlers-Danlos article: tremg.info/2021/02/12/an-auti... (*note: though I indicated being uneasy with vaccines because I tend to have reactions I do have my covid vax)
*GoFundMe: www.gofundme.com/f/please-hel...
*Video showing the report of my most recent confirmation of my C spine instability:
• Recent MRI Results
*News article/video clip: bc.ctvnews.ca/after-years-wai...
*BC Disability Article here: www.bcdisability.com/post/sca...
*Autistic woman battles Ehlers-Danlos article: tremg.info/2021/02/12/an-auti...

[@caivail4614]

You bring up so many good points here. I think there’s a very small population of young people who do have health issues but are also attention-seeking (like, surprise, most teenagers on social media) that are causing people to look askance at EDS in general. It may be also partly due to there being so many seemingly disconnected symptoms, it can seem like, how can one person have so many different health issues? Once you understand the science of connective tissue on even a basic level, it’s no longer hard to believe or understand. It’s nothing new; MS used to be called ‘hysterical paralysis’ - imagine how defeating that diagnosis must have felt back then? Things will get better when there’s more medical education on EDS, I’m sure.

[@dreamerqueennotunderthemachine]

I agree with all of what you said too, and thank you!

[@moodie_south5418]

I just can't believe you have to prove every fucking day that you have ehlors danlos.

[@dreamerqueennotunderthemachine]

I know it's so wrong. People need to wake the f*** up

[@maxs_420_grow]

Where is the eds community? I cant seem to find many people even talking about this.

[@dreamerqueennotunderthemachine]

Facebook groups, Twitter .. I don't know why you can't find it, and my only answer to that is that it's being buried in terms of visibility. There are people all over social media who have EDS and advocate so I really don't know why you can't find this. I don't get it.

[@dreamerqueennotunderthemachine]

It frustrates me that you can't seem to find anything re: community. I don't engage a lot because I deal with severe pain, fatigue and depression but I am in at least a couple FB groups and will provide you with a list to verify that there is EDS community online, albeit apparently being buried in terms of visibility.. so bothered that I'm going to put the word out there to EDS friends for a response. Also if you're looking for this attack on EDS, the person who told me that and said there was something on tik tok disappeared off my instagram again, but here's a thread on reddit about this www.reddit.com/r/illnessfakers/comments/eog2ld/why_do_so_many_people_fake_eds/