Do I Have Fibromyalgia? Characteristic Symptoms of Fibromyalgia
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- čas přidán 9. 07. 2024
- This video is about Fibromyalgia
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This video is meant for educational purposes only. We do not reply or give medical advice. Please see your PCP if you have questions about your health-symptoms you may be experiencing
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#Fibromyalgia #musclepain #medical
I am 84 years old. A retired school teacher. I've suffered with fibro since I was in my early 30s. I can't take pain medication. My doctor and I worked on diet, exercise and positive attitude. I do not suffer from depression. I do work very hard to help others and stay as cheerful as I can be. That has been my lifeline. Turn over the pain to the universe. Be thankful daily. It is not always easy. Diet has been my biggest wins. I also have IBS. Finding the foods I could safely eat was a challenge. I've done a fair job if I do say so.
hi mary, i would love to know which diet you follow, as i am suffering with extreme depression mainly due to the thought of being sick like this till the day i die. i'm very glad you handle it properly
😊❤
I stopped all medication in 2015 the toxic side effects, were killing me. I stopped Dr's. Too, they said I had 2 kinds of cancer. Your diet and exercise is important, stay happy, sing, get hugs, a 17 sec. Hug gives you 30 minutes of healing energy inside you. Rest and relax is important, you can't do too much and you can't do too little. 😊 It is a lot of getting to know you. I started on scramble eggs and chicken soup. And worked from there. Fresh tomatoes are ok. But tomato products inflame the muscles and cause pain. So much you need to discover. 😊😇
This is so inspirational. Thank you for sharing.
I hope you are doing well❤
I am 73 years of age and was diagnosed with FMS at the age of 45, though from the symptoms, I know I had it long before that. I would like to say that the term “psychosomatic” is not a belittling word or a brush off. It literally means “of body and mind.” I noticed the word Stress in this video multiple times, and I believe that stress, be it mental or physical (i.e., sick or otherwise injured) is the root of what triggers the misfiring of our various systems, such as gut, muscle, nerve, etc.
I was finally diagnosed after being in acute pain for 7 months with 3 herniated spinal disks. My HMO doctor refused to refer me to a surgeon early on. I was left with chronic pain and paresthesia throughout my body. I just don’t think a human body can go through stresses like that for such a lengthy time and not have lasting repercussions. Currently, I am in a flare, and the only thing that helps me is rest and Norco. But doctors have gone way overboard regarding opioid pain medications for all of us, so I use the few tabs of Norco I’m given very carefully; I only take 1 to 1 1/2 tabs at night so I can get to sleep.
I like the idea of having a CZcams support group, since I live in a sparsely populated area where I haven’t found a local support group yet. I’d like to extend my warm wishes for everyone who is suffering with this horrible condition.
😊
I received a fibromyalgia diagnosis approximately 8 years ago. I was experiencing constant muscle and to touch my skin felt like it was on fire. Which could never be explained. I have always had trouble with the sun. I have never enjoyed it only when near water like fishing or using my inflatable boat. I found the sun hurt my eyes and my body. I also never experienced much in the way of headaches and I constantly was getting sever headaches to the point I would have to lie down. Which just made me feel worse and my body pain I couldn't relax or sleep. I am always tired and chalked it up to my bipolar disorder which has similar symptoms in the sleep aspect. But this felt different as when I did get some sleep I never felt awake. The main symptom that really affects me is TMJ disorder it is now so bad that I even grind my teeth not only sleeping but anytime day or nite. Which my face swells and is always sore to eat or drink for that matter. I also suffer from neuropathy pain which totally is excruciating and my IBS is so bad that I have had to get treatment as it is now more of an ulcerative colitis which is a whole thing that has made me have to get colonoscopies more than I ever imagined. No medication has helped me and I have tried many which all you have shown on this video. They didn't work or I had such bad side effects that it made my whole digestive symptoms and colon and bowel issues worse than ever. Since my diagnosis I have had to take medical leaves from employment more than I every imagined also hard to maintain a routine in life. As my life with fibromyalgia has drastically changed as far as my self esteem, relationships with family, friends and co-workers. I have had some judgment and comments from many people who don't understand my pain. I am lazy, very unsociable which has been said to me. If anyone would like to be me for just one day or hour they would take back those comments l. Besides, dealing with being born with bipolar disorder and yes I have been seeing therapists and doctors since I was in my early teens. I tend to be very introverted and than struggle with the fact I live my life sheltered and in pain constantly. The fibro fog is also getting worse for me as I am in my early 50's and I have had trouble focusing and remembering simple things. All of these symptoms of fibromyalgia I have experienced long before my diagnosis as doctors had no idea what it was. It took me not being able to walk literally and my hospital stay of more than 3 weeks for me to get at least some relief knowing what is wrong with me. The diagnosis just help my mental state to know I wasn't losing my mind and finally being treated for my pain when it flare ups with torodol which I only get to ease the inflammation so I can at least take care of myself. I am single and will probably stay this way as relationships never last and I have lost my family, my adult children don't understand this illness at all. So it is easier for people to just not be in my life. Sad but true. Ok, I shared my story as I want others to know they are not alone. I have always been a shy and hard to speak in this type of public forum but this illness has affected my life in a big way and I will do anything to help others who deal with fibromyalgia. Bottom line we need to make society aware of the way individuals suffering from fibromyalgia are everyday people from any walk of life. Educating on this illness and bipolar, Ibs, anxiety, suicide awareness is only to help society not hinder it. Thanks for your time. You are not alone coming from a woman dealing fibromyalgia for almost 10 years that I know of. Take care
@ Marion Payne...thank you so much for sharing all of it !!! I have been diagnosed about 5 months ago...always had a lot of pain but I had never heard of fibromyalgia..so I didn't tell my doctor, I figured it was due to my work and a few accidents but then I started feeling so much pain laying in bed to sleep...we changed our mattress 3 times before I finally mentioned to my doctor that when I layed down it felt like I was laying on springs...well that did , he told me he had written down everything throu the yrs and wasn't absolutely sure it could be fibromyalgia until that detail...I told him some days I couldn't wear a bra, my clothes would hurt me, if my mate would just hold me or touch it would hurt...so he started me on gabetin ..if I'm spelling that right..
I already take painkillers for migraines I've had since I was 6...I have Ibs....some weeks I can't go to the bathroom...the legs burn , then it's pins and needles...like you I thought I was going crazy...I have a good caring doctor..he takes good care of me and I don't feel stuck and not understood...this week my left side is hurting but I may have sprained myself...my back isn't good from the work I used to do...so I feel you and I'm so glad we can share here as my doc told me it was different for everyone...please take care...💜
My doctor will not give me pain pills anymore. I haven't seen her for close to 4 years because I cannot wear a rag on my face. I quite literally can't breathe. I am pretty much bed ridden and am paying for healthcare but I am being denied because she says that a face rag prevents the spread of a virus and she says the clot shot was tested and is safe and prevents the virus. She has taken money for me being her patient for close to 30 years. This plandemic has exposed both her incompetence and corruption. What am I supposed to do? Maid?
There is so much more we need to know about fibromyalgia and I believe we have barely scratched the surface.
Med Made EZ you are so right ✅️
Having fibromylgia is something awful to have! Many days its hard enough to wake up- get up and try and greet the day!
Recently the flare up so bad- it even hurt to just move! Everything was a chore! Pain within the body effects your well being,,effects you emotionally and mentally! My blood pressure goes up! I am on tramadol,,but its so mild ,,,considering I was on perocets for years ,,then they outlawed them!
My doc asked me what I do for fun?! Ha- I guess I never have any fun anymore! Having pain,,can put you in a terrible frame of mind! Don't really wanna go anywhere,,,going to the grocery store can take the life right out of you! Gotta haul it all in then,,put it all away!
You're right about people or family not understanding your disability or how bad it is when you do too much... I fight fatigue also,,,
Thank goodness I get a steroid shot every 3 months! Helps with inflammation and pain- it's only temporary,,,and really helps for awhile!
Why do people get this fibromylgia,,,,and how's come some do?
My Mother verbalized as far back as I can remember that she didn't feel well. Gradually she physically declined and rarely did anything physically and sat around the majority of the day. She wouldn't really see a doctor to find out what was wrong with her.
As I got older I became extremely fatigued and had constant deep muscular pain. My blood chemistries revealed I have RA and then MRI revealed I have ankylosing spondylitis. I have joint degeneration and have had bilateral hip replacements. Nine surgeries on one that caused me irreversible nerve damage with foot drop. My life will never be the same. Fibromyalgia IS REAL and yes it's usually connected with another form of condition. It's like living in your own personal he'll. 😢
I've had fibromyalgia for 17 years now and I've given birth 4 times since I was diagnosed ( our oldest and only daughter was 2 when I was diagnosed) and honestly it's so hard to keep up, thank God my oldest helps out when I have flares. God bless everyone suffering from this and prayers also to the ones affected by seeing their loved ones suffer ♥️
You shouldn't use your kids to help you and take her use her like a nany it is not ok to have so many kids is you can not take care ob them
Look up Thiamin deficiency.
@@anamas149 umm I take great care of my kids thank you,I have children to care for not the other way around🥰
@@KitKatToeBeans thanks, I will check this out!!
I wish I saw this a long time ago. This is everything for a couple of years. All of it didn’t happen at once but several things did and now I feel like everything is happening at once! It’s taken years to get a referral to a rheumatologist and then 4 months to actually get an appointment. This Thursday!!! Thank you for this. Maybe I can just play this and say, “Here are all my complaints.” Wish me luck.
Hi Jenniebean! Have you had your appointment with the rheumatologist yet? If so, let us know how it went! ❤❤❤❤❤Take Care, nan
I'm in Australia and we are way behind in the understanding and treatment of fibromyalgia. I'm 61 years young and have had fibromyalgia for years and YEARS. Had my first diagnosis at 28, but I'm sure that I've had it since my teens, untreated. It's caused me to become isolated and depressed, crying alot, feeling "less than". I've never been able to study or hold down a job. My current GP is only able to mess around with pain meds, and I'm in counselling for complex trauma. I don't have a great support network, as people who don't have it, think I'm just getting old,but they don't want to hear about it. And I don't want to burden them
Was diagnosed after a mystery illness, later went on a keto diet and lost a bunch of weight and really got control of my hormones. Fibro symptoms that had been destroying my life disappeared for about two years, then I started into peri menopause and started having symptoms again, increased my carb intake just a little and worked on gut micro biome and the symptoms have again almost disappeared in a week. I also started using a product from salt wrap that is a magnesium supplement for cramps and it has worked wonders. Thank God for sending it to me, not one cramp since I started taking it.
Hi I was diagnosed with Fibromyalgia last year. I find it amazing that it took years of figuring this out and I didn’t even know that Fibromyalgia was a real thing because I’d always heard that it wasn’t. My symptoms are neck, shoulder, hips, and lower back pain. I also have IBS, RLS, numbing and tingling of the hands, memory issues, depression, and anxiety. My daughter has many of these same symptoms but different symptoms as well.
I am taking, flexeril, Gabapentin, and an antidepressant.
Order herbs from dr Ojo herbal cure click on this channel www.youtube.com/@Drojo2
Ohh, sadly… it’s VERY real. 😢 😮
It's very real, also I'm taking gabapentin, antidepressants, and carisoprodol. I hope you have relief with these medicines, fibro sucks
@@Nan-59 I know😞
Great video. I have ALL of these symptoms and I assure that this horrible condition is REAL. I suffer from costochondritis and Tietze as well. Tinnitus on and off, dry eyes, trouble swallowing at times, palpatations , bee sting pains, as well as deep pains, back aches, sensitive skin, numbness with tingling in my upper thigh, and sometimes it feels like bending tubes of water running in different directions under my skin within the numb area. Stiff when I get up, dizziness on and off, blurry vision at times, pains in my ears on and off, horrible sleep and IBS. TMJ & Headaches some days and horrible deep aching pains in my feet. Sometimes low grade fever and can't warm up, especially my feet and sometimes can feel my body trying to warm up inside . I have had multiple traumas in life, high stress, many surgeries when younger, endometriosis and PTSD at mid age. My legs often feel like I'm wading through deep water and at times breathing deep is next to impossible . I have approx 10 symptoms at once, some remain while others join and other symptoms leave. They are NOT all constant at all times, except for pains everywhere and sore skin on my back, & bad sleep. I have even felt myself fighting off depression , which I feel came only from fibro and not an external reason. This is brutal..I appreciated your educational video. To the guy who feels like he has all symptoms except for worse pain, my pain started milder as well. Please reduce your stressors to try to ward off worsening pain, if that might work..not really sure but worth the try.
Thank you for sharing!
Hi brother just wanted to know how you going with it niw? Any relief and dies your feet still hurt ? Does it hurt while you walk or even when you taking rest?
My podiatrist suggested I get new balance shoes in the 900 series or better. That is made a world of difference with my feet pain.! ❤❤❤❤
Me too!! all of it just like you...yes, the bee sting pains...i call it needles. Also drye eye, palpitations....IBS, etc All same as yours. It's tough.
Does Anyone have Problems with Excessive Sweating throughout the Day ?
Especially if Stressed or if being in a Hurry?
I feel I get New Symptoms as Time goes by. I have had Fibromyalgia since 1985
Love and Hugs to All My Warriors ❤😊
Yes me! I am on Yelate and it helps a lot to lessen my pain but I sweat profusely. Apparently the Yelate is the cause of it. With FM your heat and cold control are out of order.😂 So you sweat anyway! 😅
And also have toe cramps and terrible Charley Horses if I don’t drink Gatorade and Lots of Water
Yes I feel I am in the change but I am68years old
Yes I have the sweat running down the sides of my face and my hair is wet have to use hair dryer on it it is I felt I was going through the menaparase
yes! And I can't tolerate heat at all
The worst symptom for me to handle is the searing electric shocks that go through my body. prickling stinging feelings that make you suddenly want to scratch an area like youve been stung by an insect...which then happens again in another part of the body...and burning ends of fingers and toes.
You are the only person I have seen talking about electrical shocks through the body. God bless you for sharing. Doctors could not understand what I tried to explain. I was so frustrated. Last specialist I saw gave me many tests which showed nothing, but he gave me a miracle drug that almost completely stopped electrical shocks and a lifetime of migraines. It was Lyrica. Lyrica also helps me some with body pain. It also helps me get sleepy. I still have many other symptoms but I have a great GP who knows that Fibromyalgia and Chronic Fatigue Syndrome is REAL ! ^^😶🌫
i have the electric shocks in my wrists. i call them "needles". It's awful. I have TMJ, IBS and all of the pain. It's debilitating and all the rest in the world really doesn't help....i can sleep 3 hours or 13 and still feel the same in the morning. Moving around slowly, like a walk in the yard, helps. Also, try gluten free diet...and weight loss. Those helped me. More energy! this syndrome is real. I had a friend who lived to 94, she had it...she was such a sweet soul.
@@margarettaylor9715 YES!!!!
I get the shocks in my legs which cause my legs to buckle. On a good day with less pain than usual I have tried not to use walking sticks and have found that most of the time I need at least 1. My daughter keeps telling me to use 2 sticks just in case both of my legs go on me and I can't get up by myself.
Yes and the prickly feeling as if you have red ants biting you
I’m currently being treated with medication for fibromyalgia. I’ve had chronic body pain for years. Though this year it has been a mix of chronic body pain & my entire left side hurting for longer than 3 months . I kept going back to doctors until one finally listened to my symptoms. She put me in medication for fibromyalgia & it has helped though my leg is always hurting & sometimes it feels like it’s a burning sensation. Lately I’ve been extremely gassy , I forgot things a lot & fast & I can’t seem to say what I want to . I have trouble getting it out though I know what I want to say.
Order herbs from dr Ojo herbal cure click his CZcams channel www.youtube.com/@Drojo2
What medication did your doctor prescribe to help you with the symptoms?
Have they done MRI?
Pantethine for burning sensation (not pantothenic acid).
Those latter symptoms could be side effects from the meds. I was put onto anti-depressants, and paracetamol, and anti-inflammatories, all of which made me fatigued, dopey, confused, could not think. I transferred to herbal remedies, from a naturopath, as the docs could do no more. I was amazed at how much better my head and body was, and l found l could function quite well. I have stayed with herbal medications, and will not go back to synthetic drugs and all the side effects. Hope this helps. 🙂
I have all the symptoms and I’ve been diagnosed with fibromyalgia. Another symptom of fibromyalgia especially what I have is the awful foot pain, my feet hurt so bad and hurt more at night when I’m trying to sleep and when I wake up in the morning. It’s like having constant plantar fasciitis that won’t go away it seems like.
You have tarsal tunnel.
I experienced that for about 2 months and that finally went away. I wish everything else would. I haven’t been diagnosed yet but see a rheumatologist this Thursday.
Try CBD Oil but water based, not an oil based cbd
Same here, I'm with you. I have no words to describe how devastating that is. 😭
What causes Fibromyalgia is still quite a mystery. My 2 cents (which is probably worth only half of that) - I have known a number of people with it over the years and in my untrained unprofessional opinion I think it is ultimately based on stress. Stress that overwhelms and produces adverse physical manifestations in the body - triggering muscle/ligament tension, switching on autoimmune disorders, sensory sensitivities, etc.
I knew a woman who was afflicted with severe fibromyalgia for a number of years. An injury eventually caused her to become bed-bound. Once she took to the bed, many stressors where removed from her life and the fibromyalgia pretty much disappeared.
To be clear, I don't think it is psychosomatic. For some people, I think it is how the body physically reacts to physical and mental stressors. Even if this guess were accurate to some degree, however, there is still the big question as to why stressors would cause the body to react in this way for a subgroup of people and not for others.
Absolutely 100% agree.
I think there are many contributory factors and it cannot be pinned to just one, just because one person was proved to improve when a particular factor was removed does not mean all sufferers will
@@stoptheirlies Yes, of course - that is why my comment was laced with qualifiers. But there may be a common denominator, and I think it is stress.
@stoptheirlies I absolutely agree
You are right, Fibromyslgia is not psychosomatic, it is neurosomatic.
Marion, my name is Laney and I too suffer from fibromyalgia, was finally diagnosed with it in 2003. To make a long story short, cause my phone service is not too good where I live, I just want to tell you I found that drinking Aloe Vera juice by "fruit of the earth brand" has helped me tremendously!! I get it at Walmart in a gallon jug, the unflavored one but I add about an ounce or two of orange juice to about 6-8 ounces of Aloe, dont drink it by itself, not so good plain😊 I started out drinking it twice a day for months at a time, now I just drink it whenever Ive worked hard outside or whenever I need a boost. It is so good for imflamation in our muscles, joints, everthing in our body thats out of whack with this fibro!!! It has really helped me, Ill be 65yrs. old in Nov. I hope this will help you as it has helped me. Your in my prayers sweetheart, so dont give up, I was just like you in the past. God Bless You!!!!!!😊😊😊❤️❤️❤️🙏🙏🙏🙏
Great video, although diagnosed with fibromyalgia I often wonder if it’s something more. I keep fighting this chronic illness and try not to give up but over the past year I feel I have gone much worse, I struggle with everything whilst maintaining a full time job, I don’t have a choice. Work to survive and live but nothing is easy I have good days yes but mainly terrible. I don’t sleep, I struggle to eat, I have IBS issues, brain fog usually first and last thing, I do weird things at times,I am literally mentally and physically drained 247 but CZcams is one of the things that keep me going. Always here to talk if anyone needs it.
I just came across this video even though I’ve been searching this topic for years. I know how you feel about having no choice. I was a single mom and own my home with no family around. So I had and still have no choice but to do it all. Especially now that my son is in the military so he’s not around to help any more. So sorry you’re going through this but you’re not alone.
@@jennibean71 I know there are people worse off than me & it’s a BIG struggle, I feel myself changing from month to month getting worse and worse, iv started to drag my feet like lead weights attached to my legs, I’m in 247 pain it doesn’t ease it just gets worse more so upon an evening :(( always around tho if u need to chat x
@@OMGExploring I use Yelate for pain and it really helps.
No sleeping makes FM unbearable. I take half a sleeping tablet, helps a lot.
IBS very common with fibromyalgia
Yes I do Dr. Has check my heart 3 times living me at the hospital for 3 days and find nothing wrong with my heart also get all those symptoms plus vomiting , nausea , fever ,pain on ears the electric shock are as bad as the pain, I had this sense I was 17 years old but discovered at 45 years old now I am 59 and it's bad I believe that it get worse with time may God bless us all
Having had a stressful childhood my mum was not well. Then a sick husband . We had a child born with 3 holes in his heart, I had some skating injuries and two bad falls. I have osteo in spine and one knee where injury was.hubby had cancer 3 times too. My son In and out of handicapped places. I looked after him 15 years. So it all adds up. On amitriptiline at night. My legs give me hell. Never been diagnosed with fibro but symptoms and long term stresses have contributed. I am 71 now. I think stress for life adds up to pain. I also eliminated bell peppers potatoes and tomatoes from diet. Nightshade vegies. Psoriasis has subsided not as inflamed as it was.
I get pains in my legs too so bad I can’t walk is there anyone else getting this
I spoke to a consultant and explained about my fibro. He said 'there is no such illness'. He explained that because Drs cannot explain everything they make up a word and fling it at it to shut us up rather than spend more time and energy into finding out what causes your agony. Its often a case of multiple breakdowns in the nervous and immune system that is often caused by stress, trauma and our crappy diets. Funnily enough instead of getting cross I thanked him for giving me more understanding of my condition than any of the Drs I had seen. I never call it fibro now. I still have health issues but now I understand it and I manage it better.
Why did you watch this video if you were told this and didn’t believe the condition exists? Then to make this comment which others will read? I really hope you can manage your diet and stress levels and never look back but my experience is that flares will happen with no explanation. Good luck Lizzy.
I was diagnosed with fibromyalgia twenty years ago and my doctor advised me to exercise. I took a class at the Church Health Center called Ai Chi, a warm water, deep breathing exercise and I found my pain level was more tolerable, my stamina improved, and I slept better. I ended up getting my certification from Ai Chi International in 2009 and have been teaching this wonderful exercise ever since (except Covid closed our pools down for the time being).
That’s amazing
Was the Chi in water then?
I have restless legs and my ankles. Doctors put it down as growing pains it started when I was 8 years old and it was now and again later on said it still restless legs and arthritis didn't go to any special ist I am in. My 67 I don't sleep well up for two or three hours I have IBS and delecat stomach with tablets I am on morphine beutec patches 15mg if the pain gets to much I have morphine liquid to help but I am not fit to do much and now I still have the restless legs but it is fibromyalgia all over my body I cry with pain and lack of sleep it stops me from going to far I sleep in the afternoon
I was diagnosed with fibromyalgia a year and a half ago. I experience every symptom on that list and then some.
I believe I have had fibromyalgia since I was eleven or twelve years old and didn’t know it. It started to be debilitating three years ago when I caught the first strain of COVID.
Warm water physically therapy has been one of my biggest helpers in controlling my symptoms. I also take medication that helps. I found out there weeks ago that gluten was making my condition worse. I also stopped eating dairy and it seems to be helping.
Mentally I get really frustrated because I feel like I can’t get my life together the way I would like to. I never know what each day is going to be like. I have days where I can’t get out of bed and have to cancel my plans.
My heart goes out to anyone fighting this disorder. It can take your quality of life away if you don’t get get proper help and support. It is so important to surround yourself with people who understand your disorder without being judgmental.
Warm water physical therapy-you will have to tell more about this. I believe this and can see how this would be extremely beneficial!
@@medmadeez9159 when you do warm water therapy, you can exercise, stretch and build endurance without putting as much strain on your body because you’re weightless. The warm water will help muscles relax.
My therapist also has fibromyalgia in addition to rheumatoid arthritis so she really understood what things felt to me. However, she did tell me that some people don’t do as well in the water as they do on land. Everyone’s so different in how and what their body responds to. Either way, it’s worth asking your doctor to send you to therapy for an evaluation.
I've been diagnosed with this over 20 yrs ago after tests for other things and I've had arthritis as well. It's a painful imposition on a daily life especially when both flair up and I can see clearly on my body when it occurs.I haven't good Drs like I had in my home state. Unfortunately NYC and this area , is seriously doing medical wrong.
My sister my cousin and myself all have fibro. I am on the antidepressant and nuerontin for my fibro. I have CROS as well that includes muscle spasms so my pain management dr has my on tizanidine. I have a lot of problems sleeping. My muscles feel tense all of the time especially when I try to fall sleep. My sister has sarcoidosis as well and celiac disease.
OMG. You explained very nicely in lay terms. I've had tmj all my life. IBS my whole adult life (and I'm really sick of the IBS, it's very depressing), the food intolerances, I have diverticulosis and lactose-intolerence. The Dr wants me on a low carb, no sugar diet, but what else is there for me to eat? I'm so sick of this life. Dead would be so much better. Add on the pain. Days like today, waiting for a storm, every inch of me hurts. What do I do? What kind of Dr to see?
I’m sorry to hear this. Some people try medications like Cymbalta which can be very helpful. Also avoiding inflammatory foods is important. processed foods do have inflammatory component to them.
You also might want to ask for a referral to rheumatologist as well.
i went gluten free...it helped. I lost weight and it helped. I have had all of this for over 35 years, one doctor thought i had been bitten by a tick and gone undiagnosed...it was never proven tho. I went on a statin and it got worse so my rheumatologist put me on a different one. She never formally diagnosed fibromyalgia which is crazy ! In my 30's i was diagnosed with polymyalgia. Also arthralgia. I have needles feeling in my wrists and feet are bad, and elbows the worst. Tired no matter how long i sleep...brain fog...IBS, all of it....ALL SYMPTOMS. I feel your pain. Try a good rheumatologist...i ran into a lot of bad doctors and stonewalled. I had an elderly friend who lived to 94 with it and i wish she was still here now so i could ask her more questions. Take life one day at a time.
Thank you all
I'm amazed by all these stories. If I didn't have this, I would wonder why live? God gave every living creature the will to live. Goes to show just how strong humans are about living. Cause it's hard. Bless you all. Your replies lifted me
All of them! I deal with all of it and its crazy cuz doctor would also blame these symptoms on my chiari. A rheumatoid arthhologist told me that it was Faber😮 myalgia and had barely seen me for a few minutes she already knew it could tell.
I was diagnosed this condition 3 mths ago i had sore neck headacks also sore lower back and side continually id have sudden strange stabbings in my head or on my body it would be sudden then gone. I was given gabapentin, i decided not to take them and try something natural, i started going to chiropractor got put back into place by massage and manipulation. I started hr excersize 2 half hr intervals to start then hr every second day getting the heart up. I took magnesium iron zinc B vitamins and C. Also had joint pills fishoil and locek for stomach acid. Iv also done full body stretchs every second day. I started feeling really good by 4th week my headach stopped 3 days after chiropractor visit. My back and side stopped aching by 3, rd week alot of unusial pain has stopped by 4th week. I have a bad pain in my hip still but this i think is wear i started from holding onto my pain with my muscles and the ongoing effect as back neck and headahs resulted from . Ok i have a real hip problem so i now know not to sit down for too long as muscles start to be fiberous and hurt when moving. You sit for too long u get stiff.what a diffrence it makes as u get older.
I have a feeling I might have fibro from chronic chest and back pain for two years. Through this pain I developed anxiety, panic attacks - (typically presents nocturnaly with getting up with chest pain and racing heart) depression as well set in with the constant pain and not being able to do what I once loved (drumming and working out being two big ones). The almost daily chest and back flare ups take a toll on you mentally for sure - I want to get referred to a rheumatologist but first I need to get some blood work done to test for autoimmune disease and a back and chest x-ray - doctors seem dumbfounded on what's going on with me. And the pain seems to be just getting worse.
I’m sorry to hear this! Hopefully they can find out what’s going on
@@medmadeez9159 thank you! Yes, I hope one day I can find out what's going on.
@Love Lupita thank you for your response - I will definitely look this up! My blood work came back with evidence of inflammation - did get referred to a rheumatologist - will see what happens moving forward.
Supposedly this is very rare, but my husband, who was diagnosed about 11 years ago (around age 31) as "developing fibromyalgia", actually has had it since he was a child (maybe 9-10 years old) and no one could figure out what was wrong with him. The diagnosing doctor didn't understand that his symptoms had started when he was very young: chronic pain, chronic fatigue, brain fog and learning disability, anxiety, lack of muscle tone, digestive issues and nutritional deficiencies, overweight, and lack of ability to sleep well and awake feeling rested...these problems have plagued him since childhood. Everybody - from doctors to teachers to church leaders - just chalked it up to him being lazy and fat, without trying to determine what was actually going on. 😢
this sounds like biotinidase deficiency....have him tested genetically for the gene. It's rare but the test was not available until a decade or two ago....get tested and find out. BIOTINIDASE DEFICIENCY. IMHO.
So sad only who feels it , will truly understand
Interstitial cystitis is a companion disorder. I have had bladder issues since age 6. Diagnosis 50 years later.
Me too, and even today now I am 71 I have doctors at the local practice that poo poo it and say it doesn't exist
I am beginning to think I have fibro but I also feel I have a high pain tolerance. I have been in pain so long I can deal with and push through quite a bit.
I've been in pain since I 16 years old, I am now 59.
I have a high tolerance for pain.
I started self medicating by drinking alcohol.
I became an alcoholic.
No one would listen to me about my pain and thought that I was faking it.
I sobered up 9 years ago. A few years after I got sober I was diagnosed with arthritis and fibromyalgia.
A lot of people still don't believe me about the pain.
We just can't give up.
As a healthcare provider myself-I am sorry if any provider or other person ever discarded your pain. That is unacceptable as pain should be taken very seriously. I am sorry you’ve experienced that
@@medmadeez9159 thank you for your support.
The cold weather is about the worst when it comes to the fibromyalgia symptoms.
When I get out in colder weather, the pain is extremely severe.
Sometimes it will even take my breathing away, like someone is putting their hands over my nose and mouth.
Whyntir, you should ask your doctor to send you to a rheumatologist so you can finally know what’s going on. I was expecting the rheumatologist to tell me I had bad arthritis but all my tests and X-rays were normal. She could clearly see I was struggling to walk. The pain is real and explained why I seem to feel pain differently than others.
Order herbs from dr Ojo herbal cure www.youtube.com/@Drojo2
I’ve found that olive leaf extract 10,000 mg really helps with the aching,
I got told by my doctor that I Fibromyalgia in my 40's. I have IBS which goes both ways. Poor sleep, brain fog, joint pan ,bloating.
is hives part of this syndrome? occuring sporadically. has anyone here had all of this (like me) plus hives ??
It's a very distressing condition. You never know when a flare is going to manifest. IBS is the worst. Sometimes, it starts with my jaw like spams. 😢
Can Diplopia (strabismus) one symptom from FM sein?
For some people it could be Mast Cell Disorders causing many of the symptoms.
Cymbalta helps alleviate a lot of my Fibromyalgia pain and works well for depression at the same time. It took me three days to adjust to it without feeling dizzy. Also, it's a med that you need to take every day. You can't take it sporadically. I've been taking it for about five years now and wish I had started about five years before that.
Yes! Many patients feel so much better taking Cymbalta!! It’s great for pain!
Have you experienced any negative side effects from it?
Can’t take it
Have positive ANA amd high CA125..tierd ALL the time and have pain and heavyness in my shoulders and legs everyday and some days my arms..have brain fog, weight gain and hair loss..dont know whats wrong.
I hope that you are being taken care of and your provider(s) are finding you answers. I know it is difficult to not know.
Ive had this for years hsd all the pain killers im on pregablin
Holy sh@t! I think I’ve had Fibromyalgia for about 15-20 years 😢😢. It’s been mentioned to me on occasions but no one doctor has ever put all my conditions together and had a think about me. If I tell you all my conditions maybe some kind person can give me some advice? I will start by saying I’m now 50yrs as of this month; I’ve been sick ever since 2000 with gallbladder issues; then young aged gallbladder removal in July 2001. I was only 27 and had a 1 year old daughter. I never recovered from that operation and it caused me to have nerve damage and chronic pain. Every condition I then collected caused more nerve damage and further areas of pain. Crazy I know.
So I have:-
1. Nerve damage now full bodied.
2. Chronic severe pain and hypersensitivity to pain.
3. Chronic fatigue
4. Severe endometriosis
5. PCOS
6. Right damaged ovary removed due to nasty cysts
7. Left kidney function is reduced and is always painful
8. Interstitial cystitis
9. Have to self catheterise to wee regularly
10. Under active thyroid
11. B12 deficient regularly. Have Pernicious Anaemia too
12. Anaemic
13. Idiopathic Papillodema (brain fluid issues related to blood pressure etc) can lead to blindness.
14. Severe migraines
15. Autoimmune hepatitis
16. Arthritis in my left leg now.
17. Severe depression and anxiety. Not surprising really.
18. And I’m also peri-menopausal 😅
All that lot leaves me generally bedridden each day. I can’t work anymore (not since June 2007). I need care from my children. I have four and they’ve all looked after me for the last 20 years or so. My husband left us in 2009. He is gay. Yep. Imagine what that did to my depression and self esteem. And no. I didn’t guess.
I think I have Fibromyalgia. What are your thoughts 🤔
I have had it before they had a name for it. 😇
Im loosing mobility in my arms, i feel like I'm going Paralyzed. It is very painful, like someone is breaking my arms.
You say stabbing in your head? Like a headache or something more like your scalp stabbing and tenderness?
some describe it as a zapping sensation
Even today 2023 many Doctors deny it's existence. and you all still say it's mostly women, well I have it and know a lot of men who have it, it's time you included us. I have suffered for years and no one helps me. You ask for other symptoms, I have all the above and Hip pain, and chostochondritis, and vertigo, and sensetivity to touch, prickly scalp, and heavy sweating, and I have Asthma but I did read somewhere that Fibro can either cause or give the symptoms of Asthma. Did you mention hand pain? -I read a lot of people saying it's caused by stress and other influences, I have been retired for ten years and have zero stress or pressures and no improvement whatsoever. Bob. UK
How did you people find out you had fibromaglia I was only giving my results by my symptoms. Can you help please.
I have almost all the symptoms, and also heart palpitation and heart sink when the condition is worse. Anyone has these symptoms as well?
I'm not really an expert in this but it could be from the stress, that's what I have at least. It might be a good idea to get it checked out.
Hi yes palpitations are one of the symptoms of Fibromyalgia. However it is best to get any chest pain looked at. Take care 🤗
Yes I do Dr. Has check my heart 3 times loving at the hospital for 3 days and find nothing g wrong with my heart also get all those symptoms plus limiting , nausea , fever ,pain on ears the electric shock are as bad as the pain, I had this sense I was 17 years old but discovered at 45 years old now I am 59 and it's bad I believe that it get worse with time may God bless us all
Magnesium bisglycinate really helped me with heart palpitations.
Do I need to have all symptoms?
Men get this too
Can you be diagnosed with fibro while having a positive ANA test? I'm being referred to a Rheumatologist because I'm ANA positive titer 1:320 along with my many pain and joint symptoms with peripheral neuropathy, hair thinning, itching with no rash and psoriasis. My appointment with a Rheumatologist is on July 11. It's my first time seeing a Rheumatologist so I don't know what to expect. Any advice would be greatly appreciated 🙏
I have seen when people have both Lupus and fibro
However Lupus shares some of the same symptoms as fibro
Just as people dont like to be viewed as crazy, men dont like to be discounted in fibromyalgia, i am a 43 year old male and have had my whole life, and yes males have this also.
La nena todavía está en API? , debe estar como en cuarto grado. Y Harold, todavía trabaja en la Farmacia Quiñones? Y el mayor sigue con el negocito de instalar aires acondicionados, el fue el que me puso mi consola. Y Alana, ya se graduó de cuarto año? Y las gemelas colorás de Barbie juegan volleyball como su Mamá? Etc etc etc
Tienen muchos, no se metan más con los 2 nuestros y con nosotros. Esperamos que todos estén bien , estudien y vivan rodeados de amor. Todos los niños son una bendición.
Can we have fibromyalgia without tender or trigger points.I have nerve pain all over body,migraine,fatigue sometimes gas problem but all MRI's and test are normal
Yes. Most doctors just recently started doing away with trigger points.
@@jennibean71 hey due please just take a min and help me figure out whether i have fibromyalgia or not.I will list my symptoms here.
I have nerve pain starting from neck spreading to hands and legs.tingling in hands and legs.I have disturbed vision due to this neck pain also i have fatigue its like it always makes me sleepy and when it hits it feels like the fatigue or sleepiness is due to my neck issue i dont know how to describe it but i feel fatigued and also Neck pain.Neck pain in the sense it is right below the head and it is severe on rightside but pain usually is on both sides.Other than this I dont have any sleep problems,cognitive problems,tenderness.I have ear tinnitus and I think it is due to this neck issue only.I had mris,visited many doctors but they say I'm perfectly fine and i dont have any anxiety or depression.Help me out dude if u are experiencing fibromyalgia
I also have restless leg syndrome but I already take the med for it.
What do you take for restless leg syndrome? I was diagnosed with fibro 5 years now and the rest leg syndrome bothers me almost daily ! Specially at night.
The tizanidine(muscle relaxer and amitriptylone. I also take gabapentin. I take an opiod for the CRPS. If I font take the meds the pain makes it impossible to function and my quality of live would be horfible.
One med that I never have taken when at home is Morphine. My oxy has helped me to function. I do hate dresses because the movement of them against my rt leg drives my CRPS crazy. I also have the intolerance to heat and have had times when I feel hot . I have tried to keep my apartment to about 70 degrees. I am lactose intolerant which I have had many years before the fibromyalgia. I was told I had growing pains as a child due to the wide spread pain even as a young child.
I have IBS and degenerative discs and firbo
I already know that
Some woman are wrongly diagnosed with fibro and have Lipedema (of course you can have both to).
Ringing decaf tea or coffee helps with irritable bladder..
Gabapentin doesn’t work for me either
I literally have every single symptom on your list at the end of the video. 😢
I've been told by a friend with fibro that it can be really difficult to get diagnosed. I am so worried I will go to the doctor for this and they won't help me. I had lots of bloodwork done last year and they sent me on my way and told me everything looked normal.
I am in excruciating pain at some point or another every day if not all day. I am only 33 years old. I have 2 bulging disks in the lower right side on my back & sciatica in both of my legs. I received that diagnosis at the age of 24.
I feel like I am falling apart and progressively the pain has worsened in what feels like a short amount of time. Its honestly scary. I am becoming genuinely terrified of the years to come. And I am so young.
Are there any natural remedies that may be able to help me? I don't like the idea of pharmaceuticals being part of my daily life.
😢 I really hope someone may read this and provide me with some insight.
I’m so sorry to hear this. Some people have gluten intolerance that can cause vague symptoms and increase inflammation. Some people do a trial to see if they notice a difference. Often food has a lot to do with exacerbation of current conditions
@@medmadeez9159 thank you for your reply!! And yes, I think there is a chance I may have developed gluten intolerance. But I also think I very well may have Fibro due to the chronic pain ALL OVER my body. Can a doctor help to determine gluten intolerance?
I have the same thing happening I’m 34.
@@tessashlaer8242 😭😭😭 I am so sorry!
@@ashleyanderson3900I was diagnosed at 21. It ruined my life. I have fibromyalgia for 6years now. I tried every pain and antidepressants on the market, I tried physiotherapy, CBT twice, Keto diet, carnivore diet, swimming, losing weight, hobbies, trauma therapy, supplements, detox. NOTHING WORKS. In fact it's getting worse. I'm bedridden now and I can't have sex because apparently I have vulvodynia(this condition is prevalent in fibromyalgia sufferers). The only thing that helps me is a very hot weather. I went on holiday in Africa( senegal) last year, all my pain disappear. So I'm planning to permanently move there to next year. So I can have a normal life. Good luck
This illness is the incarnation of the Devil. If "Go to hell" was a person, it will be fibromyalgia.
If it wasn't because of my parents, I wouldn't be there. I would have ended this suffering longtime ago. My parents are keeping me alive.
For 2 years starting in 2020 i developed very bad pain in my neck - Back - Chest (Left side only) on top of random episodes of Heart skipping or Racing along with sweating and a feeling of "im gonna die" so i thought maybe somethings wrong with my heart? Saw cardiologists nothing wrong with my heart. So people started telling me i have anxiety i saw my regular Doctor he said possible Fibromyalgia. At the same time of all this pain on my left side non stop muscle twitches through the head racing and skipping heart cause of pressure i feel in my chest with every breath im also extremely Constipated. So if Fibro can cause anxiety..daily pain and constipation then thats me 100% is there something i can do to help myself
For self help you can find online resources like cbt/dbt which can help you manage your mh so that doesn't make the pain worse, but also so the pain doesn't have a negative impact on your mh. Also mindfulness, regular exercise (but don't push yourself as it can make the pain worse), taking breaks/using mobility aids if needed, maybe find out if any foods make it worse, sleep hygiene, + cbd are all things that can help + help you manage it, but they may not help the pain too much.
This is exactly my symptoms for two years! Doctors cannot seem to figure out what is going on with me.
Thanks for the advice
@@patrickhandlovsky7665 100% I feel your pain literally all we can do is go on its not right but it is what it is 💪💪💪
@@joec9197 yep that's my approach as well - otherwise I will honestly go crazy! I've learned to cope with the chronic pain and heart palpitations and trying to get to a semblance of a normal life again.
I was taken off Gabapentin, because of a new study saying it wasn't as safe as first thought. I got nothing to replace it. I'm in so much pain again. I sometimes wonder what's the point😢😢
? Just got on it
Try Lyrica , may work for you
@@wudi1990same thing basically
I’ve talked to my doctor about my symptoms, why does she act like she doesn’t know?!
Have all on the list, diagnosed 2003. Only thing that helps me is Marijuana.
Which is still illegal here in New Zealand.
Do not want to have to take opiods, just because legal. Weed improves my quality of life
I thought I had fibromyalgia but after finally being tested by my primary care physician and subsequently referred to my Rheumatologist, I discovered after several blood tests,that I have Lupus.
May I ask what are your symptoms of Lupus and how did you were diagnosed? I am in the same boat at first thinking I had Fibro. Recently found out I have a positive ANA test titer 1:320 homogeneous pattern. I have symptoms of arthritis, peripheral neuropathy, itching with no rash, anxiety, slight depression, brain fog, thinning hair and psoriasis just to name a few. I have an aunt and cousin on my mom's side that have Lupus. My appointment with a Rheumatologist is July 11. I'm feeling nervous as I haven't told anyone because I don't know what's wrong with me yet but I know something isn't right 😔
How do you know if it's fibromyalgia or arthritis? I have chronic back pain, and all my joints are stiff and sore. I have type 1 diabetes, have trouble sleeping, and have problems concentrating.
This is an excellent question. It is a little long to describe in a comment-but I might do a video on it
One major thing is that fibro is often associated with so many on symptoms unrelated to just the joint aching.
I wish I could get help & find out what's wrong with me. It start last February when I ended up in hospital coz I went so dizzy no reason. After this I now have tinnitus & my ear hurts all time. My cheek is swollen & my left side of face has pins & needles. Eye goes blurry & feels like something in it. My neck, spine, hands & hips & legs hurt. Also have two dead toes & fingers hurt. Can anyone help please
Have you had imaging of your head?
and of your spine
Yes had MRI they said found nothing
Not if spine just head
Yes…I use Gabbapentin
Does this seem to help you?
I have most of these, but I've been told specifically that I do not have fibromyalgia. I guess I'm just a hypochondriac.
Given the fact that fibromyalgia is not a disease in the sense of being able to detect it in a petri dish or MRI or other such test, as you can with pneumonia for example, but rather is a SYNDROME, which means a set of symptoms, a doctor literally cannot tell you that you don't have it. You know your symptoms, and if you have most or all of the common symptoms of the syndrome CALLED fibromyalgia, then yes, you have it. If your doctor won't treat your symptoms and help you find the root cause of them, find another doctor. Or, do the research yourself. Usually, fibromyalgia is set in because of some trauma or major stressor; finding healing for that trauma will help. My husband also found that eliminating wheat from his diet helped tremendously, but the root causes in his digestive system still have not healed because he continues to live in constant stress and "survival mode".
its me
we no longer detox our bodies and an overload of toxins will create many disadvantages. i remmeber in my younger days mom used to detox spring and summer
I have a question, can anyone have fibro without pain or tender points? sometimes I feel achy but that’s it, I have the majority of the symptoms though.
Yes
Men do get fibromyalgia. My 38 year year old son has it. Neglecting men in this area is a bad thing. Please do not dismiss the fact that men get fibromyalgia as often as women, but are often undiagnosed by health “professionals”. Thank-you.
“Fibromyalgia (FM) is a serious condition that affects approximately four million people in the United States, and is underdiagnosed in men. The objective of this study was to understand this phenomenon by examining multiple impacts of fibromyalgia on men in regard to interactions in society and the U.S. health system. A qualitative survey was administered to 1,163 respondents both online and in-person in Tennessee, Virginia, Maryland, and Washington, DC. Thematic analyses of the survey responses suggest that men with FM have negative experiences with (1) physical and mental health, (2) quality of life, (3) relationships, and (4) careers as a result of FM. Interactions with health-care providers were deterred by (1) potential for misdiagnosis or dismissal of symptoms, (2) stigma of having a condition primarily affecting women, (3) differences in treatment of men and women with FM, and (4) need for health education resources. These findings dictate a need to improve communication between health-care providers and male FM patients.”
From:
www.ncbi.nlm.nih.gov/pmc/articles/PMC6131475/#:~:text=Of%20the%201%2C163%20survey%20respondents,%25%2C%20n%20%3D%20604).
Joints fell like they are being hammered
I totally understand what you mean
Is it a condition that affects only women or do men report have this too?
I have it mate and bad. Male
It's most common in women, but men can have it as well. Best wishes too you both
Pregabalin & Gabapentin are both anti epilepsy drugs but they have found that these drugs help with muscle pain. All the best. Take care 🤗
I tried them and it started to help me 😭 when I have a delecut stomach it made me worse so I am on beutec patches Which help me a lot but when it is my hole body in pain 😭 and my restless legs it is unbearable and the doctor has given me a small bottle of morphine it stops me from calling for a ambulance and getting the same morphine in hospital taking up a bed when I can stay at home and it helps everyone out and it settles my fibromyalgia and resting in my own bed I think it should be available to people with this condition it has helped me live a bit more it works
Can also cause forgetfulness.
@Carole Wynn Fibro fog/Brain fog is a symptom of Fibromyalgia
@@susannixon6573 Do you mind me asking which country you're from?
@@fibrowarriors I know, have had Fibro for years. 🙂
I have it and I'm guy
I'm a guy and I have been diagnosed with fibromyalgia.
My doctor thinks there are a lot more men that have it, but don't get it diagnosed.
I am 76 and a male and I have had maybe 50 years of my life but never told my doctors or anyone else. Thanks
@@keepyourdayjob5658 it is hard to explain your pain to someone else.
The people who listen, don't care and the people that care, don't listen.
Has anyone else loss of taste and smell with fibro?
I don’t typically see this. If any sudden/recent taste and or smell changes -I would get a covid test just to rule out
I haven't lost taste or smell, but I can't eat certain foods, because of the smell.
Cucumbers and onions are the worst. I get instant headaches from them also.
I lost My Sense of Taste 5 years ago, Pre COVID. And I have done the COVID Test several times and always Negative
So, it’s like having a Cold. Lost my Ability to Enjoy Food 😢
L
All you people have an allergic reaction to the chemicals in your food