How to avoid Bag leaks with an Ileostomy or Colostomy
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- čas přidán 17. 08. 2020
- In this video I talk about how you can try and prevent bag leaks from happening. There is no be-all fix for an individual but hopefully, this video will give some helpful insights.
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My mom has had a colostomy bag for 29 years .. she is coming up to her 94th birthday.thank you for the videos now.. that would have been so helpful❤
i have an ileostomy and am 3 months post surgery. I have done 12 changes using 2 piece appliance and not one leak so far.. the key to preventing leaks for me is to take time with prepping the skin. If you have the time you dont have to rush the new bag on if you can control output during the change. After removing the bag and using pads to remove old adhesive or paste let the skin breath for a few minutes. If you can take a shower without an appliance and just be careful when scrubbing with soap and wash cloth.. also must use plain soap with no additives that may impact preparing with skin barrier spray. I have showered with just changed new wafer and pouch and still no leaks. just be sure to soak up some of the water in the wafer with paper towel for a few minutes. do not use hair dryer for anything. even on low it can react on adhesives. I switch between eaking rings and convatec paste from time to time. the paste is not adhesive but a good caulking to keep output leaking out. Everyone is different but my nurse said to concentrate on cleaning skin and prepping and all will be well.. she is right so far.******** update almost 1 year in, no leaks.. not one.. it is in the prep and also there are belts to hook up to the wafer and adjustable to hold the wafer against your body with one piece or 2 piece. for younger active ostomates use a belt, you wont leak. i use convex wafer and often i put it on without paste or a ring and no leaks.. good luck
Thank you for all your tips I am 33 and having hysterectomy and endometriosis surgery soon and may end up with one. I want to go swimming and the gyno said I won’t be able to swim with one but I later found that this is not true at all. One of the biggest reasons why I want a hysterectomy is to stop the bleeding (it doesn’t stop now due to adenomyosis) and go swimming. I am grateful that I can be prepared, armed with information and feel empowered.
Thanks bud, had one for 2 weeks and only change when my stoma is not active, but sometimes it's not a choice when leaking.
Mine is small and I wake 2 to 3 Tim's each night by bio waste alone during the date it's food waste.
Not most nights it's food based and I stay up because I have Crohn's disease which for me is constant diarrhea for life.
Makes it tough when a bag change leaks two or 4 times, once a cat punctured my bag and I was angry but also caused stress on my stoma
I'm always mad during leaks because I have to put down anything I'm doing especially playing a game where I have the upper hand on a boss then die when I feel a unwelcoming warm trickle down my side.
I struggle to the point I have ordered 3 boxes to make sure I'm good when a leak causes problems.
I change my bag every night before bed, I've had a few leaks in the night, mainly on a Saturday when I've had cheat day, I've drank too much and it fills up quicker, normally I try to have my main meal at lunch time and like a wrap or something for T, I don't eat after about 6 PM, it's taken some adapting to but it seems to work. Great vid mate, very informative.👍
Thanks for the comment and if that works for you that’s cool. I usually leave mine on for a few days.
@@JosephGreenly can i ask which bags you use? I use the salts drainable black bags and i have to change everyday, once ive worked out and showered the seal isn't great, if i left it, chances are it'd leak.
@@craigydcraig I have tried the black bags but they don't fit what I need. I have the Salts confidence comfort drainable bags.
Yes! I thought of this before I just forgot to start using a bigger bag when I go to bed.
Great information, thank you.. I have had a colostomy for about 10 years now, I had colo-rectal cancer. I have had some challenges., but the information you have shared, are fabulous, thank you.
Cleaning and drying the skin is paramount
This was absolutely excellent! Thank you.
Tell you, it is real embarrassing when on leaks in a store, I was in Dollar General the other day and it started leaking,,, I left the cart and went to my car, glad no one saw me but it is still embarrsdding
Thankyou for all the hard work you do your info is so important to all of us with a stoma am new with a stoma and am glad I’ve found your channel
Thank you for your comments it means a lot that people are still finding these videos helpful.
I'm new to ostomy. I just got one 3weeks ago. Thanks for the information.
My husband has had his for 5 months now, no bag leak thus far. Thank you for sharing❤❤❤❤
Very informative and helpful. Thanks for making things simple and normal. It’s not easy at the beginning. Getting past the embarrassment with solutions is so helpful. Thanks.
Thank you! I am glad it was helpeful!
Dfdd@@JosephGreenly
Good stuff. Good personality and not pandering for attention! Thanks
Thank you
Thank you, Joeseph.
Im really struggling 4 days post op!! I needed to hear that at the beginning so much
TRUDY....Read my post above
Good luck in your recovery. Take it slow and steady.
Just subscribed, Joseph this is a great vlog, it good to listen to your ideas and theories. Thankyou so much!
Thanks for subbing, and I'm glad you enjoyed the video.
Confirmation on quite a few issues thanks
Thank you so much for sharing! I am scheduled for my ileostomy surgery in a week and I really appreciate you and other youtubers giving out valuable information, plus you are a pleasure to watch and listen to. Thank you!
Just wondering how you got on with your surgery
Thank you for your comment and good luck in your surgery! I hope it’s all gone well and your recovering quickly.
@@cathalodiubhain5739 my ileostomy is doing well and I'm now three weeks into postop, feeling pretty good! I feel like I'm adjusting quickly 😃 thank you for asking!
@@JosephGreenly you're welcome, and thank you! I'm now three weeks into postop and adjusting very well!
@@stephE80 Thanks great to hear.
Thank you. This is helpful information. I will say that I go one step further, on one of your points. I always keep a new, cut bag in my hip pocket, in a zip lock bag with a couple of paper towels. I am retired, but the rest room at work, when I worked, being a good distance from my office, is what got me into that habit. I don't worry about having powder, or barrier spray with me. If the bag goes. I clean up and just stick the fresh bag on, with no additives, which I can go 2, or 3 days without. I wish the powder and some spray wasn't necessary, because the adhesive barrier sticks better without it, but, even if they don't leak, the adhesive is tough on the bare skin, after a few days.
I think this is good advice to always have spare bags on you wherever you go.
Thanks Joe had my stoma just over 2 years picked up a couple tips the bag idea plus I always put the protective seal on the baseplate before I fit it will try putting it on my stoma first then fit the bag on
Thank you for the comment and I am glad this video was helpful.
Cleaning and drying the skin is paramount. Use adhesive remover first. Dont use wet wipes, only tapwater on a paper hand towel (i use Nikki Defend). Warm the bag against your body for a few minutes, and press. Change 'day' bag two or 3 times a day, ESPECIALLY at bed time. I also change before i go out for the day, or to the pub. Firmly attach a night drain bag by tube. NHS Stoma Nurses will advise best day bag type, but you will settle on your own choice. Leaks will still occur, but infrequently. Use a mattress protector. Keep a spare equipment bag in your car, and spare undies, trousers. I've had my urostomy for 3 years, had about 10 leaks, mostly in the first year. Now it hardly ever crosses my mind. I dont try to get my day bag to 'stretch' all day, i expect to use 2 per day at least, so i change after breakfast and before bed, its a good routine. But check the bag adhesive every time you empty it or every 2 hours.
Thank you for this information my friend 🙏💯👍
Very good info❤
Nice one mate
Thanks. Was very helpful
Thank you Joseph for your information. I hope it will help others. I have had an early ostomy for 27 years. I often do set my clock…I have to because I don’t want to leak in the middle of the night, that is the worst thing to have to get up and change your appliance. I would like to ask other people what size their stoma is…mine is what they call a baby one, it is only the size of a nickel. Which I’m glad because my pouch is not that big…yes I like to call it a pouch, a bag doesn’t sound quite as good. I correct people when they say oh you have a bag, no it is a pouch especially for women. Also I would like to know Which clip other ostomates use. I do not care for the Velcro, it seems to stay messy. I like the clip straight not curved. Every time I go to the hospital I teach all of the nurses even ostomy ones a lot of tips and tricks which they love.
Also if you or anyone else are worried about what the seatbelt does to you during a horrible car accident it does protect you. Six months ago, I hydroplaned spun around hit a culvert backwards, Threw me through the air 200 feet enrolled 8 times. I remember every minute. My pouch Was halfway full and after all that I did not even leak Which was amazing to everyone. I got banged up pretty (Broken tailbone, pelvis, left hip, right ankle, neck, three ribs) bad, but it did not bother stoma nor a scratch on my face which was amazing. If anyone would like to ask me any questions, you can find me on Facebook under Elizabeth Green Frigo with this profile picture. I have some intimacy tips, so Please don’t be embarrassed.
Thank you for the comment and I like the idea of calling it a pouch. I'm to hear you had an accident but silver lining that your pouch didn't leak onto you.
@@JosephGreenly
Thank you…I’m glad you like the idea of calling it a pouch.
Hello Joseph. I just found your channel and, first of all, I want to congratulate you for your hard work. It really helps.
Secondly, I am about to have my ileostomy surgery and I would like to ask you what is your experience regarding the aesthetic part of the life with an ileostomy. I am a young guy and my main worry is the reaction of women to it.
Thank you again.
Hi and thank you for the comment. When it comes to the opposite sex the same rules apply, you want to be yourself and be confident but not cocky or arrogant. If you have a bag that's a part of you and people are going to have to accept it, if they don't then don't waste your time with them. I found that my bag could be an ice breaker or conversation topic, I was 17 when I got it and I think it made me a little more interesting. I've had three serious relationships when I've had my bag and other not so serious ones. At the end of the day, I don't think it was my bag that made people like or dislike me, it was just who I was and if your Ok with who you are, you'll be alright.
@@JosephGreenly Thank you for your reply! It means a lot to me!
Prosím o tady pro stomiky,když je postihne stenóza..Děkuji
Thank u 👌👌👌
What's that thing called that you placed around your stoma. I only have the thing that you mold to fit around it stoma. It's called a collar but what's it technical name? And it didn't look like you had to pull of the plastic part to reveal the sticky part. What bag do you have?
This is the collar I use and the bag I use. Bags I use - Confidence Comfort Std Opq Drain Oval Wafer S/h
Collars - Dermacol Stoma Collar 38mm
My question is HOW to make the barrier to stop coming into the stoma area. I've had mine 4 months now and it's happening again.
There are different products that could help. I have a collar that goes onto my skin before the bag. You can see it in my how to change an ileostomy video. There is also other types of barrier types of products you could maybe get samples of to try.
My bestfriend is looking at a having to have a colostomy bag. He's in his 30s and all this is very intimidating. Can you tell me of some reasources that might help me boost his confidence?
Instagram is great community to help. Crohns and colitis Uk website has a lot of very useful information.
Hello joseph!!
I have my illeostomy bag for 2 months but i am facing bag leaks very frequently...i think my stoma is approx 1 cm above skin and not more than that due to which during sitting from standing or during any physical activity it leaks out...so is it surgicaly possible to to fix the stoma 3-4 inch above skin so that the fluid dont seep between stoma and stoma adhesive ring...
Ur reply will be appreciated.
Hi, I’m sorry to hear you are having issues.
I believe a convex bag might help as that could dips down towards the stoma.
I believe all companies make these bags but I know for certain that coloplast and Salts do them.
I hope they help until you can have the stoma adjusted.
I would advise against surgery. How are you coping today, 2023?
Try a belt
Need some help with dressing a male - know someone with a ileostomy who would like to wear jeans- any suggestions. They asked me for suggestions- I’m a RN and a sewist so of course they thought I would have a answer. I’ve already asked- where is the stoma,what are his issues with clothing, why he can’t wear jeans at this time.
My dad wears pleated front jeans and it works well.
I’m not sure why someone couldn’t wear jeans with a bag. It shouldn’t effect the bag at all really.
whats the best wet wipes to use plese
Whatever doesnt affect your skin, I would try them on you skin that isnt under your bag before using any wipes.
Hi i live in south africa. 2020 my trouble started with getting my ileostomy bags. Tried everything they tell me convatec has closed down. My favourite bags. I have a retract stoma so now south african big pharmaceutical companies tell me sorry you have to take a new bag and pay double for it. I am 65 this problem i can't solve is there anybody out there overseas that can help.
Well it’s been nearly a year now since my surgery omg what a journey it’s gone so quickly
I hope the journey has been an easy one and I wish you luck as the years continue
@@JosephGreenly thankyou
انا مريضة كولوستومى واريد ان افهم الفديو ارجو الترجمة للغة العربية
Honestly I think I'm missing something. I've had the bag for years now, and I simply have never EVER had a bag leak. My sleep is absolutely garbage though because I never get the chance to let the bag get full enough to leak. I'm truly confused. How to you sleep through the sensation of the out put coming our and/or the tug of a full bag? How do I, or anyone for that matter, sleep through that?!?!
Consider yourself lucky
Use a night bag connected by a long tube to your day bag. Change day bag as needed, two or 3 times a day. Rinse through the tube e ery morning, change bag monthly at least
I never thought of using the boxes the bags comes in to fill it up with spares to keep In car or at parents house good idea and you get to reuse the boxes good tip thankyou
Im glad that this little tip helped
Rady
This is great thank you so much.
I am on this treatment recently and I wanna know how much long time take's to recover from this iloestomy problem ?
& can i have sexual intercourse during this problem ?
Thank you for the comment. It took me five months to recover but people are different and it depends on a lot of stuff. Take it slow is my advice.
Once you are recovered from surgery there should be nothing to stop you having sex.
Your bag is parmanent???plzz tell me
Yeah its permanent
Anyone who is a quadriplegic have a ileostomy ??
am inspired to see how much you are coping and managing your stoma problems...but dont you think its a big business going on in the market?... Moreover you have no idea how patients with stoma in the third world countries are facing...moreover ...no product regarding stoma is perfect...or produced imperfect so that we change more and buy more...
Thank you for the comment. For the big business, I think that is partially true but there is a lot of research done every day to try and find why this happens. Crohn's and Colitis Uk has a page full of previous and active research. With regards to the third world, I have spoken to a lot of people around the world and it is shame the support they don't get. I've even spoken to people in more modern countries who wash their bags and re-use them. This video was to help a broader audience and I do think for most people it will help.
Finally, yep I agree, products aren't perfect but neither are people, we are so unique. Therefore we need to ask these questions ourselves to find out what works for us.
Joseph Greenly is your stoma area muscles sagging
I dont think so I think thats just my belly.
U cenasr