Video není dostupné.
Omlouváme se.
Ostomy Care: Preventing Leaks
Vložit
- čas přidán 17. 08. 2024
- Preventing ostomy leaks is an important part of being confident with an ostomy, not only at home, but when out in public. In this video, I give some of the most common reasons for ostomy related leaks, and some suggestions on how to solve those problems.
Full article with more tips:
www.veganostom...
Do you have any tips to share?
Help support this channel:
www.veganostom...
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Join the VO Community Forums!
www.veganostom...
Want to help support this channel?
www.veganostom...
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Connect with me!
Blog: www.veganostom...
Twitter: / veganostomy
Song credit:
Soul Groove by Audionautix is licensed under a Creative Commons Attribution license (creativecommon...)
Artist: audionautix.com
#ostomy #ostomyleaks #ostomytips
I take care of someone with a temporary colostomy and your videos are so helpful. Thank you for making them.
You're welcome 😊
You are very brave to have to live this way and deal with these dreadful issues. You are to be admired.
Terrific advice! I recieved very little training, therefore had lots of leaks. I've been an ostomate for just about 5 years now (tomorrow Nov 20th is my 5yr anniversary). Just this year I have seen 2 different ostomy nurses who had tons of great advice. I am using different supplies, and applying them differently now, so I am having very little problems with leakage. Hallaujah!
Sandy J Renfroe thanks, actually I had plenty of Training, at U OF ChicGo Hospitals( and I am Pharmacist: interestingly my first Drugstore hD quite a few OSTOMY/Colostomy: Patients with Meds, & supplies as major Hospiatal OSTOMY PHARMacy Supplier extremely close & they had out reach,,, Deja VU, Imguess..
how to deal with leakage? I can't sleep well
Hi Bren, do you have leaks during the day too or only at night? Does your bag fill with output or gas overnight?
I went through a stage where my bag was leaking once/twice a day! I was so confused as had never had any problems before... I think I've figured out why...I lost weight after stopping steroids and my tummy had changed shape and so when I was sitting on the side of my bath to apply to bag, my stoma looked one shape (& I'd cut the wafer accordingly) but then when I stood up my tummy would stretch flat and the bag must have been pulling away from my skin! Now I always stand to apply the bag and no more leaks 😊😊😊😊
+kateellenberry Yes! They had me sit and apply my wafer at the hospital, but it really should be applied when standing; not only can it help get a better fit, but it'll also prevent skin tearing!
Vegan Ostomy Everything the hospital told me was wrong! They said to sit also and a Hollister representative showed me how to measure for the hole. He had me cutting so as not to touch the open wound at all. I had a wafer that was 2 3/4 " and the hole went just beyond that and he couldn't find a bigger wafer. Luckily I was hooked up with home health care by Catholic Health Services of Long Island. They knew what they were doing and made the hospital look like clowns.
do u have a inney ostomy u smooth skin all around are u using a belt chast bag using extened outer sells . to me put a skin pastae round like tooth pastas all around push down after aplying to skin to sell . night bag useing go to home depont look for tool zone theres a cord 4inch-18 inch long take this start on tub to bag tape around keeps bag from twisting. i now tomost people out there this sounds nut doing it is re usuble there wire or twist tie in side it 5-10 color plus sizes, long but 1 -25 contaner. most times in back on left side ild all of my live been around fix it your self re pair. your thiys tubing get bed tween stops it flow. back to outer round half on skin half on bag plo longs bag live average one week. 1-s inch pink tape may save bag day or two . eney one from aurora ill bob collins
@@VeganOstomy I am in a powerchair and need a Colostomy. I will not be able to stand and apply my bags. Do you have any tips for those who have to sit and apply?
@@flowerpetals1396 I've never actually sat down to apply my wafer, so I wouldn't have any first-hand tips. However, there are a few members of my forum who use a wheelchair and it may be worth either asking or checking to see if they've already shared some tips. My forum can be found at www.veganostomy.ca/community/
so happy this channel was recommended to me. I don't have an ostomy but I take care of someone who had one placed 2-13-19 and her ostomy nurse spoke highly of your channel so I've been watching and trying to learn everything I can. you're one creator that I can watch that doesn't bore me lol you're enjoyable and informative. just figured id let you know how helpful you truly are!!!!!
I'm so glad you found me! Thanks for your wonderful comment 😀😀
I am not sure when I watch this before because I gave it a thumbs up but I'm having problems getting so I'm going back to get some more tips😂😂😂 I have had an ostomy for approximately 15 years and got very little backup like non-existent after I healed and it's been trial and error and a year or more ago I found your channel and honestly it's been a godsend❤❤❤❤ thank you for your honesty in helping other people I can't imagine that would be easy😮
Hi Eric, I did have a problem with ballooning, at night particularly, but we have excellent Stoma Nurses in Tasmania, Australia and they put me onto a product called Windless Tablets. They are a light blue in colour & you just put one of these into your pouch especially at night with a Eakin Perform Sachet and I usually have a "unbroken" sleep. They also help with odour. I hope this helps others with an Ileostomy.
Hi Lee, do those tablets help with smell or do they actually reduce gas in the pouch? I'd be very interested to know whether it reduces gas/ballooning.
I know when I was in the nursing home they would change it. One day they got so aggravated that they told me I was making it happen. 4 to 5 bags a day. I told them they were bad bags and why would I want to put myself through ripping off the bag and having that burning going on with all that pain. I was in tears. Finally I called my friend from the hospital to talk to them and tell them where to get the better bags.Well guess what, no more leaks. Then this nurse who specialized in applying the bags came in and showed us how to prevent all that, and it worked. I loved the two ladies who gave me extra care and did their best to stop the leaking. Occasionally it would leak either from the way I was lying in bed or like one of these other comments because when the belly shifts it's not going to be secure. Thank you all for your comments. I'm a bit worried, next Wed. I go in to have the reversal and have the giant hernia that grew while postponing my surgery too long. So I am not looking forward to all the pain I will have. Even when it was first done, I woke up in such pain, that I told them just let me die. So I can't imagine this being worse and possibly a longer period of time. Certainly it will be done and no other repairs. Thanks for all the info and good luck to all. God Bless!
I guess that nurse was a so called osteomyelitis / Illiostomy bag expert lol. Very unprofessional telling you that you were making that happen . It is hard enough to have one of these . Unfortunately you can’t control what comes out how often and the consistently because of this I feel bad they treated you this way..
How did the reversal go ?
I use to leak daily, and I switched to convex, still had leaks then I decided well I'll try a thicker barrier strip and magic! The only time I have problems now is when my skin is unhealthy under my wafer and I usually can feel a leak before it happens. Also now that I'm healed it changes a lot of that! I have a perfect little stoma and it sticks out slightly! Sometimes playing with products helps a ton!
Nice! I've found that the thick barrier rings work better than the thin ones too.
+Vegan Ostomy it was a life changer!
Yeah, I prefer the thick ones too 😉
So happy I stumbled on your site !!! I thought I was the only Vegan going against Dr's orders by eating Veggies & fruits! While I was a good cook prior to my 24 operations, it wasn't until I totally committed my entire lifestyle to it, picking up such a new way of thinking that the natural way of cooking healthy seemed to just flow and influence everything with heightened compassion and mindfulness
Glad you found me :) It's a shame that doctors are still telling patients not to eat healthy fruits and vegetables, or at least, not telling them that it *can* be safe to do with some guidance. Be well!
All good points made in this video. I'd add to prevent leaks good skin prep (including shaving for hairy guys), being careful limited creases when applying the wafer barrier, taking a moment press down on wafer around the stoma once applied to ensure a good seal but before bag is applied then using a heating pad or blow dryers to warm the area around the barrier seal. Because my stoma is almost flush with my skin a ring barrier is also a necessity. Think also important advice have all the supplies needed to change a bag with you at all times.
Great points! I do have way more tips in my written review, but I had to made this video a more condensed version for the masses. Have you used convex wafers instead of barrier rings? They may offer leak protection for your almost flush stoma with fewer steps to worry about.
@@VeganOstomy I was blessed good training while in the hospital and with visiting RN's who came for a couple of weeks after my surgery. The visiting RN on his first visit once discharged ordered all my equipment for me.
I've seen the convex wafers but my stoma is about flush with skin level not recessed. Also in a location that the surrounding area is rather flat. Seems like the barrier ring is helping, but was considering trying a liquid stoma sealer instead.
Have to say I've appreciated all the advice on the Vegan Ostomy channel! For someone who is new to having a colostomy has been a very good resource to learn from.
Okay so I'm literally only like 16 and my actual bag (not the wafer) came off while sleeping. I've changed my bags by themselves for like almost 4weeks now and everything was done right . I have the 2 piece Hollister bag and I even smoothed the wafer and the bag together until it clicked. And I can't get over the fact that it went all over the place and I'm extremely upset ,and on Tuesday I had to change my bag at school because my stoma was burning and itchy and the only thing I tried different that day was ostomy deodorant. My week hasn't been the greatest and I lost so much confidence ....
Hey Maddie, did the other video answer your question about this problem? The Hollister 2pc should not detach unless you want it to, so it's not normal for it to come off at night. If this is still happening can you tell me if you're using some kind of support belt like the ones that clip onto your appliance?
Get a Stealth Belt slip-on ostomy wrap for sleeping at night. You might be accidentally pulling it off by changing position when you sleep. There is also another brand called Pouch Wear that is way cheaper. Hope this helps!
Be strong.....I'm praying for you
Yikes, I've been there several times and I'm not even completely capable of changing my flanges independently... but a new type of flange I've been using can last for up to 2 weeks.
I'm so glad I found your channel, as a relatively new ostomy bag wearer, I have had the same problems you address and your advice is very helpful and appreciated, thanks again! Now going on to your next video.
Thanks, Scott! My website has even more content, along with a community forum to ask questions and get even more tips :) www.veganostomy.ca
Putting the wafer on correctly is the first step in preventing leaks. One "tool" I find very useful when putting on the wafer is a hair dryer. Besides drying the skin I use it to warm up the barrier ring and adhesive on the wafer so it conforms to my shape and the heat makes it very sticky. Another thing I find helpful is when I'm ready to apply the wafer I wrap a folded piece of toilet paper around the stoma (held in place with a little tape) to act as a guide for centering the wafer around the stoma without needing to bend way over to see what l'm doing. This stops the skin from being folded or stretched and preventing a good fit.
+Hubs88 Great tips! I've used the hair dryer trick before, but I usually just rub the wafer between my palms and heat it using friction. Whatever works! =)
I always stick my wafer and barrier in my bra... My Ostomy nurse showed me that 😂
Hubs88
Erin Laura Wow, now I have to get a bra.... :P
I put my eakins under my hot boob. That softens it up real good.
Your amazing we are new ileostomy with flush or inverted stoma that has been impossible to stop leaks! We are desperate and your videos have been a God send. Thank you from the bottom my heart!
You're welcome, Carole. I hope that things improve quickly. Be well.
Thank you for your very informative video. I am about 2 months out from surgery and your videos have helped provide me with many useful tips that have eased my adjustment to a new lifestyle and better health!
You are most welcome! Thanks for watching!
I'm 5 months in now. At 2 months I was still learning and hating it. But it does get better. And it happens quickly after the 2 month period. I tried to change my appliance like every other day and my skin would try to get a little tender spot or 2. But now I only change it on day 4 or 5. My stoma looks great but it did change a little in size and shape. It becomes easier all the time. If you ever use the 2 piece system where you snap the bag to the wafer, I suggest you definitely snap it on before put wafer on skin. I've experienced leaks only from the 2 piece system. I would first put wafer on then snap bag on. One tiny spot not on right, and you will have a mess. And once, only once, I work up to ballooning and still half asleep I decided to burp my bag, and thought I had sealed it again but later sat up to get out of bed and the bottom unfolded and everything started coming out, in my bed. I now get up if I have to do ANYTHING with my bag, and all is good. Another tip I can give you is always face the bag toward the outer hip, not inward or straight down. That way, if you are female, you won't have leaks getting into the crotch area. That could cause a really bad uti. Keep up the positive attitude. You will start really seeing the pro's of a bag. I hope you are a candidate for a reversal one day. I'm getting mine reversed in June, about 9 months into it. I just feel one day insurance won't always be there and supplies are very expensive, and I can't afford to buy them. Plus most pharmacies around me don't carry them. A time will come when we can't trust big pharma or uncle Sam to have our backs.
I use Welland Brand Wipes skin protector, before applying the flange and sealing ring. They have been the best out of three brands I have used. Only one thing with this brand is you also have to use their remover as well ,because another brand remover may not get the flange off without uncomfortable stretching the skin. I haven't had a single blow out of the sealing ring since I have been using these...Not sure what is meant by pancaking, but I have situations where the bag sticks flat down on the stoma like it had a vacuum underneath it. I clear it by pinching the bag just above the flange, so I get hold of the inner lining. Then I crack open the top of the seal to let air in and pull the bag up, thus improving flow ...I apply the sealing ring to the flange first , not directly to the skin. When I stretch the sealing ring to connect it to the flange hole I put a slight cone shape to it. When it touches the flange (wafer) only the edge of the cone touches first, allowing a little bit of shifting before it sticks right down.
Thanks for the info about the gel cap. I have my ileostomy 8 yrs never knew about them. Thanks for dry morning 😊
Excellent advice and great clear presentation - many thanks - I will watch your other videos
Thanks for watching, Steve!
Choose your appliance wisely. Leaks are almost always caused by user error. I personally haven’t had a leak in about 5 years. Good Luck
Ahhh... ballooning!! I get this quite often. I call it having a Hindenburg moment. I’m always surprised if I wake up and Kermit’s bag is almost bursting, that I am not floating somewhere just below the ceiling.
I used to get a lot of problems with leaks but moving over to convex bags sorted the problem for me and it rarely happens now. As for rings, they are a complete disaster! They just caused more leaks, not less! I never could get on with them.
Kool
I swear a lot at work this makes my water come loose what can I do?????????
I sweat sorry
@@stevephipps5947 Lol! This made me laugh! The stoma’s revenge for bad language? Haha! Makes a change from putting a pound (or dollar) in the swear box, doesn’t it. To be serious though, no idea about the sweating. If you make sure the skin is really dry when you first stick on the bag, it should stay put even if it gets wet, I’d have thought. Hope you’ve found an answer to this problem.
I definitely like your videos the best of all the ones I've seen. I just wish that I'd been watching them a month ago when I had my emergency surgery. Instead I avoided anything having to do with my stoma and didn't protest with the hospital ostomy nurses would change mine so fast that I had no idea how they were doing it. And at that point didn't care as I was in so much shock as well as having an 8 staple vertical incision to protect. For new patients demand to be taught how to be self sufficient NOT reliant.
Im sorry you've had a bad start, but I hope that things get easier for you 👍 Thanks for watching 😃
My ostomy is only 3 weeks old. I'm having a terrible time with leaking. My skin is a mess. Your suggestion about applying standing up might be my problem. Thanks for the tips.
+Sherrie Pomprowicz Good luck Sherrie! Remember that in the first little while, your stoma will shrink as the swelling goes down - measure your stoma every time, and don't go too long between changes until it's settled in size.
I had one big leak I had to change my clothes. I'm new to having an iliostomy bag
I'm sorry to hear that, Stephanie! Did you find out why that happened? I always try to look for the cause of problems so I can avoid them or at least prepare for them better.
@@VeganOstomy it because of pancaking issues with thick stool. Someone told me to thin my output at night by drinking plenty of fluids
@@stephaniecampbell202 Pancaking can certainly cause leaks. If it helps to loosen your stool (at night or any time), go ahead and do that. You might actually find that loose output makes it easier to empty your bag.
What I did used water proof tape from Walmart Nexcare just cover all around your bag hopefully this will help someone.👍🏼
Great tip!
Mine usually leaks on the nights I try and "make it" one more day without changing.
I hate that... those nights where you think, "I really don't want to change it now because it's going to be high output and impossible to do, and I want to save money on supplies, and I'm just lazy," but then you can barely sleep because you keep thinking to yourself, "I just KNOW that I'm going to wake up to a mess at 3:00 AM."
vorpal22 I put a beach towel on my bed just in case. I got a waterproof mattress cover and a regular mattress to cover that for comfort. I also have a set of brown sheets, but I won't get into that :P
@@vorpal22 i bee live it cono place with the y sells hollister also has them 4 two go around sorry about my spelling u batter ate computers than me. there my be other baly rape i be live i dont use. i was a night mere to wound cares. at hospital.
have u read mt new nasage use a big bath towel on you side use adut spread sheet under u4-4 best, i all so put my bag in a small wast paper basket. for miss happes. also woned care has said on the left or right coners. i am left side weak musuls on right side. i go mosty with hollister some componys stike to skin is low if u sweat like me pig sweat these extry extachoins save the day allso the belt. most belts are a bit two narrow they rape. some one has a 4 inch wide nut as likey to rape donet now owl.
My stoma was placed about an inch from my belly button & I have two creases on each side of stoma because the way my belly is formed.Very akward spot.I was having leaks all the time causing skin to be very irritated as well.I found out for my situation I had to use a deep convex one piece pouch.I cut the hole to proper size and use stoma paste with the alcohol & apply it to the barrier.The paste burns for a bit but it probably also helps with healing irritation.The wax rings do not work for my situation for some reason.Make sure to clean skin with mild soap & gauze with warm water.If my skin is irritated around the stoma,I do the powder then barrier wipe blot 3 times,not to much powder.And if skin is not irritated make sure to use the barrier wipe anyway.Barrier wipes help with adhesion & skin protection.Stand up when finally applying pouch and press & hold for about 5 minutes making sure everything is nice & flat.Then put your pouch belt on for at least three hours.Try not to sit down for about 30 minutes so everything can adhere.If my skin is irritated,I usually try to change it every two days to speed up the skin healing process.Hopefully this helps with anybody going through the same situation.Good luck & God bless.
That's some awesome problem solving, Ron. 👌 Thanks for sharing that.
Great tips Ron, I'm one month in and sounds very much like we have the same issues! Also find the better the prep the better the outcome! First pouch I changed back at home I'd showered & then changed appliance & was in the process of removing old pouch when I got a burning sensation between my legs!!!! I then realised that the adhesive remover was dribbling around my nuts 😫🙄🙈 so the moral of the story is put a towel round your waist whilst changing pouch to avoid any accidents 😁
Also Eric thank you so much for taking the time to give out all this great advice, it really is appreciated
Very informative post VO.
Thank you for the tips. I've had my ileostomy for about 8 years and had to learn how to change the wafer and bags on my own. At the beginning it was a challenge because I didn't even know this existed, but I've learned to cope living with it. Leaks are going to happen but learning how to stop them is sometimes impossible. Food also plays an important role when you have an ileostomy unfortunately. Keep up the good work and hope you are doing ok.
Things certainly get easier with experience. Best to you!
Thanks for valuable information.
What I found is that to avoid leaks, you have to change your bag once every 24 hours and avoid letting it get full at night. and if its full, dont roll onto your back laying flat. the weight of the bag will pull the glue from your stomach
Once every 24h would be really expensive, and not necessary when you find the right appliance.
I often get really lazy at home and my bag fills more than it should, but I've gotten consistent 7 to 10 day wear for years doing that.
Night time is a challenge, especially if your bag fills with gas, which I find worse for leaks compared to just output.
It can help to wear a support accessory to keep some of that weight off the wafer. Depending on your needs, there may be several options here.
Thank you for making this video I am going to tell my mom about this
+Luke Mabey Ah, you found it! 😊
Thanks for the videos and articles... they're most helpful. 👍👍👏👏
Glad you like them 😊
I found that using a hairdryer set on cool, helps get rid of any excess stomahesive powder before applying the protective powder.
You can also get a Dollar Store Blush brush - if it gets too "used", you can wash it or toss it.
I've already had to change my pouch twice this week, and had a minor blockage yesterday from an almond and coconut granola bar, #ICouldntHelpMyself... But compared to my life during the first 2 years of having an ostomy this was a walk in the park.
"A messy, wet, warm mess." What really wakes you is rolling over on it after it has cooled off! The belt suggestion was great! I saw it and said, this is going to suck because it looks so uncomfortable. I don't even know I have it on. I feel SO much more secure with it. It holds the bag on snug and stops the wear and tear on the wafer. I always got leaks from the top of the wafer in that thin plastic that holds the firm plastic connection ring to the wafer itself. I use Hollister stuff because that's all I know from leaving the hospital but the belt is made by Adapt (which I see is Hollister). The ref # is 7299 and the upc is10075 11478. It hooks into 2 of the 3 tabs on the side of the bag's connection ring and goes around your back and is adjustable. It's working great for me. Thanks for the tip, Eric.
Yeah, the cold mess is probably worse than the warm mess! Glad the belt works for you. It is amazing how nice it feels with it on, and it really helps to support the bag as it fills up.
Vegan Ostomy It feels so comfortable that I forgot I had it on, was getting ready for bed (usually nude) and was getting undressed and went to take off my underwear. What a mess :( I only did that once, so far ;)
The belt is def a plus. I'm on my 2nd go around with an ostomy and my ostomy nurse brought it right away because she remembered from last time I needed it.
I bough a carbou ostomy bags last week on Amazon, after having a horrible month trying to keep the coloplast bags with out leeking and been so desperate because I work in a restaurant I found out that Amazon sell differen brands. THIS IS THE MOST AMAZING PURCHASE NO LEEKINGS AFTER BEEN CHANGING 3 or 4 times a day with the Coloplast ones. The reviews on Amazon are AMAZING
Sounds great! Thanks for sharing that.
@@VeganOstomy ☺️
It is great, the one I have on doesnt have de cera ring or the paste and has been on since saturday,
My 90+ yo mom had a colostomy 4 months ago. She's doing great although she does struggle with pancaking, and ballooning.
Bless your mum! Does she have a stoma nurse who she can check in with? Pancaking and ballooning are pretty frustrating to deal with, but hopefully they aren't causing her problems with wear time or skin issues.
great video,helped me figure out what some of my problems might be .thank you.
You're welcome!
Pressure buildup in the appliance can be largely eliminated by using an appliance that has a charcoal filter. The gas is allowed to escape and the charcoal minimizes any smell.These are particularly useful at night. I have used them on occasion because although they serve a purpose, they do have a couple of drawbacks.
Yes, filters *should* be the way to go to help with "ballooning" of the bag, but so many of us, especially those with ileostomies, find that these filters clog up within hours of putting a new bag on.
@@VeganOstomy As I said, they do have a few drawbacks. I never encountered that issue, however. What I have found is that sometimes my clothing can get soiled at the site of the filter, so there is some small leakage. I only use the charcoal appliance on rare occasions.
@@Yorick10314 Leaking through the filter is a problem with some brands. Do you have a colostomy or ileostomy? That can make a difference.
Leaks, leaks! Ive had three in two days! I don’t know if I’ve had a bad batch of pouches or it’s my arthritic hands and I’m not putting them on properly. But it’s probably me as even over a year since I’ve had ileostomy I just can’t get to grips with it. I empty every time I go in loo, even at night as it’s constantly on my mind so I wake every couple of hours.
I only get ballooning if I eat veggies, which I love. I’ve stopped eating after 3pm so I don’t get much output at night but on saying that it makes it more liquid and gas which escapes. I’ll work it out one day. Thanks for your video, it’s very helpful. 🇬🇧
I'm sorry you've been going through that - leaks are terrible no matter the situation.
Do you have a stoma nurse who can evaluate your appliance and make sure that you're putting it on correctly? Sometimes, it's the smallest thing that you miss which leads to these leaks.
What appliance are you currently using and have you samples any others?
@@VeganOstomy
I’m currently using sensura mio 1piece open.
I have tried others and a few different samples that I ordered through my stoma nurse but I haven’t seen her in a while, perhaps I should give her a call. Many thanks for your reply and for your very informative videos which I have now watched quite a few of.
Yes, for sure have your stoma nurse take a look. Good luck!
I use a heating pad to help seal my osteomy then as I’m lying down I take off the heating pad and let it cool off for about 20 min. Works great. My problem is my belly button. That’s were I always leak from. A nurse told me they have stuff to put in my belly button , it does help!!
Great tip! Heat and pressure are so important to getting the adhesive to work properly. Glad you find a good way to do it. 👌
Just had my first blow out two months after surgery. That brought me here.
Blowouts suck, but use it as a learning experience. Do you know what might have caused it, and more importantly, how to prevent it from happening again?
@@VeganOstomy Ok, I think I didn't allow for extra room for the Down Spout on the Long use ring seal, plus I may have had Gas build up while I slept on my side. I've had leaks before but they were always under the seal ring. and only on one side. This went out two sides horizontally.
@@PfalzD3 Gas when I sleep is often a culprit. If this was a one-off blowout, I wouldn't stress too much about it. But it's good that you've at least identified some causes 👍
Great info..thank you!!
Every time I put one on it leaks they got to find something better than what they got now it's crazy how you it does it every time everyday and how do you keep the bottom of your bag from unsticking and then leaking
Hi Mark, is the bottom of the wafer (like the actual tape area) coming loose, or is the center hole that your stoma comes through leaking?
Thank you
Thank you very much for your very helpful advice
You're quite welcome 😀
Thanks!
Update - I am now waiting for my 3rd parastomal hernia repair (the last one was an epic fail because I developed a massive infected haematoma in my abdomen post-operatively, and the mesh didn’t attach - I was showing 3 signs of sepsis and they told my hubby if they hadn’t got my temperature down I’d have died...) - I have no idea when this operation will take place because here in the UK all elective surgery has been put on hold due to Covid. As happened before when my hernia got progressively worse, I am finding that I have to change the bag more often. When everything is going OK, I change it twice a week but it’s now becoming every other day on a more frequent basis. Eventually, if this isn’t dealt with, I could be changing it several times a day. Every single time I remove the bag, there is a bit of a leak under the flange and I’m getting more skin irritation. I have lost a great deal of weight over the past few years and there is quite a lot of loose flesh on my abdomen, making the area very unstable. I have been referred to a specialist colorectal surgeon who specialises in complex repairs and reconstructions, and he recommends a tummy tuck to tighten everything up (will I actually get a flat stomach after all these years - and free on the NHS?!! Lol!) The leak doesn’t penetrate beyond the edge of the flange because I always feel it and deal with it before it gets to that stage, but I always wear flange extenders just in case. As time goes on, I am becoming more aware of Kermit (my stoma) than usual. When things are going OK, I can forget all about him between visits to the loo. I have no idea when this problem is going to be fixed. I have used convex bags since the early days - not that Kermit is flush or retracted, but it was the only thing that fixed the continuous disastrous leaks - something to do with my shape, I suppose. I am finding that emptying the bag more frequently does help, but when I wake up in the morning the bag is always very full, and often quite ballooning too, and a couple of weeks ago I did have a blow-out but it didn’t make a mess because the flange extenders contained it - the flange had lifted up and poo was escaping and it was a huge mess to clear up when I got the bag off! Kermit’s sixth birthday will be at the end of this March. I’m pretty used to dealing with everything and haven’t needed to see the stoma nurse for ages. I use quite a lot of stoma powder because there is always skin irritation immediately around Kermit because of these leaks. I puff it on and brush it off with a dry wipe, and then dab with a barrier wipe, and repeat the process till I’ve built up a crust, and this really helps things heal up. I simply can’t get on with rings in any shape or form - they make the problem disastrously worse!
Thank you for the update. That sounds like a challenge, and I hope you find some relief from it soon. Regarding the leaks and needing to use stoma powder, do you ever have opportunities to simply leave the appliance off for a few hours at a time? Like, to give your skin some time to air out without having anything on it? I sometimes will do this, but I'll hang a bag over my waste to catch any output that comes out. Sometimes open air can have a very positive impact on the healing process, even if just for an hour at a time. But it does sound like these problems will persist until something surgical/medical is done. I do wish you a speedy resolution to this. Please keep me updated.
@@VeganOstomy Hi - thanks for your lovely reply, and for taking the interest! I have found that since going 100 percent whole-food plant-based, with the additional fibre in my diet, Kermit (my stoma) is more active and productive than he used to be. I used to have a good few hours in the middle of the day when he was conveniently asleep, and although he is still less active at that time, he’s usually producing a little. The area of skin irritation is small, fortunately. I try not to let the bag get too full before emptying, and have decided to change it three times a week as a routine, rather than waiting to see if that is necessary, by which time I can usually see the output and feel the irritation and know that a leak is in progress. I agree, the problems are going to persist until I get the operation, and goodness only knows when that will be. It wasn’t helped by the fact that the hospital where I’ve been referred to for this latest operation managed to lose me in its system for several months, and I’ve been having ongoing problems with them (also getting lost in their complaints system lol - who do you complain to about the complaints dept!!!) because I’m trying to make them see that I don’t think it’s fair that I should be put on the end of a nine-month waiting list when I’ve already been kept waiting 4 months because of their incompetence. They are conveniently blaming all delay on Covid, of course. Now that all elective surgery is effectively on hold, that hardly seems relevant now anyway.
I am just glad that it’s only hernia/leaks problems that I am having to deal with. An online friend was diagnosed with rectal cancer 6 months before my colon cancer diagnosis, and she was incredibly supportive throughout my treatment, sharing the benefits of her experience which was pretty similar to my own initially, with the same chemo so she prepared me for the sort of side effects I’d have to deal with. Unfortunately her cancer spread and for the past six years she’s had a long battle with it, and sadly she died about 10 days ago. Cancer is such a brutal lottery, isn’t it - one loses the battle, and another is spared. We are all feeling incredibly shocked and saddened and I am also dealing with some fairly difficult emotions too - survivor’s guilt is a toughie. Anyway, I am very glad that I did so well and really don’t have too much to complain about.
Hope you are keeping well!
@@ShoshiPlatypus That really is tragic. I'm sorry for your loss. Cancer has taken so many people around me, including online ostomy advocates that I've become friends with.
I'd be totally frustrated if my hospital did what yours is doing! I would hope they'd fast-track you after their mishap with your files.
A plant-based diet will include more "bulk" due to the added fiber, which, as you pointed out, can increase output. Over time, my body has adjusted to the point where I'm emptying my bag less frequently and waking up less during the evening. I hope that you experience the same shift as it does make things a little easier.
I wish you better luck! Again, please let me know how things continue for you.
When the pancrease is partly damaged this allows an oily substance to get into the stool.This oily substance will very quickly get through your appliance as a leak.This was prescribed by my doctor and I have not had a leak since.I used to have to change my appliance almost daily.
That's wonderful to hear. I'm glad that worked for you. Not everyone's has leaks for that reason, but it's an interesting thing to consider. Thanks for sharing that.
What did you use?
@@carolecastellano6512 Hi Carole,ask your doctor about Creon, it works with your pancreas to prevent the oily substance in your output.I use Creon 10 and no I don’t have any connection to the company, just a great story for me.Thank you.
Thanks so much for this Video :)
Hello from Ecuador :)
Skin Tac is the game changer.
Nice! Glad that works for you.
Didn't help me at all. I have a flat one so it leaks under sometimes 3 times a day while in the hospital. Convex wafers help. But no one showed me those skin like gaskets that go over the top of the wafer edges. I tried those and I love them. Even without adhesives . I was familiar with " no sting" but until skin tac, didn't realize there was a very sting. And that's skin tac. And no, it didn't do any better than no sting or ostomy paste or anything. Just tearing up my skin.
Thank you so much for the information!!!'
thanks for a clear explanation of leaks. However, it didn't cover the reason I get leaks. I've had an ostomy for forty five years and for most of that time I could wear my appliance for 7 or more days. When I first had my surgery the enterstomatherpist pointed out that I had one small area that was somewhat indented and suggested that I put extra stomahesive in that area and that worked really well. Over the years, I gained weight and then I started to leak in that area and even when I tried to patch it up with more stomahesive, it seems that that little area is melting. If anyone has a solution for this I will be eternally grateful. Thanks!
The video touches on more common causes, but my written article identifies over 20 causes for leaks 😁www.veganostomy.ca/ostomy-leaks-tips/
7days? Doesnt it stink?
Not to mention, small bags with high output.
Very helpful
Some additional tips can be found in the comments section of his closely related video entitlled "Ostomy wafer not sticking? Here are a few tips." - czcams.com/video/lEIcbajxDbY/video.html
so embarrassing to have leaks I tape around my bag, plus on the opening part I use a clip lo seal it better several times they had come undone
Have you had many leaks, or are you doing that as a preventative measure? Which appliance are you using?
I only use a little barrier wipe around the stoma. No rings or powders or anything else. I use a deodorizing oil in the bag and it also stops pancaking.
👍👍👍 Glad you found something that works well for you.
Thanks.
Could you tell me how long I have to leave the bag on.
This video might help to answer that question :) czcams.com/video/VUAlY3uO4aE/video.html
I was shopping when my pouch fell off! I get through a minimum of a dozen pouches a day! I check it between hourly and a couple of hours. on the rare days when it adheres. I've tried rings flanges, flat and convex pouches, nothing has helped. I have a parastomal hernia which doesn't help.
That sounds like a huge challenge, Isabelle. I'm sorry that you're experiencing that. Do you have a stoma nurse who can look at your skin and appliance to find out why it's failing so often? Assuming your skin is in good condition, there might be a small detail that perhaps is being overlooked that could make your experience better. I do hope that you find a solution!
Hi, how to prevent leakage during exercise, like bending my belly?
Appliance choice may be important here. Some products have more flexible wafers that would allow you to bend more easily. You might also have better luck going with a larger baseplate (wafer) or a smaller one. I've had pretty good luck with a 1pc Hollister while exercising, cycling, etc., and I find that the larger wafer on that product + the fact that it's a 1pc, seems to help.
I have heard of using a maternity belt with a built in pouch inside that you can put your bag/pouch in.
Yes, may ostomy wraps are designed like that. As long as it does have a pocket to secure the bag, it should work pretty well.
at 4:00, you talk about overfilled pouches tugging at the seal. I use barrier extender (the translucent, skin-looking material), or any tape-like material that is easy on the skin. I take a small section and tape the top of the bag, just above the vent opening, to my abdominal skin. So, now an overfilled pouch tugs at the 'tape' and not the seal. TRY IT! But be careful with what you use on your skin. >:D
I've done the same in the past to experiment, but what ends up happening (to me) is the tugging on the tape ends up causing skin irritation so I can't use that trick anymore but it can be helpful!
Great videos. I'm on my 2nd time with a temp ostomy and have had some issues with leaks shortly after applying new appliance (within 2 hours I'm leaking.) Typically it's out of the bottom toward the right side. I've measured, I have an eakins ring on the wafer to help seal especially since my output is very runny, but it still finds a way. I've had to call my ostomy nurse a couple times to come out and help. Its extremely frustrating when you go through all the prep just to have it leak so quickly
The eakin ring may not be able to help if you are getting blowouts like that. Its better suited for helping with liquid output. Has your nurse ever recommended a convex wafer?
Also, keep an eye out for anything that might be putting pressure on the top half of your appliance, which could lift the bottom up and cause a leak. Things like an accessory belt being on too tight, your belt or pants, how you bend, sitting, etc. These can all potentially contribute to leaks.
LemSat87 the
love it!! thanks
OldGasMan My biggest problem is what you called "Ballooning". But its way too often. I can go into the rest room several times during mealtime and shortly after just to 'burp the bag' even though there is not much in the bag except air. Have suggestions on how to chang this problem? I've already thought of cutting back on cheese and peanut butter and such, but maybe you have others you can add.
+Joe Ward Hi Joe. Ballooning is a pain for sure! I've got a video: czcams.com/video/vpkkGNKBo60/video.html and article that might help : www.veganostomy.ca/ostomy-pouch-ballooning/
Hey there I get you . I am ballooning terribly normally when I sleep it seams to fill so extremely quick and then it’s accident time. It’s so degrading and embarrassing isn’t it. Can I ask about your diet ? I have a dietician that has put me on a low FODMAP diet it’s basically the carbohydrates sugars found in anything from to anything do a quick google. You start on a low fodmap then gradually introduce items and find which is causing you to ballon. I hope this helps it helped me loads. But commons sense too such as foods we can’t break down. The whole idea of FODMAP is avoiding the chemicals we can’t break down so legumes skins pips seeds etc theese are horrific for ballooning. Deffo try a low FODMAP diet though it will help you with ballooning .
Just a thought, have you tried using a vented collection pouch? It allows for excess gas to escape.
For what it's worth, Kirt, I eat the foods (legumes, skins, seeds, etc.) daily and in large quantities and ballooning is rarely an issue. Our bodies need to adjust to the increased fiber intake and for most people that can take several weeks or longer. A low FODMAP diet does have benefits, but I personally wouldn't restrict otherwise healthy foods because of gas (knowing it usually just takes some time for our gut microbes to adjust).
Hey, man, i also have the same problem, and I use Beano before i take my first bite. It helps with gas and hss been helping me for a while. Also, cutting back on certain foods is a good idea, as well.
Why do the filters not work to realease the gas I've use 2 or 3 different ones and the filters don't work
Filters tend to work best if you have a colostomy or very dry output. Once they get wet they stop being effective, unfortunately. I've stopped using bags with filters because they are too unreliable.
I have a leak starting in the same place from the wafer each time. Looking at the area from my side looking down it is on the left upper side. I have tried all kind of barriers. Paste around the wafer opening, strips, Hollister Barrier rings, and making a powder crust around stoma base. I use barrier curved strips. Paste around the wafer does not work. Adept made a horrible gummy paste on my skin that was difficult to remove. I never get no more than 3 days. I have not use one, but I read the Eskin ring is very good.. My stoma is 1 1/4 I measure it frequently. I have precut wafers from Hollister. No mater what I do, a leak starts on that upper left side. I put HY tape over the barrier discs. My stoma is a little raised and round. I use a two piece system with a high out put bag. Any suggestions? TY
Hey Cleome, high-output bags should have some support via accessory belts, support bands, or ostomy wrap. Are you using anything to support the weight of the pouch? It's possible that it's getting heavy and tugging, which is causing the type of leak you describe.
I really like a vented bag. Not sure when that technology came out? Vents don't balloon unless the vent fails
If you have drier or less frequent output then vented/filtered bags can work pretty well. Unfortunately, if you have an ileostomy then they tend to fail pretty quickly. Whoever solves this problem will be a billionaire 😂
Hi first of all I would like to thank you for taking the time to do these videos, I learned so much from you .
I’m 6 months in ileostomy for me her name is Stella we made friends very quickly, but my problem is my skin is so so sensitive so I switched to a closed pouch system and liners and that has helped but I still leak a lot at night I’m inverted so I have to use the convex flange, I was trained by my wonderful nurse with Hollister but I’m thinking of changing to coloplast. What do you think?
I think that there is always value in trying new products. The goal is to be completely confident that your appliance will be reliable and predictable. If your current one isn't working out, try something else. Coloplast offers a very strong line of convex appliances to suit just about everyone. Good luck!
Thank you for your response,I’ll keep you posted 😊
Is there any paste that does not have the alcohol in it. My skin is very sensitive and the regular paste really burns my skin often?
Yes, look for "no-sting" options, which most companies should carry. That will be alcohol-free. Take care!
My leaks come as a result of a dip on the right side of my stoma, about the size of dime. While I apply a piece of the seal in the dip, it doesn’t always work. That’s where my problem lies. The output finds its way into my skin (no outside leak) irritating it and causing burning. When this occurs, I require a change every 2 days. When it works it’s wonderful as I can get 3 days before changing. I seem to get a run of good luck, but it doesn’t last. I use only half of a Salts mouldable seal to create a full seal as I find the full seal is too thick. I have no clue if my explanation is clear or not, but I sure hope you may have a solution for me. ET nurses have unfortunately not
been unable to find the magic for me. Almost forgot - the fact that I have a hernia on the left side probably doesn’t help matters. Thank you ☺️
Hey, Margaret. That sounds frustrating for sure. Are you currently wearing a flat or convex appliance? Have you tried other brands of seals or stoma paste to see if any work better for you? Sometimes you'll notice a dramatic difference between two of the same products from different brands. It might be worth exploring. Good luck!
Okay for me iam 63 years old and iam concern about my bag filling water only I mean blows up fully whit regular water? Is this normal? Or is ther something wrong whit me?
Hello. Do you have an ileostomy or colostomy? How much water do you drink per day? Do you have any other output, except the water?
My stoma is very close to the crease where my leg bends at the hip . And it is absolutely impossible to get more the 36 hours out of a bag . I've had one fail after 18 minutes before. And when I say we have tried everything we have.
I'm sorry to hear that, David. What has worked best for you so far?
I like your videos. I have problems with leakage every so often, not as bad now but my problem is that I have an ileo, it is bigger now than when I had surgery 16 years ago, but it shrinks to its original size occasionally and pancakes which is a disaster. I haven't found any product that helps with this. I have to wear convexity due to the stoma shrinking and have developed a pressure ulcer right where the stoma opening points downward. Usually this will go away if I switch to a normal flat wafer for a little while. I wish I could use a flat wafer all the time but if my stool is thick (which causes my stoma to retract) it goes underneath everything, even barrier rings. Do you know of anything that can help?
Sorry to hear about your troubles. There are many types of convex wafers - some that are stiff and others are are quite flexible and soft. Have you tried several types? Also, the pressure sores are more likely to happen if you are using an accessory belt too tight.
I had a similar problem with my stoma retracting when my output is really thick - this was actually one of the first indications that I was heading towards a blockage. If I drink enough throughout the day this never happens to me. Do you feel like there's a pattern that you can predict and hopefully alter to get your output to be less difficult?
Baby oil helps with pancaking in my experience with my ileo hope this helps
Do you think that climbing stairs or getting down from an un easy step of the car cause debonding - gap creation and hence leakage?
Under normal circumstances, no. But stretching the abdominal skin from reaching up or twisting can sometimes cause the edge of the baseplate to peel up.
Bending can often be more troublesome for getting leaks.
i have an illostmy my stoma output is so low on my skin keeps leaking eny ideas
Hey Jimmy, there could be several reasons. It may be more helpful to read my article about leaks, since I cover more possible causes compared to what's in the video: www.veganostomy.ca/ostomy-leaks-tips/
Does anyone know of a product or products that would help prevent someone with Alzheimer's from picking at or removing their bag? Help!
This is a tough one, but I've had several parents with children who do the same. I would suggest some kind of accessory belt or wrap, but I don't know if they would just pick and tug at that instead. You can post the question on my support forum and see if anyone has any experience with that. Https://www.VeganOstomy.ca/community
@@VeganOstomy Ah, gotcha. Thanks for the response. I'll head over to there now.
I have an idea but I don't know if it would soak into the wafer. Vaseline smeared all around the edges. I hate Vaseline.
Consider a StealthBelt.
Hello , can you please tell what is the gel you use in pouches to make the stool hard...
Depending on where you live, these products can often be found under various brand names. Any medical supplier should know what "gelling products" they have. The brands I use include the ConvaTec Diamonds and Trio Pearls, but there are many others.
Where do you live
I had a Stoma hernia and the Doctor changed the position of the stoma . It is not flat and no matter what i use paste or rings leaking is a real problem any suggestions . I use a Convatec two piece
Hi Frederick, what shape is your stoma. Perhaps more importantly, is it sticking out or is it pulled in?
My ileostomy is in a location where I've had previous ostomies so the skin does have an uneven part leading to leakage recent weeks. I use a barrier ring and take my time to drag my fingers around to be sure the barrier ring is firmly on the wafer. Once i apply it to my skin (especially the uneven area), i try to apply even pressure around to be sure it holding. As said before, something is still leaking in that area. I'd like some help bc i'm going through my supplies fast.
That sounds frustrating. A few things to consider:
- Try different brands of barrier rings (and different thicknesses, if available). Sometimes they work better than others.
- Have you used stoma paste?
- Ask your nurse, but you may be able to use light convex wafers to help minimize those leaks.
Flush or Retracted Stoma Leaks - Minute 2:07
Well, I did it... I handled a leak in public for the first time, and I didn't even call my mom!
Yay!!!! I'm proud of you! 👏
Can't think of anything worse than setting several alarms every night and getting up. Bad enough hearing the standard morning one haha!
ha! I hear you, but for some people who have nighttime leaks (or worse), it's an option :)
Vegan Ostomy Very true. If leaks are a regular nighttime problem, it's definitely the lesser of two evils!
Liquid output coming what should I do there is any tablets to prevent liquid leaking please reply me
I'm sorry that you're experiencing that! My favorite way to manage liquid output is to use a gelling product that goes inside the bag. It will cause the liquid to become more solid and easier to manage. I have a video about them here: czcams.com/video/BS6FnRQrhbs/video.html
I'm almost 3 months out of surgery for my ileostomy and I've been struggling with alternating prolapses and retractions, especially at night. My stoma doesn't retract all the time (it's generally "normal" during the day, but then loses its shape and firmness, becomes "mushy" and retracts or prolapses out of the blue.... This happens as often as every day or once a week) but it does so sporadically, which then causes leaks (usually when I'm asleep). Would a convex flange work best in this case? My concern is if using a convex flange would cause more prolapses, since I am prone to those too,and if it would help when the stoma randomly retracts? Can these be used on a stoma that doesn't stay retracted?
My doctor wasn't any help with this, so any advice anyone has would be very helpful!
+Veggie Bee That sounds really frustrating. I would request a stoma nurse to have a look. Some people wear convex appliances with protruding stomas, but I've never heard of them being worn with a prolapsed stoma. It may help with the retraction, but a stoma nurse should be able to tell you whether it's OK to use one while prolapsed. Good luck!
Hi there. I had the exact issue and I found that when it would prolapse it would press against the cut ring of the bag and would hurt crazy making my eyes water. I spoke with my surgeon. I myself have just suffered a Panproctocolectomy “full removal” I’m fine now I had 2 month in hospital with a month in icu it was a very aggressive surgury lasting 16hrs. But on the good side my surgeon was able to make me a much smaller Stoma and restrict it !! Meaning it can’t prolapse no more I am so so happy about this as it was hurting me night and day! Speak with your surgeon if it’s a permanent ileostomy then your surgeon should be able to restrict it for you ! Good luck
I wonder if you could help us my mom has an uroostomy like 18 years ago and since the she has been using Hollister 3764 skin barriers, but suddenlly the brand discontinued that model and I havent found the rigth one for my mom, because we havent recived any propper
advisory about a new skin barrier model, the "new ones" that want to sell are not strong enought or the tape adesive area its not big enough so constantly my mom has leaks or when the prior model use to dure like a week the new ones barely stays fit a day or even worst a simple night, so any
advisory we will appreciatte it thank you in advance
I'm sorry to hear about that. Trying to replace discontinued products that have worked is very frustrating. It looks like the Softflex is different from what I've used, but I wonder if your mom might have better luck with the Coloplast Sensura Mio products, which also have a soft, flexible wafer. The best you can do is sample product until something comes close (or is better than) what she was using. In the meantime, I would check with other suppliers to see if the product can still be purchased until they are no longer available. That might buy your mom some time to sample other products. Best of luck!
@@VeganOstomy thank you I will try different Supplies you are right!!
Very very useful information.this query is on behalf of my husband.in your video I noticed that once you remove the layer from the wafer you directly put it on the stoma whereas I have been asked to put brava paste round the cutting and the place it on the stoma.is it correct.
I don't use stoma paste, but the general application is to put the past on the wafer (around the hole for the stoma) and then put the wafer on your skin. You can also put the paste on your skin first, although this isn't as common. In reality, the phrase "whatever works" often applies with stoma management :) Thank you for watching.
My stoma is very close to my belly button, which causes leaks in the belly button since the skin is not flat. I've tried covering my belly button opening with tegaderm and the barrier strips. Sometimes it works, sometimes it doesn't. Any tips on how to make my bell button hole a flat surface?
Hi Aisha, how close is close? I had difficulties after my surgery because a lot of my stitches were very close to the stoma, so I think you're having the same type of challenge. Do you use or have you tried convex wafers?
@@VeganOstomy The stoma is about 1.5 inches from the belly button, far enough for me to use a barrier ring/ paste around the hole of the ostomy bag, but too close for the entire wafer to lie flat. I was sent 1 convex wafer in a sample package, but have not tried it.
What I would do in that case, is to cut the hole in the wafer slightly offset from center so that it is placed further away from the belly button. Some will still be over the belly button but it shouldn't be any part of the wafer that would be designed to contain leaks. This also can depend on the type of wafer as some wafers have a full hydrocoloid backing while others like Hollister have a hydrocoloid center and then a tape border around that period it is pretty easy to do this with the Hollister wafers with that design. If for added security, I tended to place some kind of wafer extender or even medical tape on the half of the wafer that is over the belly button. I don't think there would be any advantage to try to fill the belly button with anything, since you should still have enough of an area to adhere the wafer to your skin, including using wafer extenders. I hope that makes sense. 😬
What about doing an article on high output fiscals that are retracted, and using barrier rings and convex base plates (wafer) output can go from thick to liquid no pattern, often suffer from leakages, raw damaged skin that noting will stick too very painful, tried everything, barrier rings soak up output and swells and the hole in the ring closes nobody deals with having a fiscals, have my colon but use ostomy products
Hi Bernadette, can you clarify the word "fiscals"? Do you mean fistula? I do have videos on using barrier rings and also how to manage liquid output. Have you seen them?
Vegan Ostomy, my fistula is very high output, seen your videos which are great, but noting helps, output can go from thick to thin in an instant use crusting technique, everything, stuff gets on same patch of skin all the time, can't see why its happening stoma nurse can't help either. It's a retracted hole, use eakin barrier ring, large salts ring, Braun convex 2 piece, coloplast tape, plus coloplast adhesive remover, barrier powder cavilon barrier spray, crusting not helping, sometimes takes over an hour to get new bag on stuff keeps coming out clean ready with stuff, whoosh eruption, start all over, might get over a day without change usually 2 times a day, am in Ireland so all supplies are on medical card, so don't have to pay for anything but that's not the point would rather not have to change so often.diet never changes. Connected to flow connector. Atmy wits end with sore raw, stinging pain, can't solve problems even stoma nurses can't solve it
Is this a purposely created mucus fistula or is it a fistula caused by illness? The latter would need to be treated medically first. If it's a mucus fistula, you may be able to find a special appliance designed just for it. Unfortunately, the tips in my videos only apply to regular stomas and not fustulas.
Vegan Ostomy is not a mucus fistula, caused by illness, had a smaller one ,hap op, but then this one opened much bigger, seems noting can be done with it medically, any operation would be very risky for me ,had lots of compilations and infections after last op, it was unreal, wouldn't go through that again, as my chances of survival would be slim, and more fistulas could open, heard of people with multiple ones, nightmare stuff, have to see stoma nurse again, already changed bag 3 times today, its unreal.
I'm really sorry to hear that. It really does need to be addressed by a certified wound and ostomy nurse. My experience with a mucus fistula was rather short and not bothersome, but it sounds like a radical plan needs to be made before things are more manageable for you.
Best of luck!
Blizzard, eh? I can tell you're also a Canuck! Good job. I would like to share this on the Calgary Ostomy Society website I maintain.
+tifflovesmetal Haha! I am, although I do not look forward to snow of any kind! I'd also be honored if you shared this. Take care!
Thank you for information. Bi keep having burning. I guess it’s leaking. I have already changed today n been very careful n now burning. 👎🏻👎🏻👎🏻👎🏻
Hi Peggy Sue, I'm sorry that your skin is burning :( Is the skin very red under the wafer? Burning can also be a sign of an allergic reaction or sensitivity to something in the wafer. If you have an opportunity to speak with a stoma nurse, who can examine your skin, it may be worth checking out. Best to you!
I always put the wafer on standing up
+freddie lugo That is ideal! I think many patients were taught to simply put their wafer on while they sit or even laying down, but this is probably because the nurse teaching them hasn't factored in that the patient will likely be moving around and stretching at some point!
Hope you're doing well =)
I'm going to try that. I was shown sitting first then lying down (which works well).
I think it's been almost 3 weeks if not already 3½ since I last changed my appliance because this time it's just really holding on tight... Is leaving it on that long at all dangerous?
What was the longest you've had it on for, or what's your average?
The biggest risk I can think of, assuming your skin is otherwise healthy, and you have no leaks, is fungal/yeast/bacterial infection.
If you find that it's getting itchy under or around your wafer, I'd swap that appliance out.
Keep my posted! 3 weeks is amazing! When I push 7 to 10 days, the edge of my wafer simply loses its adhesion, and I'm forced to change the wafer.
@@VeganOstomy this is definitely a record for me.
@@LucysLifeInTheBabyAliveWorld It think it's a world record! LOL Keep me posted on how it goes! I'm so curious to see how your skin looks when you remove the wafer.
@@VeganOstomy Are you suggesting I show you the effects through my Instagram DM'S? Because I'm not sure if I'd feel comfortable doing that yet.
@@LucysLifeInTheBabyAliveWorld Not at all. Just a description would be more than enough :) Like, is there any redness (or more than normal), any irritation, etc.?
Eric, my pouch leaks where you drain, Why? I make sure I dry all moisture in out before I roll up.
Which appliance are you using? And does it happen even with a new bag? I've only had that happen few times, and it usually is caused by wrinkles creating channels for stool to pass through in the tail end of the pouch.
Coloplast 2pc...
@@veronicamahan6285 Does it have a clip or velcro? Does this happen with each new pouch?
Velcro
Make sure that you've cleaned several inches into the tail of the pouch. I roll up toilet paper to make this easier. If it continues, I would let Coloplast know because that shouldn't be happening, even if you don't clean the outlet perfectly.
What is pouch ballooning how do I see it
Check out this video for an explination: czcams.com/video/vpkkGNKBo60/video.html
I have leaks coming through the inside ring part why does this happen
There could be many reasons! My article goes through additional considerations and solutions: www.veganostomy.ca/ostomy-leaks-tips
sometimes the bag might not be clipped hard to the wafer or completely snapped on.
I have an inny stoma and I leak all the time I have tried everything I am new to this mine was just don't on November 10th 2016
+Dianna Schafer Hi Dianna. The traditional approach is to use a convex wafer, but this should be under the guidance of your stoma nurse since convex wafers can cause complications (like pressure ulcers) if not used properly. The good news is that there are many styles, depths, and firmness to convex products, so you should be able to find one that works for you.
Good luck.
+Vegan Ostomy
I have a bit of an innie on my ileostomy on the left side and unfortunately am in Chile for work. The lack of stoma product options here is horrible. I have never found a convex product and can only find convatec flat wafers. On top of that, I love to swim, which tends to loosen the seal a bit (although I have never leaked in a pool, thankfully, even after years), and end up having to change my appliance every 2-3 days.
Sitting here right now with a leak bunched up with toilet paper between my belt and wafer and waiting for the work day to end because it's a high output time of day so attempting to change it in the bathroom here at work would just be a disaster.
Still, this is way better than the alternative of the days of my Crohn's where I went from being fine to suddenly realizing that I had about 30 seconds to make it to a bathroom.
+vorpal22 I'm sorry to hear that 😣 Product availability outside of North America and a Europe tends to be very hit and miss. Do you have any other options? Like importing them from a company who ships internationally?
Most of my leaks are on the back of my pouch.
Under the after or behind the bag only, as if the leaks are coming from the coupling or filter?
Kindly confirm that after surgery of ilostomy it will perfect or not
Hi Nazir, no surgery is perfect, but most ostomy-related complications can be corrected using the right products. Have you seen a stoma nurse?
after surgey of ilostomy cound b leak .....kindly confrim i have a issue some time there i feel like a rubbing
there is no pain but some time feel rubbing