MAC_Khalifah
MAC_Khalifah
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#ALS symptoms : Muscle twitching
#alsawarenessmonth
I want to share about my muscle twitching.
It occurs in various parts of my body, but the most prominent ones are on my right arm.
They are not painful. Just a bit irritating coz I can feel it happening but I can't do anything about it.
It feels like my body wants to move even when I am trying to relax.
#alsawareness #ALS #MND #macfightsals #macvsmnd
zhlédnutí: 79

Video

Dubai Vlog _ Arriving into Dubai.
zhlédnutí 48Před měsícem
Heading out to Dubai to do stem cell therapy and catch up with family. This is my first time travelling with wheelchair assistance, which was actually a really good experience as Dubai airport is so huge. We had to take a train at one point! #dxb #dxbvlog #dubaiinternationalairport
This is how #ALS affects your voice. BEFORE and AFTER
zhlédnutí 2,6KPřed 3 měsíci
Some of you may be wondering why i haven't created any videos for a long time. The reason is because I was having issues with my voice, it started with a bit of a husky voice towards the end of 2022. During 2023 its started to gradually get worse, by October, i was slurring my speech. Something definitely wasn't right, and I saw a neurologist. After months of testing i was finally diagnosed ALS...
This is the BEST outlet of The Malayan Council Restaurant.
zhlédnutí 1,8KPřed 2 lety
Went down to The Malayan Council to try out their Beef Rib and Roti Kirai, as well as their Pecan Pie. I have been to this outlet before, about a week before this video was shot. This video would have been out earlier but my software #filmora kept freezing everytime I wanted to export. So this is my first video that I have edited using #Descript. Not sure if the software was meant for video ls ...
Surfskate Progression Vlog Week 6
zhlédnutí 318Před 2 lety
Hey there, this was shot a couple of weeks ago. I was practicing some drills instead of just cruising around. This is just a video on my journey into SurfSkating. Just a bit of background, I did have a skateboard back in the 80's but I spent a lot of the time just sitting on it and going down slopes and trying to avoid speed wobbles. I did some snowboarding when I was in New York, while I could...
FRONT SIDE SNAP PRACTICE AT THE ECP - SurfSkate Vlog 011
zhlédnutí 472Před 2 lety
Made it out on a super hot and humid day out in Singapore. Days like this usually have the threat of a major storm in the afternoon. And sure enough the storm did make it. But we managed to get some skating done before the downpour. This area of East Coast Park is at carpark d4 there is a big open area with a smooth surfact that is great for skateboard, roller skates, and kick scooters. There i...
YOW MERAKI CLONE 1ST TEST TRY - Surfskate Vlog 010
zhlédnutí 3,3KPřed 2 lety
Hey there, this video was meant to come out a few weeks ago, but i haven't had a chance to edit the video. This video follows the process changing the Oxelo Carve 540 trucks to the Yow Meraki Clone set up. its really feels like a totally different ride, to the original set up, very surfy and responsive and 'divey'. Been having a lot of fun with the board since i set it up this way, but to be ho...
FIRST TIME REGRIPPING MY BOARD AND I GET MOST OF IT WRONG - Surfskate Vlog 009
zhlédnutí 388Před 2 lety
The Oxelo Carve 540 comes with coarse sandy grip that was designed for barefoot riding, the problem is that it wears out really fast if you are using shoes. I wanted to keep the wooden look of the board so I bought grip tape of the internet and attempt to regrip my own board. i thought that i had an idea of how it would go, but as you will see from the video there are a few things that go wrong...
INSTALLING A YOW MERAKI CLONE ON MY CARVE 540 - NOT A TUTORIAL - Surfskate Vlog 008 - ASMR
zhlédnutí 2,6KPřed 2 lety
INSTALLING A YOW MERAKI CLONE ON MY CARVE 540 - NOT A TUTORIAL - Surfskate Vlog 008 - ASMR
Try Not to Laugh Challenge
zhlédnutí 36Před 2 lety
Try Not to Laugh Challenge
Weirdest Moments in Sports - REACTION
zhlédnutí 18Před 2 lety
Weirdest Moments in Sports - REACTION
NOOB SKATER TRIES OUT RESTRICTED SINGAPORE PUMP TRACK
zhlédnutí 525Před 2 lety
NOOB SKATER TRIES OUT RESTRICTED SINGAPORE PUMP TRACK
MADE IT ONE ROUND! with a minor injury
zhlédnutí 75Před 2 lety
MADE IT ONE ROUND! with a minor injury
Surfskate Vlog 006 - MARINA BAY, SINGAPORE
zhlédnutí 623Před 2 lety
Surfskate Vlog 006 - MARINA BAY, SINGAPORE
DRILLING NEW HOLES IN MY BOARD - SurfSkate Vlog 005
zhlédnutí 945Před 2 lety
DRILLING NEW HOLES IN MY BOARD - SurfSkate Vlog 005
40 YO. TRIES OUT SURFSKATING FOR THE FIRST TIME - SURFSKATE VLOG EP 001
zhlédnutí 408Před 2 lety
40 YO. TRIES OUT SURFSKATING FOR THE FIRST TIME - SURFSKATE VLOG EP 001
IS THIS THE ONLY NASI KANDAR IN SINGAPORE?
zhlédnutí 6KPřed 2 lety
IS THIS THE ONLY NASI KANDAR IN SINGAPORE?
Proof That Americans will buy anything - A Non American REACTS
zhlédnutí 77Před 3 lety
Proof That Americans will buy anything - A Non American REACTS
ASIAN GUY REACTS TO 10 Most Offensive Jokes
zhlédnutí 142Před 3 lety
ASIAN GUY REACTS TO 10 Most Offensive Jokes
ASIAN GUY REACTS TO ASIAN CON MAN TOM VU! - MAC REACTS
zhlédnutí 288Před 3 lety
ASIAN GUY REACTS TO ASIAN CON MAN TOM VU! - MAC REACTS
'THIS IS SICKENING' - FOOTBALL FAN REACTS TO SAVAGE KNOCKOUTS!
zhlédnutí 20Před 3 lety
'THIS IS SICKENING' - FOOTBALL FAN REACTS TO SAVAGE KNOCKOUTS!
ASIAN GUY REACTS TO FAMILY GUY - SUPERHEROES - MAC REACTS
zhlédnutí 159Před 3 lety
ASIAN GUY REACTS TO FAMILY GUY - SUPERHEROES - MAC REACTS
Venom 2 Trailer - MAC REACTS
zhlédnutí 18Před 3 lety
Venom 2 Trailer - MAC REACTS
Is this the Best Roti Boyan I've Tasted? - MAC-KAN Reveiw
zhlédnutí 68Před 3 lety
Is this the Best Roti Boyan I've Tasted? - MAC-KAN Reveiw
ASIAN GUY REACTS FAMILY GUY ASIAN STEREOTYPES
zhlédnutí 85KPřed 3 lety
ASIAN GUY REACTS FAMILY GUY ASIAN STEREOTYPES
Journey to see the Orchard Road Christmas Lights
zhlédnutí 66Před 6 lety
Journey to see the Orchard Road Christmas Lights
Feeding Manatees!
zhlédnutí 165Před 14 lety
Feeding Manatees!
Feeding Manatees!!
zhlédnutí 118Před 14 lety
Feeding Manatees!!

Komentáře

  • @pattymullin8515
    @pattymullin8515 Před 21 dnem

    Your cloned voice is fantastic. I loved your comment about losing your Aussie accent! I remember a young medical student who was from Vietnam and learned to speak English in Tennessee before moving here to California. Somewhere in there was a very strong Southern accent mixed with a very strong Vietnamese accent in his English...I could rarely make out single word he said!

  • @pattymullin8515
    @pattymullin8515 Před 21 dnem

    Yay indeed!!

  • @pattymullin8515
    @pattymullin8515 Před 21 dnem

    I hope your treatment goes well and that you have time to enjoy visiting with your family.

  • @denisebohnke4266
    @denisebohnke4266 Před měsícem

    I think you are tremendously brave for showing the world what you are going through. My grandpa (mother’s dad) died from ALS in 1971. I am so glad that I stumbled onto to you! No pun intended! 😂

    • @mac_khalifah
      @mac_khalifah Před měsícem

      thank you for sharing, i do love a good pun!

  • @FelixLumb430
    @FelixLumb430 Před měsícem

    ❤️

  • @FelixLumb430
    @FelixLumb430 Před měsícem

    ❤️

  • @sc2dog
    @sc2dog Před měsícem

    One of the coolest guys on CZcams!

  • @FelixLumb430
    @FelixLumb430 Před měsícem

    🙏

  • @user-lv4rv5jj9u
    @user-lv4rv5jj9u Před měsícem

    Are you in Dubai now for treatment?

  • @susankahlow1646
    @susankahlow1646 Před 2 měsíci

    I'm so sorry that you are dealing with this absolutely horrific disease! Praying for you and for a cure!!🙏🙏🙏🙏🙏🙏🙏🙏

  • @flowergirlicart3949
    @flowergirlicart3949 Před 2 měsíci

    So sorry 😢

  • @michelleanderson6419
    @michelleanderson6419 Před 2 měsíci

    I’m so 😢

  • @AMillionin365
    @AMillionin365 Před 2 měsíci

    Hey Mark how are you doing? Upload more videos. Can I use your videos to share your story?

    • @mac_khalifah
      @mac_khalifah Před 2 měsíci

      Yes of course! Im doing ok.

    • @mac_khalifah
      @mac_khalifah Před 2 měsíci

      I do more updates on my IG. Under the same name

  • @user-lv4rv5jj9u
    @user-lv4rv5jj9u Před 2 měsíci

    Brilliant idea

  • @TheMorseKod
    @TheMorseKod Před 2 měsíci

    Once a fireman always a fireman

  • @julieanderson100
    @julieanderson100 Před 3 měsíci

    I'm so sorry you are dealing with this horrible, horrible illness. I keep hoping to hear of more breakthroughs regarding ALS. It is a cruel thief. I hope you have support around you. Wishing you moments of peace.

  • @OrlandoAponte
    @OrlandoAponte Před 3 měsíci

    I made a small donation and encourage others to do the same if they can. I wish you the best of luck and hope that your disease stops progressing, like it did for Stephen Hawking and Jason Becker. Since you are on the younger side, there is a greater probability that you will survive for 10+ years.

    • @mac_khalifah
      @mac_khalifah Před 3 měsíci

      Thank you Orlando! It is much appreciated. I hope I live longer too!

  • @CWM030
    @CWM030 Před 3 měsíci

    God Bless Man!

  • @AlteringTheEther
    @AlteringTheEther Před 3 měsíci

    Hi, I don't mean to be rude or to belittle what you are going through. If you have to suffer so badly while your mind stays present, maybe, and I don't know, but maybe finding a mantra you can repeat in your mind may help you. Just repeating a mantra might help to have something helpful to focus on when you can't alleviate your suffering in other ways. I'm sorry if this reads like victim blaming. I will pray for you. I believe in God and prayer.

    • @mac_khalifah
      @mac_khalifah Před 3 měsíci

      Thank you, I'm currently dealing with this with the support of wonderful people around me and that the same time strengthening my relationship with God

  • @maxime6093
    @maxime6093 Před 3 měsíci

    Came across your video unexpectedly. I'm sending you the best of luck and warm wishes. No one should have to deal with this horrible disease. Your voice matters. ❤

  • @susankahlow1646
    @susankahlow1646 Před 3 měsíci

    My heart is breaking for you! Im so genuinely sorry that you have this awful disease! You are in my prayers tonight. Take care❤ Praying for a cure too!!!!

  • @bdlimea7018
    @bdlimea7018 Před 3 měsíci

    My brother passed away from this disease in 2010. I'm so sorry you have this. ❤

  • @dragonwithagirltattoo598
    @dragonwithagirltattoo598 Před 3 měsíci

    I’m very sorry to see you suffer this way. It’s not fair. I will be praying for you friend. I hope a cure will be found for this terrible disease one day soon. Much love to you ❤

  • @janegao5747
    @janegao5747 Před 3 měsíci

    I'll keep you in my prayers. Pray for comfort...

  • @rastiffi
    @rastiffi Před 3 měsíci

    May God bless you and your family, brother.

  • @sarahyee5331
    @sarahyee5331 Před 3 měsíci

    You're very strong and I'm sending you lots of love.

  • @margaretbirch2193
    @margaretbirch2193 Před 3 měsíci

    God bless and comfort you during this incredibly difficult time and always.

  • @capital.B
    @capital.B Před 3 měsíci

    I'm sorry to hear that, also comment to boost your clip. This illness is so cruel, nobody should ever go through this. Sending lots of love and strength your way.

  • @samueldeandrade8535
    @samueldeandrade8535 Před 3 měsíci

    Omg, be strong, man. No matter what happens, you are a great man. Adapt, believe, overcome.

  • @powthehamster
    @powthehamster Před 3 měsíci

    Praying for you bro

  • @AMillionin365
    @AMillionin365 Před 3 měsíci

    Omg! Sorry to hear about this, I used to watch your reviews. Now i know why you went mia. Let us help monetise his channel, give him the support he needs and let him continue making content. Hopefully the financial support from monetisation will go a long way.

    • @mac_khalifah
      @mac_khalifah Před 3 měsíci

      I have a fundraising campaign at the moment, the link is in the description

  • @simoneschneider8461
    @simoneschneider8461 Před 3 měsíci

    ❤❤❤

  • @222lanna
    @222lanna Před 3 měsíci

    Is there a video of your first symptoms? Perhaps its on a different channel?❤

    • @mac_khalifah
      @mac_khalifah Před 3 měsíci

      I don't have one but I will upload one soon

  • @branblymier1752
    @branblymier1752 Před 3 měsíci

    You are so young stay positive, keep the people you care about surrounding you, thoughts and many many prayers .

  • @user-fx3ej4sn3y
    @user-fx3ej4sn3y Před 3 měsíci

    Awful😢Awful disease. You look like a good man

  • @sarasmile6071
    @sarasmile6071 Před 3 měsíci

    I’m so sorry honey.

  • @louise8752
    @louise8752 Před 3 měsíci

    Prayers for you, may you be surrounded by love and comfort. I wish I could just hug you, every day so you're not alone.

  • @MegaMinecrafteFan
    @MegaMinecrafteFan Před 3 měsíci

    ALS is such a horrible disease, I wish you good years to come and that you live in comfort

  • @Twinlorilee
    @Twinlorilee Před 3 měsíci

    Praying for you❤

  • @nilun3678
    @nilun3678 Před 3 měsíci

    So Sorry 😢

  • @lobbdem
    @lobbdem Před 3 měsíci

    I am so sorry bro, that must be so hard and honestly feel for you. I hope you've got people to help you with everything and people that love you, I can imagine you're feeling so alone, I cannot imagine how you feel but if you ever need a talk please just write to me.

  • @ritanimchonok7531
    @ritanimchonok7531 Před 3 měsíci

    You are a wonderful human being. Prayers being sent. It's just a tiny idea. If you can record certain words you use often and as many as possible. Instead of exerting yourself. You can use a computer to say your word, but it still can be your voice for most of it. I know they were talking of trials, I hope if there are if your up to it to try to get in on them. May God bless you and you not be in pain. Try to enjoy what beauty you can in the moment. Many say live in the moment. ❤

    • @BrokeTheInterweb
      @BrokeTheInterweb Před 3 měsíci

      Apple has this available in accessibility, under Personalized Voice. it was created for people with this and similar conditions. Wishing you the best of luck <3

    • @ritanimchonok7531
      @ritanimchonok7531 Před 3 měsíci

      @BrokeTheInterweb I'm so sorry .yes I know there is . I actually had an amazing neurologist who had ALS. That's why I mentioned trials we had spoken before he left and set me up with Dr's he trusted for me. I have a rare disease that I'm on treatments for and also was in 2 car accidents with perm injuries. . I know fighting for my rights all these years has been hard, and I have totally taken an emotional hit destroying me from them . My mom just went to heaven for me. It seems like yesterday, but it wasn't. So I have a harder time doing without her, my cheerleader. I pray you get to squeeze in what you want in life to do, and I always pray for miracles for people to. God bless you always. I had just been scrolling that day and saw you for the first time. You're quite the man.

  • @leximadison
    @leximadison Před 3 měsíci

    Praying for you 🙏🏽😔 so sorry for your pain 😔

  • @fgjhhihh3610
    @fgjhhihh3610 Před 3 měsíci

    Sending you a big hug and I will pray for you

  • @mw2416
    @mw2416 Před 3 měsíci

    I am praying for you. Stay strong in the Lord. He is with you.

  • @tinacollins2055
    @tinacollins2055 Před 3 měsíci

    Bless your heart ❣❣

  • @BudgieCentral.123
    @BudgieCentral.123 Před 3 měsíci

    So very sorry that you are suffering with this awful illness - I will pray for you - even though I don't know you, my heart goes out to you....x

    • @dianefox2608
      @dianefox2608 Před 3 měsíci

      You are in my prayers. I admire your strength and openness. God bless

  • @gaoshing1814
    @gaoshing1814 Před 3 měsíci

    i also wanted to buy a yow meraki clone but i’m worried about spring quality.what do you think about that?

    • @mac_khalifah
      @mac_khalifah Před 3 měsíci

      Hey thanks for the question. Totally understandable about the spring. What I ended up doing is buying a yow S5 spring from my yow dealer here (or you can order from the website) and changed it. Was a bit tighter to ride and better to control. Hope that helps

    • @gaoshing1814
      @gaoshing1814 Před 3 měsíci

      ​@@mac_khalifahthank u so much ! So, you can just change to the yow dealer's spring without using file to filing it? Like, does it fit perfectly?

    • @mac_khalifah
      @mac_khalifah Před 3 měsíci

      @@gaoshing1814 in my experience it fit straight in no problems

  • @richardlee2120
    @richardlee2120 Před 4 měsíci

    I used to watch Tom Vu on tv back in the day. He was hilarious. I went to one of his sponsored seminars where his representative gave a "free" 90 minute sales pitch, and tried to sell us on a $500 Tom Vu seminar. "If you don't want to be rich, you deserve to be broke!" "My friend....."

  • @hanswurst2220
    @hanswurst2220 Před 4 měsíci

    Is Family Guy racist? 100% YES! Is Family Guy funny? F...k YEAH! 😃