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Happy to hear. Hope that you do get to head back to Europe soon. I love it out there as well.

Sorry for the delay in responding, somehow missed your comment 3 weeks ago. Can you clarify what about Hollywood studios. On PD, just be aware of extreme rides with safe waist handles that may impact your catheter. Other than that, folks may do their PD treatments in the hotel at night or bring manual solutions and plan to visit the medical center to do their manual exchanges while they are within the parks.

Agree with your dialysis nurse that you are one of the model patients. Great to hear that you were able to receive a transplant and still doing well

Yes. I would say to still use some ExSept on the exit site afterward though.

Yes. But make sure you clean the tub well and soak the shower head and faucet in bleach for 5 minutes every week. Currently: Can also do private chlorine pool and salt water pool. Public pools are not suggested due to the amount of bacteria from other people. You can swim in the ocean or a saltwater pool. Generally private pools is preferred. You can use a little bag like an colostomy bag as they have an adhesive that makes it water proof.

I guess it depends on the person. With PD you have to do treatment everyday (most people) for the rest of their life or until they get a transplant. Transplant will require taking 3 or 4 anti-rejection meds, everyday, for the rest of the patients life. Missing the meds, even once, could make the new kidney be rejected. Transplant offers more freedom of movement. You can go anywhere in the world without having to take a dialysis machine and solution bags. I for example want to take a cruise but the country where the cruise leaves from doesn't allow imports during January - March, which is when the cruise starts, so I can't have my solution imported by Baxter and it would be too much for me to put it on a plane and handle it myself.

Usually in Asian countries many have to self pay for their PD supplies and they often do not use cyclers. But supplies still tend to require a prescription to purchase beyond the government allowances. These timeframes would be too long for regular travel orders and expensive to ship. U.S. clinics also need to collect monthly labs and quarterly clearance labs to ensure your treatments are keeping you health enough with medical documented data.

@@KyleKChang-ji9jd hey thanks for your reply and info.. I have zero support here in Oregon and could do better in every way with my old lifestyle in Asia the issue is getting set up and simply getting a hold of the basic supplies to do manual p.d Years ago I was in the beginning of the kidney disease and I had a nephrologist

Thanks for sharing and watching the vlog !!! Were your doctors able to attribute the initial failure to any other health issues as reversals tend to be normally for folks in more acute kidney failure due to other health ailments. How long were you on PD / Dialysis in total???

@@KidneyJourneys The following is a direct copy from my medical file. kidney biopsy on 09/14/2017 that showed according to Nephrology note: malignant nephrosclerosis with extensive/severe fibrosis, atrophic tubules, and global glomerulosclerosis from severe hypertension. Renal US also showed increased echogenicity that suggest CKD in addition to Complex right renal cyst. Nephrology assessed his kidneys injury as “irreversible”. Oct 4th take off dialysis Nov 4th confirmed no longer needed dialysis. Nov 7th, got a call they were testing a potential match. Spent 4 years on PD.

Nocturnal in center hemodialysis run at a slower BFR and less taxing on your body, but typically not available as a treatment modality for most patients in the U.S. and we finally on path to offer and speak about different modalities options as option here again,

@@KidneyJourneys Right now I’m okay with my schedule! My husband does my needles in center! My goal is to eventually do NxStage and travel! And I forgot that my kidneys originally failed in November 1979! My diagnosis was Glomerulonephritis of Unknown Origin! I had gone into Congestive Heart Failure at age 7!

Not necessarily, completely for all PD patients. When in ocean water and diving suit, there are ways to help minimize risks with protective coverings if exit site has been deemed to have healed long enough by your own PD nurse and / or nephrologist 😜

Hope you are staying healthy and doing well still 🥰🥰

Thank you I’m doing what I can, trying to live, without living in fear 😊

Sorry to hear. If only fatigued after dialysis, it may be due to the machine running too fast or removing too much fluids too quickly. Is this in center hemo or home hemo? What is your BFR (blood flow rate) set to?? Other fatigue for dialysis patients may be due to other health issues, nutrition, anemia, low protein as possibility to look into with your care team and nephrologist

My daughter likes PD so much better than hemo. More freedom, don't feel as crappy

I'm 41 and have been on PD for a little more than four month. Doing demo would really suck for me because of the needles. I've been told you get use to it but still. PD really is better. Yes, you have to do it everyday (most people) but it gentler on the body and can be done overnight.

Thank you for you comment. However, folks should be advised to check with their own nephrologist or care team as excess electrolytes or fluids may also harm some dialysis patients more than help when on dialysis and kidney failure. It is better recommended to work with their own care team to ensure the right balance of removal is achieved through their own treatments prescriptions to minimize (or avoid) fatigue after each dialysis treatment.

What drinks are the source of electrolytes?

Thanks for watching and your comments. My travel bag was obtained from a local TJ Max retail store

Hey may I ask what you know that will keep it down

@@feliciamorton4151 although everyone is different it's all in your diet and always taking your blockers. Educate yourself on what foods are high in phosphorus. It's in dam near everything. Dairy, nuts, cola, chocolate, make up the most dangerous.

Sorry that you are having to perform dialysis at an early age. I would recommend you consult with your nephrologist. (kidney doctor) regarding your concerns with your blood pressure. It's often treated with medication and fluid management. There may be other health concerns that causes your blood pressure issues as well. For them to help you look into. . Thank you for reaching out and watching my videos.

How r u now dear?

Thank you for watching the video and for your question. Typically, these exercisers are fine for PD patients as it does not directly impact your exit site or PD catheter, as long you feel well enough and have the energy to do them. Let your doctor know that you are doing exercise so they can also monitor your labs in case there are any changes.

@@KidneyJourneys Thank brother for answering my question, I've literally spent hours on the internet to find the answer. From today onwards I'll start push-ups and I'll let the doctor know about it too, again thanks bro it really helped me.

Thank you for asking!!! Doing overall well. Some issues recently with increased protein leakage about 38 months post-transplant, but we are looking into it and monitoring through routine labs and medication for hypertension. .

Thank you for watching and glad to hear that you found it helpful!

Thank you for your question !!! Population size and quality of healthcare and availability of PD as a dialysis treatment options is not the same or equivalent b/t different countries which all have different laws and regulations regarding healthcare, medical supplies and medical equipment. Some of the Asian countries do not have PD, some have manual solutions only, most out of country travel would require self pay of the PD supplies since insurance coverage here in the United States tends to limit international travel coverage. I would check with your dialysis supplier's customer service number and ask to speak with a travel specialist and lead times necessary for your travel order and if they are able to support you in the destinations you are planning, freight costs, if any, etc. You will also want to look into travel insurance which includes medical emergencies to get you back to the states JIC the need arise during travels.

Thank you for your reply and the info.. much of that is as I have learned or expected... Maybe the place to begin is with my old nephrologist in the Philippines.. DaVita dialysis here gave me some figures and we're on the edge of prohibitive just with freight plus needing to know exactly where I would be staying.. the bottom line really is I have a miserable lonely life here in USA and I had a good life in Asia that was prior to. Dialysis . Currently I have the cycler machine.. however it's quite a lot to lug around and I would think of just doing manual pee Dee... At the current rate I'm going I am totally broke and have zero support here in Oregon honestly don't know how I made it through winter but I don't think I'll survive another one the cold and being lonely is a miserable life.. long-term travelers expense for insurance would probably end up costing more than self-insuring.. realistically my dialysis expenses could cost 3 or $400 a month and I would still be way ahead compared to my miserable life here I would trust most of the medical services in Bangkok but not in Cambodia.. likely I would prefer to live in Vietnam or the phil

Happy to hear you find it helpful! Thanks for the repeat views. Stay well in your Kidney Journeys!

typically it takes 2-4 weeks for the exit site to heal properly, but some folks may need more time and also training time can be up to 12-15 sessions, depending on how your home dialysis clinic trains, their staffing and scheduling availability. While PD makes travel still capable, there are different regulations in different countries,so you will need to talk to the supplier to make sure they can get you the items you need based on your own treatment prescription in the various countries.. You should also talk to your home dialysis clinic and nephrologist about your travel plans as they still typically will need to assess you and run labs monthly while you are on PD, refill your prescriptions, etc. So planning on Asia travel sequentially likely will involve some planning, coordination and lead time.

@@KidneyJourneys thank you kindly that is very helpful have a wonderful day