Essential Tremor is more than a tremor
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- čas přidán 13. 06. 2024
- The International Essential Tremor Foundation provides a voice for those with essential tremor (ET). We hope that this brief video will help you, as a member of the medical community, begin to better understand the ways that tremor affects the whole person-physically, psychologically, socially, and emotionally.
• Tremor at any severity level has the capacity to affect livelihood.
• Tremor can impede ordinary activities of daily living, stealing a patient's dignity and independence.
• Tremor can prevent a person from pursuing hobbies and activities that are dear to them.
• Tremor can lead to depression, isolation, and humiliation.
Please don't be unaware-be mindful. Learn about ET. Learn about the research, the available medications, and the surgical options. Be prepared to offer your patients the information and the empathy vital to establishing appropriate treatment.
LEARN MORE ABOUT ESSENTIAL TREMOR:
www.EssentialTremor.org, info@essentialtremor.org, or (toll free) 888.387.3667.
Breaks my heart that the lady said she was useless. I wanna hug her.
Joshua Morgan broke my heart too ! I've recently been effected with slight head no no tremors. She's so broken and it's completely sad.
@@yomomma4365 i have had essential tremors since i was born. People just stare at me. It's nerve craking. I hate this dicease.
ikr
Ikr??? God bless her
@@yomomma4365 I have head tremors also..I'm taking primidone...works pretty well...mine isnt real bad.thank god
I am 15 years old, I noticed my hands would shake when I tried to do certain things such as eating or texting at the age of 13. I was diagnosed with Essential Tremors at age 14. It is very stressful at times, and EXTREMELY annoying. It is extremely embarrassing when people stare at you while you're trying to eat or holding something. It's even worse when they ask. Glad to know there are so many others who feel the same way as I.
I've found what helps me the most is to stay absolutely calm all the time. When it comes to people you'll just have to adjust your habits a bit. I'm 27 now but have had it as far as i could remember.
Whats annoying is always having to have someone else snap a smart phone picture, or have perma-shaky photos haha
that's exactly me... i work at a market as a cashier and people look at me because my head shakes.... it's embarrassing and i hate it but it's something i have to live with..
let's fight through it together!
It's awesome to know other people feel the same way as I do. We all got this!
***** Gluten free diet and paleo diet has completely cured many patients of essential tremor. You dont have to live with this dibilitating disease all your life. Pls do your own research on net and you will find testimonials of many tremor patients who are enjoying a tremor free life after following these diets.
Manoj Nair Essential Tremor is known to be neurological, how could a change in diet help? Extremely curious about this.
I am 15 , I have it !!! I cry day and night , I find myself useless !!! But you know anybody reading this , I send you a virtual hug . We are in this together and remeber God gives tough questions to intelligent students !!! We are in this together , you are not alone my bro , sis !!!
I'm goin to my doctor's tomorrow. I believe iv had this for years but finally doing it now
We are in same situation 😭😭😭hugs
I have had it since I was about your age. Mine isn't very limiting. It is very VERY minor compared to my Aunt and grandfather, who can barely use forks or spoons at this point. Thankfully, mine has stayed about the same and I just turned 30. There are days when it is noticeably worse, and other days where it is so minor that you can barely see it. Don't lose hope. I thought for sure It would be debilitating, but my Aunt is still a seamstress even with her shakes. My Tech-Ed teacher in high school shook like crazy too but used a saw every day. Strangely, my ex boyfriend had it too and was a baker, but was still able to decorate cakes nicely. I have to solder tiny wires together every once in a while. Don't give up on your dreams!
This was ten years ago. There are treatments and medications for this now🎉
The only medications that are used to treat ET have too many side-effects. I’m 61 and I can’t remember a time when I didn’t have a tremor. I gave up on trying to treat my tremor with medication. My tremor has steadily increased to the point that I am completely disabled. I was nearly homebound. 😢It had even begun to affect my ability to walk. HOWEVER, I had deep brain stimulation surgery in June 2023 at UAMS(University of Arkansas Medical Sciences). Erika Peterson is my Neurosurgeon. It has been an amazing journey and I would recommend it to anyone who is having major difficulties. My tremor disappears completely when I turn my DBS unit on. There is also a procedure that use targeted ultrasound and is less invasive, but I wasn’t a good candidate for it. I wish you well on your treatment and recovery. There is hope 🎉
its nice to know theirs other people out there like me
MilesLover03 Sucks, too.
go to Facebook, there are a couple of support groups there :-)
My Dad has Essential Tremor. He's been on an all natural supplement called "Tremor Miracle". Google it. Pretty cool stuff. His symptoms are reduced about 80%. I'm super interested in why people get ET and why TM works to reduce it. I'm pretty sure it has something to do with the Nitric Oxide increase in your blood from the Arginine Citroline combo this morning drink has. Anyways for what it's worth check it out.
Jonathan Baird hiii help me sir I have tremors
I hate it but your not alone. I used to think the same thing. The shaking gets so bad sometimes that I don't want to go out in public. People stare then I m trying to hold every part of me down. But I know I can't it's just so humiliating! Nothing has helped me at all. My friend has mentioned CBD oil has anyone here ever tried it? Along with the tremors I also have systematic Lupus, heart disease, high blood pressure, I've had uterus cancer and I just batteled breast cancer. I believe that the Lupus is causing all of my ailments.
Gets me mad when people ask me "dang stop shaking"
+kent Alvarez ahahahahaha my friend,usually its the sam ewith me,they r asking me if am drinking such many coffees daily ahahahahaha,keep shaking my friend,am doing the same,am not able to eat a soup outside the house but who minds....Merry Christmas !!!!!
+Leonidas molon lave haha same with me 😅 they think I drink too much coffee or soda. Hope you had a good Christmas!
+Evan Schott yeah same with me.
how long did yall had it and did it got worse cause i have it too man! AND I donot want it to get worse
kent Alvarez feel you.. I feel you
To that lady who feels she is useless -- and anyone who feels that way about yourself -- please know that you are not useless! You're not just a body, but you are a heart and soul with plenty of wisdom and kindness to give. You're full of grace and love and you can share your thoughts with others who may need some of your insight. Stay strong and know that you are so much more than you realize.
Thank you
The world would be a better place if there were a few more people like you :) - Thank you!
Thank you..it really broke my heart when she said that. You are so right.
Thank you. I needed to know I am someone. My kids dont care. I'm a thorn in their side
im 28 yo and i have n essential tremor which makes me wonder what more chance we got to wind up having more neuroligal problems
I’ve dealt with tremors my whole life. Teachers would call my mom when I was in elementary school asking was I scared or cold. People would always ask what I was so nervous about. The worst thing happened last week when I drove to the store I got pulled over by police for my expired tag. My hands were shaking so bad the cop thought I was on drugs. Next thing I knew there was 4 more cops searching my car and making me do a field sobriety test. I tried to explain that I have tremors but I guess they didn’t believe me. Glad to know I’m not alone. Hugs!
Ugh I HATE getting pulled over! The first thing I think is “oh I hope the cop doesn’t think I’m nervous and trying to hide something because my hands are shaking”, which causes me more anxiety, which makes me shake even more! I’m 30 and I’ve dealt with your situation a number of times since I started driving. I’m sorry you had to go through that. You are not alone. If other people judge you for it, that’s their problem, NOT yours.
I will also say that one thing that has helped me a lot is strength training. I do a lot is exercises that focus on my wrists/arms/shoulder and it has noticeably reduced my symptoms. I hope that helps.
I always hated that it made me so self conscious in school everyone asked me are you cold?? and teased me said I was a chihuahua lol but that type of teasing was mostly from my best friend so I took it light heartedly but it gets to you because you realize ppl notice it. People think you are scared, nervous, cold, sick, on drugs.... I also had my car searched for this reason... my ride was extra old and raggedy tho 😅 was quite frustrating but what are you gonna do
The same thing happened to me. I couldn't get my ID out of my wallet. It sucks
@@nikkinicol78 Oof that brought back some memories. I’ve been there. The thing I always hated was reading a paper in front of the class when I was in school. My hands would shake like crazy! I would always hope there was some sort of podium or desk to place it on, otherwise I would shake and people would snicker, which would make me even more nervous and cause me to shake even more. Argh it was so frustrating!
@Dark Absol I used to paint. Now I paint silicone babies/parts for movies, therapy, etc... because it offers a bigger margin for error. It's heartbreaking, and I'm so scared for the day when I can't even do that
I have lived with this since I was 14. I didn't know there was a group and I am not alone. Hugs to you all.
Yes it is there are you not alone ☺ love you💕💕💕
yess you are not alone 🥺💖
Have your children inherited this tremor?
Hi my name is Vincent Chung and i'm a computer science students. I'm currently doing some research about tremor disease. I need a lot of people to do some easy to do physical test and drawing. I really need a lot of dataset and if you would like to help me you can contact me through my university email which is vincent5@mhs.stts.edu and I can give you the instruction. Would really appreciate your help.
yep me too. I'm scheduled to get the focussed ultrsound treatment in july 15th . everything they say we can suffer from is what"s hapening to me now
This video actually brought tears to my eyes. I have had essential tremors for some years now an have always felt so insecure about it. Im happy to see that I'm not alone. May God keep us all strong in the face of this difficulty.
Don't think it's incurable. Essential Tremor is oftentimes caused by a vitamin B deficiency. I suggest you do some blood works to detect your shortages of magnesium, vitamin etc.
"I had it all in my head, I swear, but it just didn't want to come down to my fingers." ...Well said
dids it shake fast your head do yes yes or nono or side to side
I'm 16 now.I had it since i was 13 years old.The best solution is to sleep on time.Always sleep 8 hours a day, avoid stress and anxiety.Besides, you could also do some excersises like going for a walk or jog or maybe go for a massage to make you feel more relaxing..
@@filipacarvalho2800 I was diagnosed when I was 10 and im currently 21. I do believe getting a good 8 hours of sleep does help and avoiding stress aswell but exercising makes it way worse for me. My tremors have also gotten worse over time. Ive been prescribed two different medications and they help a bit but not enough in my opinion. Hopefully there will be a cure soon.
Fine but it is very simplistic!
@@ronaldomatos8252 I totally agree with you all ur points. some people can't have coffee either, it worsens the symptoms after half n hour or hour. But the et medications currently available don't always help.
I think exercise can exacerbate it, but probably helps overall.
It's true but for anxiety tremor
I have essential tremor symptoms since I was in high school . Now I am 23 years old and I have learnt to live with it.. people notice and ask me about this whenever I do some stuff like holding a cup of tea or using my cell phone. But I never limit myself because of this. I love myself and I love the way I am , it's ok to have some problems as we all know nothing is perfect. 🙌❤️
What a positive attitude! So proud of you! Watch our newest video, Young People and ET: Gracie's Story. Video link
czcams.com/video/OfqRhQGYpUA/video.html
We are all perfectly imperfect ❤
Look into focused ultrasound.
Aww I want to hug that old lady so bad. She’s such a sweetheart
me too
Love seeing all these other young people with ET speaking out in the comment section. I'm currently 20 and was diagnosed when I was 14. I remember being in chemistry class freshman year of college, and I was so anxious and nervous that I could barely write. To all the other young people out there I just want to say, don't be afraid to talk to your teachers or professors and ask for accommodations. Many are willing to give extra time or even give you tests in alternate forms like typed. Don't worry about inconveniencing them or blah blah blah. Take care of yourself, and set yourself up for success. Much love to everyone! Remember I believe in you!
Thank you for posting this video. I'm 60 years old and have had essential (familial) tremor in my writing (right) hand since aged 19. There was no help in those days - a doctor even referred me to a clinical psychologist. I studied at Oxford and have had a successful career - but the confidence sapping tremor has always been there, progressively worsening until I couldn't write at all with my right hand. In desperation I taught myself to write with my left hand in my late 20s. Not elegant but it worked for most of my working life. The tremor has now spread to my left hand. Thank goodness for computers! Videos like this have actually brought tears to my eyes as I see a shared experience in others. I have read about a new curative ultrasound technique but not sure that it's available in the UK. I just wanted to chip in with a bit of mental support for anyone with this condition. It can make you feel utterly hopeless, sucking energy and focus out of our daily lives, but you are not alone.
That one lady is breaking my damn heart. My goodness.
"I'm useless" That's sooo sad :(
@@dhill05 i feel the same way as that old lady because i have had essential tremors since i was born. I don't really eat anything because it's Embarassing as hell. It would be better if i wasn't Alive. I'm only 17
@@ilartsu6072 Don't say that. There is always a reason to live, even if you have a debilitating health condition. Especially at 17. That's still really young. You haven't even experienced adulthood yet. I'm 25 and have super sensitive ears from damage caused by loud noises as a child as well as constant tinnitus (ringing in the ears). Most noises nowadays that aren't even loud to regular people can irritate my ears, even something as simple as an air conditioner if it's left on for long enough. Certain sound frequencies are worse than others. But I don't let it stop me from living my life. Take care of yourself and don't mind what others think of you. Different forms of therapy are good ways to help you think positively. Or finding a hobby that makes you feel better about life. If anything, your essential tremors make you unique. Hope this helps.
I have functional movement disorder and tremors and it is so sad and it ruining my life 😥
@@ilartsu6072 I have had essential tremor since I was a teenager so over 40 years. I have good days and bad days. I only work 17 hours a week because it wears me out trying to function. I do home care for seniors because I shake too much for other work and now I can no longer do a lot of things... like I wouldn't be able to feed someone or brush their teeth... can barely do it for myself some days. It's random so that also affects being able to work. If I have a bad day I can't call up work and say, not today. So I am managing okay with my schedule now.
It really messed my life up when I was younger because I worried so much about what people would think.... destroyed my self-esteem. I figured everyone would think I was an alcoholic or drug addict or something.... Now I am older and don't worry so much about what people think. I just put it out there and tell people what I have so I won't have to worry about what they think. God Bless You, and remember that everyone has their cross to bear... none of us get through life without some struggles. This just happens to be ours and we have to make the best of what we have... count our blessings and love ourselves and look for the beauty in the world. And sometimes just get mad and curse... heh heh. And keep your sense of humor.
Mrs Raun, your life is not useless. It must be terribly frustrating and discouraging, but not useless. You can share love and compassion--even more so because of your own suffering--and there is something special about you that no one else has. You are a lovely woman and worth everything to God!
+Jody Ospina chin up mrs Raun!!!! we all got something. don't take the disease so seriously. is a lot worse diseases out there
Forget god!! She’s everything to me! There’s sooo many good hearted kind people out there that wouldn’t judge her for a second because she was shaking. Anyone that judges you for something so minor and out of your control isn’t worth getting upset over in the first place.
@@jasonok1436 hi Jason do u shake
Exactly. I've had Essential Tremor before the car accident I was involved in that made it much worse. I play piano and join in competitions, however, with piano, you get marked down a couple points for looking nervous (shaking, looking down, rubbing hands together, etc). My scales is good and my songs are great (as they'll ever be with Essential Tremor) but I'm always marked down for something I don't have control of. A few weeks ago, I felt like I was so close to winning first place for a scholarship but I missed it by a lot because I was shaking before, during, and after my songs. Having Essential Tremor makes me feel judged and vulnerable when it comes to competitions, group discussions, speeches, and even writing my own name. Anything that makes me just a bit nervous makes me shake all over my body uncontrollably. I also have a competition tomorrow in which I definitely do not feel ready or confident in my songs nor scales but as always, I will do my best. Wish me luck🙂
i have a head shake too i do yes yes and no no
It's good that you have the bravery to persevere and do the things you do because when I was younger (I'm 62 now), in my teens and twenties, this disease paralyzed me and kept me from doing things I wanted to do. I remember going to college and standing outside the classroom looking in the window and crying because I was too nervous and shaky to go in. I suggest just letting people know what you are dealing with, not in a complaining way but just as an explanation so that you don't have to think about what they think, and keep on doing everything you want to do. God Bless You.
Hello Laura, have you had any children, and if so have they inherited it?
How did you do in that competition? I think I was in my 60s before I noticed the problem.
@@jimervin1637 It was a competition for a scholarship and ended up I got an amazing scholarship to a college that I have been going to now since the post and am about to graduate with an design/art degree. I still struggle a lot with my tremors, but I have been practicing and will be playing a memorized song in front of the whole school this coming spring before I graduate🙂 I found out the more I practice a song, I shake a little less. Its not a huge difference technically, but it is a difference😊
I work as an independent researcher on ET. Physically, ET is believed to be caused by changes in the deep cerebellum and/or thalamic-red nucleus-olivary pathway. The concentration of certain beta-carbolines is found to be increased in the blood serum of sufferers of ET. These beta-carbolines act as an inverse agonist on GABAergic neurons. Hypothetically, this could explain the symptoms (tremor, anxiety, etc.) of those who suffer from essential tremor. If it's any consolation, I would recommend avoiding processed sugars, going gluten free and eating a high, healthy fat diet. Eating a high fat diet has been associated with increased metabolism of beta-carbolines which may reduce symptoms. Eating healthy fats may also promote insulation of nerve fibers through myelination-if the tremors are a result of nerve damage. A high efficacy magnesium supplement such as magnesium threonate may also help with symptoms. What we do know is that there are two common types of ET: early to late onset of familial tremor and sporadic ET with no genetic basis. As bioinformatics improve on ET, we will have a better understanding of the genetic basis for ET and the pathogenesis/pathophysiology. Better diagnostic measures are needed for sporadic ET and determining whether or not a neurotoxin, metabolic or brain disease is at fault. More funding and increased general support are both needed to further elucidate the cause of this debilitating and pervasive disease.
+IxJessexJamesxI Can ET spontaneously go into remission?
Yes it can, because it did with me. Several years if I remember correctly. I worked on my own, doing work with my hands 8 hours a day. A stressful time. When I first started my hands ached with the unaccustomed exercise. After a few weeks the ache subsided. You could seek the same solution, but it's a very time consuming lifestyle
charles marriage your hands ached? That’s not ET . You had pain not ET.
It's exactly like 1:17 in my right thumb(not in left). I noticed it today and googled it and found the term
But, it is happening when I am concentrating on it otherwise it is not happening (most of the time)
Can someone tell me something?
Will it increase? Will my right hand will shake in future?
Thanks in advance
Why aren't you researching CBD oil....only thing that works!
It brings tears to my eyes watching this. (My first watch of an ET video) I’m a very emotional person, I know shaking isn’t horrible but I’ve just started experiencing this 2-3 years ago and I’m not diagnosed, cannot afford it but I definitely shake. I get so frustrated because I can’t do my makeup, use utensils, paint nails or art like I used to, etc :( I just start crying randomly because I’m so frustrated but I’m learning. Glad to know I’m not alone.
i just wish someone had cared when i was like 5 or whatever and spilling tea and shaking cameras. i wish someone had noticed and helped me and cared.
we care
Same here
Thank you so much for the compliment and the wise advice! I really appreciate it! Thank you so much for taking the time to watch this!
Hi Hannah. How's your condition today? How did you treat your ET? Thanks.
My tremors started in college and they've gotten progressively worse. No one in my immediate family had them either, but I have a cousin who shakes. What is helping me somewhat is to do everything slowly and deliberately, kind of a zen thing. Try taking deep breaths and do your activities with purpose. If I don't do this, I can't even feed myself.
It's nice to know I'm not alone in this. I believe i was diagnosed with ET when i was 19, I am now 27. I had shakey hands as a child but, when i was about 15, i developed head tremors. I feel embarrassed sometimes. A lot of people don't get it. I take Klonopin and it helps. Also, anti-depressants help because it helps with anxiety which makes it worse. God bless you for sharing this video! ;)
I don't remember not having ET. I am now 60 and am having Botox for my arms, hands and fingers. There is a slight trade off because the Botox also weakens the muscles. I can type now, which is great. I got to a point where I could not type at all. Over the years I have learned not to be ashamed. I realize that people are ignorant of neurological and mental health issues. Be Well All..................
I've had this since I was teenaged and am 62 now. Some days I can type okay and others not at all... its random. What you said about being ashamed reminded me of a joke because I too used to feel so embarrassed... so here's the joke: When I was in my twenties, I worried about what people thought of me; When I was in my thirties, I stopped caring what people thought of me; and when I was in my forties, I realized nobody was thinking about me.
It actually took me until I was in my fifties, but I really don't care too much what people think. I can go to a restaurant and used two hands to eat my hot and sour soup and phooey on anyone who notices my struggles... and if they do, they probably just feel curious or compassionate.
@@carolf9302 Have your children inherited the tremor?
My heart just broke when she said," I'm just useless." Oh God, I know that feeling. I was afraid I was showing signs of Parkinsons. I guess that's why they say don't self diagnose. My head started shaking about 20 years ago. I would notice if I drank a beer or two real fast, they would go away, so I made that a way to fix it and actually became an alcoholic to control my head shakes but they always came back. Yes, certain emotions can make it worse. Anger, embarrassment, anxiety, but my head will start shaking while I'm doing my makeup so it's not necessarily emotionally triggered but it happens. I had to quit my piercing job due to my shaking. Ppl made comments and I would lie and say I took cold medication on an empty stomach.
I agree it is heartbreaking. My favorite thing to do when people are rude/ignorant and ask what is wrong with me, lol, I get really serious, look them in the eyes and say “yes, it is a terminal.” The look on their faces is priceless.😂
I was diagnosed with essential tremor 2 years ago when my head started getting shaky. I now stay home most of the time and I hate socializing. My husband is not happy about it but he's not the one who has to deal with it. I want to get back to church and having friends again but I'm so uncomfortable that I get overcome with fear and I don't go.
I’m 41 and have had noticeable tremors in my hands since I was about 15...at first I thought I was being punished for making fun of my grandfather’s shaky hands when I was a little kid lol. But as I got older the tremors got worse and more people started noticing it. I’m still amazed by some of the questions/remarks I’ve heard over the years. I was officially diagnosed with ET when I was 26. I inherited it from my paternal grandfather, my younger brother also has it, and I recently found out that one of my uncles and one of his daughters also have it. No medication has even come close to controlling it. I’ve been asked if I was an alcoholic, if I was diabetic, if I was going thru withdrawal from drugs or alcohol, if I was stressed out, if I had Parkinson’s...among many other things. I’ve had people make fun of it by mimicking my hands when I try to drink something. I have learned to ALWAYS use a straw with everything I drink and I also use weighted silverware and it helps too. But what I’ve found is that when someone notices it and asks me about it, the shaking gets dramatically worse. So far none of my kids have shown any tremors, but the oldest is 19 and the youngest is 14, so I guess only time will tell. I try live my life as normal as possible but it’s held me back from some of my dreams. I enrolled in cosmetology school and by the 2nd week I had to drop out bc the tremors were slowing me down and making it almost impossible for me to keep up.
Has is affected your intimate life in anyway ?
@Casey Zelaya I have ET. When I am perfectly comfortable, it is barely noticeable but it is there in my hands and head. When I am nervous, my whole body shakes. Head to toe. It has caused me great anxiety, to the point where I am always nervous in public and shake bad! I still work full time but I am always in so much distress at work that I don't know how long I can keep doing it. Just having my boss talk to me causes severe tremors head to toe. It is so humiliating.
I have coped with ET since I was about 10 yo. I found it profoundly damaging ,as you are perceived as 'weak' or nervous ,when you aren't. I have even been accused of being an alcoholic for shaking . I didn't actually find the name of the condition until I was 24 , and was simply told there was nothing that could be done for it. Mine is familial as my late mother and maternal uncle both had/ have it.
I have had a number of serious health conditions, including Lupus and Sjogrens syndrome and spondyloarthropathy; which between them make me regularly feel unwell. But it's (benign ) essential tremor that I hate the most for its social impact on me ,particularly as a young man. I too wanted to hug that lovely lady on the video who feels so useless, and assure her she is not.
I am 64yo now and no longer get embarrassed by it, as it has got worse in the last few years. My heart goes out to young people first coping with it in school or socially. I grew up with people sometimes serving tea in a China cup and saucer; and came to hate the social stigma of my rattling cup and saucer .
4:34 What she said here made me feel really sad for her.😢
When I was in high school I started with the ET symptoms. At first I thought it was just stress or that I was shy and because I was being bullied at that time and I was just anxious. A few years later even tho I didn't tell anyone the symptoms were getting worse and somedays I could barely hold a bottle. I decided to talk with my mother and we went to the neurologist. I was so nervous and afraid that something was wrong with me. Their diagnosis was ET maybe for a hereditary reason. I was only 17 years old. Now I'm 23 and I'm still figthing with medicines and treatments. I'm a bit lucky because my ET hasn't got that worse with the years (just a bit but it's okay) I'm still afraid on what's next and if one day I will wake up with more symptoms like my head is starting to shake sometimes or my mouth. I talked to my neurologist and we are still trying to look for a good treatment because it seems that most of them doesn't work for me. Sometimes it's embarrasing to do the usual tasks like going to buy the groceries or paying, going out for dinner or trying to do an exam. Some of my friends do know my "issue" but they just think that sometimes my hands shake a bit and nothing more, gladly they don't judge me. I have been searching support groups or associations in my country (Spain) but I can't find anything and is so frustrating I just want to share my thoughts with other patients and be able to support them too!
We are all in this together and someday I hope a cure can be found
+liliansinistra meds never really worked for me. you don't need them by the sounds of it. Xanax, magnesium,zinc might work. ET progresses v slowly with most people. just move on. not the worst disease in the world :-)
+ron craven I don't like to take meds anyway so it doesn't bother me at the moment, as I said I still can have a "normal" day to day routine and so on. Of course there are worse illness and issues but it's a disorder like the others but I get what you mean :)
+liliansinistra Thanks for reply Lilian. 2 buddies and I have it from an early age(me 6). I'm not a big fan of taking meds either. For every action, there is an equal and opposite reaction and all that. A few drinks and maybe a Xanax if needed though is grand. weddings,presentations etc etc. i'm 43 now and so are my two buddies. I have it the worst of the 3 of us but I can still function pretty good. ie work,sport, social etc etc etc. hasn't really affected my life too much. hasn't really affected my 2 buddies lives at all from what I can see. it doesn't progress fast with everyone. mostly v v v v v slowly. or else me and my buddies got v lucky. just be healthy and ignore the disease as best you can. my other friends think my ET is funny and I suppose I do at times too :-) ET does deserve more research though. no one ever seems to know anything about it for such a common disease
My situation is same i am suffering ET my child hood days now I am 28 years but not stop my disease i am use english medicine and homeyo medicine but no use
There is a new procedure as of 2016 Sunnybrook Hospital Toronto Canada, that uses ultrasonic mri to create a lession at the vim thalamus. This stops the tremor, over a thousand successful non evasive procedures. My daughter has it and has had it for years. She now has full clinical depression and our family is broken. Hoping our slow system will get her this treatment.
Sandy, Rick, Robert, Hannah, Anita and Karen thank you all for sharing your experiences with essential tremor. I'm 21 and right now I suffer mildly but sometimes it can get quite bad when I get extremely nervous and anxious. I hope one day we see a cure for this and I would like to send my appreciation to everyone that has ever helped raised awareness, contributed to research and any other related areas regarding essential tremor.
Hello Michael. It has been 7 years since your comment. Just curious, have you been able to find a significant other?
I just want give that lady a hug! I'm so sorry for what you have to deal with and that it brings you so much heartache.
Thank you for this. I'm a college student and I've had it since I was about 10. Some days, my tremor seems like the only thing people notice about me. I usually don't talk about it, but sometimes I can't escape the questions. It isn't as bad now, but occasionally it gets to me still. We gotta stick together, everyone!
Hello Jamey. It has been 4 years since your comment. Have you been able to find a significant other?
I'm struggling too. My head shakes constantly. Even picking my daughter up from school is hard. I just want my life back. It came on 3 years ago and I've completely lost who I once was.
Dids your head shake fast is it yes yes or no no or both and Side to side
Sorry for asking but, are there any signs that your daughter inherited this condition?
My head shakes so much it’s embarrassing
Thank you for making this video! I was diagnosed with this condition recently. We need to spread this message to more people so that they can understand us. I feel real bad for the old lady in this video hopefully she gets the help she needs.
have you heard anything about mrgfus?
Good to see this on CZcams I’ve had mine since 6 years old and suffered a lot throughout school. It effected my speech and hands now it moved to my head which is even more noticeable and makes me anxious
I'm 21 y/o and I start to shaking when I finished my diploma program. I began to lose self-esteem as the tremor effect my daily activities. Moreover, I feel very tired with no reason. But luckily, my tremors is not observable enough by the others. Only a few friends know about this thing and they keep supporting me... GOD BLESS THEM!
Did you find a partner?
Does anybody experience there mouth tremor when smiling? It happens to me all the time which leads to me having social anxiety because I'm scared people will notice it. I don't ever want to leave the house because it affects me so bad.
Yes, I have that problem as well. It is the reason I hate pictures. I think anxiety is just a part of ET. If you read other comments you notice a pattern of anxiety it pretty normal. I have a lot of social anxieties. I just keep trying. People will and do notice all my tremors. Train yourself to ignore the people who notice. If they say something to you, have a pre-planned answer ready. That makes it easier to move on. Good luck!
YES. when people talk to me i smile back and my mouth starts to twitch, and at that point i get really anxious and my smile turns into a half smile half disgusted look
sportsfan6554 I have that too... i can’t tell if it’s the tremor that causes social anxiety, or social anxiety that causes the tremor. When i first got it my thoughts didn’t change though. It was just the physical shakiness that came, which lead to social anxiety, so i’m unsure, but you’re not alone (:
Sometimes I feel like I can't form words... my ability to speak is affected and my mouth feels wrong.
Yh i thought i was the only one who has smiling tremor i have it in my whole body
This is the first video I've watched since I was diagnosed. It immediately made me feel not alone.
How you are doing now ?
I have so much sympathy for these people. I was diagnosed five years ago. I'm 68 now, and no worse than I was then. I'm probably a one on a scale of ten. It comes and goes and also seems to be affected by my blood sugar level. I generally can't do cursive anymore, and navigating a fork to my mouth is a challenge. But it's nothing like these poor folk.
I know Weedborn has the greatest CBD supplements around.
Thank you for sharing your stories. I'm a medical student about to do a rotation in neurology and am hoping to learn more about movement disorders and how to treat them.
Thank you for watching our video. Please feel free to share it with your friends and family, to help bring awareness to essential tremor. For more information please visit our website or give us a call (toll free) 888.387.3667. We are the International Essential Tremor Foundation, your voice for essential tremor!
Thank you for the video and sending love to everyone who have ET❤️🥺
I wonder whether I’m crying for them or for myself..
have you heard anything about mrgfus?
As an artist I can relate....ET makes it nearly impossible for me to paint landscapes and animals anymore....since I cannot control the tremors in my hands. It's very frustrating not to be able to do the main thing that accounts for my income. I have had to switch to painting abstracts and other contemporary art forms....so it's been like starting all over again.
That must be so frustrating. And I felt sorry for myself because I don't have a calling in life... but to have a calling and have such difficulty fulfilling it would be harder. I wanted to have a career where I could make a decent living so I went to school and was going to take radiology tech, but shaking stopped me and I had different random jobs... now I can only do in home caregiving... where I really just clean and make food for people because I can't feed or brush teeth or anything really caregiving because I shake too much, much of the time. It's random. Good days and bad. I hope by now you have mastered your abstract and other art forms and are doing well.
have you heard anything about mrgfus?
I also had to stop doing my job I did high-end auto restoration painting and pinstriping so I had to retire early so now that I am retired I love fishing but I can't do that I love going out to eat once a week and I can't do that very depressing very depression I sense have given my life to the Lord and I truly believe that's the only reason I'm here I mean I was that bad
I empathize, Larry. I know this is seven years late. I've had exactly the same frustration because I now find it hard to draw and paint and enjoy what I am doing because it is a constant struggle. I think what annoys me more than anything is that tremor is in the family, my grandmother and my uncle had it, it skipped my mother altogether - who couldn't care less about art one way or another - and landed on me instead. I spent years caring for her as she got older and not long before she passed, my tremor developed. I now have all the time I could want to draw and paint and I have this damn thing in the way. How have you coped over the years? I teeter upon depression and get bored silly and frustrated because these stupid hands don't cooperate. Drawing used to be a buzz and a meditative. The tremor doesn't manifest except when I try to write or do art. Any other activity and it doesn't notice at all.
Thank you for this wonderfull video. Very well done and engaging. I was recently diagnosed with ET and this video makes me feel good and informed. I'm from Malaysia. God bless the people who participated in the video. Very nice of you to share your thoughts and insights.
Everyone can join our E.T chat group. We can discuss and talk and share tips discord.gg/9KwXYjr
It breaks my heart iam sorry for all of u who have this essentail tremors
i feel so sad for the lady in the blue
It's SO good to know I'm not alone. Reading everyone's comments is refreshing. I was diagnosed a year ago and yes, it's totally annoying lol and embarrassing especially when you can't even put your PIN # at the checkout counter! This video really made me happy to know that there are others out there that go through the same thing, we all are awesome and strong and God bless us for that strength! 😊
@@user-kd8rg6dx6e after proper medication 6 years later improvement!
Thanks for the compliment and sage advice! :D
I Also have this problem I am 23 yrs old
I am 23 and I was diagnosed today :/ It’s very light, it can only be witnessed if I for example hold a phone in the air showing the screen to someone, or point a dot in a map using a pencil trying to stay still but what worries me the most is if it gets worse. For now it’s still acceptable but I’ve seen cases that sadden me.
I'm 18 and in the exact same boat. It's shit, as of right now it's bearable and I hope it stays that way but as soon as I notice it getting worse I'm going to see what I can do about it
I'm 24 and I feel the same way! Holding a phone and taking a pic for someone gives me so much anxiety now because they may see me shake. It sucks.
U there🙁
How are you doing now ?
@@nadiaparveen7710 I hope everyone is fine
Starting noticing my essential tremor at 17, if I held a pen in a certain way my hand would just uncontrollably start shaking. I’m 22 now and it’s gotten a lot lot worse. Because I’m literally fine it’ sucks when people say “omg you’re shaking!” “You’re shaking so much!” “Stop shaking” even my mum and dad even though they see me shake every day, they still point it out I’m like YES! I KNOW! I JUST SHAKE! Christ. Just because I can’t eat a bowl of soup properly or put sugar in my coffee or put mascara on ugh
While having dinner and someone asks u to pass smtg to them.... its the most tense moment ever. i feel u
Thank you so much! Thank you for sharing. :D
I'm 78 and started getting ETs about 5 years ago that i never had before until after going through some stressful circumstances.A trick i taught myself when eat something especially soup, i always use a spoon never a fork. I pick up the food from my plate or bowl with my spoon, Turn my wrist slowly inward as far as i can Then raise the food or soup to my month. This method when eating has helped me cope with my hand tremors. Also slow deep breathing opening both hands while touching all fingers together with one another, also helps some when i get a little nervous. Hope my suggestions can help anyone with this very bothersome neuroiogical health problem, and i stop taking meds except for one for my slight blood pressure, because all meds have many side affects, so I now believe that meditation is better than medication. Thanks for this ET video i'm learning more and still can write ok if i print or sign my name slowly. 11-16-23
The young lady at 4:26 broke my heart. I hope she got successful treatment. ❤️
Thank ya for watching the video! It means a lot to me.
how are u now?
Prayers to you all. I feel so sad for the old lady. She is so soft hearted and sweet. 😢
I also have essential tremor and sometimes it feels terrible, but guys, always remember we are fighters and nothing can stop us from being great.
💖🎉
My friend has this but it's not this severe. Ignorant kids at school will always be like "What, you can't hold a piece of paper properly?" and stuff when she shakes and it really makes me angry but she's so strong she just rolls her eyes and laughs it off at this point.
Being in the late stage of teenagehood I can affirm that adolescents are the meanest yet stupidest people on earth.
I have had essential tremor since I was a teenager so over 40 years. It gets progressively worse. I have good days and bad days. I only work 17 hours a week because it wears me out trying to function. I can only do home care for seniors because I shake too much for other work and now I can no longer do a lot of things... like I wouldn't be able to feed someone or brush their teeth... can barely do it for myself some days. It's random so that also affects being able to work. If I have a bad day I can't call up work and say, not today. So I am managing okay with my schedule now. It really messed my life up when I was younger because I worried so much about what people would think.... destroyed my self-esteem. I figured everyone would think I was an alcoholic or drug addict or something.... Now I am older and don't worry so much about what people think. I just put it out there and tell people what I have so I won't have to worry about what they think. To everyone who has this: God Bless You, and remember that everyone has their cross to bear... none of us get through life without some struggles. This just happens to be ours and we have to make the best of what we have... count our blessings and love ourselves and look for the beauty in the world. And sometimes just get mad and curse... heh heh. And keep your sense of humor.
thank you... in the same boat...did construction for years... cant hold a screw or nail straight anymore at 46... it hurt my social life too... but ive accepted for what it is . bless you too and ty again :)
have you heard anything about mrgfus?
Hello Carol. Sorry for asking but have you had any children? If so, have they inherited ET?
Excellent video! Very explanatory....
Breaks my heart. Wishing them the best💕
This really affects my voice alot, even though I'm not nervous it would still seem that way to others beacuse if my shaky voice, they would often tease me that I sound like I'm about to cry whenever I recite in class.
Don't let it bother you. I would rather have essential tremor than some deadly form of cancer.
Might I ask what country you live in?
@@luckyj.ferguson6308 philippines
@@luckyj.ferguson6308 the USA
The reason I asked is, for my self, I noticed if I speak with a British (English) accent I find it easier and lighter than with the typical North American accent. The reason being because they don't open up their throat all the way to make sounds. Keira Knightley explains this nicely on s dvd feature from "the straight Jacket", I can't remember if that's the title or not, it stars Adrian Brody. I'm not sure if that helps. I also think I learned or adapted to speak using my vocal folds (vestibular) instead of my vocal cords. According to my parents when I was first learning to speak my speech was fast and erratic. I'm thinking I adapted to slow down my talking. This doesn't shock me considering that I controlled my sloppy writing by more or less drawing my letters and resting my hand on the paper. No one at the time knew I had Tremors and my Father demanded neatness. You see my condition wasn't diagnosed until I was 19. I still can't believe I had to play the clarinet, which I guess wasn't too bad as long I was sitting down. Anyway getting back to the point, experiment with your voice a little and see if there are any accents that do help, sometimes distraction from yourself also helps with the Anxiety of performing for a crowd.
Either way, take care of yourself.
I have this ... I'm 53 and I've had it since my teens... thanks to you all so much for sharing ... you are all awesome.... even the small things make me crazy, like going to a bar and having to get my wife to carry the drinks from the bar to the table, so I don't spill too much .... peas and corn are the work of the devil! Be kind to yourselves ... peace :)
Hello. Sorry for asking but, have you had any children? If so, have your children inherited ET?
thank you
I have dealt with tremors since sometime in my teens, I'm 58 now. My right hand is severely limited, and I can no longer write with my left hand. I have always engaged in activities that require dexterity, mechanics, woodworking, electrical work, and etc., I understand the frustrations. My advice to anyone is, don't ever let this define your value as a person, because it is not your fault. It is just another challenge life has given you. Hold your head high, and when someone asks be truthful, there is no reason to be ashamed. You didn't chose to have this affliction, but you most certainly get to chose your attitude towards your life.
Hello Don. Thank you so much for sharing. Just out of curiosity, have you had any children, and if so, have they inherited it?
as a teen with essential tremor this is helpful because so many people point out my tremor and it really is embarrassing…. nice to know it’s not just me.
It's kinda strange and yet somewhat comforting to see all of these other types of people, with similar experiences like your own. Just another example of how we are all, truly the same, even though we have somewhat different exteriors.
My Utmost Respect and Admiration to Each and Every One of You.
Like many of the challenges that have faced humanity in the past, we will resolve this issue at some future time.
Cowboy trio the VA gave it to me. It is fantastic. It’s a bracelet ask your neurologist.
Sorry about that Cala trio
The first time essential tremors entered my life noticably was when i was about 4-5 years old, and my father asked me why my hands were shaking. To me, i had never really noticed before, but my answer was "I don't know. that's normal."
I will be 31 years old in little over a week from now, and there has not been a day in my life that this has not effected me. I'm a pencil artist, but I still don't know what it's like to draw a straight line, or a circle. I have had all kinds of visits, scans, medications, and none of that has gotten rid of it. During elementary school It didn't bother me that much. But Middleschool, and highschool, there were constantly days I was bothered by guesses as to what others thought of me. Clearly if i'm confronted about something, and i'm shaking, It's because i'm nervously hiding something.
There was a few years of my life not too long ago where even walking was difficult. My legs would tremble, and I seriously thought i'd tumble to the ground. The floor felt like it was rotating, and sleeping at night gave me nightmares because it felt like the bed underneath me was breathing.
I don't know how many pencils i've broken trying to write my name, or how many cups of water i've spilled trying to drink from them. Or how many times i've had to ask a stranger, friend, or someone else to write something for me, telling them quickly "I can't write."
But what I do know, is that i've found that stress and anxiety has a very major impact on all of this. When i'm at peace of mind, not worried about a thing, they almost do not exist. That's the best piece of advice that I can give when dealing with this either yourself, or with someone else you know. Do your best to help yourself or them feel relaxed and at ease, and not to worry. It's been important for myself, atleast.
Luminaire Zeal i have et 5 years i am stress right now and its got worse my head shaking. do you think it can be minumum if i manage the stress. sorry for english i hope you understand what i want to say. and hope you answer me
I think if you can soften your stress, then the tremors will soften also. My tremors are always there, but they are worse when i'm stressed. If i'm relaxed, it becomes much more manageable, and sometimes not even noticable. Similar to all things in life, I think stress makes it much worse.
Me too...
When everything is normal there is no shaking but when I get anxiety or stress my hands will shake...
Me too. I embrace my ET with a sense of humour and now we get along just fine. I apologise to people who know me when making a coffee "if I throw sugar at you - feel free to throw it back". It makes it so much easier to live with. PS. My family won't let me talk with a knife in my hand lol - libel to accidently throw it at someone by mistake.
Hello fellow professional shakers :)
Just out of curiosity, has any of you found a significant other given that you have this condition?
Thank you for the education
I was very happy to see other young people with ET!
God bless us all
Essential/familial tremor runs in my family. I've struggled with it quite a bit myself, especially as a music-lover and pianist. It gets much worse under stress or when I haven't eaten enough, but I've found some supplements like Magnesium do lessen the severity or make it less noticeable on the daily. I've seen the way my dad and my grandpa shake and can barely do anything that requires precision; I'm scared, and I hope a cure is found. Or at least some medical solutions. I've lived with the embarrassment and denial that anything was actually wrong with me so long that it's almost a relief to know it's not just in my head, nor does it define my abilities. But annoying it most certainly is. Glad to know I'm not alone.
Me too Amanda. My profession is in jeopardy. My social life destroyed.
Hello Amanda and James. I am new to this and grappling on how this will impact the decision I will make for my future since I am in my early twenties. Have any of you tried to find a significant other? What are your thoughts on the ethics of wanting to have kids some day but also having this condition?
Yes it does. Thank you for sharing and thank you so much for watching!
this video says it all...it's the best one out there!
My mom has had ET for years and it has gotten worse with age. So she told her doctor and she was prescribed Primadone it's an epilepsy medication, she takes 1/2 dose, she hasn't experienced any side effects, and she says it has been working great. I just wanted to share that.
How old is urmom
Is there any device to help
@@loispozsar2965 she now has a pacemaker
I'm 64 now and it has gotten worse. I can remember as a teen in high school having to get up to give an oral report or a speech and being nervous anyway but with ET it was 10 times worse. You could see the other kids laughing and pointing to the point where i couldn't do it. My handwriting was really bad and I was graded accordingly.
Anytime I have had to go to the doctor's office (or anywhere else) i cannot fill out the forms without my wife being there. If I go alone and ask them for help they think I am illiterate or retarded and don't understand what i am trying to tell them.
When they draw blood and see me shake they ask if i want to lay down so i won't pass out.
A chopped salad or peas, soup or picking up a drink is a real embarrassment unless you are with people who understand.
i have had people who think i have the DTs if I try to pick up a cocktail and have to use 2 hands to cancel the shaking.
It is good here to hear the testimonials of others who have similar issues and suggestions how to combat this problem.
Thank God for the computer and keyboard
Try coconut oil and bacopa. I have a friend with Parkinson’s. In one month she went from not able to think write drive cook wanted to die now she does everything she used to do as a normal everyday living ..needless to say she is elated
@@jackieellison4596 coconut oil?
Hello breckandy, have you had any children and if so, have they inherited the tremor?
@@A_Box 1 child who is 49 now and he has mild case in his head and his upper body sways a bit. I haven't seen it in his hands as much as I have it. I have the slight head nod as well. I think mine is more intention tremor. I come from a family of 10 and a quarter of them have it to some degree.
You can take propranolol (beta blocker) and stay away from coffee and alcohol.
@@breckandy I am just new to this and find it somewhat depressing. I thought I might be a good father some day but now I don't know whether having children would just be passing this onto someone innocent.
How does your family deal with the ethics of it?
To the dear woman who quietly said: "I feel so useless"... I long to wrap my arms around you in a comforting loving hug...Bless you & the others who are suffering
Thank you! That is great news to hear! :D Thank you for watching. :D
This just described my life completely. omg. Now I know. I can't put on makeup anymore, can't put backs on my earrings, can't write, Scares me to death
I was so blessed and lucky to be able to partake in further educating people about Essential Tremor. Yes, I am one of the people in the video. Can you spot which one? :)
hi hannah i guess your grown up now.
How are you managing now?
Hello Hannah. Is your tremor trauma related? I'm trying to better understand my own.
As a 16 year old, it's nice to know that there's others in the world that are similar to me. Most people make fun of me for it. People tend to stare or tell me that I should just "calm down". It's hard to explain that I just can't stop.
Do yoga (mosi hasanam) only way to control this shaking
I went through the gauntlet of medications and then i went to a neuroligist. They casually mentioned DBS. I went to see the surgeon, set the date and never looked back. I recommend this as it is a life changer. It has been 10 years and i thank the stars every day.
Hello. Just curious, have you had any children and if so, have they inherited the tremor?
@@A_Box one of my daughters has it. at least i can guide her as far as treatment goes.
@Дмитрий doing great. I had an mri done so the dbs had to be turned off. All i can say is such an evil disease. When the dbs was turned back on even the people working there could not believe the difference. Life changing. And i work in the electronics field.
Wild how late it affects some people. Half my family have it and it started for all of us in our teen years. The only times it really annoys me is when I’m painting or my hands are shaking during a presentation or something and people are like “oh don’t be nervous!” And I’m like dude I’m not trust me 😂
Fairly certain I have essential tremors but it seems nowhere near as bad as what I see in this video. Could it be something else? or are there levels of severity?
I was diagnosed a week ago. I've been going to doctors for years. It's a relief to know I'm not alone and finally have answers.
I have had it since I was 6 years old. My hands shake and it's so embarrassing when people gape at me when I try to eat something with my spoon. However I am not giving up hope as there's a new treatment known as Focused Ultrasound for ET. It's available in the UK but not rolled out on the NHS . At least something is there to treat it!!
This video is amazing. I have lived with ET all my life, i can relate with all of those peoples struggles.
I have had ET for about 20 years now but as I approach 57 it is becoming more difficult to function day to day. I have tremors in my hands, arms, voice, head and legs. Having it in the legs is rare but my legs tremble all the time. Sometimes it's so bad they seem like they are bouncing. I am even having a difficult time typing. I was a secretary for 30 years and this has definitely ended my career. If I get stressed out at all it magnifies 10 times and I feel like an out of control freak. My eyes twitch constantly as well. My entire body vibrates non stop until I lay down. I am finding it extremely hard to hold things now and I am tripping from time to time. Last night I broke down because I poured a glass of soda and then dumped it. I cleaned that mess up and poured a second glass and spilled that. I yelled for help because I just could handle it until I sat down and relaxed a few minutes first. It is very frustrating and embarrassing. I hope they can find a cure someday for this too. Take care all. We are not alone I guess.
Debbie, you are not alone. For most of my life I felt that something was terribly wrong with me! I did not understand the stress I was under caused a reaction. I loved dance and in college and beyond took and conducted classes in Ballroom, tap, jazz, etc. but always suffered from that terrible fear that this "shaking thing" would betray me. I am now in my 70;s and have trouble walking. . . .so depressed! Wish I had an answer for you. . . still searching. Lately I just stay at home and hate my life. . .I was always such a positive and active person and was always there to help others. P.s. my mother had this and after she passed I realize why she was the way she was~ She did not talk about her situation. I wish you the best in your journey and I'm sorry that I could not have been more helpful. This is (part)of my story.
Hi miss Debbie my head shakes too my is yes yes and no no what's your and is it fsst
It feels like someone just wrote down my story. This hurts
Hello Debbie, have you had any children and, if so, have they inherited the tremors?
@@A_Box so far they are tremor free.
I think I may be suffering from this. I've noticed that whenever I try to hold onto an object for more than a minute my hands will start to shake. At first, I attributed it to nervousness but it seems somewhat involuntary. I do have anxiety and gets stressed out easily so that's probably making it worse.
Very intresting video and great that so many people are talking openly about their essential tremor :)
thank you for IETF. We need more information.
Damn this really helped me I always thought it was from working out my arms too much or from drinking and smoking but after watching this it makes sense I’ve noticed symptoms since I was 19 now I’m 23 about to be 24 and it’s gotten to both my hands and arms and it’s mild most of the time except if I’m trying to grab something small or heavy or holding my phone for too long my thumb will start to spaz out and then my hand and them whole arm will start shaking like a salt shaker and I always wondered why so thank you to everyone on this comments and to the brave people in the video and the people who made this video
I have it with my left hand sometimes and my head a bit! It's weird because it's seems to happen when I'm in a really crouded situation even though I know I am not nervous...but has began to affect my self esteem ...it's also started triggering off nervous tremors in my lip....
I cried watching this, I haven’t seen many people with my problem. I break down sometimes because im not able to drink something properly. I know it isn’t common for a 17 year old either but I have been with it since birth. Everyone I meet I have to explain to them my entire story with shaking. I hope for something greater within my lifetime
@Дмитрий still same! Nothing has changed.
Great looks like I’ve got a lot to look forward to
I was recently diagnosed with Essential Tremors, but I've been struggling with it since I was 3 or 4 years old. I'm 24 now, and the tremors have definitely gotten worse over time. Sometimes I find it hard to even get out of bed in the morning. Let alone, get through the day. If anyone could donate to the website at the end of the video, please do. We need a cure. Please.
Brittany Mercedes have you tried anything to make it better
Hang in there Brittany. I have had this all my life and I'm 55. This is my way of coping. I use humour loads of it. My whole family do. Embrace it. It's who you are. I also explain it to people especially at work. I do get the odd dickhead who makes the joke about "needing a drink", but I just tell them to go look it up. I now work in menal health and my clients like that I have something I struggle with as well. Make tomorrow the day you make peace with it and make it part of your life. Because it is :) good luck.
I would say that it good to be not alone, because I have ET , but i feel sorry for people who has a it. It's not giving anything good in life ,you have to be strong when you have it. It's hard to eat, hard to drink, to hold something or pass something to another person, I think that no one around me understands me and sometimes i just forget that my hands are shaking ,but remember that when people keep asking me: "why are you shaking.." I'm trying to deal with it, but it not every time works out..And I chose not eating soup in front of friends or drinking something with two hands ,I just trying that my friends won't notice me that my hands are shaking..I removed coffee from my diet 'cause it makes everything worse and of course removed alcohol 'cause it looks that it helps when you are drunk, but after when you wake up in the morning it makes worse..I'm trying to get use to it and not think about this as illness until i have to write or people see my shaking hands. So people do everything that helps like remove coffee and alcohol from your diet and of course smile and try to be positive and when someone is saying about your hands, voice or head why they are shaking, make a joke of it, people will stop asking and you will feel more confident. And if someone knows how to reduce that shaking a little bit write a comment, I would be very grateful.
Sveikas, kaip smagu ir kartu liūdna sužinoti, jog aš ne vienas (aš turiu ET tai pat). Užmečiau akį į tavo kanalą ir sužinojau, jog esi trečio kurso fotografijos studentas. Aš vis dar 12 klasėje ir neapsisprendžiu ką studijuoti. Žinoma, šitam sprendimui turi daug įtakos ET. Noriu tavęs paklausti (beabejo atsakyk tik jeigu nori) ar ET netrukdo tavo pasirinktai profesijai? Būtų taip pat malonu, jeigu pasidalintum patarimais kaip tu "gyniesi" nuo aplinkinių. Lietuvoje žmonės šiuo klausimu yra tikrai nekorektiški, ypač mano amžiuje. Ačiū! ;)
Yeah. Thank you! Thanks for watching.
I‘m 28 years old and my hands had shaken since I was born,but it became severer when I had a traffic accident at 14 years old.I hate to have dinner outside and I am nervous other people noticing my shaking hands then it makes my hands shake more obvious...I support the IETF,and hope ET can be treated ASAP.