TO THE ENDS OF CALIFORNIA | MOVING FORWARD (with Rett Syndrome)
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- čas přidán 14. 03. 2021
- We hustled through California, but got to see some incredible things - from the Glass Beach to the drive through trees with some beautiful sunsets in between, saying goodbye to California was harder than we expected.
Buy the DVD of our award winning documentary, Magnolia's Hope, here: smile.amazon.com/dp/B08NDVJWMK/
Read our story from the beginning at www.magnoliashope.com
Donate at rettgive.org/campaigns/magnol...
Produced by Jenny and AJ Tesler
Directed/Edited by AJ Tesler
About Rett Syndrome:
A debilitating neurological/movement disorder that primarily affects females.
Leading genetic cause of severe impairment in girls - most cannot speak, walk or use their hands.
As prevalent as ALS, Cystic Fibrosis and Huntington's Disease.
Another baby girl born afflicted every 90 minutes.
Potentially REVERSIBLE! Research shows once genetics are normalized, symptoms subside.
Absolutely beautiful countryside. Idyllic Xxx
I don't know how you manage to compile and edit the video footage with so much going on, but each new installment comes out very nice. Enjoy your travels. We admire your positive handling of each new adventure.
Glass Beach is an awesome spot. I'm glad you all got to visit it. I was just up In Redwoods recently, it's truly beautiful up there, good luck with the next step of the journey!
Thank you so much for your videos, you are such a great family an a huge inspiration for me!
Looking forward on your next video.
Such fun adventures!!! Do you have a plan fir if the kids get sick? Or how to handle medical appts? Just curious. I want to RV with the family one day but that asleep to always worries me. Can’t wait for the next video!
does your daughter mouth on her hands?