SURPRISE WE MOVED INTO AN RV | MOVING FORWARD (with Rett Syndrome)
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- čas přidán 1. 03. 2021
- There is not another family less likely to become full time RVers than us, but with Los Angeles seeming like it wanted to be an epicenter for Covid, and a medically fragile daughter we had to protect, we made the call, packed up, sold our house and headed out on the road. Follow along to see what other questionable decisions we make.
Buy the DVD of our documentary here: smile.amazon.com/dp/B08NDVJWMK/
Read our story from the beginning at www.magnoliashope.com
Donate at rettgive.org/campaigns/magnol...
Produced by AJ and Jenny Tesler
Directed/Edited by AJ Tesler
About Rett Syndrome:
A debilitating neurological/movement disorder that primarily affects females.
Leading genetic cause of severe impairment in girls - most cannot speak, walk or use their hands.
As prevalent as ALS, Cystic Fibrosis and Huntington's Disease.
Another baby girl born afflicted every 90 minutes.
Potentially REVERSIBLE! Research shows once genetics are normalized, symptoms subside.
Love all the updates on the practical stuff and sorting out too. I have actually watched alot of RV videos .Most people have videoed when they already have the hang of RV life .So your channel has a completely different perspective in many ways. Bravo !!
So cool! Enjoy the adventure!
Please update your family and your girl, I wanna know how Maggie doing?Love your Chanel