Exactly how my therapist treated my Dystonia head spasms
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- čas přidán 26. 08. 2024
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This is the most effective thing I found in my dystonia treatment so far. As I have explained in previous videos, dystonia makes muscles move out of control. It continually spasms.
My physical therapist found the spasming muscle in my neck and pressed down on it. She held it down for about 10 minutes. Then she stretched my shoulder down while tilting my head in the opposite direction.
She explained that this "disengages" the muscle. Essentially, resetting it.
This video was a God-send for me a few years ago and I've never forgotten it. Sorry I'm just now taking the time to thank you for it. You have been a true blessing in my life and I thank God for you.
Thank you so much for your kind words
Thank you so much for sharing this. Like I've said before, I feel so much less alone with my tremor now. I'm 55 now and have been dealing with this for the last 25 or so years. It has gotten worse over the years with periods in between where I almost felt like it would just stop. But it always came back. Being lazy, stressed or nervous usually triggers it and it always takes a big effort with exercise and massages to make it better. It does take a good amount of discipline but it still works. Trying out the stretch band is next on my list. I know it won't just go away but I also know that it is manageable. For me at least until now without any meds. Sometimes I just think it's harder on my family than on me. But we are a bunch of happy people (most of the time) so I am thankful for that and I know we can just arrange around this and keep going.
Have a great week. I hope to see you soon.
Marion Piscitelli I'm so glad this is helping. I've found an amazing, and incredibly supportive community here on CZcams. I'm posting another video tonight about my PT appointment today, that is hopefully helpful.
Very helpful, thanks! My pt did some similar moves. I am trying to train the hubs ;)
Ruby G I think that's crucial, that someone helps you. If you try to do it yourself, your muscles aren't relaxed
Do you have a video showing the exercises you do to strengthen your neck muscles? This is super helpful, thank you.
I'm sorry I am so late in replying to this. I have created a Dystonia playlist which includes all of the physical therapy exercises I have done, as well as step-by-step how I did acupressure. Here is the full playlist: czcams.com/play/PLUyFkmdDIsozFMFaRXVmwqOUlDVlh7Rxh.html
@@LifeWithUsthe link doesn’t let me open it up 😢 can you send me the link
@@LifeWithUs
I have face dystonia the muscles in my jaw spasm
I have this issue and it drives me nuts especially at work or social gatherings
so would going to therapist or a botox dr help?
I want this stupid problem out of my life /cry
What happened
I just had botox shots last week no results yet dr said take over a week to see any change.
Thanks it 's really working❤
I'm trying 5 treatments of acupressure and Acupuncture £200.
Thankyou it works
Any suggestions how to sleep better. I can't sleep in my bed so I now sleep in a chair recliner with my head facing forward into a pillow.
John, this is going to sound crazy, but have you heard of the Boppy pillow? Its in the shape of the letter C. Its the pillow I use and it helps tremendously!
What muscle did she say was spasming? I have the same issue in that area but I'm trying to determine if its the occipitals or splenius capitus. I call that spot my speed control. the more you press the faster my head goes :)
Mine happened in 2019 close to when covid started. And im guessing when i was doing my woodburning designs i had my neck down when i write. And then after at lunch gathering my neck just slumps down and twitches alot. So in 22 i went to chiropractor didnt do much good. So i figured its my neck bones may be out of alignment idk. But now in 23 its kinda going away but not really. Im gonna try this and see if it works though.
Can you re upload this video as it is not loading at all. I tried on my partners phone as well. Thank ui xxoo
Hey i dont know if you would reply of how long this video was first posted, well so i started having these neck spasms in june 2023 but when im driving or sitting and try to keep my head straight i would get a random twitch and my head would turn, hated it when i was in front of people it was embarrassing but can my dystonia head spasms go away if i go see a physical therapist
Hey June, Thank you so much for your message. I definitely suggest seeing a physical therapist to get a diagnosis. It sounds like Dystonia, but there are several different things it could be.
How long does the spasms stop for when you do this ?
I did this treatment once a week for about 6 months. The tremors were gone for roughly 1 year. When they returned I did the treatment again. I have gone about 2 years without the strong tremors. They do start to come back, but as soon as they start I do the acupressure again.
@@LifeWithUs ok thanks for replying
Also, I will mention, I felt I needed more exercises besides the ones the PT provided. I am on day 2 of these -- czcams.com/video/XtzdpsIvaT0/video.html -- and they seem to be helping (in addition to all the other crazy things I am doing 😝)
Hi, my wife just developed the cervical dystonia and I've tried the pressure point on her and it seem to work temporarily. How often did you do the pressure point or how often did the PT recommended it?
Would this help also if one has dystonia that pulls to one side ? It’s the side you’re showing btw the left side but would this exercise help
I have head shacking problem please help me how can I treat
I am so sorry this is happening to you. What helped me the most was acupressure. I suggest seeing a physical therapist to help with acupressure.
Do you do this regularly by yourself or just your therapist did it once and your twitching went? Please reply because amid this COVID-19 it's difficult to see a doctor.
Thank you so much for your question 😊 I am unable to do this by myself. I can't reach my hands to my neck without the muscles moving around- then I am unable to target the shaking muscle. I have my husband do it now that I can't get to a doctor
Thank you but doo you do it daily or on some interval of time?
@@pragyakumari9141she said once per week in someone’s comment. And she got better in about a year
My name is zamon and my throat neck keeps twitching spasm what should I
I am having this issue alongwith nystagmus and internal tremors 😢
You feel you can't move your neck or it's me?
@@somaligamerfreefire i can move my neck but suddenly it feels like shivering attack and its involuntary with continuous rhythem
@@alifarmancreation9136 true😭💯
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I tell my wife to do this too me
Tell ticci toby that :p
Bro i learned how to do it myself 😂😂
Bro her head is squishy
4 years later probably her neck is worse then ever from stretching the ligaments..
Why would you say that