Tips to Combat Type 1 Diabetes Burnout | She's Diabetic
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- čas přidán 3. 08. 2019
- This week I'm talking all about how to deal with and combat a period of Burnout with Type 1 Diabetes ◉ Subscribe: goo.gl/ZfjYfu
2:17 Reach Out and Talk to Someone
3:54 Sleep
4:56 Exercise
6:42 Do Something You LOVE
7:55 Mindfulness & Meditation, 4-8-12 breathing
9:31 Gratitude
11:51 Take Stock of What's Going on in Your Life
YOU ARE NOT ALONE, Please Never Suffer in Silence
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I’ve been in burnout for about four years, partly because I’m a teenager and just wanted to feel normal but now that my sight is decreasing I’m determined to get back on track before anything worse happens. Thanks so much for this bideo
Oh I hear you. When I was in those teenage years? It. was. HARD. So hard. Please please know that (I think at least) this is VERY NORMAL. You have so much going on and diabetes is more than any of us should have to deal with- but especially at your age and state in life. I had a really rough time throughout my teenage years, but on the other side of those years I've really been able to change my ways and feel more upbeat and positive and control my sugars sooooo much better. Please please know, you are not alone, and your attitude of wanting to get on track is AMAZING! And not easy!!! You can do this, please believe in yourself, because I believe in you and know that it's possible! Thinking of you my friend!
After more than 40 years of dealing with the highs and lows of insulin dependent diabetes, I can admit that I have experienced low points or "burnouts" and sometimes feel like giving up. But, after crying a little, the frustration passes and I continue the fight (challenge). Thanks for being honest! Your transparency is inspirational.
Thank you so much for being vulnerable and sharing this Tony. I COMPLETELY feel where you're coming from - COMPLETELY. Well done to you for being strong and continuing to fight. You are awesome!!!
We all dealing take easy and make sure you have enough protien😍😍😍
I realize it's kinda off topic but does anyone know of a good place to stream new movies online ?
@Eugene Brian i watch on Flixzone. Just google for it =)
@Sarah Just seen your request. Sure, shoot me an email. Got some good ideas on how to stay alive. arusso602@comcast.net
Another tip is to just watch the videos on your channel :-)
That’s an extremely nice thing to say - thank you so so much!!
Having type 1 for 24 years (I’m 27) I can totally relate. Fantastic channel and really helps when feeling low about diabetes.
Thank you so so much!! Your words mean a lot to me!!! ♥️
This is so relieving to hear, I’ve been struggling with burnout give or take the last 5 years, I’m 18 now and going into college but diabetes has just added so much stress to my already complicated life. It’s so hard because I know how to control my sugars but I just have some mental block that’s telling me to give up. I think as well as covid causing so much chaos and lack of routine it’s especially hard for diabetes management. Also burn out is so hard to go get out of because when I have high sugars I’m in such a bad mood and I get so depressed that I can’t see the end of it. This video helped me realise I’m not alone
I HEAR YOU. Every singe aspect of what you've written above I hear and can relate to. ESPECIALLY in these covid times...please please please know you are not alone. I've personally found that with burnout sometimes it's just doing the most simple, smallest thing. Like sometimes - I kid you not, just putting cream on my dry legs is a step towards getting out of it. It's s small action of self care (especially because my shins can get really dry from my diabetes) and it just somehow makes me feel like I'm on a different path and helps me slowly turn the ship around. But sometimes it's a SLOW turn!! That's for sure!! I sincerely hope you're able to feel a little less burnt out, slowly but surely, and if not, please know that you are not alone and it will not last forever. You are strong my friend. Please know this. I'm thinking of you sweet Anna!! 💙💙💙
I'm coming out of a burnout phase and your comment about thinking about the other organs that do work well really speaks to me. I worked for years to make my T1D body healthy for pregnancy and now have a 2.5 year old. When my daughter was born my own self care and mental health became a struggle and I just felt like I needed a break. Finding the motivation to get my health back on track (with a pandemic in the mix) has been tough! Thinking about all my body has given me (my beautiful daughter) and provides for me every day (perfect vision for one) is truly incredible. This is something to remember, thank you!
im going threw my second burn out right now and im trying to get back into the swing of things.
I'm so sorry to hear this. You will get through this. I hope maybe you even are through the worst of it at this point. Please just know you are not alone and I completely feel for you my friend and am sending you healing wishes and relief from this overwhelm 💙🙏🏻
i just feel kinda helpless i’ve been in burnout for years and ended up being hospitalized twice idk why i just cant learn my lesson but your videos make me feel hopeful for myseld
This is absolutely excellent! I’ve been T1D for 28 YEARS!! I can’t believe it. And this is the very first time I’ve heard any reference to diabetic burnout. I am fortunate to have a fantastic doctor, but diabetic burnout is a concept I wish was discussed and addressed more directly and more often. I have gone through so many periods of burnout, but the fear of complications has kept me on track when nothing else would. When I was diagnosed, medical professionals told me there would be things I couldn’t/shouldn’t do, and I figured they knew what they were talking about. HOWEVER, I see so many leaving comments who are new to T1D and I just have to say very honestly and openly that ... T1D is only as bad as you - that’s right, YOU - make it. I’ve done my best to eat well, exercise and pay attention to my sugar trends. It has not been easy, but I’m so many years in and I’ve no complications. I’ve backpacked, traveled extensively, run half marathons and 5Ks, and I’ve purchased a camper van and have begun taking trips to parts I’ve previously not seen. I’ve used an insulin pump for 25years and it has allowed me the flexibility to manage my diabetes around my life, instead of my life around my diabetes. I will soon begin using the Dexcom6 cgms and, soon after, the T:slim pump. As proud as I am about my status and success in managing things, I have really had some lows. DO NOT GIVE UP!! There is definitely life after T1D diagnosis. Be brave, laugh often and, when someone says you can’t/shouldn’t, respond with “Just watch me!” Cheers!
WOW! What a FANTASTIC comment and life you are living!!! This is just music to my ears and so SO inspiring!!! I never had a doctor introduce me to the concept of burnout - it was something I heard more friend to friend, or on the streets as they say. I too wish doctors would be more open about this and not let us just wonder on our own. Well done to you for doing everything you've ever wanted to and to not letting diabetes hold you back! BRAVO! Thank you for sharing your story! You are AWESOME!!!
Thank you for sharing this with us ! I think no matter how positive someone is living with chronic illness and having to manage it inevitably will come across burnout at some point ... mental health is super important
Agreed, Agreed, Agreed!!
Just found your channel , this is amazing , it's great to hear advice and real life tips from someone going through the same , thank you
I think your advice about being grateful is really good. I don't think i frame it as positively as you but i do find it grounding to understand that there are lots of worse disorders i could have or even just diabetes a couple decades ago.
Please know - I'm not always perfect (goodness me - FAR FROM IT!!) when it comes to framing things positively!! I actually have to do a gratitude journal every single day to keep this muscle going in a positive one rather than a negative one - but I do find it helpful when I'm able to flip into that mindset for sure! Just know - you're not alone at all when it comes to finding it tricky - I'm RIGHT THERE WITH YOU!!
@@ShesDiabetic Nevertheless, your positivity is infectious. Glad I found your channel 🙂
I always enjoy your videos so much Andrea!! I really hope that we can meet one day :) . I feel like as T1s we all experience some level of burnout at some point. For me, it is when I feel overwhelmed by life (for example when I was wedding planning haha). These are all fantastic tips for T1D burnout!
Ah! Thank you so so much Michelle! You have no idea how much your kind words mean to me! I too really hope we can meet one day - that would be just awesome! I'm right there with you with the burnout as a result of chaotic life happenings combo - TOTALLY AND UTTERLY SAME FOR ME! Whenever I've started a new job or have moved house/country, burnout is sure to rear its' little head! Hope post wedding planning the burnout has calmed down for you!
I swear I've been in burnout mode for the last few years. I'm trying today tho and your channel really helps me to educate myself whilst relating to the majority of what you say. I appreciate you and I'm so glad I've found your channel
-Tahirah, 24, T1D 20 years ❤
Oh my gosh you are so so welcome! Thank you for your kind words and good for you for working your way through burnout and out of it - it's tough but you're strong and you've got this, promise you!!! ❤️
Dear Andrea,
Thank you so much for your videos! I cannot tell you how much they have helped me! I’m just about to turn 26 and discovered my T1D two months ago. I’m completely new to it, nor do I know anyone with T1D. It’s been a lot to take in and extremely helpful to watch your videos and not feel alone with it. Your positive outlook is so helpful. I’ve been learning so much from you and would love to meet you someday. Hope you are doing well despite the pandemic. Your friend and T1D sister from Vancouver, Canada! With best wishes, Eva
Thank you, Andrea. This is a very honest, very helpful and motivational vlog. You're helping people!
Thank you so much for watching and for your kind words Justin!
I’m really thankful to have found you on CZcams, I’ve been struggling with my type 1 diabetes and I’m excited to get back on track
I'm so thankful you found me too! I totally know the feeling of being off and struggling and just really want you to know that it's not easy to even find the desire to turn that ship around when it's headed in that direction so GOOD FOR YOU!!! You're on the path to more health and I'm really proud of your friend!! You've got this and we're all here to support you!! 💙💙💙
Thank you for sharing your story 💙
Thank you for watching! 🙏🏻
I couldn't agree more! Especially talking with others. It can be hard to carry the burden on your own (as with any emotion). Social media is a huge way to connect with fellow Type 1s, which is just wonderful how our technology can connect us to people who truly understand what we are going through!
Yay! I'm so glad you agree!! Thank you for watching! :-)
Hi Andrea, thanks for all your videos, I've learnt alot from them. I hope you are doing well.
Thank you for your kind words, Daniel! And thank you for watching!! I am doing well, and I hope the same for you!
Thank you so much for this grounding and helpful video :)
Thank you so much Izzy! I have to say - that word grounding really means a lot to me, and when I read that it made me feel so warm. I just wanted to say that, because it really struck a chord with me, and for that I am so grateful for your words! :)
Thank you for another fab video! Xx
Thank you Courtney! XXX
Hi Andrea 👋🏼 I’m so happy I found your channel. I just started using the freestyle libre and of course went straight to CZcams to see how it works. Your video was the first to show up. After watching the first one, I continued to watch most if not all your videos. This is a real long way to say that your energy and most notable, your positive spirit, is really energizing and exactly what I needed as I have recently been diagnosed as a T1. I look forward to seeing more from your channel. Just hearing you talk about it with such confidence has really been a big help for me. Thank you.
Oh my goodness, what a meaningful and generous comment, thank you so so so much. I really can't tell you how much your words mean to me and inspire me too. I'm so sorry to hear of your recent diagnosis and I really hope all is well with you and that you're managing as best as possible in what I'm sure is a really challenging time. And also - I want to say - well done to you for reaching out and finding the online diabetic community!! It seriously has virtually saved my life and sanity more than once and I really think it's a awesome resource to have especially as a newly diagnosed t1d. Thank you again and sending you so much positivity and light! You've got this!!
It's good to see you again...thank you for the video. They always make having diabetes a little bit better. So...hoping for more in the future and it would be great if you could enlist your brother for that interview. Cheers!
Thank you so much!! It’s great to be back!! 😍. I will work on getting that interview at Christmas when I see him!!! He’s a much requested interview and I will deliver - promise!! Thank you for reminding me!
Hi Andrea. Thank you so much for sharing. I had the same issue about 3 years ago, I was at my end and could see how to move forward in my life. I got referred like you and dealt with my background issues. Feel so much better in my self and in my body now.
Great inspiration
Looking forward to your next video
Thank you so much for your kind words, Andrew. I’m so sorry you had to deal burnout too. Well done to you for going and getting help - takes a lot of strength to do that - and I’m so glad to hear you feel so much better now!!! 👏🏻
I can really relate to this iv'e been T1D for 16 years and for around the last 13/14 years i have been neglecting it badly.
I would only check my bg like 3 times a year if that. after just being discharged from hospital for DKA (bg level of 42.2mmol) the flu and pneumonia i realised i need to speak to someone iv'e not cared if i live or die for to long.
I saw some things in hospital that really made me open my eyes i'm now checking my bg 10/11 times a day (i want my nurse to get a full profile). but the readings are annoying they range from 2.9mmol up to 22.4mmol.
So thank you for the really nice video
Chris I'm so sorry to hear of your recent hospitalisation - that must have been NO FUN AT ALL (to put it lightly, I'm sure). I'm so sorry to hear you went through that - but perhaps it was a blessing in disguise as it sounds like you're killing it now! Don't worry about the fluctuations, they will close in, I'm sure, and you'll get to know this beast better and better and be able to deal with it more and more effectively. Plus - I have swings like that too! It's just the reality of being T1D sometimes! You should really be so so proud of yourself. For taking these steps. This is such a complex condition and it's so understandable that you felt alone - it happens to all of us I think at least at one point, sometimes several times. You have to know though, you are not alone, and I'm sure you have a LOT of people in your life who care tremendously about you. And what's more - it sounds like you're now wanting the best for yourself - which is so SO inspiring. You are strong, you can do this, you are not alone, and your message has inspired me. Thank you for being so candid in sharing. Keep up the amazing work!!!
Thank you Andrea. That was brilliant. As a new type 1 diabetic, all the changes and things I need to learn can be scary and overwhelming. The tips you gave will be so helpful for me too to help me get through it all and thrive as I'm getting used to a new phase in my life.
Thank you Christine, and so great to hear from you! I know it can all be so overwhelming. So glad this could help you! ♥️
I'm having one rn and I've been watching you for a while so you know I jumped straight to this video and I hope it helps because its getting really bad love you💕
I'm so sorry you're in a burnout stage...I went through another one a few months ago and it was BRUTAL. But I always seem to find a way out...one way or another. But oh, I'm just so sorry you're in it at the moment. It will pass. Please know you are not alone, and I'm so so glad if this video can help in some small way! 💙
Thank you for that amazing video and wise words. Exactly what I needed to hear. Excellent advice I am going to try your suggestions I needed some. I have felt burnt out since I lost a very close family member and today just felt burnt to a crisp. Your words gave me hope. Thank you.
Oh my goodness, I'm so so sorry for your loss. I can only imagine what you must be going through. Diabetes is tough enough as it is and then add the stress of grief and loss, wow. My thoughts are with you. I'm so glad this video could help you, in just some small way. Sending you strength and relief from and through this difficulty ♥️
Great video's! Keep them coming. My son of 14 has had T1 since the age of 8. So much is relatable! Love your vids and your spirit!
Thank you so so much Maarten! I'm so sorry about your son's diagnosis. Being the parents of a Type 1 Diabetic is a whole challenge in and of itself - so well done to you too! Thank you for your kind words and for watching - I really appreciate it!
@@ShesDiabetic He's coping really well, but as a parent, you fear the future. Seeing you live your life, makes that a lot easier, as did the video with you father, 60years diabetic. thank you for that!
Thankyou Andrea for being willing to share a difficult subject. Burnout is horrible, and I have found it hits when having a particularly unstable time with sugar levels. Then just want to forget about diabetes. So good we are not alone, and can have support in forums like this. Strange I use to work with and have lunch with two other type 1 colleges .
But now retired I have no contact with them , Just plenty of type 2 people.
Thank you so much for your kind words, and for watching, Rex! I'm right there with you - my periods of burnout absolutely tend to coincide with periods of chaotic numbers. I'm glad to hear your have people around you that can relate and that you find forums like this helpful too - so important!
Thanks for posting I have burnout often it’s horrible
I'm so sorry to hear this. Burnout is so so hard to deal with and know how to tackle. Please know that you are not alone. Sending you strength my fellow diabuddy ❤️
Thank you for this video! I love your comments at 10:46. I also try to remind myself to be thankful for all of the ways in which I am healthy, instead of focusing on the one way in which I am not.
Holy moly, I feel so seen right now. Thank you!
You are so welcome. Man, oh man, burnout is SO REAL and SO THE WORST!!!!! You've got this my friend. You are so so so not alone 💙
I really enjoyed your video with your parents. I don't know anyone besides myself with type 1. So to see your family talking about what it's like was very interesting.
Thank you! That’s why I wanted to share the video- because I know a lot of people don’t have that experience! I’m so happy to hear you found it interesting! Remember - you are not alone!
Thank you for making this video :) Although I know these things work, because I did them before, I sometimes forget to do them or I don’t want to give them a try because I just want to be sad for a day. Videos like this make me take action sooner and feel less alone. I have diabetes type 1 for 18 years now :) and I have experienced this burned out feeling 3 or 4 times already.... most of the time it has do with other stresses in life like graduating or family issues.
Thank you so so much for your kind words Nicole! I totally know what you mean in terms of knowing they’re good for you but also just feeling sad for a day. I get that too! I’m so glad this video makes you feel less alone and gives you a desire to take action - making them actually does the same for me. Thank you so much for watching ♥️
another great video Andrea, keep up the brilliant work x
Thank you so much Gaz! Great to hear from you and hope you’re very well!!! X
@@ShesDiabetic I'm doing great thank you Andrea, I have been closed looping for around 3 month or so now (maybe even 4 month) and it is going amazing. Hope all is good with you too x
That's awesome! I'm so glad to hear it's going so well for you!!!
Welcome back!
Thank you! Great to be back!!
Thank you for this video. The effect that everything has on sugars is incredible and sometimes overwhelming. Only yesterday I had a moment where I said “oh my god I can’t be bothered”. But a quick breather and a correction dose and crack on. We are the ones in charge
AMEN Saxon! Great point about us being the ones in charge - sometimes that’s the overwhelming aspect, but other times that’s actually empowering. Glad to hear you’re feeling a bit better and well done to you for cracking on!
I just want to say thank you your video just popped up and until you saying it I didn’t realise that I’m in diabetic burn out I didn’t know what was wrong with me but it’s clicked positive changes ahead thank you
Ah, I'm so sorry to hear that you're in a period of burnout! I'm so glad to hear that you found the video helpful! Thank you so much for watching and know that I'm wishing you success with breaking out of your burnout XOX
Hi Andrea.. Thank you for sharing this wonderful video.. Even though, i'm having T2D, I can relate myself to your story.. I hate that feeling.. and , i should focus what i love to do and happiness!!
Thank you for your kind words Jensen! And I'm so glad that you found this helpful!! It doesn't matter if you're type 1 or 2 we can all relate to a lot of the same stuff I think!! I hope all is well with you and that you're focusing more on what you love and what brings you happiness this day and everyday! :)
I have just had lazer I surgery glad it’s over this CZcams channel is amazing she 100% gets it xxx
Oh I hope your surgery went well Matthew! I hope your healing is swift and painless too! Thank you so much for your kind words and for watching! XXX
She's Diabetic I feel so alone with my T1D I have Adhd
How can we chat with out the world reading it ? X
If you are not a therapist you should be where were you 43 yrs ago when I became a diabetic you are a great motivator.
Oh thank you so so much!! That means a lot to me. I am certainly not a therapist, but I just feel very strongly about the struggles with a Type 1's go through. Thank you for your kind words!
Your a special spirit x
Thank you - That's such a kind thing to say! Thank you for watching! X
I really needed this, so, thank you! Completely off topic, your skin is beautiful! I've noticed when my blood sugar spikes, I will break out with some bumps. Have you ever experienced this? Would you mind doing a video on your skin care/makeup routine? :)
Thank you so much Christiana! I totally know what you mean about bumps and high blood sugar - I only finally got mine sorted after spending a bit of money and going to see a dermatologist 😬 - but for sure I can make a video about my skincare routine! It’s very specific and it works for me, so maybe it could help others! Thanks for the suggestion, and for watching! ♥️
Good advice, not just for diabetics 👍
Thank you Andrea!!! ♥️
great video having just had my diabetic anniversary it has been 23 years now. yes I have suffered burn out a few times
Just turned 18 was diagnosed at 6 and I’m experiencing diabetes burnout and these tips are very useful 💗
I'm so sorry to hear you're going through a period of burnout at the moment, Jay. Truly - I understand what it's like and thought it's different for all of us, please know that so many of us are right there with you and your feelings of overwhelm and burnout are completely legitimate and normal. Please be kind to yourself and know that you are not alone, ever 💙
Fab Video Andrea As Im Type 1
Thank you, Mike! :-)
You are wonderfully amazing ♥️🙏🏻
Thank you so so much! ❤️😘
I was feeling a little bit of burn out until I got the Freestyle Libre 14-day it's changed my life. I got my A1C below a six feeling really good about that.
Me too!
That’s awesome Richard! I’m so happy for you!!! 👏🏻
I know this video is a bit older, but it came up in my recs so I clicked on it and remembered when I was in college pre-pump and my shot spots were super tough...I was so busy and stressed at that time that I started skipping boluses and just ate a salad for a meal (low carbs) which is not sustainable. I’m glad I switched to a pump. Also, when you talked about meditation, a banner from my meditation app popped up-today is national meditation day 😂🤗
I don’t think there is enough support at times for people’s mental health, in fact my hospital never mention it all and the only time they mentioned my mental health was when I was in the hospital for a regular checkup and I was really down, definitely depressed and struggling to cope. It’s also easy to feel isolated (even more so with Covid), I don’t know a single other person with T1 diabetes and have no one to talk to about it, how it makes you feel or is this right? Do you feel like that? Is this normal!? Thanks for all your tips, they are really helpful, all I can say is that in my experience talking to someone about it REALLY helps, otherwise you just dwell on things and make it worse for yourself and ultimately it’s about kicking yourself in the backside and doing things even when you don’t feel like you want to. Thanks for your channel and the support you give people, take care!
Issues with the devices and treatments that we have to use daily are also a contributing factor to eventually developing burnout I think. For example, the anxiety when a sensor fails at 2AM, you put on another one, it's a bleeder, and the receiver keeps reporting errors all the time. And all you really want to do is sleep. Or when a sensor fails after you bolused a big amount, and you were seeing a worrying downward trend. Or when you can't be sure whether your insulin is still good or not, your pump site is OK or not etc.
Concerns like these happening on a daily basis can easily induce OCD-like behavior, and can make it more difficult long-term to be able to truly relax, which is one sure way to eventually burn out.
I seriously thank you so much for writing what you have - not only do I completely agree with you 1000%, but also you put it so perfectly and eloquently. THANK YOU. I actually thing this is a huge component in bringing burnout on and having it sustained through the developed OCD behaviour (like you said - SO TRUE). Thank you for articulating this and adding it into the conversation, so valuable!
@@ShesDiabetic You're welcome :) I also want to add this: I've observed that in many many T1s, some form of BG related anxiety develops. In some, it is anxiety about _high_ blood sugars, in others, it's about _low_ blood sugars.
Which one of the two appears seems to depend a whole lot on what you get told right at time of diagnosis and shortly afterwards. That's the "incubation period" for such anxiety.
Me, I developed anxiety about high BG. Result is that while my BG control is amazing, I stress a lot about even mildly elevated BG, like 130 mg/dL postprandial, which, on a rational level, is just crazy. It has gotten better, but sometimes it still returns, and it significantly diminishes quality of life & increases likelihood of burnout.
But I also know of others who are deathly afraid of bolusing at a BG below 140 or so. I think this is one reason for high HbA1cs that gets ignored too often.
@@ShesDiabetic I'm suffering from T1D since one year and on insulin pump since 5 months and using glucometer finger pricking. So actually I'm suffering from two chronic conditions: Type 1 diabetes and Epilepsy(idiopathic epilepsy). I have Epilepsy since Nov.2019. I got three episodes of seizures, so my Neurologist has said that if I got another seizure there will be some permanent damage to the brain which might result in adverse results like death.
For that reasons,
My Neurologist and Endocrinologist told me that I need to control my glucose levels because glucose levels less than 70 mg/dL hypoglycemia or more than 180 mg/dL hyperglycemia can take me into trouble of increasing the chances that I can get a seizure. In worst hypoglycemia below 50 mg/dL the risk is highest and in worst hyperglycemia vice versa.
I'm under stress every time I check my BG, because I need to stay in range or else I have to worry if I have not checked time to time. I think of t1d for almost every 5-10 mins... Like I'm not able to stop the stress of losing myself.
Sometimes I go under depression and mood changes to agression due to hyperglycemia. Though I have good control over my BG but this constant look of thinking over BG is just killing my mental health. Please advice !!
Thank you for this very appropriate Vlog. I have been diabetic since about 1989 and because of cancer my body has become very resistant so managing my diabetes has gotten more tiresome then ever. Cancer causes inflammation in my body and inflammation causes resistance. It also exacerbates my asthma and arthritis and several other things As well. I am just tired of going to see doctors and physical therapist I am thankful for modern medicine, after all I am alive. And I am better able to manage everything because of all of these wonderful tools, but they all take time. I went to a workshop the other day about a medical product and I explained to the person that I would speak slow because coming up with the right word because of my cancer medication is difficult. My wife was with me at the time. The representative took her eyes off of me and immediately spoke to my wife the rest of the conversation. It was like I was not even there. Being ill is difficult enough, you tend to be invisible, but when the very person who is pitching a product to help you medically sees you not. Then you are twice as invisible.Your video was very timely for me, thank you for your honesty. Thank you for all of these videos, you have a gift keep using it.
Oh Tom, firstly I’m so sorry to hear of all the battles you are flighting. Gosh you must be absolutely amazing in strength of mind and spirit to fight to fervently, you are clearly awesome!!! And you write so eloquently here - and are HEARD! So thank you for commenting and sharing your experience with me and all of us here in this community. I’m so sorry to hear of your experience with the doctor. That is absolutely HORRENDOUS. That doctor should be absolutely ashamed of his behavior. That is completely unacceptable. I’m just so sorry you had to go through that. How awful. Please know you are not alone and not visible. I, for one, can tell you I really appreciate your words - more than that - I’m completely touched by them! Please keep fighting and know that you are not invisible - it’s the people that treat you this way that are totally wrong, not you. Sending you strength and encouragement, and thank you so much for your kind words. ♥️
Your videos are so useful but I'm 14 years old I'm suffering since 3 years l didn't control my sugar levels I saw your excersise videos then my sugar levels are pretty good so thanks a lot
Oh I’m so glad that video helped you!! You are so very welcome!! Thank you for watching and telling me this! It sounds like you’re doing an awesome job and should be so very proud of yourself!!!
@@ShesDiabetic thanks a lot for the information 🥰
Really needed this! Has anyone told you that you look like Kate Middleton
I’m so glad! No, they haven’t- but what a lovely compliment- thank you!
I've had diabetes my entire life, I'm 26 now and I've had burnouts many many times in my life
I don't like to tell anyone about them so usually I solder_on with them in silence, so here comes my way of dealing with burnouts:
* I love arts and crafts so I always go back to them, the feeling of creating something makes me happy ( I do NOT at any cost learn a new craft, the learning stages well cause more frustration)
* I go back to books I'v read and loved, without putting my self through that gilt cycle " I have soooo many books that I didn't read yet"
* I like to really clean or re-organize something in my room, that feeling of working on something neglected is truly rewarding to me
* Sketching or writing without any clear direction can help me vent out some toxic feelings or passing thoughts, when I start this one I really have no clue that I well end up writing what I wrote or sketching what I sketched and it's a self discovery trip that I believe we all should do
I absolutely LOVE all of these ideas Manal! They are such excellent coping strategies and I will definitely be borrowing some (ALL) of these for myself. Seriously thank you!! And well done for being T1D all your life - you’re an awesome warrior clearly! Thank you so much for sharing!
Great video dear! 9 years, type 1, (ex) wedding photographer here :) Please excuse me for this probably unwanted quick tip about your camera but autofocus on your lens is a bit noisy... just put it on manual focus and then focus on a certain distance (where you're going to be).
Thank you Pat! And thank you for your tip, I really appreciate it! I have the Canon G6 ii and it's notorious for being noisy and terrible with it's focus, but I've still found it to be the best of the bunch in terms of the quality of the image. I will try the manual and see if it can keep up with me! Thank you so much for your recommendation - greatly appreciated! :-)
I’m 23 and had type 1 for 14 years this is the worst shit to deal with. No breaks, constant monitoring and lots of burnouts. Since covid started suicide has been on my mind everyday tired of this suffering :(
Dmski, my heart is breaking reading this. Type 1 Diabetes is a lot and this past year has been A LOT...please know you are not alone. I know that really doesn't help because this condition can be so isolating, but I just want to say it. You've lived with type 1 diabetes for 14 years...that is not only a remarkable achievement but a heavy burden. Please be kind to yourself, recognize that the burden and burnout is a result of your caring for yourself - your effort which is clearly extraordinary but also remarkably taxing. To survive with t1d takes smarts, skills, patience and a huge exertion of strength and effort, you may not feel it - but you are EXTRAORDINARY - just by virtue of your being alive!!! Hardly anyone can say that! If you can, please please please try to speak to someone. A friend, a family member, a professional. Know that not everyone will know what to say, but humans by nature want to help, I believe at least. We live relying on insulin, we can't survive without it, but very rarely do people discuss the emotional burden, and how we shouldn't have to live with this condition without support and help from professionals to guide us though the dark times. There is no shame in this at all. I've gotten help several times (I'm on a waiting list right now to begin counseling once more) and every time it's been transformative and given me tools to see the world a little differently. It may not be counseling for you - it may be something else - I just urge you to speak out and ask for help from outside yourself. We're so self reliant as type 1 diabetics it's sometimes hard (I find) to reach outside ourselves - but when you do some of the most sweet and kind relief can occur. I hope you hear this and it speaks to you. I'm with you my friend. You are not alone. And your life is worth SO MUCH. YOU ARE LOVED. 💙
You are so adorable! Love you so much 💔
Aw!! Thank you so much! Thank you for watching!!
I've never met another diabetic before and I think I've been focused on everything but my diabetes for too long because I haven't really treated myself as if I have a chronical condition that should be monitored constantly, I don't even monitor it that much (not good I know), I just take my injection as part of a routine which is fine but I wish it wasn't that hard to monitor the glucose levels daily and constantly. I've been going through a burnout for a very long time and didn't realise it 'till now, thank you for pointing it out. It's so hard to find balance and consistency. Uuuh. It's as though I've never actually realised that I have a disease, though I have. I just kept going on with my life without making good changes and adjusting, more like didn't stick to such changes.
Thank you so much for sharing this very honest post Batoul. I completely understand where you're coming from and encourage you to know that you are not alone, and this is, be it for better or worse, quite normal. It's a huge step to recognize burnout is going on and happening, and therefore, you've already made a huge step towards doing something about it. You are so strong. I know this because you live with a condition that requires that strength of you. You can and will get through this. Thinking of you and sending you so much positivity buddy!!
@@ShesDiabetic Thank you. I shall and will! Xp
and now over a year later i’ve come back to this video lol i just keep messing up it’s so hard
In a current burnout
I'm so sorry to hear this Lexi...I feel you. I really hope you're able to come out the other side stronger...I know it's a real struggle. I'm thinking of you my diabuddy and sending love and strength 💙💙💙
i’ve had diabetes for 5 years and i still have yet to accept it
I get it. Totally and utterly. This disease is so so so SOOOOO HARD. You are not alone my friend 💙🙏🏻
Thanks for your video... Curently I'm in a state close to burnout.
I’m so sorry to hear this. Please know you are not alone and you will get through this. You are strong, and feeling burnt out is completely normal. ♥️
Maybe it's a guy thing but I've never really been preoccupied with my diabetes. Perhaps that's not entirely a good thing since control is essential but I can't say that I've ever experienced burn out in my 39 years with diabetes. Admittedly, I've only started with a CGM and serious carb counting and thinking about a pump so perhaps, as fantastic as these aids are, they can have a downside in terms of preoccupying one 24/7. I guess diabetics generally are really good at pretending that they're completely normal, medically speaking, that we do bottle things up. You convey such a positive vibe that it's hard to think you're not always that vivacious. Of course everyone has their down days but perhaps it's whether one has that built-in shrug of the shoulders that quickly overrides any negativity that gets us through the day. As you say, having other passions in life are what count! Of course, having such high quality and caring advice at one’s fingertips is a breath of fresh air which dissolves any anxiety or feelings of depression in an instant! Thanks for another great video!👍🏻
Thank you so much for your kind words Paul. And I’m so glad you’ve never faced burnout - that’s fantastic! I think everyone is different and diabetes is SUCH a personal disease and therefore everything is normal! You make a great point about diabetics being good at bottling things up - that’s so true! Hope you’re very well and enjoying the benefits of your new CGM! 🌟
She's Diabetic I was watching a teenager speaking on TED today about being diagnosed as TD1 and got quite emotional (as much as a guy can get) when she related how school friends had congregated around her locker on her first day back to wish her well and show their compassion. Perhaps that is indicative of how much better people are educated about diabetes these days and what a huge challenge it represents. Of course it has not always been that way. I was in my second year at university when I was diagnosed decades ago but I do not recall anyone offering any comfort, whether they were family, friends or classmates. Perhaps the word just didn't get around but it was just business as usual. It could be that that non-event and my having to file it away in a corner of my mind for so long might explain my silly emotion now. Perhaps I am in fact just smouldering just beneath the surface rather than having a serious burnout! On the other hand, I'm on additional meds for hypertension today so it could be that that's messing with me. 😉 Again, thanks for your comments!
I have type two and currently I'm sufficiently from burnout. I currently feel like there's no one to understand how I'm feeling and I'm feeling like I'm not getting the support I need to be better.
I HEAR YOU. Please please please know this - I completely and utterly hear you! Honestly, I wish there were something I could do to truly help you. But I know these things are just so unique and personal. I truly understand that feeling like you're just at the end of your rope and don't feel there's anywhere else to turn. I've have been there. Several times. I swear to you that this will pass and you will get better. I promise. Give it time and please have so much patience with yourself. You most certainly are not alone in your feeling - though I know it feels very lovely and isolating. I am here for you my friend. I'm thinking of you and sending you strength and the wish that the tide will turn for you 💙
I've been doing some research into the prevalence of T1D and what I've quickly come to realise is that, despite all the advances in technology, which is great, we are increasingly being seen as a non-entity. Look up any report on diabetes and more often than not, indeed almost exclusively, the discussion surrounds Type 2s. It's not that I lack compassion for Type 2s, after all they suffer similar complications to us, but it's just that it appears that we are slowly being drowned out against the noise. In my country, South Africa, there does not appear to be any published data on the number of Type 1s, certainly not with respect to adults. Yet, the numbers of diagnosed Type 1s are in fact increasing. I read that, in the US, the number is expected to rise fourfold by 2050 to 5 million. That's a ratio of about 1 in 90, given the estimate of 438 million by 2050. The UK currently has close to 400,000 Type 1 diabetics, 29,000 of whom are children. However, this pales in comparison to type 2s where, for every one Type 1, there are nine Type 2s. I'm admittedly having a serious gripe so maybe my BGs (Bee Gees, haha) are off, but do you sometimes feel a little left out as a Type 1? I'm sure you'll have a positive angle to all my ranting, or do you also get a little irked sometimes?
Hi Paul! Thanks so much for all this info - very interesting! With regards to feeling left out - yes, I know what you mean, and I do occasionally feel this way, however, I just think it's the nature of the numbers to be honest. If there are more Type 2's there's more money to be made from research, advertisements, etc, and therefore we are slightly "left out". However, I don't look at it as a competition really, and we can benefit from the research that is being done for T2's, so there's something to be said for that. I also just feel like the T1 community is even stronger in terms of peer to peer support because of the fact that we are so "rare" and I really value that, and am not sure it would be the same if the numbers were greater. So in short, I get it, completely! But I try not to worry about it too much - just my take though!
@@ShesDiabetic Andrea, as always, you're right, and it's nice to be rare - well not so rare that one can't chin wag with other birds of a similar feather - that would indeed be sad and I certainly don't want to drag your fantastic, upbeat, inspiring channel down a road of pessimism. Rarity does not imply elitism and I hope it didn't seem that is what I was suggesting. You're spot on that medical advances inevitably benefit diabetics as a whole. Keep us laughing!
i'm only 13 years old and i've really been going though the t1d burn out and don't know how to pull myself in and all my dr. does is lecture me and i relize it is not heathy and i want to do better but it is so hard. And it's so hard to talk to my friends and family cause they can't relate cause they don't through it everyday.
Oh my gosh I can so relate to absolutely everything you’ve written above. It’s SO HARD. I totally get it. You want to do better but then it’s like you just can’t get out of the much of feeling so burnt out. I don’t know what the answers are but I do know you can vent here and I just want you to hear that you are most certainly not alone at all…I just can’t tell you how much I was reading your message and thinking “yep, yep, yep, me too, me too, me too” 🥺
Im a T1D got diagnosed when i was 2 years old going on 28 years now and honestly i can say i need some help on a better eating routine can any one lead me on a good path? Constantly 300 400 and hi's after injections aswell.thanks
I'm so sorry to hear this Josh - and let me tell you - you are 100% not alone! It's really really hard and tricky to deal with all of this and manage it all - and you're a warrior that's been doing it for many many years now!! How incredible!! Please be gentle and patient with yourself (and proud too!) - I'm sure you have a LOT to balance in your life, and will find a way that works for you, either by talking your doctor or a nutritionist of some kind. Please just be kind and loving with yourself. You are not alone, my friend!! Sending you strength!!
my husband is a type 2 diabetic (for about 15+ years), has chronic kidney disease (was at a stage 5, now between 2-3) - was on dialysis for about 2 months but not anymore - I noticed he's been vomiting quite frequently, normally between evening - to early morning. I'm not sure what's causing this. Does anyone else experience this problem?
Please please please I'd encourage you to speak to your doctor ASAP. I don't personally have any experience with Kidney Disease, but my Dad did, and actually he was on and then taken off of Dialysis. I just really encourage you to speak to is doctor ASAP, and maybe ask for a full blood workup? I'm not a doctor, just want to make sure you guys get the help you need! 💙
the main issue I get after having diabetes for 23 years is losing some damn weight! - being veggie makes this a lot harder, but its annoying and frustrating trying to find some damn diabetic/veggie friendly low carb food to make or buy
I hear you! I'm vegan and therefore don't do the whole low carb thing, but have found eating pant-based a really excellent way to up my insulin sensitivity and keep my weight stable. Might be worth looking into. It's such a hard disease to manage weight with...I completely understand and am so sorry you're struggling in this way.
My daughter is Diabetik she is only one year 😢
Oh my goodness I'm so so sorry to hear of your daughter's diagnosis. Gosh - what an overwhelming time for you, as her mother, to see her go through this and deal with just general ins and outs of becoming a new Mom. Please know my thoughts and prayers are with you and I'm thinking of you and sending you and your daughter lots and lots of strength and love. 💙💙💙
When you were young how did you get to the courage of doing your insulin pump by your self knowing that it would sometimes hurt ???
I started on the pump less than two years ago, so I never had that experience when I was super "young". However, I was very scared to do my injections (I was on syringes and then pens from diagnosis). I guess it's like anything, I just kept doing it and realizing it was far worse in my head than it was in reality. Also my doing my own shots was a very big step in my realizing it wasn't that bad, and also gave me confidence because I was in total control. I hope this helps and makes sense!
hey! i was 11 when i got my pump. see, people would often say "oh, yeah, you get used to it" but to be honest it was scary. like youre about to inject this bigass i dunno...tube into your body??? so it usually take a about 8 minutes to get over the panic and just click on the buttons. it always hurt afterwards but i just got over it.
Anybody have tried or read the book "Diabetes Solution" by richard Bernestein?..it a life changing book, please give a try and tell us your thoughts and conclusions. Thank you so much for your videos
I definitely need to read this one - thank you for sharing! :)
I'm sorry but I'm now forced to judge you on your television show selection. 😉
I usually just fuck my diabetes off. You only have today. diabetic or not,
I hear you ❤️
Forgive my language. Pure frustration. Controlled diabetes is important. But not worth consuming your life. Be aware. Manage it best you can. But non diabetics will suffer amd cease with the passing of time also. ❤️ x
my type 1 makes me feel suicidal tbh
Grab a drink or two? Maybe three? Or until K.O. 🥲