I wish you all the love in the world- so hope the doctors can figure out how best to help. I have the same condition but not as severe at the moment, but have been very bad at times. Do you get much sleep at night? I have really poor nights due to the orthostatics- I often wake up hyperventilating especially towards the morning. You are so brave and are such an inspiration to us all- my wish for 2013 is that you will improve health wise and have lots of sunny days ahead. Love Sue xxx
I do get enough sleep (most nights 10 hours). I just get exhausted super easy, esp lately. Seems like it is just getting worse! I hope you are doing good at the moment. Hugs!
Hope your still getting answers in Denver! I have been off a few days traveling and such. Now my nephew, who is WIDE open, is attached to me 24/7 making it hard to catch up on the vids I missed. Is it Jan 9th yet? lol, jk. I love my nephew, but man do I need a good 6 hours nap about now. Hugs and LY
I wish you all the love in the world- so hope the doctors can figure out how best to help. I have the same condition but not as severe at the moment, but have been very bad at times. Do you get much sleep at night? I have really poor nights due to the orthostatics- I often wake up hyperventilating especially towards the morning.
You are so brave and are such an inspiration to us all- my wish for 2013 is that you will improve health wise and have lots of sunny days ahead.
Love
Sue
xxx
I do get enough sleep (most nights 10 hours). I just get exhausted super easy, esp lately. Seems like it is just getting worse! I hope you are doing good at the moment. Hugs!
Hope your still getting answers in Denver! I have been off a few days traveling and such. Now my nephew, who is WIDE open, is attached to me 24/7 making it hard to catch up on the vids I missed. Is it Jan 9th yet? lol, jk. I love my nephew, but man do I need a good 6 hours nap about now. Hugs and LY
I hate for you that you're feeling so tired but am happy to see you posting an update.
I am trying to post more, and with more things. I just haven't had the chance yet. Hope your having a good day!
Hope you are ok
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