Cystic Fibrosis (CF) Patient Answers Questions About New Movie "Five Feet Apart"🎥 (How I Relate)😱

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  • čas přidán 21. 07. 2024
  • I answer a lot of your questions about the new movie "Five Feet Apart", & some questions about myself as well, relating to the movie. I hope you all enjoy the movie. Please subscribe to my channel! & give this video a thumbs up! Leave your thoughts below! Please stay positive on this channel.😊
    my instagram: @saltycyster_ go follow me!💜 (i share a lot of my journey on there as well)

Komentáře • 29

  • @darcyc3629
    @darcyc3629 Před 5 lety +33

    I loved five feet apart best movie ever

  • @killuasleftfoot9021
    @killuasleftfoot9021 Před 5 lety +35

    your like Stella the girl from five feet apart posting the true thing about cf

  • @annasworld7278
    @annasworld7278 Před 5 lety +15

    I do not have cf but after watching the movie and watching your videos i realize how serious it can be. You are sooooo strong!!!!!!! Keep on fighting.

  • @oohflowersss2384
    @oohflowersss2384 Před 5 lety +9

    I started to cry in this video❤️I loved five feet apart❤️

  • @emmathomas5371
    @emmathomas5371 Před 5 lety +5

    I read the book in 2 days then I watched the movie in theaters. It’s SO amazing. I’m in love. It makes me so happy to know you are making videos about your story and everything. I will stay tuned!! Thank you so much. So inspirational!! Keep up the good work!🤧❤️

  • @maellesavoie3944
    @maellesavoie3944 Před 5 lety +6

    I really feel bad for you and everyone with Cf get well soon ❤️ I’ll be praying for you and others with cf

  • @eowynlindlv4576
    @eowynlindlv4576 Před 5 lety +4

    I read the whole book in 3 days. Read 56 pages the day I got it:))))

  • @bridgettenocito
    @bridgettenocito Před 5 lety +5

    you are literally the cutest human being ! I love your videos and you are absolutely gorgeous and you seem so sweet!

  • @hadleybyard1073
    @hadleybyard1073 Před 5 lety +2

    My cousin has CF and he has almost died so many times. He isn’t very good with taking his meds and He is a bulky guy but he went off to live on his own and got so sick and was so skinny and it was a scary time for all of us. I can’t imagine what you have to go through. I saw 5 feet apart I cried the whole time and it was such an eye opener to the struggle of CFers. You are beautiful, you are strong, and most of all you are a fighter. I hope you get better. Stay strong, I love you. Sending prayers.🙏🏻💜 edit: there is no excuse for laughing at such a strong movie that really hits hard for a lot of people and they did not have the right to laugh at something so unfunny and serious.💜💜💜

  • @maudeperrine
    @maudeperrine Před 5 lety +6

    Hey! I have CF too and I find you express yourself well :)
    I loved the movie and had read the book beforehand... They all did an amazing job!
    I've also been having a rough patch and I hope you'll feel better soon!!!
    I actually have Pseudomonas and B. Cepacia... Fun lol
    Now about not being connected at all times...
    Since I transferred to adults I can be disconnected between every dose. I love that!
    I still get PICC lines and the procedure went a lot smoother there too ;)
    One of my fave scenes from the movie was actually when they show off their scars...
    I found it was so touching, it was beautiful.

  • @emilyberry15
    @emilyberry15 Před 5 lety +4

    Omg yes like a group of girls was laughing and i was lile stfu i wanna hear this omfg

  • @norawylie7111
    @norawylie7111 Před 5 lety +2

    You are so brave!!

  • @lucyfresch
    @lucyfresch Před 5 lety +1

    omg i love you so much❤️❤️❤️

  • @avamaria8319
    @avamaria8319 Před 5 lety +1

    Okay your amazing but I think people without cf should be able to share their opinions on this movie. I’ve been doing loads of research on this disease and I’m going on the support walk for cf in May!♥️♥️♥️

    • @AlixxMarieee
      @AlixxMarieee  Před 5 lety +1

      aesthetic.gacha xo what i was saying is in my opinion the opinions that matter most about the movie is cf patients. they are the only ones who know basically everything & stuff like that. but that's good!

  • @jadetaylor5622
    @jadetaylor5622 Před 5 lety +1

    I don’t have CF but I watched Five Feet Apart and I cried there was also many disrespectful girls in there laughing at parts that were sad. Now I don’t know how you feel when people laugh at stuff like that but it makes me very angry and upset. CF is not a joke and will never be a joke. I’m sorry that those girls were laughing at the movie even though it was sad not funny and I’m sorry you had to be in the same room as those girls because it’s so sad how disrespectful people can be. I’m not saying that I’m not disrespectful sometimes but the way they were being disrespectful is so stupid and sad. I just found your channel and I already love it💛

  • @allisonreiter2096
    @allisonreiter2096 Před 5 lety

    I don’t have cf but my best friends mom does and I have a chronic Illness. Niemann pick is not quite as bad but it can be. But I really respect you and others with CF because I know what it’s like to be sick. We need to keep on fighting.

  • @blairmarie9872
    @blairmarie9872 Před 5 lety +1

    Agreed with everything 100% c.f. is so hard but we are doing this

  • @raeofsunshine9401
    @raeofsunshine9401 Před 5 lety +2

    I’m the 5th viewer!!!!!!!!!!!

  • @brinnamadden5431
    @brinnamadden5431 Před 5 lety +2

    I have cf and my little brother did too but he contracted liver failure from it and passed away at 10 years old 2 weeks ago

    • @yoyochan721
      @yoyochan721 Před 5 lety +1

      Brinna Madden 😢stay strong, your little brother is watching you above the sky

  • @rileebingham5242
    @rileebingham5242 Před 5 lety +8

    Have you ever done a make a wish trip?

  • @deveilye4478
    @deveilye4478 Před 5 lety +1

    Video starts at 3:33

  • @sophiar2091
    @sophiar2091 Před 5 lety +3

    How old are you?

    • @AlixxMarieee
      @AlixxMarieee  Před 5 lety +2

      18

    • @sophiar2091
      @sophiar2091 Před 5 lety +1

      @@AlixxMarieee okay☺ You look 18 and you don't at the same time! Lol😂