How Crista is Recovering From Long Covid and CFS! | CHRONIC FATIGUE SYNDROME
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- čas přidán 21. 12. 2022
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I wanted to share my interview with Crista, one of the Recovery Jumpstart Thrivers who’s made amazing progress in the last 3 months.
There are a few common themes in most Recoveries.
Usually they involve:
Visits to tons of different doctors and specialists…
Multiple (ineffective) treatment options and…
A growing sense of hopelessness.
Crista’s Recovery is no exception.
But her story highlights something that doesn’t get talked about enough.
That is the loss of identity that often comes with chronic illness.
See, Crista went from being a highly-ambitious, achievement driven person…
To being home-bound, with brain fog so severe that she couldn't even fill out paperwork to apply for disability.
Then there were the physical symptoms.
She was so sensitive that taking a shower was like “an extreme sport,” and wearing certain clothes felt like “being wrapped in barbed wire.”
That's bad enough...
But there's a hidden cost associated with these symptoms, and it goes much deeper.
Since every bit of energy is being used to simply survive, CFS destroys your ability to live a good life.
Friendships and relationships become impossible to maintain, hobbies get dropped... even tiny joys like eating your favorite foods go away.
And that leads to social isolation which, as Crista mentions in our interview, causes physical changes in the brain.
When ALL those factors come together, they have the potential to demolish your sense of self...
Which makes Crista's Recovery all the more inspiring.
See, less than 3 months after she joined Recovery Jumpstart, she's already walking a mile or two every day...
And she even got to take a trip to see one of her favorite bands live.
From struggling to stand up for 5 minutes, to standing for hours being bombarded with flashing lights and loud sounds... While enjoying a beer (or two)!
So those are some massive changes.
But even cooler to see is the change in her identity.
She used to just run through life, from one thing to the next...
And now she's CONSTANTLY stopping to “smell the flowers” (sometimes literally).
Because there was a time, not so long ago, when she thought she would never make it out. At some points it got so dark that she put together an “exit plan” in case she didn’t start to get better.
To go from the lowest lows to a state of constant gratitude is so inspiring…
And that’s why, to me, Crista is the pure embodiment of what it means to be a Thriver.
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Tags: Cns fatigue, cns burnout, nervous system burnout, nervous system fatigue, cns exhaustion, chronic fatigue, cfs, chronic fatigue syndrome, bedridden, housebound, adrenal fatigue, chronic fatigue syndrome treatment, cfs symptoms, cfs recovery, cfs health, chronic pain, chronic pain syndrome, chronic pain explained, chronic pain meditation
#cfs #cfsrecovery #cfsme #bedridden #anxiety #somaticsymptoms #somatic #panicdisorder #panicattacks #chronicpain #chronicsymptoms
DISCLAIMER: I am not a medical doctor or therapist. I am sharing my own experience and research. My video content is for information and educational purposes only. Please consult with your medical professional."
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Have you ever worked in your program with people from Australia? I'm in the Sydney timezone (GMT + 11 hours)
Can I make a suggestion that you remove background music from the videos? For those of us with limbic system impairment, it can affect our auditory processing and music can add to agitation
agree
I'm in the program with Crista and want to say it's been so inspiring watching her journey. Her mindset is extremely solid even though there have been numerous challenges along the way. She is always putting in the hard work to get better and without a doubt in another 3 months she'll be so much further along. Her recovery is exponential. I also started in August and am seeing undeniable progress - big leaps. Miguel is the real deal and this is the way out. 🙌🏼
It’s been a pleasure working with you Joe! At the rate you’re going, you’re video is coming soon 👀 It’s always a blast on our calls 🔥🔥
This truly means so much, Joe. I am so grateful that our recovery paths aligned! It has been such an honor to be doing the hard work along side you. And absolutely what you said, Miguel is truly the real deal!
How are you doing @fendercodes?
How do we work with him? What are the costs?
@@cmtaylor41dpt May I ask if you’ve ever had derealization type of symptoms neurologically? Like you felt “here but not here/surreal”?
Also did you have relapses?
I resonate with Crista the most. I loved when she said taking 1 extra grocery item inside can take you under, because that is the reality and insanity that no one understands about this disease. You never know what will really debilitate you sometimes until after you do it and you can physically not be able to function for days to weeks after.
So true geeze
We're glad Crista's journey resonated with you 😊
loved this!! I'm recovering from Long Covid as well and Miguel's videos have been so helpful as has his book. I'm only four months into my recovery but already walking and shopping again, doing gentle yoga, reading!, even chopping wood. I've a ways to go but I know I will get there. If I get stuck, I know how to find Miguel!!
You got this!
Congratulations on your progress!! 👏
Whats the name of the book ? Dors it existe un french ?
Where can i get the book?
Hope that you are doing well 🙏🏽
I want to listen to this because I'm really interested in Cristas story. but with music in the background😢😢
Sad that the talk alone is not enough and so it is more stimulus.....even if its low. My brain trys to listen to both.
I feel like I’m grateful for this illness I’m thanking God for my future . To live my life with such peace and gratitude after I recover l❤! This is a beautiful story and it gives me such HOPE❤! I’m so happy for you Crista!!
Thank you for your kind words! There is real hope for recovery. 💜
That was a great interview. Was very interesting to see how it was for you in the beginning and now how far you’ve come. I am honoured to be a part of your journey and be with you in the program Crista. We are on the way to full recovery. ❤
Glad you enjoyed it!
Valerie, I am so very grateful that our recovery journeys aligned. Your support and insights have meant the world to me! It’s been amazing to see your progress as well! 💗
❤her story is so relatable… #brain fog #dementia brain - but there is hope & HEALING in this program!!! So thankful to be in this program - making good progress🎉 ❤
It's wonderful to hear that you're finding hope and healing in our program, and that you can relate to her story. Keep up the great progress! 🌟🙏
Very inspiring, another great one!
Thank you! 💛
Thank you Christa for sharing and Miguel ❤❤❤
You are so welcome 😊
The amount of appreciation I have of this channel. Thank you . Hope I can get money to join the programme.
Love Crista she’s such a good Coach❤
She totally is! Thank you so much! 😊❤️
Thank you so much for sharing your story. I know for myself and my family thinks I’m crazy or doesn’t understand or believe in CFS conditions. I have had Covid two times they were just as bad each time, almost exactly a year apart. It’s terrifying and worrisome if I will get this again. I never got over the first round and then I get hit with the second round almost a year later. I do feel very lonely. I to also have been in that very dark place, I totally understand how you felt and what you were talking about. I’m so glad this program has helped you recover.
How are u feeling now?
Such a great time interview. Well done Crista for all your consistent hard work and I’m so happy for your progress. Your PT background brings so much experience and strength to your story. You are such an inspiration! Onwards and upwards 💪
👊👊👊
Thank you so much for your support and kind words. It truly means so much! 🙏
She’s my coach! ❤❤❤
She's amazing and I'm sure you've found incredible help from her. We can't wait to hear your own recovery story Kenia!
I watched this video a month ago and just rewatched it again. I feel both your hearts and your grattitude for every little thing you took for granted. I teared up many times with grattitude and appreciation. Now beingbin the academy for 7 weeks I can see how far I have come and how far I can still go. I have so much gratitude for you, Migel and Crista, and all the coaches. After being sick, my whole life, getting my life back at 61, is a miracle. I'm so excited for what the future holds. I also just got your audio book on audible. Thanks so much, and I'm so happy to be getting well with you both. Thank you, Miguel, and congrats again to you both. ❤🎉
I'm grateful I never followed through with my plans to end the pain. ❤️🩹🩷💜
This is incredibly heartwarming! ❤️ Your journey and progress are truly inspiring. Wishing you continued success and joy on your path to wellness. 🎉✨ You matter, and your resilience shines bright! 💪😊
@cfsrecovery thank you so much. This means a lot to me. ❤🎉
Basically anything that's "chronical" needs subtelty to adress, as opposed to "acute" stuff that need straightforward, "all out" fighting. This reflects the duality of the innate and adaptative immune systems. ... So my take is modern medicine has a very hard time at adressing anything that's chronical (from epilepsy to skin rashes, from headaches to rhumatology). Any chronical disease is complex BY DEFINITION and demands PATIENCE fro physicians, and CHARISMA, and EMPATHY. And time to untie the complex knots. If you go all in with a single molecule to fight a chronic disease you're most often heading for failure. I treat my psoriasis (skin rashes) with hydrating balms, not cortizone, and it has stabilized ever since. I treated my pots with patience, vitamin D (regular, life-long) and it totally stabilized (both POTS and asthma). Going with the bulldozers on subtle diseases doesn't cure them. I'll be joining that program. Take care all and have faith in health and give back to others once you heal/
Good for you 😁
Krista, your story sounds like mine, along with the severe anxiety, and depression, hopefully starting the program soon, getting the funds together
It's great to hear that you resonate with Krista's story. Best of luck with your journey. We're excited that you're starting the program soon! 🌟💪😊
I relate to this 100%
Glad to know it resonated. ❤️
So many of your symptoms I so relate. Years 😢
I feel for you!
I feel for you
@cfsrecovery not any more because of you and your program. 💞🙌 Getting better and stronger. 🎉❤
Thank you so much for sharing your story! I followed you on Instgram. My story sounds a lot like yours! Got COVID May 2020, mosty nausea, diarrhea, stomach pain, dizziness, then started having dysautonomia, and other issues. I recovered my energy after about a year but I still have gut issues and some neurological symptoms. I can't eat most foods other than meat and seafood or my stomach will burn and I get very bloated plus have trouble breathing. What did you find helped most with gut issues? The heartburn has finally gone away for the most part but my stomach still burns and I dont' digest food well. I had a pancreatic enzyme test that showed very low functioning pancreas, so I just started on enzymes. It's helping some. I also had to have my gallbladder removed as COVID cuased chronic inflammation in it. So happy you are healing! Hope you'll be 100% VERY SOON!!!!
Hi! Thank you for your kind words! I had a lot of GI issues after covid. Gradually they have subsided with nervous system regulation with this program. Before, I had quite significant issues with heartburn and IBS. I was gluten-free, doing mostly lowFODMAP diet and avoided foods like nightshades as well due to reactions. I also had suspected MCAS. The bloating was miserable. I remember how painful that was at times. The nervous system really directly impacts our digestion (and vice versa). For me, as I’ve recovered, it’s almost like a switch has flipped and I can eat what I want know, unless I am in an adjustment period than I am a bit more sensitive. Hope that helps a little!
Thanks for this great interview, I have recovered for about 8 months from fibomalagia, but I am worried I could crash or return to zero again, how should I maintain my health after recovering, what should I avoid and what are your tips. If you could make a video about it, that would be amazing. Thanks Miguel you have been a big part of my recovery too.
Difference Between an Adjustment Period and a Crash: czcams.com/video/Dhjm6_lknNM/video.html
The #1 BEST Way to INCREASE Activity with CFS: czcams.com/video/I6HE8WtI2Z4/video.html
Have your trigger points gone
Me, my brother, and my mom all have twitching, shortness of breath, heart pain n palps, Ht and BP issues tingling on skin, internal vibrations, blurry vision, etc. My brother got like this after his covid infection. And me and my mom got like this after our vaccinations. Honestly, I feel like the body's nervous system are constantly being revved up and are producing so much excess energy. Hence the vibrations and twitches. Body will then crash, cold hands and feet, feeling sluggish slow and fatigued like all energy is drained..... I am frightened 😢
Same feeling bro
Wow, this is almost my exact story! But I’m not healed from long covid yet. Praying neuroplasticity helps. 🙏🏻
You got this! 🙌
This broke me, I’ve felt so much of this for almost two years. Even the fact that I couldnt touch my ribs. I literally had the ms hug but no ms. I’m almost two years out and still cannot walk far at all. I couldn’t bathe myself I was so dizzy. Dx LC which I just learned is ME/CFS and it frightened me so much x 17:27
May I ask what symptoms you may be struggling with ATM?
@@cfsrecovery Of course. I have internal vibrations, feels like an electric fence inside my body all over. Muscle tightness across my shoulder and upper arms. Muscle tightness around my lower rib cage and core that wraps around my back. Tingling and burning (neg. SFN and also normal EMG/NCS) POTS (hyper) BP elevates does not drop. Dizziness and feeling of swaying still at times though it’s better. Blurry Vision at times. Face and left ear goes numb. Tinnitus.
That being said I have come a long way since March 2022. Sounds crazy when I list it all but again I could not touch my left side core and ribs at all in the beginning and couldn’t form clear thoughts so I feel much better. Still can’t walk far though. It’s all so confusing.
In the beginning Neuro thought I had either transverse myelitis or Guillain barre if that tells you how bad I was.
Thank you so much for you response.
Also I feel anxious, wake up nauseated most days, my left foot twitches and I tap/shake my feet all the time. Fingers and toes are freezing cold. Food sensitivity, normal sounds seem so loud at times. The list is still long. I’ve had so much blood work, all the tests, 8 ER visits, 3 hospital stays, so many specialists. And still only told LC and Dysautonomia/POTS. I am scheduled to start PT for the POTS and balance and I’m really nervous about it.
Is there a section where she talks specifically about the POTS and coming back from that?
Good for you!!! What helped you first and what helped you the most?
The only traction I made in recovery was with CFS Recovery Jumpstart! It helped first and most! 🙂
Hi Miguel, I would like to get your program. I have post vaccination syndrome, long COVID, CFS, neuropathic pain everywhere and I’m bedridden since more than one year. I tried a lot of therapies without results.
I’m living in Germany and after went from doctor to doctor I’m looking for a different solution.
Do you thing will be possible to be healthy again if I start brain retraining ?
Yup it should definitely help you! As long as you have ruled out any other health issues through medical tests and scans, these principles should work for you. I always recommend going through the questionnaire and if you qualify, booking a strategy call to see if you're a good fit for the program! www.cfsrecovery.co/apply.
Looking forward to connecting with you! 😊🙌
Hello Miguel, what's the name of your book?
Hello! It's Thriver, Not Survivor: How to Beat Chronic Fatigue Syndrome. www.amazon.com/Thriver-Not-Survivor-Chronic-Syndrome/dp/B0B4NVL1J6 🙌😊
I would like to see some recovery stories who also tell stories of an insomnia challenge.
We've got lots of those! You can check some other of my videos but for now, you can also check this out: czcams.com/video/IP1r3urYgoc/video.htmlsi=oSDYc6Fi7ucoDvwY
I’m dealing with these symptoms and every doctor I go to tells me to just not worry about it. After seeing how hard it is to walk they prescribed antipsychotics. literally can’t get treatment because I was treated for anxiety as a child. My symptoms started while I was sick with covid and in the weeks that followed infection. If anyone knows where to find a competent doctor please lmk
Please check this link. I hope it helps!
czcams.com/video/1e0dwjlDfRw/video.html
What are your medical credentials and knowledge base for your advice?
I am not a medical doctor or therapist. I am sharing my own experience and research. My video content is for information and educational purposes only. Please consult with your medical professional. 😊
Regarding the brain fog, after covid i have a feeling like part of my memories are gone like having an empty mind (a void) is this also part of brain fog experience.
Please check this video out about brain fog: czcams.com/video/Z2e4qHOQP_k/video.htmlsi=4xnbKKNmCvYukKSt
Can I buy your book overhere in the Netherlands?
Yes!
Crista, what a story, did you experience insomnia ? If so can you share how it was for you.
Please check this video out: czcams.com/video/IP1r3urYgoc/video.htmlsi=rBf3M7xWPCuuPjHe
What medications were you on?
Good question, to be honest it’s not my place to say because I don’t understand your exact situation and legally I can’t recommend you anything. I can only share what I’ve experienced. I would advise to reach out and discuss this with your doctor! Hope you understand
I was on A LOT of different medications. But, thanks to CFS Recovery Jumpstart I am now on significantly less medication! Medication wasn’t the answer for me, this program was and nervous system regulation was! Hope this helps. 🧡
@@cmtaylor41dpt Hi Crista, my lasting symptom is GI. I’m 16 months in. How did you resolve your issues. I cant eat anything but beef and rice or I get nauseated.
She still has adrenal fatigue dark eyes low b12 magnesium to
She is still on the recovery journey
@@cfsrecovery yes it will get better with time
Your so inspiring. This is very isolating, feeling of no support, lonely, no one understands, you lose family and friends can't make new friends. I'm looking forward to community and support and encouragement. I can't wait to be part of this family. ❤️🩹🥹🎉🎉
We're so happy you joined us 🙌
Thanks Miguel ❤🎉
I need help
It’s really hard on your own. ❤️🩹This program was a life saver for me 🙏
@@cmtaylor41dpt I'm raising the 6k now.
@@lovewenwinIt is worth it! Can’t wait until you can join!!
@@cmtaylor41dptyour baseline was pretty low to start
Did you have to dial back even more and be ok with this, before you launched in?
It’s so funny how negative cfs people are
You are alive you are here,
You don’t have cancer
Smile and love youte self simple
As long as you are still alive, you live to fight another day!
I have seen over 70 doctors even Mayo a clinic.
This is my last hope
I always recommend going through the questionnaire and if you qualify, booking a strategy call to see if you're a good fit for the program! www.cfsrecovery.co/apply
Hi, i stopped listening because of music…
I feel for you.
What is Crista's @?
I follow her on instagram and her posts really inspire me and help me get through some low points! Her posts about neuroplasticity and her progress are a breath of fresh air! Im so happy she is healing and getting better ❤️🩹 truly inspires me to keep going on my journey and continue on my recovery. I just wanna say thank you to her 😊
Hey, I think I know who this is?! 🥰 Your support truly means so very much to me and thank you for kind words and encouragement! You’re journey is so inspiring to me! 🙌 We can do hard things! ❤️
Even I learn a few new things here and there from Crista!! She is a wealth of knowledge and inspiration, and a perfect example of neuroplasticity DRASTICALLY turning life around for the better. Keep it up Crista🔥🔥
@@cfsrecovery Thank you, Miguel. I am so grateful for the brilliant coaches who have taught me so much!
Which Instagram is hers?
@@cmtaylor41dpt wat is your inta please ❤
I am in Australia and have been diagnosed w/ POTS. My GP also recommended Cl@ratyne, Telf@st (another anti-histamine) and a low histamine diet, as this is now seen as the way to treat Long C0vid, MCAS and POTS by the doctors I've been seeing. Previously a low histamine diet made my symptoms slightly worse, and I got sick taking Cl@ratyne & Telf@st tablets, so I'm now taking kids syrup versions of these anti-histamines in very low doses. At this stage, my symptoms are slightly worse on the low histamine diet and Clar@tyne & Telf@st syrups. If the low histamine diet and anti-histamines don't improve things by the time I see my GP next, I'll discuss dropping them & the low histamine diet. Brain Retraining and WHM breathing do seem to reduce my symptoms, and I'm trying to "build threshold" at the moment. The big change for me recently was believing I will get better when I follow the steps outlined in Miguel's Thriver, Not Survivor book. Raelan Agle interviewed Jason McTiernan, who talked about the nocebo effect, which convicted me that I needed to change my attitude and believe my body would heal itself if I did the Brain Retraining etc.
Brain retraining and neuroplasticity made all the difference for me. Good luck, friend!
💜💜💜 amazing! I've had all the same symptoms with long covid, so happy to see her progress. I can do it too. What's her Instagram?
I can’t seem to share
my Instagram, but my account is public and if you search my name it should come up!