Thrombotic Thrombocytopenic Purpura: A Patient's Journey
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- čas přidán 6. 09. 2010
- Jose, age 26, thought he was perfectly healthy when he stopped by his doctor's office to pick up the results of a blood test, but he soon learned that he was very ill. After extensive testing, doctors determine that Jose has both lupus and thrombotic thrombocytopenic purpura (TTP), a dangerous clotting disorder. To learn more about TTP and other blood disorders, visit ASH's patient resources webpage hematology.org/Patients/.
This clip was excerpted from the documentary film "Blood Detectives." To learn more about the film, visit www.hematology.org/Publication... - Věda a technologie
My mom was diagnosed with TTP in 2003. She had epilepsy, seizures and at least once a week needed plasmapheresis. She fought going in and out of the hospital for 9 years. She died in 2013 just before her 36th birthday. It was very traumatic for me growing up having to watch my mom go through all of that. It’s almost been 8yrs that she’s been gone and it’s like I never had a mom cus all my memories of her are so blurry.
I sure hope one day there’s a cure to this horrible disease🥺
I was diagnosed with lupus at the age of 16 I am now 49 and suffer from TTP, as well as APLS which is another form of lupus. I'm on approximately 34 medications including blood thinners but once you have it managed you can have a good life. In the 32 years I've had these diseases it has come along way with the technology. I was in the guinea pig stages but I'm happy to say I got married and I have five beautiful daughters that are in their late and mid 20"s and still are negative for the disease. I have had them tested every year at their physicals since they were around 10. Good luck and have a happy happy life. One thing that helped me get through was the belief that I controlled the disease it did not control me. God Bless
I also have APLS.
Cheryl A I'm so glad to have read your message. It gave me hope. I was afraid of somethings. You just made me feel so much better. God bless you and thank you so much.
God bless you
Dis you have to follow a diet?
I have TTP ti thanks for hopes ❤❤
It is truly a blessing that more information is now available about TTP. I was diagnosed in 1988, very little was known then. It took 3 months for a diagnosis (I had migraine headaches, bruising, and multiple mini-strokes). I was given a 10% chance of survival. By the grace of God, it's 25 years later and I'm still here. There is still much to learn about this rare condition.
Exactly! I had it in 95 -1997 & they ONLY had plasma pharesis no meds then! Wonderful how they advanced ! I have noticed tho there seemed to be more ppl diagnosed w TTP where as B4 not so many! Environment maybe ? Who knows ? But now I have opposite w Anti phosphis Lipids too thick of blood etc & blood clots DVT
AMEN 🙏🏾
Heartbreaking this is what my youngest sister had and passed in 2001 age 23 to find now there is more help, brilliant but wish it was this advanced for her, and she would still be here, back then her treatment was terrible she could be home but would have to return every other day sometimes every day to have treatment, she was an amazing person and lived with this for 18months till it took her, her body gave out with all the treatment and she had a heart attack
This is what took Dilla. I pray for anyone who has to suffer with this and their families as well
My uncle son had the same disease can you help me
I found out 19 days ago that I have TTP. My doctor found this video and told me to watch it. It was very informative. I like the animations. It is frustrating to me that they don't know the cause. Live each day to its fullest!!
emileeh how are u sweetheart are u doing better? My brother in law passed this mornin 39yrs old
Thank you so much... thumbs up (Y)
Hi Emileeh, I had ITP for most of my childhood growing up, and I want to tell you that I cured myself by eating only fruit for 3 months, My platelets went in the normal range and I never had it again, and its been 20 years since.
I found out after it was the nutrients and minerals that I was lacking. If you are on processed foods then go plant based for three months and watch your ITP disappear as you heal and replenish your body with what your microbiome needs.
Much Love sent to you, I hope you try to go plant based, just for 3 months. There are lots of plant based recipes online, but fruit is the key ;)
@@EarthsHalo can you pretty please tell me exactly what fruits you ate. And. Vegetables?
@@EarthsHalo what fruit and vegetables did you eat ?
My son was just diagnosed with this last week at 21 and it was a shock as I have never heard of it even working in the medical field for 17yrs. My family and I are tremendously grateful to all the doctors and nurses at Mount Sinai Hospital in Toronto for seeing what the problem was in 2hrs. He was a normal healthy young guy no under lining health issues and all of a sudden one night he started feeling sick, tired, migraines, dizziness and couldn't even make a fist.
Sorry to hear that, have your son vaccinated before this ?
@@antonpardede9510 no he hasn't
@@joansam9217 you may give him zamzam water and ajwa dates, consume it everyday, my mom also diagnosed with trombocytopenia and she recovered. I hope it helps.
@@antonpardede9510 thanks will look into that. Stay bless and thank you for sharing your journey with us.
I have ttp to
I want to speak with you or your son 🙏
I was diagnosed with systemic lupus in 1991. I also have rheumatoid arthritis, Sjogrens, and narcolepsy. And I found out I have Von Willebrands disease in 1994. Several months ago I got a strange non-itchy rash on my lower legs. I've never heard of TTP or Purpura until today. I stumbled on them while researching, trying to figure out what the rash could be. I'll be calling my hematologist on Monday. 😕
My mom was sick one day before she knew she had ttp at the age of 73 years old ...she died 2 days later....I have never heard of ttp before tell now and as soon as I get a chance I would want to be tested for ttp before its to late...R.I.P mom love you
Sorry for your loss. My sister passed away from TTP this morning. I too have never heard of TTP until now
❤
🙏🏽🙏🏽♥️
I have TTP too. Thank you for making this incredible film, it brought tears to my eyes. This disease is so rare and so you don't see publicity like this. I shared this with my friends. It is difficult to diagnose TTP so it's important to spread the word.
Hi Amber, I had ITP for most of my childhood growing up, and I want to tell you that I cured myself by eating only fruit for 3 months, My platelets went in the normal range and I never had it again, and its been 20 years since.
I found out after it was the nutrients and minerals that I was lacking. If you are on processed foods then go plant based for three months and watch your ITP disappear as you heal and replenish your body with what your microbiome needs.
Much Love sent to you, I hope you try to go plant based, just for 3 months. There are lots of plant based recipes online, but fruit is the key ;)
@@EarthsHalo Good to hear - My 9 year old have TTP and I will put him on plant based diet and I hope it should work for TTP too
@@raviprasad88 how is your son?
I had dengue and my platelet count changed from 90000 to 62000 to 40000 within 3 days of finding out...i was admitted when I had 62k even though they injected me with 2 bottles of trip a day and 3 tablets platelet count reduced and stayed 40000 for 3 days...then increased by eating papaya, pomegranate, vegetables, kiwi....so going for plant based food is very important and drink water...after 5 days it went up to 1.5 lakh ... admitted in hospital for 5 days....now completely fine...if i waited for 2 more days I don't know it would have been this easy to recover count would have been reached 0...
@@EarthsHalo can you tell me what fruits you eat ?
Since I was diagnosed in 2013, I've watched and shared this video hundreds of times. I hope Jose is doing well.
Just in case you missed something??
@@gmoneyApexTrader8no, it helps me explain it to my friends and family
I just got of the hospital spent over 2 week found out I had ttp my count was at 9 and went in a coma my count is at 240 now and hopefully it stays that way
I wish id known about this illness before i lost my son to this two and a half years ago he was only thirty.His life may have been saved if people had known more about it.He died out of blue without warning leaving four children behind.I think this illness should be exposed to the general public worldwide as should sickle cell(my husband is hbss)which is full blown sickle cell.
So so sry to hear this
Thank you doctor
I also have ITP.... bleeding can be such a pain to live with. So many nose bleeds and ER visits. I document my journey on CZcams too.
Which is more dangerous in your opinion, ITP or TTP?
Hopefully he gets well ... My cousin passed away with this kind of sickeness
Lost my best friend to TTP in 2007. Not much was known about it back then.
My dad was diagnosed with this last summer so heartbreaking thought I was going to loose him so sad that he’s going through this
Hi Thielen,
Please let your Dad know theres hope if he quits the bad foods and eats prebiotic and probiotic foods.
I had ITP for most of my childhood growing up, and I want to tell you that I cured myself by eating only fruit for 3 months, My platelets went in the normal range and I never had it again, and its been 20 years since.
I found out after it was the nutrients and minerals that I was lacking. If you are on processed foods then go plant based for three months and watch your ITP disappear as you heal and replenish your body with what your microbiome needs.
Much Love sent to you, I hope you try to go plant based, just for 3 months. There are lots of plant based recipes online, but fruit is the key ;)
@@EarthsHalo which type of fruits
Sadly my step daughter just passed away from this terrible disease brought on.by SLE Lupus ! It killed her out of nowhere! I still cant believe she's gone!😥
Tracey Manzano sorry for your loss
I'm so sorry 😢 x x x
My brother is 12 it started off with him turning yellow eyes turn yellow he had very low platelets and had three blood infusion so far. He was just diagnosed with TTP my dad does have lupus. So far Lupus is negative for my brother. He’s been in the hospital for two weeks I’m waiting for him to come home.
My father who is 70 recently got sick with gastrointestinal bleeding and now diagnosed with itp but because of poor medical treatment in nagaland India we need to go out but because covid 19 we are stuck here n his condition is becoming worse... Pray for him...
How is he now?
My father has stomach cancer now and just went for his 4th chemo... He is still fighting
Totally different energy before and after treatment. He must have felt really wasted before tx
what are those thin strands that split the RBCs/where did they come from?? I did not understand the transition to their introduction, I guess. Doing a short paper on TTP for Anatomy.
same here
It seems that my mom died of this, at least the hemathologist suspected it, but it was already in a critical stage, so nothing could be done. I wish I could have seen this video before...
I was in critical stage my platelets got down to 50 then 2000! Instead of normal 140.ooo They shld have given her plasma Pharesis!! I'm so sorry for ur loss bless u 🙏🏼🙏🏻🙏🏻💔😪
@@sandcastlelyndylynneklynch766 Thank you. I'm glad you are fine.
I was diagnosed w Lupus (&many other auto immune diseases) in 1987 I then got A severe case of chronic TTP (twice) in 1995 &97 I lived 8 months on oncology floor at hospital having the community blood bank coming in daily getting 13 units of donor plasma for 8 hours every day through Plasma pharesis. Eventually coming in every day as an outpatient doing it. I suggested to my Dr if he could Just INFuSE the plasma instead of TRANSFUSE & it worked ! I only needed 3hours of plasma instead of 8 hours of taking my blood out, separating throwing my plasma away & putting my whole blood & donor plasma on me thru plasma pharesis! Matter of fact my Dr was so happy he wrote a paper about my idea how it worked & he had the paper published in a medical journal & he told me that it helped many patients !
Now in this video they it sounds like there is a medication & patients don't always need Plasma Pharesis ? Wow so cool! Also now that my TTP went into remission I have Completed opposite another but different auto immune blood disease called Anti phosphis lipids where my blood is Now Too Thick ! When I had TTP my platelets were 2000! Now I have Also DVTs! Unfortunately I have an ivc filter in me (cuz the. Blood thinning meds are too dangerous) & the filter is a Recalled one! But it's working so I'm not rushing to have it taken out tho I shld so it doesn't break
But I'm happy positive & just trying to live like I don't have 13 diseases ! LOL blessings! 🙏🏻🙏🏼🙏🏽
Hi, Lynn thank you for sharing this personal information. I can't imagine what you have gone through. I am a medical student and I think sharing these stories is very helpful to help me learn how different illnesses affect the person. God bless.
@@moformedicine1260 thank u,I think it's grand u are studying medicine & taking time to learn that every single person has different symptoms, treatments etc ! Ur welcome to ask me anything at any time!
@@moformedicine1260 I was just diagnosed w M-Gus(my mom has that&my daughter just got tested n one brother is getting a test also) , but then i had Smoldering Multiple Myeloma & now they wanted to do bone marrow biopsy for full multiple myeloma but i talked dr out of it as the xrays did Not show Blasts or anything, but whats scary is my symptoms actually sound like leukaemia when reading on Google ! Ugh & all I really want drs to fix is the drenched sweating when sleeping or the extreme tiredness & the sharp pain that is where my spleen,liver,pancreas area is!! Not sure what to do, cuz mentioned to the oncologist I was sent to about M-spike protein gamma & he says he only treats that!!!? (My TTP hematologist oncologist from 90s is at another provider & the current hematologist oncologist I had for apl & DVT & etc, moved almost 2 hours away tho in same provider & this oncologist says I need to go back to general Dr n start over w referral to Dr who threats or I can travel 2 hrs or maybe try n get referral to the one I had in 90s?! It's silly, I thought all drs of oncology treated everything! ?ugh, idk but I live in hit spot w covid bad so I'm not gonna go search for trouble , I've been dealing w this for few months already (That's how I stumbled on video above on one of the times trying to figure out what's up!?! Sorry I vented LOL health care is messed up in USA n now trump made it worse by stopping the affordable care act during a pandemic!! #keepstudying 📚🔬💉💊📠 #StaySafe #MasksOn #MasksOnOhio 😷😷😷📈📈📋 #KnockOutCovid19 🔞🔞🔞😷📉
@@sandcastlelyndylynneklynch766 Thank you so much. I do what I do because I want to help the patient, give them answers, clarity, compassion and so on. I know it must be sooo frustrating for you to have sooo much going on and so little answers. Blood disorders, unfortunately, get less emphasis in medical school. I am not sure why. This may be due to blood disorders being less prevalent than some other ones and also the fact that lots of blood disorders or genetic or less understood than other disorders but there could also be a lot more factors. I haven't gotten a chance to look at leukemia and some other blood disorders but I enjoy learning about something. I have the necessary resources to learn about these things so I will go on a project to learn more about this, this week. I love to help people who are hurting. Even if I could just point you in the right direction I think that would be great. And I'll get back to you. Thanks so much for sharing your story.
@@moformedicine1260 aww u are too sweet! Thank u! I appreciate u wanting to take time out of ur busy schedule to tell me what Dr I need to go to & everything!! But truly u are very busy studying & currently w our world's health crisis going on I don't want to take u away from any work u are doing!the world needs u more thsn I do sweetheart! U are such a blessing !! Tho maybe if I look up my latest blood work numbers & post em here along w all the symptoms I'm having u might be able to tell if I even have leukemia or not? Cuz i got to thinking maybe the current oncologist I saw for the multiple myeloma doesn't think I have? (My mom , adult daughter & I all read Google n it said my symptoms sounds like it? But we cld all be wrong? But, first if u do decide to look up anything for me, u MUST promise it won't take u long, that u wont stay away from work or studying or just UR life!! Cuz any free time u get not being a resident Dr , then u need time for family friends relaxation food n SLEEP! So u must promise me that u wld not spend more thsn 15-30 mins on me,ok?!?!! Pls take care n be safe & thank u sooo very much lynneklynch@gmail.com
I have it too, not diagnosed with a disease yet but I m transplant patient.
This disease may be caused by the lack of an enzyme (ADAMTS13) that is involved in blood clotting. Not having enough of this enzyme causes clotting to occur. As the platelets clump together in these clots, fewer platelets are available in the blood in other parts of the body to help with clotting. This can lead to bleeding under the skin and purple-colored spots called purpura
I just got diagnosed 2 weeks ago sigh
I have itp , and think I have had it a long time , as I had qfever,, in my mid 30s ,,and haven't been unwell ever since!!! I'm now my 60s diagnosed 12 months ago with itp and fatty liver ,
Hello I have medicine only for 15 days course it will cure completely trust me contact me urgently
Is he doing well now??
What are the symptoms
Damn when you see that many doctors walking to your room you know there's an issue with a bad diagnosis or they simply I don't know it's bad
Me to i suffering blood under the skin doctor said its purpura! I'm so scared that time when I'm undergo treatment because i had allergies of antibiotics and low platelets low white blood cells ...
God know's everything for any trials don't lose ur hope ❤❤❤
Hi Yhen I had ITP too for most of my childhood growing up, and I want to tell you that I cured myself by eating only fruit for 3 months, My platelets went in the normal range and I never had it again, and its been 20 years since.
I found out after it was the nutrients and minerals that I was lacking. If you are on processed foods then go plant based for three months and watch your ITP disappear as you heal and replenish your body with what your microbiome needs.
Much Love sent to you, I hope you try to go plant based, just for 3 months. There are lots of plant based recipes online, but fruit is the key ;)
@@EarthsHalo can you please tell me what type of fruit?
@@icediamonds11 All kinds of fruits and vegetables you must consume, but you also must cut out junk foods, grains, dairy and red meat for a few months to get the blood to heal and repopulate.
@@EarthsHalo I'm not trying to bother you but can you tell me the names of the fruit and veggies
@@icediamonds11 Yes of course :)
So with ITP you need more Vitamin K and Vitamin K2 to thicken the blood.
You need to replenish Your Vitamin K, and K2
Blueberries, Blackberries, Pomegranate, Red Leaf Lettuce, Spinach, Parsley, Cilantro, Natto, Kale, Brussel Sprouts, Asparagus, Cabbage, Soybeans, Cucumber, Peas, Broccoli, Onion, and extra virgin olive oil
But the most potent and fast-acting are the Vit K herbs like Parsley, Oregano, Marjoram
Add Parsley to Every Meal! I sure do Hehe
And Natto and mustard greens are Excellent to replenish those blood cells. Natto also is a Great source of Probiotics.
I know I have some kind of purpura and I’m still don’t have a diagnoses yet. Also have sjogran and R A
I have Lupus Sjrogren RA, MCTD, Raynaud's, Osteoporosis , Neuropathy, Had Chronic TTP now opposite with Anti Phosphis Lipids, DVTs & Superficial Clots , Psoriasis , Ebstien Bar, Had Mononucleosis , Chronic Fatigue Syndrome ,& few more ugh! I can't even think all I have! So I try to IGNORE it all! & Just be as positive & happy every second !!! Blessings to u, I pray they figure out what's causing it?! 🙏🏽🙏🏻🙏🏼💔😪
I’ve had itp my hole life I hope you can find a cure because I wanna be like every one else I’m 11 and the doctors think I’ve had it ether since I was born or when I was 4 so I’ve had it for years and I can’t do Activity sports because of it
Aww I'm so sorry to read this. Keep being happy & U are Normal & Like every one else ! U just have this you are living with. Stay happy & be yourself ! God Bless You& Your family & Doctors 🙏🏻🙏🏼🙏🏽💜
The way you feel is painfully familiar to me too. I’m 27 yo and I was diagnosed with unidentified thrombocytopenia at age 5. I’ve been in and out of hospital for my entire life with 12 years of remission until October 2020 when they diagnosed me with TTP. I can’t hold my blood counts even after plasmapheresis and plasma intake. Doctors also think I was born with it but it got worse after I got pregnant. I had an abortion because they couldn’t save both me and my baby... I’m in hospital for 2 months now undergoing plasma treatment every day.
I have it too. I pray for both of us.
my symptoms was blood urination clots in. Mouth etc
the owner of this account has a TTP what treatment is best for him?
I had Plasma Pharesis then when my platelets got higher I suggested Infusing just the donor plasma instead of TRANSFUSING n. It worked! My Dr even wrote & had a medical paper published w my idea in 1997! There wasn't medication. Back then like the fellow in video had! Blessings to u! 🙏🏻7🙏🏼💔😪
So from the age of 15 I was diagnosed TTP I am one of the rare Patience in New York The had it From the age of 15 to 24 I was dealing with it When I turn 24 They gave me retoxen It's A pre Cancer medication They said it Will prevent any flare ups in 5 years an boy it lasted a long time when I turn 35 2 years ago an I had a flare up And had to go through the procedure all over again then I got retoxen an here I am today about turn 38 I'm very grateful I came along way from hip replacements an Overdoses from prednazone SMH they really mess me up even the make a wish had something special for me
Hello I have medicine only for 15 days course it will cure completely trust me contact me urgently
Thrombotic thrombocytopenic purpura (TTP) is a blood disorder that causes blood clots to form in small blood vessels around the body, and leads to a low platelet count (thrombocytopenia).
That is the opposite of ITP yup
Poor kid😢
Hello I have medicine only for 15 days course it will cure completely trust me contact me urgently
I m suffering from ITP and appendix swelling at the same time can someone suggest that surgery for appendix will be ok or not
No it wont work
Hi Gautam, I had ITP for most of my childhood growing up, and I want to tell you that I cured myself by eating only fruit for 3 months, My platelets went in the normal range and I never had it again, and its been 20 years since.
I found out after it was the nutrients and minerals that I was lacking. If you are on processed foods then go plant based for three months and watch your ITP disappear as you heal and replenish your body with what your microbiome needs.
Much Love sent to you, I hope you try to go plant based, just for 3 months. There are lots of plant based recipes online, but fruit is the key ;)
Jdilla died from this same thing 😔😔
I have same problem from childhood. Now I'm 27 years old. My platelet count around now 20k. Every couple of years between I'm trouble with this problem because i have bleeding problem from nose and mouth, and some time from down private part. i have many times admitted in government hospital.I can't get treatment in private hospital because my financial condition is not good.
Hello i have medicine
Hello I have medicine only for 15 days course it will cure completely trust me contact me urgently
What was his prognosis?
Ashley Mieritz without treatment mortality is 90%, and with plasma infusion where the person gets some Adamts13 enzyme , mortality is 10%
it's been difficult finding information on TTP (I was just diagnosed last week). Does anyone have any support groups or more information on TTP?
Alissa D. TTP(Thrombotic thrombocytopenia purpura) Venting: Zone Life after TTP on Facebook... I have TTP
Alissa D. TTP & beyond support group on Facebook
I wonder if this is from something from the environment from back in the day that nobody (government) is talking about. A lot of people started getting this rapidly in the 80s......
It can occur from vaccination, although rare, I’m one of those lucky ones lol. Covid vax has caused both platelet destruction and blood clots in some individuals
Hi I have had this decease before and I was 6
Just say *you HAD* not have had!!!
After what inoculation ???
💉
I'm Italian and I've been suffering of this desease since June 25th 2012. Now I'm fine tahnks to the use of the Rituximab a medecine which was able to prevent my Immunosystem to keep on distroying my plateles. But I know that in the future It might be possible that I will suffer again of this disease....
Dear chiara, I am From India... My daughter suffers from Itp, her platelets are less than 20thousands... Last month she was given ritoximabe 3 injections once a week each...
How are you feeling Now.
Are you cured, then you are blessed
I am worried about my daughter
@@Smy12 , Hope your daughter is doing well. I am jyothi from India as well. My daughter (7.6yrs now) is also suffering from itp since 2.5yrs and her platelet count is around 50k to 70k.
@@jainivamshi4354 what kind of treatment did u take sister 🤨?
Merhaba, bende ttp hastasıyım 17 yıl ara ile tekrarladı. Merak ettim siz nasılsınız şimdi,bu hastaların ortalama ömrü hakkında bilginiz var mı?
You are talking as if you are not happy that the doctor saved your sisters life.. would you have preferred for her to suffer with this horrible disease and potentially lose her life..?
They're thinking this is what my fiance has. He's in a coma and they're sending him to Emory to get the official diagnosis and for treatment
Hello I have medicine only for 15 days course it will cure completely trust me contact me urgently
im a black brittish and has the itp not sure whats going on but jumps to 70 a few weeks ago now its 57 count its always been low since its been discovered ....i now see a hemo and im not sure if they're holdingn out on me ..i get a check up every 6 months ,now its 3 months ...im so wanting to know why .its states the cause is unknown ..but im the only one in my famlly known to this condition ..
Hi Palmer, There is hope, and a cure.
I had ITP for most of my childhood growing up, and I want to tell you that I cured myself by eating only fruit for 3 months, My platelets went in the normal range and I never had it again, and its been 20 years since.
I found out after it was the nutrients and minerals that I was lacking. If you are on processed foods then go plant based for three months and watch your ITP disappear as you heal and replenish your body with what your microbiome needs.
Much Love sent to you, I hope you try to go plant based, just for 3 months. There are lots of plant based recipes online, but fruit is the key ;)
This is what happens when everything is scapegoated as genetic
@@EarthsHalo can you please tell me what type of fruit and vegetables you ate?
i been having low platelete and red cells since i was 11
Hello I have medicine only for 15 days course it will cure completely trust me contact me urgently
Somone use eltromopag to treat itp?
Yes, it didn't work for me, unfortunately
My uncle also suffered from similar problem of low platelets dur to itp. He went from doctor to doctor but of no use until he heard about this Itp care pack from Planet Ayurveda. He used this pack for around two months and results were really good his count went higher than ever since when he suffered from this disease. Then contacted in their clinic and took proper treatment and now he is doing really good
I found out i have from a car accident
Sooo sad my bf have that 😢
11 days in the hospital 🏥 that's going to be extremely expensive
Lives cost a lot more 😢
I had TTP when I was 3
Hi
Do you still have it ?
If yes please tell how do you manage it .
If no please tell how you treated it
@@dhimanyashpal is there any in ur contact who had thi?
@@dhimanyashpal Indians are also suffering from this😔😔
@@knnegi yes my sister in law's daughter is suffering from it .
She is 10 yrs old.
Is there any cure for this ?
@@dhimanyashpal when u came to know about this....what was her symptoms?
JOSE, HOW MUCH MONEY DID THOSE Voltures take from you
U complain about couple days... I was a entire year at hospital for ITP lol
🙏🏽🙏🏽♥️🤴🏽👸🏼
I just got the call that my platelet count is at 1. I have Evans syndrome.
How are you now, hope all went well.
I'm glad to report that I have been symptom free and off medications for over 7 years.
I was on a high dose of prednisone for most of 2 years and received emergency IVIg infusions several times.
In late 2011 I underwent treatment with Rituximab. We then began tapering off prednisone and things were looking good. About 7 months after the Rituximab things went bad, Evans returned. Anemia, bruises, petechiae, purpura, bleeding, and not healing were all present again. Late 2012 to early 2013 we did the Rituximab treatment a second time. Over the next few months I did several juice fasts. I consumed only organic fresh vegetable and fruit juice that I prepared daily for stretches of about a week at a time usually. No other food was consumed. I was able to taper off the prednisone and have been symptom free ever since.
@@Qbaca can you tell me what exactly which vegetables and fruit you ate ?
@@icediamonds11 I can't say exactly but it was mostly green stuff. Lots of lacinato kale, carrots, apples, oranges, lemons, ginger, plus a whole bunch of other things.
@@Qbaca ty
hello sir, this is a very informative video. my colleague was also suffering from this condition. she visited many hospitals but no one cure this disease. everyone says that this is an incurable disease. but one day she came to know about Planet Ayurveda. he visited there and they gave her an ITP care pack. now she is fit and fine.
Can you give me the addrees and tel of Planet Ayurveda pls Can you ask your Colleague pls
My brother suddenly got red-colored rashes over his baby. We got feared and immediately rushed him to the hospital. The doctor advised us for CBC test, he was having low platelet count, it were around 45,ooo, Steroids were started but we did not want to continue with them as they are having lot of side effects. We thought of trying Ayurveda and visited planet Ayurveda. Dr. Vikram Chauhan prescribed him with "ITP care pack". My brother is much better now.
Where in India...bcz my platelet count is also around 80k to 1 lakh . Few time blood spot like mosquito bites .. where to contact. Plz give me address
@@SanjeevKumar-mc7vu Mohali, Punjab - Near Chandigarh
@@SanjeevKumar-mc7vu I contacted #PlanetAyurveda on their whats app no: (+91) 991-559-3604 they guided me properly
Please can you give me the address and tel number of Dr Vikram Chauhan i will appreciate your help Thank you
Oh my God even in youtube hematology is still hunting me grrrr #medicalstudenthere
Well..doctors are the existing gods
Middle finger for ancestors
Julia Roberts illness
My mom is in the hospital now she has TTP I don't know what to do i hope she has more years to spend with me iam from the Philippines 🥹 its really hard for me iam the only child