My thoughts on PPPD
Vložit
- čas přidán 24. 07. 2024
- Discussing how psychophysiological dizziness, chronic subjective dizziness, visual vertigo, and phobic postural vertigo were the predecessors to PPPD and how those terms were maybe more specific but I'll let listeners decide and I'm open to hearing thoughts and comments.
I’ve had internal vertigo for 3 years. I started out of nowhere after a rise in my anxiety due to a college class. I have GAD and a panic disorder that comes and goes periodically. I’ve been on SSRI’s most of my life. After a test one day, I left class and was walking down the hallway and felt like the floor was moving. It started getting worse from there and I began to feel lightheaded and more anxious. Then it became debilitating and I felt like I could barely walk because I felt so woozy and off balance. Kind of like when you get off of a roller coaster. Since then I’ve gotten better but I still feel a constant doggie as in my head. When I’m standing or walking through a store I get extremely off balance and feel head drunk. I get dropping sensations and start to feel light headed as well. I’ve had every test done possible including my heart and a brain and spine MRI with no answers as to what was causing it. I began to accept that it was just my anxiety. It gets worse the more anxious I get. My theory is that due to the increase in stress hormones, it somehow disrupts the vestibular system. I hope I don’t have to live with this for the rest of my life but by doing my own research I’ve come to the conclusion it is anxiety related.
Very well written! I have the exact same thing and the doctors can't sort it out. I got it for 3 years now as well. In some periods its gone, but then it can come back and stay there for many months and get even worse. In the stores I sometimes need to grab a shelf in fear of passing out or something. Have you found a way to get better? In the worst days it's almost that I want to end it all and leave this body, its horrible..
Yes you absolutely right id like to talk to you about it I gotten same please text me back
Thank you so much for all your videos , I already found tons of answers for my condition, but I am looking forward to my consultation tomorrow with you 🙏🏼🙏🏼🙏🏼
I never really felt "dizzy" like I was about to drop, but I had this weird visual lag when I moved my head side to side, it's a nightmare fuel for a hypochondriac. In the beginning I felt it everywhere, after few weeks it was only when I was standing up.
After 2 years it got way better without any exercises or pills, maybe because my anxiety dropped significantly during that time. But it still can flare up when I'm stressed... And I can agree with being visually dominant.
Great information. Interesting that viguorous exercise might be beneficial, I will give that a try asap. I've had pppd for over 4 months and I do believe I am making positive progress,(this progress is by no means immediate) I took a long walk this morning with just a little anxiety. Then I decided to drive on the interstate after the walk, and drive at high speed for 10 miles, (perhaps I'm visually dominant and should have just taken the walking victory) the driving test did not go so well, I got off the highway after 5 miles and my anxiety level was extremely high. You learn something everyday day in your effort to improve your condition, keep working your plan. Be patient as there is no quick fix. This was very helpful, I have the exact symptoms you described.
Hi, thank you for your content-- my PT and I have decided what I have is a combination of PPPD and motion sensitivity. Sometimes my symptoms are NQR/non spinning dizziness/head floating/disassociation, and other times it's feeling crappy (like nausea), and it's always triggered by specific positions (putting my head to my knees, putting my head back far, fast motions, rolling onto my left OR right side from my back, or coming up/down on my left side).
We're doing exercises that address these triggers VERY gradually and slowly, but it can be so hard, especially as an HSP, nausea is one thing I CANNOT handle. Neuroplasticity experts always say to focus on how you WANT to feel, and what is your body trying to tell you? Well, the answer is, my body is screaming at me to get out of that position and return to safety/normal!!! My body is telling me those positions aren't safe for me anymore. Is this valid? Do you have any special suggestions?
I should probably do a video on this question. In the chronic pain arena the anxiety surrounding moving and having a pain trigger are referred to as fear avoidance syndromes. It is a very similar process for dizziness and vertigo patients in my experience. I will attempt to go over this in a future videos.
@@gatesbrainhealth2639 I would love to hear more about this! As a chronic pain patient with PPPD, I relate to what you are saying about pain avoidance and knew that was generally not a good path to get on. Can you talk about this in relation to vestibular rehab too? I am in rehab but have been encouraged to avoid a lot of my triggers or only minimally engage with them which has been sort of stressful since they are pretty prevalent (sitting, using my phone, etc) throughout my day. I feel like it has made my anxiety worse actually.
Hey, just wanted to say I understand! I am having similar issues. It’s hard to know what to do. I hope you feel better soon!
Excellent presentation. What’s the success rate in overcoming PPPD with the outlined treatment in this video? Thanks again!
Thank you for this!!
VERY helpful talk thank you so much!
Last February I had my second Pfizer shot. The next day I felt ill as I did after the first shot. On the second day, I got up and walked to the kitchen for breakfast and had an onset of Vertigo. The Mayo clinic sent me to a therapist who diagnosed me with BVVP in my left ear, did the Epley maneuver and sent me home with exercises. Several days later, I was feeling ill and went to the ER and tested with goggles and was told I has a Vestibular Dysfunction in my right ear. I did the physical therapy and was told it could take up to 6 weeks to get better. I have not had another episode of Vertigo and my balance is better and I can function near normal. However I continue to constantly feel woozy and nauseous as well as fatigued. I recently went back to the Mayo clinic and saw an Audiologist who diagnosed me with limited function in my right Vestibular nerve (air blowing test). The ENT doctor told me he did not know if I would ever get better and said my next step would be to see a Psychiatrist who would prescribe drugs. I also had Covid a year and a half ago. It seems very suspicious to me that I would get this after the second shot. All the doctors I have seen more or less ignore this when I bring it up. I have been doing the prescribed exercises for this condition daily and have not had Vertigo since and my balance is livable, I am tired of feeling ill most of the time.
What VRT exercises are you doing? Do you feel a rocking/swaying sensation when sitting or standing still?
Thanks.
@@tehmanzino did you have a panic attack? I had a severe panic attack a month ago and several attacks after and I still have this boat swaying 24/7.... It's making me so depressed... People believe it's due to anxiety
@@k.baller5140 I’d say I did have a mini anxiety attack, the next day, recounting the events of the preceding night.
Anything helping you? Meds, and/or exercises?
Sorry to hear. Keep your head up and be positive! You’ll get better!
@@tehmanzino I don't want to take any drugs because I feel that makes my symptoms worse and also don't want to be dependent on them. I notice the swaying intensity changes depending on my anxiety so that starts to make me believe it does have a connection to anxiety... I guess the only solution is try to meditate and relax... The problem for me is I live with someone who causes me stress... When I had the panic attack, I felt gravity was pulling me more to the right side/one side... I don't have that sensation anymore but now it's more of subtle but uncomfortable rocking side to side... My panic attack occurred October 1... So I'm hoping/praying I could go back to normal end of this year...
@@k.baller5140 I hear ya on the drugs front. What have you taken, if you don’t mind me asking?
I do think some component is definitely anxiety related, and it can flare up when things get intense.
I, too, used to not be able to walk without swaying. Now it’s just like yours, while sitting or standing still.
Have you tried any vestibular rehab or exercises?
I have been suffering from non spinning dizziness for over a month now. It did start with vertigo but after doing the epley maneuver that seems to have gotten rid of the crystals at least I think so. I have done the epley again about a week ago but there was no reaction that time. But I do personally believe that I am now suffering from pppd. I am constantly dizzy, sometimes worse at certain times than others. My head is always feeling heavy and unbalanced no matter what position I turn my head. It does not hurt at all but I always feel like my head is being pulled in one direction or another and a lot of times it feels like someone is pushing down on my head but again there is no pain. A few weeks ago I felt like I had a rubber band wrapped around my head but that has gone away. The only time I feel decent is when I'm in bed and then I get some relief. But when it's time to get up I have to take it slow and just endure it with my head feeling heavy. I even have to be careful taking a shower and I have to be extra careful about trying to bend over or looking down. I do have an ent doctor appointment on August 20th. It will be my 2nd time seeing him since earlier this year. Last time I went to see him I had suffered vertigo but at the time my symptoms were gone for the most part. But now I have believe this is different so I hope he will do some testing and hopefully come up with something.
Hi , I can relate to all what you are saying. I feel relieved that I am not alone. I've been feeling like this for almost a month.I curious to know how your doctor visit went and how tour feeling right now.
@@reneeclifford7244 hello. I did have my ent doctor appointment last Friday but to be honest it was a waste of time. Long story short, I appear to be suffering from what is called post epley maneuver residual dizziness. I did the epley maneuver myself over 5 weeks ago and it did take care of the crystals that were causing my vertigo issues. However, for some people the residual dizziness part unfortunately can last for weeks or possibly months but it is hard to predict that because everyone is different. All I can do is keep doing normal daily activities and whatever makes me dizzy I just have to work through it because supposedly my brain and my vestibular system have to recalibrate and relearn each other and that can take time. So I am stuck with having a heavy feeling head and feeling unbalanced until my brain learns what to listen to as far as head movements are concerned. I could do vestibular exercises and I have tried that but I haven’t felt any difference so I’m not sure what to do for now except to endure the issues and hopefully they will get better soon
@@vernonson66 I have exactly the same after the epley. Heavy head and pulling to the left feeling. I had VN in March this year 2021. I hope you are feeling better?
@@vernonson66 how are you doing now? It was indeed residual dizziness after Epley?
@@nattygeorgina1137 are you feeling better?
I was diagnosed with Labs/VN after spinning vertigo and an ear infection on March 27th this year 2021. After 2 months I was healing but had rocking/swaying sensation. Had the Epley done by a physio and felt 'off' and not quite right, straight after! A few days later, with symptoms worsening each day I had spinning vertigo upon waking (crystals must of been put in wrong place). Well that was 3.5 months ago and I have gotten worse and worse. I still have rocking/swaying mildly but worse symptoms are a heavy head, like it's pulling me to the left (the side the ear infection was) I also have ear pain and pressure, along with ringing/buzzing tinnitus in left ear and sometimes now in my right. I also feel very unbalanced but PT tested my balance yesterday and said it was excellent- I never trip/fall but feel like it and especially when looking to cross the road. I'm sorry this is a long post, I just feel in utter despair at the moment and don't know what to do. I was doing well before the Epley and vertigo attack. My ENT thinks anxiety but my symptoms are real and debilitating me daily. Any advice would be greatly appreciated! Thank you!
My heart goes out to you! Perhaps seeing a functional neurologist may be of some consideration, they tend to have a different way or paradigm at looking at rehabbing inner ear disorders. If you want me to evaluate contact our front desk at info@gatesbrainehealth.com or 775.507.2000.
Did you ever have a panic attack? I'm experiencing the constant 24/7 rocking boat feeling... I looked up mdds, bppv, vesfixuoae migraine, etc... Everyone seems to all point to anxiety and no real cure.... 😭😭😭 I do notice the intensity of the swaying has changed... When I first had the attack, I felt gravity was pushing/swaying me more towards the right... Now it's more subtle swaying back and forth
We need more research into this area for sure, we must find an effective plan to combat it
Hello sir I have 7 years to problem,my mri,vng,eeg ,ncv test is normal but I have problems of dizziness more ,when I am standing than I feel vertigo like taking drunk , unstedyness occure what can I do sir? Very feel tiredness hall day I can't do any activity well so what can I do many doctors taking medicine but not solve my problem?
Any treatment suggestions?
I’m 29 months out from middle fossa brain surgery for a 1 cm acoustic neuroma and was just diagnosed with PPPD. I’m curious to see if any other PPPD patients are post AN.
Mine is when I drive or turn my head quickly. Also flourescent lights get to me.
I have started learning some stuff from a channel called the steady coach. One thing I’ve started doing is somatic tracking.
So what do I do with this info?
Do you know of any functional neurologists or oto-neurologists in Vancouver BC Canada you can recommend? I have lived with PPPD for years now and need some help
After recovering from BPPV is it normal to have brain fog for a while?
Hey Jessica, I just posted above to someone mentioning their "residual dizziness". It's been 5 months for them and I'm trying to get a response back to see if they're better now. I heard it can take up to 3 months. How about you? How are you feeling now?
I became dizzy following my Moderna vaccinations, after my third jab I was incredibly sick again which made the dizziness even worse and left me walking with a stick at age 37. I spoke to my ENT doctor who told me that hundreds if not thousands of people are complaining about PPPD after their vaccines. I can’t believe I was almost bullied into having these vaccines and now I’m sick and have been dizzy for 12 months straight.
Idk about the Moderna vax but in the Pfizer papers it was discovered that they knew it crossed over all the membranes, even the blood brain barrier. If Moderna is the same perhaps thats something to be looked into. Sorry you got bullied. I was unemployed at the time and not actually very well so I didn’t have a bunch of pressure to get it. I hope you figure it out. I’ve had trouble for nearly thirty years but not always debilitating but always annoying and anxiety producing.
Brain fog and confusion is include these symptoms
Would HBOT work well for PPPD?
I'm not sure, that is a great question though. I have never seen a PPPD patient who did HBOT.
Ive done 6 mths hbot...great for cognition brain fog....but no help for balance...visual pt will help balance in months....once balance is better with eyes you can do habituation excercises to help the bad vistibular responses (eyes closed)...its quite a journey
👍🤔