My Life with Chronic Illness PT. 2 | Venus Williams
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- čas přidán 11. 09. 2024
- I'm back again to talk about chronic illness, specifically Sjogren's syndrome, and feeling fatigue in your everyday life. If you're constantly feeling fatigue there's different ways to help prevent this, to help you live everyday to the fullest. Join me as I discuss different ways I take care myself to help subside the fatigue feeling.
If you are dealing with chronic illness, I'd love to hear how you deal with it in your everyday life.
The effects of Chronic Illness: my.clevelandcl....
Get involved with the Sjogren's Foundation: www.sjogrens.org
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I really appreciate that you're not pushing BS or promoting nonsense, but rather sharing your experience while also indicating to consult a doctor and to advocate for your health. This is key. Like in any profession, some doctors are good and some are lazy and/or arrogant. If they don't listen to you or try to minimize your symptoms and you feel there's something wrong with you, seek a second or even a third opinion.
I was just diagnosed with Sjogren’s. The fatigue is the most prevalent of my symptoms. I honestly just thought I was just being really lazy these last few years. It’s definitely a level people who don’t have it can’t understand.
You just said the exact thing I always think and say to others. I keep telling myself I'm lazy. But...I know it's really not that.
Wife is a flight attendant, occasionally runs into celebrities. This can go either way... Had Venus on a flight and interacted with her recently. Nothing but good things to say about Venus. +++++
Venus is here everybody ✅
Right, I immediately clicked away from the podcast to which I was listening!
Thank you so much! It’s great to have someone like you to give those of us with Sjogren’s a voice.
Venus...has mastered being comfortable in her own skin..Big Ups Sis🙏🏽🎉
My chronic illness is mental health. My treatment is 30% medication, 70% tennis. The more I play, the happier and more stable I feel
I'm sure that was her way of dealing with it too. :(
Venus, you have such a gift for speaking in a soothing, thoughtful and informative fashion. You are so much more than a talented athlete. Thank you so much for doing these videos!❤❤❤
I love listening to this eloquent woman giving hope. Gosh your family must be so proud. I am so sorry to hear you are experiencing this illness Venus. Chronic illness is debilitating, silent and not discussed in mainstream media. I noticed you seem out of breath in an earlier video. I've only seen you through the lens of playing tennis in a competitive arena thus I am really enjoying getting to see the real you... sharing your lived experience. A beautiful thing. Unfortunately pernicious anaemia is more prevalent in African Americans. Blessings to you and your family. Keep pushing through. Of course, I've subscribed immediately.
I love you, Venus. You have such a kind heart! I owe you a thousand hugs
Thank you for sharing and raising awareness about chronic illness and fatigue. As someone with ME/CFS I feel seen and validated. I appreciate you ❤
You’re so helpful and I love your positive attitude. I have fibromyalgia and understand the fatigue - it’s real!
Take care 😊
Thank you so much for shining a spot light on this. Dealing with chronic fatigue and autoimmune desease is so isolating. People don't understand it and it can be so isolating
I suffer from chronic pain due to nerve damage in my back (for about 16 years) and some other health jssues due to a brain bleed. One thing that has helped me get on with my life is the fact that my doctors gave me the ok to keep playing tennis. I cant play at the level i used to and in a lot of pain when i do (though not doing more damage), but it brings me such joy - making it totally worth it. Don't get me wrong - i still get frustrated or upset sometimes that i cant compete at the level i could, but i remind myself its better than nothing and find the up side of being on court. Thats why i find you such an inspiration. The fact you are still playjng at the highest level with your health struggles.... honestly we are STILL incredibly lucky to watch you compete. Hope you have as much joy playing as we do getting to watch you 😄
You video popped up as I was having a pitty party because it took me three times as long to get to 10km on the bike this morning. Video helped me realize we are still doing more than 'healthy' people. MS fatigue is a reminder to slow down, read books and enjoy pajama day.
Awesome video V! With everything you’ve dealt and deal with regarding your health and just life in general, your grace and poise are always to be admired and you will always be an amazing inspiration to us all, and I LOVE seeing you out there on court going over 30+ years strong in the game! You deserve it ALL V! We love you and will always support you!
I second that.
As many of us who use our minds to work, it's hard to see our fatigue. I always say if I work construction you could see the dirt on my clothes to know how tired I may be. Thank you Venus for the reminders to be proactive about fatigue,
Slow release iron tabs are great. Also try adding a magnesium citrate tab to resist iron constipation.
𝑴𝒐𝒔𝒕 of us girls will have low iron by nature. Stay on top of it & resist anemia. Fatigue, pica, hair loss , heavy menstrual & shortness of breath are common symptoms of anemia.
Stay encouraged all💕
Autoimmune diseases have a lot of the same symptoms that people who have long covid have. One of the similar symptoms is fatigue. Fatigue that is often debilitating.
Long covid is a disease that is not being discussed despite millions of people suffering from it world wide. If you come across this comment and have long covid please like or leave a reply.
Venus thank you for using your platform to shed light on auto immune disease and the difficulties navigating through life with it. ❤️
I'm dealing with long-term Covid symptoms. Most docs I've come across have no clue how to treat or what it means. My primary do tries her best.
I’ve read that long term covid can be help with Vitamin D, Quercetin, Vitamin C, & something else I can’t recall right now. Hope you get better!
Ms. Williams, thank you for opening yourself to help all of us! I find your sincerity, humbleness, & and genuine heart to reach out to help us very endearing!!
I was diagnosed as borderline Sjogren’s. I have dry mouth & eyes, fatigue, & Osteoarthritis. I may have other symptoms that I’m not aware of. The doctor didn’t explain all of the symptoms to me nor did he explain about diet & nutrition that I should considered. I learned more from you than my doctor!! So, since I was borderline and the doctor didn’t think I need to be on drugs, I went about my life as tho I was normal and I didn’t pay much attention to the symptoms. My dry mouth, eyes, & fatigue bothered me a little. Then, I was introduced to a a scanner that gives off frequencies & started scanning myself with the frequency for Sjogren’s. I noticed now there are times I was getting more saliva than usual and didn’t feel as tired as I usually do. I’m hoping that by continuously scanning myself with the frequencies I can be eventually being 😅healed of Sjogren’s. I would share more about this scanner if you would leave me your contact information as email or phone number & I’ll try to get back with you when I see your request. The future of medicine is not in drugs, it is in Energy!!
Thank you Venus for your display and fully being transparent about these conditions, you have inspired me to continue to fight for my health and being able to conquer many things in health care relating to autoimmune diseases/ chronic diseases and being able to communicate with providers and not dismiss our / Womens symptoms and to take us more seriously as our siloed health care system is not set up properly to successfully diagnosed with an individual treatment plan that assist with that individuals increase of quality of life and to continue to be our best at advocating for ourselves. I have learned strength and being a warrior for my own health through your videos , continue going further to better yourself . Thank you so much for helping us all with chronic/ autoimmune diseases continue the fight to be greater warriors in life and our communities ❤🌻🎾🏓👟
Venus I appreciate these videos so very much. I just got diagnosed with Sjogrens a few days ago. Everything you said about being tired and in pain is what my life looks like right now. The frustration that comes with the limitations is real 😅
Thank you Venus!❤
Your words and encouragement are always so inspiring. Thanks for sharing this with us. As we are alive, we need to battle every day for the things that matter the most, We must have the conviction that somehow we'll come out on top!
The first time I met you I drove you to the supermarket so you could buy some ingredients for a meal to help you feel better. So honoured Vee ❤
Thank you for talking about Sjogren’s and living with it. I was just diagnosed two years ago with Sjogren’s and always thought fatigue was due to having low hemoglobin.
Thank you so much for making a safe space to learn about auto immune disease. I'm newly diagnosed with sjogren's along with Rheumatoid arthritis. God. What a breath of fresh air to be on a platform where you can say me too.....Thank-you and Bless for sharing 🙏🏾 also this is a fantastic tool to help explain to your family about these disorders
Hi ! I have bean dealing with Sjogrens Syndrome for the last 20 + years. This has bean the hardest in the last 15 years. I know part of it is all the stuff that has happened this year.
I had a car accident in Nov 2023. 3 fracture ribs a, fracture sternum a, compression of L 4 ,5. In March I had a total knee replacement in August I had my second only gout attack, I also have RA,and fibro. I have bean so tired and sore. I just can't get beyond this and I heat being like this. I have all was bean active. I look around my house and see all I should be doing and just want to cry. I am sorry for dumping on you. Mary
You are such an inspiration
This is really enlightening, I've dealt with SS for 30yrs now... Lupus ruled out, but I'm thankful...
Thank you for sharing your experience. My mom suffers from chronic arthritis and it has been a very difficult period for her for the past 2 years. She will be 88 years this June.
Nobody keeps it as real as Venus!! 💯!!!
Thanks so much Vee for being so open & knowing people aren't alone, even if the doctors are struggling to help,just knowing people are going through the same thing helps a ton,thank you ❤
I battle chronic illness and I know the fight for concur every day and you give me hope. Every point you make on court I scream and chant "Let's go Venus, let's go"
Win or lose, I'm here for the fight! And I will go down swinging with you, always.
One day, I hope to get to see you live but until then, I'm with you in spirit.
Thank you for taking the time to help us.
Omg Venus I'm so in love with you and you are an inspiration to men and women around the world
Play more tournaments Venus! Maybe skip the clay because it’s dangerous and you’ve been injured. Keep fighting to the top of the rankings! 🙌💪💪💪
Love seeing you, even in this awesome capacity. Thanks, Venus.
Prayers for complete recovery queen.
Wow!!! I didn’t realize you’ve been struggling with chronic illness too! Thanks for sharing ❤
I truly appreciate your mention of ferritin levels and then vitamin c with iron supplements.
And the finding the right doctor! Yes, I've had many experiences with feeling the medical gaslighting. Finding a doctor who listens and is going to help see what is and not just dismissive is so important
I am on permanent life long chemo for breast cancer which returned and it makes me ridiculously tired and extremely vulnerable to infection but none of this is visible to others so you tend to get judged by them more than you would if you broke your leg and were hobbling round on crutches 🤷♂️
I hope you keep posting frequently. I have chronic health issues and am dealing fatigue. I also played tennis in high school. I love tennis and grew up watching you and your sister play!
"OUR BODIES IS THE TEMPLE OF JEHOVAH. BLESS UP." ❤🇬🇧❤
I've just been diagnosed with sjogrens after years of suffering and being dismissed by doctors I'm currently on hydroxychloriquine for past three months with no improvement but at least I now know what I'm dealing with and I won't let it beat me even though it gets me down 🙏
wow. I m sorry you went through that. I've had my fair share of indifferent doctors as well, and it's not always affordable. What was the thing that finally gave you the right diagnosis? I'm struggling with severe fatigue for months now and nobody is sure why...people keep telling me to see a therapist!
Miss you Venus! It’s so hard to get a diagnosis! It’s also hard to get clear answers from the doctor! Must have a real good rheumatologist to really help you through the process of managing the disease to prevent and or help symptoms! Healthy smoothies changed my life for the better!
This is so timely. I feel tired all the time and I thought it was just because I have a toddler but I HAVE been told my iron is low so I will look into better supplements.
Also, constipation is rarely a problem for vegans/chegans!
Venus. All round superstar & great human ❤
Thank you for your honest insightful and upbeat postings. So many of us on these complicated health journeys. 🌺🛣️🌟🦋🌈
Your appearances that still happen on the WTA a source of wonder and admiration for me. Living solo and sequestered for decades the tennis season remains a beacon of light for me .. a vicarious time for me.
Venus looks so good, it hard to concentrate on she is saying. One thing for sure though, i don't feel fatigue when looking at her videos.
Girl, where did you get that chair?! It's impeccably done 💯✅
Also loving your look and makeup 💄 in this video 😍📸
Miss Venus Hi from Italy. We keep following you since 1999. Please don't surrender and show us again your brilliant wonderful tennis. Love you so much
Hey Venus Williams! First off big fan of your tennis career, even more so now that I know you deal with Sjögren’s. I played tennis in high school and I’ve additionally been diagnosed with Sjögren’s at the age of 19. Your two videos on chronic illness have been so helpful. If you happen to make another video on chronic illness, could you maybe go into more detail about dieting and things to eat or not to eat? Or maybe you could offer some tips on working a job with Sjögren’s? I really appreciate your advocacy on the topic and I look forward to future videos!
Oh wow, I had no idea about any of this. Much respect and love from Germany!
You have inspired us so much 💕
This is extremely informative and we need More.
This inspires everyday chronicles of life and how to overcome and win.
In fact, sometimes it's not about winning but thriving in it every day ❤
No matter what you are pure unstoppable queen V ❤😊😂
Hello Queen Vee...I'm going to stray off topic and I'm only addressing the Queen guys so please no negative vibes. I so enjoy seeing you on court Venus and I still look fwd to seeing you win your 50th WTA title. That being said, have you ever considered playing 125, 250 level tournaments? It's really hard to see you fighting so hard to only lose in the 1st rounds. I ❤ you and I miss you. Fan4ever!!!
Thank You Venus 🙏♥️
I appreciate your video’s- feel this is such a help to hear your experiences together with others. I have been diagnosed with both Lupus & Sjogrens. Anaemia has been treated with iron tablets and the breathlessness has started to improve in less than a week. Getting accurate diagnosis has been lengthy and have found increasingly I need to be my own advocate, which can be hard to do when feeling fatigued and unwell. My issue has been living with unusual symptoms which have crept up and then putting up with them. I think this is very much to do with the way I experience pain and pain sensation in my body - so autoimmune disease masks original conditions and therefore prevents accurate diagnoses. Also, taking vitamins and prescribed medication can cause unwanted side effects, so I find myself taking tablets/ vitamins in 2-hr intervals to counterbalance any interaction. But I keep battling and trying not to let my health stop what I need to do. Today I felt well enough to enjoy a day out with my family at a theme park, which I love to do. Feel tired this evening but also a huge sense of accomplishment- my family even noticed how much better I walked today. Have been taking Hydroxychloroquine now for over two months now.
Thank you for sharing!
Great content Venus! Thank you so much ❤.
For iron the MtSinai website says: Normal value range is:
Iron: 60 to 170 micrograms per deciliter (mcg/dL), or 10.74 to 30.43 micromoles per liter (micromol/L)
Total iron binding capacity (TIBC): 240 to 450 mcg/dL, or 42.96 to 80.55 micromol/L
Transferrin saturation: 20% to 50%
I got diagnosed with Sjogrens today, on top of Ehlers Danlos Syndrome.
Thank you for your videos.
Thanks V for sharing this with us. We are grateful for this.
Queen Venus👑. I love and watch your videos constantly.
Bonjour from south western France 🍾( Béarn Bordeaux)
I would like to share my experience of life with multiple sclerosis and fatigue. I was diagnosed after 7 years of medical wandering, fortunately I live in France and know that Venus often comes here. Fatigue is always present but has not stopped me from working, except for a few moments. I have found antioxidant tablets that have helped me a lot. I will try iron after consulting with my doctor. Safe travels to Venus and to everyone.
This is Gonna b so Insightful VW🔥🔥🔥👍n Happy Tuesday😀….
Thank you sweetie ❤❤❤❤
Thank you. You are an inspiration nice lady.
Thank you for this video! Do you take meds for Sjogrens? Which drugs do you take? Right now I’m dealing with high inflammation in my body, 61% right now, down from 85%. I’m on medication to Bring it down. Thanks for any information that you can give me.❤
Thanks for rhis video..really enjoyed it...juat recently been diagnosed received with sjogren's syndrome...omg im 44...the aches and pains and tiredness and sleep routine knocked out...going to start taking vitamins...xx
My uncle used to chew ice too but he died of cancer many years ago now related to his years of smoking I think. He also used to chew carrots. I duno if any of that was related to iron deficiency though. More likely a substitute for smoking when he had to cut down.
Where are all the beautiful people like you? I've been a fibromyalgia patient for 25 years, and it's difficult because, as you mentioned in the previous video, people see a pretty, confident, kind person, and we have to shut up and keep swimming. Thanks son much for your input and support. Greetings from Costa Rica 🇨🇷
Every time Venus plays, I give my team time off work to watch the matches 😂
Thank you for taking the time to speak to us about this. I wonder, though, what do you do when your period stops( I had a hysterectomy due to a cancer scare) and then iron can store pretty fast in the body and it stays there, which is not great. Food for thought? Love you and wish you all the best!
Great video ,you're looking magnificent, and you keep positive while dealing with that chronic disease.
Yes health is the most important issue and I feel so lucky to be healthy and very fit( only one skin problem: psoriasis on my right hand mainly, also an auto-immune issue,but it's okay)
I know you 've been dealing with Sjogren disease for so long , it would be nice if you could make a video on how you could play highly competitive tennis while dealing with fatigue .
Thank you and I hope you will win matches on grass this summer
Hey Venus! How are ya', I admire ya' & you're definitely a role model to us all...thanks! I wish that I was as together as you are 16 years ago when I was your age. Take care.
After 3 years when i found out a doctor here in jamaica told me you had the same thing i said really
Thank you Vanessa!!
My darling Venus, how about you do the next part but invite a Doctor or a professional or two to join you on this topic of chronic illness? Just my thought 💕
One expert from the sports world and a Doctor from the hospital.
Just for us to get variety through different lenses.
You have nailed this topic ❤
Looking great. Can you please do a get ready with me, make up video?
Glad u all well now .. 😊 prove yo lv of the game .. your one of the best ...
Floridex yeast free liquid iron is another to check out and see if it’s right for you (vegan and non constipating).
this helped more than the NHS
Thank u so much for being so open about it.
It would be nice to know what symptoms ur dealing with and also if you take any meds or just ur supplements? How do u manage the joint paint?
Cheers
Thank you so much for this video. Let's keep putting pressure in the development of a formal treatment. Have anyone participated in the Dazodalibep clinical trial?
Venus Will=(i)(a)(m)(s):
(i) stands for: inspiration;
(a) stands for: always;
(m) stands for: matter;
(s) stands for: STAY SMART,STAY HEALTHY,STAY BEAUTIFUL;AND MOST ALL STAY YOU AND ONLY YOU !
I appreciate the supplement recommendation because it is hard for me to choose - I get so overwhelmed with the wide variety of supplements. Thanks again.
From MtSinai website it says: Normal Results
The normal value ranges for blood ferritin are:
Male: 12 to 300 nanograms per milliliter (ng/mL)
Female: 12 to 150 ng/mL
Venus William stay strong
GOD BLESS🙏🏿❤️🙏🏿
I just got diagnosed a few days ago after 14 years. I was anemic for at least 20 years. I also have pernicious anemia. Can you talk about the effect Sjogren’s has on your mental health? My sister says i’m always irritable and yelling now… that i’ve changed. I’m still waiting on my Rheumatology appointment (she knows i’m coming and helped diagnosis me over the phone with her colleague who is a PCP) for a full in depth blood panel and treatment plan. I tested positive for Sjogren’s but my doctor believes i have other ones as well based on the preliminary blood test.
Venus is my friend.😊
I have severe RA… difficulty with the basics and it’s so hard. The pain is not controlled, my life feels like hell.
Oh I get you😮, I’ve got polymyositis and scleroderma and I’m so so tired and stiff
The iron infusions really helped get my hemoglobin up from a 4 but it was really hard on my body. Im taking a daily iron supplement so that i never have to do that again.
I have Lupus and sjogren's. Practicing gratitude. Some days are good but i do feel tired sometimes after sleeping 10 hours. Started tennis and hope i can get good to volley for an hour lol 😆
I have been diagnosed with RA & Sjogrens, the fatigue is like someone turns off your light's. It's strange. The dryness makes me crazy
Love it God bless you and family 🎉❤❤
Will you one day make an other ESPN special?
Venus is ready for daytime talkshow
There are grace for health only believe is the answer to it anykind of illness