My husband has Parkinsons, Was having hand tremors for about 18 months and also thrashing his legs in his sleep, as well as having terrible nightmares and would screen in his sleep. I started him on B1 100mg a day and within 2 weeks all of this stopped. For my husband its a miracle. It may not work for everyone, but Im a true believer in B1!
@@candyalexander2196 Superior Source Vitamin B1 (Thiamin), 100 mg, Under The Tongue Quick Dissolve MicroLingual Tablets, 100 Count, Increased Metabolism and Energy Production, Nervous System Support, Non-GMO I get from Amazon Good luck. Everyone I’ve mentioned to has had great success. My husband is doing fantastic. I did up his dose so he takes 4 per day. The dose goes up and down depending on symptoms. I highly recommend getting this book. It explains using b1 for Parkinson’s Parkinson's and the B1 Therapy Bryan PhD, Daphne. Let me know how it goes. I noticed a huge change in less than 2 weeks.
@@richguev I’m so sorry, I just noticed your question when I was answering someone else. Superior Source Vitamin B1 (Thiamin), 100 mg, Under The Tongue Quick Dissolve MicroLingual Tablets, 100 Count, Increased Metabolism and Energy Production, Nervous System Support, Non-GMO I get from Amazon Good luck. Everyone I’ve mentioned to has had great success. My husband is doing fantastic. I did up his dose so he takes 4 per day. The dose goes up and down depending on symptoms. I highly recommend getting this book. It explains using b1 for Parkinson’s Parkinson's and the B1 Therapy Bryan PhD, Daphne. Let me know how it goes. I noticed a huge change in less than 2 weeks.
I don’t have Parkinson’s but I study supplements a lot. For your B-1, the form benfotiamine may be easier for your body to absorb. There was a neurologist in Italy who recommended high dose B-1 for Parkinson’s. Also, I’ve heard many people are benefitting from adding three Tlbs of coconut oil daily to their diet. You can put it on toast, cook with it, bake with it, put it in your morning coffee or smoothie. Liquid MCT oil can be used when the coconut won’t melt. It can also be used for salad dressings. Might be worth a try. They say to build up gradually to the 3 Tlbs as you may get diarrhea at first. Of course if constipation is a problem, you might be helped in that regard too. Lions mane helps constipation, but is also good for the brain. The melatonin used for Parkinson’s is recommended 10 mg. The vitamin D3 is recommended at 5000 units a day. Have your D-3 checked to be sure. Sunlight is good too. You might also try earthing. The earth has a magnetic field that is beneficial to the body. Wearing sneakers or artificial soles insulates us from that benefit so it’s advised to lay down on grass or sand or soil or put bare feet on the earth to be grounded by the earth. There is a great documentary on that called EARTHING I think. I would try to find earth that has no sprays or pollutants. Ive also heard walking in a forest, especially a pine forest, is very beneficial. Pine oil is used for many ailments. Hope this helps. Just some suggestions to try. Doctors don’t know everything. They only know what they are taught in medical school and they are only taught what drugs to use or pharmaceuticals. They don’t know much about supplements and nature. I started having hand tremors when trying to do intricate tasks and I discovered taking cardiophase by Tengo and ashwaganda helped all but stop that trembling. I take one of each, twice a day. I don’t know if it would help with Parkinson’s or not. The CARDIOPHASE is for the heart and is made with Chinese herbs and I discovered by accident it helped my shaking hands along with the ashwaganda.
Hello Julie, what a great piece of information you have left here, thank you very much. Many things to look into and try, I appreciate that. I am always looking for something to pass onto others if it helps in a measurable way.
Great information Julie and most of it is what Dr Eric berg recommends, do you follow him I wonder? Some paragraphs would be helpful next time, just makes it easier to read on a small screen. Namaste 🙏💜🙏
Please have a look a the work of Elliot Overton and Derick Lonsdale with regards to Thiamine Therapy, TTFD is a more potent form of Thiamine that may be interesting to look at
Regarding Coconut oil and MCT oil, I combine the two for my father, who has Parkinson's. I gave it to him starting with a 1/2 teaspoon, after each meal and increased it to 5 teaspoons after each meal over months. He takes it as a shot. If I had more to say about his care, I would put it in juice with a frother. But he isn't bothered by it. I think most people would need/want something to help get it down. I will try to find the doctor and link regarding the combination. It is used to support and assist people challenged with neurodegenerative disorders. I believe it is 4 parts MCT oil and 3 parts coconut oil.
Hi David; Thanks so much for sharing your supplements. I also take a handful of supplements every day one of the ones that you were taking that I am not is the mushroom supplement. So I have tried this in the last couple weeks and it does definitely seem to make a difference. I take one capsule per day , how many capsules do you take? It also would be helpful if you knew of how much you were taking each time. I will send you my list when I type it up. Thanks again for sharing.. Us PD people need to stick together..
There’s a great interview on CZcams with a Parkinson’s patient, he has had the disease for many years, and was really going downhill. He decided to try a keto diet, and he reversed the significant neurological damage, it seems by 90 or 95%. I hope every person can find this 8nteriew w/ a large older guy, in maybe his 70’s. He did it, and is doing great!
@@susansitkauskas7263 I think it is William Curtis and this is his youtube Fourth Food Group and Parkinson's Disease. I believe this is that interview with him czcams.com/video/5sYClVQyMLM/video.html
@@RahulSahu. I think it is William Curtis and this is his youtube Fourth Food Group and Parkinson's Disease. I believe this is that interview with him czcams.com/video/5sYClVQyMLM/video.html
I am 66yrs, been on medication for 2 yrs. I feel vitamin suppliments help get rid of stiffness and bradykinesia. I feel active and confident. I feel comfortable with my doctor who is cordial and supportive.
Thank you for sharing. I was diagonose with Parkinson's 2015 and at first went through several medications finally I was put on Rytary, however, the side affects are worse than the parkinson's. What has helped me every morning is Meditation, prayers, execersice with chair execises and go to the gym, walked 2 miles daily. Stay active listent o musice that me feel good. I continue with Rytary but slowly decreasing as I have been taking all my supplements. I take in the morning, CoQ-10 and b 12, and midday I take turemeric, vitamin E, and after dinner I take Vitamin D, before bed I take Magnisium Glycinate and B2t helps me sleep, Also,drink Lions Main coffee call Dose, it's not cheap looking for another brand but all seem to the same price. I also stop eating process foods, everything orgnic and more mediterian diet. It has been helping me. Thanks again
Hi Norma, sounds like you have a great regimen going there. That is good to hear. Yes, I agree, some of the medication side affects can be very bad. Thankfully, there are other partial remedies that can help, like supplements and red light therapy. Not sure where you are, but check this blog post I did a little while ago. It has a discount code to organika.com/ www.lifewithparkinsons.ca/post/the-organika-way-obsessed-with-seeking-out-new-pathways-to-better-health
Honestly you're a better expert than the healthcare professionals. I'm a registered nurse that has Parkinson's myself. We the people with the disease understand it better than the doctors do! Although they like to think they do better than we do!.. They don't seem to mind because they know that you understand your body and how you respond to medication better than they do.
Hi Thomas. Good point. We live inside these bodies and understand them better than anyone else. Being an RN you likely have a wealth of medical knowledge stored up. Thank you for your comment.
I notice since I been taking B & Zinc D3 C I am doing better and I feel better and doing exercise this is best I feel in along time. For now i am going to enjoy and i know day i wont feel better and i am trust God
thank you, sir….You’ve given me some hope…. I’ve had some bad doctor experience. when i lived in another state, i had very good care… in the last 12 years, i’ve had horrible medical care….the greedy sobs have been lousy-- just interested in money--impatient & rude! I’ve always believed vitamins, supplements, etc were helpful….. but didn’t have the funds…..now, i don’t have a choice….Thank you
Hi David, Your doing a great service to PWP. Your videos are hitting on all the important things to share and you are very good at it. It’s been a year since sharing your supplements. I would love to know how much of the same supplements you have stuck with and what has fallen off, and if you have added any. Would you please consider doing an update video of your current supplements. You are an incredible inspiration and have helped us tremendously.
Hi Mike, hello back from Canada, I am in Westbank. I had to read your comment twice, people are telling you to give up????? There are so many things that can offer partial relief of symptoms. Please have a look through the channel and also our website www.lifewithparkinsons.ca/ Let me know if you have any questions. Email is info@lifewithparkinsons.ca
@@olivernewsweekly I can’t believe anyone would tell you to give up. Please don’t listen to them. There is so much out there that can help. I’m always finding new things to help my son. Sadly, he doesn’t cooperate so I can’t force anything. I only found this on CZcams recently but I’m going to go to the website from now on. PLEASE NEVER GIVE UP! I believe God has a breakthrough coming soon! I pray he blesses you & everyone here with healing. I will surely be praying. 🙏🏼
You are doing an amazing job, the supplements ate part of the nutrition you're lacking! That is why they work. The Brain needs all of them otherwise it wouldn't work. Thank you gor sharing I need to hear this for a friend's husband. I just ssaw a video if a Gentleman who was sivk for many years. He changed his diet to a keto diey. Low Carbs Good protein and Fats. He felt and saw the difference in 6 months he's healed now he can do everything and he is do happy, he wrote a book. His name is Collin Potter
I have my mom on PROBIOTICS TO HEAL AFTER ANTIBIOTICS, Quercetin, B~ Vitamin Complex, Mushroom Blend by Paul Stamets, Methylene Blue, Magnesium Glycinate & L Theaninate , Ashwaganda, Bee Pollen, GABA, ... will look into the ones you mentioned.
HI Marie, I've had some really good success with my recent trial of red light therapy. My first update should be out soon. czcams.com/video/U4uVYsPBI_c/video.html
Magnesium, omega 3, k2, D3,seed probiotic, Alpha Lipoic acid, super b complex, and vital protein collagen peptides. Some with water, an empty stomach and others with fat.
Thanks for the video as usual it’s very informative and interesting. I love melatonin it helps me get back to sleep when I wake up at 2am. I take the omega 3 and probiotics. Have not heard about Créatine but will look into it. I take a multi vit b complex too. Oh yeah I also take Metamucil (pysyillum)
Hi Elaine. Thanks for your comment. Who doesn't love Melatonin? I've thought about taking half at bedtime, and half around 2am like you do, but I can still do 8hrs waking up 2-3 times so it's not too bad. The Metamucil is good too, but I prefer to buy the yogurt with the fiber in it already.
Hey David, Vitamin D3 was the first thing my rheumatologist put me on as it is shown for people with autoimmune diseases we are low in. Not sure if Parkinson's is an autoimmune but D3 is a my must for muscles/joints. I had no idea there was a supplement for internal tremors 😲😲 I've had for years and I swear it's like a cell phone on vibrate inside my body when it hits. My neurologist suggested sublingual B12 along with a multivitamin for low B levels. My budget is small but I will be buying the supplement for internal tremors Thanks for the tips 😀👍
Hi Tory. The internal tremors are terrible, I’m just not sure if you will get the same results so I would like to know what you find. The person who recommended it to me, her father has PD and swears by it. All I know is the internal tremors went away when i started the harp seal oil and came back when I stopped. Interesting what you say about the D3.
@@LifewithParkinsons I'll let you know what I think of the seal oil. I do have a difficult time getting gel capsules to go down. Are these capsules very big? Def look up D3 for autoimmune's The very first session I had with my rheum was the meds but also diet. There's a documentary film he had us watch( my husband also has RA) it's called Forks over knives I believe. We are more aware of how we feel with what we choose to eat
The gel capsules are large, but I suppose you could drain them or find it in a liquid form. Diet plays a big role. Right now I'm looking into the mind diet.
@@LifewithParkinsons I've only ever used fish oil David, is seal oil strong in taste/odor? I could put it in oatmeal if it isn't tough to get past a taste
Thank you so much for this video. My husband was just diagnosed with PD this week. I'm overwhelmed with research. Interesting you take B1 as I just ordered a book about B1 and PD. Blessings to you
Hi Deborah, sorry to hear about your husband, but it sounds like he is in good hands. My B1 trial did not go well, had to give it up. The best results I have had has been from Parkinson's gloves and red light therapy. Check my website for links and sponsor information. www.lifewithparkinsons.ca Thank you😀😁😊
What about riboflavin (B2)? Its role in neuroprotection is already demonstrated (Marashly 2017) and it crosses the protective blood-brain barrier, reaching the neurons and astrocytes (Moriyama 2011). It reduces the risk of developing Parkinson's by 51 % (McCormick 1988). And it produces a motor improvement in all cases in the study of 44-71 % at six months. As the months progress, the benefits are greater (Coimbra 2003). It plays a decisive role in complexes I and II of mitochondrial respiration, as well as being essential in the synthesis of glutathione and its recovery once oxidised (Powers 1999). And if anything is missing, it has epigenetic potential (so far 90 genes are known to be encoded).
Hey pk, I am working on updating my supplements video and am curious as to where you found your sources for the B2? I would like to include some real info in my video and am looking to ad B2 into my daily dose. Thank you.
Thanks so much Ron. Please do. I've also had as some good results with Red light therapy. Thanks for saying hello 👋 czcams.com/video/U4uVYsPBI_cA/video.html
Thanks for this informative video. Since I was diagnosed I started taking so many supplements and stopped drinking and smoking after my driving licence was revoked when I had to notify them of parkinsons. I also try and exercise every day and eat healthy. I heard creatine helps a lot so I'll be adding that to my list.
Being in your condition I would try ginger on a daily basis. Gingerenone is a strong senomorphic. It might be able to rejuvenate some zombi-dopaminergic neurons. As they are lipophilic they should cross the blood brain barrier.
@@LifewithParkinsons GINGERENONE A outperformed standard senolytics like fisetin and even Quercetin+Dasatinib and has no adverse effects. Fresh ginger is useful, maybe also the essential oil. (With your supplements you are one the right track - I take most of them without having PD) Good Luck!!!
Hi David, thanks for another great video. I take quite a few supplements, too, and have wondered how the medical professionals might feel about that. It's good to know that they seem open minded and willing to work with us. I've recently added the product Nervive to my daily arsenal and have gotten relief from the electrical shocks that were zapping my legs at night. Anything that helps is a blessing!
Hi Jeannine. Yes the doctors I have had have been fairly open minded. I will check out Nervive, I saw it mentioned elsewhere today as well. Anything that helps is a blessing!
We are all different individuals. Thank you for sharing what helps you. Methylene Blue is supposed to help Parkinsons patients? Good Luck to you Brother.
"Pure vegetables, such as tomatoes, peppers, aubergines and cauliflower, etc., which contain natural nicotine are effective against Parkinson's if eaten frequently." Quote by Ptaah, talking to 'Billy' Eduard Albert Meier (BEAM), contact report 578, January 9th, 2014.
My functional medicine doctor has me taking all of these plus vitamin e and omega 3's. Only been diagnosed for 3 months so can't speak much to their effectiveness. Can speak to melatonin which helps my sleep when mixed with magnesium powder on water. Also can recommend a few prunes with meals and lion's mane twice a day for constipation. Thank you for making this video
My husband is pd sufferer diagnosed for almost 3 years. He added Seal oil, Lion Mane mushroom capsules it helps a lot. However, upon research another additional supplements is Serrapeptase capsules it does a good job. Helping him to have a good sleep, clear his sinus, his sense of smell is improving and so with his mobility.
Hi Maria, sorry to hear about your husband, but thank you for letting me know the seal oil and lions mane help with the symptoms. I will look into the Serrapeptase capsules, never heard of them.
Hi Anna, I give you the names of vitamins and supplements that my husband has been taking. Vit. B1, B2, Moringa capsules, Spirulina, Milk thistle tab. 7000 li ver detox, glutathione 500 mg., Bromelaine 500 mg, Vit.b12, Seal oil omega 3 500mg., Lion's mane fungus 500mg., Calcium, magnesium and vit. D as one tablet. For dinner supplements are Lutein and xexanthin capsules for eyesight and bromelaine capsule. 30 min. before dinner he takes Serrapeptase capsule 60,000 spu helped him for his sleep. Eversince he started taking Serrapeptase enzyme capsules he sleeps well, lessen the tremors of his hand, able to walk around the street with the dog at times. When the weather's fine he does mowing and cut the hedges of garden plants. Before he stopped walking along the street due to breathing difficulty, pain of the back and shoulder. Another thing that my husband is using is called Symbyx Biome a laser light therapy he had been using that for a year and he said it is helping him as well. Lately am waiting for Vit. B1 Bentfotiamin that I ordered. At the moment he is taking the B1 I bought in local pharmacy. Tha prescription he is taking is Madopar 125 - Levodopa 100mg, Benserazide 25 mg as hydrochloride. .
Lion's mane seemed to help me at first, but then do to an interaction with one or two of my meds, I was having syncope issues! I stopped the LIon's mane, and the syncope issues went away.
Hi David. Thanks so much for putting all your videos out. They really have helped me help my father. Could you please tell me the dose of the Lion's Mane that you take. He would really like to try it. Thanks again so much for sharing your journey with everyone.
Hi Capt, thank you for your kind words and encouragement. Due to inflation and the impact it has made on disposable income, I had to give up the Lion's Mane. I would take the maximum daily dose for best affect. Thanks.😀😁😊
@@kokoyumz7820 Hi Koko. You probably don't want mu advice because I take my supplements morning and night with mu C/L. I had no idea the warnings said that. I've been doing it for years and my doctors said nothing and it hasn''t been an issue. Your call 😀
Yes it makes a big difference. There were studies done on it to see if it reversed PD. Obviously it doesn’t, but it also stops my muscle cramps when sleeping. My son suggested I take it as it’s the only legal supplement athletes can use, apparently.
Did you have a heavy metal test.and if you have high mercury or lead ,you should try chelation therapy, to reduce the heavy metal toxicity. And also at the same time have intravenous glutathione .
Yes, my blood was tested for many many things. I have looked into the glutathione and am hesitant to use it based on my personal research. Thank you so much for your suggestions.
Thank you for sharing. I wonder if anyone knows where I can get help for my son. His wife divorced him because of Parkinson’s. They have 5 children and she doesn’t want to deal with her life being interrupted with Parkinson’s. She said she just wants to be happy. So now my son is alone and living in as assisted living facility just 2 miles from his kids. He could no longer live alone. I live 3 hours away. We try to go every month for 5-7 days. My husband is with him now. It’s costing us a fortune for him to live there. Does anyone know if we have any options? By the way, he keeps refusing to come live with us because he doesn’t want to be away from his kids, who are all teenagers now.😞
Hi Joan, thank you for sharing about your son and family. This is a tough one to help with, but if you let us know what country you are in perhaps someone will have some suggestions. It sounds like you and your husband and doing everything you can. Sorry you all have to go through this.😊
@@LifewithParkinsons Thank you for taking the time to read my post. I live in NY and my son lives in northern CT. I spoke with my son last night. I cried so much after we spoke. I noticed his memory is worse and he still has a lot of pain. I’m so glad my husband is with him for this week. I feel so helpless because he won’t come to NY. I have research for alternative therapies that I believe would help him, maybe even bless him with remission. I have great faith in God and still I cry so much. 😢
A better thing to take then melatonin is glycine, you can take before meals and can lower blood sugar, you can take it in place of coffee for daytime sleepiness, and it helps your brain make its own creatine. It also been shown in recent studies with nac to increase glutathione (so called master antioxidant of the body) to match the glutathione of a 20 year old as well as metabolism and low oxidative stress of a 20 yr old. Imagine that. You can take before bed (3-5 g) and you will fall asleep faster and sleep deeper and have longer vivid dreams (just make sure u think happy thoughts before bed lol) Also I've found zinc and copper as a crucial component to the immune system. Countless benefits. Lots of misinformation out there about these two. Especially copper. I learned from this guy, Jason Hommel (no relation). He wrote a 500 page book about copper and healing with copper along with other minerals. Most of the info can be found in his CZcams (he reads his book chapter by chapter for free and lots of great people in fb group copper healing with minerals to learn from). I take all of minerals he recommends (copper, zinc, boron, silica and vitamin c, molybdenum and MSM, and iodine) I have found the protocol very helpful with overall health) glycine is the next thing I'm trying based on a bunch of CZcams videos I've seen about glycine that I'm hoping with help my awful gut. Also take magnesium.
Hi Scores. Thank you for your comment full of helpful information. It definitely sounds like you are current on a lot of recent studies. I just don't have time to read them all so thank you for sharing your thoughts and suggestions it is much appreciated. 😃🙂👍
Hi ASMA Citrus. I take a bit less than the recommended daily does and split it morning and night. Not guaranteeing you the same results I have gotten. Everyone is different.
Taurine have broad range of protective properties. ALCAR is very helpful. NAC with glycine in higher doses will increase gluthation. Niacin is helpful, it will increase levels of NAD in astrocytes but some older people may have glucose/insulin issues so that should be monitored. Also it should be taken with equal amounts of TMG wich is also helpful on its own. Ketogenic diet is protective and restorative (read new book: Brain Energy by Chris Palmer). All B vitamins are important but you should gradualy up thiamine dose, 100mg is usually low for Parkinson. Selenium is important for brain functioning, zinc...inositol, GABA, pregnelonone, small amounts of DHEA
Keep us posted! Excellent video. I have a developmentally disabled brother who has had gradually worsening "Parkinsonian" symptoms. He can barely walk any distance nowadays. He is unable to communicate effectively so doctors are of little help. He says things like "I will get new legs someday". It's heartbreaking. I have started researching things that might improve his symptoms. He takes a multiple vitamin, D3, and Vitamin E. I appreciate you sharing things that have helped you. Of the supplements you mentioned, which one has lessened your pain the most? I'm thinking you might say magnesium. If so, have you tried a magnesium complex which has multiple magnesiums and what were the results. Thanks so much. I subscribed! Yay!
Hi Dawn. Sorry to hear about your brother, that has to be difficult if he is unable to communicate. I don't get a lot of pain at the moment from the Parkinson's, but the magnesium has helped me to sleep much better. I have not tried the complex one, as the threonate is the only magnesium able to break the blood brain barrier. Thanks for subscribing and watching!
You should look into Photobiomodulation also I believe the effective dosage for Parkinson's with b1 is 1500mg although you have to check seem like you just have 100mg pill their.
Hi Matt, I am currently looking into photobiomodulation, thank you for that suggestion. The vitamin B1 did not work out for me, hoping to have that update video completed in the next month or so, need to do a bit more planning and research. Thanks for watching and commenting😀😁😀
Please tel the quantity of supplement tablets to be taken each day and mention the timings as wel like ,morning and evening God bless you and please reply it’s needed
Hi Zahid, telling you how much to take and when is really up to you and your medical team. I told my doctor what I was taking and he made a few suggestions. I made sure I was under the daily dose for most. The only one I take the maximum daily dose is the harp seal oil. Let me know if these supplements work for you. Thanks for watching and saying hello😀😀😀
AS a person who has a times moderated Parkinson's support group's at 2 major NYC hospitals for over 20 years, take this video with a huge grain of salt. When the disease takes off, it becomes fatal, my wife's death certificate states her cause of death is "Parkinsonsm" ,there is no cure and few supplements work for the long term, better that you hydrate and execise and rememeber, Caveat Emptor.
Hi Michael. Thank you for your input and your comment and thank you for sharing your vast experience. What you have said is true not everything will work for the long run but I'll get whatever I can as it sounds like you understand the symptoms.
Yes of course,do what feels what is working for you, in the 22 years my wife had PD we availed ourselves of many therapies and supplements, about 15 years ago CQ10 was the rage along with acupuncture ,Tai Chi ,Boxing for PD, Dancing for PD ,Macuna beans for natural Ldopa( but one would need to eat pounds of these legumes everyday) and Rekei therapy as well as Feldenkrias ,for some it had limited benefits in movement or falls prevention,even Chelation therapy was touted a cure for PD! ,my sadness ,not pessimism, was when zero efforts on behalf of her Neurologists and al other protocol's nolonger helped her as she entered end stage Parkinson's ,I would say we managed her PD for a good 19 years before dementia took it's toll eventually shutting down herall brain functions and she died while in a Coma.
I have internal tremors but I call them the shakes and I have the shakes 3/4 of my life now. I have to go to the doctor if I have Parkinson's or something else. If something is vegan friendly (vitamins)
Magnesium that came with vitamin D or Calcium tends to be Magnesium Oxide, not good. Magnesium bisglycinate is almost as good as mag L-threonate, but much cheaper. Bassam el-Khodor's lecture on Magnesium is excellent, veggie magnesium is twice as good as mag L-threonate.
@@LifewithParkinsons i tried magnesium L-threonate for 6 months, with no obvious benefits. Now i take magnesium bisglycinate powder (one teaspoon )3 grams to get 300 mg elemental magnesium daily. I get it from big salad of broccoli too, also for the 4700mg Potassium daily. Threonate is overrated and way too expensive...
@@LifewithParkinsons czcams.com/video/GIVqou1znMQ/video.html Time 41:00 Plant-based Mg is 3times better absorbed than Magnesium l-threonate in the CSF, and twice that of Magnesium glycinate. In any case, don't take the cheap Magnesium Citrate...citrates deplete copper and the enzyme Ceruloplasmin that aids iron-transport...one ends up with overloaded iron, serum ferritin to 560 level with joint and muscle pain similar to gout. See Morley Robbins: My Theory on Everything...especially the do's and don't tables at the end.
@@LifewithParkinsons sure, magnesium oxide that doesn't dissolve in water, dissolves well in acidic stomach. Question is when it gets into the bloodstream that is slightly alkaline, will it still dissolve or precipitate? I had my kidneys clogged up, eGFR dropping to 65 c.c./min., after taking Magnesium Oxide for 2 months. I flushed it out with Potassium Citrate and never take Magnesium Oxide ever again. Some manufacturer of Magnesium bisglycinate sneakily add Magnesium Oxide as a filler. Avoid it at all cost, not worth the kidneys clogged...
Thank you for explaining things that'll in a simple way..... Would you have a clue of what to take for PTSD? .. It does affect my dopamine. I want something natural.... I don't need things to numb me out.
Hi Katie I'm sorry I don't know what to suggest for PTSD. I had it back in 2006 after falling off a ladder at work and I took some antidepressants for a while to help.
Harp seal oil for internal tremors, lions mane for bowel regularity, magnesium threonate for beating restless sleep and legs,, vite D, melatonin, creatine.
@@LifewithParkinsons Good video. check out also choline for brain. Eggs and liver are high in choline. I take beef liver supplements as i cant eat eggs. But thebeef liver helps my energy and i dont even take a full dose. I do take cdp citicholine tho unless im fasting.
Vitamin B1 (Benfotiamine) has demolished my SAD and anxiety.... I'm 72, and have had it since a child... this is miraculous. I also came across a video where mega-doses of B1 rewinds Parkinson's, takes you back to who you were. A British woman wrote a book on it.... search it out. My sister has Parkinson's. She is about to go into assisted living... I've two other friends dealing with it.
Hello thanks for the information I'm so glad vitamin B1 is helping you it didn't work out for me. Yes I am aware of the book and will be updating my video soon.
Good info! Thanks for sharing. I noticed the Magnesium L-Threonate is 3 times a day. Do you take them all at once or space it out? Does it make you sleepy? BTW, love the comedy.
Hi Michele. I just take it morning and night. 2 pills per day. My MDS specifically said don’t over use the magnesium-L as it can cause other issues if taken to often.
@@LifewithParkinsons My answer was not accepted. Read any of the books of D vitamin. I take D3 50000IU, K2 800ug, magnesium 400mg 3 times a day, alot of betakaroten. I do not have your condition but I has helped my healing of old problems. I think this might stop the progress of your condition and with luck restore the body. The book is avalible as audiobook on audible.. Good luck!
I have recommend him to so many people. I am taking 40,000iu of D3 a day and it has managed my insulin resistance better than anything that I have tried.
Hi Karim. I’ve thought about trying the mucana puriens a few times but have never gotten around to it I just don’t know how it would react to my medications and I take so much already. I think if I was just starting out it would be something to try.
@@LifewithParkinsons thanks David for your response . I have my dad has parkinson .and i so the video here in France or Morocco talking about this compliment Mucuna pruriens .
I started my grandpa on a liquid vitamin called Source of Life Gold Liquid, it has most if not all the supplements he talks about here and work phenomenally! My granpa's tremor drastically reduced to almost non-existant, his voice got stronger and his gait improved and he's had a reduction in falls!
Can you please tell me where to locate the Newfoundland brand of the harp seed oil? I followed your Amazon link for it, but it says that it won’t ship to the states. Thank you.
Hi Maria, sorry it is not available in the United States. I will be recording a new supplements video in the near future. There have been a few changes I need to update.😁😊😀
what about adding B2 and a regular probiotic? I've heard these help as well. My brother in law has Parkinson's so we've been reading up on various things that seem to help..
I was diagnosed with Parkinson's about six months ago and have been having a serious ongoing problem with constipation. If Lion's Main mushrooms have helped you with this issue, I would love to know what brand you use and what dose. Thanks.
Hi Jim, here is a link to the Lions Mane. One pill in the morning and one before bed. I hope it helps. I have heard positive feedback from a few others. www.amazon.ca/Organic-Mushroom-Capsules-Real-Mushrooms/dp/B078SZX3ML/ref=sr_1_1_sspa?keywords=lions%2Bmane%2Bsupplement&qid=1683071652&sprefix=lions%2Caps%2C183&sr=8-1-spons&spLa=ZW5jcnlwdGVkUXVhbGlmaWVyPUExSUdVQU9CUUJNQ0ZEJmVuY3J5cHRlZElkPUEwMzQxODQzM05GVVVBSjNISUc1QSZlbmNyeXB0ZWRBZElkPUEwNDc2MDk1M0U0UTZDNlJNOTJJTSZ3aWRnZXROYW1lPXNwX2F0ZiZhY3Rpb249Y2xpY2tSZWRpcmVjdCZkb05vdExvZ0NsaWNrPXRydWU&th=1
Hi Mary. If you live in Canada you can get it through Amazon. If you are in the United States I'm sorry I have not been able to find a supplier there. Thank you for saying hello. 😃👋😀
My husband has Parkinsons, Was having hand tremors for about 18 months and also thrashing his legs in his sleep, as well as having terrible nightmares and would screen in his sleep. I started him on B1 100mg a day and within 2 weeks all of this stopped. For my husband its a miracle. It may not work for everyone, but Im a true believer in B1!
Hi Brenda. I am very happy to
Hear that your husband is getting good results for the vitamin B1 therapy that is very encouraging. 😄🙂😁
Mind me asking which b1 brand did you use
Brenda what brand did u buy for ur husband B1
@@candyalexander2196 Superior Source Vitamin B1 (Thiamin), 100 mg, Under The Tongue Quick Dissolve MicroLingual Tablets, 100 Count, Increased Metabolism and Energy Production, Nervous System Support, Non-GMO I get from Amazon Good luck. Everyone I’ve mentioned to has had great success. My husband is doing fantastic. I did up his dose so he takes 4 per day. The dose goes up and down depending on symptoms. I highly recommend getting this book. It explains using b1 for Parkinson’s Parkinson's and the B1 Therapy
Bryan PhD, Daphne. Let me know how it goes. I noticed a huge change in less than 2 weeks.
@@richguev I’m so sorry, I just noticed your question when I was answering someone else. Superior Source Vitamin B1 (Thiamin), 100 mg, Under The Tongue Quick Dissolve MicroLingual Tablets, 100 Count, Increased Metabolism and Energy Production, Nervous System Support, Non-GMO I get from Amazon Good luck. Everyone I’ve mentioned to has had great success. My husband is doing fantastic. I did up his dose so he takes 4 per day. The dose goes up and down depending on symptoms. I highly recommend getting this book. It explains using b1 for Parkinson’s Parkinson's and the B1 Therapy
Bryan PhD, Daphne. Let me know how it goes. I noticed a huge change in less than 2 weeks.
I don’t have Parkinson’s but I study supplements a lot. For your B-1, the form benfotiamine may be easier for your body to absorb. There was a neurologist in Italy who recommended high dose B-1 for Parkinson’s. Also, I’ve heard many people are benefitting from adding three Tlbs of coconut oil daily to their diet. You can put it on toast, cook with it, bake with it, put it in your morning coffee or smoothie. Liquid MCT oil can be used when the coconut won’t melt. It can also be used for salad dressings. Might be worth a try. They say to build up gradually to the 3 Tlbs as you may get diarrhea at first. Of course if constipation is a problem, you might be helped in that regard too. Lions mane helps constipation, but is also good for the brain. The melatonin used for Parkinson’s is recommended 10 mg. The vitamin D3 is recommended at 5000 units a day. Have your D-3 checked to be sure. Sunlight is good too. You might also try earthing. The earth has a magnetic field that is beneficial to the body. Wearing sneakers or artificial soles insulates us from that benefit so it’s advised to lay down on grass or sand or soil or put bare feet on the earth to be grounded by the earth. There is a great documentary on that called EARTHING I think. I would try to find earth that has no sprays or pollutants. Ive also heard walking in a forest, especially a pine forest, is very beneficial. Pine oil is used for many ailments. Hope this helps. Just some suggestions to try. Doctors don’t know everything. They only know what they are taught in medical school and they are only taught what drugs to use or pharmaceuticals. They don’t know much about supplements and nature. I started having hand tremors when trying to do intricate tasks and I discovered taking cardiophase by Tengo and ashwaganda helped all but stop that trembling. I take one of each, twice a day. I don’t know if it would help with Parkinson’s or not. The CARDIOPHASE is for the heart and is made with Chinese herbs and I discovered by accident it helped my shaking hands along with the ashwaganda.
Hello Julie, what a great piece of information you have left here, thank you very much. Many things to look into and try, I appreciate that. I am always looking for something to pass onto others if it helps in a measurable way.
Great information Julie and most of it is what Dr Eric berg recommends, do you follow him I wonder? Some paragraphs would be helpful next time, just makes it easier to read on a small screen. Namaste 🙏💜🙏
Please have a look a the work of Elliot Overton and Derick Lonsdale with regards to Thiamine Therapy, TTFD is a more potent form of Thiamine that may be interesting to look at
Regarding Coconut oil and MCT oil, I combine the two for my father, who has Parkinson's. I gave it to him starting with a 1/2 teaspoon, after each meal and increased it to 5 teaspoons after each meal over months. He takes it as a shot. If I had more to say about his care, I would put it in juice with a frother. But he isn't bothered by it. I think most people would need/want something to help get it down. I will try to find the doctor and link regarding the combination. It is used to support and assist people challenged with neurodegenerative disorders. I believe it is 4 parts MCT oil and 3 parts coconut oil.
Hi David;
Thanks so much for sharing your supplements. I also take a handful of supplements every day one of the ones that you were taking that I am not is the mushroom supplement. So I have tried this in the last couple weeks and it does definitely seem to make a difference. I take one capsule per day , how many capsules do you take? It also would be helpful if you knew of how much you were taking each time. I will send you my list when I type it up. Thanks again for sharing.. Us PD people need to stick together..
There’s a great interview on CZcams with a Parkinson’s patient, he has had the disease for many years, and was really going downhill. He decided to try a keto diet, and he reversed the significant neurological damage, it seems by 90 or 95%. I hope every person can find this 8nteriew w/ a large older guy, in maybe his 70’s. He did it, and is doing great!
Thanks for the tipi Janet😁😊😀
Can you please share the link?
Can you share the link please
@@susansitkauskas7263 I think it is William Curtis and this is his youtube Fourth Food Group and Parkinson's Disease. I believe this is that interview with him czcams.com/video/5sYClVQyMLM/video.html
@@RahulSahu. I think it is William Curtis and this is his youtube Fourth Food Group and Parkinson's Disease. I believe this is that interview with him czcams.com/video/5sYClVQyMLM/video.html
I am 66yrs, been on medication for 2 yrs. I feel vitamin suppliments help get rid of stiffness and bradykinesia. I feel active and confident. I feel comfortable with my doctor who is cordial and supportive.
Hi RS. Thanks for you comment. It's great to hear you have some supplements that work for you as well as an excellent doctor.😀
Would you mind elaborating on the supplements you take? I have a father of 63 with parkinsons
Hello sir, I understand from your I’d that you are in chennai. Could you please let us know what exact supplements you used.
Thank you for sharing. I was diagonose with Parkinson's 2015 and at first went through several medications finally I was put on Rytary, however, the side affects are worse than the parkinson's. What has helped me every morning is Meditation, prayers, execersice with chair execises and go to the gym, walked 2 miles daily. Stay active listent o musice that me feel good. I continue with Rytary but slowly decreasing as I have been taking all my supplements. I take in the morning, CoQ-10 and b 12, and midday I take turemeric, vitamin E, and after dinner I take Vitamin D, before bed I take Magnisium Glycinate and B2t helps me sleep, Also,drink Lions Main coffee call Dose, it's not cheap looking for another brand but all seem to the same price. I also stop eating process foods, everything orgnic and more mediterian diet. It has been helping me. Thanks again
Hi Norma, sounds like you have a great regimen going there. That is good to hear. Yes, I agree, some of the medication side affects can be very bad. Thankfully, there are other partial remedies that can help, like supplements and red light therapy. Not sure where you are, but check this blog post I did a little while ago. It has a discount code to organika.com/
www.lifewithparkinsons.ca/post/the-organika-way-obsessed-with-seeking-out-new-pathways-to-better-health
Honestly you're a better expert than the healthcare professionals.
I'm a registered nurse that has Parkinson's myself.
We the people with the disease understand it better than the doctors do! Although they like to think they do better than we do!.. They don't seem to mind because they know that you understand your body and how you respond to medication better than they do.
Hi Thomas. Good point. We live inside these bodies and understand them better than anyone else. Being an RN you likely have a wealth of medical knowledge stored up. Thank you for your comment.
I notice since I been taking B & Zinc D3 C I am doing better and I feel better and doing exercise this is best I feel in along time. For now i am going to enjoy and i know day i wont feel better and i am trust God
Hi Carrol, so glad you are feeling better for a time. Exercise does wonders for me as well.
I am having n acetyl cysteine. Helps a lot with fatigue and pain too. Best regards from Argentina!!!!
Thanks for the suggestion Ana. Thanks for watching from Argentina😀😁😊
thank you, sir….You’ve given me some hope…. I’ve had some bad doctor experience. when i lived in another state, i had very good care…
in the last 12 years, i’ve had horrible medical care….the greedy sobs have been lousy-- just interested in money--impatient & rude!
I’ve always believed vitamins, supplements, etc were helpful….. but didn’t have the funds…..now, i don’t have a choice….Thank you
Hi R Eighty. Thanks for letting me know that you found this video helpful :)
Hi David,
Your doing a great service to PWP. Your videos are hitting on all the important things to share and you are very good at it. It’s been a year since sharing your supplements. I would love to know how much of the same supplements you have stuck with and what has fallen off, and if you have added any. Would you please consider doing an update video of your current supplements. You are an incredible inspiration and have helped us tremendously.
Hi Greg, yes I will add a supplements update to my video list, thanks for the suggestion. Thank you for your kind words and encouragement. 😀😁😊
This was great info.....Thanks from Canada.....I am going to give these products a try. I am tired of everyone telling me to give up....
Hi Mike, hello back from Canada, I am in Westbank. I had to read your comment twice, people are telling you to give up?????
There are so many things that can offer partial relief of symptoms. Please have a look through the channel and also our website
www.lifewithparkinsons.ca/
Let me know if you have any questions.
Email is info@lifewithparkinsons.ca
@@olivernewsweekly I can’t believe anyone would tell you to give up. Please don’t listen to them. There is so much out there that can help. I’m always finding new things to help my son. Sadly, he doesn’t cooperate so I can’t force anything. I only found this on CZcams recently but I’m going to go to the website from now on. PLEASE NEVER GIVE UP! I believe God has a breakthrough coming soon! I pray he blesses you & everyone here with healing. I will surely be praying. 🙏🏼
You are doing an amazing job, the supplements ate part of the nutrition you're lacking! That is why they work. The Brain needs all of them otherwise it wouldn't work.
Thank you gor sharing I need to hear this for a friend's husband.
I just ssaw a video if a Gentleman who was sivk for many years. He changed his diet to a keto diey. Low Carbs Good protein and Fats. He felt and saw the difference in 6 months he's healed now he can do everything and he is do happy, he wrote a book.
His name is Collin Potter
Thank you 😀😊😃
I take many of the same supplements that you do and they’re very useful. Keep up the good work and keep up the fight DJ M 15 years PD.
Thanks for watching and saying hi 😃
Thank you for sharing your experiences 😊
You are welcome 😊😀🙂
Lion’s roar was great! A well put together video💛
Hi Sheri. Thanks, it was fun to do. Working to improve each new video.
Hi David , I was diagnosed PD. 3 months ago and I took B1 too besides carbidopa 25 / levodopa 100 mg .... thanks for sharing .... Bob
Hi, Bob, nice to meet you thanks for saying hello. Did the B1 help you at all. I will be doing an update to the supplements video soon.
I have my mom on PROBIOTICS TO HEAL AFTER ANTIBIOTICS, Quercetin, B~ Vitamin Complex, Mushroom Blend by Paul Stamets, Methylene Blue, Magnesium Glycinate & L Theaninate , Ashwaganda, Bee Pollen, GABA, ... will look into the ones you mentioned.
HI Marie, I've had some really good success with my recent trial of red light therapy. My first update should be out soon.
czcams.com/video/U4uVYsPBI_c/video.html
These supplements are very important for Parkinson’s.
Hi Amna, thanks for your comments and your input.
Recommend .... six eggs per day... And at least two cans of sardines per week.... Just normal mushrooms
Hi Asoka, thanks for the tip!
Magnesium, omega 3, k2, D3,seed probiotic, Alpha Lipoic acid, super b complex, and vital protein collagen peptides. Some with water, an empty stomach and others with fat.
Hi Bonnie. Sounds like a good list.
@@LifewithParkinsons I hope so.
Also instead of B1 supplement , take nutritional yeast. That's a better source of B1.
Good suggestion.
Non fortified nutritional yeast.
Thanks for the video as usual it’s very informative and interesting. I love melatonin it helps me get back to sleep when I wake up at 2am. I take the omega 3 and probiotics. Have not heard about Créatine but will look into it. I take a multi vit b complex too. Oh yeah I also take Metamucil (pysyillum)
Hi Elaine. Thanks for your comment. Who doesn't love Melatonin? I've thought about taking half at bedtime, and half around 2am like you do, but I can still do 8hrs waking up 2-3 times so it's not too bad. The Metamucil is good too, but I prefer to buy the yogurt with the fiber in it already.
Brilliant job,keep it up!
Thank you for your encouragement!😀😁😊
Im also diagnosed PD and suffered the symptoms for about 4 years. Carbidopa levodopa is very good meds for PD
Hi Nanel, glad the carbidopa/levodopa is working good for you. 😀😁
They say it only lasts about 5 years
I been taking Benadryl and it seems to help, back of brain won’t stop pulsing. Thank you
Glad you found something that helps. Sometimes that is half the battle.😊😁😀
@@LifewithParkinsons do you have pain or throbbing back of brain?
@@richward559 No I don't have those problems.
Hey David, Vitamin D3 was the first thing my rheumatologist put me on as it is shown for people with autoimmune diseases we are low in. Not sure if Parkinson's is an autoimmune but D3 is a my must for muscles/joints. I had no idea there was a supplement for internal tremors 😲😲
I've had for years and I swear it's like a cell phone on vibrate inside my body when it hits. My neurologist suggested sublingual B12 along with a multivitamin for low B levels. My budget is small but I will be buying the supplement for internal tremors
Thanks for the tips 😀👍
Hi Tory. The internal tremors are terrible, I’m just not sure if you will get the same results so I would like to know what you find. The person who recommended it to me, her father has PD and swears by it. All I know is the internal tremors went away when i started the harp seal oil and came back when I stopped. Interesting what you say about the D3.
@@LifewithParkinsons I'll let you know what I think of the seal oil. I do have a difficult time getting gel capsules to go down. Are these capsules very big?
Def look up D3 for autoimmune's
The very first session I had with my rheum was the meds but also diet. There's a documentary film he had us watch( my husband also has RA) it's called Forks over knives I believe. We are more aware of how we feel with what we choose to eat
The gel capsules are large, but I suppose you could drain them or find it in a liquid form. Diet plays a big role. Right now I'm looking into the mind diet.
@@LifewithParkinsons I've only ever used fish oil David, is seal oil strong in taste/odor? I could put it in oatmeal if it isn't tough to get past a taste
I just chewed one to find out did not taste that bad. Didn't smell anything terrible.
Great hints and helps. I take tumeric and lots of brewers yeast nutritional flakes for B vitamins..
I am so glad you liked the video and let me know thank you for saying hello
Thank you so much for this video. My husband was just diagnosed with PD this week. I'm overwhelmed with research. Interesting you take B1 as I just ordered a book about B1 and PD. Blessings to you
Hi Deborah, sorry to hear about your husband, but it sounds like he is in good hands. My B1 trial did not go well, had to give it up. The best results I have had has been from Parkinson's gloves and red light therapy. Check my website for links and sponsor information.
www.lifewithparkinsons.ca
Thank you😀😁😊
I will definitely check out the gloves and red light therapy. Thank you! @@LifewithParkinsons
i am with you on the comfort linens which I have used for 3 years. Great product.Take care.
Hi Jeremy. Yes they have amazing products. Thanks for saying hi.
What about riboflavin (B2)? Its role in neuroprotection is already demonstrated (Marashly 2017) and it crosses the protective blood-brain barrier, reaching the neurons and astrocytes (Moriyama 2011).
It reduces the risk of developing Parkinson's by 51 % (McCormick 1988). And it produces a motor improvement in all cases in the study of 44-71 % at six months. As the months progress, the benefits are greater (Coimbra 2003). It plays a decisive role in complexes I and II of mitochondrial respiration, as well as being essential in the synthesis of glutathione and its recovery once oxidised (Powers 1999).
And if anything is missing, it has epigenetic potential (so far 90 genes are known to be encoded).
Hi pk, I learned something today, I am going to look into B2. Thank you so much for that information!
@@LifewithParkinsons You are so welcome!
Hey pk, I am working on updating my supplements video and am curious as to where you found your sources for the B2? I would like to include some real info in my video and am looking to ad B2 into my daily dose. Thank you.
David, Your Video is AWESOME, I totally enjoyed your great outlook on life. I'll try the vitamins you recommended and I'll let you know what happens.
Thanks so much Ron. Please do. I've also had as some good results with Red light therapy.
Thanks for saying hello 👋
czcams.com/video/U4uVYsPBI_cA/video.html
Thanks for this informative video. Since I was diagnosed I started taking so many supplements and stopped drinking and smoking after my driving licence was revoked when I had to notify them of parkinsons. I also try and exercise every day and eat healthy. I heard creatine helps a lot so I'll be adding that to my list.
Hi Abel, thanks for saying hello and sharing a bit of your story. Creatine does help a lot. Hope you stick around and check out some other videos.
@@LifewithParkinsons subbed
That magnesium is the best for brain!!!🙏💜
I agree😊😁😀
Being in your condition I would try ginger on a daily basis. Gingerenone is a strong senomorphic. It might be able to rejuvenate some zombi-dopaminergic neurons. As they are lipophilic they should cross the blood brain barrier.
Thanks for the suggestion Rainer. I had no idea ginger could do that.
@@LifewithParkinsons GINGERENONE A outperformed standard senolytics like fisetin and even Quercetin+Dasatinib and has no adverse effects. Fresh ginger is useful, maybe also the essential oil. (With your supplements you are one the right track - I take most of them without having PD) Good Luck!!!
@@LifewithParkinsons czcams.com/video/MvNSkFnvHZU/video.html
Hi David, thanks for another great video. I take quite a few supplements, too, and have wondered how the medical professionals might feel about that. It's good to know that they seem open minded and willing to work with us. I've recently added the product Nervive to my daily arsenal and have gotten relief from the electrical shocks that were zapping my legs at night. Anything that helps is a blessing!
Hi Jeannine. Yes the doctors I have had have been fairly open minded. I will check out Nervive, I saw it mentioned elsewhere today as well. Anything that helps is a blessing!
Jeannine...Please investigate high dose B1. Dr.Chandler Mars is the expert!
Thx for sharing! The lion roar was top notch 👌😁
Lol. I couldn't resist!
You might want to look into Benfotiamine (a lab-made version of vitamin B1), as well. But speak with your doctor first.
Thanks for the tip and the information.😀😊😁
The HCL Thiamine protocol from the Italian Doctor worked better for him than the Benfotiamine for my friend
Hello, thank you for letting us know.😀😁😊
We are all different individuals.
Thank you for sharing what helps you.
Methylene Blue is supposed to help Parkinsons patients?
Good Luck to you Brother.
Hi John, I have had good progress with the parkinson's gloves and red light therapy combined. Thanks for your comment.😀😁😊
"Pure vegetables, such as tomatoes, peppers, aubergines and cauliflower, etc., which contain natural nicotine are effective against Parkinson's if eaten frequently." Quote by Ptaah, talking to 'Billy' Eduard Albert Meier (BEAM), contact report 578, January 9th, 2014.
Thanks Belinda, this is a great tip!
Many thanks.😀😁😊
I hope this advice helps those that are suffering with Parkinsons. Have a good week! @@LifewithParkinsons
My functional medicine doctor has me taking all of these plus vitamin e and omega 3's. Only been diagnosed for 3 months so can't speak much to their effectiveness. Can speak to melatonin which helps my sleep when mixed with magnesium powder on water. Also can recommend a few prunes with meals and lion's mane twice a day for constipation. Thank you for making this video
Hi Mark. Thank you so much for letting me know what you’re taking. I hope everything goes well with you! Thanks for watching
*PLEASE LOOK INTO high dose vitamin B1 for Parkinson's.*
I did. It gave me lots of anxiety and interfered with other things. Thanks 😃👍😃
My husband is pd sufferer diagnosed for almost 3 years. He added Seal oil, Lion Mane mushroom capsules it helps a lot. However, upon research another additional supplements is Serrapeptase capsules it does a good job. Helping him to have a good sleep, clear his sinus, his sense of smell is improving and so with his mobility.
Hi Maria, sorry to hear about your husband, but thank you for letting me know the seal oil and lions mane help with the symptoms. I will look into the Serrapeptase capsules, never heard of them.
Please could send me link with all this supplements where you buy?❤
@@annadetmer5451 hi Anna. I get most through Amazon
Hi Anna! I buy some of my supplements in the local chemist, I Herb and Amazon.
Hi Anna, I give you the names of vitamins and supplements that my husband has been taking. Vit. B1, B2, Moringa capsules, Spirulina, Milk thistle tab. 7000 li ver detox, glutathione 500 mg., Bromelaine 500 mg, Vit.b12, Seal oil omega 3 500mg., Lion's mane fungus 500mg., Calcium, magnesium and vit. D as one tablet. For dinner supplements are Lutein and xexanthin capsules for eyesight and bromelaine capsule. 30 min. before dinner he takes Serrapeptase capsule 60,000 spu helped him for his sleep. Eversince he started taking Serrapeptase enzyme capsules he sleeps well, lessen the tremors of his hand, able to walk around the street with the dog at times. When the weather's fine he does mowing and cut the hedges of garden plants. Before he stopped walking along the street due to breathing difficulty, pain of the back and shoulder. Another thing that my husband is using is called Symbyx Biome a laser light therapy he had been using that for a year and he said it is helping him as well. Lately am waiting for Vit. B1 Bentfotiamin that I ordered. At the moment he is taking the B1 I bought in local pharmacy. Tha prescription he is taking is Madopar 125 - Levodopa 100mg, Benserazide 25 mg as hydrochloride.
.
Thank you.
Hi Irene. You're welcome 😊
Lion's mane seemed to help me at first, but then do to an interaction with one or two of my meds, I was having syncope issues! I stopped the LIon's mane, and the syncope issues went away.
Hi Jim, thanks for letting us know. Good comment to have on the list if other people have medication interactions.😊
He is right BENFOTIAMINE B1 IS THE BEST!
It seems to be helping some people and that is good 😃😊😀
Hi David. Thanks so much for putting all your videos out. They really have helped me help my father. Could you please tell me the dose of the Lion's Mane that you take. He would really like to try it. Thanks again so much for sharing your journey with everyone.
Hi Capt, thank you for your kind words and encouragement. Due to inflation and the impact it has made on disposable income, I had to give up the Lion's Mane. I would take the maximum daily dose for best affect. Thanks.😀😁😊
glutathione, IV or liposomal, vitamin C, 3 grams, 6 times day
Thanks for the tip!
I take vitamin B and cranberry and Zinc D3 C and metroin
Hi Carrol. Thanks for letting me know. Building a good variety of supplements in this comment thread.
I’m taking Dopamine half tablet 3 times, says avoid supplements for 2 hours before and after? How do take yours and when? 😊
@@kokoyumz7820 Hi Koko. You probably don't want mu advice because I take my supplements morning and night with mu C/L. I had no idea the warnings said that. I've been doing it for years and my doctors said nothing and it hasn''t been an issue. Your call 😀
Great video!! I am still experimenting with my mix but take COQ10 and Magnesium - I am curious about Creatine now and will look into it :) Thank you!!
Hi Jennifer, let me know if it helps you.
@@LifewithParkinsons if I add it I will but what you said about how it helped you with movement got me interested to at least look into it :)
Yes it makes a big difference. There were studies done on it to see if it reversed PD. Obviously it doesn’t, but it also stops my muscle cramps when sleeping. My son suggested I take it as it’s the only legal supplement athletes can use, apparently.
waesome supplement stack👍 i would try to ad in some tyrosin, mucuna pruriens and a nice mate tea in the morning.
Hi Stefano, thanks so much, yes I love mate tea😀
Good info!! Thanks for sharing
No problem Jeff thanks for saying hello 😃
Did you have a heavy metal test.and if you have high mercury or lead ,you should try chelation therapy, to reduce the heavy metal toxicity. And also at the same time have intravenous glutathione .
Yes, my blood was tested for many many things. I have looked into the glutathione and am hesitant to use it based on my personal research. Thank you so much for your suggestions.
Ashwagandha and mucuna pruriens help as well
Thank you😁😊😀
Thank you for sharing. I wonder if anyone knows where I can get help for my son. His wife divorced him because of Parkinson’s. They have 5 children and she doesn’t want to deal with her life being interrupted with Parkinson’s. She said she just wants to be happy. So now my son is alone and living in as assisted living facility just 2 miles from his kids. He could no longer live alone. I live 3 hours away. We try to go every month for 5-7 days. My husband is with him now. It’s costing us a fortune for him to live there. Does anyone know if we have any options? By the way, he keeps refusing to come live with us because he doesn’t want to be away from his kids, who are all teenagers now.😞
Hi Joan, thank you for sharing about your son and family. This is a tough one to help with, but if you let us know what country you are in perhaps someone will have some suggestions. It sounds like you and your husband and doing everything you can. Sorry you all have to go through this.😊
@@LifewithParkinsons Thank you for taking the time to read my post. I live in NY and my son lives in northern CT. I spoke with my son last night. I cried so much after we spoke. I noticed his memory is worse and he still has a lot of pain. I’m so glad my husband is with him for this week. I feel so helpless because he won’t come to NY. I have research for alternative therapies that I believe would help him, maybe even bless him with remission. I have great faith in God and still I cry so much. 😢
A better thing to take then melatonin is glycine, you can take before meals and can lower blood sugar, you can take it in place of coffee for daytime sleepiness, and it helps your brain make its own creatine. It also been shown in recent studies with nac to increase glutathione (so called master antioxidant of the body) to match the glutathione of a 20 year old as well as metabolism and low oxidative stress of a 20 yr old. Imagine that. You can take before bed (3-5 g) and you will fall asleep faster and sleep deeper and have longer vivid dreams (just make sure u think happy thoughts before bed lol)
Also I've found zinc and copper as a crucial component to the immune system. Countless benefits. Lots of misinformation out there about these two. Especially copper. I learned from this guy, Jason Hommel (no relation). He wrote a 500 page book about copper and healing with copper along with other minerals. Most of the info can be found in his CZcams (he reads his book chapter by chapter for free and lots of great people in fb group copper healing with minerals to learn from). I take all of minerals he recommends (copper, zinc, boron, silica and vitamin c, molybdenum and MSM, and iodine)
I have found the protocol very helpful with overall health) glycine is the next thing I'm trying based on a bunch of CZcams videos I've seen about glycine that I'm hoping with help my awful gut. Also take magnesium.
It increases serotonin which is what turns into melatonin at night
Hi Scores. Thank you for your comment full of helpful information. It definitely sounds like you are current on a lot of recent studies. I just don't have time to read them all so thank you for sharing your thoughts and suggestions it is much appreciated. 😃🙂👍
Thank you for your comment and thank you for watching 😃🙂👋
You should talk to your doctor about high does of thiamine B1.
Thank you for the suggestion 😃😊😀
Please tell us how much and when you took all these vitamins.
Thanks for the video. You saved my life
Hi ASMA Citrus. I take a bit less than the recommended daily does and split it morning and night.
Not guaranteeing you the same results I have gotten. Everyone is different.
My father has Parkinsons he took a lot of this stuff ,he's in hospital now like a vegetable,you need to be in ketosis and feed your brain ketones
Hi Paul. Thanks for sharing your difficult situation and for passing on your advice. Wish you and your family only the best.
I have not taken many supplements but I am willing to try some.
Hi Linda. Thanks for your comment. If you do try some I would be happy to hear your results.
I need to check my supplements out!
Let me know if something works for you
Thank you!
Hi Susan you are most welcome 😀😃😊
Taurine have broad range of protective properties. ALCAR is very helpful. NAC with glycine in higher doses will increase gluthation. Niacin is helpful, it will increase levels of NAD in astrocytes but some older people may have glucose/insulin issues so that should be monitored. Also it should be taken with equal amounts of TMG wich is also helpful on its own. Ketogenic diet is protective and restorative (read new book: Brain Energy by Chris Palmer). All B vitamins are important but you should gradualy up thiamine dose, 100mg is usually low for Parkinson. Selenium is important for brain functioning, zinc...inositol, GABA, pregnelonone, small amounts of DHEA
Thank you so much
@@LifewithParkinsons czcams.com/video/ensRh8sR5ik/video.html
Hi cheryl from trinadad i have parkinso been taking b12 369 and giaco they are very helfull
Thanks Cheryl, so glad they help your symptoms😀😁😊
These ideas make sense to me.
Thanks 🙏
Keep us posted! Excellent video. I have a developmentally disabled brother who has had gradually worsening "Parkinsonian" symptoms. He can barely walk any distance nowadays. He is unable to communicate effectively so doctors are of little help. He says things like "I will get new legs someday". It's heartbreaking. I have started researching things that might improve his symptoms. He takes a multiple vitamin, D3, and Vitamin E. I appreciate you sharing things that have helped you. Of the supplements you mentioned, which one has lessened your pain the most? I'm thinking you might say magnesium. If so, have you tried a magnesium complex which has multiple magnesiums and what were the results. Thanks so much. I subscribed! Yay!
Hi Dawn. Sorry to hear about your brother, that has to be difficult if he is unable to communicate. I don't get a lot of pain at the moment from the Parkinson's, but the magnesium has helped me to sleep much better. I have not tried the complex one, as the threonate is the only magnesium able to break the blood brain barrier.
Thanks for subscribing and watching!
@@LifewithParkinsons thanks for your reply. 🙂
@@dawnrobbins5877 I saw Many videos talking about lion man mushroom as it is very effective to parkinsonian people.
I advise you to try it and let me know then.
Do some research on diet and parkinsons. I know people who had MS and BI-polar who put it in remission by eating the carnivore diet.
Very helpful!
No problem 😃
You should look into Photobiomodulation also I believe the effective dosage for Parkinson's with b1 is 1500mg although you have to check seem like you just have 100mg pill their.
Hi Matt, I am currently looking into photobiomodulation, thank you for that suggestion. The vitamin B1 did not work out for me, hoping to have that update video completed in the next month or so, need to do a bit more planning and research. Thanks for watching and commenting😀😁😀
Please tel the quantity of supplement tablets to be taken each day and mention the timings as wel like ,morning and evening
God bless you and please reply it’s needed
Hi Zahid, telling you how much to take and when is really up to you and your medical team. I told my doctor what I was taking and he made a few suggestions. I made sure I was under the daily dose for most. The only one I take the maximum daily dose is the harp seal oil. Let me know if these supplements work for you. Thanks for watching and saying hello😀😀😀
Great tips!
Thanks James. Glad you find the information useful
It is useful to make a hair analysis I do in trace elements in texas
really want to hear about your B1 personal trial!!!!
Here is the link to it. czcams.com/video/hYkdOGFraU8/video.html
Having more success with red light therapy and Parkinson's gloves.😀😁😊
Yup I take vitamins plus calcium and Biotine..only wish I could take Vitamin C..too harshfor me.. thanks
Hi Shirley. Thanks for you comment. Never heard of biotine. Will check it out.
AS a person who has a times moderated Parkinson's support group's at 2 major NYC hospitals for over 20 years, take this video with a huge grain of salt.
When the disease takes off, it becomes fatal, my wife's death certificate states her cause of death is "Parkinsonsm" ,there is no cure and few supplements work for the long term, better that you hydrate and execise and rememeber, Caveat Emptor.
Hi Michael. Thank you for your input and your comment and thank you for sharing your vast experience. What you have said is true not everything will work for the long run but I'll get whatever I can as it sounds like you understand the symptoms.
Yes of course,do what feels what is working for you, in the 22 years my wife had PD we availed ourselves of many therapies and supplements, about 15 years ago CQ10 was the rage along with acupuncture ,Tai Chi ,Boxing for PD, Dancing for PD ,Macuna beans for natural Ldopa( but one would need to eat pounds of these legumes everyday) and Rekei therapy as well as Feldenkrias ,for some it had limited benefits in movement or falls prevention,even Chelation therapy was touted a cure for PD! ,my sadness ,not pessimism, was when zero efforts on behalf of her Neurologists and al other protocol's nolonger helped her as she entered end stage Parkinson's ,I would say we managed her PD for a good 19 years before dementia took it's toll eventually shutting down herall brain functions and she died while in a Coma.
I have internal tremors but I call them the shakes and I have the shakes 3/4 of my life now. I have to go to the doctor if I have Parkinson's or something else. If something is vegan friendly (vitamins)
Hi Andrew, yes, I agree, I hope you can find a good doctor to help you out. .Thanks for saying hello.
@@LifewithParkinsons we live in Cleveland area so we will find a good doctor.
Good tips!
Thanks Jeremy. Glad you think so. You never know what is going to help.
Magnesium that came with vitamin D or Calcium tends to be Magnesium Oxide, not good. Magnesium bisglycinate is almost as good as mag L-threonate, but much cheaper. Bassam el-Khodor's lecture on Magnesium is excellent, veggie magnesium is twice as good as mag L-threonate.
Thank you, I will look into the magnesium benefits and cost. I always like spending less money, especially with high inflation bearing down.
@@LifewithParkinsons i tried magnesium L-threonate for 6 months, with no obvious benefits. Now i take magnesium bisglycinate powder (one teaspoon )3 grams to get 300 mg elemental magnesium daily. I get it from big salad of broccoli too, also for the 4700mg Potassium daily.
Threonate is overrated and way too expensive...
@@LifewithParkinsons czcams.com/video/GIVqou1znMQ/video.html
Time 41:00 Plant-based Mg is 3times better absorbed than Magnesium l-threonate in the CSF, and twice that of Magnesium glycinate.
In any case, don't take the cheap Magnesium Citrate...citrates deplete copper and the enzyme Ceruloplasmin that aids iron-transport...one ends up with overloaded iron, serum ferritin to 560 level with joint and muscle pain similar to gout. See Morley Robbins: My Theory on Everything...especially the do's and don't tables at the end.
@@LifewithParkinsons sure, magnesium oxide that doesn't dissolve in water, dissolves well in acidic stomach. Question is when it gets into the bloodstream that is slightly alkaline, will it still dissolve or precipitate? I had my kidneys clogged up, eGFR dropping to 65 c.c./min., after taking Magnesium Oxide for 2 months. I flushed it out with Potassium Citrate and never take Magnesium Oxide ever again.
Some manufacturer of Magnesium bisglycinate sneakily add Magnesium Oxide as a filler. Avoid it at all cost, not worth the kidneys clogged...
@@pramuanchutham7355 Thanks, that's some great information.
Thank you!!!👏👏💜
Hi Debbie. You are so welcome!
So sorry for all these questions
I don’t mind answering a few questions. Hope the videos help.
No worries
Thank you for explaining things that'll in a simple way..... Would you have a clue of what to take for PTSD? .. It does affect my dopamine. I want something natural.... I don't need things to numb me out.
Hi Katie I'm sorry I don't know what to suggest for PTSD. I had it back in 2006 after falling off a ladder at work and I took some antidepressants for a while to help.
Don’t take ashwagandha then …. It will numb you out.
Harp seal oil for internal tremors, lions mane for bowel regularity, magnesium threonate for beating restless sleep and legs,, vite D, melatonin, creatine.
And thiamine
Thanks for watching😀😁😊
Great video.
Thanks Eileen, glad you enjoyed it.
Dopa Mucuna & Benfotiamine works for me.
Thanks for letting me know 😊
Have you tried Alpha lipoic acid or Acetyl-L-Carnitine? They have some good properties for nerves, but i'm no expert or anything like that
Hi Norelon. Thank you for the suggestion, have not heard of those.
@@LifewithParkinsons
Good video.
check out also choline for brain. Eggs and liver are high in choline. I take beef liver supplements as i cant eat eggs. But thebeef liver helps my energy and i dont even take a full dose. I do take cdp citicholine tho unless im fasting.
@@CalmVibesVee Thank you for your comment. Thanks for sharing your regimen.
I have heard that Keto and intermittent fasting are very effective.
If you've tried them happy to hear your results.
@@LifewithParkinsons I have been doing it to overcome my anxiety.
It does make a difference.
I'll have to try it out then. Anxiety is my biggest symptom.
@@LifewithParkinsons I follow Dr Eric Berg on CZcams and Facebook for his keto and other health related advice.
Will check him out thanks.
Vitamin B1 (Benfotiamine) has demolished my SAD and anxiety.... I'm 72, and have had it since a child... this is miraculous.
I also came across a video where mega-doses of B1 rewinds Parkinson's, takes you back to who you were. A British woman wrote a book on it.... search it out.
My sister has Parkinson's. She is about to go into assisted living... I've two other friends dealing with it.
Hello thanks for the information I'm so glad vitamin B1 is helping you it didn't work out for me. Yes I am aware of the book and will be updating my video soon.
Good info! Thanks for sharing. I noticed the Magnesium L-Threonate is 3 times a day. Do you take them all at once or space it out? Does it make you sleepy? BTW, love the comedy.
Hi Michele. I just take it morning and night. 2 pills per day. My MDS specifically said don’t over use the magnesium-L as it can cause other issues if taken to often.
@@LifewithParkinsons thank you
@@Michele2Alpha No problem. I'll add your channel to my featured channel section since you're going to publish PD videos.
@@LifewithParkinsons Thank you!
Take Mucuna cápsulas for Parkinson and an alkaline diet .
Thank you Valdez, for the suggestions😀😁😊
I can recomend a book from Jeff T Bowles regarding vit D.
Hi Vindrock81. Great, what book do you recommend? I haven't done much reading on Vit D. Just the bottles 😀
@@LifewithParkinsons My answer was not accepted. Read any of the books of D vitamin. I take D3 50000IU, K2 800ug, magnesium 400mg 3 times a day, alot of betakaroten. I do not have your condition but I has helped my healing of old problems. I think this might stop the progress of your condition and with luck restore the body. The book is avalible as audiobook on audible.. Good luck!
Strange. Ok, I'll check out the author and find the book. Thanks!
I have recommend him to so many people. I am taking 40,000iu of D3 a day and it has managed my insulin resistance better than anything that I have tried.
Dr Eric Berg recommends B2.
Thanks Barbara😁
And Stanford gloves research
Thanks😀
You need vitamin k2 Mk4 and mk7. There is study's linking k2 to parkinson's and Alzheimer's desease.
If you have the link to that study please send it my way
@@LifewithParkinsons that's another good read.
Gracias desdé argentina los voy a probar thank you
Gracias. Mucha suerte!
@@LifewithParkinsons feliz año 2023
@@danielbosio3082 feliz año Daniel
Thanks David for thiy video . I have juste a quastion what do you think about the Mucuna pruriens ? Do you have a idea ? Did you taste it .thank you .
Hi Karim. I’ve thought about trying the mucana puriens a few times but have never gotten around to it I just don’t know how it would react to my medications and I take so much already. I think if I was just starting out it would be something to try.
@@LifewithParkinsons thanks David for your response . I have my dad has parkinson .and i so the video here in France or Morocco talking about this compliment Mucuna pruriens .
I started my grandpa on a liquid vitamin called Source of Life Gold Liquid, it has most if not all the supplements he talks about here and work phenomenally! My granpa's tremor drastically reduced to almost non-existant, his voice got stronger and his gait improved and he's had a reduction in falls!
Hi Jules, thanks for the info. Can you please provide a link to the product you are talking about. I would like to check it out. Thanks
@@julesj5853 thank you I will check it out
Hi.David did u try TTFD(thiamine ? It crosses the blood brain barrier
Hi Mashna, I did not
@@LifewithParkinsons u can check it out...i think it will work u😁
Can you please tell me where to locate the Newfoundland brand of the harp seed oil? I followed your Amazon link for it, but it says that it won’t ship to the states. Thank you.
Hi Maria, sorry it is not available in the United States. I will be recording a new supplements video in the near future. There have been a few changes I need to update.😁😊😀
Vitamin Di is best taken with vitamin K2 and fat
Good point ru👍
what about adding B2 and a regular probiotic? I've heard these help as well. My brother in law has Parkinson's so we've been reading up on various things that seem to help..
Hello, those sound like good additions also. If they help please let me know, thanks.
I was diagnosed with Parkinson's about six months ago and have been having a serious ongoing problem with constipation. If Lion's Main mushrooms have helped you with this issue, I would love to know what brand you use and what dose. Thanks.
Hi Jim, here is a link to the Lions Mane. One pill in the morning and one before bed. I hope it helps. I have heard positive feedback from a few others.
www.amazon.ca/Organic-Mushroom-Capsules-Real-Mushrooms/dp/B078SZX3ML/ref=sr_1_1_sspa?keywords=lions%2Bmane%2Bsupplement&qid=1683071652&sprefix=lions%2Caps%2C183&sr=8-1-spons&spLa=ZW5jcnlwdGVkUXVhbGlmaWVyPUExSUdVQU9CUUJNQ0ZEJmVuY3J5cHRlZElkPUEwMzQxODQzM05GVVVBSjNISUc1QSZlbmNyeXB0ZWRBZElkPUEwNDc2MDk1M0U0UTZDNlJNOTJJTSZ3aWRnZXROYW1lPXNwX2F0ZiZhY3Rpb249Y2xpY2tSZWRpcmVjdCZkb05vdExvZ0NsaWNrPXRydWU&th=1
Real mushrooms and freshcap mushrooms are great brands
Hi. Thanks for your video. Where do you get harp seal oil?
Hi Mary. If you live in Canada you can get it through Amazon. If you are in the United States I'm sorry I have not been able to find a supplier there. Thank you for saying hello. 😃👋😀