Keeping Your Spine, Limbs, and Feet Healthy in Marfan and Related Conditions

This webinar, which is part of our Prepare For Victory: Virtual Medical Symposium series, features Dr. Paul Sponseller, director of pediatric orthopedics at Johns Hopkins, and Dr. Adam Bitterman, an orthopedic surgeon and foot and ankle at Northwell Health in New York. They describe common orthopedic issues in Marfan and related conditions and answer questions from participants.
A copy of this presentation and information about other webinars that are part of this series are available on our website, at bit.ly/VirtualS...

[@oneandonlyone1]

Dural Ectasia has got to be the worst symptom of Marfan Syndrome.
I always wonder, if i will ever be able to move and walk again when it strikes. Or maybe this time I will be paralyzed forever.
It is comforting to know dural ectasia did not get worse over the years / with your study.

[@wildfire3989]

Urinate when standing up?

[@dianeculverhouse6979]

Narrow feet and high arches,later flat footed.Feel manufactures provide shoes that fit children correctly range of sizes and orthotic supports.
Feel this would both encourage walking balance and back pain latter on.
As connective tissue disorders causing sprains strapping or treatment of sprains
When out could also help.Can they work with manufactures or pressure to provide this.

[@lizmartin3790]

Excellent topic. Thanks so much for covering this!

[@kunaljadhav136]

Thanks for sharing video .
All videos are very informative helpful but please try to share those videos with Hindi language also... because many peoples are from other countries not understanding only English language.
Please think about my request.

[@dfairness8393]

Is there a way to attach the slides to this presentation?

[@TheMarfanFoundation]

Hi. David. If you go to our website, there are links to the slide presentation from each doctor. www.marfan.org/resources-answers/patients-families/virtual-medical-symposium-series