Raising Awareness While Preserving Energy - Preparing for Myositis Awareness Month April 2024

Have you wanted to spread the word about myositis but feel overwhelmed at the idea? Managing a chronic illness can be difficult and many of us experience fatigue. This webinar featuring TMA Board Member Chip Galloway will highlight different activities to choose from and how to participate in myositis awareness month while preserving your energy. Chip Galloway was diagnosed in 2020 with inclusion body myositis. For the past year, he has been tireless in his efforts to raise awareness of this rare disease in everything he does and in every place he goes. Through his experience serving and leading nonprofit boards and the energy and passion he brings to serving his fellow myositis warriors, he’s on a mission to make a difference for those who live with myositis. This webinar gives you plenty of options to choose from when deciding to raise awareness in our community. Here are timehacks to jump to the sections that interest you the most.
0.00 Introduction

[@BeverlyAdcock-w2q]

Amen! Trust in the Lord with all your heart. In all ways. During all trials. Trust!
HMGCR antibody-positive Necrotizing Myopathy Survivor!

[@SherriLyle80s]

I'm 43, went to the doctor because of joint pain and weakness, went through about a year of tests after tests and waiting to be seen by specialists. I was recently this year diagnosed with Myositis Antisynthetase Syndrome. I just always thought muscle weakness and joint pain came with age so I sucked it up for a long time. Jist starting my journey and treatment. Good luck to everyone else!

[@RustyPenPaper]

I'm sorry you had to go so long before getting a definitive diagnosis. I just had my 3rd positive ANA and RNP...including now a positive biomarker for Inclusion Body Myositis. Docs have been awful and extremely dismissive to me for years as I have watch my muscles weaken and atrophy. Still without a definitive diagnosis. I did finally find a PCP who is caring, listens and give me feedback. I am seeing him again next week and hoping to get some referrals to Neurologist and Rheumatologist to get some answers and a diagnosis so I know how to proceed. The muscle weakness and exhaustion is absolutely horrible. I wish you the very best!

[@olajideolatunbosun6640]

I was diagnosed in 1996 and I had surgery in June of the same year.

[@madeleine7]

Thank you! Will Dermatomyositis be covered?

[@gloriaingle7245]

How do I get bracelet?