My liver specialist sent orders for routine blood work and for some reason the facility added a myositis panel to be taken by accident. Well...that showed my NPX-2 was high. He told me to see a rheumatologist and now knowing about the rashes and inflammation it all made sense. I am glad I was diagnosed by chance so I can tackle this while I am stable.
I am off of plaquenil . I was on it 30 years I am losing my eyesight because of it and seeing a retina specialist to see if they can do anything so I am not allowed to
Im from Namibia suffering from Dermatomyositis for 12 years im on 4mg Medrol and Azapress 100mg but sometimes my muscles are weak ,pain and fatigue im don't exercise regularly due to the weakness of muscles please give me any information to help myself because im always tired and depressed
My liver specialist sent orders for routine blood work and for some reason the facility added a myositis panel to be taken by accident. Well...that showed my NPX-2 was high. He told me to see a rheumatologist and now knowing about the rashes and inflammation it all made sense. I am glad I was diagnosed by chance so I can tackle this while I am stable.
👍🏼 Thanks for doing this! I was diagnosed in 2021 with DM also I have PSA. I struggle with fatigue daily.
I am off of plaquenil . I was on it 30 years
I am losing my eyesight because of it and seeing a retina specialist to see if they can do anything so I am not allowed to
Im from Namibia suffering from Dermatomyositis for 12 years im on 4mg Medrol and Azapress 100mg but sometimes my muscles are weak ,pain and fatigue im don't exercise regularly due to the weakness of muscles please give me any information to help myself because im always tired and depressed
Is there anything that helps low or 0 t cells. Mine have been 0 since trying 3 different drugs, then I had to stop to because of low counts.