Congratulations on your marriage! Fingers crossed for your upcoming surgery! My heart felt sympathy for the medical PTSD, I only know how it is for me, but with what understanding I have, my heart reaches out to you... Love, light and spoons to you and all who need them!
I'm so sorry this happened to you. I'm also pursuing endless paperwork to see the one expert in my country who understands msjy dysautonomia, which had gone undiagnosed for about 20 years until I figured out on my own what it was. Best of luck with the surgery 🤞🤞🤞
2023 has been a mess for me as well. At 45 we finally found out I have EDS POTS possible MCAS and gastroparesis so bad the GI didn’t know what to do and basically told me I need to go to the Mayo Clinic for a pacemaker thing. 🤷🏽♀️ I can’t afford that. If we got divorced I would get more insurance for more care. But we just celebrated 26years of marriage this can’t be the only way! Our health care system is so broken. Gentle hugs!
It happened to me. It took 2 surgeries and 12 years to get my endometriosis diagnosed. No treatment, just dx. Still waiting/fighting for ADHD treatment despite it being medically recognized over 4 years ago. I don't know how to keep hanging on like this, I lost the ability to earn enough to survive years ago. Hopefully something changes for us all soon.
It's happening to me. My Medicaid renewal was denied because my monthly income exceeds the limit to qualify (but somehow I still got food stamps? Not complaining, but it's just weird to me since they both come from the same agency.) I found out in 2022 that I'm diabetic. I've managed to keep it under control for awhile, but I haven't been able to afford the medication I need since my Medicaid coverage stopped. Fortunately my PCP works with low-income patients who have no insurance as well, so I can still see her, but something will have to be done soon about my prescriptions. I've worked hard to improve my health this year, and I don't want all that progress to get derailed because of money and our broken healthcare system. Wish me luck. Speaking of luck, I wish you the best of luck on your surgery and recovery! Also, congrats on your marriage! I hope life continues to get better for you and that 2024 is everyone's best year!
It happened to me. It’s happened to my mother. It has almost happened to my son and daughter but we’ve been fighting so hard to get the care they need. I hope you will finally get what you need. ❤
Could only watch this in parts because it is so familiar in terms of the medical abuse from so called professionals. 😮💨😢Being chronically ill is such an uphill battle on every level. 😖My heart goes out to you & I am praying everything sorts itself out for you in 2024. Take the time & recovery you need - well be here when you come back here. Your channel has & is a treasure trove for us in the mean time. Also, congratulations on your wedding - very best wishes for you both. 🤗💕
I'm sure you know to plan to double or even triple the recovery time that they've suggested. Show yourself grace about how slow it's taking you to recover. Remember that you can't truly rest if your are constantly think: I should get up and work on CZcams or my 2.0. Like I said don't plan on work of any kind until double your recovery time, just plan on resting. ... If I'm wrong and you can get up to work sooner, fantastic! But if you plan for longer you won't be inclined to beat yourself up over it. Sending lots of love 💖 from sunny 🌞 Arizona 🌵. Take care of yourself and each other 😷.
Sending you so much love, thank you for making this video and sharing so authentically. Wishing you all the very best for the coming procedure. Biggest hugs.
So tragic and unfortunately common history. Please let us know how you go with your surgery even if it doesn't work out or if it does. So interesting from the out side. I re-search CFS syndrome but don't know much about MALS.
It happened to me 😞 1:35 I felt this so deeply... I went so many years undiagnosed and gaslit by so many doctors. When I learned about psoriatic arthritis, it all made sense. It took so long to get diagnosed and then I waited so long to start biologics cause of insurance... I still struggle but the biologics help so much and I'm so sad thinking about all those years and months I had to be in so much pain because of insurance bureaucracy... I'm happy to see you posting again. Your content is a real comfort to me. Thank you for sharing 💗 Edit: I just wanted to add on here... I'm so sorry about everything you've been put through this year. The trauma and debilitating stress. We shouldn't have to fight this hard for medical care... 😢
I'm so sorry for everything that you have been through because of this. It's honestly just cruel and barbaric. I've experienced medical gas lighting all the time and still do. But in a different way. It sucks that us ill people have to deal with this. Also congratulations on your wedding!! 💒💍 wishing the best for you and pray that the procedure goes ok. Best of luck with it genuinely! Can absolutely relate to when failure is just not an option but all your getting is failure. Absolutely relate. Big hugs and sending U spoons!
I have my own medical trauma to deal with so I can definitely relate. My entire childhood was full of medical trauma. Due to my own chronic illness, Muckle-well syndrome and the fact that my registered nurse mother's idea of looking after three kids with a rash, fevers, blood shot eyes and a whole host of problems, was to give them a couple of disprin and send them back to bed so she could go back to the cooking and cleaning. Yeah, I don't talk to her anymore. I've been battling the health care and government systems since 2020 for better support and care, here hoping this year proves better.
I hope you’re feeling better soon. And I am so happy for your marriage- that’s wonderful. It is 2:30am. I was in too much pain to sleep, plus I am nauseous. I should probably be heading to the ER, but I and my spouse are tired of ER trips and I am trying to give him enough rest before I have to go. I have Crohn’s with lots of strictures and I need surgery and my doctor is on vacation so I will have someone new to me walking me through the process. Medical PTSD is real. Anyway, I am going to try and rest a bit if I can. Let’s know how the surgery went. I will pray for you!
Thank you for sharing your story. It’s very courageous and inspiring. Some of your videos have helped me navigate particularly difficult days like today. Sincerely hope your situation improves. Thankfully for you you’re not going through these ordeals alone. All the best ❤
I have missed your videos and totally understand how you haven't had the spoons when this has been happening. It is so hard to just not want the pain to end by any means necessary. I have been there too and you have given me hope and inspiration, just remember even the small good things and the possibility of hope for the future, how important you are to so many people.
It's happening to me, my insurance approved a brain MRI but not a cervical MRI for suspected MS. It's very common that MS lesions beginning the spinal cord and my symptoms align with that. But there's nothing I can do but wait for things to get worse.
I’m so happy I hv found you! How do get a live session with you! Huge health issues, bad ptsd from docs, very depressed, unmotivated, found you randomly 🙌suffered from chronic pain for past 15 years, lot of surgery! Mental health not good! I watching tons of your videos! I adore you! Please lmk asap! Hugs ANNETTE❤🙏
To learn more about my program The Action Navigator, you can schedule a free zoom call with my assistant, Shae. And if the two of you decide the program is the right fit for you, you get to work with me inside the program. 💖 Grab a spot on Shae's calendar here: app.acuityscheduling.com/schedule.php?owner=16161520&appointmentType=28873885
Im very sorry for all you have been through! Im on very similar journey on trying to get diagnosis of mals or whatever it is I am suffering from for last 10 years. Have you had your surgery yet? Will you do a video about it? Sending my love!
@CassieWinter did you ever get the Surgery and have you made an update on it? I was just diagnosed with MALS after a long few years of pain and anxiety, really would love to know how things have worked out for you!
I had my surgery in February, but haven't made an update video yet. So far my abdominal pain has greatly reduced, but it has yet to affect my POTS. My doctor said it could take up to a year after the surgery to know if it's going to help with my POTS.
I am sorry for what you have been going through. I pray you get the surgery you need with the surgeon you want. Congratulations on your marriage! How does a person find out if they have medical PTSD? I talked to my Dr about Ehlers-Danlos. He didn't say if I had it or not. He just said there is no genetic test for the hypermobility type. How do I get it diagnosed? I think I found out about it from you Have you thought about getting disability? When you have been on it for about 2 years, you get Medicare. Not sure if that would be better or worse for you. They eventually dropped Medicaid on me. I don't know why. They take the premium for Medicare out of my disability check
It's simply a PTSD diagnosis. I label it Medical PTSD to convey where my diagnosed PTSD comes from. Psychiatrists and Psychologists should both be able to diagnose PTSD.
Have medical insurance prevented you from getting life changing or even life saving treatment? Write, "It happened to me." Sending you big hugs 💖
It happened to me
Congratulations on your marriage! Fingers crossed for your upcoming surgery!
My heart felt sympathy for the medical PTSD, I only know how it is for me, but with what understanding I have, my heart reaches out to you...
Love, light and spoons to you and all who need them!
Not sure if it counts as happening to me... The type of lenses I need for cataract surgery aren't covered by my insurance. (I have vertigo.)
It happened to my mother. Cassie, you are helping us so much x thank you for existing ❤
I'm so sorry this happened to you. I'm also pursuing endless paperwork to see the one expert in my country who understands msjy dysautonomia, which had gone undiagnosed for about 20 years until I figured out on my own what it was. Best of luck with the surgery 🤞🤞🤞
2023 has been a mess for me as well. At 45 we finally found out I have EDS POTS possible MCAS and gastroparesis so bad the GI didn’t know what to do and basically told me I need to go to the Mayo Clinic for a pacemaker thing. 🤷🏽♀️ I can’t afford that. If we got divorced I would get more insurance for more care. But we just celebrated 26years of marriage this can’t be the only way! Our health care system is so broken. Gentle hugs!
It happened to me. It took 2 surgeries and 12 years to get my endometriosis diagnosed. No treatment, just dx. Still waiting/fighting for ADHD treatment despite it being medically recognized over 4 years ago. I don't know how to keep hanging on like this, I lost the ability to earn enough to survive years ago. Hopefully something changes for us all soon.
It happened to me. I know this pain and rage well.
It's happening to me. My Medicaid renewal was denied because my monthly income exceeds the limit to qualify (but somehow I still got food stamps? Not complaining, but it's just weird to me since they both come from the same agency.) I found out in 2022 that I'm diabetic. I've managed to keep it under control for awhile, but I haven't been able to afford the medication I need since my Medicaid coverage stopped. Fortunately my PCP works with low-income patients who have no insurance as well, so I can still see her, but something will have to be done soon about my prescriptions. I've worked hard to improve my health this year, and I don't want all that progress to get derailed because of money and our broken healthcare system. Wish me luck.
Speaking of luck, I wish you the best of luck on your surgery and recovery! Also, congrats on your marriage! I hope life continues to get better for you and that 2024 is everyone's best year!
It happened to me many times. 👎 I’m sorry you had to deal with all of that.
sending you so much love and wishing you a quick and efficient surgery with all the best results
It happened to me. It’s happened to my mother. It has almost happened to my son and daughter but we’ve been fighting so hard to get the care they need. I hope you will finally get what you need. ❤
Could only watch this in parts because it is so familiar in terms of the medical abuse from so called professionals. 😮💨😢Being chronically ill is such an uphill battle on every level. 😖My heart goes out to you & I am praying everything sorts itself out for you in 2024. Take the time & recovery you need - well be here when you come back here. Your channel has & is a treasure trove for us in the mean time.
Also, congratulations on your wedding - very best wishes for you both. 🤗💕
I'm sure you know to plan to double or even triple the recovery time that they've suggested. Show yourself grace about how slow it's taking you to recover. Remember that you can't truly rest if your are constantly think: I should get up and work on CZcams or my 2.0.
Like I said don't plan on work of any kind until double your recovery time, just plan on resting. ... If I'm wrong and you can get up to work sooner, fantastic! But if you plan for longer you won't be inclined to beat yourself up over it. Sending lots of love 💖 from sunny 🌞 Arizona 🌵. Take care of yourself and each other 😷.
Sending you so much love, thank you for making this video and sharing so authentically. Wishing you all the very best for the coming procedure. Biggest hugs.
So tragic and unfortunately common history. Please let us know how you go with your surgery even if it doesn't work out or if it does. So interesting from the out side. I re-search CFS syndrome but don't know much about MALS.
It happened to me 😞
1:35 I felt this so deeply... I went so many years undiagnosed and gaslit by so many doctors. When I learned about psoriatic arthritis, it all made sense. It took so long to get diagnosed and then I waited so long to start biologics cause of insurance... I still struggle but the biologics help so much and I'm so sad thinking about all those years and months I had to be in so much pain because of insurance bureaucracy...
I'm happy to see you posting again. Your content is a real comfort to me. Thank you for sharing 💗
Edit: I just wanted to add on here... I'm so sorry about everything you've been put through this year. The trauma and debilitating stress. We shouldn't have to fight this hard for medical care... 😢
I'm so sorry for everything that you have been through because of this. It's honestly just cruel and barbaric. I've experienced medical gas lighting all the time and still do. But in a different way. It sucks that us ill people have to deal with this. Also congratulations on your wedding!! 💒💍 wishing the best for you and pray that the procedure goes ok. Best of luck with it genuinely! Can absolutely relate to when failure is just not an option but all your getting is failure. Absolutely relate. Big hugs and sending U spoons!
I feel your pain sister. You're a true warrior.
I have my own medical trauma to deal with so I can definitely relate. My entire childhood was full of medical trauma. Due to my own chronic illness, Muckle-well syndrome and the fact that my registered nurse mother's idea of looking after three kids with a rash, fevers, blood shot eyes and a whole host of problems, was to give them a couple of disprin and send them back to bed so she could go back to the cooking and cleaning. Yeah, I don't talk to her anymore. I've been battling the health care and government systems since 2020 for better support and care, here hoping this year proves better.
I hope you’re feeling better soon. And I am so happy for your marriage- that’s wonderful.
It is 2:30am. I was in too much pain to sleep, plus I am nauseous. I should probably be heading to the ER, but I and my spouse are tired of ER trips and I am trying to give him enough rest before I have to go. I have Crohn’s with lots of strictures and I need surgery and my doctor is on vacation so I will have someone new to me walking me through the process. Medical PTSD is real. Anyway, I am going to try and rest a bit if I can.
Let’s know how the surgery went. I will pray for you!
Thank you for sharing your story. It’s very courageous and inspiring. Some of your videos have helped me navigate particularly difficult days like today. Sincerely hope your situation improves. Thankfully for you you’re not going through these ordeals alone. All the best ❤
Wishing you all the best and sending you all the positive thoughts. I hope 2024 brings you healing, joy and peace.
I have missed your videos and totally understand how you haven't had the spoons when this has been happening. It is so hard to just not want the pain to end by any means necessary. I have been there too and you have given me hope and inspiration, just remember even the small good things and the possibility of hope for the future, how important you are to so many people.
Thank you so much!
thank u. just found your channel, and have everything you have just two years younger! we got this.
Twins! Hi bestie 💖
Thanks!
Welcome!
It's happening to me, my insurance approved a brain MRI but not a cervical MRI for suspected MS. It's very common that MS lesions beginning the spinal cord and my symptoms align with that. But there's nothing I can do but wait for things to get worse.
It happened and keeps happening to me. It happened and keeps happening to my daughters. It happened to my mother.
Big hugs 💖
I’m so happy I hv found you! How do get a live session with you! Huge health issues, bad ptsd from docs, very depressed, unmotivated, found you randomly 🙌suffered from chronic pain for past 15 years, lot of surgery! Mental health not good! I watching tons of your videos! I adore you! Please lmk asap! Hugs ANNETTE❤🙏
To learn more about my program The Action Navigator, you can schedule a free zoom call with my assistant, Shae. And if the two of you decide the program is the right fit for you, you get to work with me inside the program. 💖 Grab a spot on Shae's calendar here: app.acuityscheduling.com/schedule.php?owner=16161520&appointmentType=28873885
It has happened to me! ❤
Im very sorry for all you have been through! Im on very similar journey on trying to get diagnosis of mals or whatever it is I am suffering from for last 10 years. Have you had your surgery yet? Will you do a video about it? Sending my love!
I had my surgery on Feb 22nd! Went well 😊 It will take a few more months to know if it truly helped me or not though.
Glad to hear from you and so proud of your perseverance and use of those who care about you to get through obstacles.
@CassieWinter did you ever get the Surgery and have you made an update on it? I was just diagnosed with MALS after a long few years of pain and anxiety, really would love to know how things have worked out for you!
I had my surgery in February, but haven't made an update video yet. So far my abdominal pain has greatly reduced, but it has yet to affect my POTS. My doctor said it could take up to a year after the surgery to know if it's going to help with my POTS.
I am sorry for what you have been going through.
I pray you get the surgery you need with the surgeon you want.
Congratulations on your marriage!
How does a person find out if they have medical PTSD?
I talked to my Dr about Ehlers-Danlos. He didn't say if I had it or not. He just said there is no genetic test for the hypermobility type. How do I get it diagnosed? I think I found out about it from you
Have you thought about getting disability? When you have been on it for about 2 years, you get Medicare. Not sure if that would be better or worse for you. They eventually dropped Medicaid on me. I don't know why. They take the premium for Medicare out of my disability check
It's simply a PTSD diagnosis. I label it Medical PTSD to convey where my diagnosed PTSD comes from. Psychiatrists and Psychologists should both be able to diagnose PTSD.