Severe Akathisia Triggered from Two Lunesta Pills
Vložit
- čas přidán 9. 09. 2024
- Trigger Warning: This video contains discussions about suicide and severe adverse reactions to medication.
Dr. Josef Witt-Doerring, a board-certified psychiatrist specializing in identifying and treating psychiatric adverse drug reactions, interviews Marsha, a mother who suffered severe akathisia after taking only two pills of Lunesta. Dr. Witt-Doerring's unique perspective stems from his prior experience as a Medical Officer at the FDA, where he analyzed adverse drug reactions and proposed modifications to drug labeling.
In this interview, Marsha courageously recounts the disabling symptoms and the fear of uncertainty she experienced, reflecting on the lack of understanding and support she faced within the medical community regarding her diagnosis and its origins. Despite the intense struggle and suicidal thoughts, Marsha survived and has made a remarkable recovery. Viewer discretion is advised, especially for those affected by similar experiences or thoughts of suicide.
#lunesta #informedconsent #psychmeds #mentalhealthadvocate #akathisia #missd
Read the label: dailymed.nlm.n...
Get Help: The Medication-Induced Suicide Prevention and Education Foundation in Memory of Stewart Dolin is a non-profit organization dedicated to honoring the memory of Steward and other victims of akathisia by raising awareness and educating the public about the dangers of akathisia. MISSD aims to ensure that people suffering from akathisia’s symptoms are accurately diagnosed so that needless deaths are preventing. missd.co/
We are accepting patients into our drug tapering program living in CA, NY, TX, PA, CO, UT, TN, NM, GA, FL and NJ. Please watch the following webinar to learn more about our clinic and our drug tapering program: www.taperprogr...
All my Links: beacons.ai/drj...
Please consider "liking" and subscribing to this content. It helps build awareness.
CONTENT DISCLAIMER: All the information on this channel is for educational or entertainment purposes and not intended to be specific/personal medical advice from me to you. Watching the videos, or getting answers to comments/question, does not establish a doctor-patient relationship. If you have your own doctor, perhaps these videos can help prepare you for your discussion with your doctor.
COMMENTS POLICY: We’re doing our best to help spread awareness with these videos, but for legal reasons we can’t answer health questions in the comments. So if you leave questions, we’ll try to make videos about common questions in the future! If we catch incorrect health information, hate speech, illegal solicitation of drugs in the comments, we will remove them.
WANT AN INTERVIEW?
We are always looking for unique stories of people who experience adverse reactions to psych meds to interview here on CZcams and on our Podcast. If this is you, please submit an application here: upload.vloggi....
IT only took 1 week on Ativan to go into tolerance withdrawal...and almost 3 years of nonstop hell on earth when I tapered off.
Yep!!!
Was on low dose of Ativan for 5 years. One day I woke up with Akastisia . 24-7 fight flight mode. For months. That was just the start.
@@Jimmy-Legs Yep... it is so odd, it affects some people in weeks...dome in years ...and some never.
Damn
I’m right there with you. I took Ativan for one week in 2018 and have been sick ever since. I was healing well but then I had severe setbacks because of supplements and now I’m not getting better.
I had to stop watching this halfway through. Very dark, if you’re going through a hard time think twice before watching this.
Mascha! I have been friends with Mascha for years. I have followed her privately and through recovery groups. I am so proud of her grit. Thank you for the open conversation about those suffering long term. I am one of them. Nicole is my hero, Mascha is my hero. Jill Nickens is my hero. Yasmin B is my hero. Ashleigh L. is my hero. Russel B is my hero. Melissa B is my hero. JC M. is my hero. So many heroes in my journey I can’t list here. This channel gives me hope someday things will be different.
There are many medications that cause Akathisia, and healthcare providers are missing the signs and symptoms of akathisia. Most of them don't even know what it is. More of these drugs are being pumped out for anxiety, depression, pain, nausea, fibromyalgia, migraines, chronic fatigue, ADHD, or even for infections (fluoroquinolone antibiotics like Cipro) and this is becoming a HUGE HUGE problem; causing a wide range of issues from not being able to function well in life or at work, to not being able to work at all, all the in between disabilities and suffering, and on the other end of the spectrum, all the way to possible suicides and even mass shootings. Keep going Josef. Make this CZcams channel go from 30k viewers to millions. We need to get media attention in the mainstream news. This is where we need to focus --- getting major mainstream media attention. Certainly, someone somewhere who has been injured, and who has connections, can help facilitate this.
No one cares. It’s a small percentage who have severe aka. Horrendous and cruel, but once you get involved with MH, you get pigeon holed.
No one cares. It’s a small percentage who have severe aka. Horrendous and cruel, but once you get involved with MH, you get pigeon holed.
Jordan Peterson got akathisia.. he should really bring it to light.. but all those drug companies would go under..
Agree!
So true, I first got it when given a nausea med and then the second time with Levoquine for pneumonia. Mine was mild compared to the stories I have heard here and thank God I realized it was the meds right away so with each I only took it one time, but while going through it, it was hell on earth.
Four months on klon for sleep issues surrounding a health scare. One month taper. That’s it. No other psych meds. I’m now over SEVEN years from my last crumb. I’m still struggling with issues I NEVER had prior to taking this drug. Plus, I was off the rails within two weeks of starting klon. But my doctor assured me it was me, not the drug.
Damn
Wow! Do you mind sharing your symptoms? It's crazy and saddening that it's still affecting you 7 years later.
This medication is handed out like candy in psych wards. As well, many people are left to take it long term. I've never come across with someone who only had two doses and with this type of reaction but this just shows how everyone reacts to medications so differently. And yes, people are never fully informed about the medications they're about to take and or developing adverse or toxic reactions or dependency with long term use. No informed consent.
If I end up there (unlikely as I've never shown any symptoms of psychosis), there will be a war if I am given medication without proper explanation of what it does and the ability to do my own research too.
Please DO NOT start taking ANY of these drugs.
Yes it seems like Russian roulette, not a game I want to play.
Too late.
Standard sleeping pills are fine as long as it's not regularly. She got a very powerful negative reaction but it is rare. If they're prescribed so commonly it's because they are safe for most people. I take zopiclone sometimes when I need to sleep early after waking up late to wake up early the next day. I tend to take too much because it is quite pleasant but I shouldn't.
@@Jules-kp7rw THEY ARE NOT FINE.... any Benzodiazepine can damage you...and hundreds of thousands are suffering immensely from the damage..even short term use can have.
@@Jules-kp7rw There is the problem...they are fine..UNTIL THEY ARE NOT ...and hundreds of thousands ..if not millions of people are suffering so badly that MANY of them commit suicide
I only took one temazepam to set of, psychotic depression, anxiety, intrusive thoughts, insomnia!!!!!! Benzo’s is hell on earth.
So sad, I am experiencing a similar outcome after taking multiple medications within a matter of two months including Z drugs like Ambien (zolpiclem tartrate) and Sonata which eventually lead to me taking additional medications like CBD with less than 1% THC, and then Belsomra and Paxil. Doctors love to prescribe and not deprescribe, due to the nature of Big Pharma financially incentivizing the rich payouts. Eventually getting polydrugged and having to recover from taking Hydroxyzine and Mirtazapine, and then Xanax and eventually tapering off of it and then coming off Valium for nearly 10 months and cold turkeying the Mirtazapine. The MTHFR genetic defect can make us vulnerable to taking prescription psychiatric medication. Organic acid tests and neurotransmitters testing can also help us, but how is someone to know without the best physician what to do under these circumstances.
Love these videos. My mother tried to get me on benzos because i stopped letting her walk all over me when i turned 18. She tried to get me institutionalized when i continued to cut her out and she convinced all of my family that i was severely mentally ill. So glad i never caved and did what i knew was right for me.
I had similar OAT test results, specifically high homovanillate (dopamine) which explains why I had akathisia as well. Also, female hormones have a MASSIVE effect on reactions/withdrawal. I’ve seen this over and over.
Hard to listen to, our stories have many similarities. My whole experience at its heights lasted 6 months. I'm still prescribed some of these drugs .I darned rock the both. I'm very stable at present and I pray nothing close happens again. I do want to say I'm about 70percent healed. Don't give up, fight for your life. I lay on hostipal and police doorsteps until I eventually received some help. By the grace of God ,like this women I've one child a son he's back living with me, he had to stay with Dad for 6months. Thankyou for all you do to bring awareness.
❤
@@maryoconnor2596 how many years so far, Mary? Did you have any other underlying issues?
This describes much of what I went through on psych drugs and then withdrawing from them
I remember this girl from the living with akathisia group on Facebook., we had allot in common , glad to see her still hanging in there.
I was on psych drugs and sleeping pills from 15 to 30. What I actually needed was parasite cleansing and assistance with detox (sky high mycotoxins and chemical toxicity). I am still a nocturnal person though. My body just wants to be a night owl so I let it. Sleeping pills, benzodiazepines and Effexor are all horrific. Getting off the drugs at 30 was hard at first but I’m so glad I did. I’ve had to take fluvoxamine for short periods to shut down relentless severe long Covid migraines. It was the only thing that worked but I hated being on it. You just have to understand what you’re messing with. Drs make light of these drugs and dispense them like skittles. It’s not right.
Glad this channel raises awareness but not the channel to watch if you’re injured already - ended on a hopeless note
Thanks for sharing, I won't bother watching then
She has had quite a bit of improvement. I appreciated that she said that she may not fully heal, but she is better.
@@beautifullybroken1591 why not learn Mascha’s story? I don’t understand. I tried my best to learn your story and as many others as I could. She’s had plenty of improvement if that was your concern. Especially with her akathisia. It also leaves quickly now. It’s her pain and dystonia that seem to be hanging on. The only thing she did at the end was mention the long term survivors she has met like myself. He then discussed Nicole b/c well… Nicole is still injured 13 years later, but he also mentioned Nicole’s incremental improvements.
Mascha’s story is not a complicated poly-pharmacy one. It also discusses friends of mine who got hurt in under two weeks from a benzo which not too many people realize/acknowledge. Anyway, not criticizing. Just surprised to hear wanting to avoid. Hugs.
@@beautifullybroken1591 glad I could help, love your channel, hope you’re improving
Thank you for sharing. How many people have been institutionalized and kept in torture on these drugs.
Glad my insurance did not accept this for me! I thought wait Lunesta? My psychiatrist tried to put me on this.
@@MrCatsrock101 sadly, most psychotropic medications cause akathisia. When I heard you say, “My psychiatrist”, I knew you still did not understand. It’s not anymore dangerous than most antidepressants or benzodiazepines. The point is that they are all this dangerous. Especially when it comes to risking akathisia.
Mascha’s issue is Dystonia and clenching muscles!!
I've done all sorts of "fun" drugs in my life to no alarming or serious effect at all, the only time i've ever experienced strange symptoms and legitimate hallucinations (the only visual hallucinations I've ever experienced) was taking a single ambien during a road trip. I can't believe people, including folks I know, take these drugs daily; the medical system seems totally broken to allow such frequent prescriptions.
I know, right? I’ve done more than my share of street drugs, including benzos.
I’m wondering if using recreationally for “fun” is part of the key to not having these insane side effects. People taking “only as prescribed” to “fix” something that is wrong with them, on the other hand…maybe that is part of the equation? I don’t know.
I do know that these problems, while horrifying and severe, are rare. I still believe some of these medications are a god send for certain patients in certain situations, to be used as a one-off, or VERY short term.
My beloved dog Leon, who at 14 crossed the rainbow bridge July 1st of this year, was on 1 mg Xanax to be taken 30 minutes before fireworks or severe thunderstorms. I adopted him from the local shelter during the pandemic quarantine, and his first 4th of July with us was HORRIFIC. Truly a nightmare. And that was just for me, from watching him be terrified, cry, pace, try and hide, vomit and diarrhea.
Taking one pill right before the worst of it starts worked like magic.
Do you take anything for sleep?
12 weeks to taper from 5MG of valium??? it took me over 2 years to go from 3MG of Valium to zero...and that was still nonstop hell on earth.
Some people get lucky. It took me 8 months to get off Zopiclone (a fast 3 week taper, and the rest just sitting there waiting for my brain to heal while I was el ack tro kuted 24/7 for months). I hope you're feeling better now, friend.
@@apreviousseagle836 el ack tro kuted was the name of the Imam at my mosque
@@13donstalos ya have to bai pazz the stu(dent)pid(dler) sensors that dai lait your cam mints.
@@13donstalos I posted something new but got gone by the ovar lawrds, that's why I do that.
jjI would like to ask Mascha if she ever had a sleep study done (before or after the whole ordeal). Her current problems with muscles clenching around the spine sound a lot like what I was going through before 2017 when I started treating my sleep-breathing disorder UARS. The whole insomnia thing, the POTS-like symptoms and this sound like sufficient cause for checking for that. A sleep-breathing disorder can exist independently of, or be exacerbated by the neurological damage caused by the medication.
One 10mg tablet of Lexapro and 5 hours later I was in a coma.
I am trying to join your practice if you come to PA. Also I tell everyone about you. I want my loved ones safe and informed. I’ve been through so many difficult situations like the others here. I have hope now. 😊 Thanks doctors. Power couple of the year Time Magazine. 🥰
Thank you 🙏. I have a similar history with medication, hormones and vitamins (I am a woman) and nobody believes that it is chemical indused. I am traumatized and have almost lost my kids. It is so traumatic to be diagnosed with mental illness, when you deep inside knows it is physical and you didn't have issues before.
This is me. Its shocking how similar. Two Pills, and I came off them, they were anti-psychotics, then my life ended. Akathisia every day. I called for help and was told to my face, you are making this up, you are not ill, this is purely your state of mind. I am furious about it to this day. 4 years later and I still have episodes. But it does get easier, for anyone suffering, don't give in, you will get through this. I wished I was D**D every day and I too researched ways to kill myself, it was my only hope. TV and Music and friends, and anything really, made me terrified.
Great story Glad she's doing better. The only thing worse than akathisia is internal akathisia. I only had it once. I would sooner be set on fire than have that happen again. Worse than the description of the biblical hell or Dante's inferno.
I deal with internal akathisia, mate. Internal vibrations, tremors and burning from the inside sensations. Organ pain, horrible tinnitus, the sensation of tearing flesh and organs. Literally burst a blood vessel a few months ago because of the stress and dystonia. Not to mention the temperature shifts and sometimes profuse sweating out of nowhere. Thankfully with time it lessened; currently at 15-25% intensity in general but every 2-3 weeks i experience insomnia and can't sleep for the entire night and then it ramps up and it's different every single time - sometimes there is barely pain, at other times my muscles in my back and shoulders start violently twitching and the whole intense heart pounding, at other times it's just shitty insomnia. I still deal with internal vibrations/tremors but for the most part that healed a lot except for the sleepless night every few weeks. I dealt with external akathisia but it's mostly residual now. Still a lot of nights on hard mode but at least it went down from nightmare mode for the most part. Still a ton of bad days but it can't be helped.
I got that description when they gave me IV compazin. It was insane. I tell the doctors and nurses if I ever am in the hospital for something not to give it to me or they will have a mental patient with burning skin and I don’t care about anything but making it stop. Glad I’m going to Heaven. I describe it as hell as well. ❤
Not hopeful.
It took me 7.5 years to get stable and then 6 months ago I got covid and I am back in acute hell. I am over 10 years off. I agree with Mascha (who I knew in support groups) that there will always be a lifelong weakness to the nervous system/brain. I don't believe the ''everyone fully heals'' rhetoric because I have seen many who spent many years healed and then had stress, or a medical or dental procedure, get thrown back. In my opinion it's imperative that anyone who had an extreme reaction and subsequent wd experience has to be continually mindful of everything they do and put in their body.
OAT are not legit. No actual scientific proof. Might mean something. Might not. Seriously unfortunate reactions. Very sad. I hope she gets better.
Too late for me. I’m 76 years old and have been on benzodiazepines and anti depressants for 30 years. Only now I’m realizing the damage is done.
Same here.
such an amazing supportive husband
Just found your channel going through withdrawal myself from klonopin(13 years)and amitryline(last year). Was forced to quit bc I wasn’t giving any option what can I do or who else do I talk to aside from a therapist, lost my job and haven’t left my property in a month
Haloperidol and Chemadrin cause this in ways I don't want to remember.
I am a bit confused.Did Masha take benzos and Z drugs together? How is her insomnia now? In any case, I am glad she is better. I'd be interested in hearing more about the taper strips. Is she living in Scandinavia, where (financial) support might be better than elsewhere?
Sounds like a Dutch accent to me ...(I am Dutch myself).
This is a horrible story.:(
These meds should have never existed.
i got one two zopiclones to sleep on, my main side effect was vivid hallucinations while trying to sleep
I’m sorry but this angers me so much. Why do we constantly get told by withdrawal coaches that EVERYBODY heals?? I challenge them with this and they are adamant. But then you get the truth on interviews like this or when you actually pass the 2,3,5 year mark that oh actually we just told you that to comfort you… Sorry for lying before and giving you the inconvenient truth now that not all of you heal and saddling you with this information for you to go through additional trauma of realising you won’t actually fully recover despite giving you the false promise that you would. It’s almost as bad as the gaslighting from medical professionals that didn’t believe this was down to the drugs. In fact, at least they had the excuse of ignorance, what’s the withdrawal coaches excuse?
Even the people who proclaim to be on your side are lying to us so how the hell can we trust anyone!
Me on a big dose of zopiclone right now. I just wanted to sleep but jesus it makes me feel high like cannabisand confused and I don't want to sleep at all. I worry now. I'll watch the video but I'm high and confused even typing is hard.😊
Jesus it feels like cannabis, the confusion, the peace.
I take zolpidem for chronicle gynelogical pain, it's the only relief I find. but I don't miss doses, don't drink alcohol, dont increase the dose. don't smoke.
If you’re dealing with fibroids or endometriosis look into systemic enzymes like Serrapeptase
Maintenance
Does anyone know if the benzos xanax and valium have flouride in them?
Could it have been like porphyria?
If it was, it would’ve gone away I couldn’t imagine it being a chronic porphyria she would have burns on her face
Is this considered "adverse reaction" or rather withdrawl from that dose?
OK, so she took the B vitamins the first time and it made her feel like crap. Then after the Lunesta and the neurological symptoms, her first thought is, "huh, guess I should take the B vitamins again" ? That is just bizarre to me.
Hello. Blessings to you all. If you have suffered this condition please can you tell me if you have caffeine sensitivity.
Only thing that makes me sleep when I have periods of insomnia is melatonin gummies…or hydroxazine
Dr WD, I’d like you to address what “dig deeper” means. I was healthy and normal before this. The symptoms I have still came with cessation of this drug. So what do you mean, dig deeper? And now the mark is 5 years and after that we are ??? Damaged? Please explain further.
Exactly.
I can't speak for the good doctor but maybe look into food sensitivities? Histamine issues? I used to be very sensitive to high-oxalate foods until I cut out all dairy and soy, after which the oxalate sensitivity and associated health problems disappeared.
Why is this video blurred.?
Wow. I have so many symptoms. My neurologist tested quite high b6 even without supplentation. But don't know what to do about it. What did she do about the b6?
I e been on a benzo ativan for years. But 2 and a half years ago when i started gabapentin and went on and off and tapered 3 times and the third time around i feel messed me up with all sorts of symptoms. I also have mold toxicity and MCS. Can gabapentin gabapentin mess you up that bad? Ive been kff now for 15 weeks. The tinnitus got bad when i got down to 100 milligrams. Had covid as well in November.
Ya, being on Gabapentin, Ambien, and Ativan at the same time gave me a nervous system dysfunction disorder and made my MCAS worse. Getting off of those meds improved symptoms
@@champgnesuprnva I can't get off Ativan yet as I feel I'm still having effects and their not pleasant from the gabapentin withdrawal. Should this get better in time where I feel more like myself?
It’s too many meds all at once in my opinion. I am on Ativan 1mg or 2mg at things only for the last month. I lost two friends and two family members this year and couldn’t sleep and had horrible anxiety. The amount of drugs I was offered… should be illegal.
Nights
Did she feel better after the last time she weaned of the zolpidem? Or was it worse everytime?
Someone please helpp
Sending prayers and healing vibes. 🙏🏼🙌🏻
Sending prayers and healing vibes🙏🏼🙌🏻
🙏🙏🙏
My life is ruined after one week of Ativan. magnesium supplements made the damage a lot worse.
Same happened to me with only one magnesium capsule.
What symptoms and how long?
Too complicated to mention, i severely kindled from sporadic doses of benzos.
@@grv91vr23 Came off in 2018. long list of symptoms but as of now the main ones are heaviness/off balance, chest pain, rapid heart rate, PVCs, gastroparesis, numbness in hands and feet, joint pain, headaches, brain fog, panic attacks, insomnia.
Sick of these negative stories it’s not good for healing to anyone
Get some success stories
@@91justelispeople say there aren’t any because they don’t seek help. I don’t believe that’s true. Witt-D treats some who don’t have horror stories, but that’s not going to grab attention. It’s awful.
That's why I don't take any meds that affect GABA receptors