Hi! I’m from the US and came across your videos! It’s so nice to see a CZcamsr with a special needs child ❤️ my daughter is 17m now and she’s had her G tube since about 5 weeks old and before that was an NG. She’s always been tube fed, and also has low muscle tone due to her genetic syndrome. this is so nice to see something I can relate to! ❤️❤️ also you’re a great mama from what I’ve seen . - on a side note, I see the elevated tummy time disc mat in the background, I just came across it on Amazon, is it a good buy? 💖
Hi I’m happy you’ve found us 🥰🥰 I love to hear when families in similar situations are watching my videos because I know it can feel lonely and thats what drove me to start sharing our journey. It was helpful for Avery as she wasn’t able to swivel herself around we could move her to see different things, also she tends to do better with head control when she’s slightly elevated. She has grown out of it now though xx
@@mummyandavery 🥰thanks for the reply! What do you mean by grew out of it? Is she too big, and is there a weight limit on it. My daughter just got really good with head control and I thought this could help her with arm strength as well
You're daughter is much like our daughter was at that age - she is 19 now and doing great. Her acid reflux was so bad that we ended up having the Nissen surgery and installing a G-tube. In time, it proved best to switch to a G/J tube, especially when she went to a 100% keto diet to stave off seizures (which worked miraculously, no grand mal / tonic-clonics in six years). The amount of surgeries and procedures can be discouraging but, in time, they have provided a quality of life she lacked when she was young. I have an old blog I used to keep that shared a portion of our experience. It's outdated, but it shows we are not alone fighting the good fight. screamingbansheedad.blogspot.com Keep up the good work!
![HOW I BECAME PARALYZED FROM THE NECK DOWN [CC]](http://i.ytimg.com/vi/wLNeLvO-AAY/mqdefault.jpg)
Avery is changing looks! Growing up and looking so beautiful. Love you girl! Can’t wait to see your new home after your move.
Thank you ❤️❤️ she’s getting so big now xx
Avery swinging is the cutest thing ever!
Your baby girl is so cute! I hope she feels better soon. ❤️🇨🇦
Thank you ❤️
Love it
Awww
Avery is beautiful. My daughter is 16 months old and is fed by an NG tube, this was such an informative video. Thank you 😊 x
Thank you ❤️ I’m glad you found it useful x
You are an amazing super mama!!!
Thank you ❤️
Love watching you and your family. I find myself looking forward to Wednesday's.
Hi! I’m from the US and came across your videos! It’s so nice to see a CZcamsr with a special needs child ❤️ my daughter is 17m now and she’s had her G tube since about 5 weeks old and before that was an NG. She’s always been tube fed, and also has low muscle tone due to her genetic syndrome. this is so nice to see something I can relate to! ❤️❤️ also you’re a great mama from what I’ve seen .
- on a side note, I see the elevated tummy time disc mat in the background, I just came across it on Amazon, is it a good buy?
💖
Hi I’m happy you’ve found us 🥰🥰 I love to hear when families in similar situations are watching my videos because I know it can feel lonely and thats what drove me to start sharing our journey. It was helpful for Avery as she wasn’t able to swivel herself around we could move her to see different things, also she tends to do better with head control when she’s slightly elevated. She has grown out of it now though xx
@@mummyandavery 🥰thanks for the reply! What do you mean by grew out of it? Is she too big, and is there a weight limit on it. My daughter just got really good with head control and I thought this could help her with arm strength as well
Does your child have PURA my daughter has that and has low muscle tone, also.
😊😊@@mummyandavery
😍😊💖🌟
❤️
How do you find time to re-charge and have some time for yourself?
My husband is home evenings and weekends so on those days we work together so we can both have a bit of a rest xx
I just came to be a new subscriber and what happened to Stella?
Thank you for your support. ❤️ Who is stella? Do you mean Avery? Xx
اسلام علیکم
You're daughter is much like our daughter was at that age - she is 19 now and doing great. Her acid reflux was so bad that we ended up having the Nissen surgery and installing a G-tube. In time, it proved best to switch to a G/J tube, especially when she went to a 100% keto diet to stave off seizures (which worked miraculously, no grand mal / tonic-clonics in six years). The amount of surgeries and procedures can be discouraging but, in time, they have provided a quality of life she lacked when she was young.
I have an old blog I used to keep that shared a portion of our experience. It's outdated, but it shows we are not alone fighting the good fight. screamingbansheedad.blogspot.com
Keep up the good work!
Thank you, it’s always lovely hearing others’ experiences. ❤️
Love it
Thank you lovely ❤️