DAY IN THE LIFE WITH CEREBRAL PALSY | G-TUBE, LEARNING TO WALK, MEDICATION + MORE!
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- čas přidán 27. 08. 2024
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Wonderful! Somewhere starting around 15:00 or so if you keep watching you'll see Beckham put one foot in front of the other! He's gonna get it, his little brain will figure it out. So happy for you, Rachel!
Awe thank you for your support! I just know he will get it too!
Hey Rach can you do a workout video, what you eat, makeup routine daily and when you do more for like date night, outfits of the day. Seriously your energy is unmatched girl!! I need a sliver of your energy haha
Haha Nicky you're so cute! Yes, I actually have a full day of eating planned for this week and a make up tutorial is already filmed and edited! 💗👊🏻
I just found your channel. It’s so great you are out there giving people a glimpse into the life of your beautiful son. I grew up with a brother with Cerebral Palsy and there was nothing out there showing others how wonderful those with special needs truly are. He’s 54 years old and doing well. God bless your family. 💕
Tina thank you so much for joining our community! That is so sweet, thank you for sharing about your brother 💗 I'm so grateful you're here! Xo
He looks so interesting in the camera ❤
Rachel, you are so organized with Beckham’s daily times with all of his on time duty❤️ and doing Everything on time ! Good job. Amazing 👍❤️
They are just adorable with each other. Beckham is improving every day and I think it helps to show Blakely to be a loving and kind sister.
Beckham is just the most adorable. That’s great that you loosen you pants for his belly. You pay attention to the littlest detail. Love how you do his hair too. Sending hugs to your little ones! Beckham you are the best!
Thank you so much love! This comment was so sweet and totally made my day!
So sweet! Love how Blakley climbs into bed with Beckham. Beckham looks so much more alert. He's doing so good with the gait trainer too.
I think it is so awesome that you have Blakely sitting across the way and eating when Beckham is eating. I have worked with a few students who have feeding issues and oral aversions. One of my students in the past not only would gag/vomit if he is given a new food or a different texture but also gags/vomits when he sees or smells certain foods and almost always gags/vomits when others are eating around him. During snacks and meals he has to eat either facing the wall or with a divider between him and others who are eating. If he had started watching other ears and had seen/smelled other foods being cooked or just sitting out at a younger age it would have been beneficial to him. Snacks and meal times are social times and at school we use snacks and meals to work not only on feeding and life skills but also social and language skills. Unfortunately because this student has such a strong negative reaction to foods and others eating he will sometimes miss out on the social aspect of meals because he has to be separated from the group (he will not eat and/or will vomit which then makes mealtimes aversive). Throughout the years we have worked with him and now he will join the group when we make most snacks (he will only use utensils and will gag if things get on his skin) and can also sit with some classmates when they are eating dry snacks (meals are still a struggle). It was difficult to get to this point so I get excited when I see parents who have kids with g-tubes and/or oral aversions sitting with parents,siblings, family, or friends while others eat around them. Even when I have students who do not eat by mouth I encourage families to bring their chairs up to the table during mealtimes so they still can still be a part of the social aspect of eating. I also encourage parents to put things like utensils, plates, cups, etc. on the tray (plastic ones of course) so they can be a part of the whole experience and explore items used for feeding. If your kids don’t have food allergies and if they don’t have aspiration or chocking risks you can put some food items on the tray for them to explore with their hands. This allows them to see new foods, smell new foods, and explore new textures which might lead to more successful oral feeds or if they never eat by mouth will prevent them from gagging/vomiting when they see or smell new foods. This is especially helpful if you and your family like to go out to restaurants and don’t want kids to get sick or become upset/anxious when new foods and smells are all around them. For kiddos who can’t explore food on the tray you can give them different sensory toys or even fake food for them to play with along with plastic utensils and other items so they don’t feel “left out” during family meals or when in a restaurant.
It’s amazing that he doesn’t pull at it. He knows exactly wats Going on. Love to Beckham. ❤️🙏🇦🇺
He is definitely improving! He seems to be moving around better and more. He is interested in more and has many more expressions. It isn’t easy, but every little thing you guys are doing is helping.
Beckham is doing so great ! I feel like he is getting so tall and his gait trainer needs to be lifted. So that it mimics walking. Such a happy little dude. 😀
I really admire how much your day is centered around feeding Beckham. Of course most mothers would but I admire all you are able to do in a day.
I love how vocal he is now and alert! He looks amazing and healthy. Keep going little man! Even his legs are more in unison and not all over now. It makes my heart so happy 🥰
When Beckham was playing with toy that spins and it tipped over. He set it back up using BOTH hands! Go Beckham Also when he crawled almost all the way to the couch I was waiting to see if he was waiting to see if he was going to try and pull himself at least part of the way onto the couch! I believe that he will. In the beginning of the video when Beckham was crying that was his way of say mom I am a hungry boy! I love seeing him so happy when he in the gait trainer! He is on the move for sure which is awesome!
Beckham seems to be doing so amazing! When he claps his little hands like he did on the walk, do you think it’s his way of communicating that he is happy?
Yes i think it is so
Do you think he would be abe to have ice cream or frozon juice like a shusie
Actually, Lorri, Rachel fed him some melted ice cream recently, and he did swallow it...so, hopefully , he'll be able to tolerate more foods soon! Hi from Lori in Indiana
YES! Isn't it the best to see him become more expressive! It's my favorite thing, in the entire world!
@@HOUSEOFHUGHES_ I’m so happy you are so on top of your vlog game! I love seeing your family every day!
So sweet!! Love how Blakely climbs in bed with Beckham & gives him a quick little hug!!😊 Beckham’s much more smiley. I agree the new med really seems to make a difference in his quality of life!
It's the sweetest good morning ever! I love that they are so aware of each other. (: I agree! I am so grateful for his new medicine!
Love your posts, they make my day♡ As a caregiver to my son, your family is so inspiring♡ Myself, adult son and daughter have HEDS. Hypermobile Ehlers Danlos Syndrome. Genetic, progressive disorder, passed on by my genes. It's a connective tissue or Collagen deficiency. He continually works on his core and trying to avoid subluxations. Big hugs, to you, Hunter and Blakely, your love is the best therapy♡♡♡♡
@@rockingrandmaof2 Thank you, yes it's faulty Collagen
Have you tried to take Beckham outside onto the concrete with his gait trainer yet? Thinking he might get even better traction and might be thrilled to see all the houses and birds flying and just a different scenery. Just a thought 😁
I have seen big differents in his mobility, eating, and weight. And I can see Blakely growing to help so much with Beckham's fantastic work Rachel and Hunter
He seems so much stronger. To see him stand that toy up on his own. Way to go baby boy and your Momma is amazing
They are so adorable! Love watching them together
Thank you Mia!
I jus LOVE when Blakely randomly goes up to Beckham and is “soft”🥰🥰🥰
Beckham is amazing he’s doing so good in his gate trainer. He’s such a sweet boy God Bless him , Blackly is so loving towards him. Chloe is funny trying to let you know she wanted to eat while you were feeding Beckham. Love to all of you your amazing. God Bless
Wow, Rachel his steps in the trainer seem much more pronounced than the last video!. Where as it was just tippy toes- now he seems to put almost the whole foot on the ground in some frames.
Yes! Thank you for watching Olivia! You're so sweet! It is so fun to share his progress. (:
Beckham has really progressed and is showing evidence of wanting to be in his gait trainer now. His arms are also better placed and at times he is actually taking hold of them which is fantastic. It won’t be long before Beckham will be rolling to sitting. He really lifted his torso when turning to engage with Blakely. I was wondering if you could try to make a game for both of them where you have Beckham ‘chase’ Blakely, as then he will be focused on her movements and learn by copying her? it would also give him more therapy under the guise of play? I found during my teaching career, children naturally want to learn, and they do that best through play, and mimicking. They also learn best from their peers which is why you will oftentimes see teachers seating the weaker students with the stronger ones. This serves two purposes, one it affords the opportunity of mimicry but also it presents the more advanced pupil from getting bored. The stronger child rises to the challenge of empowering the less advanced child to gain the particular skill they are imparting. It also trains the child to be aware of when others may require help and their capacity to be the helper which in turn develops self confidence.
Good morning everyone happy Tuesday morning and happy summer day and I loved your reset vlogs because you all amazing Supporter and I'm proud to all of you guys
clap your hands Mr.beckham 😊
You are amazing and one could not do a better job with the kids and Beckham!!!!!!! Be proud of yourself!!!!!!!! and... you are beautiful.
I love your door handles! That is so sweet how Blakely is so good to Beckham!
That's awesome that he is tolerating different flavors now!
Yes! So exciting!
wow he is doing so well , it tickles when his.eyes follow you were ever you go. love and hugs to you all and your families. XxxX ❤❤❤
His eyes have improved so much when it comes to tracking! It makes me so happy!
Hi Rachel i wondered if you had heard of tubie pads they can go around his g tube and absorbs any leaks or granulation tissue and they come in fun patterns too! 💜
maşallah çok ilerlemiş gelişmesi ..sen iyi bir annesin Allah yardımcın olsun...
Hopefully it's OK to. Say, I just loveyour two little ones! Be blessed.
Thank you April! 💕
Will the gate trainer get adjusted so that Beckham is more upright or is it correct as it is? 🤔🙂
Beckham doing amazing he loves the camera them big brown eyes are so beautiful he loves ❤ his gate trainer he seems to be so happy bless him 💙 and clapping his hands as well 💙 xxx
Rachel you have a beautiful and wonderful family. Awesome mom, strong and a good heart and awesome soul.... from Panama city Florida.
Mr.beckham you look so sweet and cute ❤
Beckham is doing great good job kiddo 👏
Will Beckham get AFOs? My nephew got them but he never had a gate trainer only a wheelchair. Go Beckham.
He has them!
Check out cloth covers for his gtube to help protect it and Beckham and to make it more comfortable for him when playing, crawling and doing therapy
Yes, I should do this as he starts to explore more!
Beckham and Blakely are so adorable 💕
Thank you Janice!
Why does he not have pictures and colorful things in his room? It seems you like a minimal, sterile look which is great but is there a medical reason that he needs to be around no stimulation? Thanks 😊
It is actually more beneficial for my house to be more neutral so that colorful toys, books, etc. are more likely to stimulate him and grab his attention. We have colorful, exciting things for the kids! You just don't see it all on camera. (:
He’s doing so welll
The taste of medicine (especially Baclofen) is very bitter, it makes me happy that you can slip in his oral feelings. I often crush mine with a little bit of water and take it through my G tube. Way to go Beckham!
Love your videos xxxxx such a beautiful family ♥️♥️💙💙
Thank you Wendy! You're so sweet!
He is doing so good is his gate trainer I wonder if because he has gotten so tall if you adjusted it higher so he isn’t leaning forward so much how he would do then…? Just a thought since he is growing so fast!❤️ love you guys!’
Hi Rachel, i was wondering if you give Beckham any liquids to dink? I haven't notoced him drinking anything. Beckham is really doing sooo good.
Through his G-tube (:
Maybe leave Beckham in the gait trainer a few hours a day ! Let him move around on his own. I don’t think he’ll ever crawl but he might walk . I have high hopes that he will
Hi Rachel 🥰First Air Hugs to The Hughes House 😇😇😇😇,Beckham is improving 🥳soon much! I love the way Sissy,is soon tender with him,miss seeing Hunter☹,See you guys tomorrow, I never miss a post🤗!
Awe thank you babe!!
Beckham is so strong
Does Beckham ever eat cottage cheese and yogurt like he used to when he was a baby? After watching you I got hooked on eating it like dessert. I hadn’t bought cottage cheese for years and now can’t do without it. Yum. Those two angels and the doggie are so adorable. 😊🥰
He doesn't! I'm so glad you love it! Thanks Lana!
I love him so much
Love y’all bunches ❤️❤️❤️❤️🐶
Love and hugs to the House of Hughes, from one of your "housemates" in Indiana!
Beckham is so happy
Yesss do more pleaseeee
Thanks babe!
Now that Beckham is so mobile in his gait trainer I wonder if he would LET Blakely push him around in it anymore, or if he would “fight back”?? Maybe you should try it out to see if the dynamic has changed!
Sometimes we let them play around together! She just pushes him around and its so cute! I just never want him to get used to not having to move it himself. So we are careful about making sure he has time everyday in it, alone!
Wait … does he sleep from 6:30 pm to 11am? Is the doctor ok with that? A nap too?? I’m confused
Beckham no longer naps (:
Your children are amazing xxxxx
Thank you so much Jean!
greetings from Austria 😊😊😊
@House of Hughes He loves his gate trainer.
Where is your blue sport bra from?
Lots of love from Germany 😘
Keep the good job up cute kids
I am just curious. Why is your dog always standing by that cabinet or standing up trying to see on the counter. Is that his food place?
Just wondered do you heat his food
I don't!
Precious!
Thank you Megan!
He seems to be doing great! Will you guys be able to try mashed potatoes, oatmeal or smoothie food like that? I know this is a private question but does he ever have trouble using the bathroom? Does CP cause him to have trouble staying regular?
Hi Jennifer! His food is very limited right. now but we are always introducing new things without causing trauma. We need to expand and build upon what we have at an appropriate pace. (: He has never had digestion issues!
@@HOUSEOFHUGHES_ he seems to be doing amazing and thriving. And all the therapy that you are doing with him right now. He wouldn’t be where he is today without GOD and you and your husband. And I love how he will turn his eyes quickly to find you and that smile he gives melts my heart every time. Before you know it he’ll be climbing up on those bar stools with Sissy. ❤️
Hi I have CP and I have spd as well
Hi Angie! Thank you so much for being here! Xo
Have you tried giving him ice cream again?
Is your son saying mommy at all and u have two beautiful kids in the world Rachel and huntder
Good Video as Usual
Lovely thumbnail tho
Your Pretty Self
Nice Cheeks Structure
Happy Bless Week Too
Y'all Stay safe always
Hi mr b🎉🎉🎉🎉🎉🎉🎉🎉🎉
It’s all so sweet now and then they become teenagers and do nothing but argue those are where mine are at right now Don’t u just love the teenager’s lol
Hello! NICE channel ＋👍🔔
@House of Hughes Rachel after watching you for a while now. I fell in love with you, and your kids. Please if you ever need a babysitter please let me know. I would love to spend time with those cuties.
@@lindamcdaniel2419 Ya don't worry about it! What is it to you!! Are you jealous, or something!