testing results & health updates | August 2022
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- čas přidán 14. 07. 2024
- Hi, y'all!❤️ I have some health and medical updates for yall :)
Thanks so so much for watching!!
Autonomic Nervous System Testing Info: www.nerveandmuscle.org/autono...
Adrenaline Dysautonomia Info: www.drlamcoaching.com/blog/ad...
✨ABOUT ME✨
Hi, y'all!! My name is Averie and I am a 23-year-old college student studying to become a teacher! I fell in love with making CZcams videos when I started my BookTube channel in 2017. It has become a huge passion of mine, and so many people have persuaded me to start a new channel talking about all things gluten-free and chronic illness-related! I found out I have Celiac Disease when I was seven, and have been Gluten Free ever since! During this pandemic, I have gotten really into cooking and baking and I have been loving all of the different types of recipes that I have been trying. I was also diagnosed with POTS when I was 17, and other chronic illnesses in the years following. I made this channel in hopes that people with other disabilities and chronic illnesses can feel seen and heard. This is also a safe place for me to vent about my health issues, struggles, and triumphs.
✨SOCIALS✨
Chronically Courageous Apparel & Mug: www.bonfire.com/store/avasrom...
Booktube Channel: / darkblueluver27
Instagram: chronically...
Bookmark Etsy Shop: www.etsy.com/shop/averieloves...
Email: avasromancebooks@yahoo.com
TikTok: @ avasromancebooks
Intro and Outro Music is from: www.bensound.com
xoxo Averie 💕
It’s absolutely frustrating when things come back normal! I deal with a lot of different things and having tests suck. It can definitely affect your mood!
I am thinking about you today as you go for your testing. I've gone through it myself, and appreciate how you have been feeling about it. Many prayers are being said for you today, as each and every day. Please know you that what you are going through and sharing has meaning and purpose, and I am very grateful for your Chronically Courageous efforts,.
I’m actually getting a 72hr EEG done tom and praying I get answers. I suffered a stroke 5 1/2 years ago and where the stroke accrued it’s causes seizures. I’m praying they find answers for me and sending prayers that you get answers. Be blessed and thanks for your videos. 🙏
I admire you very much. You're so strong. Know that you're not alone.
Wishing you all the luck!!!
The diagnosis journey is tough - I understand your frustration.
Love to hear an update🙏🏼🙂🫶🏼
Thank you for posting and sharing your story! It's so frustrating to receive normal results when you know something isn't right. I hope you get answers soon.
I had a tilt table test that confirmed POTS, irregular heartbeats, bradycardia, and syncope. I'm so glad I only had it done once! I passed out then puked on the nurse! I was sick for the rest of the day. It was horrible. I would rather tell you the truth than beat around the bush. How did yours go? Were you able to enjoy your birthday?
You are a Virgo too! My birthday is September 21st. I tested positive for Covid on September 19th 2022 then went to the ER on October 14th and received a diagnoses of Long Covid. Last year I wanted to go to Drumheller and visit the World's Largest Dinosaur and Royal Tyrrell Museum, but Covid ruined that birthday as well!
Sending hugs to you for being so strong. We are in this chronic illness life together.
Kind Regards,
Bethany
I did all these tests and they pretty much just tried a bunch of medication… which didn’t work. Then they told me I was sick and diagnosed but just said good luck you need to use things to continue to function but I wasn’t okay with it at all. So my mom finally sent me to the Fictional Medicine doctors and they actually knew what to do finally…
💜💜💜
I had a tilt table test Abt 2 years ago when I was diagnosed with synchopy.... My doctor and nurse were super attentive and were able to prevent me from passing out when I felt like I would during the test, for my testing they really wanted to see how my heart behaved before I passed out and not while passed out so they pulled the plug on the test when I was not feeling well. (Which didn't affect my diagnosis) I definitely can answer more questions Abt it. Of course I wasn't given much actionable changes to prevent passing out there than increasing my salt intake.
So you know EDS is not a dysautonomia condition! It's a connective tissue disorder that is extremely comorbid with dysautonomia, usually pots, because it makes everything stretchy. Basically dysautonomia can be a part of eds or can be caused by it, but it's completely seperate
I have POTs and IST but I'm one of the 40%-70% of people with dysautonomia who doesn't faint. I did a full autonomic workup back in 2018 with all of the tests you described. The breathing stuff was the easiest, the sweat test was a little uncomfortable (like someone snapping you lightly with a rubber band), but the worst part of the tilt table test was being off my allergy meds in the middle of hay fever season and being so congested/sneezy :) The table moves way slower than I thought it would and I had a really lovely tech with me the whole time so I felt pretty safe. Wishing you an informative and smooth testing day!
I also have IST and pots... but my IST is continuous... I've been like this for months, I have to take a lot of medication to lower my HR, without medication it's 120 at least lol
I hope you find the answer you’re looking for 🙏🏻 I will message you on Instagram on Sunday to keep you company during your birthday