I had to leave college because of my chronic illness | POTS episode
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- čas přidán 20. 08. 2024
- Hi y'all!❤️ I am not going to lie, this video was hard to film. If you do not like crying, I advise you not to watch this haha!
I hope that this video helps educate those who do not have chronic illnesses. I pray you become more empathetic and acknowledge those of us who are sick.
Those who do have a chronic illness, I see you. And I love you.
We will get through this💗
Thanks so so much for watching
✨ABOUT ME✨
Hi y'all!! My name is Averie and I am a 23-year-old college student studying to become a teacher! I fell in love with making CZcams videos when I started my BookTube channel in 2017. It has become a huge passion of mine, and so many people have persuaded me to start a new channel talking about all things gluten-free! I found out I have Celiac Disease when I was seven, and have been Gluten Free ever since! During this pandemic, I have gotten really into cooking and baking and I have been loving all of the different types of recipes that I have been trying. I made this channel in hopes that I could help others out there who are having a hard time eating gluten-free or just having celiac disease. I have struggled (and honestly still struggle) with my autoimmune disorder, but I hope that I can help and find other people like me out there who are just looking for some GF friends!! Feel free to reach out on my socials listed below!!💖
✨SOCIALS✨
Booktube Channel: / darkblueluver27
Instagram: www.instagram....
Email: avasromancebooks@yahoo.com
TikTok: @ avasromancebooks
Intro and Outro Music is from: www.bensound.com
xoxo Averie 💕
I went back to college in 2010, mainly because family members and the guy I was seeing kept making comments about me being a lazy underachiever. I was majoring in nursing, not because I actually wanted to be a nurse, but because I knew the subject matter was challenging, and I was inrellectually capable of mastering the material. In other words, I was trying to prove something. I had some of the best grades in the class, and my adult son was so proud of me.
I started fainting again. My heart was pounding nonstop. What I now know were palpitations were diagnosed, once again, as panic/anxiety. I was given twice the therapeutic dose of an SSRI, which only exacerbated my symptoms.
I had to withdraw. For the first time ever, my son told me he was disappointed in me. He didn't know why I couldn't just control it. I didn't know why I couldn't control it. My relationship with my son changed that day, and has never recovered. I hardly ever hear from him. That bothers me more than any of the rest of it.
I have yet to find a doctor who believes me. I rented a wheelchair yesterday, as I have been collapsing just making a quick trip to the store on foot, I have been bedbound, and the fatigue is like trying to move at the bottom of the ocean. This is the first day in over a year of having a Fitbit that I had zero zone minutes at 11am, and I had even taken my service dog for a walk around the elementary school grounds after the store. I hope that when a doctor sees the difference in my stats between before the chair and after, they will know I'm not making it up or "choosing" to be sick.
I get the feeling of being terrified to go to sleep because of the episodes starting in my sleep.
I wish you the very best. You were wondering about teachers with disabilities. I love Ms. Chang's channel. She teaches gifted children, and lives with spina bifida. She's a wonderful person and is absolutely hilarious and uplifting. 💜
I cried with you when you said that you hate your body, and feeling frustrated because you don't have any answers as to why these things are happening to you. I don't have POTS but I have other chronic illness issues and it's a terrible feeling, feeling betrayed by your body and/or brain. My thoughts are with you 💕 and honestly just venting and crying like this is something that I do. I don't know if it really makes me "feel" better, but it's SO much better than bottling everything up and not letting yourself feel/express those things.
I am so sorry you had to withdraw from your semester at college due to your chronic illness!! That definitely sucks! Living with chronic illness/disability means feeling trapped in a never ending grief cycle. Emotions are constantly changing and repeating. Sending you a big hug and lots of healing vibes. 🤗🦋🌻
Thank you for having the courage to make this video. I relate so hard, it's absolutely terrifying not knowing why your symptoms are progressing or how to make it better. Then the adjustment to being unable to work or attend school the way you thought you would be able to is so hard.
Hi Averie. I’m sending you love and prayers. I hope you continue to feel yourself and I look forward to the amazing things I know that you will be able to achieve in life.
I haven't started watching the video yet but I just wanted to say I'm so sorry that your illness has been flaring up. I don't have a chronic illness (that I'm aware of) and can't imagine what you're going through. I want you to know thay I'm here if you ever want to talk and that I'm proud of you for doing what is best for you! I know things are tough right now but I know that one day you'll be better and doing what makes you happy (booktube, etsy, and teaching!)💕
My heart breaks for you when you said "I don''t think I can be a teacher". I get that on a very personal level. I'll be reaching out - I'm in a similar place and would love to make a friend. Sending love
I'm so sorry you are going through this. You'll be in my prayers always. Sending you lots of love
I’m so sorry you are going through all of this! I’m praying for you! Please know you have people that love and support you! I’m always here to talk to whenever you need.
Sending you lots of love and hugs 💜💜💜 I can’t imagine what you going through but I’m hurting for you, try to be positive… I’m hoping booktube, bookstagram and your Etsy shop will keep you happy and healthy
Bless you I’m going through something similar but they said I have Vasovagel syncope all the things your saying I can relate in some way I hope things get better for you 🙏🏾
I’m sorry Averie that you are going through this.
Do you use compression socks? I’m not sure if your doctor has suggested them. Apparently these socks help with blood circulation.
I feel ever since I got my booster shot I started getting heart palpitations and my heart rate spikes when ever I stand or do minor activities . I started taking magnesium, vitamin d, zinc and it has helped a little. I also stay hydrated and avoid now caffeine.
Lastly, please do not get discouraged of becoming a teacher. I work at a community college and I know teachers and counselors who work remotely due to medical reasons. You might want to reach out to an HR office at a college or high school district to see if there is some type of accommodation for teachers with disabilities. Best wishes! 🌺
You could look into teaching online! My friend is a teaching at a completely online school for middle & high school and she loves it! Don't give up- there are options if you are passionate about teaching
Sending you love 💗
Oh, my love. My heart is breaking for you. This is so not fair. And omg “it sucks that I live in a body that hates me” is so painfully relatable. I hate that you’re going through this. I’m glad you have your family and im always here when you need to vent.
My biggest advice for being happy is to allow yourself to first be sad and not feel guilty about it. You are in the thick of it right now. It would be shocking if you weren’t grieving.
I had to stop school in the final year of my degree. Literally had five courses left, but I developed mast cell activation syndrome and multiple chemical sensitivities amd now I'm finding out the main trigger was mold toxicity. My family wasn't supportive at all, and I need to switch jobs too because now I can't work in public. I need to work remotely due to my condition. So they don't understand. It does make you feel like a failure 😔
Hello. Thank you for sharing some of your story. I am sorry you had to leave college. Have you been able to return?
I know the heartache of leaving school. I became significantly affected with POTS (and other medical conditions) while in medical school. I had to drop out. I was absolutely devastated. I have never been able to return back. I have underlying medical conditions which are progressive and have worsened over time. I now have a tracheostomy tube, use a ventilator to breathe, use IV nutrition (TPN) and am in bed for most of the day.
I hope you are able to find ways to improve your health. I hope you are able to pursue your dream. Nothing makes me sadder than seeing someone with bright ambitions being hampered by his/her health. CZcams continues to amuse me. I went to upload a video I am releasing on my channel tomorrow, and your video was suggested to me. I am glad I clicked on the link to view your video. What a blessing. I wish you all the best.
Im so sorry sweetie 🤍🤍🤍
I have been celiac for a year and had no improvement so I have been diagnosed with refractory sprue. I also have abnormal cells in my intestines so am doing tests to see if steroids may help or do I need chemo. Chronic Illnesses suck!
Do you have a good Dr.? Dr. Saperstein in Phoenix has changed my life. I have POTs, hEDS and MCAS.
I’m so sorry this is happening to you. Have you looked into Ehlers Danlos Syndrome? This can cause pots and dysautonomia, I have a similar disability so understand your frustration. Sending love and hugs xxx
Sometimes life doesn't go according to plan and it's ok b'cos God has something greater planned for u and I pray that by the Grace of God little by little things are going to get better for u in Jesus name. I know how it feels to be in a body that is betraying u, there will be highs and lows up and downs, we just have to endure and fight through everything we are feeling right now b'cos we will get to the other side no matter what things are going to get better, for me that's what I tell myself b'cos there's just no other choice it's faith belief that keeps me going, there was a time I was in a wheelchair for about 2 weeks and b4 dat I couldn't walk for about a month but I got out of that wheelchair and since then my body has been up and down, I've gotten better for some months gone back to school had to drop out again I've tried going to school 3 times and dropped out of the 3 different schools, so no matter what never stop fighting and never give up especially mentally, we are stuck in battle with a body that is at war with us and we are not going to lose in anyway or form even if it's just mentally.
What’s the name of your Etsy shop?
its averielovesbooks :) its always linked in the bio of my booktube videos!