VIOLENTLY ATTACKED BY COVID | Extreme Leg Spasms | Pain | Weakness | MS | NMO | Chronic illness
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- čas přidán 3. 08. 2023
- In this video Teresa and I talk about how Covid found us, rendering us very poorly. I also talk about how just prior to catching Covid (in Feb 2023) I was in fact feeling quite a bit better, until it robbed me of all my progress, particularly leaving me with a very severe spasming in my leg which effected my sleep significantly.
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🤒 CURRENT SYMPTOMS 🤒
Numbness, Burning, Tingling, Humming, Buzzing, Squeezing, Skin Sensitivity, Altered Sensation, Balance problems, Chest Pain, Muscle Weakness, Stiff Lower Back, Stiff legs, Stiff knees, Blurred Vision, Anxiety, Depression
👣MOBILITY ISSUES👣
Muscle Weakness, Spasticity, Clonus, Abnormal Gait, Tremors, Walking difficulties, Falling.
😷DIAGNOSIS HISTORY😷
▶︎ Transverse Myelitis (2008)
▶︎ Multiple Sclerosis (2013)
▶︎ Optic Neuritis (2019)
▶︎ Neuromyelitis Optica (spectrum disorder) NMOSD (2019)
💊FREQUENT MEDICATION💊
▶︎ Methylprednisolone (IV)
▶︎ Prednisolone (oral)
▶︎ Azathioprine (oral)
💉PROCEDURES💉
▶︎ Multiple MRI Scans
▶︎ Evoked Potentials (2013)
▶︎ Lumbar Puncture - Spinal Tap (Feb 2019)
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MS patients are desperate for more than the doctors are giving them. It's REAL people like you who help us the most. Blessing to you both. SO glad you uploaded this. Stay in your "holiday" place - and anything else that makes you have some joy.
Nhs is failing people!!!
The NHS is getting worse!!!
My husband and I almost died together during the first strain, taking us 8 months to recover from major symptoms, I with brain injury and husband with bone and back spasms. Two years of constant muscle pains and spasams and slowly going crippled. We went on a keto diet, started on a vitamin regimen of magnesium, vitamin K and D and omega three and a multivitamin. Symptoms have gone away and we’re getting back to normal life after four years of disability. No more stuttering or speech issues and very little mobility issues. I think muscle stiffness will always be there though it’s mild. Good wishes and prayers to you.
Blessings to you, thank you for sharing your story and your terrible ordeal with Covid.
I’m so happy to hear that you and your husband have recovered now.
I would say for myself it took me approximately a full year to completely recover. The spasms were absolutely horrendous and debilitating, and of course then there was the muscle aches. My goodness I never want to catch Covid ever again, absolutely horrendous and life changing.
Having said that, Covid has in fact left me with significantly more weakness particularly in my left leg. I can no longer lift my leg up the stairs where as before Covid I could, it’s giving me a lot of problems, and it’s very upsetting.
Sending good wishes and prayers to you also 💛🙏
Hi Neil and Teresa 😊 It is so wonderful to hear from you both! I actually was getting ready to reach out and see how you guys are doing. I am so very sorry that you both were down at the same time with Covid 😢 I had it twice and it was not fun. I can only image what it did to you Neil. Glad to hear that you are starting to slowly get back to some normalcy. I absolutely love your “Summer House Getaway”!! I think that was a fantastic idea for both of you😊 Positive thoughts and prayers to you both! Until next time, take care ! 😘❤️
You deserve this holiday house! Thank you for sharing your videos with the MS community. We appreciate you. Sending a hug from California.
Thank you, that's so kind of you. 🙏 Sending a hug right back there to you also.
Hey, just stumbled upon you now for the first time, and I really identifed! i also went through a stage recently where my foot started jumping nights, and I couldn't shut it off without a Clonex, which relaxes panic attacks, muscles, and finishes off whatever was left of my walking for 6-8 hours! Best blessings from Jerusalem!! 🙌
Hey there, and thank you for sharing your experience with us. I’m sorry to hear you’re going through a similar thing. It’s good you seem to have the spasms under control and also to hear the Clonex works for you, I too take this drug although here in the uk it’s called Clonazepam. When the spasms were incredibly violent brought on by Covid, I had to take additional meds to try and combat it, even then the spasms occasionally kept me up.
I hope your managing your symptoms as best you can.
Take care and all the best. 🙏
I completely understand what your saying. My spasticity starts from early afternoon and my leg too launches out of nowhere even when I maxed out on baclofen. Sometimes I’m completely exhausted afterwards and my leg ends up hurting. Last year when it was blistering hot the Uhthoffs syndrome I suffered had me crawling on my hands and knees because my body felt like it was full of cement, and was the only way I could move. I feel for you my friend.
I like that idea of a staycation place.
What a lovely couple you are. So nice to see you in the summer house (definitely not a shed!). Puts mine to shame. I should have commented ages ago but this just popped up in my feed today and I have been very remiss lately with CZcams. Covid is horrible and stories like this remind us it is really not something to belittle. Makes me cross when the Covid-deniers are so condescending to wards those of us that treat it seriously. You both look and sound great so it's just one more battle you have bossed! Well done you. Best wishes ❤ (Now give me a heart! 😁)
Nice to hear from you Bill, cheers!, here’s the heart 😉
I have been keeping an eye open, watching for you two. I am so glad you got through Covid. You described something I have felt but wondered if anyone else did. A muscle winding up for a fast spasm. Yes. I can feel it and there is utterly nothing you can do except wait for the spasm. I've been on Baclofen for mine for over a year now. It seems to be all I can take. They tried other medications but my heart started being crazy irregular and now I will be seeing a cardiologist about it (bleh).You both look fine (tired but on the mend I'd say) It's a relief to know you are hanging in there! Hugs to you both. I love you so much for your devotion to one another and your sharing this rough journey with the rest of us with such courage. 🤗
Nice to see you both
Seeing your sweet faces brought us joy today. So good to hear you are recovering from such a difficult time. My husband Frank and I need a cabin like yours. What a creative idea. With love and prayers for both of you. Kerri😅
So glad I've found your channel! Sorry you've been struggling. We keep fighting together. Looking forward to following your journey.
Hey there, nice to see you over here .. I'm already a subscriber of your channel, and I see you've been putting out a lot of videos just lately. Keep up the good work. Yes, every day is a struggle, sometimes every hour. Even now I'm replying to your message at 5:40am as I can't sleep for pain.
Just to say delighted to see you both, often think of ye .sorry to hear that ye got covid and were so very sick .love the summer house, great idea and looks so bright and cheerful. ❤❤
Hi Neil and Terese lovely to see you are both back watching and following from Brisbane Queensland Australia ❤🇦🇺
Hi Elisabeth, it's nice to hear from you and thank you much. I hope you are doing well. 🙏
I am so glad to see you and Tree back here on CZcams! Glad you're doing better and recovered from covid. Still going to write to you....still researching...
😢 I’m so sorry to hear this! (I just typed a long message here…but I think it has disappeared! Much love to you both from us two in Portugal! 💖💖💖
Hi Susan, I spotted your message first thing this morning but didn’t read it, as Teresa and I generally go over new comments in the afternoon when we go down to the summer house. I’ve now just discovered it vanished, I’ve noticed CZcams does this from time to time and I just have no explanation. My channel is set to publish everybody’s comment. Take care. 🙏🦋
Nice to see you both again. I got unsubscribed. But I have been off for a long time. Health has been too hard to make videos again. But I enjoy seeking back in to learn how everyone is doing.
Hey there, lovely to hear from you again and welcome back. Oh dear, by the sound of it your health hasn’t been good. I’m really sorry to hear this. It’s the same for me, mobility wise, I’m the worse I’ve ever been, and it just continues on the downward slope unfortunately for me. Take care.
So lovely to see you both! The summer house is sublime! Such a nice retreat. So sorry Covid hit you both so hard. I hope you continue to get better.
So very happy to see you two again!!!LUVVVVVV your little getaway place🥰
And I’ll add “I want one!!!” Huney can you build me one of what Neil and Teresa have???
Hi Neil & Teresa 😊 Lovely to see you both back & looking well.
I'm just recovering from 9 falls 😮
I've had covid twice, I still can't taste or smell anything & they think I have long covid,
I had my symptoms for longer than anyone else I knew, the NHS rang me & told me not to go out for another month ontop of the month id had it, It really knocked me for six.
I've had leg spasms for 5yrs now that last all day so its awkward to sleep 💤 & it gave me really low moods too.
I'm so pleased your feeling abit better now
Love to both of you 😘 😘 ❤ xxxxxx
What a lovely idea and “getaway” on your tranquil , relaxing and beautiful home away from home. I bet you will add a little waterfall machine!!
You both are stronger than you know. Sorry to hear Covid was a real kick in the pants. Keep hydrating and resting up!! Congratulations on weaning yourself off prednisone and starting to feel a little better, before you got Covid. One day at a time, and you both will get there!! You got through what sounds like the worst of it!! Now, time to just relax in your own little vacation/holiday home. That was a great idea, Teresa!! Prayers and wellness prayers and wishes, to the both of you. Your bond of love is very lovely and sweet!! You are both darling!! Blessings from America-(Between Chicago, Illinois and Milwaukee, Wisconsin. The Midwest, or the Great Lakes Area…Lake Michigan.) I’m happy you are giving yourself the time and grace to recover!!!! Best wishes!😃😃💕
Thank you Tracy for your lovely and kind message. 🦋🙏
@@NeilBradleyMS You’re welcome!
Hi Neil & Teresa, lovely to see you both back on CZcams, and looking so well too! I love your new pied-a-terre! What a lovely idea... can't wait to see the full Christmas version, Teresa! 😉🎄 So happy you're keeping much better, Neil. Take care, my friend.
Hello Laura, long time no speak. Thanks for the message, hope you’re keeping well yourself.
Greetings from Australia 🇦🇺 my overall MS symptoms are so similar to yours Neil. I started CBD/thc oil for sleeping it helps also for my restless legs. I not on DMDs I diagnosed in March 2023. I am 55. I also started keto diet 4 weeks ago. This is a horrific disease. I wish you well. Your wife is lovely and caring.
Thank you so much for your kind words. I too have been trying CBD/THC oil, doesn't taste very nice, and it's so SO expensive. I didn't really feel it was helping, but my sleep did change slightly to the better. So I may well try it again, you're comment has inspired me to do so, thanks for that. I hope the diet is helping, for me diet doesn't help at all, but I do wish you well it and I hope you have some success. We are similar ages, I'm 51 now.
@NeilBradleyMS hi Neil if you would like to connect be great. I will send you message through Facebook messenger.
Sending hugs and all my love.
Hello to my favourite CZcamsrs ❤❤ ….. I must say how well you both look 😊
Your summer house is wonderful, it must be like a year round staycation . Enjoy every moment 🙏
Great to see you both x
Nice to see both of you! I missed you!!😇😇😇😇
Love your summer house, it is gorgeous! Thinking of you both often and know you’re always in my prayers.🙏🏻❤️
Thank you, Karen, for your kind thoughts and prayers. Blessings to you 🦋🙏
Great to see you. Sorry for your experience. Sending best wishes 😊
Wonderful to see you both...very missed...Lots of love 💕
Love your little beach house. So glad you are feeling better!!❤
I love that house. So glad you are feeling better.
Oh I'm so sorry for both of you!!!! Feel better both of you!!! Take care of each other. Peace.🤯🫣😷😇😊🤗
Oh how good it is to see those smiling faces of yours! First of all, I’m so glad to hear you both recovered from your terrible battle with Covid. I’ve always worried for you Neil, with your compromised immune system, how you’d handle Covid. So seeing you (both) come out the other end give me a sigh of relief.
Let’s talk about your guys little vaca home getaway! I’ve never seen anything like that here in the U.S! Unless there is and I never paid attention lol. But how cool is that! You guys have a nice view with all the greenery there. How beautiful!
Well Neil and Teresa, we’re all so glad to see you guys! And post when you like don’t ever feel guilty for not posting. We’re family! We’ll always be here! Cheers!
Thanks Paolo 👍
It's because we love you both ❤️
Ahh bless you 🙏🦋❤️
Always happy to see you. Enjoy the summer and best wishes❤. Katja
I love your summer house! It looks lovely ❤️ So happy for both of you! I always enjoy your videos! Best wishes to both of you!
Hello, lovely to see you again both.
I am glad you are feeling better now. Stay strong and sending you guys lots of love and hugs ❤take care ❤
It's SO good to see you both again, a 'postcard from the seaside':)
Thank you both for sharing . I've been following your journey since 2018 and your experiences have helped me greatly with my own. Btw, your summer house looks really great! Wish you both the best and hope to see you soon on your next video!
So good to hear from you. It really feels like meeting old friends again.😊Greetings from Germany
So glad to hear from you both again - have been wondering about you. So sorry you've both been poorly - sounded awful. Your summerhouse looks great - enjoy your getaway times there - great idea! Glad things are improving - onwards and upwards 😊
Neil, Teresa, so glad to see you again! Covid does indeed hit hard! But I can see you are better now and happy in your holiday home, enjoy it, big hug to both of you!
Thinking of you and Teresa this Christmas season. Merry Christmas.❤🎄⛄
Thank you, and Merry Christmas to you also. 🙏💕
Hi to you both. I'm really sorry that you have been struggling Neil. I am glad that things are getting better though. The summer house is really lovely. Sending love to you both.
Hi Neil and Tree! Thinking of you as the seasons change. I hope you got good use out of your summer house! Checking in to see how you are doing.
Not so bad thank you. And yes it’s been lovely, bit chilly now that we’re in Autumn🥶though.
@@NeilBradleyMS glad you are not so bad. Autumn is here too on this side of the pond. 🥶
OMGosh so happy to see you two on the video!! COVID was a horrible experience for I also, I really did not think I was going to live through it.
I love your holiday cottage , just adorable!
We moved to Ecuador one yr ago. The weather here is a comfortable 60 to 75 degrees year around. The food is non gmo all organic, low sugar if any. This has all helped my MS somewhat.
Praying for you.
Hi. So wonderful to see you two. There is a medical term for early stage sleep spasm. Sleep apnea has caused this to occur with me. The lack of quality sleep is horrendous. Love to both of you, Melinda H.
First thing I thought of was where are the Christmas lights 🤣🤣🎅🎅🎄🎄 Hello you two. So sorry to hear you both got Covid. Glad you are getting better albeit slowly. Neil, I also fall asleep with the remote control whilst my finger is on the fast forward. Bloody tablets. I only sleep for 2 hours at a time atm. I have so far Dx of trigeminal autonomic cephalgias and I have just been told my kidneys are only working at 33% and heart is showing changes. Something to do with the arteries. It is due to constant high blood pressure and heart and kidneys have taken a battering. BP tablets are not working atm so every week blood test, wait for the result and change dosage of tablets. I love the summer house and can't wait to see the Christmas tree up in it.😁 Soon will be Christmas eh Teresa!! Great to hear from you both and take care and enjoy your holiday spot, you both deserve to have something nice.
Hi you two! My spasms have gotten so bad too!! Jerking almost violently!!
It looks lovely and all you need is some sounds of the beach. Hope you're both doing well?
All the best guys and lots of love.
Thanks Darren, Teresa already has the beach sounds sorted out thanks to CZcams 😉, Sending much love back to you my friend. Take care.
@@NeilBradleyMS Well she's a woman so she's thought of everything.
Be careful mate she looks the type to buy a donkey 😂.
Take care buddy.
SO WONDERFUL TO SEE U BOTH.I AM sad 4 the suffering.
Hi Shirley, just prior to Covid (Feb) I felt I was doing quite well, the best I had been in a while. I felt happy which to be honest, is a rare thing now. Then Covid snatched it it all from me, and even now some 7 months later I still haven’t got back to where I was. I’m still incredibly weak. I am however using my mobility scooter significantly more to get about outside, up and down the garden. It saves my energy. I hope your doing ok. 🦋🙏
Hi again ty 4 writing. My brain MRI was ok. This week will have Lumbar puncture under general anesthesia. I began Tetrabenazine for chorea symptoms. At the moment, cause unknown..Around 10/20 will get LP result. Neurologist who specializes in movement disorders, does not think this is MS. I think he said fir sure not Huntingtons.
I know what u mean by happy being rare. Fir us & thise who suffer, that is the norm.
Hi again again.
Neil, bc of ur YT's, I'm not afraid of MS. Thank you. Bugrime. So happy fir your COZY CGRISTMAS COTTAGE. What a smart move to do it! I know of 2 different movie/TV shows were a family sets up a special area outside for their loved one who is sick, so they can see trees, sky, birds. The sound of birds calms my spirit.
BTW in California, Christmas Decor is out. There are many shop with me videos of merch in stores. A fav of nany is the store Hobby Lobby. Does Theresa watch videos like that?
Maybe the next time I write I will have a bit more of a diagnosis.
@@shirleyhunt6084 Hi Shirley, always nice to hear from you. I'm super happy to hear that you feel less afraid of this horrible condition due to watching videos on our channel!
Yes, the Summer house is amazing, we love it so much. Currently we are very slowly painting it to try and give it some protection in the looming cold weather, it's slow going but we're managing it a bit at a time.
Yes, Teresa loves her Christmas films, similar to the one's you talk about. Also, there are lots of houses here (including us) that have Christmas lights up all year round. It seems to have been a thing since Covid, a little bit of cheers amongst such doom and gloom at the time.
Take Care Shirley,
All the best - Neil & Teresa xx
@@shirleyhunt6084 Thank you for writing back Shirley. So, I see you are still try your very best on this continued quest to get a diagnosis from those Doctors. Hopefully you will get something soon after these investigations. You say you're having a Lumbar Puncture, I had one of those in Feb 2019. I documented it and there are a couple (I think) of videos about it on my channel if you have a look through. They may just help put your mind at rest a little. Oh dear, I do hope it's no Huntington's. Yes, unfortunately my 'good days' are very rare now and what with everything going on with my body it's very hard to feel happy. The latest, very significant problem is my left leg. It seems to be giving up completely, I can barely lift it more than a couple of inches off the ground. Consequently I'm dragging it, tripping multiple times a day. It's just not good at all. I hope you forthcoming procedure go smoothly for you, take care now - Neil & Teresa xx
Oh those spasms or so scary and painful and I’m yelling shit in my sleep. Those spasms , for me, Rob any progress I have made in leg strengths.
Totally understand about the leg spasms. Something I have found that I feel definitely helps me, it’s a supplement called Calcium and Magnesium. My spasmed were off the scale.
Hi to you both. I used to get the jumping but it was in my right foot. I was prescribed baclofen 4 a night and stopped it which was great but it came back but just upping it to 5 has totally worked. I'm glad they have worked for you as it does drive you mad. Take care Adrian 😊
Happy Anniversary to you both. Hope you both have a lovely day and spoil each other and relaxing in your summer house. Teresa, another good reason that the Christmas tree should be up by now, no excuses 😂😂😂😂🎄🎄🎄🎄🎄🎄 xx
Why thank you Mark, that’s very kind. Teresa doesn’t need encouraging 🤣 she’s already found a 🌲 for a permanent position in the summer house, all year round. I’m happy if she’s happy 😊
Isn't it marvellous when you get a new favourite spot? 😀 Good to hear you're both getting over covid😊
Thinking of you two and hoping all is well!
Miss you!
Not so bad thank you, hope you are ok too. 🙏
I am Thankyou! Started physical therapy recently so I can be told that my muscles are tight. Well duh🤦♀️🤷♀️. Other than that, we're gearing up for the Christmas season
Sorry, that was just a little frustration rearing it's head. PT will hopefully help me loosen up🙏🏻. I do have a new rollator on it's way so that I can start walking more steadily while out and about🤗
I'm glad you've got a new aid to help you, that's great. Hmmm, I kind of lost faith in PT a long time ago, although often I do my own exercises targeting the weak areas. There are plenty of CZcams videos to help you if you put into CZcams search the area on your body you're trying to strengthen.
I have! 😁 I found "Bob & Brad" on CZcams to help who I find of help as well💕
Hi Neil & Teresa glad to hear from you both, sorry I have not chatted with you sooner have been thinking bout the both of you. But here you are !! Sorry to hear your spat with covid-19 ( I hope it was not drawn out for too long by having it.) I am so glad you were not in the Hospital or anything like that either one of you, I never had covid-19 now Logan pick covid-19 when it first started over in the U.S. He had two of his covid-19 shots at the time so he then had to wait till he's body was back to being more immune from covid-19 to get the rest of the series of covid-19 shots. But I do know that it is still Lurking out there covid-19 that is i guess. But I hope you are all better from it did it feel like a really bad cold? and Neil when you were talking about with Teresa how you just could not really move from it like it drained you to move I really felt for you I know how that scenario can be. I am so glad that you are up and about it challenging reganing strength. From rebounding from covid-19. I love your cute summer home and yes Teresa the lights make it look Festive. 🎄 🎊🏘🎊🎄If you decorate it more in time I can't wait to see it. ☺
❤ Take Care - Amanda & Logan
I love your idea of summer house. I may have to ask the Mr. To consider one.
We absolutely love our summer house, it has to be one of the best things we have ever done to our property. 🙏
I had the same happened in2021 with covid and pneumonia was in hospital for 2 weeks almost put on ventilator was on breathing machine and 2 years later still dealing with covid problems ,been on baclofen for 5 years never has helped, but I hope you do well with it
Hi guys. Yep, heat/fever is a bitch! Uhthoff's phenomenon😤 I have been on Baclofen 10mg 2x daily for years. So happy just hearing/seeing you two. Congratulations on your little piece of tranquility. Love you guys to pieces.❤
Hello
I got one in covid and 8ts great,get away from the house even tho near the house.i still refer my to shed lol
I was just thinking about you a couple of days ago and suddenly you just appear! It's terrible that you were struck with the China-19 bioweapon but you look great now. Glad you're back my friend. Cheers!
Same!! 😅👍