My POTS Symptoms and Diagnosis Story (Postural Orthostatic Tachycardia Syndrome) + CFS & FM story!
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- čas přidán 7. 03. 2024
- In this video, I share my story of my journey to diagnosis with POTS( Postural Orthostatic Tachycardia Syndrome), CFS (Chronic Fatigue Syndrome) and FM (Fibromyalgia). I also share my experience of being undiagnosed for most of my teenage life and the impact that had on me and my health. I hope that by sharing this it will help people in future :) I also share how I got diagnosed with Asthma, misdiagnosed with anxiety and my experience in this space as a young woman.
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I have a similar story from being a super athletic kid to suddenly sick as a teen x
Thanks for sharing with such clarity, I'm sure this is super helpful to anyone who is unwell regularly
Thank you so much! I hope it helps others
Story of my life. I'm currently looking to get my diagnosis at 34 yrs old. I spent my entire life in pain, all over body pain, nauseous, allergies, and so much more. I work myself so hard then I'm down for a day . Anxiety is high , top that off with audhd symptoms I'm just a genetic masterpiece 😊
I'm so sorry to hear that :( I definitely have the tendency to work myself too hard as well. I hope you're hanging in there
Thank you for sharing this. It is brave to share your story.
Keep up the great work. 👍
Thank you so much, I really appreciate that!
You articulated everything so well, thank you for this video and wishing you all the best!
@@izzypaynee thank you so much! Wishing you the best as well
@@iammellbell I also wanna say you are glowing in this video! Xx
My Neurologist did the” poor man’s Tilt- table “ test on me and that how I got Dx with POTS. I also have Asthma and cEDS.
May I ask, what is cEDS?
Thank you)
Tell us in the next videos what helped the cure.
I will share more in detail in future videos as I am improving :)
What's "the thing that goes in your arm"?
I also have dysautonomia, and suffered with POTS for about 6 months in 2022. I was equally frustrated with the mainstream medical system. Luckily I found a functional chiropractic neurologist, who diagnosed me, and knew how to treat me with physical/neuro therapy and without any medications. A few months later I was POTS free. I still have some dysautonomia symptoms, but they're a lot milder and I've been improving little by little, but noticeably each month or so. I highly recommend to look into functional neurology or even just brain retraining, as these are ways to help calm and rebalance the autonomic nervous system and many people fully recover or at least get a lot better, without any medications and their side effects.
Where are you located? I saw a functional neurologist and I had mild improvements and we came to a plateau. He basically felt I needed more help from another source such as naturopathic doctor and supplements... I saw the functional neurologist for about 2.5 months. It's extremely expensive and I can't afford to keep going as I was previously but I wonder if maybe 2 times a month would help? How long did you go for and do you still go?
@@MissMoMoCita SF Bay Area. I went twice a week for 2 months, then once a week for a while after that. I gradually cut that down to once a month over the last year. I still go now and then when symptoms flare up, but not regularly. My functional neurology docs know a lot about helpful supplements and recommended several during my initial treatment. Try the FLCCC long covid page for supplement suggestions. Many of them are specifically helpful for dysautonomia. If you're hitting a plateau, you might need to focus on more basic things like more sleep (that was the most helpful single thing in my recovery, though the other things were also very helpful). Also, food sensitivities can sometimes play a role, so you might want to cut out gluten, dairy, and soy for a while and see if that helps.
Have you had the prolotherapy yet?
In my SI joints and some superficial ligaments in my T spine yes, but not in my neck yet :)
I thought POTS is a symptom of MEcfs?
they can definetly go together and often CFS is a symptom of POTS but they can also be seperate from each other
@@iammellbell oh so the PEM is part of POTS too?