MRI SCAN, HEAD AND FULL SPINE WITH CONTRAST: This is what happened! NMO, MS
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- čas přidán 26. 05. 2021
- 18.05.2021 Today we had yet another trip out to our second home, the hospital. Join us to see what happened. Hope you enjoy. xx
#neuromyelitisoptica
#nmo
#multiplesclerosis
#chronicillness
#pain
#mri
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🤒 CURRENT SYMPTOMS 🤒
Numbness, Burning, Tingling, Humming, Buzzing, Squeezing, Skin Sensitivity, Altered Sensation, Balance problems, Chest Pain, Muscle Weakness, Stiff Lower Back, Stiff legs, Stiff knees, Blurred Vision, Anxiety, Depression
👣MOBILITY ISSUES👣
Muscle Weakness, Spasticity, Clonus, Abnormal Gait, Tremors, Walking difficulties, Falling.
😷DIAGNOSIS HISTORY😷
▶︎ Transverse Myelitis (2008)
▶︎ Multiple Sclerosis (2013)
▶︎ Optic Neuritis (2019)
▶︎ Neuromyelitis Optica (spectrum disorder) NMOSD (2019)
💊FREQUENT MEDICATION💊
▶︎ Methylprednisolone (IV)
▶︎ Prednisolone (oral)
▶︎ Azathioprine (oral)
💉PROCEDURES💉
▶︎ Multiple MRI Scans
▶︎ Evoked Potentials (2013)
▶︎ Lumbar Puncture - Spinal Tap (Feb 2019)
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----- Playlists you might be interested in -----
▶︎ Tree & Neil's VLOG's - • Chronic Illness VLOG's
▶︎ My Life With Multiple Sclerosis - • (MS) My Life with Mult...
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▶︎ Trying to "kick" Lyrica (Pregabalin) - • (MS) Trying to "kick" ...
▶︎ Molly's VLOG - • Molly's Vlog
▶︎ Birds and Animals - • Birds and Animals
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Source: • ❰Future Garage❱ Sapphe...
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Glad the scan went okay! Sounds like the morphine beforehand really helped :) Love how you edited this video as well!
Hi Georgina, how lovely to hear from you! Yes the scan went well thanks, but I do think the Morphine had a lot to do with the reduction in pain and getting me through the procedure. And thank you for the compliment on editing, as you probably know yourself with your own channel, an awful lot of time goes into this side of things doesn't it. I do enjoy it though, and it keeps me occupied as I'm struggling to do anything else (that requires moving about) at the moment. I watched your latest video recently! Nice to see you producing content again. I hope all is well with yourself, look forward to hearing from you again soon. Take care.
It’s always a pleasure seeing you both giggling 🥰🥰 I think sharing ur stories is definitely so good for the mind and soul. It’s true , real happiness is enjoying the little things in life like sipping coffee in a shop and enjoying the sunshine and plants outside 💪💪 never stop believing in yourselves and just live in the present moment , it’s all you need ❤️
Very well said Patrick, I couldn’t agree more. Living in the present moment is certainly what we do, day to day and hour to hour. I love just sitting in the sunshine out on my patio, can’t do much but I feel it kind of bathes my soul if that makes sense. Just wish it would fix the body as well. 🙏💕
You have such good wit about you, Neil, despite everything with which you are coping. I've always appreciated that, as well as the way you and Teresa carry on with each other with your humor. Through hardship, you have each other there, to sit close together and be touched (even if it does shake the camera, LOL) You are deeply cared for!!! And that point makes me glad to tears!! I'm here alone with worsening MS - and that is the hardest part of all for me (for anyone, really)........harder than the physical pain
and poor mobility, etc., etc........God bless you both!! And thanks for the update.
Ahh bless you Elaine, I often often say to Teresa “I don’t know what I’d do with you” not because she does things for me, but because we love each other so much and are so compatible. She feels the same, and we are just so incredibly lucky to have found each other in the god forsaken world. I honestly can’t imagine coping with this soul destroying condition alone. So, my heart really goes out to you, you must be one tough cookie!!. 💕💕🙏
Teresa, I love hearing you laugh. I am so glad all went well. I would like to see your garden again. I am looking forward to hearing your next report. Thanks, Kerri
Thanks Kerri, I’ve got some footage ready to put together of the garden, it’s mainly if Cedric our resident Black Bird. I just haven’t found the time to edit it up yet, hopefully soon though. I hope guys are doing well.
Hey guys, I’ve been thinking about the both of you. You’re still in my prayers. You are such a delightful couple. Loved the update, thank you. Take care. 💜
Thank you so much for this Maria 💕🙏 Take care.
I’m glad the scan went ok. You seem in good spirits. I’m still praying for you both.
Hi Neil & Teresa! I have missed seeing your updates. I get the scans about 2x year. The sedative really helps. MRI usually helps the Consultant see where/if the damage is . Rituximab has a strong history but yes we have to sign for each medication. It just protects the Consultant from malpractice suit.Neil,I think a bit of ironing may strengthen your mobility 😁Very good to see you and Teresa!
Hi AJ, nice to hear from you.. although I have to strongly disagree about the ironing lol 🥰 And yes I suspected as much about signing for the Rituximab. I've since found out the MRI was in fact for a baseline prior to my treatment. I hope you're keeping well.
I’m so glad you had your scan. We love you both. Much love from Connecticut USA. 🐳🌸
Hey Mary, nice to hear from you! And thank you, yes it went a lot better than I thought it would do. I hope all is well with yourself. I seem to recall you're a subscriber of Ryan's channel, I haven't seen a video from him for a while.. hope he's doing ok. You take care.
It's quite terrible having the foam block under my legs becuz I have screws and rods in my back and have burning hip bones and so the block kind of makes it worse but I can't go without it, I know it makes no sense. The tech then asked 5 times if I wanted more pillows underneath and I kept trying to tell her it was gonna make it worse, I guess she couldn't compute that. You both are amazing! ❤❤❤
You have excellent editing. It’s like we are following your day.
Beautiful couple! 🥰
Hi Shanti, I REALLY appreciate your editing compliment. Thank you so much. I do put a lot of time and effort (hours) into making the video enjoyable, and I’ve taught myself how to do it all too. I also use completely free editing software which is amazing. Thank you again, and I hope you are doing well.
Hi you two cuties. I’m not surprised re: the iron 😂😂 Trees you’re looking good but limping ? Hope you’re ok? Rip off that tape !!!! Quick is best. You two give me a great giggle. I have news. I bought a near infrared helmet/coronet from Tasmania and my cog fog and pressure in my head and believe it or not my gait and stiff legs have improved out of sight. I’m hoping it’s not placebo but it’s been three weeks now so the novelty should’ve worn off by now. Near infrared and infrared work in such a profound way for many things and whatever this is that I’ve got (still nothing definitive dx’d)it’s working on it. I haven’t had a painkiller in 3 weeks. Yay!!!! So pleased you got an mri Neil. I have one every 12 months I’ll be waiting for the results. I live and quote to my neuro vicariously through your videos. Such incredible similarities. My neuro watched one of your early videos as it described my symptoms so very articulately - she was amazed that we had so many commonalities in pain and symptomology. She thinks you’ve got Parkinsonism and ms How’s that for a remote dx. All the way from dodgey neuro downunder. I’m sure you can tell that I rather dislike neuros nowadays Can’t wait for the results video. Take great care Trees and Neil. 💖⭐️ Andrea. 🐨🦘
Hey Andrea, and wow you got your Neuro to watch one of my videos!. Hmm, an interesting diagnosis, I’m very interested to know exactly which video they watched, as I will re watch it. Can you remember?
As for the helmet, well it sounds amazing and I always say if you find something that works for you then stick with it. No painkillers for three weeks speaks volumes!
Teresa’s as limping because her back still isn’t right after a couple of month’s trouble with it. Fortunately it’s going in the right direction.
Take care. 🙏💕
I was thinking about you guys yesterday while cleaning and hoped you would upload. My wish came true haha.😂 love you guys... awsome couple💘
Good morning Lita, well how about that! Your wish came true :) So pleased you enjoy our videos, there is another one coming once I can get my finger out and edit it up. Got 50 odd comments to respond to first though lol. I hope all is well with yourself, and you're not doing tooooo much cleaning lol. Take care.
Happy to hear your MRI went well. I love your videos. The two of you are so adorable.
Hi Gwendolyn, ahh thank you so much that’s very kind of you. 🙏🥰
I remember the Blue Peter badge and I was a child of the 80s, so you're never too old! I enjoyed watching this video. The humour you bounce off one another is very funny :-)
Thanks Steve, and oh yes don’t we all remember that Blue Peter Badge 😆 You’re right though, never too old, blimey I’m 50 next year. Scary though.
Hello both of you, its a baseline scan before you start your new treatment. Its routine and signing for new treatments. Never had music any of my MRI...you are lucky
Hi Indie, you’re absolutely right! We discovered this the other day when we visited my Neuro, she said it was a baseline prior to my new treatment. The music was ok, couldn’t hear it very much though because of the thudding and knocking which I’m sure you’re familiar with.
I love you both… you never fail to give me a smile or often chuckles 👍🏽😁🙏🏻💕🇨🇦😘
Hi guys. So glad your MRI went smooth Neil. Mine did too. Waiting to see a neurosurgeon now so we can go over my options on removing this tumor. I am also having another MRI on my neck. My neck pain has been awful and the doctor found a lot of arthritis in my last X-ray…I will also be getting 2 injections in my spine to try and help with my leg and foot pain. I’m very nervous about all this and have had severe anxiety the last few days but I’m hanging in there because it’s all I can do… On a lighter note I actually love ironing 😃 I find it very calming so I’m right there with you Theresa. Good to see you both smiling and thanks for the update. You’re both always in my thoughts and prayers🙏🏼🌺🦋😊
I’m glad you’re MRI went well! I really do appreciate the anxiety over having the tumor removed, I really do hope it’s benign and can be removed without any trouble. Let hope when it has been successfully removed, your symptoms go away and life can begin to return to normal. We’ve got our fingers crossed 🤞 for you, and sending healing thoughts. Please keep us posted 💕 As for ironing, nope .. you’re on you’re on your there I’m afraid lol 😆 You take care and hang in there. 🙏
Hope your consultation went well today 👍🏻
Mortgage cafe 12 quid bloomin eck, but as you say it's a treat... treats are good. Mr & Mrs Gnome & family are looking well and the garden.
You've had more mri's than me, ( 6 since 2015) that plaster coming off made me wince, Teresa's laugh was a little bit like she maybe enjoyed it a bit too much 😲🙈🤣 take care lovely to see you both xx ( p.s. blue peters still going I think)
Hey there, I think we are probably averaging about the same number of MRI’s 🤦 As for the plaster, agreed!! I think she did enjoy it a bit too much 😆 Good to hear from you and take care.
Thanks for the lovely video🥰
You’re so very welcome. 🙏
So happy the scan went well. Don't forget to put on your wedding ring. Good to see you both. Hugs.
Thanks Patty! As for the wedding ring, I really like taking it off because it goes everywhere with me.. but I suppose for the MRI needs must. Hugs to you also. x
Oh Neil I’d have Tree checked out! Liking ironing?!! 😂 btw ironing is hell on the back...as well I know..so don’t start doing it! 🤣. I’m glad you’ve managed not to have too much pain in the MRI. I was worried when I had one so was advised to take some extra diazepam and I was fine! I had contrast with no problems. Btw, my wedding ring had never been off my finger since David put it on back in 1977! The MRI doesn’t affect gold or silver so I didn’t have to remove it. But later in October last year I had to go to a jeweller to have it cut off as I didn’t want hassles with my fingers swelling after the carpal tunnel surgery! It took the poor guy about half an hour and it was agony! It’s one of those wide bands..he even sent his shop lady to get ice from the café! I’m now waiting to see where I can get my ring added to a little more gold and remade as my ring size has gone up 4.5 sizes! 😱 Arthritis I think...
Glad to see you smiling again! Sorry about the plaster! Ouch! Fast IS better but depends how delicate your skin is!
I look forward to your next video with more info! Love from Portugal 🇵🇹💖💙💖
Thanks Susan, sounds like a bit of a job getting that ring off but considering the Op you probably did the right thing. But now arthritis, uhhh 🙄 As for Tree ripping the plaster off I think she enjoyed it a little bit too much lol 😆 Next video in the editing process when somebody gets his finger out 🤔🙄🤦
Lovely to see you both ,your a great couple .delighted things are happening, look forward to seeing your next update 😃
Thank you so much Marcella, really appreciate your kind thoughts. Next update is on it's way, I've just got to get my finger out! lol. Take care.
Great editing, you had fun with this one.
Thanks Michelle, I like the editing process but many hours of time go into it. I really appreciate you noticing it! 🥰
Looking radiant Teresa. Neil, You're a wimp with dressing,but very brave staying in scanner for that long,why did u have to wear scrubs? Sounds like you're being well looked after by your medical team. Great video xxx
Hi Dawn, and lol about the dressing. Yes the scrubs just make sure you’ve got absolutely nothing magnetic on you I suppose (the scanner is basically a powerful magnet), hospital policy. I do feel I’m being well looked after yes, but then other times not so much. It often depends.
So glad you had a scan. Good luck for positive results & feedback. Here’s to free parking in hospitals! 😩
Thanks Nic! I would love to see the parking fees fed back into the NHS or hospital itself as opposed to a private company.
You need that block 👌 when we say MRI others don't realise how long and noisy it is ..I surprised myself ..I didn't feel claustrophobic.....also had a DAT scan.... sending you both lots of love and positivity 💕💯❤️
Thanks so much, and yes I too feel the block is important to take the pressure off the back. I too have got to have a CAT scan (same as CT scan I think) to rule something else out.
@@NeilBradleyMS the DAT scan is much the same ..was In a dark relaxing room to rule out Parkinsons for me ..was quieter than the MRI ..my CT scan because of a fall took a bit longer on my neck at the time ..good luck with all this ..time consuming ..but ruling out is almost as good as finding what's going on..with our 🧠 wishing you both well and lots of love ❤️❤️
Love your relationship #goals!!
Thank you so much Sonya, I hope you're well.
Great to see you both in good spirits ! Fingers crossed for some enlightenment from your scan results 🤞 Oh & Neil I’m with you on the ironing, tried it once & ironed the creases in 😬 so my wife doesn’t let me loose near the ironing board 😂 24 years of iron free 😉👍
Thanks Gordon. And ha ha, I think not letting us near the ironing board is secretly a blessing in disguise 😆 I hope you’re well.
@@NeilBradleyMS struggling on Neil, Thanks 👍 all the best to you both 😎
Been thinking of you both 😊👍💖 Costa coffee, that’s why they call it costa-lot 💰
Thanks Ian 💕🙏 Yes indeed about Costa Bomb Coffee ha ha 😆 I hope you’re keeping well yourself.
Good luck Neil. Don't enjoy MRIs myself. I hope your new treatment works for you .
Hi Duane, thanks. I know what you mean about the MRI's, I was dreading this one but rather surprisingly it turned out to be ok.
I've missed you guys! Thanks for sharing some laughs, and your trip for your MRI. I hate that headgear that they strap on for the brain MRI, I am very claustrophobic. Glad your brother suggested the morphine before the MRI. Take care (both of you), and don't wait so long to update us next time (I was a bit worried about you both).
Ah bless you, sorry for leaving it so long .. I’ve got some more footage to edit up but haven’t really made much of a start on it at the mo. Been spending a bit of time out in the garden recently whilst the weather is a bit better. The headgear isn’t nice especially if you’re claustrophobic and not expecting it. You take care.
@@NeilBradleyMS Glad you got some garden time in, we've had so much wet weather that I am way behind on my planting. I hope to get out there tomorrow morning while I have more energy, and get as much as I can planted. Take care and tell Theresa "Hi"!
Agreed! Ironing sucks! 😊
Couldn’t agree more Nick 😆 Hope you’re keeping well.
Love you both
Thank you so much. 🙏💕
Have you watched or heard Charlie Goldsmith, a healer in Australia?
He also can do long distance healing if your unable to see him when he travels to different places.
Online there are heaps of videos of him , I love his kind giving spirit ( I believe he doesn’t ask for money for his healing:)
Just thought id pass it on in case you found it interesting
Lots of love
Mellie 🙏🏻👍🏽💕💕
Thank you Mellie. 🙏💕
Good morning Neil I am glad to see you again, been a few rough days for me.
Hi Rick, I’m sorry to hear you’ve had a few rough days. What’s been happening with you?
@@NeilBradleyMS Oh just the neurological stuff at least I can go spend time with my puppy dog lol
I know what you mean .. as a rule I tend to be grateful when I get a good day, as I feel most of my days are bad now. It’s good you’ve got a dog, because I’m sure they’re wonderful company for you. My wife and I spend a lot of time playing an online game called RuneScape, it’s a very good distraction from the constant torment of neurological symptoms which, I’m sure you’re very familiar with.
@@NeilBradleyMS Yes I am familiar I play games at Pogo and it is a great distraction for me. I am thinking of trying RuneScape as well. . . now. Lol
All my MRIs have my head in the cage. I HATE the prop under my knees! It hurts worse than going without. You seem to do ok with the contrast. I am sick the rest of the day after I have it. And there is all that mush slushing out. You big sissy with your bandage pain (LOL kidding). Now you know we have to hear how the MRI came out. I'm due for one UGH!! I love all the flowers... come do mine? Hugs! Love you two so very much!!
Hello "J" .. I know what you mean about the prop under the legs, there was one time and I think I mentioned it in the video whereby I was in absolutely agony. The prop under my leg had something to do with that as well and I'm always wary with them now. But I though, I'll try it this time because I can always get them to remove it if necessary. But I was fine fortunately. Ha ha about the bandage, if really did hurt though lol.. more pain than I'd had all day lol. Glad you like the flowers, they're nothing to do with me though, all Teresa's doing. She looks after tubs etc, I tend to do the garden borders, although at the moment nothing is being done because I'm simply not strong enough. I don't know the results of the MRI yet but what I do know is it was used as a baseline prior to me having my treatment which kind of makes sense I suppose. I hope your MRI goes well. Much love to you also - Neil & Teresa. 🥰🙏💕
@@NeilBradleyMS Neil you just do what you can do. I'm glad Teresa has flowers out. You might not be doing that but you can certainly enjoy it. Hugs!! I love you both right back!
Hello Neil and Teresa I hope all is well with both of you. I told you I would reach out to you before you have you treatment (If I remember I thought you said you were going to have your Medical Treatment the first week of June possibly June 4th) If I am wrong my apologizes, but I just want you to know that if you did or did not have it done yet that You will be fine though this
I know how you feel from all my Cancer treatments but don't let it get to you will be fine I know there is alot going on for the both you DO NOT STRESS OUT 😎 The health care professionals I am sure will be right there for you Keep thinking POSITIVE about it it helps alot trust me I did it and still do it even though I am in Chronic Pain like you I still block the Negative Input about it into Positive. I just want you both to know that I am pulling for you both and praying I will be wearing my Cross neckless that I have for the both of you to help you though this time I know this will work for you Neil just don't Stress you are and will be in good hands I will be praying for the both of you like I have before I totally understand if you are Not on your Channel for a time period Because of getting better and stronger which I know you will I have a great feeling about this happening for you Neil in the out come you will prevail don't think anything less I will reach out to the last week of June or the first week of July if you don't Post anything which if you don't I will understand depending on how you feel but I will Message you if you don't and if you don't get back to me right away I understand me and my son Logan are praying you that you make a speedy recovery and
Can get back to in joining your Life again You both take care just know that myself and my son Logan are thinking about you and your speedy recovery Love you both - Amanda
Dear Amanda, THANK YOU so much for your lovely message and re-assurance. This means so much to us, I am quite nervous about having the treatment and how I am going to react to it but it is messages such as yours, from somebody that has been through so much.. that help put my mind at rest. So once again I thank you for that.
My treatment comes in two parts, spaced apart by two weeks .. I'm going into hospital on the 15th June, and 19th June each for the whole day.
I'm hoping to do some filming on the day, and upload to my channel as soon as possible. I may even upload a couple of update actually on the day whilst I'm in the hospital of how I'm feeling etc .. haven't yet decided, also depends on the internet connection I have there.
I am quietly optimistic I think with regard to the treatment (Rituximab) I know it will help stave off the attacks, but what I really want is mobility improvement because it's that which is really getting me down to be honest as well as the 24/7 pain.
Amanda, that's so very kind of you and your son Logan to be thinking of us .. such kind and sweet people, I can't thank you enough.
Much love to you - Teresa and Neil 💕🙏🌹
@@NeilBradleyMS Neil and Teresa Thank You for your Kind words I and Logan thank you I know I never mentioned my son but he knew about the both of you since I have been in your Journey but these couple of last Videos
Logan has watched them with me he is really pulling for you Hey I hope you will be able to feel up to it the days you are in the Hospital but don't Stress just Relax and take it easy don't push too much if you feel that you need Time to make a Video
I understand if you can't I will Message you on one of the days that you are in the Hospital if you can just look at it
If you don't have to Type back if you don't want to depending in how you will
be feeling just thumb it up and I will know. You and Teresa please take care
Love, Amanda and Logan ❤🙏❤
you both are so sweet
Ahh thanks Michelle 🙏💕
I have to go in with my sleep mask on the whole time... to avoid the phobia of small spaces. I just pretend I’m in my bed sleeping and it’s really loud in my room
That's a really good way of coping to be honest Michelle, and your right. Once your eye's are shut you don't really notice the fact you're in a small space, well I didn't anyway. I kind of found it funny when the machine would say, the conveyor (thing your lying on) is going to move now, and off you go lol. Kind of made me smile.
Hi it’s nice to see you both smiling (you always do anyway lol)! I love watching your videos ❤️ Just a random question I wanted to ask: is that a cat I see in your display picture (or profile picture), where is it? Never seen a cat in your videos🤔 hope ur doing well ❤️
Hello Fatima, lovely to hear from you and thank you for your kind message. In answer to your question, the cat is Molly. Sadly we lost her a few days before she reached 20 years old!! She was however quite poorly for 2 - 3 years prior to her passing. I’ve feature her in quite a few of my older videos (2018 and earlier). She also has her own play list on my channel if you would like to see. I hope you are well 🙏💕
Ooh my goodness 20 years!! It’s something to celebrate! It’s sad though my cat also passed away 3 yrs ago 💔 I just saw your comment now, yes I will check out your older videos ❤️ Hope you’re okay
Thank you Fatima, yes definitely something to celebrate. And thank you, I hope you enjoy watching. Take care. ❤️
You’re a lookalike of my favourite defender in my Leicester team ,Jonny Evans. 💙🏆🦊
Ahaha thanks for that Patrick, I’ll have to Google him and take a look 😄
2nd comment: I am very claustrophobic and was very grateful I was asked how I was doing and how long each step takes. A previous open MRI, they just kind of left me high and dry. Have you ever had that experience?
Hi there, yes the foam block is good under the legs.. I have this every time because I find it takes the pressure off the lower back which for me is a god send.
I’ve never had an open MRI, but my experience with MRI’s are always quite good.. as you said they check on you regularly and make sure your ok. Thank you so much for your kind words. ❤️🙏
I need to have a MRI also. Mine is June 3rd. I told them to nock me out! I am very claustrophobic. Scary for me.
Hi Mary, hmm I can totally appreciate that if your claustrophobic .. they may offer you something like a diazepam to relax you or something to that effect. When I had my Lumbar Puncture I was a bit (VERY) scared, and I was offered a Diazepam so I took it. It really did work quite well. I wish you well with the procedure, and hope you get through it ok. Take care.
I gave up ironing years ago
Hmm I'm completely with you on that one .. Teresa tends to enjoy doing it, I always say not to bother but she insists, bless her.
Hi Neil, I am glad to see the MRI experience went well. The Gadolinium ( the contrast dye ) is the coldest metal known to man. I have a bad reaction to this when I have my MRI's and I have had 5 in the last 2 years. I would also like to know what version/type of MS you have. Go to my CZcams and follow me on Facebook(in the description), I would love to be able to chat one on one and share stories and experiences with our crappy disease with each other.
Hi there KP, my story is a long one first diagnosed in 2013 (symptoms started in 2007) with RRMS, shortly after transitioning to SPMS. But now over the last two years I’ve been re-diagnosed with a rarer autoimmune disease called NMO (Neuromyelitis Optica) which I do feel is more fitting with my symptoms. It’s all documented with videos on my channel. Yes I know some people do get a bad reaction to the dye, I seem to tolerate it quite well. I’m already subbed to you, must have been from some time ago.
Neil, I just wondered if you had much heat on your head from the Mri?
My last one I was in for 2hrs 15mins and the heat was the hottest ive ever felt and 6wks later I could still feel it burning and then the results was the damage that had spread was in the same place were my head was burning, im gonna ask my consultant in afew wks, get my bloods done next wk then see the nurse about the injections I have to do 3 times a wk.
The fun never stops eh 🤣😂
The fun never stops does it Sue! As for your question, I felt no heat at all in the scanner. I did actually feel the gentle cool air conditioning believe it or not.
Hello Friends!
I really dislike those MRIs, I have to medicate to help me stay calm (claustrophobic)I get scanned every year. I can chant with the drum beats as I have them memorized 😂
Neal are CBD/THC products available to you? If so I would research / try.
Dr Aaron Boster on YT has many wonderful videos on many topics dealing with MS and the medications used to treat it. I encourage you to watch them. I’ve learned more from him than all of the doctors I’ve seen for the past 14 years!
Oh Teresa your garden is beautiful! That is my happy place too🌹🌺I keep a herb pot near my kitchen door so it’s easy to snip and add to salads or whatever I am cooking. I feel so proud to announce to the family that the parsley, dill, chives or basil are from my garden.
Wishing you both a beautiful week!
Hi Jayne, yes you can indeed chant to the drums in those machines 😆 they take a bit of getting used to. I’ve been subbed to Aaron Boster for a long time, he’s excellent isn’t he. I quite like his question and answer sessions, in fact I watched his latest last night. Very good. Yes we love the garden, especially now the weather is improving. It brings us great joy but I am finding it increasingly more difficult to maintain. But growing your own chives and veg sounds amazing, we are hoping to get a green house soon which we are quite excited about. Take care. 💕🙏
Amazing wife you have, she enjoys inflicting pain on you... If you love pain, its a true win! :-P
Ha ha .. yes indeed! Did you hear though laughs!!! I seriously don't love pain though, but those damn plaster really do hurt when they come off. She doesn't mean it though, well I hope she doesn't :) I hope your keeping well.
Hello from US!
The Steroids do not seem to help much?
Heat makes me pass out, the cold will cause major stiffness, pain is constant, ect... with similar symptoms, with no Steroids!
Hang in there and have hope that your doctor's know what they are doing!
Chin up!
Hi Kelli, as a rule the steroid do really help me .. but I'm talking about the one's which I have delivered by IV (into the vein) which is Methylprednisolone. They are powerful anti-inflammatories, the effect usually last a few months but then I go down hill again.. basically the inflammation comes back. I suffer very similarly in the cold too. Take care.
Cute gnome family
Ahh thanks, glad you like them .. we really do and they brighten up the garden bringing it alive.
Hi Neil and Teresa I was just on Ryan's Page who you introduced me to he has a Message on this Page I was just typing to him a long Message just got off and found you both!! Good to See you I know all about the good old MRI Scanner with and without having the IV for contrast. The Metal bed or table what ever you want to Call does suck to lay on I am Not clostrofobic either I peek when I am in it and close my eyes again I know you can be in one of those MRI's for along time. But its funny your MS Nurse did Not know about you having the MRI??? Did the health care professionals tell as to why or what they are looking for? Was it just they are looking for more Inflamation? Which I hope Not with the MRI scan of your brain so think you or the doctors who offered the MRI think you have Inflamation in or on your brain? I am wrighting this while you are talking 123 RIP IT OFF!!! It's that EASY 😳😞😭😱 that's what happens when the nasty Tape or band aid has to come off!!! So do you know the results of what the Doctors or Health Care Professionals were exactly looking for? You both have a good Rest of the week and a good weekend too😎
Talk to you both before you have your big day on June 15th. Take care and God bless you both. Trust me I know its a rocky road but you will prevail just keep thinking Positive Thoughts it makes a big difference even if you don't think it does, it really does 😉 Take Care, Amanda
Hi Amanda, always lovely to hear from you .. it jut so happens that I wrote Ryan a message on his channel yesterday (01.06.2021) also as I'd not heard from him for a while. I really enjoy his videos and can very much relate to them, so I'm looking forward to seeing more as and when he's up to it.
I've since found out that the reason for the MRI was for a baseline prior to my treatment on the 15th which, I can understand. I too usually have my eyes shut with the occasional peep lol. Take care, oh and the plaster REALLY did hurt lol 🥰🙏💕
I just needed to watch u 2 again. Sitting here smiling at u 2. At 5:57 with ur masks on looking slightly down at me like a nurse & Dr ready to casually operate 🙂. A thing I am learning, we all experience pain differently. The nerve endings on Neil's arms are probably sensitive in a different way than Theresa's arm.
This week I saw a Rheumatologist. She strongly encouraged me to see Neurologist & asked if I have ever been told I have neuritis. I said no. I right away thought of Neil's diagnosis of Optic Neuritis. This us the first Dr to say any words that kinda go with MS. I have an appointment with Neurologist in July. I been re-watching interviews from 4 yrs ago of American actress Selma Blair. My speech difficulties are similar to hers. My speech has gotten a lot better nit from any therapy, but from me slowing down & from people I talk to having them just accept me. BTWI continue to pray for both of you for both your health issues & day to day stuff.
Hi Shirley, glad you’re still enjoying the videos. I hope your July appointment comes round quickly and you make some progress with a long awaited diagnosis. Thank for your prayers, they are gratefully received. 💕🙏
Of coarse I’m subscribed. LOL! Silly
Well .. I'm so happy to hear this Mary !! Good job lol :)
i had to havie that years back, said sod that, i will come back for the other half lol, so i did lol. so chance of my sitting in it for 1.5 hours lol, and i had one with that poison they put in your veins. gadolinium. they usually do a scan to see how your MS is progessing and actually adjust meds to suit.
Hi there, yes indeed. I’ve now learned the scan was for the purpose of a baseline prior to going on my new meds. Hope your doing ok.
Maybe she kick my head in stuffing myself with cakes whilst I danger of insulin. Self harm. Diabetes can be reversed MS more difficult
Hi Susan, Teresa's diabetes is in fact (I'm pleased to say) very well controlled .. in fact it's so well controlled she's been discharged and is very close to reversing it herself I'm please to say. Sadly your right, it's not easy for us with MS but Teresa is trying really hard. I hope your keeping well.