MY FIRST RITUXIMAB INFUSION (Part 1 of 2) 15.06.2021: This is how the day unfolded.
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- čas přidán 19. 06. 2021
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▶︎ My VERY FIRST Symptoms - • Multiple Sclerosis - M...
▶︎ My MULTIPLE SCLEROSIS Diagnosis in 2013 - • Multiple Sclerosis - T...
▶︎ The VERDICT, MS or NMOSD - • The Letter | The Verdi...
▶︎ My SHOCKING Consultant Visit - • NEIL'S SHOCKING CONSUL...
▶︎ This is what happened to me after IV STEROIDS - • WHAT HAPPENS WHEN YOU ...
▶︎ BEFORE and AFTER IV Steroids - • CHRONIC ILLNESS DAY IN...
▶︎ Never thought I'd be WALKING like this again!! - • NEVER THOUGHT I’D BE W...
🤒 CURRENT SYMPTOMS 🤒
Numbness, Burning, Tingling, Humming, Buzzing, Squeezing, Skin Sensitivity, Altered Sensation, Balance problems, Chest Pain, Muscle Weakness, Stiff Lower Back, Stiff legs, Stiff knees, Blurred Vision, Anxiety, Depression
👣MOBILITY ISSUES👣
Muscle Weakness, Spasticity, Clonus, Abnormal Gait, Tremors, Walking difficulties, Falling.
😷DIAGNOSIS HISTORY😷
▶︎ Transverse Myelitis (2008)
▶︎ Multiple Sclerosis (2013)
▶︎ Optic Neuritis (2019)
▶︎ Neuromyelitis Optica (spectrum disorder) NMOSD (2019)
💊FREQUENT MEDICATION💊
▶︎ Methylprednisolone (IV)
▶︎ Prednisolone (oral)
▶︎ Azathioprine (oral)
💉PROCEDURES💉
▶︎ Multiple MRI Scans
▶︎ Evoked Potentials (2013)
▶︎ Lumbar Puncture - Spinal Tap (Feb 2019)
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-------------- Music Credits --------------
Attribution:
Link : • Pipe Choir (P C III) -...
Title : Pipe Choir (P C III) - Inscencer (1 hour)
Artist : Pipe Choir
Source : www.pipechoir.com
License: Creative Commons Attribution 4.0 International License
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Just keep pushing, if you have fears, just tell yourself that's a lie, I got this
Hi Teresa, love you
So nice to "meet" your brother. Nice to to see Teresa your lovely wife. I hope you had a good rest. I look forward to seeing the yard walks. Praying for all to be well.
Love you Neil and Teresa❤️You’re both in my thoughts and prayers❤️
Wow,your brother's a bit of alright isn't he. Well done Neil, you're so brave, I'd be a quivering wreck,those cannulas give me the heebie jeebies. Love ya both x
Glad you did not have any adverse affects of the treatment. Prayers that it's successful 👍👍👍
Glad your loved ones were there for you. Praying you have great rest.
Hang in there! Kev is awesome. I'm hoping you feel better now. Rest rest rest!! Hugs to you both!!!
Well done Neil getting through Part 1. It is frightening facing up to new treatments when you can’t be sure how your body will react. ......especially on your own. Glad Teresa and your brother were there to take you there and back . I hope you will begin to notice some benefit soon. I was ca
Wish you the best ❤hope you get relieved of your pain . Theresa looks lovely as always
Wishing this new treatment will give you some relief! Best of luck
I take a nap, helps the time go by faster
Thankyou for shareing your journey with us all, very informative what you both share, fingers crossed that this treatment works for you, watching and following from Brisbane, Queensland, Australia 🇦🇺❤
Thanks Elisabeth ♥️
Thanks for sharing, so nice to go on the journey with you both❤. I'm on Ocrevus, similar experience. I'm due for my sixth infusion in July. I'm happy with it. I hope you get help with the Rituximab!
You’re both so beautiful humans ♥️ thank u for sharing your stories 🙏
Thanks Patrick, we also spotted your comment about Startrek 😆 and it made us really smile. Not sure what CZcams has done with the comment now though, because we can no longer find it. That’s YT for you though. Best to you. 🙏
Trust God, i am also treated with same meds for Lupas.never rush it.Get rest.Bless you and family.
My prayers and thoughts are with you Neil. Sending my love to both you and Teresa
Aw I’m so glad it went as well as it did for you, it’s really good that you avoided any sort of reaction! I hope you managed to get a good rest and enjoyed your lovely curry. Tree is a superstar looking out for you ☺️ Your brother too!
Hopefully next time you’re at the hospital they’ll be able to sort something to help you be more comfortable. Good luck for the next one!
Hello lovelies. You both look wonderful. I’m so sorry you you are suffering Neil. 🥰
Keeping you in my prayers. Wishing you the best of luck on this new treatment. 💜
Hi Neil, thanks for sharing your story. It's great to see you smile and enjoy life as it comes. Can't wait for Part 2! Btw, you guys look super tanned, way to go! :)
You got this kiddo
I TOOK MY FIRST doasge of Ocrevus 300mg the first round and two weeks later they gave me another 300 mg, I noticed my throat was on fire literally the first dosage which was weird. thats alll. I lost some vision and have been like so tired like you are and I feel somewhat of your pain. ALthough I am in the early stages and have RRMS. I can understand the various different symtoms people have with MS vs. my symptoms. I feel like my first relapse, is compared to like Satin dragged my entire body through the depths of hell and back I just woke up one day with out proper vision in one eye. Before you know it they did an MRI and spinal tab and confirmed that I have multiple sclerosis. It was sudden since i am only 32 years old and never thought something so tramuatic could happen in my young adult life like this. I enjoy watching your videos and think that you and youre wife are cool. I hope you get to share more videos that way people like me with MS can follow you and support you. God Bless
Hello Mahmoud, thank you for your kind words, and I’m so pleased you enjoy our videos. I like your description of the burning nerve pain, being dragged through hell I would sounds close 🔥 I’m so terribly sorry to hear you’ve started with MS at such a young age. The most important thing I feel for you is to try and slow it down, Ocrevus I think is one of the best preventative drugs available so far to do this, so it’s good you’re on it. I’m hoping to continue making videos. Take care.
Amazing that you got you treatment, glad it went well.
What a handsome pair you and your brother are... sending all my love to you and Teresa ❤️ in my thoughts as always 😘😘
You just rest. And Teresa the law was spoken here this evening as I am preparing my Amazon order for a few clothing items! I will laugh at that the rest of my life 😂
Glad you had the treatment Neil, Hope it goes well, and you find some positive benefits from it. Take care and hope you're getting some rest. Grace :)
Hi guys 😊 lovely to see you both finger toes and anything else crossable that the rituximab works for you and you see an improvement !!
Thanks for the update oh and I hope you enjoyed that curry 😋😄 Take care 🙏🏻💙✨
So glad your 1st round is done & dusted.
Really enjoyed the video, however I did miss seeing you & Tree take out a mortgage to grab a cuppa & sandwich lol
Bless Tree for making you a yummy curry dinner!
Love to you both 💞💞
🤣 Yes we missed the Mortgage café today, but not to worry there will be another soon 🔜 I’m quite sure about that. Much love 💕
Hello Neil and Teresa!! So nice to see you 😊 I am praying for you that this treatment works 🙏 Watching you go through each step of your treatment brought me back to 2018 when I was diagnosed with cancer and had to go through chemo and radiation. It is a scary process because you don’t know what to expect and how it is going to affect you. That is great that you had no side effects! My heart was breaking for you doing this by yourself because of the pandemic 🙁 I’m sure you would of felt at ease with Teresa there, but you did it!!! It was very kind of your brother to help you out with transportation! He looks so much like you (a handsome bugger I must add) lol 😂! Looking forward to see your progression! I have a good feeling about this 💖 And Teresa, I wanted to tell you that your nails look beautiful 😍 The nail polish color blends really well with your rosey face 😊 I think I have chatted enough! Take care and love you both 😘🙏
Hi Kelly, yes it was a difficult day without Teresa as she’s always there for me, as I am for her. But as you know on this occasion it was out of our hands. I’m hoping you’re cancer is now in remission (apologies if you’ve already told me). ♥️
Neil, yes my cancer is in remission!!!🙏 Nice chatting with you 😊!!
🙏👍
Thank you for sharing. God bless.
It was fun seeing your bro for the first time, you guys look like twins lol.
I'm sure you were tired after this.... Don't forget the eat and nap enough because your body deserves it.
Hope next time it's gonna go just as smoothly.
Succes!
Hope your treatment goes well...👍
💖 to you both 💖
lol i thought for a minute that was Rod Stewart lol. hope it all makes a huge difference. x remember to rest afterwards.
Lovely to see you finally getting your treatment Neil! Shame you are too tall for the bed! Crazy! My nephew is 6ft 7ins ish...so he’d have no chance in that bed! Much love to you both and to your brother! 🌹🇵🇹🌹
🙏🙏🙏🤗 I pray for you 🙏 Greetings from Denmark 🤗
Why thank you, that’s very kind. 🙏
Good luck Neil, I hope you get some benefit from this treatment. I just stopped taking Copaxone after 14 years & have. An App with my Neurologist tomorrow. Hoping to avoid injectables😬 I also started taking Frampidine two weeks ago which is supposed to help walking 🤞
Take it easy & don’t overdo things 👍
Hi Gordon, I also took Copaxone for a couple of years but had to stop because of the injection site reactions. Huge red painful lumps, even though I rotated. You did well for 14 years. Interestingly Frampidine was mentioned to me yesterday during a conversation with a Dr, I’d be interested to know how you get on with it.
@@NeilBradleyMS morning , it was the injection sight reactions that made up my mind it was getting ridiculous 😬 I’ll keep you up to speed with the Frampidine progress. Initial thought was that I felt different & the benefits appear to be fluctuating I actually had a spell with an OMG moment when My walking felt quite good for about an hour ( not that I walked for an hour, that would have been something😳) 😬 but fingers crossed! All the best to you & the family for now 😎
Thanks Gordon, I know those “OMG” moments, usually for me after having IV steroids. Sadly they wear off quite quickly though. Ok, catch up soon.
Send you prayers
You should be fine, why aren't you on Ocrevus, it's tweaked, but derived from Ritixumab, I just completed my 3 years on Ocrevus, a miracle drug for many of us
Thanks Andrea. Because I’m no longer diagnosed with MS. I have a more severe condition (recently re-diagnosed) called NMOSD (Neuromyelitis Optica) and Ocrevus isn’t licensed for it but Rituximab is even though as you say they are practically the same drugs.
@@NeilBradleyMS Well I have friend on Ritixumab, she got some flushing the next day, but they didn't give her premeds. I pray it improves your health and you can enjoy the garden again and your super neat mobility chair, prayers 🙏 for you Neil, fight like a Warrior
Hi Neil every when u do infusion
Hello Neil and Teresa, See Neil I told you you would in good hands!! I just wondered when the Rexauma (I don't know the spell it right) But when it started to transfer into you did you get the same sensation that was in your tongue the warm feeling that you had before in the video, Did you have that same feeling once it stated into your body of feeling of your whole body being a Quite Warm Feeling?? Like how your tongue felt?? Just wondered if it felt different throughout you whole body??
I can tell you that from when I had my bone marrow Transplant in 2015 now six years Cancer Free ( I know I did mention Six Years to you before) But when I had my transplant I had to get what is called a "Port" Put into the top part of the right chest then I would a Nasty Pinch at my "Port" Which fell of a little while but I got so use to the pinching into my port it did start that I got Immune to the pinching (Which felt like Forever I did not get that port out of me untill
2014-2017) But any way when the Bone Marrow that was my blood match exact
To what bone marrow was I got it when I was receiving it the Head Nurse on the cancer floor had sit with me when she connected to my port I felt Nothing while I was receiving my new bone marrow but I don't remover the time frame I know it was not to long maybe an hour at the most the but I was in the hospital ftom April 2015 to transplant day which was on May 13th 2015 and did not get put of the hospital untill June 2015!! Because of my body rejecting the transplant but the great news so far so good!! But I felt Nothing unusual when I received my transplant I just wondered if it made you feel different?? When ever you get back to me it's fine I ❤🙏🙏❤ For you both Take ❤
Hi Amanda, the warm sensation only lasted a few minutes and I didn’t feel it any where else in my body. ♥️
@@NeilBradleyMS Well that's a good thing Keep thinking POSITIVE !!!! Take care ❤🙏 Amanda
Apologies Amanda, the phone must have changed your name to Andrea. 🙏💕
@@NeilBradleyMS Its ok Neil really I know it's fine I was laughing about it I just did not say anything I know you meant to say Amanda ☺❤🙏 There are alot of people you keep track of too!!