Awful Things Doctors and Therapists Actually Said to Stroke Survivors - OT Reacts
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- čas přidán 28. 06. 2024
- I asked the community, “What was the worst advice you got about stroke recovery from a healthcare professional?” and you all delivered. We’ll debunk myths that healthcare professionals perpetuate and blatantly wrong advice from therapists!
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Time Stamps:
00:00 Intro
00:07 Reactions
09:03 Outro
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Medical Disclaimer: All content on this channel is for general informational purposes only. It is not intended to serve as a substitute for medical advice or treatment from a physician or qualified healthcare provider. Talk to your doctor before starting a new exercise or therapy regimen.
3 years post stroke. Im crying hearing what stroke victims deal with.
I miss my old self, but grateful for little victories.This channel is so wonderful!!!!
hello i recently had a stroke 9 months ago im curious to know that is your hand and fingers completely returned back to normal like writing on a paper on tying shoe laces and buttoning shirts and jeans , plz tell
While hospitalized I had a doctor tell me that I'll never be able to use my left arm and hand again. I was crushed. That when I got discharged I cried practically everyday! After having my pity party I went to therapy! 1 yesr post stroke I've build-up strength and am able to do a lot of things i couldn't do on my own. I still have limited ability with my hand and fingers but I'm never going to give up! Everyday I notice little accomplishments and I'm grateful 🙏
If a therapist told me "This is your new life, you'll never get better than this" I would file a complaint with the hospital and attempt to get that person removed. I would also file a complaint with state certification authorities to have their license to practice removed. Speaking as a stroke and cancer survivor, I believe it to be a criminal act to kill the hopes of a patient by such actions!
@gregsettle9725 I hope that you're doing well now! Truly, hope is such a necessary component of recovery. Why would someone even try if there was no hope? I understand that a medical professional might not want to be overly optimistic and promise a "full" recovery to someone, but crushing all hope is not the way to go about it! ❤️
I've been told that
Since 2019 that is all I’ve been told this is all you will get in 2019 I had right occipital lobe stroke it legally blinded me I see through a whitish veil blind quadrants most everything is out of focus so sensitive to light I hide in a darkened room with all blurry causes motion sickness nausea headache from time I open my eyes until I close them no doctor has ever given me hope except the doctor who disabled me he said veil would heal that was 5 years ago I am doing synthonics light therapy it is helping very very slowly
Heard this so many times while recovering and rehabilitation
You know what, at this stage and time, you are more focused on getting better than thinking of how and how to report someone.
I was got unawares, didn't know what to do but to think my life was slipping out slowly
I think Stroke survival s need more help and advocates as their vonlunrabile state and conditions
I look forward to help in my little capability when I can in the near feature
Too many things and moments are missed when they are really at the right state and time to handle
God help us all 🙏 the ❤
I agree with you!!! I used to work in hospitals, ICU, and in my experience it's doctors who are most likely to make proclamations like that.😢 Shame on them.
I had a stroke just over a year ago, and I feel lucky every day, which I would never have felt before. Be kind to yourself and celebrate small gains. I smile to myself every time I tye my laces .😊
The most difficult thing I went through ...
The doctors all had something negative to say before l left the hospital. I will never forget the horrible experience.
They really have 0 empathy.
Thank you so very much for talking about this. It is so very sad.
❤❤
I experienced the same. They're so shameful
Yep my family was told to put me in a nursing home because I am going to be bedridden vegetable.
I'm going to be 13 years post strokes in December.
Bei mir war es das selbe. Ich wurde angerufen, dass es endlich ein Platz im Pflegeheim frei wäre und was für ein Glück das sei. Mein Schlaganfall ist jetzt 2,5 Jahre her, und ich bin halbseitig gelähmt. Ich gehe mit dem Stock, zwar sehr wackelig, und kann auch einige Meter frei gehen. Und ich will es schaffen, keinen Stock mehr zu brauchen. Die Hand ist noch nicht aktiv, aber ich glaube immer noch daran, dass alles gut wird.
I had a doctor tell me that I would never get better. I was hospitalized again and told him what he had said before. Thankfully he apologized. I appreciate your videos and all the positive things that you do and say to us Warriors/Survivors as we're on our journey. I am 3 years post stroke and my vision and balance has been affected i can't give up!
Luckily! No one ever told me such stupid things.
This is my 3rd year after a malignant brain tumour surgery which made my left side paralyzed & lost my balance completely ,Now I am recovering more faster than ever.
So don't think about any particular timeline of 6 months, 1Year etc.
Keep believing and continue your exercises.
Excellent advise, thanks!!! All love and hope to you!!
hello i recently had a stroke 9 months ago im curious to know that is your hand and fingers completely returned back to normal like writing on a paper on tying shoe laces and buttoning shirts and jeans , plz tell
@@arnavrajput8120Not completely, left hand & leg still doesn't have full control but it is gaining control slowly. I am able to tie shoe laces, button shirt and I don't write from left hand but control is improving.
@@manishnegi2454 thanks very much i also want to tie my own shoe laces , may you get cured fully soon
@@arnavrajput8120 Thanks and don't worry you will be fine. Just matter of time.
A lot of people I meet in my journey, get mixed signals. Glad for your inspirational advice.
@ryukoli4707 Strokes impact people so differently, so it makes sense that they'd get different advice. But it's never right to completely take away someone's hope. I'm glad you found the video helpful ❤️
My sis in-law right now is in rehab after 2 strokes on June 11. I know she has a long recovery and I visit her everyday giving her words of encouragement as does all family members. The staff are all kind & encourage her not to give up.
I watch your video's so I can learn & help her when she gets back home.
Thanks so much for these wonderful video's.
As a survivor it’s going to be hard.
S told 18 MONTHS!! But i had been left in bed, to REST, with my skull off, for much longer than that!! SO SAD!! Zthe physiatrist at the 3rd rhab i went to looked at me on my second day and said, its been over 18 months? You wont get any better!! GET comfortable in this body. SINCE he was in charge of dirrcting my therapyhere, i had to drive it mpre myself..asking for things i could do myself, in my room, to hrlp build strength. 8 YEARS later..i am still improving.
One of my overseeing doctors while at the rehab hospital shamed me for asking for help with lovenux injections from one of my family members when I was to be sent home. Those injections hurt and I didn't have good strength in one hand to steadily hold a needle or pinch the fat to inject it, I had only asked my mom to help me with it since she was the only one okay with doing it (and since I couldn't really physically do it myself at the time). He shamed me for asking for her help and said I shouldn't rely on others for help. He also mansplained on why the needles were important and what would happen if I didn't do them. I was barely 2 weeks out from my stroke and was left feeling ashamed and upset. Needless to say I left a nasty review on him after I was discharged, no stroke patient should feel ashamed to ask for help, especially during the first few weeks and months into recovery.
Thsts aweful..i gave myself lovenox shots. Good lord the TALKING DOWN TO STROKE PATIENTS, like we are 5..🤬
@christineblevins6051 oh yeah I was seething after he came in my room to talk to me, I learned later that this particular doctor has had multiple complaints on him in the past. I hated being talked down to like that, he explained how I needed the injections like I need food and oxygen, and said if I didn't do them I would die (I obviously already knew all of that). The audacity of some people never fails to surprise me.
Thank you for posting these videos ❤️
Doctor after doctor keep telling my boyfriend’s family that my boyfriend won’t get better because it’s been more than 6 months (we are at 8 months now) and I have to constantly fight to convince his family that no, progress is slow but never stops.
The docs reduced his therapy sessions to the bare minimum, and we can’t visit him for more than 20 minutes a day because he’s still stuck in a hospital and they still have strict COVID visitation rules.
It’s so exhausting 🥹
Your videos give me hope ❤
@MsJubee I'm so sorry to hear both about your boyfriend's stroke and the need for your constant advocacy on his behalf. He is lucky to have you!! Thank you for being his voice. Please try to take care of yourself during this time, too. Being a caregiver is one of the hardest jobs in the world ❤️
I am one year post stroke. Every stroke is different in different people. The results will be different for everyone, so I don’t believe the docs and therapist should put people in boxes and label them. Wrong! My fellow “strokes” put your father in God and ask him to walk you thru your recovery. He will give you the answers you need and you will go on to help others.❤
❤i am 2yrs post stroke
I am trying my best to. Do better
I experienced so much frustration! I had to turn it off! Back to standing up, leaning on the table!
Love this format. Please do more videos like this. It helps to know that you are not alone when being treated so poorly by medical "professionals". Have hemiparesis of right arm and leg. Dr said I could go to physical therapy but I would have to drive there. Then put in the notes that I declined PT. Don't plan on ever seeing this Dr or his ilk ever again. Getting better ever day.
As an advocate for a dear friend who suffered a massive stroke about 6 months ago, I find your posts very helpful. She has right side paralysis and aphasia, which are very frustrating to her, and she cries when she can't communicate clearly. It's hard to deal with the insurance/benefits providers to get her therapy and a good placement near her son, and to try to help my friend stay positive. Your videos give me positive things to tell her. Thanks very much.
My California therapist said, Your stroke is over, you have the scars left behind. You have to learn to adapt😮but how🤷🏽♀️ well I relocated back to Vegas and have a new medical team❤ tfs
@Mooregirl I'm glad you were able to make the moves you needed to take care of yourself! I hope your new medical team is fantastic! ❤️
nor cal med care esp stroke sucks
The biggest problem the time it takes to get disability to be able to go back into therapy. I rember telling my therapy center I would work with an occupational therapist again after she told me I over thought an assignment she gave me
Create small wins for your day and accomplish those wins and take them as they go. Even just standing holding a win
3 to 6 months was what I was told but I was determined to keep going after stroke and not worry about time. 8 years in still making progress.
After my stroke in December 2022 the OTs weren't pleased that my top goal for my upper limb was to plait my waist length hair again. To be fair, they did keep it on the list but made me put more boring (from my point of view) and more achievable (from their point of view) goals such as using my affected hand to anchor objects higher up the list.
Guess who can plait her hair now?
I'm glad you mentioned that you can get back your lost functions. I have been diagnosed with MSA-C which has a lot of common points with a stroke. I keep pushing. My bleed happened back in 1994.
My Occupational therapy told me it was all in my head
@charlottebradley9658 Ugh 😑 I'm so sorry.
Not cool.
I would have laughed and told the therapist……”you are right…..it’s all in my HEAD.,,,,,what’s YOUR excuse!!!!
I just sat there and cried I have been treated so bad since my stroke by family members and by healthcare workers. I had a healthcare worker tell me that it was my own fault that I had the stroke that I should’ve taken better care of myself.
@@charlottebradley9658 🤗💔❤I am so sorry!! 💝
I was sent away mute with all my appointments and medication canceled 😢 The therapist did hand movements (mocking ASL) and said do you understand that. Nothing was done and one believed me, when I finally could communicate again.
I laughed at the "Why would you want to do that?" for the pants while standing up. I'm 2 years out from my hemorrhagic stroke and still can't do that. Pre-stroke, I would always put my pants on standing up.
@cg167 Right!? Some healthcare professionals just blow my mind. In my personal opinion, they might be great in their niche but if they don't understand how to talk to people or have empathy for their situation, they've lost half the battle.
Thanks a lot for such a positive video. My mom is a stroke survivor and I am always finding ways to help her and to encourage her to feel better.
Great presentation!!
One needs to advocate for themselves. (Period)
I’m grateful for your videos! It’s been three years since I had two strokes in one day. My strokes affected my right side. I was able to walk shortly after. I couldn’t talk but now I’m talking well. I’m always working on my speech. My problem is that I’ve lost movement in my right arm. It was just hanging down. My arm started to move about a month and a half after my stroke. My problem is I’ll couldn’t feel anything in my right arm. Especially my right hand. And I’m a righty. I can grip but I have to see what I’m grabbing because I have no feeling in my right hand. My coordination is a bit off as well. It took at least six months to be able to feel hot and cold. Now I feel hot and cold easily, thank God. I’m pretty lucky I’m alive in the first place. By just looking at me nobody can tell that I had a stroke. Just like a lot of people, the doctors cant tell me if I’ll ever get the feeling back in my right hand. I stopped going to therapy about 10 months ago. They told me they can’t help with the feeling it’s all in my brain. My question to you is, did you ever hear about someone getting feeling back after a couple of years, well in my case after three years? Also at times my hand is killing me. They say it’s neuropathy. But Gabapentin Is not helping. My thinking is at least I’m feeling something rather than feeling nothing at all. I would really appreciate any knowledge that you can pass on to me. Thank you so much, God bless you! ✌💙
I hope you fully recover. You are a hero, even though it might not seem that way. It inspires me to keep going.
@@RosaBrandDesigns thank you so much! I’m glad that my story inspires you! I’m never going to give up, just like you! I don’t know why these doctors don’t do many studies about strokes. And what can help you after you have a stroke. There’s not many options at all to help after you have a stroke besides therapy. It took me a long time to except the fact that I had a stroke and I might not ever be the same. Faith and determination keeps me going. I’m sure you feel the same way! ✌❤🙏
True words ma’am..kudos to your inspirational honesty hope..your videos helped me a lot..my mom has become super mom after stroke..what we give her everyday is big hope and hug..thank you ❤
When I had mine last year (‘23), they told me “after a year you should have everything back”. LIES! I’m just over a year and still not 100%.
I am able to walk, but have not gained mobility of my arm. I can't sleep due to muscle spasms and constant pain. Yet I keep pushing myself to do excercise and not quit. I am blessed to be alive still.
I've had a stroke since last year and I have been able to walk in just a week and I have been working on my fingers ever since I had no improvement
My fingers just started moving and I am 2.5 years post-stroke. My fingers and toes are the last parts of my body to see improvement. Never give up! It takes patience but it WILL happen if you are persistent.
My fingers have taken waaaay longer than my leg to start recovering, my therapist says that is not unexpected. What nobody expected was the Pilates I started to help with balancing and walking seems to have worked the best on my arm! My brain seems to have gone "you can't do this move normally but lying down with a resistance band is completely different" Odd but gratifying.
I told a therapist I wanted to work on my arm. She said she can make a recommendation to cut it off
I got Covid whilst in hospital following my stroke.......as did the physios and some of the nurses/staff. So, physiotherapy stopped for a while and, I was quarantined in a seperate room with a big red spot on the door under which the notice ' Covid restricted access' was written. Therefore, for even my basic needs food, water, toilet etc staff had to don full PPE. Obviously most of them were reluctant to so, consequently I got ignored for most of the day. Even to the point my requests for water were delayed. The irony being I had a sink/tap less than 2meteres from my bed which I was too paralized/spastified to reach. Anyway survived the stroke and Covid and after many weeks (12) I was deemed well enough to go home. Unforetunately again, due to Covid, my therapy/re-hab was practically non-existant. On a lighter note after the lockdowns/restrictions whatever ended, my first visit to my original neurologist/prognosis specialist. His words upon my entrance to his office were 'Wow! I'm surprised to see you walking so soon', (albeit with a cane). 3 yrs down the line, can walk somewhat ungainly, unaided however, I suffer dreadfully from chronic pain and unbearable fatigue so my jaunts tend not to be far/prolonged.
I am 6.5 yrs post brain bleed stroke and I still get recovery as long as I keep up daily PT, OT, and cognitive therapy on my own at home
I had a stroke and a seizure, I don't remember what went on the first 3 weeks in the hospital.
I got into a rehabilitation center and I worked very hard. I my arm was contracted I grabbed my hand pulled it off my chest and started spreading the fingers and massaging my arm and hand and I started spreading my fingers apart and then I will push my hand under my leg when I was in the wheelchair and I would work out I worked on that myself while the therapist was working on my legs and getting me moving again from what I understand I was there for 2 months and I did excellently
I got my hand so I could feed myself but dress myself and I did very well and I came home and then went to a nursing facility which they gave me rehab not as good as the first place but okay. A year later I walked I had myself walking short distance without holding on to anything. If you work hard and you get stubborn you can always do whatever needs done with help.
Most therapist and Drs don't know Shit all they care about is getting as many patients in and out as they can it's like church put your money in the pot and don't ask any questions, whatever you believe is what it's going to be so believe the best , you and you alone hold the power
The worst advice my stroke doctor said was that he wanted me to receive the covid-19 vaccine while I was still recovering from my stroke in the hospital back in 2022. His only reasoning was that I was putting everyone else at risk in my hospital room. They gave me a covid-19 rapid test the night I arrived at the hospital. The test came back negative and I was in the hospital for just over a week. My stroke doctor had no idea as to why my stroke happened but he wanted me to get the covid-19 vaccine, which I didn't get. Also the hospital wouldn't allow another stroke patient's wife in to see him because she was not complying with the mask mandate. She was medically exempted from wearing the masks that hospitals use because she had cancer. She did have a full face mask
More of these please, and thank you.
Give yourself time and create daily routines wash, rinse and repeat. I say keep going going going going going. Keep up our routine and stay on it everyday. Whether you're tired or not keep going eventually does get better. Take me three and a half almost 4 years now and I've every year. I see major improvements every year
Doctor I've told me that because of my weight want to be able to walk perfectly butts to my understanding I'm doing much better without a therapy help
excellent explanations as always
This video was very helpful. I used to think I wasn't given all the resources I needed, including encouragement. Now I realize I received great care and advice! I couldn't have gotten this far if I hadn't received the attention I got! Holy moly some bad advice were given!
@dominiclavu193 Sometimes we don't know how we have or had it! I'm glad you received great care and advice. For every bad therapist or doctor, there is an amazing one who provides excellent care!
One doc told me I was go have another one n it's nothing they can do but the others said I was make a full recovery.i end up firing them all
@knowledgeberakah1728 The truth usually lies somewhere in the middle. It's fine line to balance between providing no hope at all to providing overly optimistic views. I hope that you've still been able to make progress in your journey! ❤️
@@PostStrokeOrg I know the real reason why I had a stroke.I learned from it so it won't happen again.Its been 3 years so my next move is travel.I was nervous til I found out the guildline is 3 mos.Its been 3 years n people keep telling me I'll be ok
THANK YOU FOR THIS!!
i had a brain hemmorahge in 1999 and lost the ability to eat.In 2001 I was told Ud NEVER eat or drink again, Our creator ;proved them wrong, b y 2014 i started EATING/ DRINKINg again. So I laugh when I hear the word NEVER
I asked my doctor how long I would have to be on lisinopril, amlodipine, atorvastatin, metoprolol, and bayer aspirin, and he just bluntly said "FOREVER" without any talk about diet! That was unbelievable to me, so needless to say I will be changing from Kaiser to Bluecross/Blueshield in November!
@hakkimb8913 There are reasons why someone needs to stay on medications for a while (hopefully not always for life), but they should DEFINITELY be talking about lifestyle factors that can help stay healthy and perhaps cut down on your meds!!
@PostStrokeOrg Exactly! That's all I'm saying, no discussion at all about lifestyle factors to eventually get off meds. I'm 54, not 85! Thank you for your comment
Thank you for your encouragement.
@DeanBartley Of course ❤️
I love your positivity
Thank you DR !!!!!!!!
@Xofi7 Of course! ❤️
how about a video for people whove had a mild stroke?
What topics would you like to be covered for someone who had a mild stroke?
Love the new video
@joshporter8286 Thanks so much for your feedback!
Hi i too have gotleft side paralyzed in 2015 since I am alone n homeless i couldn't get proper treatment i have improved walking but no improvement in my hand n frankly speaking it's my fault i dint do any excercise of my hand it's been 8 years n now when I am doing m some hand n fingers stretching I feel the pain in my hand and head also is this normal when i got the stroke I was in such a bad condition that even the doctor told y is he alive it was better dead than to be in this condition but by god's grace today I am walking now working on my hand that it starts functioning
Not with than attitude told my physical therapist id right a bike along again she laughed conveyed that i would not ride now though
Thank you!
“Welcome to the new you!” Is what I was told! My stroke was February of 2024
Same here... hopefully your recovery is going well
@TLR5759 How have you been doing?? ❤️
@@PostStrokeOrg czcams.com/users/shortsak7fr-IM9As?si=9d_h-oy2_n6t3o3J
Can you address a right occipital lobe stroke that horribly effected my vision I’m 5 years post stroke no doctor has given me hope to see clearly again
@geniegarcia6740 I'm so sorry to hear about your stroke and the vision issues you're still experiencing. So recovery of vision depends on a lot of factors. If it's due to eye muscle weakness, there are exercises that you can do to help strengthen them. If the vision issues are due to visual field cuts, that may or may not repair on its own. Sometimes people need to use prism glasses or use other techniques to help them compensate for their vision. If you have the ability to see a neuro ophthalmologist, I'd highly recommend it! They're specialists in this field of treating vision issues after a neurological injury or disease process.
I lost part of my vision and went to see an eye doctor who specialized in stroke cases. She told me: "I hope you have good insurance, your going to need it!". I never returned to her.
Ugh! I’m so sorry!
My doctor told me I would have another stroke. I was also told that I would get my vision back and I did not.
How long post stroke are you?
I’m so sorry. That’s just as tough when you get hopeful advice (that you’d get your vision back) and then it doesn’t happen. ❤️
hello i recently had a stroke 9 months ago im curious to know that iwill yomy hand and fingers completely returned back to normal like writing on a paper on tying shoe laces and buttoning shirts and jeans , plz tell , i want to pursue medical college
Was told i was depressed and needed a shr8nk......
Thanks!
Thank you SO much for your contribution to Post Stroke ❤️😊
Thanks
Thank you for the good video.
@ronaldpuruleski4659 So welcome ❤️
💖
Yeah, those are the kinds of things they told my dad 🙄
@Pure_KodiakWILD_Power That's so frustrating. I'm so sorry ❤️😞
F the hospital stafff
F the hospital staff just doing thrower job. Had an audience fotcevetyvboeel movement..... Firc28vdays.
Thispt saw just told me it is what it is because its been a yer already but i can see improvement evryday
@user-dm6bu7nb8u I'm sorry you experienced this. Like I mention in the video, progress will likely slow down at this point, but it doesn't mean that it will stop! Keep going ❤️
You made a huge difference
@Xofi7 Thank you so much for the kind words 😊
Worst for mexeas being talked down to byvnurses and hopsitsl staff. As if I was s 3 year criminal
My it told me if I hadn’t gotten my hand back by now it’s not coming back she was right it’s been 6 years 😢😢😢😢😢
@melissahilliard2438 I'm so sorry. There are great doctors and therapists out there who treat their patients incredibly well. Even though this was probably so hard to hear and realize ❤️🩹
Mine said it would❤ take time. EACH PERSON IS DIFFERENT.❤❤❤
@@PostStrokeOrg yes I would like to keep trying it’s got to be some help out there for all stroke survivors my balance is still off with drop foot it’s terrible 😞 I’m still young
have u been doing relentless exercise stretching on it?
Keep trying!
Be patient and h t ret snd make small winswnr go
It takes a year ime amd nelief in yourself 😅😅😅😅
I was told my quadrantonopia will never improve, learn how to deal with it
had pt say well u could b doing all this work for nothing and well my other stroke guy, he's already better. and u better hurry up ...running out of time. then neurologist 4 mo after stroke how good you think you're gonna get good thing im stubborn
Greatvideoiihigyagrree three years forestill. Seeingimpprovements
Thanks!
@sheilaa6628 Thank you SO much for your contribution to Post Stroke ❤️❤️
Thanks
Thank you SO much for your contribution to Post Stroke! ❤️
Thanks!
Thank you SO much for your contribution to Post Stroke ❤️❤️
Thanks!
Thank you SO much for your contribution to Post Stroke ❤️❤️