As someone diagnosed with PPPD, vestibular migraine and meniere's disease this video is amazing. a lot of doctors still dont understand what i'm talking about when i mention this disabling condition. it's horrible. good luck to anyone who is suffering it right now.
A very clear and concise presentation that I appreciated as I suffer from PPPD! Would like to leave further comments but seem to be unable. How or where may I leave further comments please
I have PPPD du to vestibular migranes . It started 5 years ago I believe when I entered menopause. I’ve had all the classic symptoms of vestibular migranes with the PPPD. It’s gotten much better since it first started but I still have the PPPD attacks in combination with anxiety in certain situation and spaces . It’s an awful invisible desease . Sadly the government doesn’t approve or recognize it as such resulting in one not being able to stop working and collecting disability benefits . I struggle daily to maintain a normal life having to still work and maintain a household . Sometimes I just feel like ending it all
@@feelz114 I’m still experiencing it in certain spaces and situations . It never leaves u 100%. I mostly get dizzy right before going to the bathroom and in large spaces like an airport or a mall . I don’t go to malls anymore or large shops . My errands are usually quick and food shopping is my biggest shopping event which I mentally prepare myself for . U learn to live with it and it’s almost become my new normal.
Lana can you please advice me. I have had vestibular neuritis in a chaotic time (almost missed out on graduating my master because of the extreme dizzyness) but after that the symptoms lingered on and my ENT says it's now pppd. I try do to most activities but I'm still unable to work. I get overwhelmed by social interaction, busy places like a meeting for example. Sometimes PEM, some sort of delayed intense fatigue reaction, after having been in a busy environment. Do you have that too? I just don't know how to deal with it.
In addition to my earlier inquiry about what might initiate PppD, I noticed that after a particularly emotional relational situation that caused daily deep anguish my triple PppD symptoms first manifested.
Is there any evidence of Triple PD being initiated or exacerbated by specific trauma in one’s life? Is there a spiritual component , mindfulness “derailment” that reveals triple PD
Hi, for 10 years I have had mild swaying and light headed, feel wobbly in head, but not falling over etc. my, eyes don't move, not bppv. 2 months ago I had a true dizzy spinning room attack, room was spinning any time i laid down to one side. since that day and it stopped happening I have been left with severe light headed, spaced out feeling, wobbly feeling but not falling over, and not losing balance, but feel like I am about to all the time. I had mri and nothing that needs attention, I had full scan of inner ear area, artery etc but all ok. I have been diagnosed with PPPD and been told to take vestibular rehab, but wen I go there (once so far) the one I seen doesn't seem to know about pppd - but still I will do rehab, my issue is I get noise in one ear, more when i lay down, eyes are tense, feel like all head inside is moving, spaced out so much, pressure in ears and head - feel so disconnected from the world. My eyes are going bloodshot - and hear humming in ear on and off, doesn't seem to be in line with heart beat, but when wake up I have a beating in ear that is. Feel like a spasm deep in ear. It's so hard life at the moment, swaying, dizzy feeling - it's like a feeling of 24/7 about to go in to a spinning dizzy moment, everything around me is swaying left to right and the same time feeling/hearing stuff going on in my left ear although clear on MRI. May I ask your view on all of this please and anyone else here? I had this for many years but now it's hit me like never before. Thanks
Hi, it sounds like continuing your rehab exercises with vestibular physiotherapy, possiblt with cognitive behavioural therapy will need to be your main modes of treatment, but it is concerning that it seems to be getting worse! Do you stay in Cape Town?
Please help me because I’m experiencing the same thing 😣 I’m currently in the hospital now and I am having all the symptoms I’ve had the worst anxiety attack and they’re saying that I have PTSD because all my MRI my ear test and everything I’ve come back perfectly fine. I am just scared because nobody seems to know what PPPD is and I don’t know if it’s PTSD but it’s just crippling 😩 I’m using voice memo to even talk on here because looking at my phone is a trigger
This chronic dizziness came out of the blue one in 2019 and it went away some what but I had it every now and then. I got it again about 5 months ago when my anxiety got really bad due to family issues and my car breaking down. I am now worried that I have vestibular migraines as I have some symptoms but not all. I am constantly dizzy with balance issues at times especially in the dark, I feel like I am sinking and swaying when I sit or lay down. I cant lay down flat or i get dizzy. Its always worse when my anxiety is bad. My tinnitus has also gotten worse. Why does this hit us out of the blue? Does this sound like vestibular migraine or PPPD. I always thought I might have PPPD but have been reading about vestibular migraines. I am really worried now. Who is the best specialist to go and see about getting a proper diagnosis. THanks
This sounds like me. I have PPPD. It's an issue with the nervous system which is why anxiety makes it worse. Check out Joey Remenyi's Rock Steady! Amazing help.
Neck can be the issue for all this things I also face the same problems but the neck exercise Helped me ..try doing chin tucks it's very beneficial also find Swami nityanandam cervical exercise those exercises are also good .
@@Maestro-le8gh to be diagnosed with PPPD it needs to have lasted for more than 3 months and be present at least 50% of the time, so yes it can come and go
I have had PPPD for 3 years which started with my first panic attack ever and some very bad insomnia. I am scared to take Lexapro (ssri) which was recommended to me by a Neurotologist. I’m scared of the side effects especially sexual side effects.
@@Chilos49 supposedly Lexapro is the most selective of the SSRI’s for serotonin targeting so it’s suppose to be the best tolerated and least side effects. Have you considered trying it? You can take a very small dose. Did you experience side effects on the Effexor and if yes which effects did you get.
@@AJ88874 I agree whith you. In my personal experience with meds, I realized that as the dose incresed, the dizziness got worse. In the withdrawal of medicine too. Anyway, let's beat this damn pppd. It destroyed my life :/
As someone diagnosed with PPPD, vestibular migraine and meniere's disease this video is amazing. a lot of doctors still dont understand what i'm talking about when i mention this disabling condition. it's horrible. good luck to anyone who is suffering it right now.
Someone else with the same conditions as me. I feel for you ❤
Me too
After a number of incoclusive medical tests I finally know what's wrong with me. Thank you so much.
This is the best explanation of my symptoms that I’ve found.
Fantastic Presentation
A very clear and concise presentation that I appreciated as I suffer from PPPD! Would like to leave further comments but seem to be unable. How or where may I leave further comments please
Excellent presentation
Thank you, very thorough and informative.
Awesome stuff
This is Amazing. I have PPPD for a year. It vicious, Brain fog is real. My problem is Anxiety. This video will help many people.
I have PPPD du to vestibular migranes . It started 5 years ago I believe when I entered menopause. I’ve had all the classic symptoms of vestibular migranes with the PPPD. It’s gotten much better since it first started but I still have the PPPD attacks in combination with anxiety in certain situation and spaces . It’s an awful invisible desease . Sadly the government doesn’t approve or recognize it as such resulting in one not being able to stop working and collecting disability benefits . I struggle daily to maintain a normal life having to still work and maintain a household . Sometimes I just feel like ending it all
Stop watching videos like this go out and play some golf doesn't matter if you fall when you're golfing it'll fix you up golf will fix everything
Hello how are u now I'm experiencing this awful thing pls help
@@feelz114 I’m still experiencing it in certain spaces and situations . It never leaves u 100%. I mostly get dizzy right before going to the bathroom and in large spaces like an airport or a mall . I don’t go to malls anymore or large shops . My errands are usually quick and food shopping is my biggest shopping event which I mentally prepare myself for . U learn to live with it and it’s almost become my new normal.
@@lanagacinovic7622 I can't learn to live with extreme vertigo I need help
Lana can you please advice me. I have had vestibular neuritis in a chaotic time (almost missed out on graduating my master because of the extreme dizzyness) but after that the symptoms lingered on and my ENT says it's now pppd. I try do to most activities but I'm still unable to work. I get overwhelmed by social interaction, busy places like a meeting for example. Sometimes PEM, some sort of delayed intense fatigue reaction, after having been in a busy environment. Do you have that too? I just don't know how to deal with it.
In addition to my earlier inquiry about what might initiate PppD, I noticed that after a particularly emotional relational situation that caused daily deep anguish my triple PppD symptoms first manifested.
Is there any evidence of Triple PD being initiated or exacerbated by specific trauma in one’s life? Is there a spiritual component , mindfulness “derailment” that reveals triple PD
I read a google patent from a Russian doctor suggesting the use of Buspirone for PPPD. Can this have promise?
Will a patient with PPPD have to be on SSRI for the rest of their lives?
Hi, for 10 years I have had mild swaying and light headed, feel wobbly in head, but not falling over etc. my, eyes don't move, not bppv. 2 months ago I had a true dizzy spinning room attack, room was spinning any time i laid down to one side. since that day and it stopped happening I have been left with severe light headed, spaced out feeling, wobbly feeling but not falling over, and not losing balance, but feel like I am about to all the time. I had mri and nothing that needs attention, I had full scan of inner ear area, artery etc but all ok. I have been diagnosed with PPPD and been told to take vestibular rehab, but wen I go there (once so far) the one I seen doesn't seem to know about pppd - but still I will do rehab, my issue is I get noise in one ear, more when i lay down, eyes are tense, feel like all head inside is moving, spaced out so much, pressure in ears and head - feel so disconnected from the world. My eyes are going bloodshot - and hear humming in ear on and off, doesn't seem to be in line with heart beat, but when wake up I have a beating in ear that is. Feel like a spasm deep in ear. It's so hard life at the moment, swaying, dizzy feeling - it's like a feeling of 24/7 about to go in to a spinning dizzy moment, everything around me is swaying left to right and the same time feeling/hearing stuff going on in my left ear although clear on MRI.
May I ask your view on all of this please and anyone else here? I had this for many years but now it's hit me like never before.
Thanks
Hi, it sounds like continuing your rehab exercises with vestibular physiotherapy, possiblt with cognitive behavioural therapy will need to be your main modes of treatment, but it is concerning that it seems to be getting worse! Do you stay in Cape Town?
@@uct-africavirtualent6653 Hi, thanks for reply. I live in the UK - just so strange that such dizziness exists, swaying, wavy visuals :(
Please help me because I’m experiencing the same thing 😣 I’m currently in the hospital now and I am having all the symptoms I’ve had the worst anxiety attack and they’re saying that I have PTSD because all my MRI my ear test and everything I’ve come back perfectly fine. I am just scared because nobody seems to know what PPPD is and I don’t know if it’s PTSD but it’s just crippling 😩 I’m using voice memo to even talk on here because looking at my phone is a trigger
@@JackieDelight1800 sorry to hear that ,don’t be scared ,you’re not alone
@@JackieDelight1800 how are you doing now? I'm the same
Is amitriptyline good for treatment?
This chronic dizziness came out of the blue one in 2019 and it went away some what but I had it every now and then. I got it again about 5 months ago when my anxiety got really bad due to family issues and my car breaking down. I am now worried that I have vestibular migraines as I have some symptoms but not all. I am constantly dizzy with balance issues at times especially in the dark, I feel like I am sinking and swaying when I sit or lay down. I cant lay down flat or i get dizzy. Its always worse when my anxiety is bad. My tinnitus has also gotten worse. Why does this hit us out of the blue? Does this sound like vestibular migraine or PPPD. I always thought I might have PPPD but have been reading about vestibular migraines. I am really worried now. Who is the best specialist to go and see about getting a proper diagnosis. THanks
This sounds like me. I have PPPD. It's an issue with the nervous system which is why anxiety makes it worse. Check out Joey Remenyi's Rock Steady! Amazing help.
How are you now? What you describe is exactly me! I got after a panic attack
Neck can be the issue for all this things I also face the same problems but the neck exercise Helped me ..try doing chin tucks it's very beneficial also find Swami nityanandam cervical exercise those exercises are also good .
@@Megan_Jennifer But can PPPD come and go? My dizziness comes and is persistent for couple of days, then it stops but comes back after a week or two.
@@Maestro-le8gh to be diagnosed with PPPD it needs to have lasted for more than 3 months and be present at least 50% of the time, so yes it can come and go
I always get dizzy after going for a walk. Is The PPPD Or The Vestibular Migraine?
same, did u find out what it is
Bugger, no answer. Mine gets much worse after walking as well.
What type of doctor is qualified to diagnose the pppd vestibular disorder?
I have had PPPD for 3 years which started with my first panic attack ever and some very bad insomnia. I am scared to take Lexapro (ssri) which was recommended to me by a Neurotologist. I’m scared of the side effects especially sexual side effects.
@@Chilos49 supposedly Lexapro is the most selective of the SSRI’s for serotonin targeting so it’s suppose to be the best tolerated and least side effects. Have you considered trying it? You can take a very small dose. Did you experience side effects on the Effexor and if yes which effects did you get.
@@Chilos49 yep Panic Attack and or Insomnia. I actually started feeling dizzy after the insomnia.
My PPPD started in the middle of treatment for panic disorder and lasts until today. medicines only made the situation worse.
@@felipebellucci5205 i don’t think it was the medicine it was probably the panic. I never took medicine and it started when I had panic and insomnia.
@@AJ88874 I agree whith you.
In my personal experience with meds, I realized that as the dose incresed, the dizziness got worse.
In the withdrawal of medicine too.
Anyway, let's beat this damn pppd. It destroyed my life :/