What is PPPD: How to Recover and Feel Normal Again
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- čas přidán 22. 12. 2020
- What is PPPD? In this video I describe not only what PPPD is and how it feels but I also explain what you need to do to recover to a sense of feeling normal again. Healing is possible using a process called Neuroplasticity but you need to understand whats going on in your body, identifying how you feel and knowing where you stand in terms of where you want to be. If you don't know what you're feeling and why, how can you move towards healing and feeling better.
For 121 coaching to help you heal from chronic dizziness such as PPPD, please email me at info@balanceyourlifenow.co.uk
Insta: @balanceyourlifenow
Disclaimer: The information in this video is not intended to replace the advice given by your Doctors and Health Professionals. If you are experiencing dizziness of any kind, please consult with your Doctor in the first instance. Please only consider the information provided once you have gained medical clearance.
For 121 Coaching please email info@balanceyourlifenow.co.uk
Mine started with severe vertigo after my honeymoon in Tahiti late 2000 and into 2001. Neuro testing said "migraine induced vestibular disequilibrium." Since then up-and-down symptoms over the years. Regular headaches, balance issues, foggy head, neck stiffness, clumsiness, etc. and always fatigue from concentrating. Diagnosis December 2023 after a year of overwhelming tests and doctor's appointments. Looking forward to a recovery process. I feel a tremendous sadness for so many years fighting it and not feeling like myself. My standard mantra over all these years as I felt not well was, "suit up, show up, shut up and get the job done," as I pushed forward each day.
I had PPPD for 14 years and just found out yesterday what it is thanks to people like you! I’m now 38 so I lost the best years of my life to living 5-10% of what it could be. My husband doesn’t even know the true me, because we met after I was already suffering. I hope to recover, not only for myself, but especially for my husband and children
How are you doing?
Does anyone notice it get worse when you talk with someone in a busier environment, like a restaurant?
Yes
Absolutely
Yes I feel good outside but once I go in a building or my house it gets really bad
@@andymccloskey8039 same here
Yes. Me too.
I’ve had terrible PPPD since 2011, stay strong guys, you can still live an outstanding life!
The worst feels , is feeling like you going to faint 🙄
Since 2011? How come so long hasn't physical therapy helped put you into remission?
i have this for a decade too before realized ohh its not just me lacking enough sleep T T stay strong too
2014 for me. How did u get better I still battle it
Mine began in 1982
Thank you. You're amazing. This was the information I was looking for. Tomorrow I'll start the excersises.
Omg it had started when I got hit in the head last year in these past months it has gotten worse with numbness tingling and weakness. And i also have a chronic condition cerebral palsy. After that incident happened I was very anxious. Thank you for helping me realize where this had steamed from so I can tell my doctor
Finally someone that understands!! You've given me hope to getting my life back!
Thankyou for posting this video. I’ve suffered with migraines for many years and vestibular migraines for the past 2 years. I’ve today been diagnosed with PPPD, so this video is very informative and it’s good to know that their is a normal life at the end of all of this! Thanks again 😊
I am so glad you are feeling better. I unfortunately have mal de debarquement syndrome for over five years now. I, too, have a channel trying to process my work and home life with the swaying and bobbing 24/7. Wishing everyone stillness and living on the fly . . .
Thank you! I needed this encouragement...
I just got diagnosed from a balance clinic, I was referred by a neurologist for advanced testing, I have dysfunction in my right inner ear near the utricle. However PPPD is really what they believe I have but it has t quite been 3 months or more. I did get medical clearance for a lot of stuff. Try your best guys to have a doctor refer you to advance testing for those who are not sure.
Wow nearly halfway through this and the symptoms are 100% bang on.
Thank you so much for this video! Everything you said is spot on. It gives me so much confidence to know that I will get better from this.
Thanks Matthew, you absolutely can get better from this! Good luck on your journey ❤
Thank you....definitely need hope
Thanks for making this reassuring video. I first experienced it in 2015 and it went away after a few months or at least to a point were it wasn't bothering me anymore but in March of this year i experienced a really traumatic event which triggered it once again and it's been persistent ever since but i'm hopeful it will go away again in time as it did before!
You've healed once before you can do it again! Don't let any doubt take over, you can do this! Trust your body and be kind to yourself 🙏🏼❤️
@@balanceyourlifenow1651 Thank you❤
Hi Emma, thanks for doing these videos, I had PPPD after Covid, seems like a lot of people have! Been recovering through Neuroplasticity and parasympathetic breathing, mediation, keep up the good work x
Hi mate! I've been having weird Dizziness after COVID too - where have you heard that others have? 😮
Young lady I really enjoyed your video this is my 2nd year now can’t get my self together I’ve been cleared at the Hostpital mri cat scan nothing found offset balance moving walking don’t know what’s going on you made me feel a lot better knowing it can work out thanks for the information sounds good to me bless your ❤️ x
Sending love, glad I could help in some way
This is such a lonely decease because nobody around you understand how you feel sometimes I just cry and cry because I feel I will never be myself again ... but coming here and reading gives me hope
I felt exactly the same. I was so incredibly lonely at times, I'm so sorry that you feel like that. I promise you it can and will get better 🙏
@@balanceyourlifenow1651 Thank you so much
I'm finding my medical professionals and the supposed vestibular therapist I tried have no idea. Turns out the VT is really just a physical therapist who took seminars on BPPV only. I keep pushing and am now asking if it could be PPPD. Lonely, yes, but also a battle to get closer to a full understanding.
I’m medically healthy. Mine started all from anxiety and stress 6yrs ago
Well this explains the problem I've had for the last 10 years, I've been dealing with unexplained bouts of dizziness (sometimes with ear ringing and loss of sense of sight and touch too when it flared up bad) it never made sense and I was worried It was a permanent state of life. (It always hit me randomly and I could go a month without issue then suddenly have it several times a day).
I'm glad to know I can fix it
I'll check out those exercises though with my pattern triggers and with what you described I think Tai chi and meditation might do me very well in fixing it.
Thanks for this.
You're very welcome 🤗
I had covid and my symptoms started after. I started feeling as if I was falling when I was up or it felt like I was in a moving boat all the time. It scared me at first so my anxiety was really bad. I had a brain scan, I did a lot of blood test, went to see an ear doctor. They couldn't find anything. My doctor told me she thought it was just anxiety but when you just know something is wrong with you. I knew it wasn't just that. I feel constantly dizzy, lightheaded. Oh yeah, I also went to see an eyes doctor because my eyes felt so weird. It constantly feel like they are moving, like I can't stare at a fixed point because I feel my eyes moving, of course the eyes doctor told me nothing was out the ordinary. I had to stop working because I felt like I was going to pass out anytime. I became extremely scared because I didn't know what was happening, I still get scared because I wonder if it will ever go away. It's harder when I am inside. Lights are a trigger, when I go outside it helps a lot, maybe because of the natural lights. Supermarkets and busy shops are triggering too. I hate this feeling, it's like living in constant fear and that you are out of this world completely. My parents doesn't even believe me since the doctor said it's anxiety. I mean try explaining these feelings to someone. It's really hard. I also have a lot of neck problems right now since I'm always so stiff. I hope other people can relate to how I feel and It really helps me knowing I'm not the only one going trough this.
I'm so sorry to hear of all of this. Providing you've had medical clearance then you have to trust you will and can get better. Anxiety will definitely not be helping you and is likely exacerbating symptoms BUT it is still possible to heal and get better. Your focus should be to find feelings of safety while you're experiencing symptoms. This will help retrain your brain that the dizziness is not important and symptoms will lessen. I can relate to the light sensitivity and busy environments. Try not to avoid these places if you can as your brain will benefit from the gentle exposure. This does get easier, I promise! You are not going crazy and what you're experiencing is totally valid. Hang in there 🙏🏼 💓
The same thing happened to me. I’m on month 2
Yep. Right around I got covid. My opthalmologist says it's a covid symptom and can lead to long covid.
I have exactly the same symptoms, hope you feel better!
I’m going through the exact same thing. I got Covid and after I was positive all of this started. I can’t even walk to the kitchen or take a shower without feeling like I’m going to pass out instantly. I start school again soon, senior year, and I’m absolutely terrified…I can’t even deal with this at home so how am I supposed to deal with it anywhere else???
I hated those exercises they just made me feel ill. And not the slightly worse that shows they're working, like really ill. I read that anxiety impairs the brains ability to compensate so it's best to sort that. It's inspiring to see that you've beaten this and hope to do the same! 🙂🎈
Thank you Lucy, and yes anxiety is definitely not helpful when it comes to recovering from PPPD, although still possible. Anxiety was one of the last symptoms to go for me and I made lots of progress while dealing with the anxiety too.
Thank you so much!
suffering for 6 months now after a crohn's disease phase - you really give hope to those who fear living with these kind of symptoms! thank you so much! brings tears to my eyes that it is possible to recover fully from this
How are you
I cannot thank you enough for posting this. I thought I was going insane or that I was heading towards something rerally bad. What you articulated regarding the symptoms was 100% abng on and has given me hope. THANK YOU
You are so welcome 🤗
Hey there, thanks for sharing this. I was just randomly searching for my symptoms here and found your video. Gosh I can’t even explain my symptoms but they are getting worse! I don’t know where my life is taking me….
You’re not alone
Going on almost 2 years after having vestibular neuritis. Thought it was just a long healing process and didn't realize it could transition into this. It's usually only a problem when moving upright -like walking. Lots of eye strain and tension headaches from trying to focus. Anyone else? Your comment about feeling like you've had a few drinks is spot on! Did a great vestibular rehab program with all the bells and whistles but it didn't result in a full recovery. Trying to work my way out of this by being active through trail running and shooting hoops but the visual stimulation is exhausting after about 30 minutes and leaves me nauseous. Thank you for posting this! I was starting to lose hope.
Hi there! Thanks for sharing. Keep going with your trail running and vestibular rehab, even if you haven't fully recovered, sometimes it can take a long long time to see any worthwhile improvements. The fact you are exposing yourself to stimulating environments is great. Even if you feel quite fatigued after, your brain will eventually compensate. Just don't overdo it, listen to your body and lots of rest. You'll get there, hang in there!
Wow!! This is similar to me. I was initially had vestibular neuritis a year ago and then tinnitis kicked in 4 months after. I was put on betahistine as my doc thought I had meniere's disease. Got told today that I have PPPD cause of the vestibular neuritis
@ D Fanc how do you feel now ?
May I know why this condition is created for u?
I've had non stop lightedness for 10 years:( I've had a ct scan, I've seen a ent. All came back normal. I've seen a otoneurologist and thinks I had a viral infection in my inner ear, this describes my symptoms so perfectly
Sorry to hear you've had those symptoms for so long. The tests results are reassuring though! Hopefully you can start to work towards your recovery soon 😊
This was a very nice and uplifting video. Thanks. Anxiety causes so many issues. I’m trying very hard to reduce anxiety as I begin my healing process. Both go hand in hand.
Thank you. Yes, dizziness and anxiety can be very closely linked so always best to work on both
@@melissabrill1298 did you experience a panic attack? Omg.. 5.months? I have constant boat swaying 24/7
@@melissabrill1298 what does your "dizziness" feel like? Does it feel like you're on a boat rocking back and forth or gravity pulling you to one side?
@@k.baller5140 I have it to. And its my 5 month and it’s hard but we are going to recover man I believe in you and we can do it !!! Stay strong 🤝💪💪
@@jespersoderstrom944 how are you now?
Thank you so much
You're welcome 🙏🏼
Also got some vestibular function tests booked soon so that will help show what the situation is
I am so happy I found your page!! I went to emergency twice in one month, all my test,head ct everything came back clear. I kept trying to explain to doctors etc. That I was sweating/rocking NOT spinning. I just started vestibular rehab..and I am very optimistic...Did you try that?
Hey, thanks for your message! Yes alot of our doctors don't yet know what PPPD is so it can be hard to get the diagnosis. I tried vestibular rehab but it didn't didn't for me. Lots of people do report some improvement though so it's defo worth a try! Just make sure you're consistent with it, do it every day and give it time time work e.g. 6-8 weeks 😀
Have you seen any improvements?
Same. At the beginning I went to the ER about 3 times and never got any answeres
Thank you.
I'm like this every day :'(
It is only true to a certain degree when you say not to challenge the system. Once you see the tiniest improvement, challenge it. Go in crowds, supermarkets, walks and challenge yourself inwardly using affirmations that you are grounded and balanced. I’m doing that and am feeling the symptoms getting weaker.
I 100% agree with you on that. I always say to step just outside your comfort zone and repeat until that becomes your new comfort zone, then take the next step ❤️ I'm so glad to hear you're recovering and seeing results 🙂
I have to try that. I'm afraid to go out of my apartment now, but I need more confidence.
I've had this for years. I feel like you're describing me perfectly and it's the first time in my life anyone has ever done this. This is actually extremely emotional for me. Thank you so much for posting this video.
You're welcome. It's good to feel validated and understood. Also to know other people have been through the same and got better! There are so many people out there with this condition you are definitely not alone 🙏🏼❤
Hilary-you are definitely not alone! I found a facebook group that helps a lot. It took away almost all of my anxiety once I knew I wasnt alone. search: Vestibular Disorders Support Group
@@rachelbreen2323 what’s the Facebook group?
I have also balance problem due to inner ear problem pls give me solution
Pp
Thankyou sooo much, i was bery depressed due to PPPD but this video gave me hope 🙏💐🤗
Are you recovered from PPPD?
@@ghulenamdev077 yes i recovered bro,, it was a hidden problem that no specialist doctors were able to diagnose. Ear specialist told me that problem is in your ear but no problem was there, neuro doctor told me that i have spondolysis but i didn't have that. Actually i had a latent weakness in my body that i discovered by myself after a year of research. My stomach was less acidic due to chronic stress and long term PPI use. No matter whatever i eat it was not completely burn by stomach so i started taking Apple Cider Vinegar before my meal and you won't believe that within 10 days my symptoms started improving and it is completely disappeared. I still take ACV and Lemon tea every day and it worked like magic to me. No doctor will tell you bro. Even nobody can guess by my appearance that i am dealing with digestive issues and chronically devoid of vitamins and minerals due to less acidic environment in my body.
@@ghulenamdev077 yes i recovered bro,, it was due to less acid in my stomach that no doctor was able to diagnose. I started taking ACV before my meals and it completely healed me.
@@ghulenamdev077 yes i recovered bro
@@ghulenamdev077i am healed bro, it was due to deficiency in the body due to digestive issues.
Mine was gone for 2 years then 2 weeks ago i had a bad panic attack & it started again.Go out be around people go for a walk & be relaxed,drop your shoulders trick your brain by feeling happy & relaxed & you can get by.Once you self talk & get by you actually forget about it & it goes.Good luck to all of you.
Great advice 😃
This video has really helped me and I feel this is what I may have? I have had visual issues for a couple of years now which they have finalised saying it is ‘visual retinal migraine’ which isn’t actually progressing into a migraine. But then year later I have started to feel very dizzy and out of my body for a few months now. But I am very worried that it is related, or confused if it is pppd or not
Thanks for sharing!!!!!!
For around a year I’ve been struggling with lightheaded my dr said it my be my weight but it is frustrating when I stand and someone is talking to me it’s like I’m in another world
When I turn my head to either side it makes it worse
Now I’m even afraid to drive
It feels like there is a compass in the middle of my head sort of trying to keep my motions and eyesight in place and in balance
This is so scary specially when driving
And of course when trying to speak and you just can’t pull out words
The compass is a great way to describe it. You need to reset and rebalance your "compass" so to speak..you can do this by doing very gentle very slow head movements with eyes closed feeling into every movement. It is possible to regain your balance and feel normal again 🙏
Thank you
Anyone else break down hearing someone validate the hell you’ve been going through?
❤
She just made me realize that it came from an injury and I broke down the injury is healing but I'm not I still have anxiety about it and it's not my only physical problem I also have cerebral palsy. I didn't know that what had happened would affect me for this long and it's heartbreaking because sometimes I feel like I'm dying I've been dealing with chronic pain all my life and I'm exhausted
Can this start from nothing and gradually get worse?
@@ajgreen868 yes. It can start from anything. From anxiety or a panic attack to an illness or ear infection. Or even your equilibrium getting thrown off a single time like riding in a boat and then it just stays. It can definitely get worse as the more dizzy we get the more aware we are and then the more anxious we get and the more we panic about it. Which it turn makes us more dizzy.
@@moturn8614 thanks for the info I really appreciate it. I just don’t remember any kind of triggering event at all. Just know I felt this coming on through the last couple years. Now it’s so bad!
You have described this to a T . I had Labyrinthitis one year ago and although I have recovered from this it has left me with this exact feeling that you describe in this video . Im super anxious now when out and about, some days are worse than others. Ive been refereed to ENT next week so will be interesting to see what they say .
Good luck for your appointment. I have some other videos on anxiety and the nervous system etc as they are all linked to PPPD! Working on your mental/ emotional health is as important for your recovery as is your physical recovery 🙏🏼
@@balanceyourlifenow1651 had my appointment . Dr thinks it was positional vertigo I had and not Labs. My hearing test was normal . As my last attack was over a year ago he couldn't tell for sure but definitely said its more of a positional vertigo . I think all vestibular disorder symptoms mimic each other so its hard to say exactly what i had . Whatever it was I do not ever want to go through it again .
@@kirsty4848 may I know are you recovered?
@@Rose-gc8og thank you for asking. I am feeling a lot better with my balance etc, I do have off days still and notice it especially when I’m tired etc. I’ve also been left with horrendous tinnitus from my affected ear. Doctors aren’t very supportive over this. I have actually been referred back to ENT because I’m struggling with the loud tinnitus.
The specialist who I initially saw at first ENT appointment said he ‘thinks’ I have positional vertigo - BPPV and it wasn’t Labyrinthitis that my doctor diagnosed me with when I first took ill . I’ve not any spinning attacks but the noise is driving me crazy.
@@kirsty4848 I’m happy to hear you’re feeling better with your balance. Thanks for your reply🙏🏻 I have pppd since 6months ago. May I know did you have the feeling of walking on the boat or floor shifting under your feet? If yes, did it go away? This symptom is driving me crazy… thanks in advance
Have others w PPPD found that certain traumatic , emotional experiences are initial triggers for the onset on this disorder? I appreciate your practical encouragement in doing the exercises. They are tiring and it is hard for me to understand how each exercise helps.
I'm 23 and it's been 3 years for me. Completely debilitating for the first year and thought I had every chronic illness in the book. Went to a very dark place for a while. Ended up in the hospital and malnourished. I'm just now finding how what it really is and that I can do something about it. My symptoms are mainly out of body feelings. I also have slight visual disturbances and light sensitivity. I'm going through a program right now and I'm very hopeful to get back to normal. I wouldn't wish this on my worst enemy.
Thank you for sharing! I wish you a speedy recovery 😀
Hang in there man, I’m in the same boat
Wyatt did u get back too your old self? Ifs the detachment depersonalization derelization and brain fog with me, i need too get it all gone and be back too who i was 😢
@@colemanglobal9220 heyy did you get rid of PPPD im really suffering, i have detachment depersonalization derelization and brain fog, i just want it gone i just want to go back too who i was 😢😢
@@laurenbaldwin6068 it’s a long journey. I recommend reading the book Rock Steady by Joey Remenyi. I’m not back to my old self but I am a lot better off than I was a few years ago.
Thank you for this. I was told that I may have MDDS/PPPD/vestibular migraine. In your experience, is it possible to get back on a boat or sea travel without making things worse? I ask because there are mixed views on this very topic - but I love and miss cruising! Thank you.
I'm not sure for definite as I know that travel can trigger MDDS symptoms however what is also important is to not give up what you love! You have to make choices that are right for you, whatever that may be. Some people report flare ups after travelling but others do not. I would always feel sensitive for 24 hours after being on a boat or plane but after that would return to normal. We are all different!
Hello Bro Mujhe Bhi walk karta time floating type feeling hoti hai
Well I've got most of the symptoms of PPPD, had them since late may 2023. Especially the drunken, laggy sensation and unsteady dizzy feeling plus that I have tinnitus that came on about a week after my other symptoms started. I've had an MRI and an ECG plus bloodwork done, so I'll have a talk with my doctor about this. Stay strong all
Hi,I just stopped working due to my dizziness is so bad also with panic attacks,went through so much testing with my doctor as well as numerous trips to the ER thinking I was having a heart attack just for them to find nothing wrong,I'm also currently wearing a heart monitor at the moment for 72 hours,been going on for about 2 months now and has completely taking over my life,I'm glad I found your video, I hope it works for goodness sakes.
Sending love 💖
What triggered yours? Im going threw a similar situation. I had to much to drink on my bday 3 months ago felt i had a terrible hangover woke up feeling everyday now! Like im living and floating on air it’s horrible i had a heart monitor too ..blood pressure been low. Confused, can barely read from confusion. All kinds of test just for doctors to say im ok
@@NigelNiem It started while drinking for me aswell. Drank some wine while playing video games, then suddenly felt nauseous like when you drink too much. I went to sleep after that, but the drunk feeling remained with me for days, weeks and now months with some days feeling more clearheaded. Although feeling like 10% of my normal self.
Got a lot of different symptoms over 4 month span (like neck stiffness, increased astigmatism, jaw pain, anxieties, sadness) with doctors finding mainly anxiety to blame.
I think finding a diagnosis is a big win here.
Hope we all find a succesful recovery.
Thanks so much for this. I have typical PPPD symptoms. The worst part is that I have lost confidence in my body despite being fit and healthy. I had CT/MRI and heart checkups last year, along with many blood tests, and according to my doctor there's nothing wrong with me. Have had a couple of bad experiences when this unstable feeling leads to near-panic in supermarkets and public places. Do you recommend trying a physio for Vestibular rehabilitation? Sounds like it may be hit and miss.
Hey Andy, thanks for your comment and sharing your story. Vestibular rehab is effective for some people but not everyone. To be honest VR won't help you with the near-panic you describe experiencing in the supermarket and those trigger are important to address from a deeper level in order to manage symptoms and turn off the panic response. To anyone that asks me about VR I would always say to try it because you never know. If you do, just make sure you give it at least 6-8 weeks of daily practice of the exercises to really determine if there is any improvement for you
@@balanceyourlifenow1651 thanks so much for replying. I totally understand that VR isn't a solution for anxiety issues. However, I've found that controlling physical symptoms generally helps keep my mind at bay. I also think it's been helpful to keep challenging myself, so I still go and do the things I'd rather avoid. I just try to go slowly and "let it happen". Acceptance of symptoms rather than fighting them. Meditation has been really helpful in this respect.
@@adde65 you're exactly right. If you can manage the physical symptoms and feel less dizzy then of course the result of that will be less anxiety. Which is why you need to work on both. Well done for gently exposing yourself to the things that trigger your symptoms, as you say just going with the flow. Sounds like you're right on track 👏🏼
@@balanceyourlifenow1651 to some extent I don’t have a choice, as I’m a performing musician. I left a gig on Friday evening and had to navigate a very busy part of the city while feeling a bit off kilter. But going slow does help. Thanks again for sharing your knowledge.
No
Which doctor is best to go to determine if it is in fact PPPD. So far everything comes back normal and I went to neurologist, neuro-optomologist, optomologist, ent, primary care, dentist... I looking for the most holistic treatment possible. I had the flu at the end of December into January, but I have notice the dizziness in mid November. I have always gotten migraines, but during this time period (Nov to Mar) my migraines were the worse. So I don't know if it was triggered by the flu, my migraines or the anxiety.
I am looking for the proper recovery steps.
Hi! So a Neurologist or ENT specialist or similar should be able to get you a official diagnosis. PPPD is a new diagnosis though (2014 i think), so alot of doctors aren't trained or have the knowledge of PPPD yet. Neuroplasticity is a very holistic way of healing as its very gentle and doesn't require any medication etc. Learning about Neuroplasticity is a great place to start! Make sure to get medical clearance too
Mine started last September. And it was soooooooo bad. I felt like I was bouncing everywhere when I would sit at a table. Today it’s much much better. Barley a sway. But it still bothers me. I want to heal it more. Thank you for trying to help people PPPD is awful. I went to get checked out and they couldn’t find anything. But I know it’s PPPD. I don’t know what mine came from accept last year I started having panic attacks that I’d never had before. Thankfully those have stopped. And I do agree with feeling the safety. Because when I do feel safe I feel so much more normal! I’ve recently started doing some of those exercises. I hope it helps me!!! Since the beginning I kept pushing myself to still get out and walk every day. I felt so nauseous and like I would fall over but I kept going!! I feel like the key is to keep making yourself do things as well.
I'm so pleased you're almost feeling back to normal. You're right with the exposure, I think its really important to try to keep doing normal things so your brain can retrain itself. Just be gentle with yourself and don't overdo it. Patience and persistence is key
Did you physically sway? Like body rocking slightly without trying..
@@karenfoxterrier1455 yes me too!
How are you doing now?
@@Tiinkerbell were you diagnosed with PPPD or MDDS? Mine came after a major spinning vertigo attack My body started rocking side to side. I could stand perfectly still and there would be a sway without me physically moving my body it would just rock side to side. I still have the sway it waxes and wanes. Some days it's worse than others if I'm doing a lot of activity the sway can pick up... It's so strange some say it's MdDS because I do feel better when I'm in a car but then I also hear it can be PPPD so not really sure what I'm dealing with..
How do you cope with flying? Thank you for your really positive helpful videos and so glad you have recovered ❤
Lots of rest for a day or so after and not overthinking or panicking about it
@@balanceyourlifenow1651 thank you will really try!!! 🙏🙏❤️❤️
Hi Emma I’ve just sent you a message on your “about” page but it’s come back with not recognised…
@@artysqueezy184 send me an email info@balanceyourlifenow.co.uk
I stopped driving cause of PPPD.. because i feel out of space when in a car, nauseous also out of breath.. i stopped going out, i feel so dizzy in café crowded cafés, who else? Please share your stories ;(
Hi Maria how are you doing these days? Has the condition improved?
I stopped going out too. Now, I'm going to challenge myself to get out and go for simple walks first. It's a bit scary but I must try it to get better.
I have had dizzines for 6 years and still undiagnosed. I got it when I was 12-13 years old and I an now 19. My Life was taken away and still are. It is only getting worse and it feels like I have Done all the tests I can and tested everything possible. At the beginning I got a Little dizzy and now I can fall, almost pass out and starts to shake a little.
3 weeks ago I losed all control of my body, almost passed out 3 times direct after each other, felt like I was gonna throw up and started to shake
Thnx ❤
ive had mine a year now, started after i passed out in the shower. its every single day!!!!
I’ve only had this for a week and I’ve cried every single day
Sending love ❤️
R u better
@@oliviawesterbeck1253 yeah lasted 2 weeks couldn’t figure out what caused it. Super weird
Hi. How did you get better?
Hey Emma, I am starting to feel much better but noticed at night (or low light) the sensations are there. I think I noticed in now because I haven't been doing things at night until recently. Did you also experience this?
I'm so glad you're feeling better! In the evenings, try not to focus on it, turn your attention to what makes you feel more steadiness. The more you focus on steadiness, the dizziness will fade away into the background. You want steadiness to be your dominant feeling! Practicing it through Neuroplasticity is the key 🔑 👌🏼
I am at the 2 month mark from the beginning of dizziness (ear infection) and about 6 days from stopping all meds. I would like to know at which point this is considered PPPD or if it's still normal to be dizzy for X amount of months after an ear infection. (VNG is normal btw)
PPPD is after 3 months of dizziness where you feel dizzy for 50% of the time or more. It is normal for ear infections to take up to 3 months to get better
The symptoms you described are spot on. What i don't understand, with pppd is my mind tricking me (sort of a placebo thing) or is my brain actually blocking me to feel free?
Thanks so much for this, I've had PPPD for 4 months now following an episode of vertigo caused by ear crystals.
Have been seeing Therapist and doing exercises but still having some very bad days.
Are you on Instagram?
Hey, glad to see you have started your recovery, yes I am on Instagram @Balanceyourlifenow
Me too! Exactly the same thing happened to me.
What kind of therapist are you seeing? Which exercises?
@Chuck Berry
Is it gone now?
@@francafranchi Are you better now?
How do you heal this ?? I’ve had this for two years
I have a diagnosis of PPPD and I've been ill since 2016. For me the exercises don't work, I've sold my car and lost 2 jobs as this coupled with asthma was too much. I'm not sure mine is correctly diagnosed as my issues start first thing and are worse from lying down.
If it's worse laying down,it sounds more like BPPV
What about sound sensitivity?
I guess due to over focusing on symptoms or being constantly aware or on high alert from the dizziness we can become sensitive to small changes such as sounds, environment, hormones, temperature. Its not unusual for people with PPPD to feel more sensitive to things like this
all the symptoms the you said except for the trigger because I don't know if I did experience that, I have that. the dizziness 24/7, light sensitivity, I also hate riding motorcycles now becauae I feel more dizzy. my only problem is I still have not gone to a specialist because I don't have money but I'm feeling all the symptoms that you mentioned
Not everyone has a specific triggering event. Most people can pinpoint to a particular time in their life they went through stress for example or sometimes it can just gradually build up from nowhere. It is different for everyone.
Emma... how did you find encouragement through the rough days? It's been 5 months for me, good days and bad. I was doing better, but now I feel worse. My neurologist said my MRI is not bad. I have periods of vertigo and lightheadedness...
I think you just have to keep going. Trusting and believing that one day you will find a way out. Follow your intuition and inner guidance and listen to what your body needs, especially during the hard times. Don't be hard on yourself, the tough days are when you need to show yourself the most love 💗
I was hit with Vertigo 6 months ago and a week later my body started swaying side to side like a pendulum...I haven't had one calm day in 6 months. I feel like I'm on a boat. Does PPPD cause physical swaying? What if you also have vestibular migraines too and a bilateral vestibular weakness?
Exercises stir me up...😩
Yup I feel like this
I cried every time thinking why God chosen me for this
Floating , feel like drunk ,while seeing moving object other stationary object feeling moving fastly in opposite directions
I’ve been this way for 6yrs. We must strengthen our vestibular wth exercises. God will heal us 🙏
@@srm3430 any improvement
I have the same problem. 😭😭 please help me to overcome it. I am done with it. I am suffering for 5 months straight. Please help meeee 😭😭😭 I beg youuuu.
I was on a keto diet before this crap happened and now I have to eat TV dinners and whatever is given to me because I can't cook anymore. My parents just want to give me TV dinners and I even struggle with eating and I don't want to eat high carb foods but I have no other choice because I can't cook myself anymore. I feel disgusting that I had to eat a spaghetti TV dinner. I only eat two meals a day because that is what my body can handle. This ruined my life! I lost so much weight but I'm probably going to gain it back. My mom got angry at me when I told her that maybe she would be better off if I was gone. But then she got angry and started crying because of it but yet she's going to leave me alone for a couple weeks so she can go on vacations. My dad says he can't take care of me because he has to pay bills. So I'm basically left alone in bed all day and there will be some days where even have to go without eating because it's hard for me to get up without feeling dizzy. I don't even know if my insurance will cover a caregiver and I probably won't even qualify because I haven't had the debilitating disability long enough. I feel like people say they care about me but they only care if they're getting something out of it. Otherwise I'm just a useless handicapped woman who can't take care of herself! 💔😥😭
My dizziness didn't start with any illness/injury where I felt true vertigo. It has built slowly over time. So it's confusing. I feel all the PPPD symptoms, but it doesn't seem to fit the criteria in terms of sudden vertigo onset. I had a clear MRI and hearing tests, so I don't know what to think.
Hi, so while it seems the majority people have a triggering incident, its definitely not always the case. For some people it starts gradually and builds up over time as it has done for you. I think there is a link between noticing a symptom you don't like (e.g. dizziness) then overfocusing on it (making it important). Therefore your brain starts to prioritise the signals because you're focusing on them. Quite often there is a link with anxiety/ fear and not wanting the dizziness, pushing it away, but again not always. It is a very unique, complex condition that is so individual to every person that experiences it. You're not alone, regardless of your story or how you ended up here. And of course medical clearance is the most important thing
It was the same for me. No certain event, just high stress/anxiety and dizziness started developing. It’s the extreme fatigue and nausea that I get from it that causes me to have a more difficult time with it. I was pretty good at dealing with it before it progressed to constantly getting the motion sickness type of feeling. Tough to ignore.
This is what happened to me too! Just lots of stress and panic in a short time. It gradually came on for me and just got worse
Me too gradually came on over years of extreme stress and anxiety..
The worst fear is the fear you will get worse and end up debilitated... Fear of the symptoms..
Crying while watching this, thought I was crazy, my parents wont believe me, they always says that it's all in my head
I believe you ❤️ have you been to your doctor's to get medical clearance too?
My symptoms of unsteadiness and imbalance came up after i was hit by anxiety n panic attacks. It is been 9 years i have been suffering from this. I cannot travel or work for long hours. This has affected my life badly. I am also not sure that my dizzy symptoms are pppd or mdds or anything else. Just wish i can get back to normal like other people.
What did you do to recover? Did you only do vestibular therapy?🌸
Hello Emma,
Did u have a feeling of tightness in your head? My head feels tight like that feeling you get when you pull your hair up in a really tight bun. It comes and goes through the day for me..it was good for a couple of months but then lately feeling it more, specially when i am trying to go to sleep, weird tight feeling at the top of my head and my forehead too!
Yeah I did. One of the most commonly reported symptoms is head pressure/ heavy head/ tightness etc. I used to get tingles and numbness too which was anxiety related. It went away though same as the head pressure. Obviously I'm not a Doctor but my best guess would be that the over stimulation in the brain and possible over reliance on the eyes/ straining your eyes, can contribute to the headaches and head pressure. If you're worried though, please speak to your Doctors to get it checked out
@@balanceyourlifenow1651 i guess that too! All my scans and tests came back fine. I guess that’s eye related and will see if an ophthalmologist can help with that. Thanks Emma, I have recommended your channel to people I know going through the same situation.
@@fatmasharky5659 thank you! Good luck with your healing 🙏🏼 💕
Hi Emma, what did your dizziness feel like? Did you have rocking or swaying?
Yes rocking and swaying, generally off balanced, head pressure, 24/7 symptoms unless led down. Basically non spinning dizziness (so not vertigo), felt like I was drunk, walking on the moon sort of feeling. And feeling generally disconnected from the world
@@balanceyourlifenow1651 Emma are you still coaching? I emailed you a few days ago..
Does this type of dizziness ever make you nauseous like motion sickness? My dizziness and symptoms are exactly like you described with the addition of occasional nausea.
Yes all of the time and medicine doesn’t work at al
Yes I actually got nauseous yesterday it was horrible :( I hope you find relief
Yes! And the vestibular rehab exercises definitely make it worse. BUT after 4 days of doing then I'm already getting some relief but I'm also working on my anxiety as well
@@baileyriddle8031 Thanks, same to you, I know it s tough.
I've had the same experience. I feel like mine is 100% stress and anxiety related. We have to have hope.
I am coming up to 3 years and suffer with all the symptoms described. I've had so many falls resulting in me hiting my head and back. My mobility is extremely poor, I cannot walk or stand to long or do anything for myself. I'm so worried I'll end up lossing my job as I've had ao much time off work. I feel so lost and scared everday.
Hi Emma, thanks for your video. I heard from somewhere that alcohol triggered your PPPD. I have a similar case. Is that true or what triggered yours?
Yes, I believe I had my drink spiked on a night out with friend. Symptoms started 2 days later
I have been battling this now for 1 year after I got hit with Blood pressure... since then my blood pressure is normal but the dizziness is very threatening and never goes away... I need help 🙏
You will be sure to find some benefit by changing your perception of the dizziness. Even though it feels like a threat right now, understand that it's not a threat. Dizziness is safe! Once you can lessen the threat you will see improvements in the dizziness. Everyone and anyone can do this. It takes time, practice and patience but you can get there
Absolutely the same as me! I have high blood pressure after that covid jab and then I got about 2/3 colds and a ear infection! Never been so Ill in my life!
Hi Emma ,
Is it possible to relapse after 6 months ,my previous episodes of floor moving went away when I got occupied with an interesting project in my work .the floor moving retriggerd after sleep less night due to some pro exams I was preparing for . I have passed the exam with great scores but I got the floor moving back and it's seems worse because I didn't have it for quite a while .Any tips on how I can get back to the same old me prior to relapse .
Try not to worry. Focus on getting back on track, slow down, take a deep breath! Ensure you're getting lots of rest, try not to be scared of the "what ifs" of the future, that is not helpful to your recovery. What you can you do right now to recreate your desired sensations in your body? What you focus on you get more of! Focus on finding stillness and steadiness and the dizziness will become less dominant
I work construction and ive had vm and pppd for 3 years. I work now and feel better than i did then but i still have pppd the majority of my day. In construction (currently) i work in a hospital and today i rode the elevator probably 50 times and it makes me feel bouncy and i HATE it, and sometimes it happens while im waiting for the elevator. But also just in general i feel confused and disoriented. I take 120mg SNRI (duloxetene) and a beta blocker (propranolol) and clonozopam and just last night i started topomax. Ive actually been doing better at supermarkets but at work or in big spaces like at work its awful
Thanks for sharing, Andy! I hope you start to see some improvements soon 🤞🏼
Anyone else feels like as you walk you feel like you are about to float away or like you are bouncing
Yes. I use to always feel like I was going to float away. Now when I don’t get enough sleep I feel the bouncing when I walk.
Sucks! That’s bouncing feeling is trippy feels also like Jell-O legs
More like a weaving drunk
I've been doing vestibular exercises for a while but I need to stop rushing through them. It feels kind of like a chore now so I do them a little absentmindedly.
It's really important to be present and focused when doing the exercises as well as being as relaxed and calm as possible. I hope you have seen some improvement since your comment 🙂
My right vestibular was the problem. On Dec 10. I had the worse part. By 4 months later I still get (not dizzy per say but my brain feels so off) The computer is what I find the most hard.
I have this. But I also think I have lightheadedness. Is that different? Can they coexist together? I have anxiety and high blood pressure too. They all seem to feed on each other
Hi, in what i have learned and researched yes they can coexist together. I speak to lots of people that have a range in symptoms as no two people are the same but light-headedness and dizziness can be common to have together. It seems the high blood pressure could be a contributor to this too. Hopefully you've been in touch with your Doctors about this so they are happy nothing else is going on. You can still improve the dizziness and light headedness and you could benefit from trying to desensitise yourself to things that trigger dizziness and lightheaded e.g. standing up too fast. Also anxiety can exasperate symptoms too so it would be beneficial to find ways to manage your anxiety too. Find ways to relax e.g. meditation etc to calm the system may be helpful for you
Do you have non-stop lightheadedness
Wondering if an alignment by a chiropractor might help? 🤔
My ENT Dr said yes absolutely
It's been a 1 year almost I am suffering from .I just hope I can get ride from it.😥😥😥😥😥
Thank god i found these videos. I feel like my equilibrium is zero. Cannot go out and 100% scared to walk alone. I was suffering from chronic covid anxiety. Could it be cos of anxiety?
I am trying to balance and it is affecting my legs terribly. Hope to recover somehow 🙏
Anxiety could definitely be playing a significant part in this for you, absolutely
@balanceyourlifenow1651 thank you for your response
Please stop the cv.d10 idiocy
I had these since 2018 but i overcome it for years then now it came again i dont know how to explain it its feel unreal i feel im not in reality i feel dizzy all the time and i have lightheaded and migraine and had ear pain my eyes feel jumping i cant focus on doing things because of that i feel so anxious ang its make me pannic and depress i know to myself i feel like im in a boat my diziness is not feeling spinning...i want to go to Pshychiatris do phsychiatris can help
My trigger was hard exercise. Ended up in hospital for 4 days, infection of the balance nerve. Got home and started the exercises, works for a short while but the dizzyness is back every morning with a vengeance. I'm not accepting this and have booked a local physiotherapist. They know a lot about this condition.
Thanks for sharing! I wish you well with your recovery 😊
When you had balance nerve infection, did you have ear pain as well? How did you know you had an infection? Could you tell me what test you had for diagnosis?
@@callie7 No pain. The vertigo attack was sudden. At the hospital they used special glasses to see eye movement and movement checks. The neck was stiff and the balance was gone. I had to learn to walk again. And I got trombosis in one leg afterwards. To recover, just walk every day. I'm able to function but some dizzyness and tinnitus remain.
@@FighterFred How are you doing now?
@@vincentvega3747 It healed, but I still feel dizzy on occasion. Need physical exercise daily for the brain. The tinnitus is awful.
So I disable the fear with what Clair weaks talked about the first fear and second fear, I disable the second fear from coming full force will this help in the long run to rewire?
Do you feel like floating or unsteadiness while sleeping or standing,sitting??have any fear to fall from high building or feeling like earthquake comes.??
I used to get that feeling all the time mainly when sitting or standing not so much lying down. Lots of people have similar sensations. If you have any fear around falling etc it sounds like you don't trust your body. Trusting your body means feeling safe and accepting all emotions and sensations and knowing they are safe. Once you can overcome this you can retrain your brain to be less fearful of the dizziness and that is one big step to recovery as your brain places less emphasis on the dizzy signals knowing that they are not dangerous
Can you show us rehabilitation exercises with a video and how much time will it require to fully cure??
I am suffering 24×7 dizziness since last 8 years and there is nothing wrong in my lab test.
So it will be very helpful if you kindly show us exercises you have done in a video.Thank you.
Yes!
@@balanceyourlifenow1651 but your body and brain have a natural reaction to the symptoms. How do you stop that initial reaction...?
Omg ....I'm in my third month of theses bad feelings....I was cleared by Doc 3weeks ago.All tests showed no problems...however i still feel really bad because there was no answers. Doc suggested that I use a migraine diet for a while .
Hi April, sorry to hear you're going through this, although you stand every chance of a full recovery, especially if you have not had the symptoms for too long. I dont think a lot of doctors know what to do with people with PPPD. I found that a plant based healthy diet helped a little but the key is to work on retraining the brain using Neuroplasticity and also calming the nervous system and emotional brain if you have any stress/ anxiety/ worries etc.
I'm sure what to do now ...I have had urine ,blood ,ekg,chest xray,CTscan,MRI,balance and hearing test ....everything came back good .I'm soo frustrated because of I still bad .The migraine meds made it worse ,felt some much pressure I was sure my nose would bleed.I just want to feel better .I have suffered from anxiety and depression from really young age ..of course I didn't realize that til my 40s .Not sure what direction to go now ...HELP!!
@@aprildixon8759 as a starting point i would encourage you to learn about both PPPD and Neuroplasticity. That will help you to understand whats going on inside your body and why. Then very gently find ways to start feeling some relief from your symptoms. What can you do to feel more how you want to feel? Take it one day at a time, and you will slowly find your way
Dizziness can also be from adrenal fatigue aka insufficiency. Or thyroid issues and also medication or withdrawal off meds etc. Look into it guys get tested as it may be a cause for some of you.
I’ve had this since I was 13. I’m 20 now and just now starting to get a diagnosis. My teenage years feeling healthy have gone down the drain.
Are you better now?
@@nancollins7775 id like to know as well
@@leviackermann188 Are you suffering from the same?
@@nancollins7775 yes. Since exactly 2years now.
I had belitar vestibular disfunction than after some months my doc told me my balance organ works fine again… my symtomes were still there. In June this year I felt like 85% recovered I slowly worked again finished university did. thinks again but now I have a big relapse
@@leviackermann188 That is horrible. Relapse is the worst. Stay strong I'm sure they'll go away once again.
How does one find these exercises?
please i need to know if pppd can cause visual illusions, like when im looking at wall (or anything else) it slightly wobbels/moves. I also have floating dizziness 24/7, specially when my anxiety is high
Yes definitely, and remember PPPD stands for persistent, PERCEPTUAL, postural dizziness, so it's how each individual perceives symptoms so its different for everyone. The difference is that pppd is non spinning, whereas vertigo is where you feel like the world is spinning around you
Is Tinnitus a symptom of pppd? Because I got it a week later after feeling this non spinning vertigo sensation like I was rocking on a ship (I still have it) I'm 17 and I had a panic attack that night because I ingested too much marijuana and my brain doesn't like marijuana since my anxiety finds it as Paranoia.
Tinnitus doesn't seem to be a typical symptom of PPPD but some people can have both conditions. You can heal from both
i also have both :(
I dont know how I got this i think it just came on but I now have BPV as well. Is BPV a part of this or is it separate? I do have a sensitive nervous system and severe anxiety. Can anxiety alone cause this as i have been more anxious and stressed in the last two years.
For me I feel like the answer was right in front of me all this time.
I have always been an anxious person and had done cbt in the past for it which was great.
When I had my ear infection I stressed myself out for 1 and half months before I learned about pppd. It makes sense. The brain is so powerful if I wake up every morning and ask myself is my brain fog still there it stops my brain from re wiring itself.
Please! Address your anxiety with cbt or something like that and put your mind at ease so you can start your recovery along with vestibular exercises! Hope you get through it!
@@skaxman99 I have suffered from anxiety and depression since i was 11 and nothing has helped. I now have other mental illnesses on top of dizziness, balance issues, tinnitus and feeling weak and tired which is not like me. I never used to have problems with balance now I struggle to walk in a straight line. I think there is something wrong with my brain. This cant just be PPPD. I cant believe this is happening to me :(
@@AL-ru3nk hey Angela. Sorry to hear about all of this that is going on with you…
I got myself so scared about my vertigo, that I was convinced I had MS or a brain tumour or something else like CMT. I had derealisation or depersonalisation for a a few weeks. I would lift up my hand and look at it and think “this isn’t my hand” and a numbness and claustrophobic panic came racing through. I was disconnected from my body and I thought I had a brain problem until I found this Irish guy on CZcams who does videos on depersonalisation.
I think you would be good to get everything checked out. Follow the process to get a clear direction. Take my advice with a grain of salt though because I’m not a doctor but peace of mind would help you. It did for me.
Get your blood test. Check for gluten or coeliac. Get an eye test. They also check for brain problems which is why I did it. Be proactive and get them to refer you to a brain scan and then ENT. I humble mumbled my symptoms to my gp without letting them actually know how bad it was for me. Once I knew that nothing was wrong I learned about pppd and that’s where I tried cbt and vestibular exercises.
What are you going through now and how long?
To answer your first comment. From what I have read with my own research on the seekingbalance.co.au website is that anxiety plays a big part in it.
If you are constantly worrying every minute of the day about your dizziness, your brain stays in a state of shock and apparently your brain is not going to start healing itself onto a new positive brain mapping if you don’t let it. Have a look at the website and see if it answers any of your questions.
@@skaxman99 I have had DR/DP since I was 14 but never had dizziness or balance or tinnitus like this ever except for one time when I was in high school I had what was like mal de debarquement syndrome where it felt like i was sinking into the ground or the chair. I have the chair sinking feeling a lot now and in the dark my balance is so bad that when I stand on one leg its like the floor is moving and sinking. Horrible feeling. I cant go out now because its so bad. I feel like im going to fade away or die. I get these weird head feelings and sharp pains in my head and my scalp is so sore in spots. The dizziness feels like its in my head like my brain is vibrating. I have had blood tests and an MRI. I had the MRI a few weeks ago but too scared to get the results. My life is worse now than its ever been :(
Is it possible to get pppd after getting influenza B? Can a virus affect me in that way where I get dizzy unbalanced everyday?
I’ve been struggling for 5 years and these symptoms came right after influenza
Do you take any medication? Do you go to a psychologist? I did some vestibular therapy in the past and I'm taking medication. My PPPD is much better but it's still there. How are you feeling now?
No I never took medication and I never received any therapy, I didn't have alot of support offered to me at all. Some people do report some success with vestibular therapy. I feel great now! Amazing up to how I was, I have recovered so much which I'm so grateful for 🙏🏼🥰
@@balanceyourlifenow1651 Thanks for your reply. Those are things you can take into consideration since the little medical literature we have on the topic presents medication as the most effective way to treat PPPD. It's my understanding that your approach has focused more on self care and vestibular rehabilitation (?)?
@@hanscastorp1945 I'll be honest most of the people I coach that have tried SSRIs have said they make them worse. I'm yet to find someone that has benefit from them. That said there are people out there who report positive results so I guess it comes down to the indivual. They are definitely not for everyone and some people spend so much time trying different meds that don't work or make them worse and it can be a very stressful upsetting process. My approach to healing is Neuroplasticity which is changing the brain and focusing on what you want rather than what you don't want. You're right to say that includes self care, VR (sometimes), doing things you love, and having the right coping strategies aswell as developing the right mindset to help you to heal. You need to break out of the the dizzy "loop", stop thinking about it and focusing on it. It's not an easy thing to do and takes time but it is possible
May I ask what kind of medication you were prescribed/read about other people having success with? I’ve been dealing with pppd since a concussion in 2019 and I went into the injury with anxiety disorders so I’m assuming it has only amplified the dizziness feeling..
@@musicobsessed224 any ssri or snri work fine. That's what's backed up by the emdical literature.