MNDSA Lara Video Final

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  • čas přidán 20. 08. 2024
  • Lara shares her story of life with Motor Neurone Disease

Komentáře • 431

  • @FreeSpirit47
    @FreeSpirit47 Před rokem +142

    My parents both died young, as did my sister then my brother. I live my life doing my best to help others, grateful that I have the strength to do it.

    • @AlliWritesNow
      @AlliWritesNow Před rokem +10

      God plants angels on earth & Im certain you’re one of them ❤🙏.

    • @FreeSpirit47
      @FreeSpirit47 Před rokem

      @@AlliWritesNow Thank you.

    • @veronicamendoza2284
      @veronicamendoza2284 Před rokem +3

      Omg My heart hurts to much pain god bless you 🙏🙏🙏

    • @jtb357
      @jtb357 Před rokem

      ❤️❤️❤️

    • @MaryJane-qq9mm
      @MaryJane-qq9mm Před rokem

      🌼🌿🤍🙏🕊️🌤️

  • @imjusthereforthecomments4920

    My DIL died of ALS at 41. Especially horrific for her as she had watched her father die at the same age from the same disease. We still honor your memory Doni, you will never be forgotten💔

    • @Fiddledeedoo
      @Fiddledeedoo Před rokem +4

      I’m sorry for your losses, 41 is too young to pass. ALS is horrible. My uncle had ALS. It was so hard to see him slowly get worse. It was during Covid so we weren’t able to say goodbye, my father was heartbroken, it still hurts him, and It’s almost the anniversary of his death.

    • @crystallongson8565
      @crystallongson8565 Před rokem +6

      I’m sorry you had to experience that. My ex husband(father to our four daughters) died from ALS in June. He had just turned 49. He also experienced dementia with his ALS, what a brutal way to die and no disease I would wish in anyone.

  • @sherrykahn2474
    @sherrykahn2474 Před rokem +79

    Beautiful tribute to a wonderful couple.God bless her husband and son.🙏❤🙏

    • @franklinstephen3268
      @franklinstephen3268 Před rokem

      👋i hope you're safe over there? I hope this year brings happiness prosperity love and peace 💞❤️🕊️🕊️ all over the world 🙏🌍
      I'm originally from Canada currently living in California ☀️☀️☀️and you where are you from if i may ask?

    • @sandgrownun66
      @sandgrownun66 Před 10 měsíci

      @@franklinstephen3268 Over where?

    • @sandgrownun66
      @sandgrownun66 Před 10 měsíci

      @@franklinstephen3268 Where do you think she's from?

  • @toscatattertail9813
    @toscatattertail9813 Před rokem +31

    My husband's paternal grandmother was diagnosed with ALS in the spring of 2008, she was gone by that fall. There needs to be more research done to stop this disorder.

  • @kimphelps3590
    @kimphelps3590 Před rokem +111

    What a beautiful tribute to a courageous couple dealing with this dreaded disease, much love from America!

  • @minnietrout814
    @minnietrout814 Před rokem +48

    What a beautifully radiant young woman who was afflicted by this awful disease. I pray her husband and son are doing well today and will be forever inspired by this loving woman who they lost. May God bless them richly, until they all meet again.

  • @jessicapabstconrad
    @jessicapabstconrad Před rokem +136

    I lost my mom to ALS/MND. It terrifies me to think I may die from this absolutely terrible and inhumane disease. Seeing my mom reduced to an infant in her late 40’s broke my heart. Still does.

    • @lclark715
      @lclark715 Před rokem +25

      I’m sorry for your loss.

    • @halroxdynasty8683
      @halroxdynasty8683 Před rokem +16

      I'm so sorry for your loss. I went through the same, my mom had MS, and finally passed away last year at 60. The last year of her life she was bedridden and emaciated, it was so hard.

    • @johnletitia
      @johnletitia Před rokem +11

      So sorry for your loss

    • @joannziegler4244
      @joannziegler4244 Před rokem +12

      I don't think there I'd a right answer for everyone. I personally would not have kids with a medical history like hers or anyone with multiple fatal diagnosis.
      I respect this couple right to have a child. It is clear that the child will be surrounded by love.

    • @MPV919
      @MPV919 Před rokem +8

      Is there is some test that you can have to see what are your chances so you can have early treatment?

  • @Lyraa357
    @Lyraa357 Před rokem +21

    I can say with with assurance that this loving family will be united again. And Lara will remain only a thought away, watching and loving her family always.

  • @ddsmiles6382
    @ddsmiles6382 Před rokem +30

    Absolutely heartbreaking! So many awful disease’s stealing our loved one’s.
    What a beautiful family. I wish we had better answer’s treatments and cures.

    • @sandgrownun66
      @sandgrownun66 Před 10 měsíci

      Science is trying to do, what a supposed god, can't do.

  • @kristinreynolds577
    @kristinreynolds577 Před rokem +28

    This is such a beautiful video! I have an autoimmune disease that literally has every single symptom except that I have a longer expectancy in life. Please hold your close ones close, and never let someone walk out without you telling them you love them! 💗💗💗

  • @jacquelinebeynon6858
    @jacquelinebeynon6858 Před rokem +8

    Lara was so lucky to have such a lovely husband who stayed by her side and had a beautiful baby boy by you.
    It is a horrible disease and it took her far too young.
    I just wish you and your little boy all the best for the future. You are so brave. ❤⭐ love & hugs

  • @normajoskenbeamora4747
    @normajoskenbeamora4747 Před rokem +13

    MY MOST SINCERE CONDOLENCES TO HER HUSBAND/SON, FAMILY AND FRIENDS 🙏

    • @sandgrownun66
      @sandgrownun66 Před 10 měsíci

      Why are you so rude, by shouting at them?

  • @maryc7830
    @maryc7830 Před rokem +56

    Wow! This was a very beautiful tribute to her. I’m so sorry to her family and friends for the pain. ❣️⛄️

  • @daveletwak3122
    @daveletwak3122 Před rokem +34

    Beautiful tribute!!❤️ So sorry you and your family have to go through this terrible disease.
    Many prayers of support to all having to deal with life threatening illnesses. God Bless

    • @lucycolgan3362
      @lucycolgan3362 Před rokem +2

      Beautiful kind caring sweet words Dave Letwak

    • @sandgrownun66
      @sandgrownun66 Před 10 měsíci

      But you god doesn't bless. He/she/it likes to watch people suffer.

  • @smallhouseinthemeadow6131

    This is a beautiful and brave family.May there be a cure found for this horrible disease. It is just so unfair.

  • @lanafeulner4083
    @lanafeulner4083 Před rokem +5

    I watched my beautiful Aunt pass from this horrible disease. Towards the end the we would blink her eyes for yes and no. God bless her family.

  • @wendyqallab6906
    @wendyqallab6906 Před rokem +25

    This was abousletly.a beautiful tribute to a very brave and wonderful woman.

  • @SV-nk2we
    @SV-nk2we Před rokem +20

    What a beautiful family. May God grant them strength to carry on and may there be a cure found soon.

    • @sandgrownun66
      @sandgrownun66 Před 10 měsíci

      And that cure won't be coming from your god.

  • @angelawilliams4239
    @angelawilliams4239 Před rokem +3

    My Dad died at 56…not MND,but Parkinson’s. I was young, he never go to know his grandchildren. This video is such a beautiful tribute. Much love from Tasmania.

  • @lovelylady40
    @lovelylady40 Před rokem +7

    What a heartbreaking story 💔
    Going through this right now with my mom, strength and courage to each and every person and Family dealing with this cruel deadly disease 😔🙏🏽

  • @grumpyoldlady_rants
    @grumpyoldlady_rants Před rokem +17

    My heart goes out to this family and all families dealing with this type of disease. The suffering caused by MND - and other diseases - is why I support Death with Dignity laws. My state has one. It allows people suffering from a terminal illness to chose to end their life before the disease gets too bad. I know someone who took advantage of this law when they were dying from pancreatic cancer.

    • @lisaturtle1106
      @lisaturtle1106 Před rokem +9

      I completely agree w you some people thinks it’s just terrible .. i however, I ldon’t in these cases what i find terrible is that these poor people have to suffer for months days and even up to a couple years. we don’t do that do the beautiful pets that God created why should we be so inhumane to humans?

    • @micheled8764
      @micheled8764 Před rokem +3

      @@lisaturtle1106 Because "death with dignity" is suicide, and God said you may not kill (5th commandment, which is still God's law, even if we prefer to ignore it). Humans have the dignity of being made in the image and likeness of God, which animals do not share. Sorry, friends; these are just the facts. Don't be fooled. Suicide is a form of murder, and we do not have the right or moral latitude to take a life. Hold out for God to extend his hand to take you to himself in his own timing. 💗💗💗

    • @dawnricherson2604
      @dawnricherson2604 Před 10 měsíci

      This is not God’s will. Death with dignity is suicide. Terminally ill people have amazingly beautiful stories in their last days. I had a boyfriend when I was 16 whose father died at 80. His last words in front of a room full of family and medical staff were, “I made it. Hi Lord.” That right there is dying with dignity.

    • @grumpyoldlady_rants
      @grumpyoldlady_rants Před 10 měsíci

      Well, just because you believe in “God’s law”, it doesn’t mean everyone does. No one should have to suffer in their final chapter of life. Take for example, ALS. People with this disease suffer horribly. In the end stages they a trapped in a body that does t function at all. They can’t eat or drink. They can’t scratch an itch. Same with abortion. If you don’t believe in it, don’t do it but you don’t get to dictate to others what they can and cannot do with their own body.

    • @warpedweft9004
      @warpedweft9004 Před 10 měsíci +1

      it doesn't always help. My MIL's MND was accompanied by dementia and a gradual inability to communicate. By the time there was no quality of life left, she couldn't communicate her wishes. It is a major legal requirement of death with dignity that the person communicates their wishes.

  • @kathyh4804
    @kathyh4804 Před rokem +15

    Very heartbreaking 😢
    My friends son in law is only 34 and the evil disease is progressing rapidly..... ALS is the most horrible diseases for the patients. Can you imagine, not being able to move any part of your body, no ability to eat and barely breathe..... all the whilst your mind is FULLY in tact!!!! 😢

  • @ralphsmith4215
    @ralphsmith4215 Před rokem +10

    God bless her and her family, especially that precious little boy!

  • @Daydreamer-ok6jj
    @Daydreamer-ok6jj Před rokem +2

    I can’t stop crying. I don’t know why this video was suggested to me but I am forever changed after watching it. I’d never heard of this disease. I simply cannot stop crying for this beautiful family.

  • @Anastashya
    @Anastashya Před rokem +31

    My deepest condolences to her family. Such a sad loss. 🕊️🕊️🕊️❤️🙏❤️

  • @cassieblackmoore2776
    @cassieblackmoore2776 Před rokem +6

    I'm so very sorry of that horrible disease. I can only imagine how you feel and the strength of your husband to watch along with friends and family. God must have had you here to do something so special like having your son because he's not going to take you away so horribly for no reason. I'll pray for you and if you see pat and norm, my mom and dad say hi they are good kind people. You will be able to watch down on your husband and son with your family in heaven. Your a strong woman and I don't know you but my heart is broken. I love you and hopefully we will meet one day. 😘

  • @scottbever2057
    @scottbever2057 Před rokem +7

    What a wonderful angel! So sorry for her early departure!

  • @kramsdrawde8159
    @kramsdrawde8159 Před rokem +4

    Just speaking as 1 man, I could never have children if I knew this would be passed to my children, so sorry this happens to people, especially in the prime of life for most, the duty of man is to do good to your neighbor and LOVE GOD ... not much else matters ... pray for the son lest he perish too at such a young age...

  • @pattykochenower4222
    @pattykochenower4222 Před rokem +7

    What a beautiful tribute for a beautiful mama . ❤️❤️❤️😢

  • @marenawhite3322
    @marenawhite3322 Před rokem +3

    Not every terrible disease is transmitted to our children, let people live their lives with what knowledge and courage they have!!!

  • @AafiasNaani22
    @AafiasNaani22 Před rokem +14

    Beautiful tribute to a beautiful soulx

  • @jennyg4148
    @jennyg4148 Před rokem +8

    My thoughts & prayers to her family 😪

  • @tonigrace5707
    @tonigrace5707 Před rokem +17

    This is heartbreaking

  • @christinabarron9176
    @christinabarron9176 Před rokem +2

    Heartbreaking!!I pray this beautiful woman will be blessed a miracle she deserves it!

    • @sandgrownun66
      @sandgrownun66 Před 10 měsíci

      There are no miracles, only scientists trying to find a cure.

  • @peterpierce9233
    @peterpierce9233 Před rokem +3

    I lost my wife to AML Leukemia in 2011. 20 years together she fought the fight. God never gave us time to say goodbye.

    • @sandgrownun66
      @sandgrownun66 Před 10 měsíci

      Apparently, your god likes to let people suffer.

  • @lj9524
    @lj9524 Před rokem +12

    God bless her and her family💔🙏🙏

    • @sandgrownun66
      @sandgrownun66 Před 10 měsíci

      But your god never blesses, instead just watches people suffer. Why is the question. What have these people done to deserve this?

  • @minxxmemm
    @minxxmemm Před rokem +2

    God bless this family. I took care of my dad at home on lifesupport with my mom. He has ALS so I absolutely understand the hell of these diseases

    • @sandgrownun66
      @sandgrownun66 Před 10 měsíci

      But your god never blesses, when it's actually needed.

  • @lorenamooneyham5670
    @lorenamooneyham5670 Před 10 měsíci

    May God Bless you and your. And I'm so glad that she left you with a special gift from God

  • @metropcs7560
    @metropcs7560 Před rokem +2

    What a life and story, I am so praying everyday to seeing this. God bless this family.

  • @Beverley-yf5ec
    @Beverley-yf5ec Před 8 dny

    Oh wow, this was so heartbreaking to watch, but my, the absolute genuine love of these two beautiful persons together just totally reinforced my faith in humankind. I totally rely on Jesus, my Saviour to guide, guard and empower me in doing His will, whatever season I am in and whatever I am going through. Sending so much love and prayers to the family, God Bless y'all ❤️

  • @dizzydaydream9647
    @dizzydaydream9647 Před 10 měsíci +1

    Thank you for sharing your very moving story. My thoughts are with you all xx My friend died of MND at the age of 52. From diagnosis to her death was 10 months. This condition is vile. RIP Squidge (aka Miss T). I think about you every day. 💕

  • @kathykay2010
    @kathykay2010 Před rokem +2

    "She is not gone forever, Lara is just away."
    This is so sad and my heart and prayers go out to everyone
    affected by this terrible disease. God bless and keep you all...

    • @sandgrownun66
      @sandgrownun66 Před 10 měsíci

      God bless. Where? Your god loves watching people suffer.

  • @figmo397
    @figmo397 Před rokem +3

    Alas, Lara passed away in October of 2021. RIP.

  • @gwendolynalbert4341
    @gwendolynalbert4341 Před rokem +1

    Yes my heart goes out to her family, husband and son. My dad had this is it was difficult to watch.

  • @davidfleck6700
    @davidfleck6700 Před rokem +14

    I hope that she did not pass this on to her son because it's not fair it's a death sentence when you have ALS my husband passed away from it he had it for three and a half years and it wasn't hereditary and he doesn't know how he got it this is so sad I hope her son does not have als in his system

  • @bettyboop3353
    @bettyboop3353 Před rokem +3

    My son was born with a heart defect. When my son was dying in the hospital there was another baby in the room next to him. That baby was screaming in pain almost all the time. I was talking to the mother in the waiting room when she told me that this was her 3rd baby to die from the same condition. They hoped the next one❤ would be born normal. How could these parents put 3 children through such torture not to mention the the heartbreak they suffered as well. I was appalled when she said they were going to try again. SMH

  • @minervakent5749
    @minervakent5749 Před rokem

    Sir Adam, Lara lived happy days with you. Thank you.... bendiciones... From Colombia

  • @davidpendry7731
    @davidpendry7731 Před 10 měsíci

    What a beautiful video.
    Why do the nicest people have to face the worst things possible
    I know the long cancer journey when my wife Michelle who had the BRCA 1 gene . Breast Cancer leading to Ovarian cancer
    Much love to you all from near Melbourne Australia.
    One day I pray they will find a cure for MN D
    What a beautiful Choice of song too
    ❤❤❤❤❤

  • @sonjabernard8994
    @sonjabernard8994 Před rokem +2

    So sorry for her and family on this journey to go home. I have IPF and understand the respiratory part. Looks like these two making the most of their lives with travel and children

  • @evelynbeightel2246
    @evelynbeightel2246 Před rokem +3

    This is so so sad!! They have a handsome little boy. It is so sad she will not see him grow up. Prayers to her family🙏🙏🙏🙏🙏😭😭😭😭😭

    • @franklinstephen3268
      @franklinstephen3268 Před rokem

      👋i hope you're safe over there? I hope this year brings happiness prosperity love and peace 💞❤️🕊️🕊️ all over the world 🙏🌍
      I'm originally from Canada currently living in California ☀️☀️☀️and you where are you from if i may ask?

  • @marcie685
    @marcie685 Před rokem +5

    20 years next December 2023 my poor mum at 73 years young passed away after 3 short years from this terrible disease I was her carer I am so glad now that there is a choice for people who have these terrible diseases to end their suffering before it gets so unbearable because that’s what mum wanted but couldn’t have.

  • @jenwhitehead4092
    @jenwhitehead4092 Před 10 měsíci +1

    Oh my heart, I'm crying my eyes out for this family x

  • @mad9023
    @mad9023 Před rokem +3

    I had no idea about this awful diagnosis ~ would be awful for both Adam & Thomas to watch, surely will see their beautiful Mom & Wife again @ Heavens gate ✝️💜

    • @principecaprincipeca2243
      @principecaprincipeca2243 Před rokem

      I hope he re-marries. He is still young and can find a new love the boy would have a mother figure. And I hope the boy didn't inherit this disease.

    • @sandgrownun66
      @sandgrownun66 Před 10 měsíci

      Why would have known about it. Did you know them?

    • @sandgrownun66
      @sandgrownun66 Před 10 měsíci

      @@principecaprincipeca2243 By the time the kid grows up, there will be a treatment for this. Science is trying to do, what god obviously can't.

  • @KristalLuevano-fj5mv
    @KristalLuevano-fj5mv Před 9 měsíci

    Aww i really like how the photos show there love, good looking family! Beautiful child she had😢

  • @jaynegriffths534
    @jaynegriffths534 Před rokem +2

    My dad died of mnd he was diagnosed on the 13th of August 2008 he passed away 20th of October 2008 he kept his sence of humour right up until he could no longer talk that was 24 hours before he died I miss my dad every day my thoughts are with everyone who has this awful illness and families and friends who are are with you god bless you all xxx❤

    • @tlets
      @tlets Před rokem +1

      same with my dad he passed very soon after his speach went, a blessing in a way. because mentally he was struggling watching himself deteriorate like he did.

    • @jaynegriffths534
      @jaynegriffths534 Před rokem

      Thank you for reading my comment ❤

    • @jaynegriffths534
      @jaynegriffths534 Před rokem

      My thoughts are with you and your family and friends I am so sorry for your lose of your dad two dads looking down on us xx❤

    • @ankitamishra3687
      @ankitamishra3687 Před 11 měsíci

      Lost my mother to MND within few months of diagnosis . Was very devastating seeing her deteriorating condition.

  • @ntroudart
    @ntroudart Před 10 měsíci

    I love that the pictures presented are of Lara looking beautiful and full of life.

  • @guitardee1
    @guitardee1 Před 10 měsíci +3

    My mum and my sister both died from MND. It’s a heartbreaking condition. Edit: we daughters had all had our children by the time it reared it’s head and I worry constantly about them going forward. Mum was 70, my sister 56. I’ll be gone before they reach those ages.

    • @LinA-it9vd
      @LinA-it9vd Před 10 měsíci

      I’m so sorry to hear your story. 💕

  • @sheilacarter7875
    @sheilacarter7875 Před rokem +24

    Has Laura passed as l noticed this video is 3 years old.Was there any update on her? Truly heartbreaking, l just pray the little boy will escape this terrible disease.

    • @jennifer7648
      @jennifer7648 Před rokem +3

      I would assume so since 3 years ago she couldn't walk anymore and couldn't do much for herself. The video said she was declining fast back then.

    • @sheilacarter7875
      @sheilacarter7875 Před rokem +6

      @@jennifer7648 I asked as usually someone posts that the person passed.l could assume but just wanted to know if she lived much longer than the post.

    • @sheilacarter7875
      @sheilacarter7875 Před rokem +8

      Thank you for letting me know,the other reply about assuming l found sarcastic.Thank you

    • @annewhite5730
      @annewhite5730 Před rokem +1

      She died in October 21 ❤

    • @sheilacarter7875
      @sheilacarter7875 Před rokem

      @@annewhite5730 Thank you 💕

  • @considerthis253
    @considerthis253 Před rokem +6

    What a beautiful person who loved deeply. I'm so sorry for the pain this awful disease has caused your family. May God give all of you peace, and may He give this world a cure.

    • @sandgrownun66
      @sandgrownun66 Před 10 měsíci

      God didn't do much when she was ill. So why bother later.

    • @considerthis253
      @considerthis253 Před 10 měsíci

      @@sandgrownun66 , may He also heal in you whatever has caused you to feel so bitter. He gives each of us thousands of blessings every day that are easy to take for granted. Someday we'll understand far more than we do right now about why things happen the way they do.

    • @sandgrownun66
      @sandgrownun66 Před 10 měsíci

      @@considerthis253 Who's this "he" you're referring to? Some old dude with a white beard floating on a cloud. Why is your supposed god, male too. Couldn't she be a bearded lady instead?
      "Someday we'll understand far more than we do right now". And if we do, that ain't gonna be through some old book written by ignorant men (no women of course, they were kept uneducated), who didn't know ant better. No, it's going to be through logic, reason and facts, discovered through science. Without any need for religion at all.

  • @kmfox4982
    @kmfox4982 Před rokem

    I'm so sorry for your loss. But its beautiful and powerful video of your lives together. Your daughter looks just like her. .at God go with you and Bless your steps forward. May the Holy Spirit comfort and erap himself around you in perfect peace .thank you for sharing your story.

  • @edkiggans1626
    @edkiggans1626 Před rokem +2

    Prayers and HUGS to Lara and her family! 🙏🙏🙏🙏🙏🙏🙏❤️❤️❤️❤️❤️❤️❤️😭😭😭😭😭😭

    • @jancraig9298
      @jancraig9298 Před rokem

      Do you know if this young lady is still
      Alive?

    • @sandgrownun66
      @sandgrownun66 Před 10 měsíci

      Prayers are useless. Only science will cure this.

  • @madeleinejohnston4790
    @madeleinejohnston4790 Před 11 měsíci

    ALMIGHTY GOD BLESS AND HAVE MERCY ON YOU AND YOURS ALWAYS, IN THE PRECIOUS NAME OF JESUS CHRIST, OUR LORD AND SAVIOUR, AMEN

  • @Lana-oe3qy
    @Lana-oe3qy Před rokem +169

    I really feel for this family but to have more children that could also be afflicted isn't fair to those children. Just my belief

    • @jordanbdailey
      @jordanbdailey Před rokem +23

      My guess is that they did IVF, so they could have tested the embryos for the faulty gene, ensuring that only those without the gene were implanted.

    • @user-on6on3fu8n
      @user-on6on3fu8n Před rokem +14

      I completely agree with you

    • @MaryJane-qq9mm
      @MaryJane-qq9mm Před rokem +53

      I believe it's not your business!!

    • @upforachallenge2024
      @upforachallenge2024 Před rokem +38

      What an unbelievable comment! Freaking unreal. Some people have no compassion and a whole lot of ignorance!

    • @agirldownunder9299
      @agirldownunder9299 Před rokem +19

      Why don't we all stop having children they are all likely to inherit something to die from or worse just by happenchance be born with something not genetic🥺

  • @taylordelao437
    @taylordelao437 Před rokem +99

    With all the respect that she and her family deserve...if she knew about her disease, why she had a child? Probably he will be condemned to suffer the same illness...I don't understand the people..forgive my thoughts...forgive me..God bless the soul of such a beautiful woman.

    • @helenastrandberg772
      @helenastrandberg772 Před rokem +9

      What makes you asume that her son will inherit her disease? It doesn't say anything about that in the video.

    • @jessicacolon1376
      @jessicacolon1376 Před rokem +51

      @@helenastrandberg772 Because her family history her father, Grandmother, Great Grandfather, her Auntie and other relatives passed away because de disease.

    • @AafiasNaani22
      @AafiasNaani22 Před rokem

      Helena Strandberg her son will have a 50% chance of inherting the disease.

    • @mindyu3478
      @mindyu3478 Před rokem +30

      This is exactly what I was thinking. Maybe they did genetic testing while he was in the womb. I hope so.

    • @jenniferbowie2773
      @jenniferbowie2773 Před rokem +5

      @@mindyu3478I hope so but prob not if they have socialized medical but at least people don’t get it until adulthood and maybe they will have a cure by them

  • @bettygann
    @bettygann Před rokem

    Beautiful lady and family so heartbreaking glad she had a good husband and family seems she enjoyed her life God Bless

  • @daviddunn773
    @daviddunn773 Před rokem +3

    I have Stiff person syndrome sounds all most like the same thing im on a walker now i cant drive its so sad things like this happen

  • @thebreezelife
    @thebreezelife Před rokem +14

    I don't know why this was in my recommendations. Condolences to the family but if you knew you had this and it was that prevalent in your family why on earth would you have a child and possibly condemn them to your same fate and death at an early age? The best way to stop these diseases is by people avoiding passing it on to the next generation if it's a genetic thing. With all do respect.

  • @mariemelendez917
    @mariemelendez917 Před rokem

    My prayers for this beautiful young woman. 🙏

  • @rosamundmundy6966
    @rosamundmundy6966 Před rokem +15

    So sad 😞.. so many people seem to be getting this horrid disease.. i hope her little boy hasnt inherated it..

  • @catrinahartz944
    @catrinahartz944 Před 10 měsíci

    God bless this family. 🙏 you will see her in heaven one day soon. ❤ shes your guardian angel. You will be together forever in heaven

  • @armlovesmetal1036
    @armlovesmetal1036 Před 10 měsíci +2

    This story has me tears for Lara and her family. What a beautiful family. I hope there has been progress to treat this horrible disease. Perhaps someday science can use gene therapy since it seems like the disease is somewhat inherited.

    • @warpedweft9004
      @warpedweft9004 Před 10 měsíci

      not always. My MIL passed recently from MND. There's no history of it in the family. She was in her late 80s.

  • @TheSoulpapa
    @TheSoulpapa Před 9 měsíci

    🙏R.I.P.🙏
    May your spirit live on and in that beautiful child. I pray that your husband and son have a genuinely blessed life with you looking down upon them. 💔❤️‍🩹❤️❤️‍🔥

  • @shellybucci3196
    @shellybucci3196 Před rokem +1

    Many many prayers for your family at this very very difficult time.🙏🙏🙏

    • @sandgrownun66
      @sandgrownun66 Před 10 měsíci

      Prayers don't work, only science does.

  • @anaanastasoglou9498
    @anaanastasoglou9498 Před rokem +1

    Very sad story, so young. I did some reading about this terrible desease, and it says that if you have this desease there is a 50/50 chance that your children might inherit it too. i do not know anything about her son, if they ran a test while she was pregnant or anything in order to determine if there was a possibility he could get it too. Hopefully not. God bless him.

  • @carleegamesandshorts9790
    @carleegamesandshorts9790 Před 11 měsíci

    Absolutely heartbreaking. I'm so sorry.

  • @sheliafarmer
    @sheliafarmer Před 10 měsíci +1

    So sorry for your loss, They named all the family members who died this horrible death, why would you bring another person that could have this, and leave this child so young without his mom, and a dad to raise him

  • @renatacantore3684
    @renatacantore3684 Před rokem +1

    The Lord needed another Angel ♥️💐

  • @oliviaadan8208
    @oliviaadan8208 Před rokem +1

    There r so many diseases that need a cure...what a beautiful lady

  • @davenc8527
    @davenc8527 Před rokem +2

    Lovely woman. God Bless her and her family.

  • @DeborahMoffett
    @DeborahMoffett Před 10 měsíci

    The music is absolutely beautiful excellent choice ❤️❤️

  • @joannklinner2284
    @joannklinner2284 Před rokem

    Praying for her family. I am so sorry

  • @TeeNicole10
    @TeeNicole10 Před rokem +1

    RIP YOU BEAUTIFUL QUEEN 💔💖🙏🙌

  • @belevhersboutique4727

    Condolences to you and your family 🙏🏽🙏🏽🙏🏽 for and abundance of peace strength and sweet memories to last you a lifetime

  • @marydeleon3756
    @marydeleon3756 Před rokem +1

    This is truly heartbreaking. I pray for all those afflicted by this horrible disease. 🙏

    • @sandgrownun66
      @sandgrownun66 Před 10 měsíci

      Prayers are pointless. As your god let's people suffer. It will be scientists who find a treatment for this.

  • @jeaniepetropoulos2878

    So sad. What a beautiful video. 🙏🏻

  • @rosesippel2932
    @rosesippel2932 Před rokem +4

    Such a devastating disease 😢

  • @kurianmathew9440
    @kurianmathew9440 Před rokem +1

    Hallelujah Lara
    I’ll see you there and have a wonderful time with our God!

  • @vickibodnar4087
    @vickibodnar4087 Před rokem

    A beautiful life that shall continue in your memories you leave behind….❤

  • @lisacelentano3934
    @lisacelentano3934 Před rokem +2

    That alleluia song perfect wish I new
    Who sang that??? None of us are coming out this life alive. We take risks not knowing what our lives will bring tomorrow. Trusting a loving ❤️ God as we live in a imperfect world longing for his return! Hoping in confidence that we will see the ones we hv missed and lost for so long. Rain falls on just and the unjust.

  • @warpedweft9004
    @warpedweft9004 Před 10 měsíci

    Its not always a short time between diagnosis and end of life. My MIL recently passed away from MND. She was in her late 80s. It was about 5 years from diagnosis, 7 from when we first realised anything was wrong. The first thing was slurring of her speech and onset of dementia. Within 4 years she could no longer look after herself or communicate. It was a further 3 years from then. What we saw was sudden drops in her health and strength and then plateaus of weeks to a number of months before the next drop.
    There has been no sign of MND in my MIL's family, so we have no idea where it came from. There were certain environmental factors that could have been the culprit, but we'll never know.

  • @lucycolgan3362
    @lucycolgan3362 Před rokem

    Heartbraking such an stunning Lady rip x

  • @rhondaphillips432
    @rhondaphillips432 Před rokem

    This breaks my heart ❤💙💜💖💗💘 I'm so sorry for her family and friends. The Lord don't always give us answers, but I KNOW HE HAS A REASON AND PURPOSE, HE IS GOD, THE ALL KNOWING LORD OF THIS UNIVERSE.

  • @PastaMakerCordy-qy4uz
    @PastaMakerCordy-qy4uz Před 11 měsíci

    Beautiful tribute

  • @njsmkmmsthatsit3518
    @njsmkmmsthatsit3518 Před rokem +4

    Such a savage disease and it's so quick.

  • @SuperBotanica
    @SuperBotanica Před rokem +4

    what i don't understand why children are still being born with this medical family background. i would decide against it with the fear in my head that it might also be a death sentence for my child.

    • @franklinstephen3268
      @franklinstephen3268 Před rokem

      👋i hope you're safe over there? I hope this year brings happiness prosperity love and peace 💞❤️🕊️🕊️ all over the world 🙏🌍
      I'm originally from Canada currently living in California ☀️☀️☀️and you where are you from if i may ask?

  • @carolynsirianni1251
    @carolynsirianni1251 Před rokem

    I pray for a miracle for her. 🙏

  • @stryker819
    @stryker819 Před 10 měsíci

    So horrible!
    God will carry you through this!

  • @linzzzanity
    @linzzzanity Před rokem +6

    Let me get this straight. She had multiple family members die from this genetic disease. And she has a child? Were they able to do in utero genetic testing for the mutation?

  • @bridiellewellyn8469
    @bridiellewellyn8469 Před 9 měsíci +1

    Heartbreaking x

  • @yohalliar4625
    @yohalliar4625 Před 9 měsíci

    God Bless you