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MND SA
Registrace 26. 09. 2017
Video
Ian and Pauline's MND Story - MNDSA Winter Appeal 2024
zhlédnutí 203Před 2 měsíci
Please give generously: mndsa-2024-winter-appeal.raiselysite.com/ Every day in Australia, two people are diagnosed with Motor Neurone Disease (MND) and two people die from the disease. The average life expectancy of someone diagnosed with MND is just 27 months! People with MND can lose their independence extremely quickly and there is no treatment, no cure, and no remission. An urgent gift toda...
Karen Percival MNDSA CEO
zhlédnutí 60Před rokem
Taking on the MNDSA Fundraising Trek for the second year in a row
Stephen & Alice trek Larapinta in support of MNDSA
zhlédnutí 102Před rokem
Stephen & Alice trek Larapinta in support of MNDSA
Prof. David Shultz walks Larapinta in support of MNDSA
zhlédnutí 12Před rokem
Prof. David Shultz walks Larapinta in support of MNDSA
Greg's Story
zhlédnutí 4,4KPřed 2 lety
Greg’s shares his journey since diagnosis with MND in December 2015.
Diet, Nutrition, Eating & Drinking with MND
zhlédnutí 660Před 3 lety
Dietician Liz Kapur discusses the importance of nutrition and weight maintenance strategies for people living with MND.
Swallowing and Secretions Management in MND
zhlédnutí 529Před 3 lety
Speech Pathology and the the swallowing disorders team in MND care.
Gastrostomy and PEG Feeding
zhlédnutí 91Před 3 lety
Dietician Liz Kapur and Speech Pathologist Megan Hide discuss eating, nutrition, appetite and Gastrostomy's and PEG Feeding.
Dawn's Story - 2021 Tax Appeal
zhlédnutí 933Před 3 lety
Dawn is a fiercely strong woman with a wicked sense of humour. She has also been living with MND for over two years. Dawn and her family rely on us at MND SA to help provide them with the best possible care and support, and we rely on your generosity.
MND, end of life and dying. Dr Allcroft and Aiyappan
zhlédnutí 802Před 3 lety
MND, end of life and dying. Dr Allcroft and Aiyappan
Palliative and end of life care in MND Dr Peter Allcroft
zhlédnutí 1KPřed 3 lety
Palliative and end of life care in MND Dr Peter Allcroft
Breathing, respiratory care and ventilation Dr Vinod Aiyappan
zhlédnutí 229Před 3 lety
Breathing, respiratory care and ventilation Dr Vinod Aiyappan
Oh wow, this was so heartbreaking to watch, but my, the absolute genuine love of these two beautiful persons together just totally reinforced my faith in humankind. I totally rely on Jesus, my Saviour to guide, guard and empower me in doing His will, whatever season I am in and whatever I am going through. Sending so much love and prayers to the family, God Bless y'all ❤️
What a beautifully song. I hate this disease
Such a cruel devastating disease, we lost our healthy, athletic son to this at the age of 40 years old 😢
That is a horrible disease and a torturous way to die. Was she pregnant before she received her diagnosis, I can’t imagine bringing my child into this world knowing they could have this same awful disease.
Why would someone like that have a child?? What the ??? Selfish.
Cruel, cruel disease.
🙏R.I.P.🙏 May your spirit live on and in that beautiful child. I pray that your husband and son have a genuinely blessed life with you looking down upon them. 💔❤️🩹❤️❤️🔥
Its incredible that Stephen Hawkins lived 50+ years with this diease. Its like God kept him alive because his mind had so much to contribute
I hope that baby boy doesnt get this horrible thing
I’m sorry did that say she was diagnosed before she got married, so her and her husband made the decision to have a baby and pass this horrific disease to her. I’m sorry but that is sickening to me. How could you bring in a innocent child into the world that will die very early in life. Unless they went threw genetic and was tested but really folks who really does that nope they just keep having babies. I’m sorry but when are parents going to step up and stop producing these terrible diseases and put an end to them. I can see if you didn’t know and had a child and found out but they still caring on having children. I’m sorry but I really believe it’s selfish of parents.
Heartbreaking x
That disease is a generational curse in her family. I hope her son doesn't die from that disease.😢
Hi there. Physiotherapist here in Adelaide. I recently began working with an mnd patient. Just wanted to say thank you to whoever had the foresight to put these up on CZcams. It's been invaluable.
So sorry for all of you, but having a Baby with this Family sickness ist a crime. 😢
I pray that the baby won’t be affected and, altho I do understand that most every person wants to be a parent, I don’t think it’s a right for a person with a disease like this (as well as a family history of it) to reproduce. I feel it’s selfish to do that.
God Bless you
She married her Father? That’s why her kids are messed up. You can’t marry a direct relative and expect to have perfect kids.
Aww i really like how the photos show there love, good looking family! Beautiful child she had😢
♥️🕊️
Hope she did get known Jesus before she left
May God Bless you and your. And I'm so glad that she left you with a special gift from God
What a beautiful video. Why do the nicest people have to face the worst things possible I know the long cancer journey when my wife Michelle who had the BRCA 1 gene . Breast Cancer leading to Ovarian cancer Much love to you all from near Melbourne Australia. One day I pray they will find a cure for MN D What a beautiful Choice of song too ❤❤❤❤❤
Omg 💔 😢
So sad❤
Its not always a short time between diagnosis and end of life. My MIL recently passed away from MND. She was in her late 80s. It was about 5 years from diagnosis, 7 from when we first realised anything was wrong. The first thing was slurring of her speech and onset of dementia. Within 4 years she could no longer look after herself or communicate. It was a further 3 years from then. What we saw was sudden drops in her health and strength and then plateaus of weeks to a number of months before the next drop. There has been no sign of MND in my MIL's family, so we have no idea where it came from. There were certain environmental factors that could have been the culprit, but we'll never know.
🌹
❤
there must be no god to allow this :(
So sad….😢
Why bring a child in to the world?
♥️🙏💫She is in heaven with God and Jesus Christ no 🙏♥️💫🇳🇴God Bless ❤
So horrible! God will carry you through this!
it seems to me like it is inherited? if that is so why would you have a child? just curious if it is or not? bless that poor man losing his wife so young. and bless that baby having to grow up with his momma.
So sorry for your loss, They named all the family members who died this horrible death, why would you bring another person that could have this, and leave this child so young without his mom, and a dad to raise him
What a stunningly beautiful woman.
I’m so sorry. Even harder when she knows the disease intimately through her own family members. is a horrible way to die. God bless!
There are no words…..
Thank you for sharing your very moving story. My thoughts are with you all xx My friend died of MND at the age of 52. From diagnosis to her death was 10 months. This condition is vile. RIP Squidge (aka Miss T). I think about you every day. 💕
My mum and my sister both died from MND. It’s a heartbreaking condition. Edit: we daughters had all had our children by the time it reared it’s head and I worry constantly about them going forward. Mum was 70, my sister 56. I’ll be gone before they reach those ages.
I’m so sorry to hear your story. 💕
God bless this family. 🙏 you will see her in heaven one day soon. ❤ shes your guardian angel. You will be together forever in heaven
This story has me tears for Lara and her family. What a beautiful family. I hope there has been progress to treat this horrible disease. Perhaps someday science can use gene therapy since it seems like the disease is somewhat inherited.
not always. My MIL passed recently from MND. There's no history of it in the family. She was in her late 80s.
🙏🙏🙏🙏🙏🙏🙏🙏❤️❤️❤️
Not fair to the baby - caring that awful gene -
We wouldn’t never like being LIED to so please READ these Scriptures : Matthew 5:5 , John 3:13 , John 5:22 to 28 , 1 Corinthians 15 :15 to 58 especially verses 22 & 23 , Revelation Chapter 20:1 to 15 , & Chapter 21:1 & 2 ! We are AWAITING His Second Coming ! ❤
Oh my heart, I'm crying my eyes out for this family x
I pray that her son does not carry this dreadful disease. God Bless.
Let us hope that he is an IVF baby, who had pre-implantation genetic testing done. Otherwise, he probably will suffer the same fate as his mother.
LYME DISEASE!! I know 4 people MISDIAGNOSED with MS & ALS. It was Lyme. Today, they are better after treatment. Systemic infections such as Lyje, Babesiosis, Micoplasma & Q fever cause neuro- muscular loss. I lost my ability to walk with Lyme. Absolutely heartbreaking she was most likely misdiagnosed.
Did you even watch the video? Her mnd is genetic, nothing at all to do with Lyme disease, Muppet 🙄🙄🙄
I love that the pictures presented are of Lara looking beautiful and full of life.
Omg im crying
So heartbreaking 💔💔🙏🏼🙏🏼🙏🏼