MND SA
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Video

Obi Feeder w/ Clare - MNDSA
zhlédnutí 20Před 2 měsíci
Obi Feeder w/ Clare - MNDSA
Assist Drive w/ Oliver - MNDSA
zhlédnutí 46Před 2 měsíci
Assist Drive w/ Oliver - MNDSA
Ian and Pauline's MND Story - MNDSA Winter Appeal 2024
zhlédnutí 203Před 2 měsíci
Please give generously: mndsa-2024-winter-appeal.raiselysite.com/ Every day in Australia, two people are diagnosed with Motor Neurone Disease (MND) and two people die from the disease. The average life expectancy of someone diagnosed with MND is just 27 months! People with MND can lose their independence extremely quickly and there is no treatment, no cure, and no remission. An urgent gift toda...
Karen Percival MNDSA CEO
zhlédnutí 60Před rokem
Taking on the MNDSA Fundraising Trek for the second year in a row
Stephen & Alice trek Larapinta in support of MNDSA
zhlédnutí 102Před rokem
Stephen & Alice trek Larapinta in support of MNDSA
Prof. David Shultz walks Larapinta in support of MNDSA
zhlédnutí 12Před rokem
Prof. David Shultz walks Larapinta in support of MNDSA
MNDSA EOFY Tax Appeal
zhlédnutí 60Před rokem
Breanda shares why your donation helps immensely
MNDSA Christmas Appeal 2023
zhlédnutí 472Před rokem
Brenda shares her experience of living with MND
Greg's Story
zhlédnutí 4,4KPřed 2 lety
Greg’s shares his journey since diagnosis with MND in December 2015.
Graham Johnson Story
zhlédnutí 3KPřed 2 lety
Graham shares his journey with MND.
Diet, Nutrition, Eating & Drinking with MND
zhlédnutí 660Před 3 lety
Dietician Liz Kapur discusses the importance of nutrition and weight maintenance strategies for people living with MND.
Swallowing and Secretions Management in MND
zhlédnutí 529Před 3 lety
Speech Pathology and the the swallowing disorders team in MND care.
Gastrostomy and PEG Feeding
zhlédnutí 91Před 3 lety
Dietician Liz Kapur and Speech Pathologist Megan Hide discuss eating, nutrition, appetite and Gastrostomy's and PEG Feeding.
Dawn's Story - 2021 Tax Appeal
zhlédnutí 933Před 3 lety
Dawn is a fiercely strong woman with a wicked sense of humour. She has also been living with MND for over two years. Dawn and her family rely on us at MND SA to help provide them with the best possible care and support, and we rely on your generosity.
MND, end of life and dying. Dr Allcroft and Aiyappan
zhlédnutí 802Před 3 lety
MND, end of life and dying. Dr Allcroft and Aiyappan
Palliative and end of life care in MND Dr Peter Allcroft
zhlédnutí 1KPřed 3 lety
Palliative and end of life care in MND Dr Peter Allcroft
Breathing, respiratory care and ventilation Dr Vinod Aiyappan
zhlédnutí 229Před 3 lety
Breathing, respiratory care and ventilation Dr Vinod Aiyappan
Meet Greg and Jean
zhlédnutí 238Před 4 lety
Meet Greg and Jean

Komentáře

  • @Beverley-yf5ec
    @Beverley-yf5ec Před měsícem

    Oh wow, this was so heartbreaking to watch, but my, the absolute genuine love of these two beautiful persons together just totally reinforced my faith in humankind. I totally rely on Jesus, my Saviour to guide, guard and empower me in doing His will, whatever season I am in and whatever I am going through. Sending so much love and prayers to the family, God Bless y'all ❤️

  • @SherryParrish-z7n
    @SherryParrish-z7n Před měsícem

    What a beautifully song. I hate this disease

  • @dougmartin4234
    @dougmartin4234 Před měsícem

    Such a cruel devastating disease, we lost our healthy, athletic son to this at the age of 40 years old 😢

  • @leslievanduzee9282
    @leslievanduzee9282 Před 9 měsíci

    That is a horrible disease and a torturous way to die. Was she pregnant before she received her diagnosis, I can’t imagine bringing my child into this world knowing they could have this same awful disease.

  • @KateGrace2590
    @KateGrace2590 Před 9 měsíci

    Why would someone like that have a child?? What the ??? Selfish.

  • @olivedog1880
    @olivedog1880 Před 9 měsíci

    Cruel, cruel disease.

  • @TheSoulpapa
    @TheSoulpapa Před 9 měsíci

    🙏R.I.P.🙏 May your spirit live on and in that beautiful child. I pray that your husband and son have a genuinely blessed life with you looking down upon them. 💔❤️‍🩹❤️❤️‍🔥

  • @1tommyday
    @1tommyday Před 9 měsíci

    Its incredible that Stephen Hawkins lived 50+ years with this diease. Its like God kept him alive because his mind had so much to contribute

  • @1tommyday
    @1tommyday Před 9 měsíci

    I hope that baby boy doesnt get this horrible thing

  • @kimhickman9210
    @kimhickman9210 Před 10 měsíci

    I’m sorry did that say she was diagnosed before she got married, so her and her husband made the decision to have a baby and pass this horrific disease to her. I’m sorry but that is sickening to me. How could you bring in a innocent child into the world that will die very early in life. Unless they went threw genetic and was tested but really folks who really does that nope they just keep having babies. I’m sorry but when are parents going to step up and stop producing these terrible diseases and put an end to them. I can see if you didn’t know and had a child and found out but they still caring on having children. I’m sorry but I really believe it’s selfish of parents.

  • @bridiellewellyn8469
    @bridiellewellyn8469 Před 10 měsíci

    Heartbreaking x

  • @Attorney.42
    @Attorney.42 Před 10 měsíci

    That disease is a generational curse in her family. I hope her son doesn't die from that disease.😢

  • @firaselachkar4159
    @firaselachkar4159 Před 10 měsíci

    Hi there. Physiotherapist here in Adelaide. I recently began working with an mnd patient. Just wanted to say thank you to whoever had the foresight to put these up on CZcams. It's been invaluable.

  • @carolinepfeil6184
    @carolinepfeil6184 Před 10 měsíci

    So sorry for all of you, but having a Baby with this Family sickness ist a crime. 😢

  • @sandimccracken2781
    @sandimccracken2781 Před 10 měsíci

    I pray that the baby won’t be affected and, altho I do understand that most every person wants to be a parent, I don’t think it’s a right for a person with a disease like this (as well as a family history of it) to reproduce. I feel it’s selfish to do that.

  • @yohalliar4625
    @yohalliar4625 Před 10 měsíci

    God Bless you

  • @daveshondel5108
    @daveshondel5108 Před 10 měsíci

    She married her Father? That’s why her kids are messed up. You can’t marry a direct relative and expect to have perfect kids.

  • @KristalLuevano-fj5mv
    @KristalLuevano-fj5mv Před 10 měsíci

    Aww i really like how the photos show there love, good looking family! Beautiful child she had😢

  • @IAm24KAritz
    @IAm24KAritz Před 10 měsíci

    ♥️🕊️

  • @user-nl9qu5io2g
    @user-nl9qu5io2g Před 11 měsíci

    Hope she did get known Jesus before she left

  • @lorenamooneyham5670
    @lorenamooneyham5670 Před 11 měsíci

    May God Bless you and your. And I'm so glad that she left you with a special gift from God

  • @davidpendry7731
    @davidpendry7731 Před 11 měsíci

    What a beautiful video. Why do the nicest people have to face the worst things possible I know the long cancer journey when my wife Michelle who had the BRCA 1 gene . Breast Cancer leading to Ovarian cancer Much love to you all from near Melbourne Australia. One day I pray they will find a cure for MN D What a beautiful Choice of song too ❤❤❤❤❤

  • @liliapatriciareynoso2525
    @liliapatriciareynoso2525 Před 11 měsíci

    Omg 💔 😢

  • @bettinakrugermenschenkind9673

    So sad❤

  • @warpedweft9004
    @warpedweft9004 Před 11 měsíci

    Its not always a short time between diagnosis and end of life. My MIL recently passed away from MND. She was in her late 80s. It was about 5 years from diagnosis, 7 from when we first realised anything was wrong. The first thing was slurring of her speech and onset of dementia. Within 4 years she could no longer look after herself or communicate. It was a further 3 years from then. What we saw was sudden drops in her health and strength and then plateaus of weeks to a number of months before the next drop. There has been no sign of MND in my MIL's family, so we have no idea where it came from. There were certain environmental factors that could have been the culprit, but we'll never know.

  • @andrea9512
    @andrea9512 Před 11 měsíci

    🌹

  • @suerolfe9451
    @suerolfe9451 Před 11 měsíci

  • @liztowers2058
    @liztowers2058 Před 11 měsíci

    there must be no god to allow this :(

  • @aescula58
    @aescula58 Před 11 měsíci

    So sad….😢

  • @tneary8319
    @tneary8319 Před 11 měsíci

    Why bring a child in to the world?

  • @kathrinekrogstad4965
    @kathrinekrogstad4965 Před 11 měsíci

    ♥️🙏💫She is in heaven with God and Jesus Christ no 🙏♥️💫🇳🇴God Bless ❤

  • @stryker819
    @stryker819 Před 11 měsíci

    So horrible! God will carry you through this!

  • @krazyfarmhomestead2239
    @krazyfarmhomestead2239 Před 11 měsíci

    it seems to me like it is inherited? if that is so why would you have a child? just curious if it is or not? bless that poor man losing his wife so young. and bless that baby having to grow up with his momma.

  • @sheliafarmer
    @sheliafarmer Před 11 měsíci

    So sorry for your loss, They named all the family members who died this horrible death, why would you bring another person that could have this, and leave this child so young without his mom, and a dad to raise him

  • @annabizaro-doo-dah
    @annabizaro-doo-dah Před 11 měsíci

    What a stunningly beautiful woman.

  • @maramirkin3325
    @maramirkin3325 Před 11 měsíci

    I’m so sorry. Even harder when she knows the disease intimately through her own family members. is a horrible way to die. God bless!

  • @elizabethcross12
    @elizabethcross12 Před 11 měsíci

    There are no words…..

  • @dizzydaydream9647
    @dizzydaydream9647 Před 11 měsíci

    Thank you for sharing your very moving story. My thoughts are with you all xx My friend died of MND at the age of 52. From diagnosis to her death was 10 months. This condition is vile. RIP Squidge (aka Miss T). I think about you every day. 💕

  • @guitardee1
    @guitardee1 Před 11 měsíci

    My mum and my sister both died from MND. It’s a heartbreaking condition. Edit: we daughters had all had our children by the time it reared it’s head and I worry constantly about them going forward. Mum was 70, my sister 56. I’ll be gone before they reach those ages.

    • @LinA-it9vd
      @LinA-it9vd Před 11 měsíci

      I’m so sorry to hear your story. 💕

  • @catrinahartz944
    @catrinahartz944 Před 11 měsíci

    God bless this family. 🙏 you will see her in heaven one day soon. ❤ shes your guardian angel. You will be together forever in heaven

  • @armlovesmetal1036
    @armlovesmetal1036 Před 11 měsíci

    This story has me tears for Lara and her family. What a beautiful family. I hope there has been progress to treat this horrible disease. Perhaps someday science can use gene therapy since it seems like the disease is somewhat inherited.

    • @warpedweft9004
      @warpedweft9004 Před 11 měsíci

      not always. My MIL passed recently from MND. There's no history of it in the family. She was in her late 80s.

  • @lantran-jq5wt
    @lantran-jq5wt Před 11 měsíci

    🙏🙏🙏🙏🙏🙏🙏🙏❤️❤️❤️

  • @loismcmillan5464
    @loismcmillan5464 Před 11 měsíci

    Not fair to the baby - caring that awful gene -

  • @neweyz3396
    @neweyz3396 Před 11 měsíci

    We wouldn’t never like being LIED to so please READ these Scriptures : Matthew 5:5 , John 3:13 , John 5:22 to 28 , 1 Corinthians 15 :15 to 58 especially verses 22 & 23 , Revelation Chapter 20:1 to 15 , & Chapter 21:1 & 2 ! We are AWAITING His Second Coming ! ❤

  • @jenwhitehead4092
    @jenwhitehead4092 Před 11 měsíci

    Oh my heart, I'm crying my eyes out for this family x

  • @kew3922
    @kew3922 Před 11 měsíci

    I pray that her son does not carry this dreadful disease. God Bless.

    • @LuLu-gc3qn
      @LuLu-gc3qn Před 11 měsíci

      Let us hope that he is an IVF baby, who had pre-implantation genetic testing done. Otherwise, he probably will suffer the same fate as his mother.

  • @lucyterrier7905
    @lucyterrier7905 Před 11 měsíci

    LYME DISEASE!! I know 4 people MISDIAGNOSED with MS & ALS. It was Lyme. Today, they are better after treatment. Systemic infections such as Lyje, Babesiosis, Micoplasma & Q fever cause neuro- muscular loss. I lost my ability to walk with Lyme. Absolutely heartbreaking she was most likely misdiagnosed.

    • @H20.
      @H20. Před 11 měsíci

      Did you even watch the video? Her mnd is genetic, nothing at all to do with Lyme disease, Muppet 🙄🙄🙄

  • @ntroudart
    @ntroudart Před 11 měsíci

    I love that the pictures presented are of Lara looking beautiful and full of life.

  • @Bubba-hr8
    @Bubba-hr8 Před 11 měsíci

    Omg im crying

  • @jaquie3648
    @jaquie3648 Před 11 měsíci

    So heartbreaking 💔💔🙏🏼🙏🏼🙏🏼