WHAT IS MLD? Metachromatic Leukodystrophy explained to all
Vložit
- čas přidán 6. 10. 2014
- yourekascience.org/portfolio/w...
What is MLD?
Metachromatic Leukodystrophy is a devastating genetic disease that comes in multiple forms and affects the myelin around neurons in the brain and spinal cord.
Learn about the different subtypes of MLD, the biology underlying the disease, and what potential treatments are available and will become available thanks to MLD research.
This video was produced in collaboration with the MLD Foundation (www.mldfoundation.org/) - Věda a technologie
God Bless anyone who is suffering from this, and to the parents God Bless you. Cant imagine the strength it takes to care for your child with this condition, I mean by having to see them hurting and all. I hope science and medical research finds something to help with this soon.
:(
Thank you for the explanations. I'm working in a special needs school and one of our student have juvenile leukodystrophy. It's very helpful, though I'm absolutely heartbroken for this kid, it pains me a lot to know his fate
Great... In simple words
It sound like i might be developing mld at 15 according to your diagnosis... how do i know if its mld or just a coincidence or if i just misunderstood something here or just over--exaggerating?
My son has PEX1 he js 61/2
My son is diagnosed with mld .i am worry.here in pakistan doctors says that there is no treatmnt ..plz any can help me abut his health..?
My son also diagnosed with MLD .Physiotherapy helps for an extent to my child. Speech therapy also..
Hey we are from germany and my brother is diagnosed with mld too, but there is no treatment..god bless u
My nephew is 3 year old.she is diagnised from MLD. pakistani dr's says that their is no treatment of this disease... Please help me for the treatment of this disease....
@@muhammadabubakar793 i belong to bhkr punjab pakistan my beloved daughter diagnosed metachromatic lekudystrophy in 3 years old (3years 5mnth) dr says no cure my daughter walking slow low diet and mouth sy loab atta h right eyes sy aor right nthny sy pani ata rehta h m r i and leb test ki base py diagnose kia gya h mn ghm sy marr jaon ga
Plz msg my wtsap 03438903608 hm ak dosry sy help ly sky meri beti 4 sal ki h mld h
My brother has this😭
Cam is 6 1/2 can’t walk or talk suffers from sezisures and is going blind
Pop p