Oh Georgie, I’m so sorry you’ve had to go through this. I hope the OT’s reassessed you properly as in need of help with nutrition as well as the necessary adaptations to your home xxxxxxxx
Thanks Penny, there’s not really any adaptations that can be done as OT & social worker have deemed it unsuitable & unsafe for me, & you can’t have any adaptations in that situation since it’s possible I could leave one day (even if it’s not for another 10 years) xx
My poor baby girl! I wish so much that I could take care of you! I pray for you every day and would give you what little strength I have left if there was a way. There should be more help for you but I don’t know the benefits or options available to you where you live. If there is anything I can do for you please just let me know. I am in the US and although we no longer have good health care, you could possibly get some kind of home care. My heart breaks for you!
I totally understand. My situation is very variable from day to day, week to week, month to month... At my worst, in a month or so I lost over 25 lb... Cooking (or even moving to the kitchen,) requires energy, eating and digesting, requires energy...and when you end up throwing it up (intact) or pooping it out within hours (intact-ish) What is the point? I force myself to eat as much as i can when I can but most of the time I feel it does me more harm than good... and yet I am still trying my best to not make my situation worse because of my diet... Love, light and spoons to all who need them!
Thank you for sharing the hard times. It's so easy online to share only the "best" moments, which gives people a false perception of reality. I've been learning that it's okay (and even good) to be yourself, all the time.
Oh girl... you poor thing... I am appauled by all the housing and care facts you talked about and having to starve yourself, cause you have no care and or they don't show up 😢😢😢 Please make sure you are taking some sort of vitamins and staying hydrated with all this throwing up 😢 praying for you 🙏🙏🙏❤
Georgina, I send you a 💐... I was in similar situations, but luckily I had (most of the time) my parents to come and help my out. But I lost weight, too and "intermittend fasting" describes how my nutrition works. Cereals often help me out. But I know how stressful it is to be aware of the own helplessness.... And could't change it. Thank you for sharing your very vulnerable times. This may be hard to view, but is often "our" daily reality with chronic illness.
So sorry you could relate to some extent 😔🫶🏽 but yes, I’ve found it helpful to see people in similar situations so I hoped this would reach people who could relate a little too
I’m so sorry you had this. Coincidentally I also had this in October of last year when my mum went abroad. I wasn’t great at recognising hunger signals or timing when I made food so I often wound up being stuck in bed by the time I realised I was hungry. It was hell and by the time she came back I was severely deficient in a bunch of things and had lost weight. Do you have the ability to get Uber eats or have a trusted one come round and give you food? I also try to keep cereal bars by my bed for when I can’t move and replenish them when I’m healthier ❤
I’m so glad you have your mum 🫶🏽 no, no Uber eats here or anyone who can help, so I’ve been like it for over 2 years now. I often get too sick to replenish the snack box by my bed
I can absolutly relate to the difficulties in meal preparation and fasting and it being easier to simply not eat. Dietary struggles are also due to digestive fatigue as I experience it. Usually if I can't break a prolonged crash within 3 weeks, all I can do is fast for a couple of days. It give my gut a rest and clears out any SIBO. It usually works to get me back to baseline where I can cook for myself again, but not always
I don’t even call it meal preparation since it can go much beyond that, to the extent that I can’t roll over & eat a cereal bar from the box by my bed, digestive fatigue is a factor for me too sometimes, sorry you go through this too 🫶🏽
Just wanted to let you know if you ever need anything at all. Just let me know. I’ve always got your back. I just wanna throw this out there. You don’t need to answer. I know you have really bad pots. I’m very medically complex. The other thing that what you’re saying reminds me of is adrenal insufficiency, or stuff under the endocrinology umbrella. Love you so much beautiful. I am so proud of you. It’s not easy but you’re doing it. You have been starving. I am so sorry. Sending positive vibes, love and strength. I’m sorry that you have to be so strong all of the time. I really wish that we all had a little community in person where we could all help each other.
Sorry to hear you’re at a low ebb. Throwing ideas out, can you buy boxes of nutrition bars to keep next to your bed for each day when you can’t get up. At the beginning I think you mentioned lights not working - if you buy a cheap echo you could then put the WiFi plugs in rooms that need lights and connect table lights to them - these are great for never having to turn a light on manually ever again when your joints hurt, and you can set to come on at regular times. Admittedly, there’s an initial cost but working towards it is worth aiming for.
Ahhh, not having help must make things super difficult :( I can only imagine how frustrating it is to not get taken as seriously as you would have if you had the other half of the thyroid. I naively thought the UK was way ahead of the US when it came to housing and aid for people with disabilities, but things seem even tougher on the other side of the pond.
Thank you for understanding, that really means a lot! England is extremely small & overpopulated, so we just don’t have enough space or housing & that contributes to the problem, the world data site says there are 275 people per square km in England, but only 35 per square kilometre in the US. But ofc there are thousands of factors that affect everything so comparisons can’t really be made
Are you getting fluids through and IV or something? That could really help! Although getting a doctor to agree is something that is REALLY hard and so exhausting
@@GeorginasJourney Oh 😯 I apologize if I'm overstepping and no need to respond if it feels like it! But I was thinking that have you asked your primary care doctor or multiple doctors? Since I think you situation desperately needs help and IV fluids could help 🙁♥️ Sending love and hugs!
@@Alluska yes, it is not an option in the U.K., that goes for everyone. Even when my bmi dropped down to 16, I did not receive help as it’s not an option in the U.K.
@@shiraalexander2236 no, that’s not how it works here, they award hours & you have to hire people yourself & pay the portion they ask you to pay fir it
I am sick a lot, yes, & have severe emetophobia too! Hospital is a nightmare for me as I have to wear ear defenders over my ear plugs to block all the noises out 🥲
@@carolinebielby5924 there’s not much I can do about my condition, so my coping strategies are to stop me getting norovirus, food poisoning, or seeing others get sick. I don’t eat meat at all & rarely eat salad, when I do, wash thoroughly. Don’t eat anything by hand, favouring well cooked &/or tinned food. I wear ear plugs all the time anyway because of my other condition, but I switch to AirPod pros if the chance of someone around me being sick seems high, like when I’m in hospital or when neighbours get up at random times in the night. That’s what I do, although I don’t think seeking help from people who are really struggling with a physical illness is the way to go about it, there are forums specifically for emetophobes you can join or even just read instead
This is hard to say because I like you, but seeing you unwell makes me feel very sad and weak because I cant help you. None of us can help, it is not like real life where one of us could even help you.
The title is very clear so if there is ever something you don’t want to watch, then don’t watch :) I am extremely unwell all the time & that is what my channel is about, so you may want to unsubscribe as I am planning on being more open & honest about what my life is really like going forward
Oh Georgie, I’m so sorry you’ve had to go through this. I hope the OT’s reassessed you properly as in need of help with nutrition as well as the necessary adaptations to your home xxxxxxxx
Thanks Penny, there’s not really any adaptations that can be done as OT & social worker have deemed it unsuitable & unsafe for me, & you can’t have any adaptations in that situation since it’s possible I could leave one day (even if it’s not for another 10 years) xx
My poor baby girl! I wish so much that I could take care of you! I pray for you every day and would give you what little strength I have left if there was a way. There should be more help for you but I don’t know the benefits or options available to you where you live. If there is anything I can do for you please just let me know. I am in the US and although we no longer have good health care, you could possibly get some kind of home care. My heart breaks for you!
Thank you, Susan! I do have care for a few hours a week now & should have more, but just been unsuccessful finding anyone else so far!
I totally understand. My situation is very variable from day to day, week to week, month to month...
At my worst, in a month or so I lost over 25 lb...
Cooking (or even moving to the kitchen,) requires energy, eating and digesting, requires energy...and when you end up throwing it up (intact) or pooping it out within hours (intact-ish) What is the point? I force myself to eat as much as i can when I can but most of the time I feel it does me more harm than good... and yet I am still trying my best to not make my situation worse because of my diet...
Love, light and spoons to all who need them!
I find ready salted crisps to be a godsend, there are so many types too, I hope some may help you! 🫶🏽
Thank you for sharing the hard times. It's so easy online to share only the "best" moments, which gives people a false perception of reality. I've been learning that it's okay (and even good) to be yourself, all the time.
So true! I appreciate all you share online as it’s hard to get the balance right of being true to yourself and also not crossing your own boundaries!
Oh girl... you poor thing... I am appauled by all the housing and care facts you talked about and having to starve yourself, cause you have no care and or they don't show up 😢😢😢
Please make sure you are taking some sort of vitamins and staying hydrated with all this throwing up 😢 praying for you 🙏🙏🙏❤
Thank you so much 🫶🏽
Georgina, I send you a 💐... I was in similar situations, but luckily I had (most of the time) my parents to come and help my out. But I lost weight, too and "intermittend fasting" describes how my nutrition works. Cereals often help me out. But I know how stressful it is to be aware of the own helplessness.... And could't change it.
Thank you for sharing your very vulnerable times. This may be hard to view, but is often "our" daily reality with chronic illness.
So sorry you could relate to some extent 😔🫶🏽 but yes, I’ve found it helpful to see people in similar situations so I hoped this would reach people who could relate a little too
Sending love 💜💜💜
Thank you ☺️
I’m so sorry you had this. Coincidentally I also had this in October of last year when my mum went abroad. I wasn’t great at recognising hunger signals or timing when I made food so I often wound up being stuck in bed by the time I realised I was hungry. It was hell and by the time she came back I was severely deficient in a bunch of things and had lost weight. Do you have the ability to get Uber eats or have a trusted one come round and give you food? I also try to keep cereal bars by my bed for when I can’t move and replenish them when I’m healthier ❤
I’m so glad you have your mum 🫶🏽 no, no Uber eats here or anyone who can help, so I’ve been like it for over 2 years now. I often get too sick to replenish the snack box by my bed
I move snacks when ever I move , the snacks migrate around my home... if I get to the loo then snacks and drinks are on the way back to bed...
That’s smart & I’m glad you’re able to move around regularly enough to keep it up, but sadly not everyone is
@@GeorginasJourney I know, I'm lucky that between being able to take trips to the loo and my mum popping in to help that I'm very fortunate!
I can absolutly relate to the difficulties in meal preparation and fasting and it being easier to simply not eat. Dietary struggles are also due to digestive fatigue as I experience it. Usually if I can't break a prolonged crash within 3 weeks, all I can do is fast for a couple of days. It give my gut a rest and clears out any SIBO. It usually works to get me back to baseline where I can cook for myself again, but not always
I don’t even call it meal preparation since it can go much beyond that, to the extent that I can’t roll over & eat a cereal bar from the box by my bed, digestive fatigue is a factor for me too sometimes, sorry you go through this too 🫶🏽
Just wanted to let you know if you ever need anything at all. Just let me know. I’ve always got your back. I just wanna throw this out there. You don’t need to answer. I know you have really bad pots. I’m very medically complex. The other thing that what you’re saying reminds me of is adrenal insufficiency, or stuff under the endocrinology umbrella. Love you so much beautiful. I am so proud of you. It’s not easy but you’re doing it. You have been starving. I am so sorry. Sending positive vibes, love and strength. I’m sorry that you have to be so strong all of the time. I really wish that we all had a little community in person where we could all help each other.
Love you Georgina. I am sorry you have suffered, and continue to suffer.
Sorry to hear you’re at a low ebb. Throwing ideas out, can you buy boxes of nutrition bars to keep next to your bed for each day when you can’t get up. At the beginning I think you mentioned lights not working - if you buy a cheap echo you could then put the WiFi plugs in rooms that need lights and connect table lights to them - these are great for never having to turn a light on manually ever again when your joints hurt, and you can set to come on at regular times. Admittedly, there’s an initial cost but working towards it is worth aiming for.
Ahhh, not having help must make things super difficult :( I can only imagine how frustrating it is to not get taken as seriously as you would have if you had the other half of the thyroid. I naively thought the UK was way ahead of the US when it came to housing and aid for people with disabilities, but things seem even tougher on the other side of the pond.
Thank you for understanding, that really means a lot! England is extremely small & overpopulated, so we just don’t have enough space or housing & that contributes to the problem, the world data site says there are 275 people per square km in England, but only 35 per square kilometre in the US. But ofc there are thousands of factors that affect everything so comparisons can’t really be made
Are you getting fluids through and IV or something? That could really help! Although getting a doctor to agree is something that is REALLY hard and so exhausting
Not an option in the U.K.!
@@GeorginasJourney Oh 😯 I apologize if I'm overstepping and no need to respond if it feels like it! But I was thinking that have you asked your primary care doctor or multiple doctors? Since I think you situation desperately needs help and IV fluids could help 🙁♥️ Sending love and hugs!
@@Alluska yes, it is not an option in the U.K., that goes for everyone. Even when my bmi dropped down to 16, I did not receive help as it’s not an option in the U.K.
Hey hun, sending light and prayers for a recovery, if you have a email please send if like, I can’t respond to ❤❤ the ones I get on patreon
Thank you! I sadly don’t have a public email account that I can use
Not sure if I’m being dense, but can you put your Patreon info somewhere obvious as I can’t find it X
Am.so sorry you are going through this. Is there any reason you cant get a care package?
I have one, for self employed people only & just can’t find anyone since it’s so few and so flexible hours
Doesn't social services provide one to help you with self care washing cooking etc
@@shiraalexander2236 no, that’s not how it works here, they award hours & you have to hire people yourself & pay the portion they ask you to pay fir it
Oh gosh what illness is it you have is it where like your being sick all the time i have emetophobia so if it is that illness that is awful 😢
I am sick a lot, yes, & have severe emetophobia too! Hospital is a nightmare for me as I have to wear ear defenders over my ear plugs to block all the noises out 🥲
@GeorginasJourney oh I'm really terrible was hoping you could help me with emetophobia, how do you cope yourself being sick 😫 I go in complete panic 😢
@@carolinebielby5924 there’s not much I can do about my condition, so my coping strategies are to stop me getting norovirus, food poisoning, or seeing others get sick. I don’t eat meat at all & rarely eat salad, when I do, wash thoroughly. Don’t eat anything by hand, favouring well cooked &/or tinned food. I wear ear plugs all the time anyway because of my other condition, but I switch to AirPod pros if the chance of someone around me being sick seems high, like when I’m in hospital or when neighbours get up at random times in the night. That’s what I do, although I don’t think seeking help from people who are really struggling with a physical illness is the way to go about it, there are forums specifically for emetophobes you can join or even just read instead
This is hard to say because I like you, but seeing you unwell makes me feel very sad and weak because I cant help you. None of us can help, it is not like real life where one of us could even help you.
The title is very clear so if there is ever something you don’t want to watch, then don’t watch :) I am extremely unwell all the time & that is what my channel is about, so you may want to unsubscribe as I am planning on being more open & honest about what my life is really like going forward
Love You ❤ !