By the time I was diagnosed, it’s estimated that I’d had it for at least 20 years. There were so many potential markers that hadn’t been considered as a whole to identify its existence that I sometimes feel the medical profession failed me. If it had been diagnosed earlier, I might have been able to forestall the lesions in my brainstem and cervical spine that cause me so many problems. It seems that the other lesions aren’t as debilitating. I certainly wish I’d gotten a DMT earlier to delay disability as long as possible. But this was an informative and helpful video. I sincerely appreciate you for sharing your expertise.
The sincerity and pure intention of being of service to ordinary people is highly palpable among this couple. They are ultra smart and have the most qualifications to speak about the topic of brain health but are not as arrogant as most others (whose interest are more of promoting their own products to sell).
Thank you for this very helpful presentation! I'm 50 and after a series of strange body behaviours (lack of balance, problems with walking, numbness in hand and feet, double vision, anxiety and depression, etc.) after 6 months of constant search I was finally diagnosed last week with MS. Scary diagnosis which now makes me to educate myself on the topic before I see the doctors again and have the treatment plan in place. They have mentioned something about infusion every 6 months but I will learn more tomorrow...
Wow, I've learned more in this video than being a nurse for years!! Very interesting to me on the latitude, hx smoking, age and the symptoms are often neglected in case of woman, young woman symptoms such as ataxia being not taken seriously and that GB is Peripheral and MS is Central Nervous System disorder or originates, very interesting to hear the real stories!!! Wow, amazing video, Thanks!!😅
They also blame smoking for everything, yet heard nicotine could help with Alziemers. The people I know with MS are drinkers and non smokers which is much more toxic to your body. Pesticides, chemicals, look at the very bad dangers in laundry washing liquids banned in many countries. They also blame smokers when their children get asthma. What about the many more whose parents don't smoke that have it. Children are lower down it's been said they breathe in more exhaust fumes from traffic. If you sit in a garage with the exhaust running you are for certain dead. Doesn't happen sitting in a room full of people smoking. Smoking doesn't intoxicate any where near than alcohol. It's pathetic how doctors always blame cigarettes, yet the government don't ban them and make big profit. You are allowed so many units of drink? Our food is full of pesticides, chemicals, preservatives, unnatural amounts of sugar. Insulin spikes mess your body up. Sugar should come with fibre which stops the spikes. Fasting can be really good for any disease. Eat once or twice a day and don't snack, try to eat natural foods, diseases of all kinds would lessen. Can read a lot on the internet now. Many.orifessional doctors online use food as medicine and finding the true cause.
What about Dr. Terry Wahls and The Wahls Protocol? She reversed her symptoms by dramatically changing her diet so it seems like there is a connection to diet. Dr. Wahls does some kind of studies/research with patients who have neurological conditions. If I had MS, I would definitely try her program.
I don't know the answer to that question. But even if she did, she has maintained an MS free life on the diet alone, according to her. She said that if she goes off her diet she begins to have symptoms again. So if another treatment did help her, that doesn't seem like the thing that has kept her from relapsing back to MS. @@euenfheiejrj
Diet helps with most of things, regardless if you don't have a disease or have one. It can make quite a significant difference versus eating crap. But all these guys that promise reversing well studied disease that are well known and proven to be chronical are money-grabber psychopaths/narcissist and they are dangerous because of false induced hopes for people that suffer. All you can do is having a good diet, exercise regularly, reduce stress and then hope for the best.
I wasn't aware of that. However, she states that if she goes off her diet that her symptoms come back, so her improvement would seem to be more than the hsct. @@euenfheiejrj
I’m 44, male, and have been struggling with health since April and a few weeks ago found out my MRI came back with demylineation signs and white spots. I’m waiting to get a more full diagnosis. The worst part is waiting for a diagnosis as well as the terrible fatigue. I get about 2 hours of active time a day before I’m wiped out
My daughter was diagnosed several years ago and has lost much of her abilities. Can no longer ride her horses or even lead them. Struggles with walking but can do so slowly with a cane. She is in a new clinical trial involving stem cells from others who have had Epstein Bar Syndrome but did not develop MS. It is a waiting game.
I have swelling really bad and progressing. Diagnosed 9 years ago. Left side affected the worst. Foot drop is terrible. I am not able to wear shoes and my AFO due to swelling feet. Incontinence is my middle name. Never had a stroke. Started having issues at 29 unknowingly that I was moving towards deterioration. Eyes @ 36. Twisted my left ankle @ 37. Foot drop diagnosed at 42 and continued until lumbar puncture within 8 months of foot drop diagnosed. Not hereditary. I don't know of anyone in my family who suffered from this. Changed dmts 2 times. This is my 3rd DMT in 9 yrs. My MS specialist has recommended Rituximab base on my current situation.
I would never want lumbar puncture. Much too dangerous. Nobody needs the pain either. I had an acquaintance friend who became paralyzed from lumbar puncture, and died. She specifically told them not to do it but another nurse was assigned to her, and apparently it was done when my friend passed out, or fell asleep. Truly sad. 😮😢
It is shocking to see that neurologists don’t know about the link of autoimmune diseases and vitamin D! Furthermore is diet key to prevent the autoimmune disease…and vitamin D supplementation is very important too !!
Did you notice that they mentioned near @23- 24 the further you were from the equator the higher the concentration of MS, hence the sunshine and d levels may influence disease progression.
It's been 40 years now, my MS is non-stop. My pain levels stay at 6 on a normal day. I feel like I'm losing my mind. I shake all the time. Falling is nearly a daily thing. I tell my Dr. Every time I'm there the meds are no longer working. I'm still on the first row of drugs. I do have a morphine pump. It's set at the highest level. My head aches are crazy. I'm lost, I'm depressed for the first time. I'm not handling this well. There are no ms groups in my farming type community. I feel so alone. Where can I go for more help?
The Immune system is well known to develop in the first years of life…The most important years for this priming are the first two years of live! Example: Babies supplemented with vitamin d in their first year have 80% less risk to develop diabetes 1 in their life.. ….Please look up autoimmune diseases ..vitamin d..and TOR system….that would be a good beginning
By the time I was diagnosed, it’s estimated that I’d had it for at least 20 years. There were so many potential markers that hadn’t been considered as a whole to identify its existence that I sometimes feel the medical profession failed me. If it had been diagnosed earlier, I might have been able to forestall the lesions in my brainstem and cervical spine that cause me so many problems. It seems that the other lesions aren’t as debilitating. I certainly wish I’d gotten a DMT earlier to delay disability as long as possible. But this was an informative and helpful video. I sincerely appreciate you for sharing your expertise.
How are you doing?
The sincerity and pure intention of being of service to ordinary people is highly palpable among this couple. They are ultra smart and have the most qualifications to speak about the topic of brain health but are not as arrogant as most others (whose interest are more of promoting their own products to sell).
anxiety and depression is awful 😢😢😢
Nobody helps
Thank you for this very helpful presentation! I'm 50 and after a series of strange body behaviours (lack of balance, problems with walking, numbness in hand and feet, double vision, anxiety and depression, etc.) after 6 months of constant search I was finally diagnosed last week with MS. Scary diagnosis which now makes me to educate myself on the topic before I see the doctors again and have the treatment plan in place. They have mentioned something about infusion every 6 months but I will learn more tomorrow...
Ocrevus Infusion is a great DMT. I recommend it. Drink plenty of water prior to IV any DMT for juicy veins.
I guess it's Ocrevus, right? Are you already on and DMT? I'm on this journey for over 19 years.
Wow, I've learned more in this video than being a nurse for years!! Very interesting to me on the latitude, hx smoking, age and the symptoms are often neglected in case of woman, young woman symptoms such as ataxia being not taken seriously and that GB is Peripheral and MS is Central Nervous System disorder or originates, very interesting to hear the real stories!!! Wow, amazing video, Thanks!!😅
They also blame smoking for everything, yet heard nicotine could help with Alziemers. The people I know with MS are drinkers and non smokers which is much more toxic to your body. Pesticides, chemicals, look at the very bad dangers in laundry washing liquids banned in many countries. They also blame smokers when their children get asthma. What about the many more whose parents don't smoke that have it. Children are lower down it's been said they breathe in more exhaust fumes from traffic. If you sit in a garage with the exhaust running you are for certain dead. Doesn't happen sitting in a room full of people smoking. Smoking doesn't intoxicate any where near than alcohol. It's pathetic how doctors always blame cigarettes, yet the government don't ban them and make big profit. You are allowed so many units of drink? Our food is full of pesticides, chemicals, preservatives, unnatural amounts of sugar. Insulin spikes mess your body up. Sugar should come with fibre which stops the spikes. Fasting can be really good for any disease. Eat once or twice a day and don't snack, try to eat natural foods, diseases of all kinds would lessen. Can read a lot on the internet now. Many.orifessional doctors online use food as medicine and finding the true cause.
A huge thank you for this podcast Dr(s) Sherzai 🙏🙏🙏. As a newly diagnosed MS patient with MS, there is hope for the future 🙏🙏🙏
This was very interesting with lots of information that I had not heard before. Thank you!
What about Dr. Terry Wahls and The Wahls Protocol? She reversed her symptoms by dramatically changing her diet so it seems like there is a connection to diet. Dr. Wahls does some kind of studies/research with patients who have neurological conditions. If I had MS, I would definitely try her program.
To be fair didn’t she also have hsct?
I don't know the answer to that question. But even if she did, she has maintained an MS free life on the diet alone, according to her. She said that if she goes off her diet she begins to have symptoms again. So if another treatment did help her, that doesn't seem like the thing that has kept her from relapsing back to MS. @@euenfheiejrj
Just a money grabber
Diet helps with most of things, regardless if you don't have a disease or have one. It can make quite a significant difference versus eating crap. But all these guys that promise reversing well studied disease that are well known and proven to be chronical are money-grabber psychopaths/narcissist and they are dangerous because of false induced hopes for people that suffer. All you can do is having a good diet, exercise regularly, reduce stress and then hope for the best.
I wasn't aware of that. However, she states that if she goes off her diet that her symptoms come back, so her improvement would seem to be more than the hsct.
@@euenfheiejrj
I’m 44, male, and have been struggling with health since April and a few weeks ago found out my MRI came back with demylineation signs and white spots. I’m waiting to get a more full diagnosis. The worst part is waiting for a diagnosis as well as the terrible fatigue. I get about 2 hours of active time a day before I’m wiped out
My daughter was diagnosed several years ago and has lost much of her abilities. Can no longer ride her horses or even lead them. Struggles with walking but can do so slowly with a cane. She is in a new clinical trial involving stem cells from others who have had Epstein Bar Syndrome but did not develop MS. It is a waiting game.
If you can’t get into a neurologist without a GP referral and GP’s disregard symptoms….how do
get diagnosed finally?
Privately may be
Thank you for speaking truth!
Change the doctor.
I have swelling really bad and progressing. Diagnosed 9 years ago. Left side affected the worst. Foot drop is terrible. I am not able to wear shoes and my AFO due to swelling feet. Incontinence is my middle name. Never had a stroke. Started having issues at 29 unknowingly that I was moving towards deterioration. Eyes @ 36. Twisted my left ankle @ 37. Foot drop diagnosed at 42 and continued until lumbar puncture within 8 months of foot drop diagnosed. Not hereditary. I don't know of anyone in my family who suffered from this.
Changed dmts 2 times. This is my 3rd DMT in 9 yrs. My MS specialist has recommended Rituximab base on my current situation.
I would never want lumbar puncture. Much too dangerous. Nobody needs the pain either. I had an acquaintance friend who became paralyzed from lumbar puncture, and died. She specifically told them not to do it but another nurse was assigned to her, and apparently it was done when my friend passed out, or fell asleep. Truly sad. 😮😢
That's outraged. They should be sued!
Great information - thank you !!!!
My theory of latitude and distance from the equator is the sun AND Vit D. And 15 because myelin sheath and brain development .
Thank you so much for teaching us
Are you disputing the findings and experiences of Dr Terry Wahls and the many who’ve benefited from her work?
What did he ment with " imitator diabetes " ?
It is shocking to see that neurologists don’t know about the link of autoimmune diseases and vitamin D! Furthermore is diet key to prevent the autoimmune disease…and vitamin D supplementation is very important too !!
Did you notice that they mentioned near @23- 24 the further you were from the equator the higher the concentration of MS, hence the sunshine and d levels may influence disease progression.
@@studentaccount4354 Yep
Thank You.,.. makes me want treatment now!
Are premature born child had a big chance of having MS? I was born prematurely about 27wks. And now I have MS.
It's been 40 years now, my MS is non-stop. My pain levels stay at 6 on a normal day. I feel like I'm losing my mind. I shake all the time. Falling is nearly a daily thing.
I tell my Dr. Every time I'm there the meds are no longer working. I'm still on the first row of drugs. I do have a morphine pump. It's set at the highest level. My head aches are crazy. I'm lost, I'm depressed for the first time. I'm not handling this well. There are no ms groups in my farming type community. I feel so alone. Where can I go for more help?
Contact groups who support MS survivors. Ask your doctor about support groups. I hope that you are able to find supportive people to help you.
Search for support groups for MS survivors. Online there are great resources as well.
The Immune system is well known to develop in the first years of life…The most important years for this priming are the first two years of live! Example: Babies supplemented with vitamin d in their first year have 80% less risk to develop diabetes 1 in their life.. ….Please look up autoimmune diseases ..vitamin d..and TOR system….that would be a good beginning
Dont use too many supplement
Thank you!
What did he ment with " imitator diabetes " ?
What movement disorders are associated with MS?
What about Swank diet?
Thanks. It was disappointing to learn that nutrition does not do much.
That is misinformation!
So since there are 3 types of MS people that claim the Mcdougall diet cured them probably had relapsing remitting.
Obesity is linked with MS as the inflammatory state is greater and the fat absorbs all the vitamin d leading to greater vitamin d insufficiency!
Well read MSer here. Never heard of this obesity link. More please. TY
Listening to you has really taught me alot , still all thanks to you Dr Ofenmu CZcams channel Herbal Home I’m Herpes Negative now…
Definitely you should discuss with me or Dr Brook Goldner……so many wrong assumptions as we all come out of this pharmaceutical bubble
❤❤❤
its mc donalds guys. should be obvious by now. im not joking... im just simplifying.
What a stupidity about ego problems of Charcot. Never saw such dumb remark. Other reaearchers name his findings/discoveries after him.