Pancreatic Cancer and What to Expect at End of Life in Hospice Care
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- čas přidán 6. 07. 2024
- Disclaimer: The Liver in on the right side of your body, NOT left. 🙈🫠
Back on What to Expect it's Hospice Nurse Julie to talk to you about Pancreatic Cancer and what to expect when it comes to the end of life in Hospice Care and Pancreatic Cancer. Pancreatic Cancer involves a number of different situations and symptoms that can arise and there are a couple things to look out for!
Have you experienced a loved one or a family member dealing with Pancreatic Cancer or the end of life in Hospice Care? Please share your story in the comments and I'd love for you to ask questions!
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I was recently diagnosed with pancreatic cancer.. I’m on my second round of chemotherapy.. I don’t think I want to continue the chemotherapy.. it’s been hell..I’m 44 years old and I’m scared but your videos really help me ..Thank you nurse Julie.❤❤❤
Trish, you are in my thoughts sweet love.❤
@@marygoff3332 Thank you so much❤️❤️❤️🙏🙏
Chemo killed my mom before her pancreatic cancer did. Even on the CDC’s website it states that chemo kills 25% before the cancer does. Chemo does nothing for most cancers except prolong suffering. Personally, if I get cancer, I will not do chemo. And I’m trying my best to avoid cancer. (Overall 85% of cancers are preventable). Don’t smoke, don’t eat tons of sugar, get exercise, drink more water, find ways to destress etc. 😁👍🏻
Hang in there, I endured Lymphatic cancer from the of 15 to 21 and was treated with chemotherapy and radiotherapy. Yes it’s an arse kicker, but you can’t just give up. Keep fighting the good fight.
@@DontFearTheMist Thanks for the encouragement..I just got done with my 3rd round today..I have one more treatment before I have a scan to see if it’s working ..I’m praying for a miracle..🙏🙏🙏🙏
My father passed away from pancreatic cancer. He lived with me until the day he died. He had a surgery called the Whipple procedure. I highly don’t recommend anybody get that surgery, it only continues your life a few months longer. This is not medical advice. This is just my personal opinion.. he never turned yellow though. He just got really skinny. My heart goes out to anybody that has to go through this type of cancer or any cancer. There is no good cancer. Have a blessed day. ❣️🙏🏻
Yes/ I’ve taken care of many people post Whipple procedure 💗💗💗💗
A friend of mine had the Whipple procedure done too and tried other things too as she really wanted to live for her 2 young kids. It didn't work. She was one of the nicest people I have ever known. I'm sorry for the loss of your dad. 😢
I'm so happy my Dad did not have the Whipple Surgery. He lost lots of weight. His eyes were yellow. Jaundice. He had a patch on for pain. He died at home with our Mom by his side. He didn't suffer long.❤🥲
@@lisakrajewski4699 i’m so sorry for your loss, Lisa. I did everything on my own I took care of every need. Hopefully, I’ll see him again someday.
Maryc I'm so sorry for your loss. Your Dad was so blessed to have had you taking such good care of him. God bless you dear.❤
I saw this video around August time after my father was diagnosed with stage 4 pancreatic cancer. Sadly he passed away October 23rd. It was tough seeing the effect of this disease and how little you can do to help. I have the upmost respect for the palliative care nurses did for my father in the end and what they continue to do
My dear dad died of pancreatic cancer. He had a stent placed early in the disease via ERCP as an outpatient procedure. Cured the jaundice and mild confusion he had. Offered a whipple but he declined surgery. Did radiation and a little chemo (didn’t tolerate chemo). Lived 17 months from diagnosis. Last 2 months of his life were the worst for him (and us). Pain, pain, pain, diarrhea, no appetite. Lost a lot of weight. He was on hospice and a lot of pain meds. About a week before he died was too weak to get out of bed. Bless you if you are going through this right now. ❤
I was diagnosed with neuroendocrine cancer of the lung and liver in early March, the oncologist offered chemo but with the advice that it would only prolong my life for a couple of months so I declined, twice. Now it's August and I'm still attending church and visiting friends locally, my family and friends from afar have all flown in to visit. It's a waiting time now. I'm very glad for this advanced warning and being given time to attend to admin things and see everyone while I'm still well enough.
The doctor declined my request for an ultrasound of my chest in early March, but I insisted and paid for it. She was shocked at the result. But I'd been having random 'presence' discomfit in the liver for over a year. Drs do their best mostly but we know our own bodies.
Your videos are a help thank you, I'm not afraid of the end, I have faith in Jesus too and know where I'm going.
💙
Me too. I'm not afraid of death anymore.
Whether you are still around or not, God bless your soul... maybe you're in a bettr place now... or may still be in this mortal realm..
wow my brother was diagnosed with this back in october 22 but had symptoms for a year prior. it’s a horrible horrible illness. i hope you are doing okay or are in a better place
Jesus freed me from the fear of death. God bless you❤
My mom had stage IV pancreatic cancer and lived a little over 9 years after she was given 6 months (tops) to live. Even in the end we had hospice come out and they ended up standing down for her one last upturn in her heath and energy.. That wave lasted about a month or so. We all rushed to be with her because "this was it". We joke to this day she faked it so she could have one last get-together with us as the three of us all live in different parts of the country. She never really exhibited any mental decline, but in the end she was barely eating and just looked very sick. But I know we were fortunate to both have the extra time we had with her, and she really didn't exhibit the symptoms until the very end.
My mother died of this terrible disease Oct. 2, 2014. She had pain in her body, inside behind her stomach, but she never had ascites or jaundice. Becoming diabetic was the first symptom in June 2013 as far as I know, and then the pain started in Oct. 2013. It was January 2014 before it was diagnosed, and stage 4. Liver metastasis. She had chemo, which was awful. In August she had another exam; the pancreas tumors were all gone, but her liver had 4 or 5. The oncologist offered another round of experimental chemo to try to kill the liver tumors, and Mom said no. That was on 9/11/2014. 3 weeks later, she died. It was gut wrenching to accompany and take care of her through all of that. I was ripped apart.
My brother died from pancreatic cancer and it was hard watching him go through that.
A co-worker of mine was having stomach pain and went to his Doctor to have it looked at. He was diagnosed with Pancreatic Cancer and died four days after his diagnosis and the night before his first Chemotherapy Treatment. Literally shocked everyone, as he looked great up to the day of his death. He was only in his early 40's... R.I.P. Tony
My husband died at 44, from pancreatic cancer, a month after diagnosis and before he could really get treatment. They said he would get 1-3 years, he got four weeks. Their guess is a massive blood clot to the heart.
I have worked as an EMT in a hospital and watched people "rot" away from cancer, losing around 100 pounds and the jaundice was very bright yellow. I was very saddened not only for the patient but the family as well, however when I had to watch my step-dad rot from lung cancer that took months to finish him off, I decided that I will NOT die of cancer. I will not put my family through the pain and agony of watching me waste away. If I become cancerous and it's terminal, i will choose a different was to die. Julie, I really enjoy your hospice videos, thank you for allowing your audience and me to learn from your experience and perspective.
Thank you for being here and thank you All your work
I think I agree with you
Me too ❤
Same.
Absolutely agree.
Time was when I'd never watch clips like this. But after reaching a certain age, watching these and reading obituaries become more interesting.
My father was a MD in world war 2.Death was something you accepted and lived with.He pracited his profession for a total of 53 years.,He was a smoker by the way.He was diagnosed with lung cancer at 78.I remember talking to him in the hospital. I said to him I wish they would find a cure for cancer his response was people have to die of something.He was do practical.I was there when he died.He just went to sleep.
I lost 2 family members die of pancreatic cancer. My aunt Elsie passed at age 81 in 2010 two months after being diagnosed. Then, my cousin Mark was diagnosed with pancreatic cancer in 2013 and passed in 2018. Mark's wife, Candy, was an Oncology nurse and I really believe that is one reason Mark was able to live 5 years after diagnosis and had a decent quality of life except for the last few months of his life.
My husband died of pancreatic cancer. He first noticed pain in his lower back that would move from place to place, pain which “started from nothing”. For a year he kept returning to see his doctor about this same issue. What was unique about this pain was that it got worse when he would lay down. The doctor just kept recommending pain meds, physical therapy, sleeping with a pillow between his legs, etc.,etc., etc…. He would not order an MRI or other such “scan” when my husband requested it because he said it “wasn’t necessary”. Finally I learned that my husband planned to commit suicide because he couldn’t take this pain any longer. How the cancer was finally diagnosed was when his hemoglobin dropped so low that he became sickly pale and weak. I just want to share his story so hopefully it can benefit someone, somewhere. If he could have been helped a year earlier, when he first noticed something was wrong, just maybe it would have made a difference.
Grrr, doctors are worthless sometimes. 🤬 This reminds me so much of how my aunt was repeatedly dismissed when she'd try to tell her doctor of the painful symptoms she was having a year prior to her death. 😒
God bless you my friend
Too many incompetent doctors, sadly. and lazy.
I am so sorry for your loss 😢
I'm so sorry for your loss. Hope you never go back to that doctor. His refusal to order a scan a) is negligent, b)is invalidating the patien'ts concerns, c) the patient ended up with a terminal cancer which had it been diagnosed and treated a year earlier, could have saved his life. That doctor took away any chance your husband had, and he deserves to be sued for medical negligence.
My mom died from this. Its a horrible way to die. The doctors gave her 2 months life expectancy she survived 6 months. She fought an impossible fight. The doctors did everything that they could lots of operations lots of fluid draning. She was only 50.
Now my cousins wife has it she was diagnosed way too late. She was a fitness extremist. Shes only 46 years old! Only eats organic excercises all the time etc. I dont understand how this diease works but it is truly horrible. God bless the people of hospice and god be with anyone who has this terrible and evil diease.
My wife died of pancreatic cancer at the age of 79. It was 68 days from diagnosis to death. At her request, we went to the emergency room on May 28, 2023. She couldn't keep solid food down. This was due, it turned out, to a pancreatic tumor squeezing her duodenum. However, for roughly 52 days after diagnosis, she was "normal," in the sense that she was alert mentally. She was surviving on a liquid diet -- Ensure and Pedialyte. Beginning in mid-July, 2023, her decline was steep. She was sent to a nursing home for ten days. Then back to the hospital. Then, finally, home for palliative hospice care. When she arrived at the nursing home on July 15, a nurse asked what type of music she liked. My wife carried on a very intelligent conversation about it with the nurse. Just a few days later, I was shocked at her appearance. Her jaundice was very marked. Her speech was quiet and mumbling. Eventually she went back into the hospital, on July 26. Then, on July 29, she was sent home. Once she was off a dextrose IV (I think it was dextrose), her decline was precipitous. One of the last conversations I had with her, at the hospital, she said, "I never thought I would go like this." She was only partly conscious when she arrived at home. She objected to one of the dogs jumping into bed with her, which broke my heart, since she loved her dogs and they loved her, and they had missed her during her time at the hospital and nursing home. Within a few days she lapsed into permanent coma. She died six days after coming home. Nine months ago, I would have never dreamed that any of this would happen. She was in some pain near the end, which morphine could only partly alleviate. She's no longer in pain.
I am so very sorry! 😞
@curtiscroulet8715 I'm so sorry for your loss and can empathize. My mother was just diagnosed a month ago. What stage was your wife when diagnosed and what size was her tumor?
@@mustangmarshall289 I don't know the dimensions of the tumors. She was Stage 4. She was first diagnosed on May 28, 2023. She died on Aug 4, 2023. We didn't know it was Stage 4 on May 28. I've just now clipped out a big chunk of this post. It was a year ago we were going through this, and I was reliving it -- which you didn't ask for. Sorry.
Julie, thank you for that video. My wife was a cancer care nurse, she had her OCN. She passed because of pancreatic cancer. She knew several months before she told me, because she didn't want me freaking out. When we got the "official" DX, I didn't freak out but turned into her primary caregiver. I did everything Hospice said I should do to help and care for her. She passed 47 days later with her kids and I next to her, peacefully. Thank you for all that you and the other caregivers to to help our last days comfortable.
I’m so sorry for your loss
I am a 2 year pancreatic cancer survivor. I thought that I had a ulcer in my diaphragm. I went to the hospital because I had pain still. The ER dr asked all kinds of questions and ordered a CT scan. 9 hours later I get the results, theres something on my Pancreas. I go see a Gastroenterologist who orders a MRI. Had a biopsy stage 2. I call SS and I was asked how long has ive been dealing with this. I told her that I went to my Dr and had all kinds of tests, nothing was found. About a year goes by and I decided that I was going to get some flowers and go to the chapel and say my thank you to Jesus. The chapel was closed so i went to the church and the door opens and a repair man and a Deacon come out. I explained what I wanted to do and I was let in. The church and chapel were closed due to not having heat. So I'm saying my thank yous for giving me symptoms when there normally aren't any until it is too late. As I was leaving i saw the Deacon sitting in the back of the church. I started talking to him about what I did and why. I asked for a hug and then left. This year I was trying to find out who the Deacon was because I wanted to give him an update. I asked every Deacon that works at my church who it was. Everyone remembers the heat not working but not one of them said that they were there. One man I told my story to told me all of the Deacon's name and I told him that no on admitted it was them. That man said that maybe it was Him. My mouth was wide open. I couldn't even say what he looked like except he had a cap and glasses on. The sun was shining in the front doors of the church so i could not get a good look at him.
Did He come and let me in the church? I am going to say yes. I've started back at church, turning my life over to Jesus. He saved my life so I am returning to give Him my life in return.
I have no answers to this.
Wow that’s a amazing story.. God bless you.. 🙏🙏🙏❤️❤️❤️
@@trish4713 thank you
My husband is in hospice with late stage pancreatic cancer as I write. It's a devastating disease.
Thinking of you both. Sending you love and my hopes for peace and a peaceful passing to your husband ❤️❤️❤️❤️❤️❤️❤️
Thinking of you and sending love, I lost my twin sister last year to it, it’s a cruel disease❤
How is he doing?
My Prayers are with you, Just lost my mom a few days ago, she was diagnosed in December
I’m so glad I watched. My mom died 34 yrs ago of pancreatic cancer that spread to the liver. She had acites but I didn’t know what it was and nobody ever helped her, not even the home hospice nurse. She was also very confused. I thought it was the morphine. 😭Please educate people like you are so they aren’t stupid about this like I was.
My brother died of pancreatic cancer 5 weeks ago he was diagnosed too late to help him it took 3 months for him to pass away was heartbreaking 💔
I just lost my dear mama in December from pancreatic cancer after a 6 year battle. She was such a fighter. It spread to her lungs and stomach and she still pushed forward. It spread to her bladder and then to her upper intestines very quickly from October to December. She was so sick and couldn’t keep anything down from the pain. Her potassium dropped and she went into cardiac arrest and passed away. Thank God for Nurses. You are surely Angels here on Earth. Thank you.
Thanks for all you do!!! I lost my sweet Dad to pancreatic cancer. We had hospice for him and the nurses cried right along with us! They also were true angels. Pancreatic cancer is an awful disease but hospice kept my Dad very comfortable and he had a very peaceful death. ❤😢
This is so comforting to know that we dont have to die in horrible pain- thank you!
Hospice nurses truly are Angel's on earth. My mother died after bravely battling metastatic cancer for 6 years. The last 2 years she decided she no longer wished to receive any treatments and we continued her care to give her the best quality of
life with pain control and eventually hospice. She died peacefully at home in her own bed as she always wished. The nurses taught me how to keep her comfortable and what signs I should be looking for in those final days. They reassured me that I was doing all the right things with her care and that helped me immensely. I will never forget them, and when I retired I became a volunteer for hospice. If you are at all able to fulfill your loved one's wishes concerning their end of life care, it will bring you great peace. 🙏🙏
A friend of mine with PC, diagnosed 4-6 months ago, is in his last 24 to 48 hours. He's been in hospice for the last couple of weeks or so, and has now become unconscious and unresponsive. Thank you for the insights.
My dad is in his last few days as we lose him to pancreatic cancer that was diagnosed 6 weeks ago.
Our hospice team has been amazing.
I just want to thank you and all the men and women like you serving other folks and their families during the most difficult time in their lives.
Also, prayers to anyone suffering from or watching a loved one suffering from this disease. 🙏🏻❤️
I’m so very sorry to hear
He's in a better place now for sure. No more pain.
My mother died from pancreatic cancer. Her first symptoms were shortness of breath intermittently for 2 months. By the time she agreed to go to the ED and was diagnosed, she had mets to her liver. Three weeks later as an inpatient, and after two rounds of chemo (useless IMO), she was finally admitted to hospice on a Friday morning. She was lucid and able to visit with her family on Friday afternoon, slipped into a coma on Friday evening, and by Monday morning she passed away. My only wish was that she had entered hospice much sooner. The hospice nurses were truly earth angels. I'm an RN and could go on endlessly about the sh#* show preceding her death, but instead I wanted to thank you for educating the public, so vitally important.
That cancer is sad my mom's boyfriend died within a month with that. He was a great man. Better than all the men my mother had.
Thank you for this information. My Mom is about to go on hospice for this condition, and so we are going to talk to her oncologist about getting the drain. God Bless you!
Thank you Julie. A dear friend recently passed from pancreatic cancer. I did not live near to him but when time was short (weeks), I began writing, and emailing, stories of the adventures of our youth. I grew up with him, both on farms. His wife, children and grandchildren would gather around as the stories were read to him. He recalled all of it although he asked the reader to pause as he concentrated to pull the memory up. He had decent recall up to the last few days where he began losing the ability to communicate and slept a lot. The hospice nurses gave him something to help him recall better (probably the sweet med you spoke of) and he definitely had an abdominal drain. Being older, I’m beginning to see a lot of what you have to share since friends and family members are beginning to pass on. You’re a doll for sharing what you do for others. I greatly appreciate the insight. God Bless you.
It saddens me so much to read of all the suffering and pain which all of your relatives endured. How sad and painful for each of you sweet people.I am in my 70s now and although I can say that I am healthy with some medical issues, both of my wonderful parents did not suffer with the terrible and hideous pain of pancreatic cancer. I just do not comprehend how there can be no growth in medical research to help people. I appreciate all of your efforts to give of yourself Julie, to those in dire need . You are a very caring and loving human. May God Bless you and keep you well and thanks for aiding all of us as we face life….and Death…💕💕🌸🌸
I’m so sorry for your loss
My sweet mum passed away from pancreatic cancer in January, only five weeks after her diagnosis (she was having random symptoms for a few months prior). It was very difficult to see her in so much pain and decline so quickly. It was a shock to our family the speed at which it all happened. I sure wish I had found your videos earlier but they have actually helped me find peace. Thank you for sharing your experiences. You’re an Angel 🥰
Yalile Conroy So sorry for your loss
So so sorry. What were her symptoms?
So sorry, I lost my twin sister in the same way, also 5 weeks after diagnosis ❤
@@lonimitchell8296 I’m sorry I just noticed your message.
She had random pains throughout her body. Abdominal bloating and going from constipation to diarrhoea, confusion, fatigue, fevers and weight loss. Those were the main symptoms.
@@elainekaisi7590I’m so very sorry for the loss of your twin sister, how very difficult for you!
Pancreatic cancer is such a beast. It is a very difficult experience for everyone in the family because of the speed at which it happens.
I was traumatised for quite a while at what my sweet mum endured at end.
But once in palliative care in the end it was peaceful and I’m so grateful for that 🙏🏼
I lost my dear mum 3 weeks ago due to pancreatic cancer (ca of head of pancrease).She lived only 2 months from the time she was diagnosed.The doctors advised for ERCP, stenting to drain bile due to jaudice and itching of the skin .Her condition got worse even before the procedure..She lost alot of weight,lack of appetite, vomiting,Ascites,she was not passing urine and stool despite been given lactulose syrup.She was in deep pain.She went mia to the point of not able to express herself.I watched my mum fade away helplessly despite been in hospital. The final doctors report was that she developed sepsis,KIA.
Ooh i had forgotten her blood pressure stood at 65/45 which was so low.Sometimes i think Kenyan doctors don't know how to handle situations like Pancreatic cancer but i could be wrong.May she rest in eternal peace.
You describing Ascites, the drain, jaundice, and lactulose took me back to my since passed wife who was also a hospice nurse. Wow, crazy to listen.
Oh wow- thank you for being here - and there!! 💗💗💗💗
Julie, you are a good nurse, and moreover a good human being
My nephew in law has Pancreatic Cancer and has been in treatment and actually doing very well.
Really? Pls more details. What stage? Neuroendocrine or Adenocarcinoma?
My mom had this but was not diagnosed officially until after she passed. It was so quick. Went in hospital on a Monday and passed the following Sunday
My mother died of pancreatic cancer back in March 2013. She was in hospice for the last three weeks prior to her passing. She lived with that dreaded disease for a year. It was the most painful looking death process I've ever seen in my life.
No one should ever go through that torture prior to passing away. It really killed me inside for a long time. It's something you can never erase from your mind. It was that devastating to witness.
@@koreyb; It seems to be true.
I am so sorry for your loss Andy. I am a retired Nursing Assistant who’s brother was diagnosed in Aug of 2015 and passes in April of 2016. Such a torture to witness. I was with him the last 2 days of his life and it still haunts me to this day. He fought death right to his last breath. He had so much to live for yet. Chemo bought him time but not quality. I decided if I am ever diagnosed with pancreatic cancer that I will only opt for comfort care. His death almost made me give up a career I loved as well but I had to think good and hard about continuing on with it. Sorry this is so long
Thank you so much for
all that you have expressed and written to me. You have my prayers and condolences. I would rather be euthanized than to live through the pain of that.
It's one of the worst ways to die. It scars those loved ones who watched the horror of that kind of torture of their loved one.
You are always in my prayers for comfort and strength.🙏🙏
I hear you. My aunt died of pancreatic cancer in 2021. It made me rethink my position on medically assisted death, it was so terrible to watch.
Thank you so much. I don't think I would have the heart to go through that kind of torture to my death. I can't even imagine what you were going through even though I saw my mom go through it. I can't even fathom the pain. You have my condolences, 100%. Cancer is such a cruel bastard.
I think your videos are so helpful. My mother died from pancreatic cancer- she has just 3 weeks from diagnosis to death. Saw all these symptoms. Everyone should have a hospice nurse like you.
Thank you for being there and HERE. Sending you love- I know it’s hard
My dad passed away from pancreatic cancer well over a decade ago. They did not diagnose him until it had already spread. Six months after his diagnosis and he was gone. I found this video helpful thank you for helping others deal with end of life for themselves or their family members.
Same her for me, but dad was 26 years ago. It was a bad death but these things Nurse Julie talks about would have helped him a lot.
My Dad passed from pancreatic cancer 21 years ago as well. I cared for him his last 30 days at home and used hospice to help him with his meds for comfort. He tried one round of chemo but opted for a shorter quality of life vs putting his weakened body through those rigors and for a 78 year old it was the right choice. I only wish a channel like this was available back then because if you’ve never walked this road you really don’t know what to expect and our hospice support was reluctant to speak directly to the issue we were facing. But this I do know, I appreciated their help and he is now in a much better place for sure! Prayers to all, and thanks to Julie for the critical insights on death and dying.
@@djbail1 see all😂
Sorry for your loss. My brother knew about it in plenty of time and he still couldn't be saved. Nothing can really be done and this may be one of the very worst of all the terrible cancers. It's hard watching someone you've known all your life go through this.
My dad also passed away from cancer, but he had a brain tumor and he only lasted a month after his diagnosis. Very sad.
@@bradtaylor4765 Pancreatic is definitely a hard one to treat, once they find it, it's usually already spread and there's not much they can do. I'm sorry that you lost both your dad and brother to cancer. 😞
It is a terrible disease, I lost my brother and father to the disease. Brother diagnosed in September passed away early November. Father diagnosed in May passed away in July. Thanks for all your information on death and dying.
God bless you Julie. Thank you so much for your very informative videos about what to expect at the end of life. No one wants to die but watching your videos helps take some of the mystery out of the dying process.
Thank you steve! I appreciate you being here
My dad just died of pancreatic cancer at the beginning of this month. He was diagnosed in October. Had his port put in and first round of chemo and got sepsis immediately. He never had a chance to fight. In addition to everything you said, he also had horrible peripheral edema to the point it was weeping. My uncle died of pancreatic cancer as well. I'm 42 and really concerned so I got genetic testing and are waiting for the results and my dads oncologist said he'd also help monitor me. Pancreatic cancer is horrible and my father and family went through absolute hell with insurance and some really inexcusable mistakes along the way.( Especially by a "skilled" nursing facility he was trying to rehab in) The one bright spot was the inpatient hospice center he passed in. Coincidentally, my dad had an incredible oncology nurse when he was in the hospital for the last time and her name was Julie. And finally, Julie, thank you for these videos. Information is comforting to me and your education helped me through the dying process with my dad.
Thank you for educating us. My brother died from Acute Myeloid Leukemia. Would you consider providing a little information on the leukemias?
I like the background music.
Great video. My mother died in 1989 from Insulinoma. She lived for 4 years and didn't have any treatment for the cancer. Back then, they didn't have the advanced medicine they do now. She was lucky she lived a fairly good life till she passed. I love your videos. Thank you for all you do. ❤️
Hi Julie. My dad died of pancreatic cancer. He was diagnosed after turning jaundice. He had gall bladder surgery on March 17th and they discovered the cancer on his pancreas. He went in for a whipple procedure soon after, but by then it had spread to his liver so they just closed him up and he went to chemo therapy. That only lasted maybe two times, he hated it and it made him feel terrible so he stopped. Shortly after that he went on hospice and he died on July 3rd of the same year. So from diagnosis to death was March 17th to July 3rd. He had been a smoker most of his life and died at age 70. He said he always thought he would die of lung cancer and we never really knew about pancreatic cancer. Tell your loved ones not to smoke. 😢 The experience my family had with the hospice people was great. Thank you for what you do.
My friend died of it never smoked or drank alcohol
My brother underwent the Whipple procedure in 2019 for billiary duct cancer but then died of complications post op. He removed his tube off his throat in the ICU which left his brain oxygen deprived resulting to brain death. No longer functioning and also he was failing miserably as he had pneumonia and was on very strong wide spectrum antibiotics then which costs heaps of thousands of pesos (that's llke $2000 per vial per day). When he got of antibiotics, his health just spiraled even further and wax already getting multiple organ failure during his last days to moments. What a very painful experience to lose a loved one like that. And now, yesterday my aunt who's 80 passed away from stage 4 pancreatic cancer. She refused treatment and accepted her fate, just a couple of weeks ago when she was diagnosed with that. Life is just so... fragile...
Julie, to do what you do is something that is chosen by God for you. It is a special gift. Very few can do what you do and i truly admire and respect you. Thank you.
Thank you 💗💗💗
I'm grateful to you for all the videos you produce and for teaching all of us,. I believe whoever is with you for their exit is fortunate, I was a cook in a few nursing homes and we had some very good nurses, it became easy to detect the other nurses who did not belong in a facility caring for people.
Hospice Nurse Julie... i lost my sister to cholangiocarcinoma 6 years ago. Our hospice team was outstanding but i feel we werent educated very much on what to be expecting at the end of her life. A tutorial like this one wouldve been so helpful.
My father passed on the 26/04/2024 from this horrible disease…. He was a great man and taken from us far to soon, thank you for this video it really helped me prepare myself to be there for him right until the end.
Thank you so much for the info and also for all you do for the dying and their families
My aunt died in 2021 of pancreatic cancer. It progressed very quickly. She never had jaundice or fluid buildup, but her pain levels were brutal and very difficult to mitigate. Her hospice nurse was wonderful and so supportive.
I lost an elderly friend to pancreatic cancer a few weeks back, she died within 6 weeks of her diagnosis. Thanks to your video I now know where her confusion came from, noone had explained this to her or her family and it was quite hard for her husband to deal with. I will tell him about this video, so at least he gets an explanation now.
Thanks for the information. I was a CNA for years mostly in nursing homes. I wish I knew the info you share! My Dad passed away last year in a short term hospice.
Thank you so much for your videos Nurse Julie. My sweet brother just passed away from pancreatic cancer on 3/24/23. He and I were very close. Two years before, he had his first stroke (2021). Then in 2022 he had a second stroke that required him to be admitted into a care facility that could help him 24/7. I am so very grateful to the care facility, they took Excellent care of their patients. And no, I am no wealthy by any means, the facility was outstanding. Long story short, Your videos helped me cope with what was occurring with my brother. And you are spot on, I saw the jaundice and confusion. Thankfully, he didn’t have ascities (I probably misspelled this word). I miss him every single day, but am so thankful he is not suffering or in pain anymore. Nurse Julie, your videos helped me keep my wits about me. I was so grateful to talk of the care staff to allow me to be with him and help him when I could. Please take care and know that you are so very appreciated. Bless you.
Julie, I do homecare and your videos are so enlightening. Making me consider an eventual transition to hospice. I am already familiar with those difficult conversations with patients on palliative care. Please, keep the videos coming.
Julie, please talk about gallbladder cancer , spread to lymph nodes stage 4.
Our 82yr old mother has recently been diagnosed .
Thank you for your channel.
Bless you abundantly
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Mom died from COPD. Grateful it wasn't lung cancer. She quit cigarettes at 62 & I was blessed she made it to 80. But it was hard watching her succumb to COPD, and I'd really like understand more about what she went through and how she physically felt. ❤
No you don’t want to know. I say this from working in icu therapist watching many copd patients die.
@@bettyboop3353 the hospice nurses told me that it would feel to her like she was drowning but it seemed like she was going through so much more than that
My mom died of respiratory failure due to liver disease. She went into the hospital to drain the fluid in her belly and a day or 2 later fluid started filling up in her lungs and they had to incubate her. She never recovered and we had to take her off of the respirator . It was a total shock to us and happened so fast.
My Dad passed away from pancreatic cancer. By the time it was found, it had metastasized to his liver, lungs, and stomach. In the stomach, it caused a bowel blockage. Due to the blockage, all options were off the table for him. They advised he wouldn't survive surgery or chemotherapy. His only option was to enter hospice care. He died 5 weeks after diagnosis.
I developed a case of pancreatitis due to hyperlipidemia back in 94. Because of that, I am at a higher risk of developing pancreatic cancer. The thought terrifies me.
Just tell your body not to get it and be confident your body mind will listen…no worries!🌟
@@kathyinwonderlandl.a.8934 Hope it's that easy Kathy. Thank you.
Thank you Nurse Julie....my husband recently had his first fluid drain. He said it was a painful process. My husband was diagnosed 4 and a half years ago with pancreatic cancer. The fight is getting harder ans I need to prepare for what comes next.
I’m an end of life caregiver. I’m just so grateful to up. Much love.
Big thanks for talking frankly about these issues!
❤Thank you for your videos Julie and all you do to help people every day!!❤❤❤❤❤❤❤❤❤❤❤❤❤
As always, your video has clear and useful information. Thank you, Julie!'
Thank you, Julie. I love your channel
Used to be a hospice nurse and for me, gastroparesis was the worst ever. Had a patient who would vomit and retch non stop. Stomach muscles are paralyzed.
I'm still hanging in there.
My baby brother died 7 years ago from pancreatic cancer. He had regular treatment and then participated in a trial at Johns Hopkins. To no avail. He had to move to a hospice facility for the last few weeks of his life because the breakthrough pain couldn’t be managed at home. It broke my heart - all of our hearts - to lose him. Such a vicious disease. Thank God for hospice.
Thank you Julie! This was very informative. I love this channel and think you're amazing! 🦋
The brilliance of these videos is not that they tell you everything you need to know about terminal illnesses but that they give the viewer a frame of reference so that they then know what questions to ask of their own health care provider.
Last week I got hooked on your youtube channel. My husband saw one of your “shorts” that came up randomly about “death doulas”, which he nor I had ever heard of. Since then I have been binge watching you from Idaho. Near the end of one you mentioned something about hospice volunteers. Since you peaked my curiosity on the whole hospice concept I am going to explore training for being a volunteer. I ran the idea past a dear friend here who is a long time hospice nurse. Her response: “you would be a peaceful presence.” Thank you!
Thank you for helping us all understand more about dying.
Thank you so very much for your videos, & sharing your experience & wisdom. You and others like you who choose to probide end of life care are truly angels on earth. I will never forget the wonderful nurses who helped me care for my mom which allowed her to stay at home & pass peacefully pain free in her bed. You are such a gift to so many at the most difficult time in our lives. 💞🙏
Thank you, Julie. I have been following you for several months. Although I have been with several of my loved ones when they passed away, you have answered so many of my questions, questions that would trouble me for months- were they in pain, what more should I have tried to do, why did they look the way the did.
I love how you compare the process of death to labor. I would recommend your channel to anyone hoping for a good death - for their loved ones, for themselves.
Thank-you Nurse Julie. My mother's palliation was botched by an unavailable "palliative care doctor". She had stage IV pancreatic cancer and underwent drainage only once. She should have had placed a tachour tunneled drain the first time but that did not happen. You do a great service telling others about the need for duch a comfort measure.
How odd… tomorrow I am going to start working with a new patient who has advanced Pancreatic Cancer! Thank you for always being there for us!!! God bless you! 💕
I would like to hear how such an awesome nurse manages to care for herself at the same time as she cares for her patients.
I’d love to do a video like this! Keep a look out
@@hospicenursejulie ,
This is a difficult topic I'm going to ask about, but I think it is worth addressing because it's probably more common than we realize:
Could you address the cases you've encountered where the patient AND family are in denial, and think the patient is "recovering".
The symptoms recur, and the doctor and staff are blamed for "mothers death." or "mother's sudden decline -- somebody MUST have done something wrong!"
That situation is extremely stressful for caregivers.
Thank you Julie just diagnosed w this. I appreciate your advice 😊
❤ 🙏🏻
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I know all to well about pancreatic cancer my dad had it. He wasn't having problems until his pancreas was removed. He lived almost a month after but never left the hospital
SENSATIONAL! Thank you so much! It's something that troubles me, because I am being told less than a year! Thanks for the reassurance! You are fabulous! 3:37
I love your videos! Very informative and you are so sweet!
Thank you nurse Julie..❤❤
Thank you for sharing this information with us
We are are going through this with my father in law right now. He has the distended stomach and the congestive heart failure and has been in and out of hospital since November 22. I don’t think we have much time left with him but these videos have given me great perspective and comfort. Thank you for telling us what to expect ❤
God bless all nurses
Dad diagnosed with cancer. Dropped dead 3weeks later on floor at home. Mom got home from hospital afterwards and oncologist called and said they finally figured out it was pancreatic cancer he had. Mom says, that's nice to know, he died 3 hours ago. Oncologist was blown away.
I have been watching you for awhile and I have learned so much. I’d like to know about end of life for a melanoma cancer patient nowadays. My mom died from melanoma in 1988 and she was at a Hospice facility in Norwalk, CA and the nurses were wonderful.
My brother passed 5 yrs ago from this terrible disease. And the hospice care he received was terrible. He had an amazing aid who he learned to love but the nurse knew he was in terrible pain and that the morphine make him truly sick. Let's get real, there was lots of pain meds she could of given him instead but just didn't seem to care. He asked for oxygen & 2 days later they came to me & said that we just needed to let him go. I had been there in his home from the beginning and had promised him that l would see to it that he would receive something for his pain & oxygen if he needed it. I had no say in the matter which broke my heart. And when they removed his oxygen he kept signaling he needed it. I had to tell him that it was out of my hands... that l was sorry. He shook my hand off his shoulder & never looked not spoke to me again up until his passing. I failed him. 💔
Oh friend, please do not carry this devastating burden. The healthcare system failed him, you did not!
Thank you so much for these videos!
My dad passed away from pancreatic cancer/liver cancer in April 2017 at 59. He passed away within 33 days of being diagnosed. It was heartbreaking.
Nurse Julie Rocks ❤
I would like to learn about dying with COPD. I have Gold stage 3 copd. I have been diagnosed with it for 3 years and have been on 1-2 liters 24/7 oxygen. Thank you for normalizing death which so many of us fear. Your videos are so informative and comforting. ❤️
Thanks nurse Julie!
Thank you Julie ❤❤❤
Thank you for being here!
Learn so much from your you.--Address brain cancer---if not already addressed.. Thank you.
Thank you Julie. My dad died at 59 from pancreatic cancer. It was so fast it was diagnosed in three months later he died.
I love your videos. You are so-o important.
Thank you nurse...
Ty Julie!!