Liver Disease in Hospice Explained
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- čas přidán 30. 05. 2023
- This week we are talking about Liver Disease and Hospice Care. What Liver Disease looks like, what you can expect from varying Liver Disease, and how Liver Disease is approached in Hospice Care.
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What other questions do you have about Hospice?
Well, there for a while you were being ask about what goes on as far as different sound patients make when they die. If it is normal to hear, different sounds can be scary. But my father when he was in the last stage of dieing he mad a sound that sounded like a growl only once, but load. I was wondering if that sound is normal?
@@kathyrupert1425. For us younger people do they have an arts and craft place can we make our family something before we die? And can we please have animals come and visit our room do they have a pool and a Jacuzzi for us?😂
@GODS Child you call your self God's child . Good thing I don't have to judge. Your answer was not very funny or nice. You can judge your self
Benign liver tumor ? Do People with non cancerous liver tumors , Ever have to go to Hospice Care or Does the benign tumor stay pretty much none life threatening
End stage renel disease
I was on Hospice 13 yrs ago. I had everything you mentioned in this video. Im on Lactulose to this day and Xifaxin now, I had a "Denver Drain" and had over 17 liters drained from my abdomen. I did stop drinking when I was put on Hospice. 13 yrs sober in November. The drain was removed when I was taken off Hospice because I was getting better. My mama, who I lost 14 yrs ago came to me and told me "God's not ready for you yet". God gave me a second chance at life and I thank him and my Amazing Hospice Nurse, Katosha. I'll never forget her. I'm now a "Granny of 2 amazing grand daughters. I know God kept me here for a reason. I use to be scared but I no longer am. I just pray that God lets me stay around long enough to see those grand kids grow up.
My dad passed in 2019 from alcoholic cirrhosis. It was not easy watching him suffer. I was 33. Only child. I miss him and love him so so much. He was in pain, but as soon as he was sent home on hospice and given morphine, he fell into a coma for 24 hours, then passed away peacefully. He was so brave and ready. Cant wait to see him again.
Thank you for helping educate people. I wish I could've found this kind of video then. It wouldve helped me so much.
Ashley, That's the hope we hold in our hearts. Our faith. YES. We will see them again. The tears and pain will be long gone. THE loss Is there for life. It takes time to dilute that heartstabbing pain. I get by by forcing my mind to remember the laughter, All of those precious memories in our our heart. If my mind starts thinking of the end and loss , the pain. I flip the switch. Ok turning that light off going into the other room full of bright lights, happy memories. No pain. No bad thins we saw, felt and can't change. That special Birthday or Christmas. The laughter. Bless you .
@ashley6934 sorry for your loss 🫶🏻 My brother was an alcoholic and he died at 47
My 30-year-old cousin is End stage. Her eyes and skin are very yellow. Her abdomen is swollen. Her urine is bright orange. She can not swallow food. She has no strength to stand. She is sleeping and barely notices us. She’ll halfway open her eyes and mumble something but she is not talking. They told us there is nothing they can do for her.😭😭
I’m living with and suffering with my xhb drink himself to death. He won’t get help even for our son who lives with us😢
I’m sorry for your loss 😢
I was a heavy drinker. A beer or 2 during the day. 3 glass of wine at least , every night for years. Pretty much buzzed from wakeup, to bedtime. New years day this year i completely stopped. 10 months no drink.
You are brave and very smart!
@@woodlander9634 thanks, still don't drink. 😊
Good for you 👋🏻 alcohol causes pancreatic cancer and there's no getting alive from that
@@raymondlin8728 Congratulations Raymond. I'm abstaining for at least six weeks.
congrats im currently 73 days without it my goal is a year, and to reaccess and go from there
Great video! I had end stage liver disease caused primarily by undiagnosed hemochromatosis and alpha -1 Antitrypsin Deficiency. I had all of those symptoms you discussed except ascites. But the jaundice and itching was bad. Lactulose was nasty stuff. After two bouts with sepsis and the discovery of a hepatocellular carcinoma, I was placed on the transplant list. Less than a month later, after two false alarms, I got a new liver. That was 2 years ago, and I’m doing extremely well. Incidentally, I volunteer with hospice. I was blessed with a second chance at life, and feel compelled to serve in this manner. Thanks again for the videos. Short, concise, and to the point. By the way, I would like to see a video about what you feel you need most from your volunteers. Dos and don’t?? My hospice company has great training resources, but it’s always good to hear from other sources!
My mom just died of liver disease from hemochromatosis...she didn't qualify for a liver...she died a miserable death...you are truly blessed to have gotten a liver!
Bless your heart sweetie so glad you got a new life and a second chance, I know how nasty that disease can be went through it with my mom she has been gone three yrs now but i am so happy for you.
@@annamariebiskup785So sorry for your profound loss. Hope you get some deep rest and recover from the trauma of watching your dear mother suffer so terribly.
Question, when you had itchiness --did any of the Antihistamine (anti allergy) medication helped by any chance or not really??.TYIA!.
Hi Nurse Julie, my husband has liver cancer he refuse to treat, he had 1 chemo treatment 5 years ago, but refused to go back to any Dr Appointments. A couple of weeks ago I notice his abdomen getting larger and edema in legs and feet, he sleeps a lot and have no appetite, he also vomits a lot, He refuses to see a Doctor. I don’t know what to do…. He has confusion and can’t drive anymore. He will ask me to take home to the store, he moves very slow. He needs to see a doctor, but refuses. Do you have any suggestions. I think he maybe dying
I had all those symptoms from alcohol. 2 weeks stay in hospital. As today been 11 months sober. Everything seems to be back to normal . Still going to all my Dr appointments. Cravings will always linger around..
to all the people don’t give up. Take care .
6 years sober here. Stay the course , you will live longer !
Congrats. Good on ya. Keep up the good work. Kia Kaha from down under in Aotearoa.
sober since around October. I must be lucky, cravings completely stopped ~3 weeks after quitting, i can't even pinpoint an exact moment, it just faded away.
I just want to say that I can’t thank you and all other hospice nurses enough for what you do for the families. My mom passed in March this year 🥺 Long story short, after she passed her funeral was nearly 30 days later. At the funeral her assigned nurse was the first one to get up and talk about my mom. That just shows what a great quality person she is. In my eyes she showed strength and courage when she didn’t even have to attend. What a caring person she is. Total respect for you nurses. Thank you!!
Thank you and God bless you and your family. I am a hospice RN in Minnesota.
That's awesome! How comforting to know your loved one was special and noticed by her caregivers as an outstanding person!
My 84 year old Dad passed last month from this on 4/19 and was on home hospice care. He was a non drinker but had fatty liver disease and was getting drained every 2-3 weeks for a year. He was very itchy and uncomfortable the last month. RIP Dad! ❤😢
I’m sorry about the loss of your dad. I have Nonalcoholic Steatohepatitis which is the fatty liver on steroids as they put it. I’m stage 3 and currently in a clinical study for a drug that is supposed to help reduce scarring. I’m so hopeful this helps those that come after me.
@@lnewbury1 I had the same thing, but could not participate in the study because my platelets were too low. I ended up with full- blown cirrhosis and developed liver cancer. My MELD score jumped from 16 to 24 in a few months. I ended up getting a transplant. Doing great now. I was a social drinker but as soon as I received the diagnosis of cirrhosis I quit. I also had hemochromatosis and Alpha-1 Antitrypsin deficiency which are genetic conditions. My hepatologist told me I was doomed for liver disease no matter what lifestyle changes I would have made. Fortunately my new liver does not have those genetic issues! Good luck on your treatment!
@@jonwallace4216 wow! So sorry to hear this. But so grateful you are doing well. Take care of that liver Jon. Best wishes for many years of a healthy happy life.
@@lnewbury1 I, too, am in a trial and have been since 2016. This is a disease that can easily go undiagnosed until you are suddenly in an elevated stage. Best of luck to you.
@@katzmeow1180 wishing you the best as well.
My husband died April 26th from end stage liver disease. His was from drinking. He suffered bad. Vomiting, pain, hepatic encephalopathy, dark urine, itchy skin, acites he was down to skin and bones when he passed….I forgot to mention he was on hospice care at home
@wasdivorced 💔Soooooo sorry for your loss. My heart goes out to you hon❤️. My sincere condolences to you & yours. Lifting You Up🙏
ps. Circle of life sucks imo
I am so sorry to hear that. My wife died exactly 1 year before your husband on April 26th 2022.
@cyndi, I’m so thankful for your comments addressing the real deal of the symptoms. *He suffered bad. Vomiting, pain, hepatic encephalopathy, dark urine, itchy skin, acites* This speaks volumes! Was your husband on hospice or VA?
@@blackbear7104 he was on hospice thru the VA . The VA wouldn’t do anything to help him.
I’m sorry for your loss girl 🙏. May Jesus live in your soul 🙏❤️🙏
1955 to 2005 R.I.P. my big Brother. He was told that he had about three years to live,and he died three years later.I miss you every day.I think about you every day.The what if's get to me all of the time.What if we did this,what if we did that?I love you Tim !
My dad passed away almost 3 months ago from liver cancer. It’s sucha brutal disease and it was nonalcoholic 😢 he went through everything that is being mentioned in this video. I miss him so much can’t wait to see him again one day.
Sending you love from California
My mom has metastatic liver cancer from pancreatic cancer. It metastasized last November. She had a TACE done to help shrink the liver tumor. She’s still getting out most days, has a good appetite.. thankful for that ❤
Good evening
How are you
Years ago my Mom had colon cancer and I was visiting her for several days in the hospital. It was gut wrenching to see a relatively young man a few doors down from her in his 40's basically dying from liver disease and it was clear that alcohol. His family would gather around outside and inside his room basically waiting for him to pass. It was sad to see and I remember that scene still.
I witnessed my grandfather die from Liver cancer(the result of alcoholic cirrhosis) and it was the worse thing I have ever seen. Apparently he had Esophageal Varicies so he had 2 episodes of massive hemorrhaging from his mouth before he finally, mercifully died. He was at home, on home health/hospice care. When the bleeding started we were tried to call the Agency, but they never answered the phone (after hours?). So my mother, sister and I had to manage these terrible events by ourselves, with towels. We turned him on his side and I held a tupperware bowl to his mouth. He was fully conscious and very terrified, crying help me, help me. We tried to be calm and told him he was ok and that he was just feeling a little sick. The nurse only came once a day to take his vitals, check his catheter, bathe him, and tell us how long she thought he had. We were completely on our own. She came after he died, completely unaware that he had passed. He had already been taken to the funeral home. This happened in 1995. I hope that hospice care has improved since then because I think that my mother, sister, and I have PTSD are going through this horrific event.
I’m so sorry your grandfather was so ill. He must have been comforted by the presence of the three of you, tenderly caring for him. What a gift for him in his hours of need. You are all remarkable.
This couldn’t come at a more uncanny time; my best friend passed away in April 23 from pancreatic cancer that metastasized to her liver. She has so those symptoms. Five days before that, my friend was buried from what we all suspected liver disease from alcoholism. They tried draining and her heart stopped. In between those days, a young man I knew who just came out of rehab for alcohol, died. He had massive stomach pains. Not sure if bleeding ulcer (autopsy not released yet) or liver issues that he hasn’t addressed…so tragic 😢.
Ascites is the worst. I watched my husband deal with it in 2021. He had the drainage procedure paracentesis several times, they extracted the hospital's maximum of five liters each time. He got huge temporary relief from it, before the fluid started collecting again. I remember rubbing lotion on his belly when the swelling got big, because the skin gets stretched so taught like a drum, the moisturizing helps with discomfort, a little bit. God it was rough near the end. I empathize with anyone going through this with their loved one
I'm going through it with a close family member. They told us it’s nothing they can do anymore. 😭
@@rubyjaez I'm sorry. It's a rough way to go. Just remember that they can still hear you at their bedside, and you can still offer up words of love and comfort and reassurance that it's okay to let go. Wishing you well
I went through the same with my husband but only once. I held his hand while they removed 5 liters of fluid.. He died 7 months later 3 days after Christmas. Watching this illness take hold of him was heartbreaking as he was only 41. I wouldn't wish this disease on my worst enemy.
Paracentesis to drain the ascites isn't so bad. 5L every 3 weeks for 6 months was rough.
The TIPS procedure stopped the build up. Ask your hematologist.
I feel x1000 better and my muscle mass is increasing.
Named to the transplant list last month.
🎉 Woo-Hoo🎉
@@maryann7619 He's been gone for two years. In his end stage condition, he didn't qualify for a shunt. And because of the large tumors, he didn't qualify for a transplant either. Wishing you luck
I am an RN and my 32 year old son has end stage liver disease. It’s been devastating.
So sorry. 😢
So very sorry. My 40 yr old daughter has end stage liver disease. So hard to watch them suffer.
Hie my Name is Tapiwa um a nurse in Zimbabwe doing Palliative care,I have seen most of your videos and they are very educational and true I face that everytime,
Today um having a patient who is in the end of life state ,the doctor came and asked him not to put him on any drip
A friend's husband was having trouble breathing. He was fit and hardly ever had a drink. When at the doctor's office, they did an xray of his lungs. The doctor told them that his lungs looked great, but part of his liver was caught on the xray and it looked swollen. He had liver cancer! He died within 3 months after going through terrible torture....many strokes and symptoms explained in this video. So awful! Thank god for hospise.
I always tell my actively addicted patients when we are end of life, there is no such thing as relapse - comfort is what matters. Nice to know y’all feel that way too.
I was a hospice nurse in an 15 bed inpatient hospice center. Some patients regardless of diagnosis, we’re allowed to drink. The family brought the alcohol and it was kept in our med room. The doctor would write an order that they can have X amount every X hours. When you’re dying, you should be able to do what you want to do as long as it doesn’t hurt anyone else.
Yah. It's not like it will make a difference at the end of life /on Hospice point!
I lost my boyfriend to ESLD in 2019 due to alcoholism. Your videos have helped me so much during the grieving process. I'm grateful he's no longer in pain, and I know we'll be together someday.
They always said in nursing school, a 90 year old woman shouldn't have to beg for some salt. If you are dying, and alcohol helps with your mental health or stopping it will make you feel worse, drink.
My 40 year old son passed on 11/27/23. He had so many health issues. Started out with Diabetes not well controlled, enlarged spleen, choiliocyctis. Then over time liver disease, peritonitis which led to kidney failure, respitory failure and severe septic shock. I will miss him so much.
I am so sorry for your loss. my heart breaks for you reading this. My cousin just passed away this morning from liver and kidney failure and my uncle, his only surviving parent is beside himself. May your son Rest in Peace and may you see him again in Heavan.
My sympathy to you losing your son as I lost my son in July 2020 due to heart attack. As mothers we grieve the loss very different from others. My son was 43 and rarely discussed his health with me. As a Christian I believe I will see him again.
Thank you so much for each and every one of your videos. My Mom is currently at the end of her life and you have helped me so much-which in turn has allowed me to help her. She has cancer that started in her cervix and has spread, we don’t know exactly how much, but 3 years ago it was labeled as having stage 4A cancer. She has been on actively dying protocol twice now-and you have walked me through everything!!! Thank you so much.
Wishing your mom peace and comfort in her final days. Hope you have much support.
My granddaughter passed from end stage liver failure at age 35. Caused by Lupus, she also had kidney failure. She had to be drained 4 times but she’d fill right back up. She had severe infection in the end and suffered terribly. She begged me to put her in hospice for a week but I finally admitted her, but she passed within 6 hours. I wish I would’ve found your site long before.
I wish my dad had hospice at end of life. It could have been so different for him. I stumbled upon your videos the other night and it led me to search for volunteer opportunities for hospice in my area. I want to be there for someone the way I wish someone could have been there for my dad. Thank you for your videos.
My dog had liver disease. Given a month to live. I had her fluid drained every month . She lived for over a year and was very active and lived very well until the last week of her life. one day she just stopped eating and 4 days later passed away. Vet said she was not in any pain. She just stopped breathing.
This makes me so sad because I had a very special cat who died of liver cancer in November 2020. No one ever suggested draining the fluid off his belly even though he was in obvious discomfort. I wish our vet had told us we could do that. It could have given us precious time together.
@@serenahm Sorry for your loss. The procedure was not very painful, and only took a few minutes. I have fostered many dogs and when going to vets are any doctor you have to take charge of your own care. You basicly have to tell them what you want done.
sorry.
I'm sorry to hear this John. My dog Maggie has had tumors on her for years. She's not in pain but she stopped eating about 5 days ago. Still no sign of pain. I'm watching her close. Dreading making the decision to bring her in. But I won't watch er suffer
@@daniellazarus7943 Sorry to hear this about Maggie. I'm sure she is not in any pain. I hope she gets better.
My Dad never drank and died from cirrhosis and really had a terrible death. They did not put in a drain and he swelled beyond belief where his skin was actually melting away and he was leaking out. It is a terrible death.
Sorry for your loss,but it seems even a bad diet and eating much Sugary and high Carb diet could be similar to almost being considered to be an alcoholic for one to develop Non Alcoholic Liver Disease, which slowly could turn into cirrhosis.
Sugar is just as bad for liver as alcohol .. avoid bad carbs as much as you can .. carnivore diet is good or carnivore with little bit of veggies n sone fruit . Stay away from processed carbs eat whole foods as much as possible
In 2020, my friend passed away from cirrhosis of the liver. It was a sad way to die. Thank you for talking about this subject.
Do you mean in 2020? Sorry for your loss.
@@suzieq2268 thank you for pointing the date error and for your condolences - both are appreciated.
Had a friend who was a functioning alcoholic (beer) woke up, popped a can, all day. Worked his way up ladder & never missed a day, most people didn't know. After 30+ yrs he got pneumonia was in hospital & forced him into cold turkey with no meds ease it. He died there. Always felt that had a big part in his death. This was about 30 yrs ago now. Realize there might have been other internal health issues..
Still miss him.💔🙏
Good to know Hospice home care will work with patients about this.❤️
Oh wow I'm so sorry. Did he tell the hospital that he was cold turkey off alcohol? That's a very bad and dangerous withdrawal. Can cause seizures and all kinds of things.
@ssjess2504 Yes, Hospital knew. Times were different back then & still now sometimes. Hospital care, Drs procedures were brutal overall. Medical advancements are a good thing...(haha) nowadays go to er or after surgery sent home w/instructions alternate Tylenol & Motrin, ice packs. elevate & rest....🤷
@@bkind1144 I'm so sorry about your friend. Yes we've come a long way throughout the years but still have a long way to go
Gads, 30 years ago isn't all that long ago, and I'm surprised as all hell that the docs didn't give him meds to manage his symptoms. You ask me, that's malpractice.
@@SputnikDeb I agree! Withdrawal from alcohol and benzos is so dangerous. You would think a hospital would've properly managed it
Very helpful and comforting ! Thanks Chuck
Thank you Nurse Julie for this informative video. I have metastatic breast cancer spread to my liver 4-1/2 years ago. I’ve been on oral chemotherapy since I was diagnosed.
The cancer mutated recently, so I was changed to another type of oral chemo, which has harsher side effects. I’m grateful to currently feel well with all things considered. My blood work was perfect today!
This video was a huge blessing when I discovered it. I’m a positive and optimistic person who believes knowledge is power. This video brings me comfort to know what to expect when I approach end stage liver disease. Now, I am prepared with knowledge to make my final days more comfortable and without fear of the unknown.
My oncologist doesn’t want to talk with me about what to expect at the of my life. I am extremely grateful to have found this video. I’ve saved and downloaded it. I’m sure that I’ll watch it many more times before end stage arrives for me.
Thank you again for this valuable service you offer many people around the world who are facing, or have a loved one facing, the end stage of life. May you be abundantly blessed for your loving service. - Gail
I have metastatic thyroid cancer. There are multiple tumours in my liver and they cant work out if its cancer in my liver or not. I am real scared right now. Lots of waiting in the health care system in Australia but cant complain because it is free. I am sorry that your cancer has mutated and that your new chemo is harsher. My fingers are crossed for you that it works and becomes easier to tolerate. Don’t worry about the terminal stage of your cancer until you’re told you’re there. Wishing you all the best!
@@iSheree Bless you with your trials with cancer. You are blessed to have free medical care. My medical in US is free for me today, but this comes after making huge insurance premiums for many years.
I find knowledge about end stage cancer for me eliminates any worries. I learned from this video about having the drainage tube in place before starting hospice. Without this knowledge, my last days could have been more uncomfortable but with this knowledge I am better prepared.
Take care!
@@gailcapshaw397Glad You are an educated, aware patient. It's always better to be prepared. I hope Your medical team is excellent - if not, please shop around without guilt. You deserve the best and accept nothing less - it's better to vet them now with all questions, ESPECIALLY the difficult and uncomfortable ones, now - not to be disappointed later when You may not be as able to make changes in Your care team. My father's passing from primary liver cancer was extremely traumatic and I wouldn't wish it upon my worst enemy. I wish You plenty of beautiful, happy, pain-free years to come ❤
My Father's undiagnosed colon cancer metastasized to his liver. The hospital sent him home without his glasses or his dentures because according to them" he won't need them". The only medication my father was offered by hospice was morphine. The tumor rose from his abdomen like the size of an orange. He was skin and bones at his death.
I’m so sorry for your loss. I’m appalled that the hospital kept his things then told you that he didn’t need them. How unprofessional and cruel. No telling how many other times they’ve done this. I hope they were reported and held accountable because when we’re quiet about these things they just get to keep on doing this to others. :(
What stage colon cancer did he have?
@@user-gr8bx7sy5d I was of the opinion he was diagnosed with stage 4
Ascites feels very weird compared to being bloated - when I had it bad it literally felt like I was 9 months pregnant with twins - very very painful - please, drink responsibly
22 years ago, I was diagnosed with Hepatitis C. I'd had a blood transfusion in 1980 where I'd contracted the Hepatitis, Cirosis had taken over my liver before I knew I was sick. In March of this year, I had symptoms of bloating, some intestinal distress, and vomiting. 2 weeks ago, they removed my gallbladder but the bloating has intensified, my surgeon will be running some test this week to see if I do in fact have Ascites, there is hope given I do have this isn't there?
You are such a sweet soul I am so glad the people that need hospice has a wonderful loving nurse like you, I can tell you were meant for this job, bless your heard, God bless you!!
You made this so clear. I’m a lay person and I completely understood about the don’t worry if they want to keep drinking or whatever. They are in the last stages of their life and there’s no recovering from this. Hospice is to make them comfortable until the inevitable happens. AND GET THAT TUBE FIR ASCITES BEFORE GOING INTO HOSPICE. I’m healthy and all my family are at the moment but this should be really helpful for someone going through this difficult time in their life or a loved ones life.
This is very helpful and very accurate for my wife is experiencing with kidney and liver disease. Especially having the implanted drain put in before going into hospice as some hospice companies kick you off hospice if you go into the hospital, even if it's for a procedure that makes hospice more tolerable. I just want to add that my wife's cirrhosis of the liver was caused by the chemotherapy she underwent during two bouts with lymphoma. So that's another way that someone can go into liver failure. Hope this helpful.
Yes, I agree. Also, certain medications to treat auto immune diseases.
Oh wow. Maybe that's why I have this... chemo.
@@CCisRight what medication i have RA and very fearful of some of meds im on and that they want me on
@terrijsm don't be afraid! Just take care of your liver. I'm on Methotrexate and a bio similar to Remicade called inflectra. Let me tell you that I went undiagnosed for 2 years. I could barely walk, could not open lids that had already been opened, could not reach up in cupboards, and even had to crawl upstairs. Once diagnosed and medicated properly, the pain diminished so much. I had to relearn how to walk properly because, due to favoring one foot over another for the 2 years prior, my tendons had shortened.
I've been on this combo of drugs for 4 years now, and I've been declared on medical remission! There's hope! Take the meds. The doctor will monitor your liver through blood tests. Just make sure the doctor prescribes folic acid and take B complex because the meds seem to draw those nutrients out of our bodies.
I am so sorry that your wife developed liver failure from chemo. I wish you both peace and comfort.
Hello, My mother in Law has stage 3 pancreatic cancer due to chronic alcolholism as well. She didn't stop smoking and drinking neither, even if at this point her pancreas Can't digest a single drop of alcohol 😢 It wouldn't change a thing at this stage if she would stop anyway. WE ARE looking at her slowly killing her safe for the past 20 years. And now it's the final chapter. Alcoolism is a beast. Thank you very much for your Time . Greetings from Belgium 🌸
Uhh please be more kind in remembering some of us reading this are “killing” ourselves also from smoking and alcoholism…. It’s a disease just like any other… I see overweight people all the time take their insulin before their pie comes to the table… my family all suffer from this disease, only a few have no alcohol problems but are well over the 200 lb mark..please remember we all suffer from and handle stress in different ways…😢😢😢😢😢😢
@@Nurse66 Hello I do know that, of course what you say is true, but I'm talking about my experience with my mother. And how this deasese(the alcoolism) is killing not only her but, every relationship she has. It pushes away her loved ones, crashes every thing.
Confort and peace is all I want and dignity.
My wife of 35 years passed last week from Diabetes, ESRD and congestive Heart failure. Thank you so much, Julie, for the information you provide.
Thank you for this. It confirmed that my mother died the typical way from liver cancer.
I wish we had home hospice at the time (1982). She was in a hospice facility.
Thank you for all of your content. I watch to help myself deal PTSD from my mothers death.
Love and Peace
❤✌
My mother died of this at 55 a couple years ago now.
She was an alcoholic had liver damage but hadn’t drank for about 20 years. In 2020 she had an operation on her foot which got infected. This resulted in her not being able to stand up at my house so had to call an ambulance, she went into hospital that night then went into a coma then when in the coma had a seizure that the hospital couldn’t get under control. She was in a coma for a week then transferred to palliative care.
I stayed with her pretty much 24/7 in palliative, she did regain consciousness but could never really talk, she did start to recover in my opinion, but had hepatic encephalopathy. One night I woke up to her having a seizure which lasted for 3 hours the hospital couldn’t get the seizure under control, she never regained consciousness after that and died a week later.
I think more awareness of the seizure side needs to be made, it was a really horrible thing to witness, and to not being able to do anything to help. To me it seemed she was aware of what was happening and she looked scared.
The seizures were not from the alcohol if she hadn't drank in 20 years. Maybe she was allergic to meds they gave her? Very sorry for your loss.
Wow 3 hs abseizure
@@visam28
Hepatic encephalopathy is a decline in brain function that occurs as a result of severe liver disease. In this condition, your liver can’t adequately remove toxins from your blood. This causes a buildup of toxins in your bloodstream, which can lead to brain damage.
A symptom of severe hepatic encephalopathy is to have seizures.
@@wololeiro2364 it was quite bad. Not something I would wish on anyone.
I would appreciate a session on what to expect for a bed bound person in their late 90s.
Thank you, Nurse Julie. I wish I had someone like you around when my dad was dying from liver cancer in July 2019. You are an amazing person and the world is a better place for having you in it.
You are such a blessing. Thank you for educating us with so much important information that we can use. You are so smart and watching your videos helps so many of us from so much suffering thank you love you so much.
You explain things so well thank you for making these video's.
Sooooo thoughtfully presented. Thank you!!!
Always a joy listening to your comforting videos. Thanks very much. The comfort you bring is a blessing although I am in no end of life crisis but rather someone who thinks we should be focussed on the expectation instead of on denial.
Thank you Nurse Julie for educating people. Knowledge is such a powerful thing. It helped me tremendously as I was with my little bro during his last 2 weeks dying of end stage liver disease. Alls I did was read and research everything the whole time. This helped me to manage myself and enable me to except and understand the things I could not change. I learned a lot . Doesn’t change the whole in my heart he left but it did change my whole experience of being by his side which enabled me to be strong and compassionate and understanding. Learning what the body does and all. It helped me to focus in on the very most important thing I could have and did which was loving him with all my heart and soul to the very end with no questions. That is exactly what we both needed. Knowledge is a beautiful and it is strong enough to see you thru the toughest times.
Hi
How are you?
Excellent over view! Always love your teachings and experiences. Nurse Lisa
Thank you for next great bunch of information. I appreciate what you do here ❤❤❤❤
My husband had this along with numerous other issues. He stopped the vodka about a year and a half before his death but the damage was already done. Along with all the other health issues, it was just too much for his body. Good old lactulose...it worked for the ammonia and I am glad. We had lots of diapers to change, but that was ok because we just laughed about it and went on with what time he had left.
Hi julie ! You,re amazing! Love your video,s and thankyou for sharing this in formation!
love this channel . . . and this lady.
I have non alcoholic cirrhosis of the liver. So this is what I have to look forward to! My doctor says so far I'm doing good. Thank you for all your videos. Starr from Sumter SC.
Blessings to you princess .From San Andreas California 5 31 2023
@@avalon1rae thank you.
I too have non alcoholic cirrhosis of the liver. I also have more medical problems.
My doctor is a quack so I'm looking for a better one.
I am always tired so I sleep quite a bit.
I don't know if I will end up in hospice or hospital or home.
I just want to be pain free. Death is always on my mind.
Thank goodness both my children are grown. I have no friends or family so that sucks big time.
I'll just keep on keeping on.
@@velvetharnish9957
So how is your Diet?.
I've heard many people in the early or even middle stages of Liver Cirrhosis that they stop the progression with pretty much a VERY STRICT DIET.
Also,take TUDCA, Tumeric Curcumin and AMLA Pills or tea to help your liver out to give a good fight!.. Look into this stuff.
God Bless 🙏
Hopefully your Liver Cirrhosis is compensated and could stop the progression from getting worst by doing some Diet Adjustments.
Also from Hep C cirrhosis. My little sister passed away in 06 from it. She lived in Maine and her dr told they don’t do liver transplants for that reason. I’m sorry that’s not true. They do liver transplant for all types of liver diseases. Anyways so my sister passed from it in hospice 😢
I pray I get a compassionate person to care for me if my time comes
I find watching and listening to your comments very informative,I have liver cancer I'm not sure which cancer I have but I'm going to keep watching your videos
My husband has liver disease due to diabetes. He’s on the transplant list but still living life actively right now. He already struggles with these symptoms but he is managing them so far. Thanks for all of this info. You mean so much to me!
Vanadium and chromium are two trace minerals that, from what I’ve researched, can greatly help those with diabetes.
I hope he started a keto diet, or carnivore diet. These diets quickly correct and reverse diabetes type 2. and this allows the liver to recover...possibly enough to start working in a healthy manner again. No sugar!
Thank you for sharing all of this. My husband lived with non-alcoholic liver failure for four years. He lived with all of the symptoms you described. He received a new liver last September, but when they biopsied the old liver they discovered he had bile duct cancer. And it had spread. He died in February. He was just about to go on hospice and I wish we'd done it sooner. His cancer fight was short, brutal, and ended abruptly. I wish we'd understood more of what he was facing and dealing with.
By any chance was he overweight/obese for years and how was his diet?TYIA!.
Two years ago my sweet cousin Susie died from Bile duct cancer. Her death was swift, violent and so painful. She was diagnosed on February 18th and was dead by March 2nd. She suffered so much! 😢 I love her, I miss her. I hate cancer.
My husband died 5 years ago at the age of 57 from Bile Duct Cancer also. They wouldn't even let me his wife give part of my liver for a transplant. So unfair to not even let us try it. Our son was only 10 years old when he passed again so unfair that he has to live without a dad and me my husband. They gave him 3 months to live, he did chemo and two clinical trials and lived for 16 months. They were not easy months and his death wasn't easy either. He fought to live just as hard as he fought not to die. This type of cancer gets barely any research for it because it is rare, the two trials he did where First In Human and the side effects were horrible. We miss him everyday.
I have two siblings w alcoholic cirrhosis. My oldest sister and oldest brother. My brother just had a transplant a week ago and is doing great! He's been sober a year before that. My sister is limping along and refuses transplant.
I'm the youngest of 4, all my siblings are alcoholics, my parents were also. Please educate everyone you can about how toxic alcohol is.
I've seen my siblings turn glowing yellow, get tapped for ascites multiple times, bleed out of their nose and eyes, my sis had an aneurysm. Low platlets. ICU multiple times. And nevermind the HE when they act completely insane or aggressive.
This disease will break your heart in ways you didn't know were possible.
Lost my mom, my buddy, in 2020 (hell year) she had non alcoholic liver disease. She had all of the symptoms you have talked about. Was on hospice for 11 hours.
I have non alcoholic fatty liver disease. I don't even know what I'm supposed to be looking for at this point. Just watch my liver enzymes? Watch for jaundice?
@@Grrrfrend
Why not ask your doctor?
@@Grrrfrend
Before you worry for the terror tales,you could begin by cutting back on your sugar and Carbohydrates intake and then slowly begin to lose weight and that will stop the fatty liver and turn things around for your liver to heal itself.
Thank you for sharing. My dad passed in 2021 and had ascites with cirrhosis. His dr drained this fluid twice while hospitalized, but NO ONE- not his dr nor his hospice team- ever mentioned a draining tube. My daddy suffered through it.
I am so glad that you made this video. I was just recently diagnosed with cirrhosis. My liver is still compensating and I'm not in end stage. However, my disease in one year progressed from a fibroscore of F2 to F4. I hope that when the time comes, I get a kind and compassionate nurse like you when I will eventually go into hospice. Hopefully that won't come for several more years.
My team has been treating a lady for stomach cancer with cannabis oil. She was also on the liver transplant list. After her latest scan, they informed her that she doesn't need a transplant now. No more abnormalities.
Cannabis is crazy amazing
I know a young man who had cancer n used it
It’s been a decade now
Do you think the cannabis oil healed her liver?
That’s good information! My fil died of liver disease and was in hospice care. He had ascites and his doctor did not place a drainage tube for drainage. Wish the family knew more about what we could have asked for to help him ease his discomfort besides morphine. Thanks for sharing!
Hospice did everything they could to help my husband be more comfortable. There was only so much they could do though. They were great.
I'm so sorry for your loss. I just got placed on the transplant list. With my doctor's care we mitigated the ascites with paracentesis every three weeks or so and then the TIPS procedure that opened the portal vein.
I don't know why everyone does have access to that😢
My mother in love has NASH- in the end it was a bacterial infection growing on the lead wires right at her heart valves. She was struggling so bad- it was causing her to back up with ammonia- made her super lethargic and almost like she was intoxicated. Getting her to take the lactulose was a whole other issue- it was absolutely horrifying to watch her pass this way. They didn't know what was happening until two days before she passed. Three months of illness, mostly in patient. We got her home and 12-1/2 hours later she peacefully passed. ❤. Thanks for educating - things I wish I had known for sure!
Thank for this video my best friends husband has liver CA for over a year now we celebrate him every day. Thanks for the info hes not on hospice. Hospice yet but I will sudjest the drain
Hi my husband has end stage HCC from hep B, on hospice.. Has Jaundice and confusion but not ascites. I am confused??? Can you please explain why this is ??? Thank you. You have brought me so much knowledge and comfort and his hospice have found your videos a great tool to signpost other families ❤
I LOVE HOW YOU EDUCATE PEOPLE !
THANKS FOR THE TIME YOU TAKE FOR ALL OF US!❤
Hi
How are you ?
Hello to you, firstly thank you, thank you for the channel, thank you for what you do, you are amazing and hospice is awesome, being a man I wish I was half as strong as you, this is one part of life I don't understand or handle well, although there is a lot of mystery in someone dying, I just wish I could be more helpful, especially seeing my wife is a nurse and she is a born to be nurse nurse. Take care, thanks for making a difference ❤💖 Raymond
Thank you Julie! My mother passed 10 years ago in hospice facility in Michigan. They were horrible! She had awful bedsores which kept her in constant pain and they were so rough with her, she cried. I live out of state. By the time I got there she had passed. She was alone in room with her eyes wide open. My sister had left 10 minutes before, but still.
Likely died in a coma state and no longer suffering. Nurse Julie says the death stare with eyes open patients are unresponsive.
This is one of the reasons why I'd never live in Michigan. Apparently they mandated those pokes in nursing homes. You know the ones. My husband's grandma, who was doing fine until then, died two days after the mandate was enforced.
Julie, thanks for seeing and answering my question about death from liver disease. This was extremely helpful for me to see. I just had a fibroscan, MRE, MRI today for my liver and will have the liver biopsy next Friday. Being educated along the way is crucial so we can indeed advocate for ourselves.
I wish you good luck!♥️
Hi
How are you?
🤔💐
I hope everything looks okey,not too serious like Cirrhosis nor Liver Cancer.🙏
Hi Lanie. Explain what as always you look great. Love this house. Iam a 78 year old Yankee that loves much about rhe South. Husbands Dad was from Yazue City so loved that episode. And yes i think i spelled it wrong! Enjoy watching all you do. Ty. You know i think this is my favorite home you have shown us. Please continue.
Thanks Julie!! Great video!
My biological mother died from liver disease .I never knew her . Thank you for filling in parts of my past . That's interesting to know .
My daughter’s father has been an alcoholic for decades. He lives in the Midwest and I brought her out east to rebuild our lives. She is an amazing women with 3 kids the oldest of which just graduated from a prestigious college and has an amazing job. Her youngest has never met this grandfather. Her husband and all the kids are currently traveling to see her dad. I was notified a couple of weeks ago that he had been in the hospital with an enlarged abdomen and they drain him of much liquid. Until I saw this video I was not aware of the actual cause. Thank you for your video as I am sure this trip was ordained to be a gift to them all. ❤ learning the power of love is the reason for this life!
Alcoholic for decades, doesn't sound good on the liver.
I'm saving this because my husband is a long time heavy alcholic and the whites of his eyes are bright yellow and refuses to see a doctor
Any update?
Thank you thank you thank you thank you for these educational videos ❤️
Hello Julie, you are such an amazing help and have brought such comfort. My mom is in hospice for Alzheimer's Dementia. She checks all of the boxes in your video that explained the end stages of that disease. However, I viewed this one because she is extremely jaundiced and had abdominal swelling. She was prescribed Lasix which she is still on. She is steadily losing weight and we just do our best to keep her comfortable at home. She is still eating (pureed foods and Ensure/Boost) and always wants lots of water (diabetes surfaced as well). I'm not sure what brought on her "sudden" liver issues. Her bloodwork was not good but not the worst. One of the nurses mentioned that some people have much higher bilirubin levels but don't always present as yellow as my mom is presenting. Is this just a part of the overall breakdown of the body?
I have stage C congestive heart failure with preserved ejection faction, and stage 3B kidney disease. They are going to put a fistula in my arm soon. So I likely have a few years, but your videos are helping. Can you talk about my diseases at some point?
an amazing fact is that many people pay a lot of money to destroy their liver and lungs. they work hard at it too, doing it every day for many years. alcohol & tobacco products are the major contributors to liver and lung damage.
I'm so glad I came across this channel.i lost my loved on may 2 2023 he kept the seriousness of his illness a secret he was a type 1 diabetic he had a severe foot ulcer which made his system septic he was n hospice 4.25.2023 it happened so suddenly to process he was dying.he wanted me to make his medical decisions I barely was able to process doctor coming then hospice he had said don't tell his family it was no closure his sister came n disrespecting him as well as me.he didn't pass peacefully she talking about him really bad knowing what was happening how to get closure to much was un said. He passed a week after being n hospice. Need grief support I've goggled to find a place didn't know it was so difficult.thank you lost
We made the decision on Friday to move my mom to Hospice care for her non-alcoholic cirrhosis, it's been an incredibly difficult decision, but we are hoping it is the right one. She's been struggling with her fluid buildup and her mental state has greatly deteriorated over the last few weeks and now she has congestive heart failure. She's 80 years old so we had to look at her quality of life and decide what she would have wanted if she was still in her right mind. All she wants to do is sleep all the time and refuses to take any medications, eat or drink anything.
I’m so sorry for you and your family . God bless your beautiful mother
My son died May 19. 24 from cirrhosis. IIt was horrific and (I have been so traumatized by what he went through,I don't think I will ever be the same. WE had hospice but it still was sheer hell for him and he was such a good man. I don't think there is a worse way to die. He stopped drinking in September and never wanted it again but it was too late. His liver was destroyed. I can't imagine anyone beig well enough at end stage to even think of wanting alcohol after going through all that misery.
My Dad recently got taken off chemo and was given 6 months but is in alot of pain and having to go in every 9-10 days to have a paracentesis done.. He's having alot of trouble eating, if he's not vomiting he's constipated . I moved back in with him and my mom about 5 yrs ago when he just had prostate cancer to help , I'm so glad i can be here for him but its so hard to watch him decline and suffer
Thank you for this information.
My mil after vax and boaster got a turbo cancer where one evening she started to complain about pain in her arm and she unveiled her lower arm it was swollen like a sausage. By the time she was transported to the hospital the tumor inside her bone had exploded her bone. She had surgery to repair that bone but shortly after the cancer metastasized to other parts of her bones mostly the spine and it finally got into her liver. She’s still alive but her doctor said he was some kind of miracle! It’s so hard watching your family member succumb!
Thankyou for this content!
Not scared. I have this. Symptom management is key.
Great info as always, Julie! ❤
Thaaank you!
Hi
Hi there Julie! I love your content. Could you please do a video on lewy body dementia? Thank you!
My husband d passed 2010 of Liver disease. The abdominal swelling was excruciating. I didn't know a drain could be placed. Good ol VA.
My sister died of liver failure, auto immune hepatitis. She had to get drained so many times over the last year of her life. And they never put in a permanent drain and I don’t know why. The last six months of her life she was seen at the mayo clinic. Do you think they would’ve put in a drain there at least. But they didn’t.
Please do one on bone cancer. What to expect. Thank you
My 80 yo brother has bone cancer as well as prostate cancer. I don't know how much longer he has.
@@patlyon5545 I am very sorry.
VERY great info ❤
Thanks for helpful info
You're CZcams channel is priceless ❤
Hi
How are you?
you do a great job
My father recently passed from liver cancer a few weeks ago. He battled it for a few years and for the most part was well, but it took a turn these past few months. He had loads of itching and when he passed there was loads of bleeding.