Wish me luck, tomorrow morning im taking my very poorly Dad to his doctors to discuss a few of the items ive learned from this fantastic video (thank you) and also to ask about antioxidants such as curcumin/green tea/olive oil and lemon. Without sounding disrespectful i do honestly believe my Dads case has not been given the full support he should have received. Ill know more tomorrow but as it stands I honestly feel that this video has contained more help and information than he's received by a long way. Thank you for putting this onto here xx
I have in one day, 2000 isolated supraventricular extrasystole, without work and make any kind of forces. My chest hurts when that happens and I feel tightness in my chest and dizzy. This is something to worry about it??!! I’m always super tired.. all my muscles hurts when I wake up. My feet’s hurts all the time, like I’m stabbed.. I use Tafamidis almost 4 years, I’m losing weight. My memory has changed, my strength are flying away. My 3 year old son needs me.. and i don’t want make it suffer because I’m sick..
I had supraventricular tachycardia, dizziness, weakness, was losing weight, had stabbing pains in my feet, among many other symptoms and they all either subsided or went away completely with ultra-high dose methylcobalamin injections. I have an ATTR mutation but am not currently on any other treatment. My condition could be better, but it is definitely a lot better than it was. I'm not sure why this worked for me, or if it will work for others, but I wanted to mention it to you incase it helps. I also take high doses of oral methylfolate with the methylcobalamin injections. I get both without a prescription but my doctors are aware this is helping me. No one understands why I benefit from such high doses. I wish I knew.
Hi Tony! We have separate Facebook groups set up for several different types of amyloidosis. Have you been diagnosed with the disease and if so, which type do you have? I can direct you to the correct group once I have that info.
Wish me luck, tomorrow morning im taking my very poorly Dad to his doctors to discuss a few of the items ive learned from this fantastic video (thank you) and also to ask about antioxidants such as curcumin/green tea/olive oil and lemon. Without sounding disrespectful i do honestly believe my Dads case has not been given the full support he should have received. Ill know more tomorrow but as it stands I honestly feel that this video has contained more help and information than he's received by a long way. Thank you for putting this onto here xx
People with amyloidosis can have tendon ruptures other than just biceps,such as Achilles tendon rupture.
I have in one day, 2000 isolated supraventricular extrasystole, without work and make any kind of forces.
My chest hurts when that happens and I feel tightness in my chest and dizzy. This is something to worry about it??!!
I’m always super tired.. all my muscles hurts when I wake up. My feet’s hurts all the time, like I’m stabbed.. I use Tafamidis almost 4 years, I’m losing weight. My memory has changed, my strength are flying away. My 3 year old son needs me.. and i don’t want make it suffer because I’m sick..
I had supraventricular tachycardia, dizziness, weakness, was losing weight, had stabbing pains in my feet, among many other symptoms and they all either subsided or went away completely with ultra-high dose methylcobalamin injections. I have an ATTR mutation but am not currently on any other treatment. My condition could be better, but it is definitely a lot better than it was. I'm not sure why this worked for me, or if it will work for others, but I wanted to mention it to you incase it helps. I also take high doses of oral methylfolate with the methylcobalamin injections. I get both without a prescription but my doctors are aware this is helping me. No one understands why I benefit from such high doses. I wish I knew.
How do I join the Amyloid group?
Hi Tony! We have separate Facebook groups set up for several different types of amyloidosis. Have you been diagnosed with the disease and if so, which type do you have? I can direct you to the correct group once I have that info.
'PromoSM' 😒