Video

Thanks to channel, for shedding light on amyloidosis. 🌟 I was diagnosed with amyloidosis, and Planet Ayurveda's herbal supplements have been a lifeline. My symptoms have significantly improved. If you're dealing with this condition, I highly recommend their products. My friend's father also benefited from their supplements.

Excellent presentation,especially the analogies were superb.Thank you very much.

"Promosm"

If someone KNOWS and they they have a Kappa lightchain MGUS through testing then finds blockage in their LAD, is that concern AL amyloidosis may be playing a part in the heart event or is there anything to be pointed out to the 2 different and separate teams? Does this make the MGUS more than a monitoring event, should my oncologist be more concerned?

Diagnosed a few weeks ago. I had my bone marrow biopsy 3 days ago. Will find out which kind I have on wed 2 days from now. My dad had all the same symptoms I have. He died 5 years ago.

Useful

Thank you very much Doctor. Very happy to find this lecture/ short insight. I am medical student and contemplating making some research in this topic therefor looked this lecture to get the wind.

i gained 20 lbs in 2 weeks from fluids because my kidneys are failing

It is a very helpful and amazing presentation about the treatment targeting for amyloidosis. Thank you so much

Ayurvedic therapies aim to restore balance in the body's energy systems. Explore the potential benefits of incorporating Planet Ayurveda medicine into your holistic Amyloidosis management plan.

Nice webinar.. thank you all

Excellent presentation. I was diagnosed in 2007, treated in 2008 at the Mayo Clinic, and doing well.

Very thorough. Thank you!

I ask for more videos and study results, thank you

I would like to know more about this study as it concerns me. I am 47 and female.

Thank You! I believe ,that most of it is also valid for AL Amyloidosis paients?

Can prevent organ damage.

Humanity side is very important.

Thank you Boston Medical Center for your education and thank you Makenzie for creating the foundation. Its very important to educate the medical community and the population at large. People are being misdiagnosis with Alzheimer’s disease even though they may not have it and have amyloidosis. Duke medical center needs improvement on diagnosing people quickly because it's a time sensitive disease.

I've got it, off to Seattle in a few weeks to UW.

What is the mechanism that tells the bone marrow to make more light chains ? Is it an infection, virus or something else that initially starts this process ? Or is it just a healthy person and out of the blue the bone marrow just starts to make excess light chains that will misfold for no reason?

Does Monica serve clients in NC?

Wish me luck, tomorrow morning im taking my very poorly Dad to his doctors to discuss a few of the items ive learned from this fantastic video (thank you) and also to ask about antioxidants such as curcumin/green tea/olive oil and lemon. Without sounding disrespectful i do honestly believe my Dads case has not been given the full support he should have received. Ill know more tomorrow but as it stands I honestly feel that this video has contained more help and information than he's received by a long way. Thank you for putting this onto here xx

'PromoSM' 😒

People with amyloidosis can have tendon ruptures other than just biceps,such as Achilles tendon rupture.

Awesome presentation 👏 Thank You Dr Morie!!

Why would a ruptured biceps tendon be seen with ATTR ? What about other tendon ruptures ?

Lori l finally found my problem, after researching and researching all the other problems, this is what l have ! I am 99 .9 percent convinced that this is it , this always sounded like MS to me but it was a Peripheral Autonomic Amyloidosis! I need to have the HATTR or AApoA1 gene checked l am asking the lab people to check me for this or whatever l see Dr Micolucci to have this discussion

How do I join the Amyloid group?

I have in one day, 2000 isolated supraventricular extrasystole, without work and make any kind of forces. My chest hurts when that happens and I feel tightness in my chest and dizzy. This is something to worry about it??!! I’m always super tired.. all my muscles hurts when I wake up. My feet’s hurts all the time, like I’m stabbed.. I use Tafamidis almost 4 years, I’m losing weight. My memory has changed, my strength are flying away. My 3 year old son needs me.. and i don’t want make it suffer because I’m sick..

I have been seeing an Oncologist about My kappa is high @ 22.83 which is high/ Lambda level is 11.07 Kappa/Lambda ratio is 2.06 which is high but he isn't concerned does Dr Gertz ever post on any website so i could converse with him I just keep getting bounced around to different Drs and I'm at my wits end.

I have been seeing an Oncologist about My kappa is high @ 22.83 which is high/ Lambda level is 11.07 Kappa/Lambda ratio is 2.06 which is high but he isn't concerned does Dr Gertz ever post on any website so i could converse with him I just keep getting bounced around to different Drs and I'm at my wits end.

I'm sorry, but walking out of the room is the worst possible response to someone who is suffering.

... Thanks So Much for Sharing this Marvelous Presentation .. 😇👍🙏

What determimes where the proteins accumulate?

He compares Amyloidosis with assembling furniture with tool that doesn’t fit. I would compare it with non-degradable material like plastic in a composter.

This is a great webinar, filled with useful and authentic information on AL. Thanks for sharing❤ good luck to all warriors!

Does anyone know if Resveratrol is a transthyretin stabilizer? It seems like it would be.

Great information and easy to understand

How can I stay in touch to see how well these new medications are coming along. My wife is the TTR type on Tafadimis and its very costly and we don't know if it is doing it's job. My wife's EFF is about 15-20% and she gets tired alot. Right now, if any of these new meds get approved they would be too costly to use for the senior on Medicare.

Is it possible to reverse the damage to an organ due to amyloidosisy.

Is there a safer remedy for cardiomyopathy than Tafamadis and Onpattro? Tafamadis costs me $1000/mo and Onpattro ran my wife’s kidney numbers up as well as being extremely expensive.

Thank you for these useful videos. My dad just got diagnosed with AL Amyloidosis…now I understand better what the issues are.

Very Imformant

*promosm* 👍

My mum had this frightening diagnosis Amyloidosis in 1988 just in her skin/ hands for which she has had decades of easily permanently bruised fingers/ hands. She has lived till now 2022 but had health declines over the years. But I'm grateful she survived the original scary diagnosis. But is very poorly nowadays and I do wonder if Amyloidosis has had anything to do with her chronic health declines especially thyroid and severe osteoporosis and AF in the past decade.

Amyloidosis AH type is diagnosed while kidney biopsy Is there any treatment for this

I was diagnosed with AL in October 2022, I had symptoms since September 2021, I thought I had carpel tunnel, had afib & stroke,2/3/22. 2 failed cardioversions, one aborted ablation because MD couldn't pass pediatric tee probe,because of my large scalloped tongue, I've lost 34 lbs, since February 2022. Live on liquid diet, I have great Physicians, Dr Goldstein and Dr Kates in Saint Louis Missouri, Barnes &Jewish Hospital. I start Cyborg D treatment on 1/17/23. Also I may be participating in a clinical trial if they accept me. This is very hard,since I was healthy all of my 64 years, and worked 30 years as a Registered Nurse. It's hard to go from a care provider to needing care myself.. Watching these videos have been helpful and I'm am greatful for them. Thank You.

I would like to be a part of this clinical trial please

Excellent introductory video to amyloidosis!