Chafic Karam, MD, Professor of Neurology at Oregon Health & Science University presents on the neurological impact of transthyretin amyloidosis (ATTR).
This is very dangerous disease which took my father's life in May 1992. What I noticed is the following ways to combat this disease is as follows: Some herbs, meditation / prayer, or some way to make your brain feel relaxed, some sort of immune tea detoxes, but there is no cure only maintenance
My mum had this frightening diagnosis Amyloidosis in 1988 just in her skin/ hands for which she has had decades of easily permanently bruised fingers/ hands. She has lived till now 2022 but had health declines over the years. But I'm grateful she survived the original scary diagnosis. But is very poorly nowadays and I do wonder if Amyloidosis has had anything to do with her chronic health declines especially thyroid and severe osteoporosis and AF in the past decade.
thanks for a very good and informative video. I myself have amyloidosis with a painful polyneuropathy. Especially in the hands. I have been on Onpattro for 20 months with no pain relief in my hands. Now I have a CZcams channel to provide information about my journey with familiar Amyloidosis. 😢
How were you diagnosed? I seem to have the same issues. I have been diagnosed with MGUS and think I might request a bone biopsy for Congo Red/ Apple green to r/ o Amyloidosis. Thanks
Lori l finally found my problem, after researching and researching all the other problems, this is what l have ! I am 99 .9 percent convinced that this is it , this always sounded like MS to me but it was a Peripheral Autonomic Amyloidosis! I need to have the HATTR or AApoA1 gene checked l am asking the lab people to check me for this or whatever l see Dr Micolucci to have this discussion
This is very dangerous disease which took my father's life in May 1992. What I noticed is the following ways to combat this disease is as follows: Some herbs, meditation / prayer, or some way to make your brain feel relaxed, some sort of immune tea detoxes, but there is no cure only maintenance
My mum had this frightening diagnosis Amyloidosis in 1988 just in her skin/ hands for which she has had decades of easily permanently bruised fingers/ hands. She has lived till now 2022 but had health declines over the years. But I'm grateful she survived the original scary diagnosis. But is very poorly nowadays and I do wonder if Amyloidosis has had anything to do with her chronic health declines especially thyroid and severe osteoporosis and AF in the past decade.
I wonder how does this differ from MS? Could MS patients be misdiagnosed and instead have Amy??
thanks for a very good and informative video. I myself have amyloidosis with a painful polyneuropathy. Especially in the hands. I have been on Onpattro for 20 months with no pain relief in my hands. Now I have a CZcams channel to provide information about my journey with familiar Amyloidosis. 😢
How were you diagnosed? I seem to have the same issues. I have been diagnosed with MGUS and think I might request a bone biopsy for Congo Red/ Apple green to r/ o Amyloidosis. Thanks
Lori l finally found my problem, after researching and researching all the other problems, this is what l have ! I am 99 .9 percent convinced that this is it , this always sounded like MS to me but it was a Peripheral Autonomic Amyloidosis! I need to have the HATTR or AApoA1 gene checked l am asking the lab people to check me for this or whatever l see Dr Micolucci to have this discussion