3 Dementia Lewy Bodies | Atypical Parkinsonism (DLB, PSP, MSA, CBS/CBD) Symposium
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- čas přidán 11. 07. 2024
- Speaker: Geoff Kerchner, MD, PhD, Neurologist and Neuroscientist at Stanford's Center for Memory Disorders and Stanford University School of Medicine. This is part of the October 2012 Atypical Parkinsonism Symposium, organized by Stanford and Brain Support Network.
Videorecording was paid for by a grant from CurePSP and Stanford APDA.
My husband was diagnosed with Lewy Body Dementia two years ago, I knew nothing about it. I immediately started reading and watching videos. One of the keys to their care in knowledge of the disease. My head hurts from all the information I have stored, but I believe the awareness now has made his life better. I studied EVERYTHING, from the medicines, to the diet, to the activities. I will do whatever it takes to improve his life. Thank you for your videos
You are a wonderful caregiver, your husband is fortunate to have you looking after him. Very best wishes.
You’re a beautiful human being and an inspiration for life itself for love 🙏💫❤️
That's exactly my approach. I read and watched everything I could find, did online courses and extensive Q&A. My partner had advanced DLB when he was diagnosed ten years ago but is still on the right day, able to hold a rational conversation and I think this is down to diet and having regular company.
@@marilynmunro5838 hello Hope He is still fine..wich is te best diet for LBD? Muy mom is diagnosed..she Stable for now..but didnt knew of a meter diet
Such a compassionate doctor
This lecture needs more views by caregivers. Plain language that helps sort out dementia. I leave this comment to boost the CZcams algorithm 🤗
Thank you. My mother passed in December 2020 she had been diagnosed with Lewy Body Dementia 3 1/2 years prior. It kills some sooner and others live longer. It was not fun. I was her caregiver and I'm still trying to recover from the stress I was under as well.
WOW a big thankyou goes out to Geoff Kerchner. I live in Perth, Western Australia and my Dad struggled with LBD for many years. I found watching this over and over helped me care for my father through his journey with LBD until he passed 12 months ago. It gave me understanding in many ways. From the diagnosis of which I was able to do with the geriatrician , to withdrawing a lot of medication after he ended up in ED because he was prescribed a childs dose and ended up in a coma, to and the very deep connection I could maintain with my father at home (understanding my world was no longer his, so I adapted) until the day he died. He trusted me and called me his protector! Thankyou, I could not have travelled this journey without the knowledge of this article.
Dr Kirchner is the best presenter I've ever heard at answering questions specifically and succinctly. Makes me even want to ask him gardening questions I've always wondered about! 😊😊
:-)
Hands down one of the most enlightening , tell it like it is ( no holds barred ) presentations that goes deeper than any presentation I have seen . Many thanks to Dr Geoff Kerchner, ------ great overview of Lewy Body Dementia . -- Although - it's 10 years after this speech -- what has been accomplished with acquired knowledge and the treatment of DLB ???
Thank you for a talk of outstanding clarity at a pace where I could take notes. Some important insights, especially around bad drugs. Very much appreciated.
This talk describes my mother to a T. She has had dementia symptoms for 8-10 years but was just diagnosed with DLB after recent abrupt decline in motor ability and waking at 3am trying to leave the house.
This was very helpful. I will need to watch it many more times to get all of the information. Thank you
one of excellent talk about Lewy Body ever was spoken by drs ,Thank you for sharing !!
Great lecture, very informative, easy to understand. Dr.Kerchner is amazing.
THANK YOU SO MUCH FOR THIS EXCELLENT PRESENTATION...I HAVE COME TO THE CONCLUSION OVER ABOUT EIGHT YEARS THAT MY HUSBAND'S MAIN PROBLEM IS LEWY-BODY DEMENTIA, NOT PARKINSON'S (PARKINSON'S MEDICATIONS INCREASED CONFUSION, HALLUCINATIONS, ETC., AND NEVER REALLY HELPED WITH MOVEMENT, BALANCE, ETC. I STOPPED THEM ALTOGETHER)...DR. KERCHNER HAS ONLY CONVINCED ME MORE OF THIS, AND I LEARNED SO MUCH FROM HIM TODAY...
Hello Susan, does your husband gets any medicine at all, for tremor? thx
@@roelp9427 MY HUSBAND DIED IN AUGUST OF 2017, AND DID NOT TAKE MEDICATIONS UP UNTIL DEATH, EXCEPT FOR ANTIBIOTICS OFF AND ON BECAUSE OF A CHRONIC UTI WHICH HE HAD FOR NINE YEARS. I DO NOT KNOW WHAT HOSPICE GAVE HIM...HE WAS ONLY IN HOSPITAL HOSPICE FOR EIGHT DAYS BEFORE HE DIED. HE NEVER REALLY HAD MUCH OF A TREMOR AT ALL, SO NO MEDICATION WAS EVER GIVEN FOR THAT PROBLEM.
my husband and I were so impressed with Dr Kirchner, thank you so very much. my husband was diagnosed with DLB over 7 years ago, and I will be taking him to a Stanford/VA evaluation on Thursday, March 23, at 2pm, at the Palo Alto VA.. We are hoping for a backup diagnosis. Dr Lim is his neurologist, at the VA.
he is fab ...my dad has dlb /parkinsons he is only 64 and has had it about 11 yrs ...very young for a person with dlb x heart-breaking to watch .. he can no longer walk, talk is incontinent and does not even recognise us and has terrible confusion and outbursts of rage and anger ..but he's my wee daddy and I love him no matter what and will do whatever it takes to make his final days comfortable and with people he loves
@@alfredwhittingdale-parsons1443 What exactly does it do to DLB patients? I am one.
Your post moved me, I too took care of my pops, he was my dad a great man who deserved the BEST CARE POSSIBLE. While he was diagnosed with spinal meningitis first, he had no motor skills, he was blind from diabetes, deaf, and scared. We as a family decided to care for him at home. He didn't know who I was, but that was ok, I understood it. When he was diagnosed with LBD, it was by a fluke, but once we figure it out, and changed his medicine it was a little better. It was 8 months, and a few outbursts from him and confusion. He passed away now almost 2 years ago and I am still trying to get my health back from that time.
This is a great lecture and I appreciate his advice ☺️
11 years after this presentation and it’s still taking too long to diagnose. It took 7 years of frustration with doctors to get a diagnosis of LBD for my mom. Her doctors expressed no curiosity or desire to figure out what was happening.
INCREDIBLE information. Thank you so very much.
Excellent lecture, easily understood concise clear oration. Thank you so much for posting although it’s 5 years ago and some knowledge may have progressed.
Thank you,as been looking after my friend diagnosed with Lewy Body, your video has helped me and the family so much
What a pleasure to listen to this! Thank you very much, dr. Kerchner, for sharing all your invaluable knowledge in such pedagogical way. Just brilliant!
This was filmed 10 years ago. We still haven't really improved anything.
Fascinating and very informative
This is sooo good! Thanks for posting this!
Doc, thank you so VERY MUCH for this!!!! - LouieLewy
What a wonderful and informative presentation. Thank you so much!
very good lecture, i have seen a lot, but this is explaining many things and has given answers to what i didnt know
This was awesome! Thank you so much! This helps a lot.
Very good Doctor 👍👍👍
Excellent talk!
So much info. but it is amazing how so many in the medical community are up to speed. I think the AMA is a little weak in this area. Thank you for so much info, imagine people getting this very importtant info from YOUTUB AMA! ?
My Dad showed all the typical signs of DLB in mid-1990s. Now 25 years later, he is an advanced stage.
thanks for making this video
The lady in the beginning, introducing everyone was kind of funny lol!! She is a little firecracker 🧨!!! “Bet you didn’t have to be here as early as I did!! Ya know, some of us don’t just live around the corner” 😂💜😂
Informative lecture. However not a lot is known how to treat the disease. Dr. Kershner is correct much research is needed. I was told once the brain is our control center for everything that we do.
My father died one year ago with DLB - he was just 62 :( .... first noticed as Parcinson or kind of depression- than it went so fast ... thx for getting
Moren into it. whether it’s to late for him
Same as my father. I feel you 😭
My wife fits your description i on your great program when she described somebody in the house I talking ask her what they look like which seems to calm her down by taking the serious hat she had seen.
So excellent ... learned a lot.
Funny , more than a decade later and not much has changed
Only reason the word is some what out there is because of Robin Williams death and his awesome wife 🌺 doing her best to get the knowledge out there
I hope the doctor can tell if patient hasa pacemaker before MRI since some dementia patients wouldn't remember thatt they have a pacemaker
My husband had a violent dream someone attacking him he started hitting me: he has a hand tremor, he said I had strings on my shirt and came over to take the strings off, what he saw the tape for night running on my shirt, he was a marathon runner, so he was familiar with this type of shirt. He does not think he needs to see a numerologist to be evaluated. He uses his calendar for daily activities for remembering. His driving is not good, lacks confidence. He has become more depressed and anxious. He does have ortho stasis at times, not all the time. Thoughts?
Has there been any new meds since this video 9 yrs ago?
Excellent ledcture. Does abrupt stopping of Sinemet/Ldopa cause freezing of a patient either diagnosed with PD or LBD ? March 2017.
Good question, i ask myself too, hope we will get an answer, if i get one i will let you know
I was told that my Late husband had LBD through a spinal fluid measure After stomping my foot at his VA dr that for two years my loving husband of 30 years at that time was slipping.. fast loosing weight. Muscle mass, memory grrr Doctors please listen to the spouse you very well may be doing a cognitive test on a good day thank you just my 2 cents My husband seen a family of wolves in our yard in early stages.
I have a question about the part where he spoke about people who act out their dreams may eventually develop Parkinson's. If these patients wear a CPAP machine will they have less of a chance of developing Parkinson's?
Does everyone aware of random Fatal Insomnia (not necessary a genetic ones ir FFI). Please help us by raise awareness, we have FB group called Fatal Insomnia. its a complete inability to sleep. thanks.
My friend has Lewy Body dementia. She’s frequently very delusional. She has auditory and visual episodes. They often present to her as real memories. She does not realize she has this disease at all. She is in a facility but is convinced it is only temporary until another full apartment is available for her. Is it better for her to be told what is really going on, or to let her think she’s going to get better. She thinks she’s there because her legs won’t work right and she’s had several falls.
He's awesome!
Is there a odor with lbd
Question: Does it have to be visual hallucinations? Or would auditory hallucinations also count?
Auditory hallucinations do count. Even smelling things that aren't there count.
Yes, they hear things too.
I was diagnosed two years ago with Parkinson’s and it’s progressing very fast. I’m no longer able to cook and bathing is difficult due to difficulty with standing/ walking and I’ve noticed lately my stomach has been distended which feels painful. Muscle pain is excruciating. I wish they would find a cure
becky Sawyer I am so sorry. Make sure you have the very best neurologist around who specializes in Parkinsonism. There is a fine line between treating too much or not enough. You need to find someone also who really listens to you and includes you in the treatment. You will be seeing that person for a long time.
becky Sawyer I also want to add that you can have more than one thing going on. And specialists often have tunnel vision. They may assume that muscle pain or stomach distention which may actually have nothing to do with Parkinsonism, . But I don’t think so, and so you need a doc that looks at the whole body and is a great diagnostician. Unfortunately it’s hard for the lay person to know how good the doctor is. A good bedside manner is not an indicator of medical expertise. So often I hear how much people love their doctor, but in reality he or she is not very smart and just skates by. It happens more than you know.
becky Sawyer The last comment got sent before I edited it lol. I just wanted you to know that all specialists have tunnel vision since they look at the symptoms that fit in with their area of expertise and ignore others. I am not sure your other symptoms have anything to do with Parkinsonism. So do see a good diagnostician .
Western medication can do nothing for Parkinson's, especially dead dopaminergic neurons.
Do you believe that treated by God's mercy, nano-medication, end-stage PD patient, aged 86,
can regenerate dopmainergic neurons within one month as evidenced a lot of dopamine excreted
from her brain again.
Now one American DLB (dementia with Lewy bodies), aged 84, is being treated by nano-medication
with good progress. You can contact:
service@lorati.com.tw
Nano-medication is based on:
God formed man out of dirt from the ground.
All glory belongs to God !
God bless you !
It killed Robin Williams 😔
What is the life expectancy of a person with Lewy Bodies Denture
This one
1:24
M
methylcobalamin B12 resolved orally absorbed bocally is not just eliminated. What you said makes it seem like medicine has no way to help people who are deficient in B12!
What is Joe Biden taking