However, their soul is still in there, they are still children of God. They are entitled to be treated with humanity and with the dignity and respect that they deserve, as valued members of our community. I was not expecting to hear that in the end, that bought me to tears. A beautiful reminder.
Thank you so much as your information is the best I have ever heard!! It is so sad of how much damage Dementia and Altzheimers to our brains and our bodies too!!! So very cruel and heartbreaking too how our relationships with them which was wonderful can become terribly upsetting!! One big reason is they can become very mean and aggressive towards us instead of the sweet person they used to be!! I know as I have had to experience this just recently and had to suffer the consequences!!😢
Even though this video is 9 years old, it was probably the best video on dementia that I have ever seen and the last few minutes were beautiful and will help guide me through the care of my husband. Thank you for putting this video out there!
I'm an RN in Home Health. If a patient has any terminal disease--Alzheimer's, Dementia, COPD, etc.--I tell the family that they need an Advance Directive while the patient is still able to state their wishes. I also promote deciding on a primary Legal Representative so there's no arguing within the family when the patient gets critically ill. MOST patients don't want feeding tubes, or repeat hospitalizations. The bottom line is to let them die when the time comes. Also, Hospice is FREE. Many people don't understand that.
Seeing these brains in real life has been a rude awakening. I never realize that our brain can shrink and have gaps in them like this. Thank you for this educational video.
My mom just passed from this disease she was diagnosed at the age 76 she died at the age 83. This disease is cruel and heartless I watched once a strong willed woman become a shell of her former self it is heartbreaking to say the least.
Thank you for this video. So much great information here. My grandpa is nearing the end stages of dementia. He chokes on his food &/or pills. He is falling down all the time. He looked at my grandma today & said "whats your name". They have been married for 50 years. I could see her heart break when he said that. I am just trying to learn as much as I can so that I can help both of my grandparents through this hard time.
My husband has dementia. End of life diseases and pain are horrific. OMG… I had no idea. Although I am grateful for this information. I am heartbroken watching this video.
Thank you for this very informative video. My sister is in late stage dementia and had a hospitalization last Oct for acute sepsis. She is now in a nursing home and was previously in assisted living. She has lost 25 lbs since her hospitalization. I was able to get her an emergency appointment with Pat Summit Alzheimer’s clinic, and she will be evaluated for hospice care. This is a very difficult situation, and my siblings and I will not prolong her life. Once she no longer recognizes us or can no longer accept food or water….we will get hospice involved for comfort care. My sister will eat if you feed her. My twin and I are her POA. UPDATE: I took my sister to her neurologist appointment, and I had asked for her medication list from the nursing home. I discovered the nursing home psych PA had decreased her memory medication, Aricept from 10 mgs to 5 mgs, and decreased her Zyprexa from 7.5 mgs to 5 mgs, and took her off of her anti-anxiety medication that she had been on for 20 years. I had asked for two months to have the psych PA to call me. I was told he does not talk to family members. Really? The neurologist could not believe the psych PA would do this….especially with her mental history. He told me that once my sister goes under hospice care that they would prescribe and manage all of her medications. I had no idea that once you go into a nursing home that their money making drs take control, and totally disregards getting any resident medical history. After two months of my frustration, dealing with the staff on her not getting fed and not having water available…..I finally called the director. My sister’s neurologist commented that she looked dehydrated. The social worker told me that family members don’t normally get involved. I find it hard to believe that family would dump their loved one in a care facility and not ask questions when they notice their loved ones sudden decline.
I'm so with you, I have come across defensive attitude, making me feel I can't care for my 99yr old mother and tell them how cold she is or agitated or anything and not wanting to be a pest. All I can do for sure is be with her as much as I can.
Advocating for her is a battle and the best thing you can do for her. Take notes and report them, unfortunately many care homes are just like cattle stations@marynolan3471
This was more informative then meeting with my mom’s physician. This doctor knew more 10 years ago than most now. His manner of addressing the health and emotional stages of Alzheimer’s is admirable. I thank you doctor for giving me the knowledge of how to deal with my mom’s end of life. God bless.
Very good basics. My parent was well enough to request the PEG tube after spoon feeding and a nasal tube failed. We honored the request. She is now past the point of electing it. We’ve all agreed that when the time comes that she can’t metabolize the food or it causes undue pain, it will be removed and hydration only will be given. Fortunately, there was foresight enough to make an advance directive that has some wiggle room for after competence has gone. Ventilators, resuscitation, invasive surgeries with no chance of improved life quality, all not wanted. Acceptable are hospital for outpatient procedures like adjustment of PEG tube, blood transfusion, scans, etc. IV antibiotics needing watching are okay in hospital, if towards the end of increased comfort. Analgesic to a trance state is not wanted for religious reasons. We’ve been blessed with a pastor who is able to make nursing home visits and at home visits during COVID.
Robin Williams was diagnosed with Alzheimer's & he decided to end his own life before he deteriorated. Very sad because most people loved Robin Williams, but I believe it was his choice how he decided to leave this world.
Thank you for this needed information. My mother stopped walking and has been on Hospice for about 3months now. I can see all of the indications that she is at the end stages of vascular dementia. This is my second time being a care giver but this is by far the most difficult one.
Stay strong your an amazing person ❤❤❤I look after our Mum too she's also bed bound ❤️❤️❤️It's like constantly loosing a piece of her and grieving within knowing where this will end ❤️❤️❤️ Being real about it ❤️❤️❤️
Very informative. My dad is in the middle stage of Alzheimer’s. We’ve just had to take away his driving privilege. He just turned 89. I’m worried about him going down quickly because of his age. His mother lived to age 90. I will be getting that advanced directive. My family are trying to let him stay in his home as long as possible,but when it becomes unsafe we will have to move him to a nursing home. Thank you for the much needed info.
Definitely the best video of dementia I have seen and have learned a lot. My husband suddenly became a dementia patient when i noticed his driving became dangerous and I felt as though we were an accident waiting to happen.. anyway I will be able to look after him as long as he is not incontinent. That would be too hard for me.
I feel that my grandmother can be in these stages shes 97 and currently in the nursing home upon my visits she has yelled at the nurses, social worker she has gotten fearful that someone is trying to sell her house that she has lived in for over 50 years
Please don't think of it as abandonment. Providing the level of care that is needed is beyond one person's ability :( The best one can do is finding a good facility and visiting as often as possible. Care at home is very difficult and can be very dangerous for the patient - the risk of falling and hurting themselves is high, rarely homes can be adapted to be 100% saf. Not to mention that it is incredibly difficult on the caregiver and is beyond strength of a single person, especially one very close to the patient emotionally. We shouldn't guilt people into doing what society deems "more moral" because it simply isn't and most people doling the judgement know little of dementia realities.
We kept our mom at home for about seven years before we had to place her in a facility. She actually got better in the facility, because she had around-the-clock care. When she was at our home, she lost interest in eating and then lost a significant amount of weight. If she was up wandering at night at the facility, there was always a nurse to sit and talk with her and comfort her. She had friends and a lot of activities which were stimulating for her and kept her busy. My dad and I were able to visit and just love on her all the time, instead of fighting with her to change her clothes and take her meds. Plus, we knew she was safe. She wouldn't get out at night while we were sleeping. Is it the perfect situation? No, it's not, but once you've been a caregiver for a long time and you have caregiver burnout, you'll understand that 24 hour care is needed. My mom died recently at age 80 with my dad by her side. Put an alexa or camera in their room at the facility. Not all caregivers are quality and there is a big turnover in this field. This is the saddest thing I've ever had to experience in my entire life, my poor mama.
My mom wanted to keep my dad at home. She lost years off her life before we could convince her to place my dad. She wanted an outrageously expensive place. Spent the last years of her life suffering for this. Don't let this happen to you.
Ty for explaining this in such basic terms….it has made it easier for me to make decisions for my family member with Alzheimer’s and also for me when my time comes. I can discuss this with family members with some knowledge and clarity. It has helped immensely.
Thank you! This info was very helpful. I just lost a friend to dementia after he was in a nursing home for 6 years. He was 95 when he passed. I also have a friend whose husband has been recently diagnosed with dementia.
Finally, the best video answered my questions, thank you for sharing I care for my husband, he's in the seventh stage of Alzheimer's now His Alzheimer's began in 2018, to date, unable to walk, talk, dress himself, feed himself, is incontinent, sleeping more One thing he's still able to understand what you say, still smiles, cries listening to music (he had his own Band) taps his finger on the table , he'll nod his head for yes, even though very slightly, or a Hhmm I'm doing my best to care for him at home, with two Care givers during the week He's made it clear he wants to be home with me I wasn't sure how hospice works, now I do Other changes to watch for as my husband Alzheimer's progresses I'm reading, searching for answers, looking up answers when I notice my husband doing something different Thank you so much, again
Thanks for this. I’m trying to feed my wife who has ftd. Diagnosed in 2014. She hardly ever wants to eat and it’s a nightmare getting her to feed. I’ve got her to eat blended foods and yogurts but it’s only when she wants to feed. My Doc said give her whatever she wants whenever she wants it.
Thank you! The most helpful info I've received on end stage. I appreciate your acknowledgment of the need for respect for our loved one until the end. The importance of letting go is difficult for us but the best for our loved one. Very informative and well presented.
Thank you very much for this information. The criteria in 49:50 are very useful for my brothers and I at this point of our mother’s disease. GB 35:30 37:20 38:50 44:30 49:50
My Mom with Dementia is saying I’m waiting for God. She’s hardly eating now, probably 80 lbs. She is having bladder & pooping issues, often soiling herself. She doesn’t want to live like this, and sometimes knows she’s not herself. My Dad, her caregiver won’t accept help, tho we continue to push for him to get help brought in for him & Mom. To get him some relief, as he’s starting to show signs of memory loss. Most likely brought on by exhaustion, worrying. As Mom is wandering & sometimes hostile towards him, as he try’s to help her. We’re looking for alternatives to bring in support at home to help them, as well as long term care, as needed. My Dad’s denial of what care could be brought in, is devastating because I’m trying to get help for the two of them, and he isn’t open to suggestions. I can only do so much, and am there for both of them. It’s a horrible experience! I’ve made my will, living will, and care instructions ahead, including my funeral arrangements, so my family doesn’t have to guess what I want for end of life.
I can't begin to tell you just how much I could have written your comment for myself. I'm in PRECISELY the situation you describe. In addition I'm urgently investigating what I now KNOW to be the dangerous and inappropriate prescribing of and ZERO reviews/monitoring of toxic drugs that have done little if anything to help my mum and everything to harm her. I'm beyond devastated by how cruel and Godless this world and it's inhumane systems are. God bless you. Much love 💕
Thank you so much for this. I have never had to deal with this except my favorite aunt, and she is just at the stage where she asks you the same question over and over. Oh it scares me to think of this happening but I thank you for letting me know what to expect. God bless every person and family that is dealing with this.
Thank you for the information and your thoughtfulness and kindness. Yes we all have souls and and having a relationship with Jesus Christ is getting us through this dreadful disease.🙏💕
This video is the best explanation of Dementia I’ve watched, my sibling & I are currently struggling for answers about my Dad’s condition which has drastically deteriorated, thank you for clarifying every step & yes they are still souls who had wonderful lives & should be treated with compassion & dignity 🙏
he is not sure who I am often been married to him 21 years,, cant feel his bm when he does, is mean,,,,,,delusions and trying to destroy my life,,,,,,made up things to try andput me in prison,,,,,so he wont go in a home,,,,,,,this is a evil,,,,,,,,,,,,,,,,desease,,,
Thank you Sir. My mom is in the final stages of Dementia and it’s hard for me to see her deteriorate like this. You have made it clear to me as to what to expect from this point forward.
My mom appears to be getting close to hospice care one minute and bounces back to the moderate state the next minute. It is a constant back and forth. One minute she can't even put a sentence together or is clueless about the meaning of what I am saying and the next minute she is talking away and following my directions to the T. It's so frustrating!
My grandad say he's not had his tea even tho he has.. then he said he ain't cos he ain't had his meds even tho he has... after made him a cuppa he forgets=/ dunno what stage he's at tho.
My step father has it since 2018 and now he's forgetting alot and for the past 3 months he's been using the toilet every day every 10 mins he will go at night all night we are going through a roll of toilet paper a day cause he feels he has to poop its sad and frustrating cause it's costing us so much and my mom is taking care of him he's only 58 too every night is hard and even during the day cause he constantly has too poop so we have to shower fast cause we never know when he's gonna bang on the door and he doesn't realize how much he poops he gets mad at us when we say something too it's sad and frustrating like I said.
Has he been checked for infections? There is something that makes a person feel like they have to poop when they don't. Also Irritable bowel syndrome will do this.🙏🙏🙏
My mom lives with me i care for her 24/7 i would never put her in a nursing home no wayl. she is bedbound and she gets anything she wants i will provide for her. we are from europe we do not throw away our elderly.
I cared for dad for 3 years but in his last stage he is violent. He has destroyed every part of my house and jumps out windows.. I had no choice but to put him in a home, I have a 6 year old to protect! It is NOT throwing anyone away it’s about his safety and mine. He turns on oven burners at 3 am that’s nonsense!!!
It's important to make sure that your patient is seated all the way upright as much as is possible to more easily facilitate proper swallowing, especially as aphasia becomes more of an issue. I also make sure she's at least partially elevated, like to 30°+, to help prevent aspiration of her saliva or vomit while sleeping. That way gravity works in its favor.
Why a peg tube with someone who has advanced dementia? There’s no quality of life at this stage. Why extend it? My mother has late stage dementia and I’m glad she made it clear early on that she didn’t want this.
We put all legal information well in advance. Neighbors stepped in, knowing nothing about our family dynamics and took over. CPOA’s have little teeth. They now control the family estate de irected by our demented father.
What about temperature agnosia ? If i dont warn or tell my mother in law to be aware thwt something it hot, she will see steaming food and eat it. I learned that real quick. Now i have to make sure her food is always the right temperature.
However, their soul is still in there, they are still children of God. They are entitled to be treated with humanity and with the dignity and respect that they deserve, as valued members of our community. I was not expecting to hear that in the end, that bought me to tears. A beautiful reminder.
Thank you so much as your information is the best I have ever heard!! It is so sad of how much damage Dementia and Altzheimers to our brains and our bodies too!!! So very cruel and heartbreaking too how our relationships with them which was wonderful can become terribly upsetting!! One big reason is they can become very mean and aggressive towards us instead of the sweet person they used to be!! I know as I have had to experience this just recently and had to suffer the consequences!!😢
Even though this video is 9 years old, it was probably the best video on dementia that I have ever seen and the last few minutes were beautiful and will help guide me through the care of my husband. Thank you for putting this video out there!
I agree, this is the best video i have seen so far!
I agree, it’s the best I have ever seen.
I'm an RN in Home Health. If a patient has any terminal disease--Alzheimer's, Dementia, COPD, etc.--I tell the family that they need an Advance Directive while the patient is still able to state their wishes. I also promote deciding on a primary Legal Representative so there's no arguing within the family when the patient gets critically ill. MOST patients don't want feeding tubes, or repeat hospitalizations. The bottom line is to let them die when the time comes. Also, Hospice is FREE. Many people don't understand that.
Wait, Hospice is Free?
The family doesn't pay?
How?
Depends on the civilization achieved by your nation. Here in Australia is ok. Medicare. Also most European nations, Canada, New Zealand, etc.
NOT TRUE
Not in the USA
@@ThuyNguyen-bu9ge Medicare A
Wow, this Dr. Is by far the best. I have been YouTubing 4 years now. Husband has dementia. God blessed this Dr. Thank you
Seeing these brains in real life has been a rude awakening.
I never realize that our brain can shrink and have gaps in them like this.
Thank you for this educational video.
My mom just passed from this disease she was diagnosed at the age 76 she died at the age 83. This disease is cruel and heartless I watched once a strong willed woman become a shell of her former self it is heartbreaking to say the least.
I'm sorry for your loss. My husband has Alshemers, I'm going through this now.
@@MajesticMe429 🙏Everything in God’s hands✨💕
That is so horrible.
Would you mind sharing what were the symptoms of her disease?
@@MajesticMe429 3
@@noracarvalho8323 amen.
Thank you for this video. So much great information here. My grandpa is nearing the end stages of dementia. He chokes on his food &/or pills. He is falling down all the time. He looked at my grandma today & said "whats your name". They have been married for 50 years. I could see her heart break when he said that. I am just trying to learn as much as I can so that I can help both of my grandparents through this hard time.
My mum doesn't know who I am either. It breaks my heart.
My husband has dementia. End of life diseases and pain are horrific. OMG… I had no idea. Although I am grateful for this information. I am heartbroken watching this video.
Wow, this is one of the best/thorough videos on this subject, I've found! Thanks.
This man is well educated and right on!
I wish I could have this man make my last wishes rock solid.
Thank you for this very informative video. My sister is in late stage dementia and had a hospitalization last Oct for acute sepsis. She is now in a nursing home and was previously in assisted living. She has lost 25 lbs since her hospitalization. I was able to get her an emergency appointment with Pat Summit Alzheimer’s clinic, and she will be evaluated for hospice care. This is a very difficult situation, and my siblings and I will not prolong her life. Once she no longer recognizes us or can no longer accept food or water….we will get hospice involved for comfort care. My sister will eat if you feed her. My twin and I are her POA.
UPDATE: I took my sister to her neurologist appointment, and I had asked for her medication list from the nursing home. I discovered the nursing home psych PA had decreased her memory medication, Aricept from 10 mgs to 5 mgs, and decreased her Zyprexa from 7.5 mgs to 5 mgs, and took her off of her anti-anxiety medication that she had been on for 20 years. I had asked for two months to have the psych PA to call me. I was told he does not talk to family members. Really? The neurologist could not believe the psych PA would do this….especially with her mental history. He told me that once my sister goes under hospice care that they would prescribe and manage all of her medications. I had no idea that once you go into a nursing home that their money making drs take control, and totally disregards getting any resident medical history. After two months of my frustration, dealing with the staff on her not getting fed and not having water available…..I finally called the director. My sister’s neurologist commented that she looked dehydrated. The social worker told me that family members don’t normally get involved. I find it hard to believe that family would dump their loved one in a care facility and not ask questions when they notice their loved ones sudden decline.
I'm so with you, I have come across defensive attitude, making me feel I can't care for my 99yr old mother and tell them how cold she is or agitated or anything and not wanting to be a pest. All I can do for sure is be with her as much as I can.
Advocating for her is a battle and the best thing you can do for her. Take notes and report them, unfortunately many care homes are just like cattle stations@marynolan3471
This was more informative then meeting with my mom’s physician. This doctor knew more 10 years ago than most now. His manner of addressing the health and emotional stages of Alzheimer’s is admirable. I thank you doctor for giving me the knowledge of how to deal with my mom’s end of life. God bless.
Thank you for helping me to understand. The long goodbye is hard.
Very good basics. My parent was well enough to request the PEG tube after spoon feeding and a nasal tube failed. We honored the request. She is now past the point of electing it. We’ve all agreed that when the time comes that she can’t metabolize the food or it causes undue pain, it will be removed and hydration only will be given. Fortunately, there was foresight enough to make an advance directive that has some wiggle room for after competence has gone. Ventilators, resuscitation, invasive surgeries with no chance of improved life quality, all not wanted. Acceptable are hospital for outpatient procedures like adjustment of PEG tube, blood transfusion, scans, etc. IV antibiotics needing watching are okay in hospital, if towards the end of increased comfort. Analgesic to a trance state is not wanted for religious reasons. We’ve been blessed with a pastor who is able to make nursing home visits and at home visits during COVID.
Thankyou for this....we are living with our 93yr old baby. Alot made sense...even here in the Uk.👍
I want to go before I get like that
Robin Williams was diagnosed with Alzheimer's & he decided to end his own life before he deteriorated. Very sad because most people loved Robin Williams, but I believe it was his choice how he decided to leave this world.
Girl, me too.
I will end my life!
So do I.
Than you for so patiently making things clear. My husband is in severe stage and will the help of our Creator we’r doing fine.
❤ God is with you
Praise the Lord, the greatest physician of all.
Thank you for this needed information. My mother stopped walking and has been on Hospice for about 3months now. I can see all of the indications that she is at the end stages of vascular dementia.
This is my second time being a care giver but this is by far the most difficult one.
God bless you.
I'm going through it with my father. It's so difficult on so many levels.
@@bobcatstillwell4844 my dad has Alzheimer's. Keeping the faith with you.
Im looking after my auntie who has vascular dementia. She's early stage at moment but won't get out of bed!!!
Stay strong your an amazing person ❤❤❤I look after our Mum too she's also bed bound ❤️❤️❤️It's like constantly loosing a piece of her and grieving within knowing where this will end ❤️❤️❤️ Being real about it ❤️❤️❤️
Excellent presentation Thanks for sharing.
Thank you ..going through end stages dementia with mother in law..so sad to watch this debilitating Disease
Very informative. My dad is in the middle stage of Alzheimer’s. We’ve just had to take away his driving privilege. He just turned 89. I’m worried about him going down quickly because of his age. His mother lived to age 90. I will be getting that advanced directive. My family are trying to let him stay in his home as long as possible,but when it becomes unsafe we will have to move him to a nursing home. Thank you for the much needed info.
Can do live in carers so 24hrs a day care
My mum wanted to go home right up to the end.
Definitely the best video of dementia I have seen and have learned a lot. My husband suddenly became a dementia patient when i noticed his driving became dangerous and I felt as though we were an accident waiting to happen.. anyway I will be able to look after him as long as he is not incontinent. That would be too hard for me.
thank you for your heartfelt kindness and detailed explanations at this difficult time. you are a true doctor .
I feel that my grandmother can be in these stages shes 97 and currently in the nursing home upon my visits she has yelled at the nurses, social worker she has gotten fearful that someone is trying to sell her house that she has lived in for over 50 years
Thank you soooo much in helping us understand. I wish these slides were printed.
My husband was just diagnosed with dementia and it troubles me so much to think I would ever have to put him in a care facility.
My husband has dementia too.
Please don't think of it as abandonment. Providing the level of care that is needed is beyond one person's ability :( The best one can do is finding a good facility and visiting as often as possible. Care at home is very difficult and can be very dangerous for the patient - the risk of falling and hurting themselves is high, rarely homes can be adapted to be 100% saf. Not to mention that it is incredibly difficult on the caregiver and is beyond strength of a single person, especially one very close to the patient emotionally. We shouldn't guilt people into doing what society deems "more moral" because it simply isn't and most people doling the judgement know little of dementia realities.
We kept our mom at home for about seven years before we had to place her in a facility. She actually got better in the facility, because she had around-the-clock care. When she was at our home, she lost interest in eating and then lost a significant amount of weight. If she was up wandering at night at the facility, there was always a nurse to sit and talk with her and comfort her.
She had friends and a lot of activities which were stimulating for her and kept her busy. My dad and I were able to visit and just love on her all the time, instead of fighting with her to change her clothes and take her meds. Plus, we knew she was safe. She wouldn't get out at night while we were sleeping. Is it the perfect situation? No, it's not, but once you've been a caregiver for a long time and you have caregiver burnout, you'll understand that 24 hour care is needed. My mom died recently at age 80 with my dad by her side. Put an alexa or camera in their room at the facility. Not all caregivers are quality and there is a big turnover in this field. This is the saddest thing I've ever had to experience in my entire life, my poor mama.
My mom wanted to keep my dad at home. She lost years off her life before we could convince her to place my dad. She wanted an outrageously expensive place. Spent the last years of her life suffering for this. Don't let this happen to you.
Ty for explaining this in such basic terms….it has made it easier for me to make decisions for my family member with Alzheimer’s and also for me when my time comes. I can discuss this with family members with some knowledge and clarity. It has helped immensely.
Thank you! This info was very helpful. I just lost a friend to dementia after he was in a nursing home for 6 years. He was 95 when he passed. I also have a friend whose husband has been recently diagnosed with dementia.
Thank you for explaining these things carefully with the consideration of all involved.
Finally, the best video answered my questions, thank you for sharing
I care for my husband, he's in the seventh stage of Alzheimer's now
His Alzheimer's began in 2018, to date, unable to walk, talk, dress himself, feed himself, is incontinent, sleeping more
One thing he's still able to understand what you say, still smiles, cries listening to music (he had his own Band) taps his finger on the table , he'll nod his head for yes, even though very slightly, or a Hhmm
I'm doing my best to care for him at home, with two Care givers during the week
He's made it clear he wants to be home with me
I wasn't sure how hospice works, now I do
Other changes to watch for as my husband Alzheimer's progresses
I'm reading, searching for answers, looking up answers when I notice my husband doing something different
Thank you so much, again
Thanks for this. I’m trying to feed my wife who has ftd. Diagnosed in 2014. She hardly ever wants to eat and it’s a nightmare getting her to feed. I’ve got her to eat blended foods and yogurts but it’s only when she wants to feed. My Doc said give her whatever she wants whenever she wants it.
Do not push food, if a patent refuses it, it only makes the EOL more difficult for them, even if it makes you feel better x
Typo patient
Thank you! The most helpful info I've received on end stage. I appreciate your acknowledgment of the need for respect for our loved one until the end. The importance of letting go is difficult for us but the best for our loved one. Very informative and well presented.
Best video I’ve ever seen on this topic ! Thank you
Thank you very much for this information. The criteria in 49:50 are very useful for my brothers and I at this point of our mother’s disease. GB
35:30
37:20
38:50
44:30
49:50
ps mom knows me only about 20 percent of the time but that doesnt matter because i know her...
My Mom with Dementia is saying I’m waiting for God. She’s hardly eating now, probably 80 lbs. She is having bladder & pooping issues, often soiling herself. She doesn’t want to live like this, and sometimes knows she’s not herself. My Dad, her caregiver won’t accept help, tho we continue to push for him to get help brought in for him & Mom. To get him some relief, as he’s starting to show signs of memory loss. Most likely brought on by exhaustion, worrying. As Mom is wandering & sometimes hostile towards him, as he try’s to help her. We’re looking for alternatives to bring in support at home to help them, as well as long term care, as needed. My Dad’s denial of what care could be brought in, is devastating because I’m trying to get help for the two of them, and he isn’t open to suggestions. I can only do so much, and am there for both of them. It’s a horrible experience! I’ve made my will, living will, and care instructions ahead, including my funeral arrangements, so my family doesn’t have to guess what I want for end of life.
Prayer is powerful for your peace and the serenity of your loved ones, too. God is with each and every one of us, my dear friend ❤
I can't begin to tell you just how much I could have written your comment for myself. I'm in PRECISELY the situation you describe. In addition I'm urgently investigating what I now KNOW to be the dangerous and inappropriate prescribing of and ZERO reviews/monitoring of toxic drugs that have done little if anything to help my mum and everything to harm her. I'm beyond devastated by how cruel and Godless this world and it's inhumane systems are. God bless you. Much love 💕
You might have to take gaurdianship of both of them.
Thank you for you direct discussion about alz and dying with dignity
Thank you so much for this. I have never had to deal with this except my favorite aunt, and she is just at the stage where she asks you the same question over and over. Oh it scares me to think of this happening but I thank you for letting me know what to expect. God bless every person and family that is dealing with this.
Thank you for the information and your thoughtfulness and kindness. Yes we all have souls and and having a relationship with Jesus Christ is getting us through this dreadful disease.🙏💕
Thank you very good talk have a great and safe week.
This video is the best explanation of Dementia I’ve watched, my sibling & I are currently struggling for answers about my Dad’s condition which has drastically deteriorated, thank you for clarifying every step & yes they are still souls who had wonderful lives & should be treated with compassion & dignity 🙏
Thank you; they/we are children of God❤
I don’t understand why anyone would consider peg tube for someone with Alzheimer’s, it’s not a life.
My dad has an advance directive. He made it very clear. If he loses his love of eating. Just let him die quietly and at home where he feels safe.
Thank you very much for sharing.
Thanks greatest video I’ve seen
he is not sure who I am often been married to him 21 years,, cant feel his bm when he does, is mean,,,,,,delusions and trying to destroy my life,,,,,,made up things to try andput me in prison,,,,,so he wont go in a home,,,,,,,this is a evil,,,,,,,,,,,,,,,,desease,,,
Was he always mean though?
@@louelaine6539 yes he was
@@pagen5219 sorry to hear. How miserable for you
@@louelaine6539 Thank you. I keep praying that Jesus will intervene and help! Whew.
This was so helpful. Thank you .Will refer to it
Your information is very helpful to me as I work in a Senior facility in the Atlanta area.
Thank you Sir. My mom is in the final stages of Dementia and it’s hard for me to see her deteriorate like this. You have made it clear to me as to what to expect from this point forward.
Thank you for the video and your time.. You have answered all my questions.
Amazingly helpful thank you 🙏
Lots of valuable information in your video. Thank you.
Very good video. Thank you
Thank you. ❤
I really appreciate this well done and realistic video.
I've saved this..i am struggling for sure..the explanations are priceless!🙏💘🙏
My mom appears to be getting close to hospice care one minute and bounces back to the moderate state the next minute. It is a constant back and forth. One minute she can't even put a sentence together or is clueless about the meaning of what I am saying and the next minute she is talking away and following my directions to the T. It's so frustrating!
My grandad say he's not had his tea even tho he has.. then he said he ain't cos he ain't had his meds even tho he has... after made him a cuppa he forgets=/ dunno what stage he's at tho.
Mentioned in this video. Loss of short term memory. This is expected and "normal".
My step father has it since 2018 and now he's forgetting alot and for the past 3 months he's been using the toilet every day every 10 mins he will go at night all night we are going through a roll of toilet paper a day cause he feels he has to poop its sad and frustrating cause it's costing us so much and my mom is taking care of him he's only 58 too every night is hard and even during the day cause he constantly has too poop so we have to shower fast cause we never know when he's gonna bang on the door and he doesn't realize how much he poops he gets mad at us when we say something too it's sad and frustrating like I said.
Has he been checked for infections? There is something that makes a person feel like they have to poop when they don't. Also Irritable bowel syndrome will do this.🙏🙏🙏
This is mentioned in the video, in abstract terms. It is medically "normal", though hard to accept for innocent outsiders
Incredible advice extremely valuable, thanks
Great video
I realy apreciate this video
Excellent video on this topic and very well educated thank you so much Keila Hayes
I loss my mother 3yrs ago so I'm trying to learn much as I can so sad😢
My mom lives with me i care for her 24/7 i would never put her in a nursing home no wayl. she is bedbound and she gets anything she wants i will provide for her. we are from europe we do not throw away our elderly.
I cared for dad for 3 years but in his last stage he is violent. He has destroyed every part of my house and jumps out windows.. I had no choice but to put him in a home, I have a 6 year old to protect! It is NOT throwing anyone away it’s about his safety and mine. He turns on oven burners at 3 am that’s nonsense!!!
I also take care of my mom 24/7 and hope to until the angles come, however, everyone has different circumstances so I will not judge.
I felt that 😢😢 and I agree with you @America
Some people are so frail themselves, they die or become more ill from the stress of caregiving.
@@swazeyjones3547 💗
very helpful and clear, thank you
There is a sync problem between the audio and video. But if you just listen to it and only view the video when there is a photo, not a problem.
Thank you for my ❤ for this video 😢
I wish my MIL would just die in her sleep. She is so tortured, it’s just awful. She is down to 82#, it’s so sad to see her like this!
Best video about Dementia!
I walked the walk wi my daddy!he just passed june 5th 2024,he was 77,for 11 years 24/7😢😮❤❤❤
excellent thanks
This is a old video but very informative.
thank you
Very Interesting
Thank you for this video
It's important to make sure that your patient is seated all the way upright as much as is possible to more easily facilitate proper swallowing, especially as aphasia becomes more of an issue. I also make sure she's at least partially elevated, like to 30°+, to help prevent aspiration of her saliva or vomit while sleeping. That way gravity works in its favor.
Very educative indeed
Thank you..its been a hard 1p years of alz...in severe stage now. Its a cruel disease...
Why a peg tube with someone who has advanced dementia? There’s no quality of life at this stage. Why extend it? My mother has late stage dementia and I’m glad she made it clear early on that she didn’t want this.
Thank you ❤
Thank you for your compassion
Sad. Currently, my poor mom!
my Nana
Thanks
Very informative talk.
my words will be LOUD!
My grandmother.
Very informative, thank you.
Thank you
Excellent presentation. Has the info been updated to 2023-24?
EVERYONE RIGHT NOW IS RELAXED... UNTIL ONE LONE WOLF PULLS THE DEAD-STICK
!
We put all legal information well in advance. Neighbors stepped in, knowing nothing about our family dynamics and took over. CPOA’s have little teeth. They now control the family estate de irected by our demented father.
Spiritual needs should be first on the list.
I took care of him at home 24/7😢❤
What about temperature agnosia ? If i dont warn or tell my mother in law to be aware thwt something it hot, she will see steaming food and eat it. I learned that real quick. Now i have to make sure her food is always the right temperature.
The best education
Is it ever appropriate to restrict visitors that had a positive impact on the patient's life?
My mum RIP
My mother died,,10 ,, before she was legally declared dead,,,
carrot juice is a great help