Dandy Walker Syndrome: Can I have children???
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- čas přidán 14. 03. 2018
- A matter of great concern for me as a woman with Dandy Walker Syndrome was how the condition would affect my chances of having a family. Here you will hear my findings on the research I did into this subject.
❤Hi from Oklahoma, U.S.
I found your videos a few months ago & really just have to say Thank you VERY MUCH.
I found out for the 1st. time, about a year & 1/2 ago that I have Dandy Walker also. My neurologist says that for many things that somehow my brain was able to rewire itself, so we never knew that I had it.
I was adopted when I was 3 so have no idea what my birth mother might have known about any medical issues & it definately wasn't passed on to my adopted parents.
Although I had several miscarriages, it was after I was able to have a healthy daughter.
Prayers n hugs to you....& thanks again for your wonderful videos; like you, I've little about dandy walker concerning adults.
I know that I didn't mention it; but, I turn 63 next month. The doctor told me that at my age, that they either diagnose you after a brain mri because of a medical issue (mine was seizures from medicine I was put on to try to get away from cigarettes)...or by having an autopsy done.
Thank you for the videos . I was diagnosed with Dandy walker in 2004. You have answered a whole lot of my questions. I hope you put out more videos.
THANKS FOR SHARING
Thank you.
Peace be upon you, sister. We can contact you
I always thought as most of us experience chronic head and neck pain and get very bad headaches that how would we get thru them without access to pain relief and what about the actual birth? Could our shunt break from the force of us pushing?
dear sis Hello .... im from Pakistan ...
my 1st baby boy is 2yr an old. he's suffering from Developmental delay.. now i come to know that He is Dandy walker variant... i'm much worried ... Please tell me ... can my child move on their life.. he become a normal in life ... i have no idea ... please dear tell me ...
Hello! Thank you for your comment. I can understand your concern. I am not a medical doctor so I cannot give developmental or medical advice. It would be best to check with your doctor what therapies are available in your area that could help in your son's development. Even as a mom talking to your child and playing movement games with them can be quite stimulating, but the best course of action would be to consult your doctor.
Hi
@@JustBeeingMyself thank you so much for reply ...
yes.. you r absolutely right and im also concerning with neurologist... and further taking physiotherapy...
i wish you all the v v v best dear for your life and i hope that i'll See my child as normal as you in Future..
Thank you so much
@@nilambodare8383 Asslam-o-alaikum
@@TheWorldBeauty.786 hi sister i read your comment that you have a dandy-walker syndrome baby. I have questions. Can i ask you??
Any updates?? 🤗
Cheflily O Hello! Thanks for your comment. I realize I haven’t filmed in a while. I will try do a bit of a life update video soon.