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Finding Dandy Walker...
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- čas přidán 28. 09. 2020
- While I always knew the gist of the steps that led to my diagnosis with Dandy Walker Syndrome, it was only after a lengthy chat with my mom that I learned all the details.
Where are you now?
I really appreciate your efforts to help others ❤️ keep posting videos
Thank you. Very encouraging
Hi,Thank u for the video...My daughter was diagnosed with dandywalker malformation at the end of my pregnancy on an ultrasound.At 3 weeks old it was sure on an mri with intensity fliud at the back where the cerebellum should be,she has the cerebellar tissue but her vermis wasnt seen.It was the hardest time in my life,and at the same time shes the best thing in my life.Shes one but doesn't sit up or stand up alone ,she rolls over turns in circles and crawls on her stomach a couple months back.Now shes trying to pull up and crawl on her knees at one years old.I was afird of she gaining hydrocephalus but thank god no sign of that at all.She has an MRI soon,but am so so scared to go through that again.can I teller when u hit ur milestones.I believe shes going to be behind,but am willing to face that.
hi..hows your baby?i have a 3 year old son that has a dandy walker.at the age of 3 he cant walk alone.
Plz tell the condition of ur baby now plz
@cuteangel7849 my grandbaby started walking alone about 3 years old she is 10 years old now with DW.
Thank you for this video.
My wife is pregnant in the 23rd week. Our unborn daughter was found to apparently have no cerebellum and an oversized 4th ventricle, in ultrasound imaging. MRI is still due. DWS is a possible diagnosis. We are wondering, how much it will affect her. Will she be just a vegetable? We are glad to see, there are people like you, too.
We were told that every case is different. We were given the worst case scenario. My grandbaby has Dandy Walker, she is 10 years old. She has not needed major surgeries. She is a late learner. Walking, talking, potty training were all delayed compared to most normal kids. We think she had a seizure a couple of months ago, not sure if it's because of DW. She is scheduled to see neurology. Which she hasn't seen since she was about 2 years old. They said there was no need to. 😒
My son diagnosed as DWS..at age 11 yrs
THANKS FOR SHARING
You ssid something right there. If u can fuction with 1\3 of your brain i got plemty lol
My granddaughter has the syndrome she’s only 8 years but she don’t talks
What hospital did u use?
Hi, i was pregnant with dandy walker syndrome baby. Doctors told me to terminate.
I am so sorry you had to go through that. I’ve heard that quite a bit from those expecting a baby with Dandy Walker.
Daha fazla bilgilendir bizi,oğlum 2buçuk yaşında şant takıldı ne gibi sıkıntılar yaşadın?
We are trying for pregnancy. Can i get normal baby?? Please reply
From what I’ve heard Dandy Walker is often a random occurrence. If you are worried I would encourage you to seek genetic counseling.