Welcome to my first ever video. My life with Dandy Walker Syndrome

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  • čas přidán 10. 09. 2024

Komentáře • 6

  • @fatehabegum5463
    @fatehabegum5463 Před 4 lety +1

    Thank you for sharing videos. Dandy walker is definitely misunderstood. X

  • @arbizenimar7720
    @arbizenimar7720 Před 4 lety +1

    Thank you, your video gives us hope, my son was just diagnosed with dandy walker variant, can you share us more videos and inspiring thoughts..

  • @fatehabegum5463
    @fatehabegum5463 Před 4 lety +1

    How many times have you had shunt revision? My Hannah has Dandy walker syndrome & VP shunt, she is 9 years of age. Did you as a child had any behaviour problems? Are you under any sort of ADH spectrum? How was your childhood? Thank you xx

  • @Meme-yi8rn
    @Meme-yi8rn Před 3 lety

    can i contact with you in email i have to many questions, i have daughter she have dandy walker..

    • @JustBeeingMyself
      @JustBeeingMyself  Před 3 lety +1

      Meme, you are welcome email me, but might I suggest you post your questions here so that others can maybe add their own. I plan on doing Q&A soon. Also I have to put the disclaimer that I am not an expert and can only speak from my own experience.