What is Dandy Walker Syndrome?
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- čas přidán 6. 07. 2024
- Dandy-Walker complex is a congenital brain malformation involving the cerebellum (an area at the back of the brain that controls movement) and the fluid-filled spaces around it. Learn more about the symptoms, causes, diagnosis and management of this disorder. www.xpertdox.com/disease-desc...
I'm 33 and recently learned I have this syndrome. However I lived a normal and a very creative life, my only problems were bad memory and I'm cloud headed most of the time. I got this out of nowhere attacks summer where my hand would get numb and lead to my whole one side of the body to be numb and I couldn't speak or think properly. Worst was when one attack paralyzed me entirely and I was blind on my left eye for 1 hour.
I saw many doctors and one of them was really good and told me I don't need any surgery I just need to wear a hat and sunglasses under the sun. I asked for a pill to ease up the attacks he gave me anxiety pills and attacks went away slowly.
Best thing is to live your life and not think about it, i get sensitivity to light here and there but I think that's all from my anxiety. Key is to not stress, keep your activities one at a time base, keep your mind clean from things that affect you. Hope this helps anyone who has this issue cuz I was trying to find answers and couldn't find anything online when that happened to me.
Hello, I suffer from the same disease as Kyari. My question to you: Did you undergo surgery and how is your memory? Is there any improvement?
I delivered my baby before 8 days ago and they are saying he is having this syndrome is it normal😢????
I am a 69 y.o. male and diagnosed w/DWMalforation at around 60, after severe headaches forced me to get an MRI &
Cat-Scans. I have a twin that does not have DW. Growing up people made fun of my big head, my lack of coordination and my poor sense of directions. Mentally I excelled in playing music by ear, but am unable to read music & am horrible at math & most sports; however, I excelled at academics & have been in MENSA since 1978. I'm very sensitive to light and keep my blinds closed & wear sun glasses religiously. Have also developed exceptional hearing, but my eye sight has grown weaker over the years. I still get debilitating headaches, am prone to light seizures, have reactive arthritis & COPD. All things considered, I'm better off then most. I still drive and enjoy socializing and as an adult less people make fun of my head size, but it is difficult finding hats that fit...
@@Faroooha-rs7uq Yes, your baby should be 'normal'. The condition isn't that bad, it's how people react that's the worry.
@@Faroooha-rs7uq Sorry about that, I would give the baby a very good normal life so he/she doesn't feel they have a condition. Wishing you and your baby the best, don't think of it all will be good. Congratulations on the baby 🙃
i was diagnosed at 7 after i kept having to miss school over severe headaches. needless to say it scared my family pretty bad but now i’m 19 and the headaches have went away. other than that i’ve had no symptoms.
I delivered my baby before 8 days ago and they are saying he is having this syndrome is it normal😢????
Thank you for the info, my boyfriend has this and it makes much more sense now
I have dandy walker syndrome. Everyday is a struggle.
Background
Music is too loud
I am the first woman in the U.S. who was diagnosed with Dandy/Walker Syndrome in 1992 i gave my son Maxi Roger to Science for further study and research of the Dandy/ Walker Syndrome
My sister is suffering from dandy walker syndrome, she is 20 years old now, best places where she can be treated?
Asad Khan Do research yourself, you can't depend on other people to help when your family is in need, lookup the best neurological hospitals, make sure they are the best place possible for this neurological disorder and go from there, i hope i dont sound rude but you cant depend on other people, i hope the best for your family and i hope you sister can get the treatment she needs.
What type of doctor does treat and explain this condition? Whom do you recommend?
Teresa Strach a neurologist
I have dandy walker I was diagnosed at 12 it hit me really hard I don’t have the back part of my brain
would a neurologist detail and explain this syndrome?
Same here man.
What disadvantages do you feel ?
Do you feel normal ?
I typically define the missing area as not having all my marbles :)
I delivered my baby before 8 days ago and they are saying he is having this syndrome is it normal😢????
It's size 1.5 cm . What is dangerous?
Can you relate some of the symptoms and affects of this condition?
I was diagnosed thru amniocentesis i was 16 years old elected abortion in OU Medical
Atleast tell about pathophysiology of this condition before giving other useless information.